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CareSearch is funded
by the Australian Government
Department of Health.
Helping to close the gaps in bereavement care for oncology nurses: the role of online resources and information Deb Rawlings, Jennifer Tieman
CNSA 2016
What will be covered today:
• Relevance to cancer nurses
• Finding the bereavement evidence – why does it matter?
• CareSearch resources
• Search filters
• Clinical evidence pages
• Resources for patients, carers, families
Introduction
• Cancer nurses work to support carers and families during
cancer diagnosis and treatment, and may also need to provide
support in dealing with anticipatory grief when families realise
that the journey is coming to an end.
• Bereavement support often continues after the patient has died:
when relatives return to see ward staff; or in attending memorial
services or other rituals.
• Nurses will also often refer patients and families (or colleagues)
to relevant information in relation to supporting the bereaved,
however finding evidence based resources can be challenging.
Why evidence matters
• Informs direct care at the individual level
• Guides decision making (policy and service)
• Helps assess value of a particular approach
• Deciding between options
• Provides a basis to disagree
• If you want to recommend another course of action it is important to have evidence to back up what you are saying.
Best Practice
• Bereavement through the death of a loved one is a
situation that touches many lives and crosses all
national boundaries. Bereavement care is important,
and like any service that is provided can benefit from
evidence of best practice, now available in a growing
body of international literature.
• This care is often provided by practitioners working
alone or in small teams without ready access to the
databases holding this literature.
New Evidence Tools: Search Filters
• In a partnership with the Australian Centre for Grief
and Bereavement, CareSearch has developed the
Bereavement Search Filter (BSF) to provide trustworthy
and easy access to international published evidence (in
English) indexed in the PubMed database.
• The tools provided using the BSF are available free to
anyone with access to the Web, and can support all
practitioners working in the field of bereavement care,
providing one-click access to current global evidence.
Easy to Find
Characteristics of ideal search:
• Open access (no registration)
• Pre written (easy)
• One click (fast)
• Retrieves what we need and excludes what we don’t (accurate)
Ideally, what we would like is a search that does all of these things.
Why use a search filter?
An “evidence based" search
= known effectiveness
Benefits
Saves time
Increases likelihood of quality retrievals
Removes individual search burden
Embeds technical expertise
Facilitates knowledge translation
Methodology
• An Expert Advisory Group comprising bereavement
practitioners and academics was established to develop the
Search Filters.
• A palliative care clinician was appointed to revise and develop
new bereavement webpage content for use by health
professionals.
• Associated pages for patients and families were written and
relevant resources identified.
• The new web content was externally reviewed for authority and
relevance before being uploaded.
Other related Search Filters
• Grief and Loss (general – rather than the loss of a loved one)
Search Filter and topic searches
You may need to find grief and loss information for many reasons:
• your patients
• Your colleagues
• Yourself
Also just released
• Costs of Bereavement Care
Summary
Bereavement Search Filter
Created by CareSearch and used on the website
Benefits for clinicians
Topic searches are targeted to clinical practice
Searches are fast and easy to use (no need to be an expert searcher)
Searches are reliable
Searches are free and open access (no need for logon or paid subscription)
Barriers to using evidence in practice can be reduced
Clinical Resources• Clinical Evidence pages
• Based on RCT or SRs
• Each links to a PubMed Topic Search
• Each links to a review collection
• Consumer resources
• Based on summaries of best available evidence
• All content is peer reviewed and freely available
Each page includes: Key messages/ an overview / what is known / active research areas and controversies
An example of the different types of bereavement PubMed searches –developed using the filter
You can create your own search if it isn’t on the list
I ran a search with the bereavement filter on cancer and anticipatory grief
Here I ran the Multicultural bereavement search.
For Patients, Carers, Families
• Good quality easy to read resources are available for
consumers about bereavement
• Online palliative care information can help support patients and
families at the end of life.
• Having trustworthy information can help encourage involvement in
decision making.
• You can safely direct your patients or their families to these
• Readability formulas help to make patient information match the
reading skills of the intended user
• They can all be printed for those who do not use computers
Conclusion
• Search filters can facilitate access to relevant literature and evidence globally and thereby reduce the searching burden for the diverse health professionals working around the world in the field of bereavement care.
• Evidence based page content can inform the practice of those in cancer who care for patients and families approaching the end of their life and in bereavement.
CareSearch is funded
by the Australian Government
Department of Health.
CareSearch would like to thank the many people who contribute their
time and expertise to the project, including members of the National
Advisory Group and the Knowledge Network Management Group.
www.caresearch.com.au