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wwwplanetreeorg
Framework for Change May 13 200 ndash 600 PM Susan Frampton PhD President Planetree Alan Manning MPA Executive Vice President Planetree
wwwplanetreeorg
bull Welcome amp Introduction
bull Logic model for patient and family centered care culture
bull Essential structures and functions
bull Patient preferred practices
bull Measuring patient centered care
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The lsquoideal patientrsquo circa 1990s
ldquohellipthe ideal patient has no family asks no questions and does exactly what the doctor tells them to dohelliprdquo
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Advocacy efforts in the 1970rsquos challenged the status quo of lsquopatients as passive recipientsrsquo of care
ldquohellipwe should all demand to be treated as competent adults and take an active part in our healinghellipwe should insist on hospitals meeting our human need for respect control warm and supportive carehelliprdquo
-Angelica Thieriot 1978
Founder Planetree
The 1st patient-centered advocacy organization in the USA
wwwplanetreeorg
The core of a patient-centric approach the lived experience of patients family and staff
o Compassionate Human Interactions
o Access to Meaningful Information
o Support amp Participation of Family Friends
o Healing Environment
o Support for body mind amp spirit
o Arts and Entertainment o Spirituality o Caring Touch o Integrative Therapies o Healthy Food and Nutrition
o Healthy Communities
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IA A multi-disciplinary task force is established to oversee and assist with implementation and maintenance of patient -resident-centered practices which includes a mix of non -supervisory and management staff and meets regularly (every 4-6 weeks) on an ongoing basis IB A patient-resident-centered care coordinator or point person is designated who is able to commit the time required to champion related activities on an ongoing basis
IC Patientresident family and staff focus groups are conducted on -site by Planetree or another qualif ied independent vendor periodically (at 12-18 month intervals) and the results are shared at a minimum with senior management the governing body and staff ID Information on patient-resident-centered care implementation and progress is shared periodically with key organizational stakeholders cultivating an understanding of patient -resident-centered initiatives underway in the organization This informat ion is communicated regularly to staff (and in continuing care environments also to residents and families) and at a minimu m annually to the governing board of the organization
IE An ongoing mechanism is in place to solicit meaningful dialogue input and reactions from patientsresidents families and the community on current practices and new initiatives This may be achieved via an active patientresidentfamily or community advisory council with regular meetings or some other effective mechanism to obtain regular input from patientsresidents and community IIA All staff including off -shift and support staff are given an opportunity to participate in a minimum of eight hours of p atient-resident-centered staff retreat experiences or an equivalent with a minimum concurrent completion rate of 85 IIB An independently administered physician experience survey is conducted at least once every f ive years using a validated survey instrument and physicians are oriented and regularly educated about and encouraged to participate in patient -resident-centered initiatives
IIC Continuing education to reinforce and revitalize staff engagement in patient -resident-centered behaviors and practices an d build competence around the communityrsquos evolving needs is offered on a regular and ongoing basis to all staff in meaningful ways determined by the organization IID A comprehensive presentation on patient -resident-centered care concepts practices and initiatives is provided for all new staff (and in continuing care settings new residents) as a part of orientation In continuing care environments resident s and family members are included in a meaningful way in the new employee orientation program
IIE Active teams are in place that address patient -resident-centered initiatives as necessary and include non -supervisory staff input IIF A model of care delivery is adopted that embraces continuity consistency and accountability-based care and allows staff the opportunity and responsibility for personalizing care for each patientresident IIG A mechanism is in place to provide s taff support services that include elements identified by s taff as priority areas Examples include access to concierge or amenity services such as meals-to-go massage space to recharge away from patients res idents and families emotional support such as bereavement services and s taff support groups and personal and profess ional deve lopment programming such as a career ladder program
IIH Human resource systems including job descriptions and evaluations ref lect the organizationrsquos patient -resident-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria In continuing care environments residents play a role in the hiring and evaluation of staff
III Numerous opportunities both formal and informal are provided for staff reward and recognition In continuing care en vironments recognition programs extend to and integrate residents and family members IIJ Independently administered staff surveys using a validated survey instrument or other structured staff feedback mechan isms are conducted at least once every two years IIK a process is in place for providing support as necessary to patientsresidents families and staff affected by an adverse event
IIL Processes are in place to help patientsresidents anticipate the costs of care and assistance is available for those wh o need to make f inancial arrangements Financial communications are concise clear and respectful IIM The organization has processes in place focusing on prevention of medical errors as well as on keeping patientsresidents and staff safe from harm from self and others
II N Effective 24-hour shift-to notshift communication processes are in place to ensure patientsrsquoresidentsrsquo individualized needs are evaluated discussed and met Opportunities for patientresident and family involvement in shift -to-shift communication are addressed II O Effective communication mechanisms are in place to keep all staff ( including off -site and all shifts) informed about organizational priorities IIPndashApplies only to continuing care sites In continuing care settings residents are given an opportunity to participate as appropriate in a retreat experience or an equivalent to assist with internalizing resident -centered care concepts and to enhance sensitivity to the needs of the entire community Resident retreats are conducted at a minimum annually
IIQndashApplies only to continuing care sites Residents are provided with the choice of where they are going to live and with whom with staff input provided as appropriate IIRndash Applies only to continuing care sites In continuing care settings processes are in place for evaluating identifying and effectively integrating into the care plan what is important to each resident based on hisher identity decision-maknoting ability and mastery skills and what is meannotingful to that resident in the living environment and in daily activities
IIIA A policy for sharing clinical information including the medical record and the care plan with patientsresidents has been approved an effective system is in place to make patientsresidents aware that they may review this information a system is in place to monitor staff communication to patientsresidents of this choice and patientresident participation levels and a process is in place to facilitate patientsresidents documenting their comments IIIA-Behavioral Health Application In behavioral health settings decisions about the extent of the clinical information shared and the mechanism used for sharing this information are made on an individualized basis A range of options are available for sharing such information including the medical record and the treatment plan to ensure that patients of varying competency levels have access to information that will help them to
understand their symptoms diagnosis and treatment IIIB A community health resource library or signif icant consumer health collection is established either based at the hosp ital or provided by the site in partnership with other organizations The hospital has implemented strategies to make patients residents families and community members aware that the library is free and open to the public Printed material is available on the sitersquos ten most common diagnoses and there are
systems in place to enable patientsresidents to obtain information both with assistance and on their own IIIC A range of educational materials is available for patientsresidents and families and is easily accessible to staff Staff is knowledgeable about the availability of these resources IIID Patientsresidents are provided with meaningful discharge instructions
IIIE A process is in place to disclose unanticipated outcomes to patientsresidents (and family members as appropriate) III FThe site has a process to assist patientsresidents and families in managing their medical information and coordinating their car e among multiple physicians including the patientrsquos admitting physician primary care provider and appropriate specialists
IVA Flexible 24-hour patient-resident-directed visiting hours are in place and children are permitted to visit (exceptions for psychiatric f acilities NICU and in cases of communicable disease) In continuing care settings accommodations are made for intimate vis its by a spousepartner IVA-Behavioral Health Application In behavioral health settings visiting hours are consistent with the patientrsquos treatment plan and f lexible to accommodate patient and family visitation preferences Restrictions to visitation are determined by the t reatment plan and patient preferences and the rationale for any restrictions is clearly communicated to patients and families IVB A comprehensive formalized approach to involving families in all aspects of the patientrsquos residentrsquos care and tailored to the needs and abilities of the organization and its facility is developed at a minimum on pediatric oncology medical-surgical and rehabilitation units An example is a Care Partner Program
IVB-Behavioral Health Application A comprehensive formalized approach to providing families with psychoeducation and when clinically appropriate involving them in the patientrsquos care is developed and tailored to the needs and abilities of the organization and its facility An example is a Care Partner Program IVC Kitchenspantries and lounges are available for families to use
IVD A process is in place to encourage patientsresidents and families to communicate with staff about any concerns related to their care including any concerns related to residentpatient safety VA A system is in place to provide patientsresidents families and staff with 24-hour access to a variety of foods and beverages (unless doing so conflicts with the treatment plan) Patientsrsquoresidentsrsquo personal preferences and routines around mealtimes are considered and accommodated to the extent possible VB The organization has a system to provide patientsresidents and staff with fresh healthy food at appropriate temperatur es and provides patients with a variety of food choices
VIA Healing healthcare design standards are developed that at a minimum address interior f inishes and lighting In continuing care settings these standards also provide for personalization of living areas by residents VIB The auditory environment has been reviewed and a noise control protocol is in place
VIC The olfactory environment has been reviewed and odors have been addressed VID As remodeling is done symbolic and real barriers are removed Examples include implementing open nursesrsquo stations family lounges unit-based kitchens indirect lighting In continuing care environments each residentrsquos living area features a view to the outside VIE Signage both leading to facility entrances as well as throughout the interior of the facility is clear and understand able to patients residents and visitors
VIF Ample parking adjacent to entrances is available When nearby parking is limited accommodations such as valet service or golf carts to transport visitors to and from the building are made available VIG The environment is designed to accommodate privacy needs and provides for patientresident dignity and modesty particu larly in common areas patientresident rooms and bathrooms
VIH The organization considers progressive facility management practices and specif ies products that promote safe non -toxic approaches to facility cleaning maintenance renovation and construction which recognize the potential health impact on patientsresidents families and staff members VII Patientsresidents have access to nature Examples include an indoor or outdoor garden VIJndash Applies only to behavioral health sites Common spaces are available and feature a sense of spaciousness and light In add ition they satisfy patientsrsquo needs for both private spaces and spaces that support social interaction
VIKndash Applies only to behavioral health sites Protocols are in place for reducing coercive intervention Examples may include a provision of a comfort room Snoezelen or low-stimulation environment VIIA an active arts component (music visual arts crafts animal visitation bedside reading) is in place In continuing care environments the array of activities is dynamic driven by residentsrsquo individual interests and inclusive of family and staf f The activities program allows for spontaneity and self -directed opportunities for residents 24-hours a day 7 days a week
VIIBndashApplies only to continuing care sites A f lexible transportation system is provided that enables residents to satisfy pers onal wishes to participate in off -site activities and to volunteer VIIIA A plan is developed and implemented that recognizes the spiritual dimension of patientsresidents families and staff in the healthcare environment In acute care and continuing care settings this plan includes practices around death and dying VIIIB The special needs of the communityrsquos diverse cultural groups are investigated documented and addressed in specif ic and appropriate ways
IXA The interests and current utilization patterns of patientsresidents and medical staff in the areas of alternative com plementary and integrative healing modalities are assessed and a plan is developed to address these needs Examples could include providing direct services developing a process for responding to patientresident requests for in -hospital treatment by the patientrsquosresidentrsquos existing practitioner(s) and evaluation of patientsresidentsrsquo herbal remedies as part of the medication reconciliation process
IXB A plan for caring touch is developed and implemented as appropriate (Exceptions include behavioral health patients) Examples of caring touch include massage M technique and Reiki XA Based on the interests and needs of the community a plan is developed to improve community health Examples include pr ovision of direct services educational information or referral and collaboration with local agencies XBndash Applies only to behavioral health sites Mechanisms are in place to give public voice to and advocate for the importance of behavioral health initiatives and the need for more comprehensive stigma free and humane approaches to this care
XIA-Acute Care Application Patient satisfaction (both inpatient and outpatient) is regularly assessed using a validated survey instrument which includes the HCAHPS questions Performance on each of the domains in the HCAHPS questionnaire meets or exc eeds national averages XIA-Behavioral Health Application Patientsrsquo perspectives of care (both inpatient and outpatient) are regularly assessed using a validated survey instrument
XIB-Acute Care Application The hospital monitors and reports its performance on the full set of CMS Quality Measures to CMS and shares data on all available indicators with Planetree The hospitalrsquos performance for the most recent twelve month period for which data is available exceeds the ldquoNational Averagerdquo performance as reported on the US Department of Health and Human Services Hospital Compare web site on 75 of the indicators for which the hospital has more than 25 eligible patients for the 12 month period (an n of gt25) XIB-Behavioral Health Application The hospital monitors and reports its performance on appropriate quality measures and provid es benchmarks for comparison purposes The hospital meets or exceeds benchmarks Sites accredited by The Joint Commission m ay submit their ORYX Performance Measure Report with both the control chart to demonstrate internal trending and the comparison chart to demonstrate performance that
meets or exceeds benchmarks to satisfy the criteria XIC-Acute Care Behavioral Health Application The hospital regularly solicits information from staff about patient safety and uses the information generated to improve safety practices in the organization The hospital has a process for encouraging s taff to report quality and patient safety issues The hospital conducts a survey to assess its patient safety culture at a minimum once every two years
XID Applies only to continuing care sites A system is established to broadly communicate performance improvement information to all members of the continuing care community and to the public
Designation- a structured pathway
IF Leadership exemplifies approaches that motivate and inspire others promote positive morale mentor and enhance performance of others recognize the knowledge and decision-making authority of others and model organizational values
IIH Human resource systems including job descriptions and evaluations reflect the organizationrsquos patient-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria and conducting team interviews
XID Staff and patientresidentfamily members are actively involved in the design ongoing assessment and communication of performance improvement efforts The organization consistently utilizes data to identify and prioritize improvement over time
IIIA A policy for sharing clinical information including the medical record and the care plan with patients has been approved staff are educated on this policy and the process for sharing the record and care plan an effective system is in place to make patients aware that they may review this information and a process is in place to facilitate patients documenting their comments
IVB A comprehensive formalized approach for partnering with families in all aspects of the patientrsquos care and tailored to the needs and abilities of the organization and its facility is developed An example is a Care Partner Program
IA A multi-disciplinary task force including patients and family members is established to oversee and assist with implementation and maintenance of patient-centered practices
IIE Active teams are in place that address patient-centered initiatives and include participation by nonsupervisory staff and patients and families
IIF Formalized processes are in place to promote continuity consistency and accountability in care delivery and which all ow staff the opportunity and responsibility for personalizing care in partnership with each patientresident
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Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
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Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
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ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
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The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
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bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
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1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
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wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
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wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
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Quality Check your Partnership Efforts
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STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
