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How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

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Page 1: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for
Page 2: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for lupus - an unpredictable and relatively unfamiliar condition that "does not have a clear set of signs”, and PEARL [People Empowerment for Arthritis & Lupus] was recently conceived to empower patients not only with lupus but also those with similar chronic debilitating conditions like rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis. Along the way, it became a humbling experience to learn about the daily struggles and triumphs in the lives of the patients who prove to us that their illnesses do not hamper their zest for life.Art, energy and passion unleashed … Stemming from special friendships, shared dreams and an exceptional spirit of volunteerism, these patients and their caregivers now take center stage to finally unravel “the Patient, the Artist” musicale and art exhibit. This special affair is also a fitting prelude to another LUISA initiative - the Asian Lupus Summit on November 29 to 30, themed “improving outcomes, improving lives” - is a way to thankourmoversandgeneroussupporters who have fueled the drive for lupus education and research through the years.Life can be fulfilling despite a debilitating illness. As these patients come out of their shadows, let us celebrate the beauty, life and strength of spirit - in every patient-artist, in every arthritis and lupus patient who may be going through difficult times, and in every person who cares for these patients.

(sgd) Sandra V. Navarra, MD, Rheumatology Educational Trust Foundation, Inc

Page 3: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Programme - 15:00 PM Opening of Art & Photo Exhibit (cocktails & string quartet) Artists: Eloisa Aguinaldo Monique Estrella Nice So Edrick John Anasarias7:30 PM Musicale Program hosts: Winston Maxino, Nicole Abas- DatayanSongs to warm your heart by Jose Mari Chan (guest artist)

Page 4: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Programme - 2

Rhythm of the Night by Diane Warren Celebration by Kool and the Gang

EJ AnasariasEloisa AguinaldoChristine BañaresArjun BinallaDaisy CabugaoElyn Centeno

Zenaida EstradaMonique EstrellaMarjorie InumerableKathleen ManeclangPaul Albert MendozaAileen Nabor

Mary Ann NievaGrace OcampoRaya ParalejasJose PerezNice SoMa. Pia Bernadette Villaruz

Dance Again by Jennifer Lopez, PitbullKathleen Maneclang Aileen NaborMary Ann Nieva Ma. Pia Bernadette Villaruz

The Prayer by David FosterArjun Binalla Grace Ocampo

Piano accompaniment: Catherine S. Zulueta

Page 5: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Programme - 3

Sonatina in C Op. 36, No. 1 1st movement - Allegroby M. ClementiPianist: Monique Estrella

Concertino by G. PerlmanViolinist: Kim Villaflores

Pianist: Catherine S. ZuluetaGreatest Love of All by Michael Masser, Linda Creed

Marjorie InumerablePianist: Catherine S. Zulueta

Sun and Moon by Alain Boublil, Claude-Michel SchonbergPaul Mendoza Raya Marie Paralejas

Pianist: Catherine S. ZuluetaMaalaala Mo Kaya by Constancio de Guzman

Daisy Cabugao Jose PerezPianist: Catherine S. Zulueta

Reflections of a beauty queenKyla Malupa

Page 6: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Programme - 4A rapper’s tribute to Mama

Spencer SolisRap Showdown

Zenaida Estrada and Spencer SolisFireworks by Katy Perry, Mikkel Eriksen, Tor Erik Hamensen, Sandy Wilhelm, Ester Dean

Kathleen ManeclangSeasons of Love by Jonathan Larson

Arjun Binalla Grace OcampoMarjorie Inumerable Paul Albert Mendoza

Kathleen Maneclang Raya Paralejas Robelle Mae Tanangunan

Eloisa AguinaldoChristine BañaresDaisy CabugaoElyn CentenoZenaida Estrada

Monique EstrellaMarjorie InumerableKathleen Claire ManeclangAileen NaborMary Ann Nieva

Raya ParalejasJose PerezRobelle Mae TanangunanMa. Pia Bernadette VillaruzMarie Catherine Zulueta

Hand Mime “What a Wonderful World” by George David Weiss, Bob Thiele

A Precious Gem An original composition for “the Patient the Artist”Lyrics by Adrian Ramirez Music by Catherine S. Zulueta

Page 7: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Support artist - performersDancers- Marian G. Galdones, MD, Geraldine Racasa, MD, Eugene Uy, MD, Mary Grace Manansala, Dominique Villanueva, Johnrey Garcia, Reyn TablizoHand Mime – Daryl Espiritu, Soledad Aguinaldo, Denise Banares, Eunice Ongue, Eloisa Marie Ongue, Efryl Joyce Ongue, Irene PerezChoreographers Dance- Cesar Reynon, Marsha MallariHand Mime – Emmanuel Sionosa, Michael Anthony LeeLeggiero Strings and Chamber Orchestra

Page 8: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for
Page 9: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

LOOK BEYOND WHAT YOU SEE……

Page 10: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Behind the scenes… The people who made it happen Producer

RHEUMATOLOGY EDUCATIONAL TRUST FOUNDATION, INC.President and CEO: Sandra V. Navarra, MD

