Hyatt Regency Aurora-Denver Conference Center, …25pm Clinical Trials Update Every day research is being conducted to unveil new medications, therapies and diagnostic tools for Sjögren’s

Final Page 1 2018Sjgrens Syndrome FoundationNational Conference Brochure 25.375 x 11> 8.5 x 11 4/4, Full-Bleed C M Y K

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e r g . p r o d u c t i o n @ r e d g r a s s - s t u d i o s . c o m SSF_17149.02

10701 Parkridge Blvd., Ste 170Reston, VA 20191

Refund requests must be made in writing. Registrants whose written requests are received by March 26th will receive a 75% refund. After that time, we are sorry that no refunds can be made.

Dietary Requests: Unfortunately, we cannot accommodate all special dietary requirements. We can accommodate vegetarian or gluten-free dietary requests.

A limited number of rooms are available, on a fi rst-come basis, at the Hyatt Regency Aurora-Denver Conference Center (13200 East 14th Place, Aurora, Colorado 80011) at the SSF rate of $132 per night plus tax if reservations are made by March 22, 2018. Call the toll-free hotel Central Reservations number at 1-888-591-1234 or call the Hyatt Regency Aurora-Denver Conference Center directly at 1-303-365-1234 and refer to the group name Sjgrens Syndrome Foundation for the discounted rate.

The Hyatt Regency Aurora-Denver Conference Center is approximately 16 miles from the Denver International Airport.

3 PAYMENT Mail to SSF, c/o BB&T Bank PO Box 890612 Charlotte, NC 28289-0612 or Fax to: 301-530-4415 Enclosed is a check or money order (in U.S. funds only, drawn on a U.S. bank, net of all bank charges) payable to SSF. MasterCard VISA Discover AmEx Card Number ___________________________ Exp. Date _______________Signature ________________________________________________________________ CC Security Code _______________

1 ATTENDEE complete for each registrantAttendee Name(s) _____________________________________________________________________________Attendee Name(s) _____________________________________________________________________________Street Address ________________________________________________________________________________

City ______________________________________ State _______________ Zip _______________________

Telephone _______________________ E-mail _____________________________________________________

2 FEES please circle appropriate fee(s) (Note: Early Bird Deadline is March 21, 2018) March 21st and before March 22nd and afterSSF Members & Guests $170 per person $190 per personNon-Members $190 per person $210 per person TOTAL:

Space is limited. Please register early!

Registration FormRegistration fees include: Friday evening dinner, Saturdays lunch, hand-out material from speakers and entrance to exhibit area on Friday and Saturday.

2018 NATIONAL PATIENT CONFERENCEHyatt Regency Aurora-Denver Conference Center, Colorado

April 13 14, 2018

QUESTIONS? Call 800-475-6473 or visit www.sjogrens.org

I would like a vegetarian meal I would like a gluten-free meal

April 13-14, 2018Hyatt Regency Aurora-Denver Conference Center

13200 East 14th Place, Aurora, Colorado

2018National Patient Conference

Exploring Sjgrens

Another exciting Sjgrens patient conference is on the horizon. Plan to join fellow Sjgrens patients at our National Patient Conference this spring in Aurora, Colorado just outside of Denver! This exciting and informative two-day pro-gram will feature an array of presentations from leading Sjgrens experts who will help you understand how to manage all key as-pects of your disease.

Presentation topics will include: Sjgrens Overview Dermatological Issues and Sjgrens Lymphoma: Risk, Treatment and Prognosis Joint Pain and Sjgrens Oral Manifestations of Sjgrens Ocular Manifestations of Sjgrens Clinical Trials Update Tips for Comfortable Living How the Central Nervous System Can Impact Sjgrens The State of Sjgrens: Transforming the Future

Exploring Sjgrens2018 National Patient ConferenceApril 13 14, 2018Hyatt Regency Aurora-Denver Conference Center13200 East 14th Place, Aurora, Colorado

How the Central Nervous System Can Impact Sjgrens

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Friday, April 13, 2018

12:30pm Registration and Exhibit Area Opens

2:00pm Welcome and Opening Remarks Stephen Cohen, OD, SSF Chairman of the Board

2:15pm Sjgrens Overview Chadwick R. Johr, MD, is an Assistant Professor

of Clinical Medicine in the Division of Rheumatol-ogy at the University of Pennsylvania. He is also the Co-Director of the Penn Sjgrens Center and has a special interest in caring for patients with Sjgrens. Dr. Johr will present a compre-hensive explanation of the range of symptoms that Sjgrens patients experience, explain their causes, and offer treatment options and practical tips for managing them.