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STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
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If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
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What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
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Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
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Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
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Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
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0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
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Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
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Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
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Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
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The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
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Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
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Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
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Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
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At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
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Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
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wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
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What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
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Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
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Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
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Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
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PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
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Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
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Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
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Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
bull Welcome amp Introduction
bull Logic model for patient and family centered care culture
bull Essential structures and functions
bull Patient preferred practices
bull Measuring patient centered care
wwwplanetreeorg
The lsquoideal patientrsquo circa 1990s
ldquohellipthe ideal patient has no family asks no questions and does exactly what the doctor tells them to dohelliprdquo
wwwplanetreeorg
Advocacy efforts in the 1970rsquos challenged the status quo of lsquopatients as passive recipientsrsquo of care
ldquohellipwe should all demand to be treated as competent adults and take an active part in our healinghellipwe should insist on hospitals meeting our human need for respect control warm and supportive carehelliprdquo
-Angelica Thieriot 1978
Founder Planetree
The 1st patient-centered advocacy organization in the USA
wwwplanetreeorg
The core of a patient-centric approach the lived experience of patients family and staff
o Compassionate Human Interactions
o Access to Meaningful Information
o Support amp Participation of Family Friends
o Healing Environment
o Support for body mind amp spirit
o Arts and Entertainment o Spirituality o Caring Touch o Integrative Therapies o Healthy Food and Nutrition
o Healthy Communities
wwwplanetreeorg
IA A multi-disciplinary task force is established to oversee and assist with implementation and maintenance of patient -resident-centered practices which includes a mix of non -supervisory and management staff and meets regularly (every 4-6 weeks) on an ongoing basis IB A patient-resident-centered care coordinator or point person is designated who is able to commit the time required to champion related activities on an ongoing basis
IC Patientresident family and staff focus groups are conducted on -site by Planetree or another qualif ied independent vendor periodically (at 12-18 month intervals) and the results are shared at a minimum with senior management the governing body and staff ID Information on patient-resident-centered care implementation and progress is shared periodically with key organizational stakeholders cultivating an understanding of patient -resident-centered initiatives underway in the organization This informat ion is communicated regularly to staff (and in continuing care environments also to residents and families) and at a minimu m annually to the governing board of the organization
IE An ongoing mechanism is in place to solicit meaningful dialogue input and reactions from patientsresidents families and the community on current practices and new initiatives This may be achieved via an active patientresidentfamily or community advisory council with regular meetings or some other effective mechanism to obtain regular input from patientsresidents and community IIA All staff including off -shift and support staff are given an opportunity to participate in a minimum of eight hours of p atient-resident-centered staff retreat experiences or an equivalent with a minimum concurrent completion rate of 85 IIB An independently administered physician experience survey is conducted at least once every f ive years using a validated survey instrument and physicians are oriented and regularly educated about and encouraged to participate in patient -resident-centered initiatives
IIC Continuing education to reinforce and revitalize staff engagement in patient -resident-centered behaviors and practices an d build competence around the communityrsquos evolving needs is offered on a regular and ongoing basis to all staff in meaningful ways determined by the organization IID A comprehensive presentation on patient -resident-centered care concepts practices and initiatives is provided for all new staff (and in continuing care settings new residents) as a part of orientation In continuing care environments resident s and family members are included in a meaningful way in the new employee orientation program
IIE Active teams are in place that address patient -resident-centered initiatives as necessary and include non -supervisory staff input IIF A model of care delivery is adopted that embraces continuity consistency and accountability-based care and allows staff the opportunity and responsibility for personalizing care for each patientresident IIG A mechanism is in place to provide s taff support services that include elements identified by s taff as priority areas Examples include access to concierge or amenity services such as meals-to-go massage space to recharge away from patients res idents and families emotional support such as bereavement services and s taff support groups and personal and profess ional deve lopment programming such as a career ladder program
IIH Human resource systems including job descriptions and evaluations ref lect the organizationrsquos patient -resident-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria In continuing care environments residents play a role in the hiring and evaluation of staff
III Numerous opportunities both formal and informal are provided for staff reward and recognition In continuing care en vironments recognition programs extend to and integrate residents and family members IIJ Independently administered staff surveys using a validated survey instrument or other structured staff feedback mechan isms are conducted at least once every two years IIK a process is in place for providing support as necessary to patientsresidents families and staff affected by an adverse event
IIL Processes are in place to help patientsresidents anticipate the costs of care and assistance is available for those wh o need to make f inancial arrangements Financial communications are concise clear and respectful IIM The organization has processes in place focusing on prevention of medical errors as well as on keeping patientsresidents and staff safe from harm from self and others
II N Effective 24-hour shift-to notshift communication processes are in place to ensure patientsrsquoresidentsrsquo individualized needs are evaluated discussed and met Opportunities for patientresident and family involvement in shift -to-shift communication are addressed II O Effective communication mechanisms are in place to keep all staff ( including off -site and all shifts) informed about organizational priorities IIPndashApplies only to continuing care sites In continuing care settings residents are given an opportunity to participate as appropriate in a retreat experience or an equivalent to assist with internalizing resident -centered care concepts and to enhance sensitivity to the needs of the entire community Resident retreats are conducted at a minimum annually
IIQndashApplies only to continuing care sites Residents are provided with the choice of where they are going to live and with whom with staff input provided as appropriate IIRndash Applies only to continuing care sites In continuing care settings processes are in place for evaluating identifying and effectively integrating into the care plan what is important to each resident based on hisher identity decision-maknoting ability and mastery skills and what is meannotingful to that resident in the living environment and in daily activities
IIIA A policy for sharing clinical information including the medical record and the care plan with patientsresidents has been approved an effective system is in place to make patientsresidents aware that they may review this information a system is in place to monitor staff communication to patientsresidents of this choice and patientresident participation levels and a process is in place to facilitate patientsresidents documenting their comments IIIA-Behavioral Health Application In behavioral health settings decisions about the extent of the clinical information shared and the mechanism used for sharing this information are made on an individualized basis A range of options are available for sharing such information including the medical record and the treatment plan to ensure that patients of varying competency levels have access to information that will help them to
understand their symptoms diagnosis and treatment IIIB A community health resource library or signif icant consumer health collection is established either based at the hosp ital or provided by the site in partnership with other organizations The hospital has implemented strategies to make patients residents families and community members aware that the library is free and open to the public Printed material is available on the sitersquos ten most common diagnoses and there are
systems in place to enable patientsresidents to obtain information both with assistance and on their own IIIC A range of educational materials is available for patientsresidents and families and is easily accessible to staff Staff is knowledgeable about the availability of these resources IIID Patientsresidents are provided with meaningful discharge instructions
IIIE A process is in place to disclose unanticipated outcomes to patientsresidents (and family members as appropriate) III FThe site has a process to assist patientsresidents and families in managing their medical information and coordinating their car e among multiple physicians including the patientrsquos admitting physician primary care provider and appropriate specialists
IVA Flexible 24-hour patient-resident-directed visiting hours are in place and children are permitted to visit (exceptions for psychiatric f acilities NICU and in cases of communicable disease) In continuing care settings accommodations are made for intimate vis its by a spousepartner IVA-Behavioral Health Application In behavioral health settings visiting hours are consistent with the patientrsquos treatment plan and f lexible to accommodate patient and family visitation preferences Restrictions to visitation are determined by the t reatment plan and patient preferences and the rationale for any restrictions is clearly communicated to patients and families IVB A comprehensive formalized approach to involving families in all aspects of the patientrsquos residentrsquos care and tailored to the needs and abilities of the organization and its facility is developed at a minimum on pediatric oncology medical-surgical and rehabilitation units An example is a Care Partner Program
IVB-Behavioral Health Application A comprehensive formalized approach to providing families with psychoeducation and when clinically appropriate involving them in the patientrsquos care is developed and tailored to the needs and abilities of the organization and its facility An example is a Care Partner Program IVC Kitchenspantries and lounges are available for families to use
IVD A process is in place to encourage patientsresidents and families to communicate with staff about any concerns related to their care including any concerns related to residentpatient safety VA A system is in place to provide patientsresidents families and staff with 24-hour access to a variety of foods and beverages (unless doing so conflicts with the treatment plan) Patientsrsquoresidentsrsquo personal preferences and routines around mealtimes are considered and accommodated to the extent possible VB The organization has a system to provide patientsresidents and staff with fresh healthy food at appropriate temperatur es and provides patients with a variety of food choices
VIA Healing healthcare design standards are developed that at a minimum address interior f inishes and lighting In continuing care settings these standards also provide for personalization of living areas by residents VIB The auditory environment has been reviewed and a noise control protocol is in place
VIC The olfactory environment has been reviewed and odors have been addressed VID As remodeling is done symbolic and real barriers are removed Examples include implementing open nursesrsquo stations family lounges unit-based kitchens indirect lighting In continuing care environments each residentrsquos living area features a view to the outside VIE Signage both leading to facility entrances as well as throughout the interior of the facility is clear and understand able to patients residents and visitors
VIF Ample parking adjacent to entrances is available When nearby parking is limited accommodations such as valet service or golf carts to transport visitors to and from the building are made available VIG The environment is designed to accommodate privacy needs and provides for patientresident dignity and modesty particu larly in common areas patientresident rooms and bathrooms
VIH The organization considers progressive facility management practices and specif ies products that promote safe non -toxic approaches to facility cleaning maintenance renovation and construction which recognize the potential health impact on patientsresidents families and staff members VII Patientsresidents have access to nature Examples include an indoor or outdoor garden VIJndash Applies only to behavioral health sites Common spaces are available and feature a sense of spaciousness and light In add ition they satisfy patientsrsquo needs for both private spaces and spaces that support social interaction
VIKndash Applies only to behavioral health sites Protocols are in place for reducing coercive intervention Examples may include a provision of a comfort room Snoezelen or low-stimulation environment VIIA an active arts component (music visual arts crafts animal visitation bedside reading) is in place In continuing care environments the array of activities is dynamic driven by residentsrsquo individual interests and inclusive of family and staf f The activities program allows for spontaneity and self -directed opportunities for residents 24-hours a day 7 days a week
VIIBndashApplies only to continuing care sites A f lexible transportation system is provided that enables residents to satisfy pers onal wishes to participate in off -site activities and to volunteer VIIIA A plan is developed and implemented that recognizes the spiritual dimension of patientsresidents families and staff in the healthcare environment In acute care and continuing care settings this plan includes practices around death and dying VIIIB The special needs of the communityrsquos diverse cultural groups are investigated documented and addressed in specif ic and appropriate ways
IXA The interests and current utilization patterns of patientsresidents and medical staff in the areas of alternative com plementary and integrative healing modalities are assessed and a plan is developed to address these needs Examples could include providing direct services developing a process for responding to patientresident requests for in -hospital treatment by the patientrsquosresidentrsquos existing practitioner(s) and evaluation of patientsresidentsrsquo herbal remedies as part of the medication reconciliation process
IXB A plan for caring touch is developed and implemented as appropriate (Exceptions include behavioral health patients) Examples of caring touch include massage M technique and Reiki XA Based on the interests and needs of the community a plan is developed to improve community health Examples include pr ovision of direct services educational information or referral and collaboration with local agencies XBndash Applies only to behavioral health sites Mechanisms are in place to give public voice to and advocate for the importance of behavioral health initiatives and the need for more comprehensive stigma free and humane approaches to this care
XIA-Acute Care Application Patient satisfaction (both inpatient and outpatient) is regularly assessed using a validated survey instrument which includes the HCAHPS questions Performance on each of the domains in the HCAHPS questionnaire meets or exc eeds national averages XIA-Behavioral Health Application Patientsrsquo perspectives of care (both inpatient and outpatient) are regularly assessed using a validated survey instrument
XIB-Acute Care Application The hospital monitors and reports its performance on the full set of CMS Quality Measures to CMS and shares data on all available indicators with Planetree The hospitalrsquos performance for the most recent twelve month period for which data is available exceeds the ldquoNational Averagerdquo performance as reported on the US Department of Health and Human Services Hospital Compare web site on 75 of the indicators for which the hospital has more than 25 eligible patients for the 12 month period (an n of gt25) XIB-Behavioral Health Application The hospital monitors and reports its performance on appropriate quality measures and provid es benchmarks for comparison purposes The hospital meets or exceeds benchmarks Sites accredited by The Joint Commission m ay submit their ORYX Performance Measure Report with both the control chart to demonstrate internal trending and the comparison chart to demonstrate performance that
meets or exceeds benchmarks to satisfy the criteria XIC-Acute Care Behavioral Health Application The hospital regularly solicits information from staff about patient safety and uses the information generated to improve safety practices in the organization The hospital has a process for encouraging s taff to report quality and patient safety issues The hospital conducts a survey to assess its patient safety culture at a minimum once every two years
XID Applies only to continuing care sites A system is established to broadly communicate performance improvement information to all members of the continuing care community and to the public
Designation- a structured pathway
IF Leadership exemplifies approaches that motivate and inspire others promote positive morale mentor and enhance performance of others recognize the knowledge and decision-making authority of others and model organizational values
IIH Human resource systems including job descriptions and evaluations reflect the organizationrsquos patient-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria and conducting team interviews
XID Staff and patientresidentfamily members are actively involved in the design ongoing assessment and communication of performance improvement efforts The organization consistently utilizes data to identify and prioritize improvement over time
