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How do you run a charity, when bed-bound with an energy zapping disease?
“To become chronically ill is to enter a reality inconceivable to the healthy, a reality of exclusion from work, family, friends and the entirety of our previous existence.
As someone who enjoyed what would be considered a full and successful life, experiencing chronic, debilitating disease has transformed how I observe the world and how the world seemingly observes me.”
What is ME?
Myalgic Encephalomyelitis
is recognised as a neurological disorder by the World Health Organisation (section G 93.3 of ICD10)
August 2018 GP SNOMED system updated to reflect ME as neurological!
Hope 4 ME & FibroNorthern Ireland
Meetings:
First Tuesday every Month
7pm – 9pm
Mourne Country Hotel, Newry
Livestream specialist speakers out to our bed and house-bound members
Conferences & Educational Events
Hope 4 ME & FibroNorthern Ireland
The PACE Trial
Hope 4 ME & FibroNorthern Ireland
Will YOU take the pledge to learn more about M.E?
Thank you for listening!