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Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine [email protected]

Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine [email protected]

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Page 1: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Health Literacy

What’s Done andWhat’s Left to Do

Paul D. Smith, MD, Associate Professor

UW Department of Family Medicine

[email protected]

Page 2: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Please complete evaluation

Orange form in packet

Drop off at registration desk

Page 3: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Topics today

Literacy VS health literacy

History of health literacy

What’s new

Where are we now?

What’s next

Page 4: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What is Literacy?

Literacy is a combination of skills:

Verbal

Listening

Writing

Reading

Page 5: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What is Health Literacy?

The Institute of Medicine 2004

“The degree to which individuals have the

capacity to obtain, process, and

understand basic information and

services needed to make appropriate

decisions regarding their health.”

Page 6: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Literacy VS Health Literacy

Almost everyone will have difficulty with

health literacy at some point.

Much harder for those that do not:

Read very well.

Speak English as their primary language.

Page 7: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Two Sides to the Equation

It’s all about effective communication

Verbal

Written

Multi-media

It has to be presented in a way that is

understandable to most people.

Page 8: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 1974

Health literacy first use in publication

Health Education as Social Policy

Simonds SK. Health education as social policy. Health Educ Monogr 1974;2:1-25.

Page 9: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 1990

Health literacy appears in medical literature

Start to see reports of correlation between

literacy and health outcomes

Page 10: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 1993

National Adult Literacy Survey (NALS)

First nationwide assessment of adult literacy

Page 11: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 1993

Rapid Estimate of Adult Literacy in Medicine

REALM

First tool for assessing health literacy

Davis T, Long S, Jackson R, Mayeaux E, George R, Murphy P, Crouch M. Rapid Estimate of Adult Literacy in Medicine: A Shortened Screening Instrument. Fam Med 1993; 25:391-5.

Page 12: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 1996

National Institute for Literacy

Health and Literacy listserv starts

http://www.nifl.gov/mailman/listinfo/Healthliteracy

Page 13: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 1999

American Medical Association

Ad Hoc Committee on Health Literacy Report

American Medical Association, Council on Scientific Affairs, Ad Hoc Committee on Health Literacy. Health literacy: report of the Council on Scientific Affairs. JAMA 1999 Feb 10;281(6):552-7.

Page 14: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2000

Department of Health and Human Services

Healthy People 2010

Health literacy definition that is commonly used

U.S. Department of Health and Human Services. (2000). Healthy People 2010 (2nd ed.) [with Understanding and Improving Health (vol. 1) and Objectives for Improving Health (vol. 2)]. Washington, DC: U.S. Government Printing Office.

Page 15: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2003

Paul Smith stumbles on issue

1st attempt at a health literacy grant

1st of many failures

Page 16: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2003

National Assessment of Adult Literacy

2nd adult literacy assessment

National representative sample

Measured health literacy

12% of adults are proficient in health literacy

http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2006470 http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2006483

Page 17: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - January 2004

Agency for Healthcare Research and Quality

Literacy and Health Outcomes

Comprehensive review of the literature

http://www.ahrq.gov/downloads/pub/evidence/pdf/literacy/literacy.pdf

Page 18: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - April 2004

Institute of Medicine

A Prescription to End Confusion

Comprehensive evaluation and recommendations

http://www.nap.edu/catalog/10883.html

Page 19: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - July 2004

First Wisconsin Health Literacy Summit

David Kindig, PhD

~50 attendees

Paul Smith’s first health literacy presentation.

Page 20: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2005

Wisconsin Literacy, Inc.

First meeting of Health Literacy Committee

Page 21: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2006

Wisconsin Hospital Association

Webcast presentations

Focus group project funded

American Academy of Family Physicians

Emotional response: stress, shame, fear

Page 22: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2007

Health Literacy Summit 2

220 attendees

3 national speakers

Webcast presentations

Regional Health Literacy Committees created

Page 23: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2008

Regional Initiatives

Needs analysis

Surveys

Brochures, PowerPoint

Wingspread Conference

Page 24: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2009

Health Literacy Summit 3

238 attendees

Andrew Pleasant and other national speakers

Pre-conference meeting of state

representatives

Page 25: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2009

Projects

Nursing health literacy curriculum

Improving Hospital Health Literacy Environment

Ask Me 3

What to do When Your Child is Sick project

Page 26: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2009

Wisconsin Literacy Projects

Incorporate health literacy into tutor training

Reach parent learners with “What to Do..” book

Develop learner resources for medication safety

Page 27: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

History - 2009

Joint Commission new regulations

Effective communication

Cultural Competence

Family-Centered care

Approved Requirements to Advance Effective Communication, Cultural Competence, and Patient- and Family-Centered Care Hospital Accreditation Program, The Joint Commission, November, 2009.