IIIA A policy for sharing clinical information including the medical record and the care plan with patients has been approved staff are educated on this policy and the process for sharing the record and care plan an effective system is in place to make patients aware that they may review this information and a process is in place to facilitate patients documenting their comments
IVB A comprehensive formalized approach for partnering with families in all aspects of the patientrsquos care and tailored to the needs and abilities of the organization and its facility is developed An example is a Care Partner Program
IA A multi-disciplinary task force including patients and family members is established to oversee and assist with implementation and maintenance of patient-centered practices
IIE Active teams are in place that address patient-centered initiatives and include participation by nonsupervisory staff and patients and families
IIF Formalized processes are in place to promote continuity consistency and accountability in care delivery and which all ow staff the opportunity and responsibility for personalizing care in partnership with each patientresident
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Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
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ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
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1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
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wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
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Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
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Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
The lsquoideal patientrsquo circa 1990s
ldquohellipthe ideal patient has no family asks no questions and does exactly what the doctor tells them to dohelliprdquo
wwwplanetreeorg
Advocacy efforts in the 1970rsquos challenged the status quo of lsquopatients as passive recipientsrsquo of care
ldquohellipwe should all demand to be treated as competent adults and take an active part in our healinghellipwe should insist on hospitals meeting our human need for respect control warm and supportive carehelliprdquo
-Angelica Thieriot 1978
Founder Planetree
The 1st patient-centered advocacy organization in the USA
wwwplanetreeorg
The core of a patient-centric approach the lived experience of patients family and staff
o Compassionate Human Interactions
o Access to Meaningful Information
o Support amp Participation of Family Friends
o Healing Environment
o Support for body mind amp spirit
o Arts and Entertainment o Spirituality o Caring Touch o Integrative Therapies o Healthy Food and Nutrition
o Healthy Communities
wwwplanetreeorg
IA A multi-disciplinary task force is established to oversee and assist with implementation and maintenance of patient -resident-centered practices which includes a mix of non -supervisory and management staff and meets regularly (every 4-6 weeks) on an ongoing basis IB A patient-resident-centered care coordinator or point person is designated who is able to commit the time required to champion related activities on an ongoing basis
IC Patientresident family and staff focus groups are conducted on -site by Planetree or another qualif ied independent vendor periodically (at 12-18 month intervals) and the results are shared at a minimum with senior management the governing body and staff ID Information on patient-resident-centered care implementation and progress is shared periodically with key organizational stakeholders cultivating an understanding of patient -resident-centered initiatives underway in the organization This informat ion is communicated regularly to staff (and in continuing care environments also to residents and families) and at a minimu m annually to the governing board of the organization
IE An ongoing mechanism is in place to solicit meaningful dialogue input and reactions from patientsresidents families and the community on current practices and new initiatives This may be achieved via an active patientresidentfamily or community advisory council with regular meetings or some other effective mechanism to obtain regular input from patientsresidents and community IIA All staff including off -shift and support staff are given an opportunity to participate in a minimum of eight hours of p atient-resident-centered staff retreat experiences or an equivalent with a minimum concurrent completion rate of 85 IIB An independently administered physician experience survey is conducted at least once every f ive years using a validated survey instrument and physicians are oriented and regularly educated about and encouraged to participate in patient -resident-centered initiatives
IIC Continuing education to reinforce and revitalize staff engagement in patient -resident-centered behaviors and practices an d build competence around the communityrsquos evolving needs is offered on a regular and ongoing basis to all staff in meaningful ways determined by the organization IID A comprehensive presentation on patient -resident-centered care concepts practices and initiatives is provided for all new staff (and in continuing care settings new residents) as a part of orientation In continuing care environments resident s and family members are included in a meaningful way in the new employee orientation program
IIE Active teams are in place that address patient -resident-centered initiatives as necessary and include non -supervisory staff input IIF A model of care delivery is adopted that embraces continuity consistency and accountability-based care and allows staff the opportunity and responsibility for personalizing care for each patientresident IIG A mechanism is in place to provide s taff support services that include elements identified by s taff as priority areas Examples include access to concierge or amenity services such as meals-to-go massage space to recharge away from patients res idents and families emotional support such as bereavement services and s taff support groups and personal and profess ional deve lopment programming such as a career ladder program
IIH Human resource systems including job descriptions and evaluations ref lect the organizationrsquos patient -resident-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria In continuing care environments residents play a role in the hiring and evaluation of staff
III Numerous opportunities both formal and informal are provided for staff reward and recognition In continuing care en vironments recognition programs extend to and integrate residents and family members IIJ Independently administered staff surveys using a validated survey instrument or other structured staff feedback mechan isms are conducted at least once every two years IIK a process is in place for providing support as necessary to patientsresidents families and staff affected by an adverse event
IIL Processes are in place to help patientsresidents anticipate the costs of care and assistance is available for those wh o need to make f inancial arrangements Financial communications are concise clear and respectful IIM The organization has processes in place focusing on prevention of medical errors as well as on keeping patientsresidents and staff safe from harm from self and others
II N Effective 24-hour shift-to notshift communication processes are in place to ensure patientsrsquoresidentsrsquo individualized needs are evaluated discussed and met Opportunities for patientresident and family involvement in shift -to-shift communication are addressed II O Effective communication mechanisms are in place to keep all staff ( including off -site and all shifts) informed about organizational priorities IIPndashApplies only to continuing care sites In continuing care settings residents are given an opportunity to participate as appropriate in a retreat experience or an equivalent to assist with internalizing resident -centered care concepts and to enhance sensitivity to the needs of the entire community Resident retreats are conducted at a minimum annually
IIQndashApplies only to continuing care sites Residents are provided with the choice of where they are going to live and with whom with staff input provided as appropriate IIRndash Applies only to continuing care sites In continuing care settings processes are in place for evaluating identifying and effectively integrating into the care plan what is important to each resident based on hisher identity decision-maknoting ability and mastery skills and what is meannotingful to that resident in the living environment and in daily activities
IIIA A policy for sharing clinical information including the medical record and the care plan with patientsresidents has been approved an effective system is in place to make patientsresidents aware that they may review this information a system is in place to monitor staff communication to patientsresidents of this choice and patientresident participation levels and a process is in place to facilitate patientsresidents documenting their comments IIIA-Behavioral Health Application In behavioral health settings decisions about the extent of the clinical information shared and the mechanism used for sharing this information are made on an individualized basis A range of options are available for sharing such information including the medical record and the treatment plan to ensure that patients of varying competency levels have access to information that will help them to
understand their symptoms diagnosis and treatment IIIB A community health resource library or signif icant consumer health collection is established either based at the hosp ital or provided by the site in partnership with other organizations The hospital has implemented strategies to make patients residents families and community members aware that the library is free and open to the public Printed material is available on the sitersquos ten most common diagnoses and there are
systems in place to enable patientsresidents to obtain information both with assistance and on their own IIIC A range of educational materials is available for patientsresidents and families and is easily accessible to staff Staff is knowledgeable about the availability of these resources IIID Patientsresidents are provided with meaningful discharge instructions
IIIE A process is in place to disclose unanticipated outcomes to patientsresidents (and family members as appropriate) III FThe site has a process to assist patientsresidents and families in managing their medical information and coordinating their car e among multiple physicians including the patientrsquos admitting physician primary care provider and appropriate specialists
IVA Flexible 24-hour patient-resident-directed visiting hours are in place and children are permitted to visit (exceptions for psychiatric f acilities NICU and in cases of communicable disease) In continuing care settings accommodations are made for intimate vis its by a spousepartner IVA-Behavioral Health Application In behavioral health settings visiting hours are consistent with the patientrsquos treatment plan and f lexible to accommodate patient and family visitation preferences Restrictions to visitation are determined by the t reatment plan and patient preferences and the rationale for any restrictions is clearly communicated to patients and families IVB A comprehensive formalized approach to involving families in all aspects of the patientrsquos residentrsquos care and tailored to the needs and abilities of the organization and its facility is developed at a minimum on pediatric oncology medical-surgical and rehabilitation units An example is a Care Partner Program
IVB-Behavioral Health Application A comprehensive formalized approach to providing families with psychoeducation and when clinically appropriate involving them in the patientrsquos care is developed and tailored to the needs and abilities of the organization and its facility An example is a Care Partner Program IVC Kitchenspantries and lounges are available for families to use
IVD A process is in place to encourage patientsresidents and families to communicate with staff about any concerns related to their care including any concerns related to residentpatient safety VA A system is in place to provide patientsresidents families and staff with 24-hour access to a variety of foods and beverages (unless doing so conflicts with the treatment plan) Patientsrsquoresidentsrsquo personal preferences and routines around mealtimes are considered and accommodated to the extent possible VB The organization has a system to provide patientsresidents and staff with fresh healthy food at appropriate temperatur es and provides patients with a variety of food choices
VIA Healing healthcare design standards are developed that at a minimum address interior f inishes and lighting In continuing care settings these standards also provide for personalization of living areas by residents VIB The auditory environment has been reviewed and a noise control protocol is in place
VIC The olfactory environment has been reviewed and odors have been addressed VID As remodeling is done symbolic and real barriers are removed Examples include implementing open nursesrsquo stations family lounges unit-based kitchens indirect lighting In continuing care environments each residentrsquos living area features a view to the outside VIE Signage both leading to facility entrances as well as throughout the interior of the facility is clear and understand able to patients residents and visitors
VIF Ample parking adjacent to entrances is available When nearby parking is limited accommodations such as valet service or golf carts to transport visitors to and from the building are made available VIG The environment is designed to accommodate privacy needs and provides for patientresident dignity and modesty particu larly in common areas patientresident rooms and bathrooms
VIH The organization considers progressive facility management practices and specif ies products that promote safe non -toxic approaches to facility cleaning maintenance renovation and construction which recognize the potential health impact on patientsresidents families and staff members VII Patientsresidents have access to nature Examples include an indoor or outdoor garden VIJndash Applies only to behavioral health sites Common spaces are available and feature a sense of spaciousness and light In add ition they satisfy patientsrsquo needs for both private spaces and spaces that support social interaction
VIKndash Applies only to behavioral health sites Protocols are in place for reducing coercive intervention Examples may include a provision of a comfort room Snoezelen or low-stimulation environment VIIA an active arts component (music visual arts crafts animal visitation bedside reading) is in place In continuing care environments the array of activities is dynamic driven by residentsrsquo individual interests and inclusive of family and staf f The activities program allows for spontaneity and self -directed opportunities for residents 24-hours a day 7 days a week
VIIBndashApplies only to continuing care sites A f lexible transportation system is provided that enables residents to satisfy pers onal wishes to participate in off -site activities and to volunteer VIIIA A plan is developed and implemented that recognizes the spiritual dimension of patientsresidents families and staff in the healthcare environment In acute care and continuing care settings this plan includes practices around death and dying VIIIB The special needs of the communityrsquos diverse cultural groups are investigated documented and addressed in specif ic and appropriate ways
IXA The interests and current utilization patterns of patientsresidents and medical staff in the areas of alternative com plementary and integrative healing modalities are assessed and a plan is developed to address these needs Examples could include providing direct services developing a process for responding to patientresident requests for in -hospital treatment by the patientrsquosresidentrsquos existing practitioner(s) and evaluation of patientsresidentsrsquo herbal remedies as part of the medication reconciliation process
IXB A plan for caring touch is developed and implemented as appropriate (Exceptions include behavioral health patients) Examples of caring touch include massage M technique and Reiki XA Based on the interests and needs of the community a plan is developed to improve community health Examples include pr ovision of direct services educational information or referral and collaboration with local agencies XBndash Applies only to behavioral health sites Mechanisms are in place to give public voice to and advocate for the importance of behavioral health initiatives and the need for more comprehensive stigma free and humane approaches to this care
XIA-Acute Care Application Patient satisfaction (both inpatient and outpatient) is regularly assessed using a validated survey instrument which includes the HCAHPS questions Performance on each of the domains in the HCAHPS questionnaire meets or exc eeds national averages XIA-Behavioral Health Application Patientsrsquo perspectives of care (both inpatient and outpatient) are regularly assessed using a validated survey instrument
XIB-Acute Care Application The hospital monitors and reports its performance on the full set of CMS Quality Measures to CMS and shares data on all available indicators with Planetree The hospitalrsquos performance for the most recent twelve month period for which data is available exceeds the ldquoNational Averagerdquo performance as reported on the US Department of Health and Human Services Hospital Compare web site on 75 of the indicators for which the hospital has more than 25 eligible patients for the 12 month period (an n of gt25) XIB-Behavioral Health Application The hospital monitors and reports its performance on appropriate quality measures and provid es benchmarks for comparison purposes The hospital meets or exceeds benchmarks Sites accredited by The Joint Commission m ay submit their ORYX Performance Measure Report with both the control chart to demonstrate internal trending and the comparison chart to demonstrate performance that
meets or exceeds benchmarks to satisfy the criteria XIC-Acute Care Behavioral Health Application The hospital regularly solicits information from staff about patient safety and uses the information generated to improve safety practices in the organization The hospital has a process for encouraging s taff to report quality and patient safety issues The hospital conducts a survey to assess its patient safety culture at a minimum once every two years
XID Applies only to continuing care sites A system is established to broadly communicate performance improvement information to all members of the continuing care community and to the public
Designation- a structured pathway
IF Leadership exemplifies approaches that motivate and inspire others promote positive morale mentor and enhance performance of others recognize the knowledge and decision-making authority of others and model organizational values
IIH Human resource systems including job descriptions and evaluations reflect the organizationrsquos patient-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria and conducting team interviews
XID Staff and patientresidentfamily members are actively involved in the design ongoing assessment and communication of performance improvement efforts The organization consistently utilizes data to identify and prioritize improvement over time
IIIA A policy for sharing clinical information including the medical record and the care plan with patients has been approved staff are educated on this policy and the process for sharing the record and care plan an effective system is in place to make patients aware that they may review this information and a process is in place to facilitate patients documenting their comments
IVB A comprehensive formalized approach for partnering with families in all aspects of the patientrsquos care and tailored to the needs and abilities of the organization and its facility is developed An example is a Care Partner Program
IA A multi-disciplinary task force including patients and family members is established to oversee and assist with implementation and maintenance of patient-centered practices