Co-ProducerPSORIASIS PHILIPPINES

Chairman: JOSEF DE GUZMAN

Director/ Musical DirectorADRIAN RAMIREZ / MARIE CATHERINE S. ZULUETA

“The Patient, the Artist” Steering CommitteeChair / Coordinators

EVAN GLENN VISTA, MD MARIAN ESTHER GALDONES, MDHAYDEE GABUAY ROBELLE MAE TANANGUNAN

MembersEMMYLOU CASANOVA ROSE-ANN JESSICA DIOQUINO DELMA B. DIOQUINO

PAUL SANTOS ESTRELLA, MD MARIA SHEILA LEYNES, MD CAROL H. MARASIGANMARIA ALTHEA N. MASANGKAY PAUL MENDOZA RAMON MIGUEL MOLINA, MD

MARJORIE PLATILLA LEA DELA CRUZ SO WILFRED VILLARUZ

Page 11: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Thank you for making a difference…. • Dr. and Mrs. Jose Nicolas Cruz and Luisa

Cojuangco-Cruz• Mr. and Mrs. Conrado and Kelly Bate • Mr. Ramon Ang• Mr. and Mrs. Nicholson Santos • Ms. Monique T. Estrella• Mr. James Donovan• Senator Juan Ponce Enrile• Ms. Jessica G. Reyes• Mr. Iñigo U. Zobel• Cambridge Dairy Ingredients Inc. • Ms. Rosemarie Uy• Lyric Pianos• Philippine Rheumatology Association • St. Luke’s Medical Center• University of Santo Tomas Hospital

• The many other individuals, establishments and institutions who have supported our projects in various ways

• The volunteers who have selflessly shared their time and talent

• Our patients and students who consistently serve as inspiration

• Our families who have been steadfastly encouraging and supportive

Page 12: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

29-30 November 2012EDSA Shangri-la Hotel, Manila, Philippines

Page 13: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

WORLD-CLASS FACULTY

• International 18

•Philippine 14

Asian Lupus Summit 29-30 November 2012, EDSA Shangri-La, Philippines

Page 14: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

DELEGATES* = 478*INCLUDING 18 INTERNATIONAL FACULTY

International 31Philippines• Rheumatologists 95• Nephrologists 75• Internist – Gen Med 65 • Pediatricians 10• Dermatologists 5• Hema/Onco 5• Obstetrics Gyne 3

Trainees/students• Residents 81• Medical students 65• Nursing/Nutrition students 20Patients/caregivers 5

Asian Lupus Summit 29-30 November 2012, EDSA Shangri-La, Philippines

Page 15: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

The Asian Lupus Summit was athrilling experience for usmedical students. We werefortunate to have this opportunityto be involved in an actualmedical convention, not just forthe experience of attending one,but to learn from Lupus, as well.We were provided with theexperience of attending lecturesgiven by different lupus expertsfrom around the world.

Raphael Anthony D. GuballaAnne Therese I. Estanislao

Page 16: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Listening to the talks helped me comprehend some of thethings that confused me when I read Harrison's. I initiallythought that maybe the lupus summit would beoverwhelming and I wouldn't get anything. However, as wesat there and listened, the speakers, especially ProfessorPetri, shed light and made things seemingly easier.

Francisco, Joanna Mae F.

Page 17: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

I do love how, even the experts, were not afraid not to know the answers to every question, specifically when Dr. Petri was asked on the dosage of hydrochloroquine and she just simply answered I don’t know either, it just gave a good result in my practice.

De Guzman, Lesleimar M.

Page 18: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Attending the Asian Lupus Summit was a big opportunity for me toexpound my knowledge about SLE and to experience an internationalconference. It was my first time to witness an overwhelming event seeingdoctors from all around the world team up to share their understandingand awareness, and give their best possible treatment modalities on thedisease that we all know has no cure. No medical student would refuseto accept a grand educational occasion like this.

Fidel, Karlo P.

Page 19: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

I could have studied orrested on that long weekend.But I was really curious aboutthis, and I know I will evengain more if I attended it. Iam more excited now toattend more summits andconferences especially inrheumatology again, or evenother specializations. It isthrough continuing educationindeed that will make me thebest doctor that I can be inthe future.

Garcia, Lawrence George P.

Page 20: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

It was great to see these world renown experts who do research and publish articles that I only get to read about in journals or books. It’s an amazing feeling to actually see and listen to them in person.

Garchitorena, Juan Carlo F.

Page 21: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for
Page 22: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for
Page 23: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for
Page 24: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

This is just the beginning…

Page 25: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

The organizers

Page 26: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Our heartfelt gratitude • Dr. Jose Nicolas Cruz and Ms. Ma. Luisa O.

Cojuangco-Cruz• Mr. Ramon Ang• Mr. Conrado and Mrs. Kelly Bate • Mr. and Mrs. Nicholson Santos • Ms. Monique T. Estrella• Ms. Joann Santos • Ms. Judith L. Mosley • Mr. Eloy P. Manalo• Philippine Charity Sweeptakes Office • Philippine Amusement & Gaming Corporation • Philippine Rheumatology Association • Benefactors of RETFI and the LUISA Project • EDSA Shangri-La Hotel

• Volunteers who have selflessly shared their time and talent

• Our patients and students who consistently serve as inspiration

• Our families who have been steadfastly encouraging and supportive

Page 27: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for

Thank you

Page 28: How it all started - Lupus Academy · 2016. 4. 6. · How it all started … LUISA [Lupus Inspired Advocacy] was set up in order to increase awareness and strengthen advocacy for