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Good Life Good Death Good Grief Mark Hazelwood Scottish Partnership for Palliative Care

Good Life Good Death Good Grief Mark Hazelwood Scottish Partnership for Palliative Care

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Good Life Good Death Good Grief

Mark HazelwoodScottish Partnership for Palliative Care

Outline

1. Changes in death and dying in Scotland

2. Policy & practice response3. A new alliance4. A call to action

The projected percentage change in age structure of Scotland's population, 2004-2031

Living and Dying Well / GSF Framework

Where People Die in Scotland 2006 data

Place of death Percentage of deaths

Hospice

Care Home

Hospital

Home

1949 - Estimated 81% of all deaths are at home

3

16

23

58

“palliatus” covered with a cloak

“Palliative Care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual”

World Health Organisation 2004

Identify

Assess and PlanCommunicate

Complementary Strands• End of life care pathways•Training & education•24/7 community nursing•Access to equipment•Anticipatory prescribing•DNACPR•Palliative care in care homes•Palliative care in hospitals•Public information•Clinical guidelines•Quality indicators

Dying Matters NatCen Survey Results (2009)

14

0

10

20

30

40

50

60

70

80

Medical Spiritual Needs

Privacy and peace

Dying with Dignity

Where I prefer to

die

Pain relief None of These

Male Female

No - 70%

Have you discussed your wishes?

Why we don’t talk about dying

19% of men16% of women

Death is a long way off

I am too young to

think about it

47% of men 43% of women

20% of people over 75+

3% of people over 75

“On neither the sun, nor death, can a man look fixedly.”

Francois de La Rochefoucauld

Avoidable Harms• Practical & financial problems from lack of wills• Unnecessary fear of process of dying• Not saying “good bye” or “I love you”• Futile distressing medical interventions• Lack of care planning• Isolation of people who are very ill or bereaved

Who We Are

• Good Life, Good Death, Good Grief is an alliance of organisations and individuals• Hosted and resourced by the Scottish Partnership for Palliative Care • We aim to encourage greater openness about death, dying and bereavement•To raise awareness of ways of living with these issues – those practical things which individuals and communities can do

But what do you actually do?

•Generate media coverage/national dialogue•Identify & share good practice•Provide ideas and tools•Signpost to useful resource•Influence government

“The First Minister is supportive of the Good Life, Good Death, Good Grief initiative and

would wherever possible encourage people to take part in discussions about these topics

which should help people in the future to deal with these very emotive issues.”

Office of Alex Salmond MSP, First Minister

Call to Action!

•You can join now at www.goodlifedeathgrief.org.uk •Our website has ideas, suggestions and resources for you and your organisation

Resources & Acknowledgements

1. www.goodlifedeathgrief.org.uk2. www.palliativecarescotland.org.uk3. www.dyingmatters.org.uk4. Understanding patterns of health and social care at the end of life (Nuffield Trust, October

2012)

5. Compassionate Cities; public health and end of life care - Allan Kellehear6. A Social History of Dying – Alan Kellehear7. Funeral Product Advertisement – From “Six Feet Under”, with thanks to HBO8. Xbox Advert from Microsoft9. Mark’s funeral music “Poses” by Rufus Wainwright