IIE Active teams are in place that address patient-centered initiatives and include participation by nonsupervisory staff and patients and families
IIF Formalized processes are in place to promote continuity consistency and accountability in care delivery and which all ow staff the opportunity and responsibility for personalizing care in partnership with each patientresident
wwwplanetreeorg
Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
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STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
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If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
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Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
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wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
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Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
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Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
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Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
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wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Advocacy efforts in the 1970rsquos challenged the status quo of lsquopatients as passive recipientsrsquo of care
ldquohellipwe should all demand to be treated as competent adults and take an active part in our healinghellipwe should insist on hospitals meeting our human need for respect control warm and supportive carehelliprdquo
-Angelica Thieriot 1978
Founder Planetree
The 1st patient-centered advocacy organization in the USA
wwwplanetreeorg
The core of a patient-centric approach the lived experience of patients family and staff
o Compassionate Human Interactions
o Access to Meaningful Information
o Support amp Participation of Family Friends
o Healing Environment
o Support for body mind amp spirit
o Arts and Entertainment o Spirituality o Caring Touch o Integrative Therapies o Healthy Food and Nutrition
o Healthy Communities
wwwplanetreeorg
IA A multi-disciplinary task force is established to oversee and assist with implementation and maintenance of patient -resident-centered practices which includes a mix of non -supervisory and management staff and meets regularly (every 4-6 weeks) on an ongoing basis IB A patient-resident-centered care coordinator or point person is designated who is able to commit the time required to champion related activities on an ongoing basis
IC Patientresident family and staff focus groups are conducted on -site by Planetree or another qualif ied independent vendor periodically (at 12-18 month intervals) and the results are shared at a minimum with senior management the governing body and staff ID Information on patient-resident-centered care implementation and progress is shared periodically with key organizational stakeholders cultivating an understanding of patient -resident-centered initiatives underway in the organization This informat ion is communicated regularly to staff (and in continuing care environments also to residents and families) and at a minimu m annually to the governing board of the organization
IE An ongoing mechanism is in place to solicit meaningful dialogue input and reactions from patientsresidents families and the community on current practices and new initiatives This may be achieved via an active patientresidentfamily or community advisory council with regular meetings or some other effective mechanism to obtain regular input from patientsresidents and community IIA All staff including off -shift and support staff are given an opportunity to participate in a minimum of eight hours of p atient-resident-centered staff retreat experiences or an equivalent with a minimum concurrent completion rate of 85 IIB An independently administered physician experience survey is conducted at least once every f ive years using a validated survey instrument and physicians are oriented and regularly educated about and encouraged to participate in patient -resident-centered initiatives
IIC Continuing education to reinforce and revitalize staff engagement in patient -resident-centered behaviors and practices an d build competence around the communityrsquos evolving needs is offered on a regular and ongoing basis to all staff in meaningful ways determined by the organization IID A comprehensive presentation on patient -resident-centered care concepts practices and initiatives is provided for all new staff (and in continuing care settings new residents) as a part of orientation In continuing care environments resident s and family members are included in a meaningful way in the new employee orientation program
IIE Active teams are in place that address patient -resident-centered initiatives as necessary and include non -supervisory staff input IIF A model of care delivery is adopted that embraces continuity consistency and accountability-based care and allows staff the opportunity and responsibility for personalizing care for each patientresident IIG A mechanism is in place to provide s taff support services that include elements identified by s taff as priority areas Examples include access to concierge or amenity services such as meals-to-go massage space to recharge away from patients res idents and families emotional support such as bereavement services and s taff support groups and personal and profess ional deve lopment programming such as a career ladder program
IIH Human resource systems including job descriptions and evaluations ref lect the organizationrsquos patient -resident-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria In continuing care environments residents play a role in the hiring and evaluation of staff
III Numerous opportunities both formal and informal are provided for staff reward and recognition In continuing care en vironments recognition programs extend to and integrate residents and family members IIJ Independently administered staff surveys using a validated survey instrument or other structured staff feedback mechan isms are conducted at least once every two years IIK a process is in place for providing support as necessary to patientsresidents families and staff affected by an adverse event
IIL Processes are in place to help patientsresidents anticipate the costs of care and assistance is available for those wh o need to make f inancial arrangements Financial communications are concise clear and respectful IIM The organization has processes in place focusing on prevention of medical errors as well as on keeping patientsresidents and staff safe from harm from self and others
II N Effective 24-hour shift-to notshift communication processes are in place to ensure patientsrsquoresidentsrsquo individualized needs are evaluated discussed and met Opportunities for patientresident and family involvement in shift -to-shift communication are addressed II O Effective communication mechanisms are in place to keep all staff ( including off -site and all shifts) informed about organizational priorities IIPndashApplies only to continuing care sites In continuing care settings residents are given an opportunity to participate as appropriate in a retreat experience or an equivalent to assist with internalizing resident -centered care concepts and to enhance sensitivity to the needs of the entire community Resident retreats are conducted at a minimum annually
IIQndashApplies only to continuing care sites Residents are provided with the choice of where they are going to live and with whom with staff input provided as appropriate IIRndash Applies only to continuing care sites In continuing care settings processes are in place for evaluating identifying and effectively integrating into the care plan what is important to each resident based on hisher identity decision-maknoting ability and mastery skills and what is meannotingful to that resident in the living environment and in daily activities
IIIA A policy for sharing clinical information including the medical record and the care plan with patientsresidents has been approved an effective system is in place to make patientsresidents aware that they may review this information a system is in place to monitor staff communication to patientsresidents of this choice and patientresident participation levels and a process is in place to facilitate patientsresidents documenting their comments IIIA-Behavioral Health Application In behavioral health settings decisions about the extent of the clinical information shared and the mechanism used for sharing this information are made on an individualized basis A range of options are available for sharing such information including the medical record and the treatment plan to ensure that patients of varying competency levels have access to information that will help them to
understand their symptoms diagnosis and treatment IIIB A community health resource library or signif icant consumer health collection is established either based at the hosp ital or provided by the site in partnership with other organizations The hospital has implemented strategies to make patients residents families and community members aware that the library is free and open to the public Printed material is available on the sitersquos ten most common diagnoses and there are
systems in place to enable patientsresidents to obtain information both with assistance and on their own IIIC A range of educational materials is available for patientsresidents and families and is easily accessible to staff Staff is knowledgeable about the availability of these resources IIID Patientsresidents are provided with meaningful discharge instructions
IIIE A process is in place to disclose unanticipated outcomes to patientsresidents (and family members as appropriate) III FThe site has a process to assist patientsresidents and families in managing their medical information and coordinating their car e among multiple physicians including the patientrsquos admitting physician primary care provider and appropriate specialists
IVA Flexible 24-hour patient-resident-directed visiting hours are in place and children are permitted to visit (exceptions for psychiatric f acilities NICU and in cases of communicable disease) In continuing care settings accommodations are made for intimate vis its by a spousepartner IVA-Behavioral Health Application In behavioral health settings visiting hours are consistent with the patientrsquos treatment plan and f lexible to accommodate patient and family visitation preferences Restrictions to visitation are determined by the t reatment plan and patient preferences and the rationale for any restrictions is clearly communicated to patients and families IVB A comprehensive formalized approach to involving families in all aspects of the patientrsquos residentrsquos care and tailored to the needs and abilities of the organization and its facility is developed at a minimum on pediatric oncology medical-surgical and rehabilitation units An example is a Care Partner Program
IVB-Behavioral Health Application A comprehensive formalized approach to providing families with psychoeducation and when clinically appropriate involving them in the patientrsquos care is developed and tailored to the needs and abilities of the organization and its facility An example is a Care Partner Program IVC Kitchenspantries and lounges are available for families to use
IVD A process is in place to encourage patientsresidents and families to communicate with staff about any concerns related to their care including any concerns related to residentpatient safety VA A system is in place to provide patientsresidents families and staff with 24-hour access to a variety of foods and beverages (unless doing so conflicts with the treatment plan) Patientsrsquoresidentsrsquo personal preferences and routines around mealtimes are considered and accommodated to the extent possible VB The organization has a system to provide patientsresidents and staff with fresh healthy food at appropriate temperatur es and provides patients with a variety of food choices
VIA Healing healthcare design standards are developed that at a minimum address interior f inishes and lighting In continuing care settings these standards also provide for personalization of living areas by residents VIB The auditory environment has been reviewed and a noise control protocol is in place
VIC The olfactory environment has been reviewed and odors have been addressed VID As remodeling is done symbolic and real barriers are removed Examples include implementing open nursesrsquo stations family lounges unit-based kitchens indirect lighting In continuing care environments each residentrsquos living area features a view to the outside VIE Signage both leading to facility entrances as well as throughout the interior of the facility is clear and understand able to patients residents and visitors
VIF Ample parking adjacent to entrances is available When nearby parking is limited accommodations such as valet service or golf carts to transport visitors to and from the building are made available VIG The environment is designed to accommodate privacy needs and provides for patientresident dignity and modesty particu larly in common areas patientresident rooms and bathrooms
VIH The organization considers progressive facility management practices and specif ies products that promote safe non -toxic approaches to facility cleaning maintenance renovation and construction which recognize the potential health impact on patientsresidents families and staff members VII Patientsresidents have access to nature Examples include an indoor or outdoor garden VIJndash Applies only to behavioral health sites Common spaces are available and feature a sense of spaciousness and light In add ition they satisfy patientsrsquo needs for both private spaces and spaces that support social interaction
VIKndash Applies only to behavioral health sites Protocols are in place for reducing coercive intervention Examples may include a provision of a comfort room Snoezelen or low-stimulation environment VIIA an active arts component (music visual arts crafts animal visitation bedside reading) is in place In continuing care environments the array of activities is dynamic driven by residentsrsquo individual interests and inclusive of family and staf f The activities program allows for spontaneity and self -directed opportunities for residents 24-hours a day 7 days a week
VIIBndashApplies only to continuing care sites A f lexible transportation system is provided that enables residents to satisfy pers onal wishes to participate in off -site activities and to volunteer VIIIA A plan is developed and implemented that recognizes the spiritual dimension of patientsresidents families and staff in the healthcare environment In acute care and continuing care settings this plan includes practices around death and dying VIIIB The special needs of the communityrsquos diverse cultural groups are investigated documented and addressed in specif ic and appropriate ways
IXA The interests and current utilization patterns of patientsresidents and medical staff in the areas of alternative com plementary and integrative healing modalities are assessed and a plan is developed to address these needs Examples could include providing direct services developing a process for responding to patientresident requests for in -hospital treatment by the patientrsquosresidentrsquos existing practitioner(s) and evaluation of patientsresidentsrsquo herbal remedies as part of the medication reconciliation process
IXB A plan for caring touch is developed and implemented as appropriate (Exceptions include behavioral health patients) Examples of caring touch include massage M technique and Reiki XA Based on the interests and needs of the community a plan is developed to improve community health Examples include pr ovision of direct services educational information or referral and collaboration with local agencies XBndash Applies only to behavioral health sites Mechanisms are in place to give public voice to and advocate for the importance of behavioral health initiatives and the need for more comprehensive stigma free and humane approaches to this care
XIA-Acute Care Application Patient satisfaction (both inpatient and outpatient) is regularly assessed using a validated survey instrument which includes the HCAHPS questions Performance on each of the domains in the HCAHPS questionnaire meets or exc eeds national averages XIA-Behavioral Health Application Patientsrsquo perspectives of care (both inpatient and outpatient) are regularly assessed using a validated survey instrument
XIB-Acute Care Application The hospital monitors and reports its performance on the full set of CMS Quality Measures to CMS and shares data on all available indicators with Planetree The hospitalrsquos performance for the most recent twelve month period for which data is available exceeds the ldquoNational Averagerdquo performance as reported on the US Department of Health and Human Services Hospital Compare web site on 75 of the indicators for which the hospital has more than 25 eligible patients for the 12 month period (an n of gt25) XIB-Behavioral Health Application The hospital monitors and reports its performance on appropriate quality measures and provid es benchmarks for comparison purposes The hospital meets or exceeds benchmarks Sites accredited by The Joint Commission m ay submit their ORYX Performance Measure Report with both the control chart to demonstrate internal trending and the comparison chart to demonstrate performance that
meets or exceeds benchmarks to satisfy the criteria XIC-Acute Care Behavioral Health Application The hospital regularly solicits information from staff about patient safety and uses the information generated to improve safety practices in the organization The hospital has a process for encouraging s taff to report quality and patient safety issues The hospital conducts a survey to assess its patient safety culture at a minimum once every two years
XID Applies only to continuing care sites A system is established to broadly communicate performance improvement information to all members of the continuing care community and to the public
Designation- a structured pathway
IF Leadership exemplifies approaches that motivate and inspire others promote positive morale mentor and enhance performance of others recognize the knowledge and decision-making authority of others and model organizational values
IIH Human resource systems including job descriptions and evaluations reflect the organizationrsquos patient-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria and conducting team interviews
XID Staff and patientresidentfamily members are actively involved in the design ongoing assessment and communication of performance improvement efforts The organization consistently utilizes data to identify and prioritize improvement over time
IIIA A policy for sharing clinical information including the medical record and the care plan with patients has been approved staff are educated on this policy and the process for sharing the record and care plan an effective system is in place to make patients aware that they may review this information and a process is in place to facilitate patients documenting their comments
IVB A comprehensive formalized approach for partnering with families in all aspects of the patientrsquos care and tailored to the needs and abilities of the organization and its facility is developed An example is a Care Partner Program
IA A multi-disciplinary task force including patients and family members is established to oversee and assist with implementation and maintenance of patient-centered practices
IIE Active teams are in place that address patient-centered initiatives and include participation by nonsupervisory staff and patients and families
IIF Formalized processes are in place to promote continuity consistency and accountability in care delivery and which all ow staff the opportunity and responsibility for personalizing care in partnership with each patientresident
wwwplanetreeorg
Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
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What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
The core of a patient-centric approach the lived experience of patients family and staff
o Compassionate Human Interactions
o Access to Meaningful Information
o Support amp Participation of Family Friends
o Healing Environment
o Support for body mind amp spirit
o Arts and Entertainment o Spirituality o Caring Touch o Integrative Therapies o Healthy Food and Nutrition
