Helpful Websites for Patient Information Endocrinologyupdateinternalmedicine.com/syllabus/Syllabus/Files/1-361264... · Helpful Websites for Patient Information Endocrinology

Helpful Websites for Patient Information

Endocrinology § American Diabetes Association - www.diabetes.org § American Diabetes Association Clinical Practice recommendations for 2013 -

http://professional.diabetes.org/resourcesforprofessionals.aspx?cid=84160 § Joslin Diabetes Center Clinical Guidelines - http://www.joslin.org/info/joslin-clinical-guidelines.html § Joslin Professional Education Continuum - http://www.jpec.joslin.org/JPECWeb/Home.aspx § National Osteoporosis Foundation - www.nof.org § International Society for Clinical Densitometry - www.iscd.org § WHO Fracture Risk Assessment Tool - www.shef.ac.uk/FRAX § Joslin Diabetes Center Clinical Guidelines - http://www.joslin.org/joslin_clinical_guidelines.html § American Diabetes Association Clinical Practice recommendations -

http://care.diabetesjournals.org/content/34/Supplement_1 § American Thyroid Association - www.thyroid.org § American Association of Clinical Endocrinologists publications and clinical algorithms -

https://www.aace.com/pub/ § Kidney Disease Improving Global Outcomes - http://kdigo.org/home/ § ISCD guidelines for use of bone densitometry -

http://www.iscd.org/Visitors/pdfs/ISCD2007OfficialPositions-Combined-AdultandPediatric.pdf § ISCD guidelines for use of FRAX - http://www.iscd.org/Visitors/pdfs/Official%20Positions%20ISCD-

IOF%20FRAX.pdf § NOF guidelines for treatment are - http://www.nof.org/files/nof/public/content/file/344/upload/159.pdf

For further information on insulin use in people with diabetes as well as on-line CME opportunities, log onto the Joslin Professional Education Continuum website at: http://www.jpec.joslin.org/JPECWeb/Home.aspx Gastroenterology and Hepatology

§ Gluten Free Watch Dog - www.glutenfreewatchdog.com § Celiac Now – www.celiacnow.org § Celiac Central – www.celiaccentral.org § Centers for Disease Control and Prevention - www.cdc.gov/HAI § National Institute of Diabetes and Digestive and Kidney Diseases - www.niddk.nih.gov § American Gastroenterological Association - www.gastro.org § American Gastroenterological Association/Celiac - http://www.gastro.org/practice/resource-library/hot-

topics/celiac-disease § Irritable Bowel Syndrome Group – www.ibsgroup.org § Rome Foundation – www.romecriteria.org § American Liver Foundation - www.liverfoundation.org § The American Academy of Family Physicians, Family Doctor - www.familydoctor.org § The American Association for the Study of Liver Diseases - www.aasld.org § Clostridium Difficile Infection Support Group - http://www.cdiffsupport.com § International Foundation for Functional Gastrointestinal Disorders - www.iffgd.org § The American Neurogastroenterology and Motility Society - www.motilitysociety.org § Crohn’s & Colitis Foundation of America – http://www.ccfa.org/ § European Federation of Crohn's & Ulcerative Colitis Associations - http://www.efcca.org § National Digestive Diseases Information Clearinghouse (NDDIC) for patient information on Crohn’s

disease - http://digestive.niddk.nih.gov/ddiseases/pubs/crohns/index.htm § National Library of Medicine’s patient information page on Crohn’s disease -

http://www.nlm.nih.gov/medlineplus/crohnsdisease.html § Beth Israel Deaconess Medical Center -

http://www.bidmc.org/CentersandDepartments/Departments/DigestiveDiseaseCenter/InflammatoryBowelDiseaseProgram.aspx

§ Clinical trials conducted in the US and around the world - http://clinicaltrials.gov/ § The Mayo Clinic – www.mayoclinic/health/e-difficile/DS00736


Gastroenterology and Hepatology (continued) § The American Gastroenterological Association Center for Gut Microbiome Research and Education -

http://www.gastro.org/research/aga-center-for-gut-microbiome-research-and-education § The Human Microbiome, Diet, and Health: Workshop Summary -

http://www.nap.edu/catalog.php?record_id=13522 § News related to microbiome research - www.gutmicrobiotaforhealth.com