3:05pm Ocular Manifestations of Sjgrens Stephen Cohen, OD, a private practice optometrist

in Scottsdale, Arizona, since 1985, will describe the latest dry eye therapeutic treatments, covering the extensive range of options from artifi cial tears to silicone plugs to systemic drugs that are available for managing the ocular complications of Sjgrens. Dr. Cohen is a past-president of the Arizona Optometric Association and is the current Chairman of the SSF Board of Directors.

3:45pm The State of Sjgrens: Transforming the Future

Steven Taylor, SSF Chief Executive Offi cer

The Sjgrens Syndrome Foundation (SSF) has been embarking on new initiatives that are real-izing huge advancements for Sjgrens patients. From clinical trials for new therapies, to research to unlock the mystery of Sjgrens, Steven Taylor, CEO of the SSF, will share with us what is on the horizon for Sjgrens patients.

Following his talk, Mr. Taylor will lead a panel discussion with:Janet Church, SSF Chairman-ElectStephen Cohen, OD, SSF Chairman of the BoardKen Economou, SSF Immediate Past Chairman

The panelists will discuss the leadership of the SSF, talking about where we have been, where we are now, and where we plan to go in the future!

4:45pm Product Showcase Sjgrens patients use a number of over-the-counter

products to treat their various complications. During this session, we will highlight the vast array of prod-ucts that are available for Sjgrens patients. You wont want to miss this informative and helpful talk!

5:00pm Break and Exhibits

6:30pm Banquet Awards Dinner and Keynote Speaker

Darlene F. Cross, MS, LMFT, is a Licensed Mar-riage and Family Therapist in Henderson, Nevada, with 20 years in private practice. Darlene is also the author of the Amazon Best Seller, A New Normal: Learning to Live with Grief and Loss. Addi-tionally, she is the author of Reinventing Normal: How Choice and Change Shape Our Lives.

We are delighted to have Darlene Cross as our 2018 Keynote Speaker who will speak as a clinician who works with people coping with an array of losses, including loss through chronic ill-ness, a subject she knows well being a Sjgrens patient herself.

In addition, join us for this inspirational evening as we present our National Awards to vol-unteers, groups and organizations that have helped to further the mission of the Sjgrens Syndrome Foundation.

10:40am Tips for Comfortable Living Do you have a tip for living with Sjgrens? Have

you found a great way to cope with your Sjgrens? Bring your ideas to our conference and be ready to share them! We will be asking a few patients to join us on stage to share some practical tips for coping with the day-to-day symptoms of this chronic illness.

11:10am Walk For Sjgrens Participants are encouraged to join us for our

national Walk For Sjgrens event where patients and family members come together to stand up for Sjgrens! You can walk, support, or cheer on your fellow friends as we take a stroll outside the hotel.

12:00pm Lunch and Exhibits

1:05pm Joint Pain and Sjgrens Donald E. Thomas, Jr., MD, has a special interest

in systemic autoimmune diseases, especially Sjgrens and lupus. He is in private practice in Maryland, but he also enjoys teaching health care providers about Sjgrens. He is passionate about empowering patients, and he is the author of the patient education book, The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families. Dr. Thomas will add to your understanding of the many causes of joint pain and will offer tips to help you cope as well as treatment regimens.

Saturday, April 14, 2018

8:30am Registration and Exhibit Area Opens

9:00am Opening Remarks

9:15am How the Central Nervous System Can Impact Sjgrens

Edward Maitz, PhD, is a Diplomate in Clinical Neu-ropsychology and is also Board Certifi ed in cogni-tive rehabilitation and biofeedback training. Dr. Maitz is in full time private practice in Pennsylvania and New Jersey, and has faculty appointments at Drexel University College and Widener University. He has a special interest in Sjgrens and has published articles in the fi eld, and is a member of the SSF Clinical Practice Guidelines Committee. Dr. Maitz will share his vast knowledge about the physical, cognitive (brain fog), and psychological manifestations of Sjgrens.