o Healthy Communities
wwwplanetreeorg
IA A multi-disciplinary task force is established to oversee and assist with implementation and maintenance of patient -resident-centered practices which includes a mix of non -supervisory and management staff and meets regularly (every 4-6 weeks) on an ongoing basis IB A patient-resident-centered care coordinator or point person is designated who is able to commit the time required to champion related activities on an ongoing basis
IC Patientresident family and staff focus groups are conducted on -site by Planetree or another qualif ied independent vendor periodically (at 12-18 month intervals) and the results are shared at a minimum with senior management the governing body and staff ID Information on patient-resident-centered care implementation and progress is shared periodically with key organizational stakeholders cultivating an understanding of patient -resident-centered initiatives underway in the organization This informat ion is communicated regularly to staff (and in continuing care environments also to residents and families) and at a minimu m annually to the governing board of the organization
IE An ongoing mechanism is in place to solicit meaningful dialogue input and reactions from patientsresidents families and the community on current practices and new initiatives This may be achieved via an active patientresidentfamily or community advisory council with regular meetings or some other effective mechanism to obtain regular input from patientsresidents and community IIA All staff including off -shift and support staff are given an opportunity to participate in a minimum of eight hours of p atient-resident-centered staff retreat experiences or an equivalent with a minimum concurrent completion rate of 85 IIB An independently administered physician experience survey is conducted at least once every f ive years using a validated survey instrument and physicians are oriented and regularly educated about and encouraged to participate in patient -resident-centered initiatives
IIC Continuing education to reinforce and revitalize staff engagement in patient -resident-centered behaviors and practices an d build competence around the communityrsquos evolving needs is offered on a regular and ongoing basis to all staff in meaningful ways determined by the organization IID A comprehensive presentation on patient -resident-centered care concepts practices and initiatives is provided for all new staff (and in continuing care settings new residents) as a part of orientation In continuing care environments resident s and family members are included in a meaningful way in the new employee orientation program
IIE Active teams are in place that address patient -resident-centered initiatives as necessary and include non -supervisory staff input IIF A model of care delivery is adopted that embraces continuity consistency and accountability-based care and allows staff the opportunity and responsibility for personalizing care for each patientresident IIG A mechanism is in place to provide s taff support services that include elements identified by s taff as priority areas Examples include access to concierge or amenity services such as meals-to-go massage space to recharge away from patients res idents and families emotional support such as bereavement services and s taff support groups and personal and profess ional deve lopment programming such as a career ladder program
IIH Human resource systems including job descriptions and evaluations ref lect the organizationrsquos patient -resident-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria In continuing care environments residents play a role in the hiring and evaluation of staff
III Numerous opportunities both formal and informal are provided for staff reward and recognition In continuing care en vironments recognition programs extend to and integrate residents and family members IIJ Independently administered staff surveys using a validated survey instrument or other structured staff feedback mechan isms are conducted at least once every two years IIK a process is in place for providing support as necessary to patientsresidents families and staff affected by an adverse event
IIL Processes are in place to help patientsresidents anticipate the costs of care and assistance is available for those wh o need to make f inancial arrangements Financial communications are concise clear and respectful IIM The organization has processes in place focusing on prevention of medical errors as well as on keeping patientsresidents and staff safe from harm from self and others
II N Effective 24-hour shift-to notshift communication processes are in place to ensure patientsrsquoresidentsrsquo individualized needs are evaluated discussed and met Opportunities for patientresident and family involvement in shift -to-shift communication are addressed II O Effective communication mechanisms are in place to keep all staff ( including off -site and all shifts) informed about organizational priorities IIPndashApplies only to continuing care sites In continuing care settings residents are given an opportunity to participate as appropriate in a retreat experience or an equivalent to assist with internalizing resident -centered care concepts and to enhance sensitivity to the needs of the entire community Resident retreats are conducted at a minimum annually
IIQndashApplies only to continuing care sites Residents are provided with the choice of where they are going to live and with whom with staff input provided as appropriate IIRndash Applies only to continuing care sites In continuing care settings processes are in place for evaluating identifying and effectively integrating into the care plan what is important to each resident based on hisher identity decision-maknoting ability and mastery skills and what is meannotingful to that resident in the living environment and in daily activities
IIIA A policy for sharing clinical information including the medical record and the care plan with patientsresidents has been approved an effective system is in place to make patientsresidents aware that they may review this information a system is in place to monitor staff communication to patientsresidents of this choice and patientresident participation levels and a process is in place to facilitate patientsresidents documenting their comments IIIA-Behavioral Health Application In behavioral health settings decisions about the extent of the clinical information shared and the mechanism used for sharing this information are made on an individualized basis A range of options are available for sharing such information including the medical record and the treatment plan to ensure that patients of varying competency levels have access to information that will help them to
understand their symptoms diagnosis and treatment IIIB A community health resource library or signif icant consumer health collection is established either based at the hosp ital or provided by the site in partnership with other organizations The hospital has implemented strategies to make patients residents families and community members aware that the library is free and open to the public Printed material is available on the sitersquos ten most common diagnoses and there are
systems in place to enable patientsresidents to obtain information both with assistance and on their own IIIC A range of educational materials is available for patientsresidents and families and is easily accessible to staff Staff is knowledgeable about the availability of these resources IIID Patientsresidents are provided with meaningful discharge instructions
IIIE A process is in place to disclose unanticipated outcomes to patientsresidents (and family members as appropriate) III FThe site has a process to assist patientsresidents and families in managing their medical information and coordinating their car e among multiple physicians including the patientrsquos admitting physician primary care provider and appropriate specialists
IVA Flexible 24-hour patient-resident-directed visiting hours are in place and children are permitted to visit (exceptions for psychiatric f acilities NICU and in cases of communicable disease) In continuing care settings accommodations are made for intimate vis its by a spousepartner IVA-Behavioral Health Application In behavioral health settings visiting hours are consistent with the patientrsquos treatment plan and f lexible to accommodate patient and family visitation preferences Restrictions to visitation are determined by the t reatment plan and patient preferences and the rationale for any restrictions is clearly communicated to patients and families IVB A comprehensive formalized approach to involving families in all aspects of the patientrsquos residentrsquos care and tailored to the needs and abilities of the organization and its facility is developed at a minimum on pediatric oncology medical-surgical and rehabilitation units An example is a Care Partner Program
IVB-Behavioral Health Application A comprehensive formalized approach to providing families with psychoeducation and when clinically appropriate involving them in the patientrsquos care is developed and tailored to the needs and abilities of the organization and its facility An example is a Care Partner Program IVC Kitchenspantries and lounges are available for families to use
IVD A process is in place to encourage patientsresidents and families to communicate with staff about any concerns related to their care including any concerns related to residentpatient safety VA A system is in place to provide patientsresidents families and staff with 24-hour access to a variety of foods and beverages (unless doing so conflicts with the treatment plan) Patientsrsquoresidentsrsquo personal preferences and routines around mealtimes are considered and accommodated to the extent possible VB The organization has a system to provide patientsresidents and staff with fresh healthy food at appropriate temperatur es and provides patients with a variety of food choices
VIA Healing healthcare design standards are developed that at a minimum address interior f inishes and lighting In continuing care settings these standards also provide for personalization of living areas by residents VIB The auditory environment has been reviewed and a noise control protocol is in place
VIC The olfactory environment has been reviewed and odors have been addressed VID As remodeling is done symbolic and real barriers are removed Examples include implementing open nursesrsquo stations family lounges unit-based kitchens indirect lighting In continuing care environments each residentrsquos living area features a view to the outside VIE Signage both leading to facility entrances as well as throughout the interior of the facility is clear and understand able to patients residents and visitors
VIF Ample parking adjacent to entrances is available When nearby parking is limited accommodations such as valet service or golf carts to transport visitors to and from the building are made available VIG The environment is designed to accommodate privacy needs and provides for patientresident dignity and modesty particu larly in common areas patientresident rooms and bathrooms
VIH The organization considers progressive facility management practices and specif ies products that promote safe non -toxic approaches to facility cleaning maintenance renovation and construction which recognize the potential health impact on patientsresidents families and staff members VII Patientsresidents have access to nature Examples include an indoor or outdoor garden VIJndash Applies only to behavioral health sites Common spaces are available and feature a sense of spaciousness and light In add ition they satisfy patientsrsquo needs for both private spaces and spaces that support social interaction
VIKndash Applies only to behavioral health sites Protocols are in place for reducing coercive intervention Examples may include a provision of a comfort room Snoezelen or low-stimulation environment VIIA an active arts component (music visual arts crafts animal visitation bedside reading) is in place In continuing care environments the array of activities is dynamic driven by residentsrsquo individual interests and inclusive of family and staf f The activities program allows for spontaneity and self -directed opportunities for residents 24-hours a day 7 days a week
VIIBndashApplies only to continuing care sites A f lexible transportation system is provided that enables residents to satisfy pers onal wishes to participate in off -site activities and to volunteer VIIIA A plan is developed and implemented that recognizes the spiritual dimension of patientsresidents families and staff in the healthcare environment In acute care and continuing care settings this plan includes practices around death and dying VIIIB The special needs of the communityrsquos diverse cultural groups are investigated documented and addressed in specif ic and appropriate ways
IXA The interests and current utilization patterns of patientsresidents and medical staff in the areas of alternative com plementary and integrative healing modalities are assessed and a plan is developed to address these needs Examples could include providing direct services developing a process for responding to patientresident requests for in -hospital treatment by the patientrsquosresidentrsquos existing practitioner(s) and evaluation of patientsresidentsrsquo herbal remedies as part of the medication reconciliation process
IXB A plan for caring touch is developed and implemented as appropriate (Exceptions include behavioral health patients) Examples of caring touch include massage M technique and Reiki XA Based on the interests and needs of the community a plan is developed to improve community health Examples include pr ovision of direct services educational information or referral and collaboration with local agencies XBndash Applies only to behavioral health sites Mechanisms are in place to give public voice to and advocate for the importance of behavioral health initiatives and the need for more comprehensive stigma free and humane approaches to this care
XIA-Acute Care Application Patient satisfaction (both inpatient and outpatient) is regularly assessed using a validated survey instrument which includes the HCAHPS questions Performance on each of the domains in the HCAHPS questionnaire meets or exc eeds national averages XIA-Behavioral Health Application Patientsrsquo perspectives of care (both inpatient and outpatient) are regularly assessed using a validated survey instrument
XIB-Acute Care Application The hospital monitors and reports its performance on the full set of CMS Quality Measures to CMS and shares data on all available indicators with Planetree The hospitalrsquos performance for the most recent twelve month period for which data is available exceeds the ldquoNational Averagerdquo performance as reported on the US Department of Health and Human Services Hospital Compare web site on 75 of the indicators for which the hospital has more than 25 eligible patients for the 12 month period (an n of gt25) XIB-Behavioral Health Application The hospital monitors and reports its performance on appropriate quality measures and provid es benchmarks for comparison purposes The hospital meets or exceeds benchmarks Sites accredited by The Joint Commission m ay submit their ORYX Performance Measure Report with both the control chart to demonstrate internal trending and the comparison chart to demonstrate performance that
meets or exceeds benchmarks to satisfy the criteria XIC-Acute Care Behavioral Health Application The hospital regularly solicits information from staff about patient safety and uses the information generated to improve safety practices in the organization The hospital has a process for encouraging s taff to report quality and patient safety issues The hospital conducts a survey to assess its patient safety culture at a minimum once every two years
XID Applies only to continuing care sites A system is established to broadly communicate performance improvement information to all members of the continuing care community and to the public
Designation- a structured pathway
IF Leadership exemplifies approaches that motivate and inspire others promote positive morale mentor and enhance performance of others recognize the knowledge and decision-making authority of others and model organizational values
IIH Human resource systems including job descriptions and evaluations reflect the organizationrsquos patient-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria and conducting team interviews
XID Staff and patientresidentfamily members are actively involved in the design ongoing assessment and communication of performance improvement efforts The organization consistently utilizes data to identify and prioritize improvement over time
IIIA A policy for sharing clinical information including the medical record and the care plan with patients has been approved staff are educated on this policy and the process for sharing the record and care plan an effective system is in place to make patients aware that they may review this information and a process is in place to facilitate patients documenting their comments
IVB A comprehensive formalized approach for partnering with families in all aspects of the patientrsquos care and tailored to the needs and abilities of the organization and its facility is developed An example is a Care Partner Program
IA A multi-disciplinary task force including patients and family members is established to oversee and assist with implementation and maintenance of patient-centered practices
IIE Active teams are in place that address patient-centered initiatives and include participation by nonsupervisory staff and patients and families
IIF Formalized processes are in place to promote continuity consistency and accountability in care delivery and which all ow staff the opportunity and responsibility for personalizing care in partnership with each patientresident
wwwplanetreeorg
Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
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Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
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wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
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Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
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Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
IA A multi-disciplinary task force is established to oversee and assist with implementation and maintenance of patient -resident-centered practices which includes a mix of non -supervisory and management staff and meets regularly (every 4-6 weeks) on an ongoing basis IB A patient-resident-centered care coordinator or point person is designated who is able to commit the time required to champion related activities on an ongoing basis
IC Patientresident family and staff focus groups are conducted on -site by Planetree or another qualif ied independent vendor periodically (at 12-18 month intervals) and the results are shared at a minimum with senior management the governing body and staff ID Information on patient-resident-centered care implementation and progress is shared periodically with key organizational stakeholders cultivating an understanding of patient -resident-centered initiatives underway in the organization This informat ion is communicated regularly to staff (and in continuing care environments also to residents and families) and at a minimu m annually to the governing board of the organization
IE An ongoing mechanism is in place to solicit meaningful dialogue input and reactions from patientsresidents families and the community on current practices and new initiatives This may be achieved via an active patientresidentfamily or community advisory council with regular meetings or some other effective mechanism to obtain regular input from patientsresidents and community IIA All staff including off -shift and support staff are given an opportunity to participate in a minimum of eight hours of p atient-resident-centered staff retreat experiences or an equivalent with a minimum concurrent completion rate of 85 IIB An independently administered physician experience survey is conducted at least once every f ive years using a validated survey instrument and physicians are oriented and regularly educated about and encouraged to participate in patient -resident-centered initiatives