GI Bleeding • Nature - http://www.nature.com/ajg/practiceguidelines/index.html • American College of Gastroenterology - http://gi.org/wp-content/uploads/2016/03/ACGGuideline-Acute-

Lower-GI-Bleeding-03012016.pdf • http://www.nature.com/ajgsup/journal/v3/n1/full/ajgsup20161a.html • American Association for the Study of Liver Diseases - http://www.aasld.org/publications/practice-

guidelines • https://www.nice.org.uk/Guidance/CG141

Oncology

§ National Comprehensive Cancer Network - www.nccn.org § American Cancer Society - www.cancer.org § The American Society of Clinical Oncology resources -

http://www.asco.org/ASCOv2/Practice+%26+Guidelines/Guidelines/Clinical+Practice+Guidelines § National Comprehensive Cancer Network clinical practice guidelines -

http://www.nccn.org/professionals/physician_gls/f_guidelines.asp Prostate

• www.harvardprostateknowledge.org • www.health.harvard.edu • www.cancer.gov

Rheumatology

§ Harvard Medical School & Aetna’s Consumer Website - www.intelihealth.com § American College of Rheumatology - www.rheumatology.org § The Arthritis Foundation - www.arthritis.org § National Library of Medicine: http://medlineplus.gov/ § UptoDate for Patients - www.uptodateforpatients.com

Gout

§ MedlinePlus, the U.S. National Library of Medicine and National Institutes of Health - http://www.nlm.nih.gov/medlineplus/gout.html

§ Patient.co.uk - http://www.patient.co.uk/health/gout-leaflet § National Institute of Arthritis and Musculoskeletal and skin diseases -

http://www.niams.nih.gov/Health_Info/Gout/


Infectious Diseases § Center for Disease Control and Prevention – www.cdc.gov § Aegis: http://www.aegis.com § AIDSinfo Department of Health and Human Services: http://www.aidsinfo.nih.gov § The Body: http://www.thebody.com § Centers for Disease Control and Prevention: http://www.cdc.gov/hiv/pubs/facts.htm § HIV InSite: http://hivinsite.ucsf.edu § The Johns Hopkins AIDS Service: http://www.hopkins-aids.edu § National HIV/AIDS Clinicians’ Consultation Center: http://www.ucsf.edu/hivcntr § National Library of Medicine: http://sis.nlm.nih.gov/hiv.html § CDC National Immunization Program - http://www.cdc.gov/vaccines/ § Immunization Action Coalition - http://www.immunize.org § Infectious Disease Society of America - http://www.idsociety.org § National Network for Immunization Information - http://www.immunizationinfo.org § CDC Vaccine Price List- http://www.cdc.gov/vaccines/programs/vfc/awardees/vaccine-management/price-

list/index.html Zika

§ Centers for Disease Control and Prevention (CDC) Zika Virus website: https://www.cdc.gov/zika/ § New England Journal of Medicine Zika Central website: http://www.nejm.org/page/zika-virus § The Lancet Zika virus resource center: http://www.thelancet.com/campaigns/zika

Vaccines

• CDC National Immunization Program - http://www.cdc.gov/vaccines/ • Immunization Action Coalition - http://www.immunize.org • CDC Vaccine Price List - http://www.cdc.gov/vaccines/programs/vfc/awardees/vaccine-

management/price-list/index.html Cardiology

§ American Heart Association - www.americanheart.org § American College of Cardiology - www.acc.org § American Society of Echocardiography – www.asecho.org § CardioSmart - www.cardiosmart.org § CardioSource Plus for Institutions – www.cardiosource.org § Comprehensive Heart Failure Guidelines - www.heartfailureguideline.org/ § Heart Failure Society of America – www.hfsa.org § MRI Safety - www.mrisafety.com § Society for Cardiovascular Magnetic Resonance - www.scmr.org § Society of Cardiovascular Computed Tomography - www.scct.org § Web MD (High Blood Pressure) - www.webmd.com/hypertension-high-blood-pressure/tc/high-blood-

pressure-hypertension-overview § Mayo Clinic (High Blood Pressure Symptoms) - www.mayoclinic.com/health/high-blood-

pressure/DS00100/DSECTION=symptoms § Medline Plus: http://www.nlm.nih.gov/medlineplus/highbloodpressure.html § Your guide to lowering high blood pressure: http://www.nhlbi.nih.gov/hbp/index.html § UpToDate (patient info that is freely available without a password):

