HemophiliaSociety Bangalore Chapter

Hemophilia?

One of missing clotting protein in blood cause Hemophilia.

Only medicine available is replacement of expensive factor. Its not manufactured in India

1:5,000 Males Suffer

Women are Carriers

Clotting needs 13 protein(factors) Normal clotting time for small prick is 2-3 minutes, PwH can be more then 30 minutes

Hemophilia is a hereditary bleeding disorder. Person with Hemophilia(PwH) has more clotting time then normal person

What happens?

Untreated swelling/bleeds in joints/muscles leads to disability

Sometime it may lead to critical condition and death

95% of our patients cannot afford treatment

Hemophilia Society Bangalore Chapter

1992

Few PwH and their families started with help of doctors

Registred under Karnataka societies registration act 1960 as NGO

Legal Status

Affiliations

National Member Organization of Hemophilia Federation(India)

World Federation of Hemophilia

We have ...

We are caring 900 Person with Hemophilia(PwH) in Bangalore providing medicine to manage bleeds, awareness programs and working with doctors in research.

We have stretched ourself in addressing many more challenges which makes PwH life easier.

Subsided Clotting Factor

We provide highly subsided expensive clotting factor to our PwH.

We have provided free of cost to poor and critical cases.

Our Programs

Government Lobbying

Lobby with government to support disabled and poor patients

Hemophilia care centers in Government hospitals

Effective Hemophilia Management

PwH education program to manage everday challenges

Our training module helps PwH/parents to identify bleeds/pain early and minimize risk of disabled

Open Clinics

We organize regular open clinics to have routine checkups for dental, physo, nutrition etc under one roof.

Our PwH gets opportunity to meet busy top medical professional one to one and spend enough time in clearing all their doubts

Provide free medical aids like coldpacks, walking sticks, crape bandages, pain management kits etc

Physiological counseling

Majority of our PwH and parents were depressed about the life long disorder and cost of treatment

Our initiative on counseling on case to case and group has great impact on community in building confidence to our PwH/parents

Educational Assistance

Education plays crucial role in PwHs life to be independent and face challenges are supporting more then 200 kids.

Today we have successful stories of our PwH who are supporting there families and our organization too

Youth Training

We are training for being independent, a leader and to be responsible for family and our organizations. Our youths meet regularly They :

Building Bonding They support each other Awareness Campinas Visiting fellow PwH in pain to provide

morel support Hopes for Children with Hemophilia

parents

Self Employment

We are supporting our poor PwH with micro finance to start biasness and be independent

Women Empowerment

Genetic Counseling Economical rehabilitation

providing swing machine, macro finance etc

Encouraging them for innovative ideas which change community

Training our women for fore caring PwH as Mother, Sister, Wife. We have various programs like

Women Empowerment

Creative works from our women group presented to foreign delegates

Self Care Programs

Physiotherapy : Camps to teach importance of exercise and make routine. This program reduced consumption of expensive clotting factor for minor bleeds

Self Care Programs

Self Infusion : We provide training to PwH, Mothers, sisters and Wifes in clotting factor infusion. It helps in speedy treatment and less damage on joints/health and get back to work fast

Hydro therapy

Hydro therapy programs is fun and effective. It motivates more and more children with hemophilia to take part.

On this program Kids with weaker joints/muscles been strengthen. With followup our kids are being able to attend school without shortage of attendence

Rehabilitation

We provide vigorous rehabilitation program to our PwH who has bad joints and dependent

We encouraging them to attend regular program by providing transportation cost, Ice packs, supporting aids etc

On emergency free factors for poor patients

We have many successful stories on this program who has got back to normal routine from bed

Awareness Programs

School/Colleges Corporates Excitations Shows/Events Public Places

Special training for medical professionals to treat PwHs with our national/international network

CMEs, Wet wrokshops, platform to interact with medical professionals for knowledge share

PwH in Karnataka State

Districtwise PwH

Carrying Vision Children Free from Pain Hemophilia without disability Closing the gap

We were able to achieve with your support/donations.

We have challenges ahead it can be successful only with your support

Please feel free to mail or call us for any more information Phone : +91.9886050060 Email : bangalore@hemophilia.in

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