IIC Continuing education to reinforce and revitalize staff engagement in patient -resident-centered behaviors and practices an d build competence around the communityrsquos evolving needs is offered on a regular and ongoing basis to all staff in meaningful ways determined by the organization IID A comprehensive presentation on patient -resident-centered care concepts practices and initiatives is provided for all new staff (and in continuing care settings new residents) as a part of orientation In continuing care environments resident s and family members are included in a meaningful way in the new employee orientation program
IIE Active teams are in place that address patient -resident-centered initiatives as necessary and include non -supervisory staff input IIF A model of care delivery is adopted that embraces continuity consistency and accountability-based care and allows staff the opportunity and responsibility for personalizing care for each patientresident IIG A mechanism is in place to provide s taff support services that include elements identified by s taff as priority areas Examples include access to concierge or amenity services such as meals-to-go massage space to recharge away from patients res idents and families emotional support such as bereavement services and s taff support groups and personal and profess ional deve lopment programming such as a career ladder program
IIH Human resource systems including job descriptions and evaluations ref lect the organizationrsquos patient -resident-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria In continuing care environments residents play a role in the hiring and evaluation of staff
III Numerous opportunities both formal and informal are provided for staff reward and recognition In continuing care en vironments recognition programs extend to and integrate residents and family members IIJ Independently administered staff surveys using a validated survey instrument or other structured staff feedback mechan isms are conducted at least once every two years IIK a process is in place for providing support as necessary to patientsresidents families and staff affected by an adverse event
IIL Processes are in place to help patientsresidents anticipate the costs of care and assistance is available for those wh o need to make f inancial arrangements Financial communications are concise clear and respectful IIM The organization has processes in place focusing on prevention of medical errors as well as on keeping patientsresidents and staff safe from harm from self and others
II N Effective 24-hour shift-to notshift communication processes are in place to ensure patientsrsquoresidentsrsquo individualized needs are evaluated discussed and met Opportunities for patientresident and family involvement in shift -to-shift communication are addressed II O Effective communication mechanisms are in place to keep all staff ( including off -site and all shifts) informed about organizational priorities IIPndashApplies only to continuing care sites In continuing care settings residents are given an opportunity to participate as appropriate in a retreat experience or an equivalent to assist with internalizing resident -centered care concepts and to enhance sensitivity to the needs of the entire community Resident retreats are conducted at a minimum annually
IIQndashApplies only to continuing care sites Residents are provided with the choice of where they are going to live and with whom with staff input provided as appropriate IIRndash Applies only to continuing care sites In continuing care settings processes are in place for evaluating identifying and effectively integrating into the care plan what is important to each resident based on hisher identity decision-maknoting ability and mastery skills and what is meannotingful to that resident in the living environment and in daily activities
IIIA A policy for sharing clinical information including the medical record and the care plan with patientsresidents has been approved an effective system is in place to make patientsresidents aware that they may review this information a system is in place to monitor staff communication to patientsresidents of this choice and patientresident participation levels and a process is in place to facilitate patientsresidents documenting their comments IIIA-Behavioral Health Application In behavioral health settings decisions about the extent of the clinical information shared and the mechanism used for sharing this information are made on an individualized basis A range of options are available for sharing such information including the medical record and the treatment plan to ensure that patients of varying competency levels have access to information that will help them to
understand their symptoms diagnosis and treatment IIIB A community health resource library or signif icant consumer health collection is established either based at the hosp ital or provided by the site in partnership with other organizations The hospital has implemented strategies to make patients residents families and community members aware that the library is free and open to the public Printed material is available on the sitersquos ten most common diagnoses and there are
systems in place to enable patientsresidents to obtain information both with assistance and on their own IIIC A range of educational materials is available for patientsresidents and families and is easily accessible to staff Staff is knowledgeable about the availability of these resources IIID Patientsresidents are provided with meaningful discharge instructions
IIIE A process is in place to disclose unanticipated outcomes to patientsresidents (and family members as appropriate) III FThe site has a process to assist patientsresidents and families in managing their medical information and coordinating their car e among multiple physicians including the patientrsquos admitting physician primary care provider and appropriate specialists
IVA Flexible 24-hour patient-resident-directed visiting hours are in place and children are permitted to visit (exceptions for psychiatric f acilities NICU and in cases of communicable disease) In continuing care settings accommodations are made for intimate vis its by a spousepartner IVA-Behavioral Health Application In behavioral health settings visiting hours are consistent with the patientrsquos treatment plan and f lexible to accommodate patient and family visitation preferences Restrictions to visitation are determined by the t reatment plan and patient preferences and the rationale for any restrictions is clearly communicated to patients and families IVB A comprehensive formalized approach to involving families in all aspects of the patientrsquos residentrsquos care and tailored to the needs and abilities of the organization and its facility is developed at a minimum on pediatric oncology medical-surgical and rehabilitation units An example is a Care Partner Program
IVB-Behavioral Health Application A comprehensive formalized approach to providing families with psychoeducation and when clinically appropriate involving them in the patientrsquos care is developed and tailored to the needs and abilities of the organization and its facility An example is a Care Partner Program IVC Kitchenspantries and lounges are available for families to use
IVD A process is in place to encourage patientsresidents and families to communicate with staff about any concerns related to their care including any concerns related to residentpatient safety VA A system is in place to provide patientsresidents families and staff with 24-hour access to a variety of foods and beverages (unless doing so conflicts with the treatment plan) Patientsrsquoresidentsrsquo personal preferences and routines around mealtimes are considered and accommodated to the extent possible VB The organization has a system to provide patientsresidents and staff with fresh healthy food at appropriate temperatur es and provides patients with a variety of food choices
VIA Healing healthcare design standards are developed that at a minimum address interior f inishes and lighting In continuing care settings these standards also provide for personalization of living areas by residents VIB The auditory environment has been reviewed and a noise control protocol is in place
VIC The olfactory environment has been reviewed and odors have been addressed VID As remodeling is done symbolic and real barriers are removed Examples include implementing open nursesrsquo stations family lounges unit-based kitchens indirect lighting In continuing care environments each residentrsquos living area features a view to the outside VIE Signage both leading to facility entrances as well as throughout the interior of the facility is clear and understand able to patients residents and visitors
VIF Ample parking adjacent to entrances is available When nearby parking is limited accommodations such as valet service or golf carts to transport visitors to and from the building are made available VIG The environment is designed to accommodate privacy needs and provides for patientresident dignity and modesty particu larly in common areas patientresident rooms and bathrooms
VIH The organization considers progressive facility management practices and specif ies products that promote safe non -toxic approaches to facility cleaning maintenance renovation and construction which recognize the potential health impact on patientsresidents families and staff members VII Patientsresidents have access to nature Examples include an indoor or outdoor garden VIJndash Applies only to behavioral health sites Common spaces are available and feature a sense of spaciousness and light In add ition they satisfy patientsrsquo needs for both private spaces and spaces that support social interaction
VIKndash Applies only to behavioral health sites Protocols are in place for reducing coercive intervention Examples may include a provision of a comfort room Snoezelen or low-stimulation environment VIIA an active arts component (music visual arts crafts animal visitation bedside reading) is in place In continuing care environments the array of activities is dynamic driven by residentsrsquo individual interests and inclusive of family and staf f The activities program allows for spontaneity and self -directed opportunities for residents 24-hours a day 7 days a week
VIIBndashApplies only to continuing care sites A f lexible transportation system is provided that enables residents to satisfy pers onal wishes to participate in off -site activities and to volunteer VIIIA A plan is developed and implemented that recognizes the spiritual dimension of patientsresidents families and staff in the healthcare environment In acute care and continuing care settings this plan includes practices around death and dying VIIIB The special needs of the communityrsquos diverse cultural groups are investigated documented and addressed in specif ic and appropriate ways
IXA The interests and current utilization patterns of patientsresidents and medical staff in the areas of alternative com plementary and integrative healing modalities are assessed and a plan is developed to address these needs Examples could include providing direct services developing a process for responding to patientresident requests for in -hospital treatment by the patientrsquosresidentrsquos existing practitioner(s) and evaluation of patientsresidentsrsquo herbal remedies as part of the medication reconciliation process
IXB A plan for caring touch is developed and implemented as appropriate (Exceptions include behavioral health patients) Examples of caring touch include massage M technique and Reiki XA Based on the interests and needs of the community a plan is developed to improve community health Examples include pr ovision of direct services educational information or referral and collaboration with local agencies XBndash Applies only to behavioral health sites Mechanisms are in place to give public voice to and advocate for the importance of behavioral health initiatives and the need for more comprehensive stigma free and humane approaches to this care
XIA-Acute Care Application Patient satisfaction (both inpatient and outpatient) is regularly assessed using a validated survey instrument which includes the HCAHPS questions Performance on each of the domains in the HCAHPS questionnaire meets or exc eeds national averages XIA-Behavioral Health Application Patientsrsquo perspectives of care (both inpatient and outpatient) are regularly assessed using a validated survey instrument
XIB-Acute Care Application The hospital monitors and reports its performance on the full set of CMS Quality Measures to CMS and shares data on all available indicators with Planetree The hospitalrsquos performance for the most recent twelve month period for which data is available exceeds the ldquoNational Averagerdquo performance as reported on the US Department of Health and Human Services Hospital Compare web site on 75 of the indicators for which the hospital has more than 25 eligible patients for the 12 month period (an n of gt25) XIB-Behavioral Health Application The hospital monitors and reports its performance on appropriate quality measures and provid es benchmarks for comparison purposes The hospital meets or exceeds benchmarks Sites accredited by The Joint Commission m ay submit their ORYX Performance Measure Report with both the control chart to demonstrate internal trending and the comparison chart to demonstrate performance that
meets or exceeds benchmarks to satisfy the criteria XIC-Acute Care Behavioral Health Application The hospital regularly solicits information from staff about patient safety and uses the information generated to improve safety practices in the organization The hospital has a process for encouraging s taff to report quality and patient safety issues The hospital conducts a survey to assess its patient safety culture at a minimum once every two years
XID Applies only to continuing care sites A system is established to broadly communicate performance improvement information to all members of the continuing care community and to the public
Designation- a structured pathway
IF Leadership exemplifies approaches that motivate and inspire others promote positive morale mentor and enhance performance of others recognize the knowledge and decision-making authority of others and model organizational values
IIH Human resource systems including job descriptions and evaluations reflect the organizationrsquos patient-centered care philosophy Other examples include behavioral standards recruitment and retention efforts staff selection tools and criteria and conducting team interviews
XID Staff and patientresidentfamily members are actively involved in the design ongoing assessment and communication of performance improvement efforts The organization consistently utilizes data to identify and prioritize improvement over time
IIIA A policy for sharing clinical information including the medical record and the care plan with patients has been approved staff are educated on this policy and the process for sharing the record and care plan an effective system is in place to make patients aware that they may review this information and a process is in place to facilitate patients documenting their comments
IVB A comprehensive formalized approach for partnering with families in all aspects of the patientrsquos care and tailored to the needs and abilities of the organization and its facility is developed An example is a Care Partner Program
IA A multi-disciplinary task force including patients and family members is established to oversee and assist with implementation and maintenance of patient-centered practices
IIE Active teams are in place that address patient-centered initiatives and include participation by nonsupervisory staff and patients and families
IIF Formalized processes are in place to promote continuity consistency and accountability in care delivery and which all ow staff the opportunity and responsibility for personalizing care in partnership with each patientresident
wwwplanetreeorg
Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
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Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
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The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
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Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
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Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
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At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
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Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
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wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Excellence defined and assessed by patients
ldquoItrsquos not just what we do but how we do it treating patients with dignity and respectrdquo
- Jane Cummings Chief Nursing Officer for England
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
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Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
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wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
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Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
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Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
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Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
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Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
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The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
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Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
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At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
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Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
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wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
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Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Experience Base
Evidence Base
Why Patient-Centered Hospital Designation is Unique Experience Based Criteria
I Structures and Functions Necessary for Culture Change
II Human Interactions Independence Dignity and Choice
III Promoting PatientResident Education Choice amp Responsibility
IV Family Involvement
V Food Dining amp Nutrition
VI Healing Environment Architecture and Design
VII Arts ProgramMeaningful Activities and Entertainment
VIII Spirituality amp Diversity
IX Integrative Therapies Paths to Well-Being
X Healthy Communities Enhancement of Lifersquos Journey
XI Measurement
bull 60+ criteria for acute care hospitals bull Establishes a high bar for PCC Excellence bull Applies across the continuum bull Encourages innovation
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
ldquohellipproviding care that is respectful of and responsive to individual patient preferences
needs and values and ensuring that patient values guide all clinical decisionshelliprdquo (IOM 2001)
ldquohellipcare designed with patient involvement to ensure timely convenient well-coordinated
engagement of a personrsquos health and health care needs preferences and values it
includes explicit and partnered determination of patient goals and care options and it
requires ongoing assessment of the care match with patient goalsrdquo (IOMNAM 2015)
IOMNational Academy of Medicine Revises Definition of Patient-Centered Care
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
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Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
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wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Institute of Medicinersquos Roundtable on Value amp Science-Driven Health Care bull Care Culture and Decision-making Innovation Collaborative (CCDmIC)
bull Patient amp Family Council Leaders National Network bull Scientific Advisory Panel on the Evidence-Base for Patient and Family
Engaged Care
IOM-National Academy of Medicine PFE Agenda
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
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ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
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Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