http://www.uptodate.com/contents/patient-information-high-blood-pressure-in-adults?source=see_link § The Heart – www.theheart.org § The Society for Cardiovascular Angiography and Interventions – www.scai.org § National Lipid Association – www.lipid.org § Centers for Disease Control and Prevention – www.cdc.gov/cholesterol § Women’s Health (Heart Disease) - http://www.womenshealth.gov/publications/our-publications/fact-

sheet/heart-disease.cfm


Cardiology (continued) § American Heart Association (Go Red for Women) – www.goredforwomen.org § Brugada Syndrome - http://www.brugadadrugs.org/ This is a website maintained by a group of physician

experts in Brugada Syndrome that keeps a current list of drugs associated with Brugada Syndrome – to avoid.

§ Heart Rhythm Society - http://www.hrsonline.org/Patient-Resources This is the website of the Heart Rhythm Society, the specialty society for Cardiac Electrophysiology.

§ Sudden Arrhythmia Death - http://www.sads.org/living-with-sads/drugs-to-avoid This is the website for an organization called Sudden Arrhythmia Death Syndromes. It is a reliable site for tracking drugs known to be associated with long QT syndrome Society of Thoracic Surgery Risk Calculator - http://riskcalc.sts.org/ Handy estimate of your patient’s general risk of proposed cardiac surgery. I find it useful to show this to the patient and the family while discussing the risks and benefits of the proposed surgical intervention. Medscape Cardiology - http://www.medscape.com/cardiology Latest cardiology news, narrative clinical study summaries and trial summary slides CardioSmart - https://www.cardiosmart.org/ Patient education from the American College of Cardiology. Useful summaries on a number of cardiovascular conditions, including valvular heart disease. Use ‘on the fly’ or print in advance for your office. Acute Coronary Syndrome

§ http://www.clinicaltrialresults.org § http://content.onlinejacc.org/article.aspx?articleid=1217906 § http://www.theheart.org/condition/acute-coronary-syndromes.do

Peripheral Arterial Disease

§ http://circ.ahajournals.org/content/124/18/2020 § http://www.theheart.org/condition/brain-kidney-peripheral.do § http://www.vascularweb.org/Pages/default.aspx

Hypertension

§ Harvard Health Letter: http://www.health.harvard.edu/newsletters/Harvard_Health_Letter § MEDLINE Plus: http://www.nlm.nih.gov/medlineplus/ § Mayo Clinic:http://www.mayoclinic.com/health/high-blood-pressure/DS00100


Hematology www.stoptheclot.org - National Blood Clot Alliance The National Blood Clot Alliance (NBCA) is a patient-led, voluntary health advocacy organization dedicated to advancing the prevention, early diagnosis and successful treatment of life-threatening blood clots such as deep vein thrombosis, pulmonary embolism and clot-provoked stroke. www.clotconnect.org Clot Connect is an information and outreach project of the University of North Carolina at Chapel Hill in the Hemophilia and Thrombosis Center. Clot Connect's mission is to increase knowledge of blood clots, clotting disorders and anticoagulation by providing education and support resources for patients and health care professionals.

www.natfonline.org The North American Thrombosis Forum (NATF) is a multi-disciplinary organization founded with the objective of improving patient care through the advancement of thrombosis education.

Nephrology § Atlas of Diseases of the Kidney - www.kidneyatlas.org § UNC Kidney Health Library - www.unckidneycenter.org/kidneyhealthlibrary.html § Urinalysis Tutorial - http://medlib.med.utah.edu/WebPath/TUTORIAL/URINE/URINE.html § National Kidney Foundation - www.kidney.org § American Association of Kidney Patient’s - www.aakp.org § The Nephron Information Center (with pocket GFR calculator) - www.nephron.com § American Society of Nephrology - www.asn-online.org § National Kidney and Urologic Diseases Information Clearinghouse (NNIDDK)

http://kidney.niddk.nih.gov/kudiseases/a-z.asp § United States Renal Data Survey (everything you wanted to know about dialysis and transplant statistics

in the USA) www.usrds.org § American Urologic Association - http://www.auanet.org

