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HANC and Community Partners Overview
November 20, 2007
Michael Petillo, Project Coordinator
What is HANC?
HIV/AIDS Network Coordination Office established in 2004 with support from the DAIDS-funded HIV Clinical Research Trials Networks
Directed by Dr. James Kublin and funded by DAIDS
Work plan guided by DAIDS and six Network Principal Investigators
Located at the Fred Hutchinson Cancer Research Center in Seattle, Washington, USA
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What is HANC’s mission? Coordinated research Collaborative solutions Cross-Network communication
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CHAVI
DOD
IAVI
NICHD
PAVE
Communicate
Why is cross-network coordination important?
Improved processes Increased efficiency Resource sharing
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Standardize
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What does HANC do? Facilitates communication and information sharing for collaborative,
international, cross-Network groups Helps to identify and connect groups that might not otherwise interact
regularly, but have common interests or challenges
Current cross-Network groups
HANC methods
Connect individuals or groups with shared interests
Define specific goals, objectives and timelines
Coordinate working group activities
Facilitate conference calls, meetings and discussions
Provide administrative and logistical support tools
Identify and report on successes and challenges
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What is Community Partners?
A leadership group that was proposed and developed by community volunteers and staff, designed to represent cross-Network community research needs and priorities
scientific agendas ethical conduct of clinical trials community education communication/information dissemination respect for community priorities continued community participation
Funded by DAIDS as part of recent RFA and recompetition process
Community Partners Membership Structure
Voting membership includes community representatives selected by each Network, as well as additional at large and regional reps. Network staff, DAIDS and HANC reps serve in a non-voting capacity.
Working groups of the CP - 1
Community Training Working Group: works to identify and develop programs to meet the training and support requirements of local CABs. Currently undertaking work in that respect
Community Recommendations Working Group: working on the document ‘recommendations for community involvement in NIH DAIDS Clinical Trial Networks’. Work still in progress
Working groups of the CP - 2
Nominations Working Group: which handles nomination processes in the group. Currently saddled with the responsibility of identifying Co-Chairs for the group
Scientific Priorities Steering Committee: Would focus on identifying scientific priorities of the community and articulating this to the Network and DAIDS leadership
Working groups of the CP – 3
Adhoc committees: there is the Open Letter on Sex and Gender working committee. The committee tries to work across the network to ensure that information on transgender issues are collected at the trial sites so as to ensure that transgender health related problems are identified and planned for.
AIDS Clinical Trials Group (ACTG)HIV Prevention Trials Network(HPTN)HIV Vaccine Trials Network (HVTN)International Maternal, Pediatric, Adolescent AIDS Clinical Trials (IMPAACT) International Network for Strategic Initiatives in Global HIV Trials (INSIGHT)Microbicide Trials Network (MTN)
Map of Community Partners Members’ Locations - September 2007
HANC contacts
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Leadership: Jim Kublin, MD, MPH [email protected]
Laboratory: Alissa Johnson [email protected]
Training & Evaluation: Christie Villa [email protected]
Data Management: Alissa Johnson [email protected]
Community: Michael Petillo [email protected]
Website: www.hanc.info