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Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
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Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
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Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
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Engaging Moms in Comparative Research
PICC line supplies
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Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
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Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
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Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
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Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
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PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
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PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
The Scientific Evidence-Base for
Patient and Family Centered Approaches to
Care
NATIONAL ACADEMY OF MEDICINE
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
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1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
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Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
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wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
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Quality Check your Partnership Efforts
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STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
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STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
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If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
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When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
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Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
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wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
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Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
bull Use the Planetree model of care to develop a common understanding of essential elements for
creating and sustaining patient and family-centered culture in healthcare settings
bull Integrate this into a logic model as an organizing framework for identifying essential elements of
Patient and Family Centered Care and the outcomes these elements influence
bull Engage a panel of scientific experts to share and compile existing and emerging research in
support of the essential elements identified in the logic model and in identifying evidence gaps
bull Develop criteria for assessing strength of evidence identified
Goals for IOMNAM Scientific Advisory Panel
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
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Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
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Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
1 Shortell et al October 201
2 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
3 Shortell et al Early Assessment of ACOsrsquo Efforts to Engage Patients and Their Families Med Care Res Rev October 2015 vol 72 no 5 580-604
4 Riess H Kelley JM Bailey RW Dunn EJ Phillips M (2012 Oct) ldquoEmpathy training for resident physicians a randomized controlled trial of a neuroscience-informed curriculumrdquo J Gen Intern Med 27(10)1280-6
5 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41
6 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisors Academic Psychiatry 2008 32259-264
7 Shortell et al October 2015
8 Hibbard J and Green J What The Evidence Shows About Patient Activation Hlth Aff Feb 2013 vol 32 no 2 207-214
9 Rakel and Barrett et al in Patient Education and Counseling 2011
10 Hojat et al in Academic Medicine 2011
11 Haslam in Medical Journal of Australia 2007
12 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
13 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
14 Berwick D and Kotagal M JAMA 2004292(6)736-737 doi101001jama2926736 L
15 Stone S 2014
16 Stone S 2014
17 Hankinson T Development of a sleep menu and the impact on sleep quality VA NJ 2013
18 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
19 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
20 Singer Sara J and Timothy J Vogus Reducing hospital errors interventions that build safety culture Annual review of public health 34 (2013) 373-396
21 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
22 Veroff et al 2013)
23 Rakel and Barrett et al 2011
24 Stone S Annual Nursing Report Sharp Memorial Hospital 2014
25 Hojat et al 2011
26 Haslam 2007
27 Stone S Patient Falls Reduction Initiative Sharp Healthcare Annual Nursing Report 2011
28 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001)
29 Stone S 2014
30 CMS Office of Information Products and Data Analytics -May 2014 Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
31 McClelland L and Vogus T October 2014
32 Williams JA Meltzer D Arora V Chung G and Culrin F (2011 Nov) ldquoAttention to Inpatientsrsquo Religious and Spiritual Concerns Predictors and Association with Patient Satisfaction J Gen Intern Med 26(11) 1265-1271
33 Greene J Hibbard J et al When Patient Activation Levels Change Health Outcomes And Costs Change Too Health Aff March 2015 vol 34 no 3431-437
34 Veroff David Amy Marr and David E Wennberg Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions Health Affairs 32 no 2 (2013) 285-93
Logic Model Evidence Base for Patient amp Family Engaged Care
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
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wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
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Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
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Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
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What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
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Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
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Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
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wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
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Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
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Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
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What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Antecedents
Leadership vision and behaviors aligned with Patient Centered Care
Logic Model for Patient and Family Engaged Care Culture
Questions amp Reflections
1 What is your vision of patient and person-
centered care in your organization
2 What do you do currently that supports this
vision
3 What prevents your organization from fully
implementing patient centered care
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
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All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
STRUCTURES that promote transparency visibility and inclusion among staff patients and families Patient-Family Advisory Councils
Enlisting patients and family members as partners in quality and process improvement strategic planning hiring and evaluation staff training and more to ensure that the voices of patients are a guiding force in mapping out the future of our healthcare organizations
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
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Checklists to better prepare patients and family caregivers for discharge
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wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
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Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
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Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
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Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
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Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
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Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Beyond the council
Patientresidentfamily participation
bull On patient-centered initiative teams (eg wayfinding
patient friendly billing care partners creating patient
menus etc)
bull On safety quality and other organizational committees
bull In Lean rapid improvement events
bull On hiring teams
bull As faculty for staff education and training
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
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Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
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Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
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Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Quality Check your Partnership Efforts
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
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Developing Certified Decision Aid Standards
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PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
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PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
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A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
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ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
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Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
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Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
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Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
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Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
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Engaging Moms in Comparative Research
PICC line supplies
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Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
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Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
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PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
STRUCTURES -Adaptation of personnel management practices to align with Patient Centered Care2 Behavioral Interviewing
For Licensed Staff For Non-Licensed Caregiver Staff For ConciergeHousekeepingDining Staff
Reception
What are three positive things your last supervisor (teacher) would say about you
What does patient-centered care mean to you
A patient appears unhappy with the care they are receiving How do you make the patient
feel more comfortable
Tell me how you make them feel comfortable and reassured
Describe for me the way in which you would include family members in the care of the
patient
How do you learn about your patients and who they are
How would you on a personal and professional level bring patient-centered care to life
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me about a time that you assisted a patient that was feeling scared or frightened about
their illness
How would you create a positive experience for patients when dealing with multiple
requests at one time
How would you on a personal and professional level bring patient-centered care to life
A patient has soiled hisher self How would you approach this situation
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
A patients family is concerned about the care a patient is getting How would you address
their concerns
Reception
What are three positive things your last boss (teacher) would say about you
What does patient-centered care mean to you
Tell me how you would use patient-centered care in role to create a positive experience for
patients
You are meeting a patient for the first time Tell me how you make them feel comfortable
and reassured
How would you on a personal and professional level bring patient-centered care to life
Both phone lines are ringing at your station and a person is standing at the desk How do
you handle this situation or how have you handled this in the past
How do you embrace the differences of people you interact with
Knowledge
What was the best (worst) class that you took in school Why
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Have you ever had difficulty with a supervisor or instructor How did you resolve the
conflict
What do you do when priorities change quickly Give me one example
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
If you saw someone who appears lost in the hallway what would you do
A patient has coded (died) What could you do to assist with this situation
Knowledge
Where do you see yourself in five (5) years
Do you speak another language How did you utilize this in a past jobclinical setting
How do you anticipate the needs of your patients and coworkers
Explain a time when you handled changing priorities at workschool
What did you like about your previous job (if in healthcare field)
Why did you decide to get involved in the healthcare field
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
Technology
Describe a situation where you had to learn some new technology and apply it in a work
setting
Are you more energized by working with data or by collaborating with other individuals
Why
Attention to detail is an important component of this job Tell me about how you do this in
your current job
Our technology is state of the art how would you ensure that the human interactions with
your patient remain the focus
5
4
3
2
1
QuestionScore
DIV0Knowledge
DIV0Technology
DIV0Total Score
VALUEAverage score
VALUE
Reception
Each applicant is rated on three distinct sections each of these sections is composed of three questions A numerical scale is used to rank each of the applicants response totally to an overall composite score for the applicant Applicant score is basis for hiring in addition to credentially and background assessment as required by local law
Very Unsatisfcatory Response
11
Applicant Scoring Scale
Notes
Very Satisfactory Response
Candidates Name
Position
Satisfactory ResponseNeutralUnsatisfactory Response
13
12
22
23
31
32
33
Knowledge Subtotal
Technology Subtotal
Reception Subtotal21
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STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
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When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
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SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
STRUCTURES ndash Supports for a healing environment
Participatory Design amp Community Design Assessment
Active Patient amp Family Involvement in Planning
Supportive of Continuous Improvement
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
If we treat patients in healing environments why are hospital readmission rates so high
Source Horwitz et al Ann Intern Med 2014161S66-75
0
5
10
15
20
25
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
What are the Causes of High Readmission Rates
bull Poor support
bull Poor preparation
bull Poor systems
bull Poor coordination
bull Poor communication
bull Poor access
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
What if it Were More Than Thathellip
Source Krumholz N Engl J Med 2013368(2)100-2
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
When a Stressful Hospital Stay Makes You Sick By DAVID H NEWMAN MD June 12 2014
Krumholz HM N Engl J Med 368100 - 102 | January 10 2013
What research tells us about the impact of the hospital environment on health outcomes
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Condition at Initial Discharge vs 30-day Readmissions Diagnosis
37 291 362 211
63 709 638 789
0
20
40
60
80
100
Heart Failure Pneumonia COPD Gastrointestinalproblems
Readmissions for the same cause Readmission for other causes
Pati
ents
(
)
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Question How could the hospital experience increase risk
bull Sleep Interruptions
bull Loud noises
bull Bright lights
bull Mobility limitations
bull Foodwater restriction
bull Painful stimuli
bull Uncertainty(everywhere)
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg Courtesy of Deena Goldwater
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Acute Stress
Impact A Symptoms B Function C Quality of Life
Conceptual Model for Post-Hospital Syndrome
Patient Factors
Age chronic health conditions
geriatric impairments
psychosocial factors baseline
health status acute illness
severity
Hospital Experience
Sleep quality sound exposure
light exposure mobility forced
fasting pain uncertainty
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Next Improve Experience and Measure Outcomes bull Decrease sleep disruption amp increase access to natural light and dark cycles
ndash Observe lsquolights outrsquo based on patientrsquos normal sleep patterns
ndash Cluster nighttime activities of staff and provide task lighting and dimmers
ndash Provide ear plugs eye masks sound machines
ndash Close patient doors
ndash Noise level monitors
bull Reexamine evidence-base for food and water restrictions ndash Offer familiar ethnic menus
ndash Encourage lsquofood from homersquo make kitchen facilities available to family
bull Encourage familycare partnersvolunteer presence for emotional support and ambulation assistance
bull Staff narration of all procedures
bull Posted daily schedule of tests procedures activities
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Preserving sleep
A tool for enhancing shared decision-making between patients amp nursing to preserve patientsrsquo sleep amp facilitate healing
65 of patients rated their sleep quality as a 4 or 5
65 reported no sleep interruptions
63 of patients provided the sleep menu requested a sleep aid
Of those 88 rated their sleep quality as a 4 or 5
Top requests from sleep menu CD player warm blanket eye mask
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Creating a serene natural environment
Roger S Ulrich (1983) linked environmental attributes of healthcare environment to healing
finding a causal relationship between the patients that had a room with a view of trees and
the rate of healing and sense of wellbeing
Patients in rooms with views of trees had
o Fewer days in the hospital than patients with a view of a brick wall
o Were in better spirits (according to nurses)
o Used fewer analgesics during their stay
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
SKILL BUILDING amp AWARENESS BUILDING bullCaregiver training (Shared Decision Making empathy cultural competence patient centered practices) 3-6
bullExperiential learning to promote perspective-taking and connection to purpose
GROUP ACTIVITY
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Leadership satisfaction scores following baseline and bi-annual experiential learning sessions
60
65
70
75
80
85
90
Year 1 Year 2 Year 3 Year 4 Year 5 Year 6 Year 7 Year 8
Note Westchester Division outperforms organizational average
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
0
20
40
60
80
100
2003 2005 2007 2009 2011 2013Patient Satisfaction Staff Satisfaction
Staff and patient satisfaction scores following experiential staff retreats
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
69
70
71
72
73
74
75
76
Non Members Members Designated Members
Hospital Rating 9 or 10
68
69
70
71
72
73
74
75
76
77
Non Members Members Designated Members
Most Likely to Recommend
Staff commitment to patient-centered care improves hospital reputation
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
What research tells us about clinician empathy and clinical outcomes
Trusting empathic relationships between clinicians and patients have increased patient engagement and improved health outcomes including diabetes management flu recovery times and reductions in major medical errors
Clinician empathy skills can be enhanced through training focused on self-reflection self-compassion and behavior modification