Pulmonary Diseases

§ Global Initiative for Asthma - www.ginasthma.com § Pulmonary Hypertension Association - www.phassociation.org § Know Your PH - www.knowyourph.org § Global Initiative for Chronic Obstructive Lung Disease – www.goldcopd.com § The Asthma Control Test – www.asthmacontrol.com § National Institutes of Health - http://www.nhlbi.nih.gov/health/health-topics/topics/copd/ § World Thrombosis Day - http://www.worldthrombosisday.org/ § The American Lung Association - http://www.lung.org/lung-disease/copd/ § The COPD Foundation - http://www.copdfoundation.org/Learn-More/Educational-Materials/Brochures.aspx § American Academy of Sleep Medicine/Sleep Education: http://www.sleepeducaton.com § National Sleep Foundation - http://www.sleepfoundation.org § National Heart, Lung and Blood Institute - http://www.nhlbi.nih.gov/health/public/sleep/index.htm § Talk About Sleep (An industry sponsored comprehensive patient education website, features include chat

and message boards) - http://www.talkaboutsleep.com § www.CPAPMan.com - website with information about sleep apnea, machines and supplies. Good

visuals of machines and masks, chins traps, etc. § The Patient Centered Outcomes Research Institute supports this patient-driven network, MyApnea.Org, to

help connect patients with sleep apnea or who may be at risk for sleep apnea with one another - www.MyApnea.org

§ Center for Disease Control and Prevention (VTE) - http://www.cdc.gov/ncbddd/dvt/index.html


Pulmonary Diseases (continued) § 2012 ACCP Guidelines -

http://journal.publications.chestnet.org/issue.aspx?journalid=99&issueid=23443&direction=P § Cleveland Clinic: -

http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/cardiology/venous-thromboembolism/

§ Mayo Clinic Podcast - http://podcasts.mayoclinic.org/2012/09/17/treating-dvt/

Asthma § http://www.nhlbi.nih.gov/health/public/lung/index.htm#asthma § http://www.cdc.gov/asthma/faqs.htm § http://www.ginasthma.org/Patients

Idiopathic pulmonary fibrosis:

§ Cleveland Clinic - http://my.clevelandclinic.org/disorders/pulmonary_fibrosis/hic_idiopathic_pulmonary_fibrosis.aspx

§ National Heart Lung and Blood Institute - http://www.nhlbi.nih.gov/health/health-topics/topics/ipf/ § Pulmonary Fibrosis Foundation - http://www.pulmonaryfibrosis.org/ipf

Sarcoidosis:

§ American Lung Association - http://www.lung.org/lung-disease/sarcoidosis/ § Mayo Clinic - http://www.mayoclinic.com/health/sarcoidosis/DS00251 § PubMed Health - http://www.nhlbi.nih.gov/health/health-topics/topics/ipf/

National Library of Medicine

§ Idiopathic pulmonary fibrosis - http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001134/ § Sarcoidosis - http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001140/

National Heart, Lung and Blood Institute

§ Idiopathic pulmonary fibrosis - http://www.nhlbi.nih.gov/health/health-topics/topics/ipf/ § Sarcoidosis - http://www.nhlbi.nih.gov/health/health-topics/topics/sarc/

Mayo Clinic

§ Idiopathic pulmonary fibrosis - http://www.mayoclinic.com/health/pulmonary-fibrosis/DS00927 § Sarcoidosis - http://www.mayoclinic.com/health/sarcoidosis/DS00251

National Jewish Health

§ Interstitial lung disease - http://www.nationaljewish.org/healthinfo/conditions/ild/ § Sarcoidosis - http://www.nationaljewish.org/healthinfo/conditions/sarcoidosis/


Neurology § Alzheimer’s Association - www.alz.org § National Institute of Neurological Disorders and Stroke - www.ninds.nih.gov § National Parkinson Foundation - www.parkinson.org § Michael J. Fox Foundation - www.michaeljfox.org § American Parkinson Disease Association - www.apdaparkinson.org § Epilepsy - www.epilepsy.com § Epilepsy Foundation - www.epilepsyfoundation.org § Cure Epilepsy - www.cureepilepsy.org § BIDMC Concussion and Traumatic Brain Injury Clinic - http://www.bidmc.org/Centers-and-