Page 28: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s new?

www.healthliteracywisconsin.org

Health literacy resources and links

Activities of Regional Health Literacy Committees

Health Literacy curricula

Health care providers

Adult literacy students

Page 29: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s new?

www.healthliteracymissouri.org

Health literacy materials library

Searchable database

Easy to read patient education materials

Published articles

Health literacy tools

Page 30: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Agency for Healthcare Research and Quality

Consumer Assessment of Healthcare Providers

and Systems Questions (CAHPS)

Health literacy supplement

www.cahps.ahrq.gov

Page 31: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Agency for Healthcare Research and Quality

Health Literacy Universal Precautions Toolkit

http://www.ahrq.gov/qual/literacy/

Universal precautions VS testing for health literacy

Page 32: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Agency for Healthcare Research and Quality

Informed Consent and Authorization Toolkit for

Minimal Risk Research

http://www.ahrq.gov/fund/informedconsent/

Page 33: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s new?

Department of Health and Human Services

Action Plan to Improve Health Literacy

Released May 27, 2010

http://www.health.gov/communication/HLActionPlan/

Page 34: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

HHS Action Plan to Improve Health Literacy

Seven goals

1. Develop and disseminate health and

safety information that is accurate,

accessible, and actionable.

Page 35: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

HHS Action Plan to Improve Health Literacy

2. Promote changes in the health care

system that improve health information,

communication, informed decision

making, and access to health services.

Page 36: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

HHS Action Plan to Improve Health Literacy

3. Incorporate accurate, standards-based,

and developmentally appropriate health

and science information and curricula in

child care and education through the

university level.

Page 37: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

HHS Action Plan to Improve Health Literacy

4. Support and expand local efforts to

provide adult education, English language

instruction, and culturally and linguistically

appropriate health information services in

the community.

Page 38: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

HHS Action Plan to Improve Health Literacy

5. Build partnerships, develop guidance, and

change policies.

6. Increase basic research and the

development, implementation, and

evaluation of practices and interventions

to improve health literacy.

Page 39: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

HHS Action Plan to Improve Health Literacy

7. Increase the dissemination and use of

evidence-based health literacy practices

and interventions.

Page 40: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s New?

The Joint Commission

Advancing Effective Communication, Cultural

Competence, and Patient- and Family-Centered

Care – A Roadmap for Hospitals

http://www.jointcommission.org/PatientSafety/HLC/HLC_Develop_Culturally_Competent_Pt_Centered_Stds.htm

Page 41: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s New?

Medline Plus website redesign

http://www.nlm.nih.gov/medlineplus/

Easy to read materials

Interactive videos

Page 42: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Where are we now?

Higher level of awareness in WI and nationally

Many projects started around the state

More research being done

Not many definitive answers

Page 43: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Where are we now?

Discussions of:

Health literacy definition

Health literacy measurement

Health professional curricula

National health literacy advocacy organization

Page 44: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Where are we now?

82nd health literacy presentation

Page 45: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s Next?

More research and dissemination of results

AHRQ document rating system

More health literacy regional conferences

Page 46: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s Next?

Become part of the healthcare reform?

Response to Action Plan?

Page 47: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s Next In Wisconsin?

Publication of research results

Collaboration Guide for hospitals and literacy

organizations

Easy-to-Understand Writing Guide

County specific literacy information?

Page 48: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What’s Next In Wisconsin?

Health Literacy Summit IV

April 12 – 13, 2011

Conference grant application

Health materials development workshop

Wingspread Conference follow up

Page 49: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

What Can You Do?

Learn more

Continue to raise awareness

Start small

Integrate health literacy into current efforts

Connect with collaborators

Page 50: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Want a copy?

[email protected]

Health literacy resources document

Page 51: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu

Questions?

Comments?

Page 52: Health Literacy What’s Done and What’s Left to Do Paul D. Smith, MD, Associate Professor UW Department of Family Medicine Paul.Smith@fammed.wisc.edu