9:55am Lymphoma: Risk, Treatment and Prognosis

Richard F. Ambinder, MD, PhD, currently serves as the James B. Murphy Professor of Oncology and the Director of the Division of Hematologic Malig-nancies at the Johns Hopkins Kimmel Cancer Center. Dr. Ambinder is active in the treatment of lymphoma and is the Co-Leader of the SSFs Lymphoma Clinical Practice Guidelines group. Dr. Ambinder will clear away the confusion surround-ing lymphoma and Sjgrens, defi ning the risks to Sjgrens patients and outlining the symptoms, treatment, and prognosis.

1:45pm Oral Manifestations of Sjgrens Ava J. Wu, DDS, is Clinical Professor, Depart-

ment of Orofacial Sciences, School of Dentistry, University of California, San Francisco, where she is Director of the Sjgrens Syndrome Clinic. Dr. Wus presentation will provide insights into how Sjgrens impacts your oral health as well as information to help manage and minimize the effects of dry mouth issues. After seeing thou-sands of patients in her career, Dr. Wu will deliver the answers that you have been waiting to hear.

2:25pm Clinical Trials Update Every day research is being conducted to unveil

new medications, therapies and diagnostic tools for Sjgrens. Join us for this informative presen-tation about how clinical trials add to our medical knowledge and, most importantly, the result of these trials can make a difference in the care and treatment of Sjgrens patients.

3:00pm Dermatological Issues and Sjgrens Natalie Wright, MD, is a board certifi ed dermatol-

ogist practicing in Dallas, Texas, who specializes in the diagnosis and management of autoimmune conditions of the skin. She manages the skin manifestations of lupus, Sjgrens, dermato-myositis, systemic sclerosis, sarcoidosis, and psoriasis, in addition to skin cancer and general dermatologic conditions. She completed special-ized training in these disorders at Harvard Medi-cal School and Brigham and Womens Hospital in Boston. Sjgrens patients can present with a variety of skin disorders that Dr. Wright takes special interest in diagnosing and managing.

3:40pm Conference Recap and Closing Remarks

Stephen Cohen, OD, SSF Chairman of the BoardSteven Taylor, SSF Chief Executive Offi cer

4:00pm Conference Adjourns

The Sjgrens Syndrome Foundation (SSF) has

Natalie Wright, MD, is a board certifi ed dermatol-

Edward Maitz, PhD, is a Diplomate in Clinical Neu-

Donald E. Thomas, Jr., MD, has a special interest

Stephen Cohen, OD, a private practice optometrist

Exhibit Area HoursPlease visit our Exhibit Area and fi nd new products and receive free samples!

Friday, April 13th

Exhibits open from 12:30pm 6:30pm

Saturday, April 14th

Exhibits open from 8:30am 2:00pm

Richard F. Ambinder, MD, PhD, currently serves as

2018 SSF National Patient Conference Schedule Exploring Sjgrens

Sjgrens patients use a number of over-the-counter

Ava J. Wu, DDS, is Clinical Professor, Depart-

Chadwick R. Johr, MD, is an Assistant Professor

Do you have a tip for living with Sjgrens? Have

Please Join Us!

This spring we invite you to join with fellow Sjgrens patients, their families, medical experts, and product exhibitors and attend our 2018 National Patient Con-ference, Exploring Sjgrens.

Sjgrens is not the same for every person diagnosed, which is why educating yourself on the most up-to-date information and treatment options is so important. Attend-ing the SSF National Patient Conference is one way you can gain information from many different sources while also meeting fellow patients.

This years Conference will include opportunities to:

Learn from national Sjgrens experts, researchers and SSF staff

Find new products and receive free samples in our exhibitor hall

Share with your fellow patients

Browse Sjgrens resources at the SSF Book Table

We encourage you to take this opportunity to gain an understanding of all the key aspects of Sjgrens. This two-day educational experience will give you the tools to take control of your health and learn how to manage and understand your Sjgrens symptoms and complications.

We are delighted to have Darlene Cross as our

Every day research is being conducted to unveil