Departments/Departments/Neurology/Concussion-and-Traumatic-Brain-Injury-Clinic.aspx § Guidelines for Concussion - http://onf.org/documents/guidelines-for-concussion-mtbi-persistent-symptoms-

second-edition Headache

§ National Headache Foundation - http://www.headaches.org/ § American Headache Society - http://www.americanheadachesociety.org/ § UpToDate patient information for migraine - http://www.uptodate.com/contents/migraine-headaches-in-

adults-beyond-the-basics

Concussion • http://www.bidmc.org/Centers-and-Departments/Departments/Neurology/Concussion-and-Traumatic-

Brain-Injury-Clinic.aspx • http://www.TBI_Recovery_Guide10.8.08_252053_Michigan.pdf • http://onf.org/documents/guidelines-for-concussion-mtbi-persistent-symptoms-second-edition

Geriatrics

§ Centers for Disease control and Prevention (Injury Prevention) - http://www.cdc.gov/homeandrecreationalsafety/falls/adultfalls.html

§ Beth Israel Deaconess Medical Center (Falls Prevention) - http://www.bidmc.org/YourHealth/HealthNotes/SeniorHealth/TakePrecautionstoPreventFaintingandFalls.aspx

§ National Institute of Aging - Age Page: Exercise and Physical Activity -http://www.nia.nih.gov/HealthInformation/Publications/exercise.htm

§ AGS/BGS Guidelines for Falls Prevention - http://onlinelibrary.wiley.com/doi/10.1111/j.15325415.2010.03234.x/full

§ Ideal Discharge Plan - http://champ.bsd.uchicago.edu § Care Transitions Resource Room - http://www.caretransitions.org

Orthopedics

• AAOS (American Academy of Orthopaedic Surgeons) - http://www.orthoinfo.org/ • AOSSM (American Orthopaedic Society for Sports Medicine) -

http://www.sportsmed.org/aossmimis/Members/Patient/Members/Patient_Portal.aspx?hkey=d02bb109-aa55-41fb-b8fd-0a233f603a3b

• YouTube à search under “back pain exercises”

• Up-to-Date for Patients à uptodate.com > SUBSCRIPTION OPTIONS > Patients and Caregivers > “low back pain” (free)

• Mayo Clinic à www.mayoclinic.org/diseases-conditions/back-pain/.../con-20020797


Pain Medicine § Opioid Conversion Tool - www.Globalrph.com/narcoticonv.htm § American Pain Society - www.Ampainsoc.org § International Association for the Study of Pain - www.Iasp-pain.org

Obesity

§ http://www.nhlbisupport.com/bmi/ § http://www.cdc.gov/obesity/ § http://www.myfooddiary.com/ § http://www.nhlbi.nih.gov/guidelines/obesity/prctgd_c.pdf § www.instituteoflifestylemedicine.org § www.harvardlifestylemedicine.org § www.exerciseismedicine.org

Dermatology

§ www.aad.org § www.mohscollege.org/acms § www.visualdx.com

Other

§ Clinical trials conducted in the United States and around the world - http://clinicaltrials.gov § Health On the Net (HON) – a United Nations resource for searching health-related websites that comply

with a code of practice in distributing health information to patients - www.hon.ch/individuals.html § U.S. National Library of Medicine - www.nlm.nih.gov/medlineplus/healthtopics.html § Life as a Healthcare CIO Blog – www.geekdoctor.blogspot.com § The Health Care Blog – www.healthcareblog.com § Centers for Medicare & Medicaid Services - http://www.cms.gov/Regulations-and-

Guidance/Legislation/EHRIncentivePrograms/Stage_2.html § AARP - http://www.aarp.org/health/conditions-treatments/info-02-2013/medical-procedures-to-avoid.html § ABIM Foundation - http://www.choosingwisely.org/ § American College of Physicians - http://hvc.acponline.org/hvc_your_health.pdf § The Human Microbiome Project - http://commonfund.nih.gov/hmp/ § Emergency room:

http://www.bidmc.org/Centers-and-Departments/Departments/Emergency-Medicine.aspx, http://www.miltonhospital.org/services/emergency-services/ http://www.bidneedham.org/departments/emergency-department

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Helpful Websites for Patient Information Endocrinologyupdateinternalmedicine.com/syllabus/Syllabus/Files/1-361264... · Helpful Websites for Patient Information Endocrinology