Compassion practices a measure of the extent to which a hospital rewards compassionate acts and compassionately supports its employees is significantly and positively associated with patientsrsquo ratings of the hospital and likelihood of recommending
Rakel and Barrett et al in Patient Education and Counseling 2011 Hojat et al in Academic Medicine 2011 Haslam in Medical Journal of Australia 2007 Riess H Marci CD The Neurobiology and Physiology of the Patient ndashDoctor Relationship Measuring Empathy Medical Encounter 2007 21(3)38-41 Riess H Herman JB Teaching the teachers A model course for psychotherapy supervisorsAcademic Psychiatry 2008 32259-264 McClelland L and Vogus T Compassion Practices and HCAHPS Does Rewarding and Supporting Workplace Compassion Influence Patient Perceptions Healt h Services Research Volume 49 Issue 5 pages 1670ndash1683 October 2014
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Physiciansrsquo Empathy and Clinical Outcomes
Findings from two key studies in the US and Italy
using the Jefferson Scale of Empathy
Dr Mohammadreza Hojat
Sidney Kimmel Medical College at Thomas Jefferson University February 2016
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Empathy versus Sympathy Empathy - entering into a patientrsquos mind and understanding their pain from within as if their pain were ours but remains theirs
Sympathy - sharing feelings together with the patient as if the pain is ours and remains so
Jefferson Scale of Patients Perceptions of Physician Empathy is a 5 question psychometrically valid tool
bull Wilmer 1968 British Journal of Medical Psychology41 243-248)
bull Kane et al Croat Med J 2007 Feb 48(1) 81ndash86 PMCID PMC2080494 Jefferson Scale of Patientrsquos Perceptions of Physician Empathy Preliminary Psychometric Data
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Physicians Empathy and
Clinical Outcomes for Diabetic Patients
Mohammadreza Hojat PhD Daniel Z Louis MS
Fred W Markham MD Richard Wender MD
Carol Rabinowitz Joseph S Gonnella MD
(March 2011)
Acad Med 201186359ndash364
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Primary care physician (n=29) empathy scores and Hemoglobin A1c for 7269 patients with diabetes mellitus
56 49 40
29 35
34
15 16 26
0
20
40
60
80
100
High empathy Moderate empathy Lower empathy
Poor (gt 90)
70 - 90
Good (lt 70)
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
The Relationship Between Physician Empathy and Disease Complications An Empirical Study of Primary Care Physicians
and Their Diabetic Patients in Parma Italy
Stefano Del Canale MD PhD Daniel Z Louis MS Vittorio Maio PharmD MS MSPH Xiaohong Wang MS Giuseppina Rossi MD Mohammadreza Hojat PhD
Joseph S Gonnella MD
(September 2012)
Acad Med 2012871243ndash1249
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Association between physician empathy scores (n = 242) and hopitalization for acute metabolic complications of diabetes mellitus (n = 20961) Parma Italia
40 per 1000
71 per 1000
65 per 1000
-
10
20
30
40
50
60
70
80
High empathy Moderate empathy Lower empathy
Rate of acute metabolic
complications per 1000 diabetic patients
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Empathy is associated with positive clinical outcomes for patients with
diabetes mellitus
Empathy is an important element in patient care and physician
competence that must be enhanced during education for physicians
and other staff who interact with patients
Conclusions and Implications
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Influence of Patient-Clinician Relationship on Healthcare Outcomes Systematic Review and Meta-analysis of RCTrsquos
Author (year) Medical Outcome Intervention Type p-Value
Bolognesi et al (2006)
Obesity Motivational Interviewing
Trust Patient-Centered Care Trans-theoretical Model [stages of change])
00
Chassany et al (2007)
Osteoarthritis
Improve Communication Empathy Group discussion led by facilitator focused on patient-physician relationship pain evaluation prescribing and
negotiating a therapeutic contract
01
Cals et al (2009) Lower Resp Infection Improve Communication
Empathy and Shared Decision Making Patient Centered Approach
02
Cleland et al (2007) Asthma Improve Communication
Written Material role playing patient resources
03
(Kelley Kraft-Todd Shapira Kossowsky Riess 2014 Plos One)
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
At todayrsquos meeting how was your doctor at hellip p-value
Making you feel at ease 002
Really listening 002
Being positive 002
Explaining things clearly 002
Letting you tell your story 003
Showing care and compassion 004
Helping you to take control 005
Making a plan of action with you 006
Fully understanding your concerns 007
Being interested in you as a whole person 011
Empathy Training for Resident Physicians A RCT of a Neuroscience Informed Curriculum (Patient-Rated CARE Items)
(Riess et al JGIM 2012))
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Program Evaluation and Self-Assessment of Improvement
91 91 96 91 94
91 91
0
10
20
30
40
50
60
70
80
90
100
Listening carefullyto patients
withoutinterrupting
Interpreting non-verbal cues (toneof voice posture
affect)
Being aware ofyour physiological
reactions tochallengingpatients
Being able tomanage yourphysiologicalreactions tochallengingpatients
Being aware ofyour emotional
reactions tochallengingpatients
Being able tomanage your
emotionalreactions tochallengingpatients
Understanding thelatest research onthe neurobiology
of empathy
After the training did you improve in
(Riess Kelley et al JGIM 2012)
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Patient directed visitation and Care Partners
Patient-Directed Visiting elimination of broad restrictions to visiting patients (based on age relationship and number) with any limitations imposed on a case-by-case basis and in collaboration with the patient according to personal preferences and in consideration of their healthcare needs
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Care Partner Program bull Family formally engaged as integral member of
care team
bull A partnership between family and staff
bull Provides a source of continuity
bull Prepares loved one for post-discharge
ldquoThey showed my husband how to do my dressing
changes so I donrsquot have to come here every day They
asked him questions Can you see it Do you
understand For him to see he was very informedrdquo
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Alegent Health System Ethnography Project
What was your biggest fear while hospitalized
Being alone
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Exploring patient-directed visitation
GROUP ACTIVITY
With a partner decide who will be lsquoforrsquo and who will be lsquoagainstrsquo 247 patient-directed visitation
If you are assigned lsquoforrsquo take 5 minutes and develop a list of every reason you can think of why this practice could be beneficial
If you are assigned to be lsquoagainstrsquo take 5 minutes and develop a list of every reason that you can thing of why this practice could be a bad idea
With your partner discuss the pros and cons of this practice
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
What research tells us about the impact of visitation
bull In a study that examined the benefits of unrestricted patient visitation 88 of families stated it had a positive benefit to their overall experience and decreased their anxiety by 65
bull Family presence in the ICU decreases psychological stress of patients and family members
bull Family presence in the clinical setting is reported to improve medical decision making patient care communication with patientsrsquo family members and to reduce patient falls
bull No clinical evidence suggests negative clinical outcomes No research concludes that allowing patients to choose who can visit them and when these visits occur results in negative outcomes
Berwick D Kotagal M (2004) ―Restricted visiting hours in ICUs time to change JAMA 292 736-737 Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672 Stone S Annual Nursing Report Sharp Memorial Hospital 2014 Lim L and Zimring C Healthcare Design of the Future ARCH 4833ARCH 6271ID 6271BMED 8813 HF 2015
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
What research tells us about the impact of involvement of the patientrsquos family
Engagement of hospitalized patientrsquos family in care activities and care coordination
ndasha lsquoCare Partnerrsquo program- improved patient outcomes including
bull better pain management
bull improved sleep
bull increased health literacy
bull more effective transition to home
Meyers TA et al Family presence during invasive procedures Am J Nurs 2000100(2)32-42 Jabre P et al Family presence during cardiopulmonary resuscitation N Engl J Med 2013368(11)1008-1018 American Geriatrics Society (2001) Guideline for the prevention of falls in older persons Journal of the American Geriatrics Society 49 664ndash672
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Checklists to better prepare patients and family caregivers for discharge
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Legislating Professional-Family Partnerships 15 states enact FamilyCaregivers Legislation
bull At admission patient-designated care
partner documented in medical record
bull At discharge staff notify and offer to meet with care partner to discuss plan of care
bull Prior to discharge staff offer lsquoadequate trainingrsquo in aftercare tasks to care partner
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Why involve patients and families
Highly ldquoactivatedrdquo patients are 30ndash40 less likely to report care coordination problems than those ldquoless activatedrdquo
Raceethnicity employment insurance status income and length of illness were not significantly associated with self‐reported care coordination problems
Maeng Martsolf Scanlon Christianson Care coordination for the chronically ill understanding the patientrsquos perspective Health Serv Res 2012 47(5)1960ndash79
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
All-Cause 30-day Readmission Rates Fall as Patient ndash Family Engagement in Discharge Planning Increases
bull Shared Teaching Tool utilizing 4th grade literacy
bull ldquoTeach Backrdquo by patients
bull Follow-up MD appointments made before discharge
bull HF protocol included in discharge packet for next provider
bull Scales provided for home care patients
bull Follow-up phone calls to patients amp families
Medicare amp Medicaid Research Review 2013 Vol 3 No 2 Centers for Medicare amp Medicaid Services Office of Information Products amp Data Analytics
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
All-Cause 30-day Readmissions 2007-2014
US Department of Health amp Human Services May 7 2014 ldquoNew HHS Data Shows Major Strides Made in Patient Safety Leading to Improved Care and Savingsrdquo
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndash Shared Decision-Making
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
The ultimate patient-engagement tool Shared decision making (SDM) A 2013 study published in the February issue of Health Affairs found bull providing shared decision making-based health coaching for patients
with conditions that frequently require major treatment decisions reduces the overall costs of care hospitalizations and surgeries significantly
bull patients who received enhanced support had 53 lower overall medical costs than patients who received the usual level of support
bull patients receiving enhanced support had 125 fewer hospital admissions than the usual support group and 99 fewer preference-sensitive surgeries including 209 fewer preference-sensitive heart surgeries
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Engaging patients begins with understanding of their preferences
Lee CN Hulsman CS Sepucha K Ann Plastic Surg201064563-6
Wagner E et a l Med Care199533765-70 Covinsky KE et a l J Am Geriatr Soc 200048SupplS187-S193
Only 41 of Medicare patients believe that their treatment reflected their preference for palliative care over more aggressive interventions
40
Doctors believe 71 of patients with breast cancer rate keeping their breast as top priority The figure reported by patients is just 7
Once patients are informed about the risks of surgery for benign prostate disease 40 fewer prefer surgery
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Six Steps to a Shared Decision 1 Invite patient to participate
2 Present options
3 Provide information on benefits and risks
4 Elicit patient goals and preferences
5 Facilitate deliberation and decision making
6 Assist with implementation
Invite Options Benefits and Risks
Patient Preferences
Deliberate and Decide
Implementation
Credits R Wexler IMDF and K Clay Center for Shared Decision Making Dartmouth-Hitchcock Medical Center
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Ottawa Personal Decision Guide
bull Generic tool
bull Clinicians or trained students can use to guide patients through decisions
bull Also good for training in concepts of Shared Decision Making
httpsdecisionaidohricadecguidehtml
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Decision-Making Session
1 In pairs decide who will be the lsquodecision-makerrsquo and who will be the lsquodecision coachrsquo
2 Decision-maker identifies an example of a decision they are facing in their life currently
3 Using the Ottawa Personal Decision Guide the coach poses each of the questions on the form to the lsquodecision-makerrsquo and helps them to explore aspects of the decision process
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Developing Certified Decision Aid Standards
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
PRACTICES that promote patient and family engagement ndashBedside Shift Report
82
84
86
88
90
92
94
96
Nurses treat you with
courtesyrespect
Nurses attitude
toward requests
Attention to
specialpersonalneeds
Nurses kept you
infromed
Staff include you in
decision re treatment
Staff worked together
to care for you
6 months prior to implementation of bedside report 6 months after implmentation of bedside report
Spirit and Intent of Hourly Rounding bull More frequent touch-points bull Security to patients bull Moves from reactive to proactive bull 4 Prsquos- Pain Personal Needs Positioning Placement
Bedside shift report as a time saver bull Sharp decline in the number of call lights bull Nurses have reported a better ability to prioritize cases bull Overall decrease in staff time post-implementation
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Barriers to Engagement
TOP Concerns of Patients
1 Dismissal trivialization of the patient voice
2 Absence of caring attitudes from providers
3 Lack of continuity in care
Based on 6000+ focus groups amp interviews with more than 50000 patients families and caregivers across the care continuum
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Joint Commission Online October 21 2010
80
ldquohellipan estimated 80 of serious medical errors involve
miscommunication between caregivers when patients are
transferred or handed-offhellip communications breakdowns
continue to be a leading contributing factor in many different
kinds of sentinel eventshelliprdquo
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
PRACTICES that promote better communications ndash Open Medical RecordOpen Notes
Shared medical record Refers to the patientsrsquo ability to access their real-time in-progress personal health information during a care episode eg during a hospitalization andor treatment
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
A 2013 survey of 1000 US patients found
Accenture Survey on Patient Engagement - Research Recap
United States Sept 2013
Shared Medical Records
82 say access their medical records is important
41 would consider switching doctors to gain
access to their medical records
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
ldquoI donrsquot have time to sit down and review the record and Irsquom not sure they [the patients] would even want tordquo
ldquoWhat if yoursquove written something that offends them Lawsuitrdquo
ldquoItrsquos too complex and I donrsquot think most of the time theyrsquod understand what was writtenrdquo
ldquoPrivacy regulations wonrsquot let us do that without a signature and that takes timerdquo
Concerns related to patients reading their medical record
of doctors reported longer visits when they opened their notes to patients Delbanco T et al 2012 Annals of Internal Medicine
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Impact of Shared Medical Record
Def
init
ely
wo
uld
rec
om
men
d th
is
ho
spit
al t
o o
ther
s
50
60
70
80
90
100
Yes No
Patients who are told they can read their medical chart are more likely to recommend the hospital to others
Were you told that you could read your medical chart
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Of patients who reviewed their doctorsrsquo notes report feeling more in control of their care
Delbanco T et al 2012 Annals of Internal Medicine
71 Of consumers think they should be able to update their electronic health records
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Patients work with clinicians to co-design research on outcomes they define as important
MISSION hellipproducing and promoting high-integrity evidence-based information that comes from research guided by patients caregivers and the broader healthcare community
hellipthe meaningful involvement of patients caregivers clinicians and other healthcare stakeholders throughout the research processmdashfrom topic selection through design
and conduct of research to dissemination of results
PRACTICES that engage patientsfamilies in research activities
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Funding 2010- $10 million
2011- $50 million 2012-2019- $150 million per year
13 Areas of Funding Focus including o Engagement Awards o Communication-Dissemination Research o Assessment of Prevention Diagnosis and Treatment Options
PCORI Funding Levels and Opportunities
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Engaging Moms in Comparative Research
PICC line supplies
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Ron Keren MD MPH The Childrens Hospital of Philadelphia
Philadelphia PA
Engagement
Patient advisory council involved in formulating the research question defining essential characteristics of the comparators and outcomes monitored study progress and developed strategies to disseminate and implement the research findings
Potential Impact
No studies had been done to compare the impact of these two treatment options on the quality of life of the children and their caregivers
Compares effectiveness of oral vs intravenous antibiotics in children who require at least one week of home antibiotic therapy following hospitalization for a serious bacterial infection Spends 18 months surveying at least 1000 patients (and their caregivers) who are discharged from four large childrenrsquos hospitals
Assessment of Prevention Diagnosis and Treatment Options awarded December 2012
Comparative Effectiveness of Intravenous vs Oral Antibiotic Therapy for Serious Bacterial Infections
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Conclusions and Relevance Given the magnitude and seriousness of PICC complications clinicians should reconsider the practice of treating otherwise healthy children with acute osteomyelitis with prolonged intravenous antibiotics after hospital discharge when an equally effective oral alternative exists
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Every PCORI research publication must include a 500-word lay language description
Patient amp family engagement begins to influence medical research values amp practices
Majority of patient engagement research is qualitative or mixed method with a focus on practices
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Logic Model for PFE Care Culture
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
Intermediate benefits
bull Patient activation
bull Increased health literacy
bull Increased family presence
bull Improved care coordination
bull Less psychological stress for patients families and staff
bull Improved sleep for patients
bull Improved communication
bull Decreased utilization
bull Fewer malpractice claims
bull Increased trust
bull Improved operational efficiency
bull Culture of safety
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
What research says about patient access to satisfaction and patient experience
Huppertz JW and Carlson JP Consumers Use of HCAHPS Ratings and Word-of-Mouth in Hospital Choice Health Serv Res 2010 Dec 45(6 Pt 1) 1602ndash1613 doi 101111j1475-6773201001153x
bull A study examined results of exposing 309 consumers to hospital patient satisfaction results and anecdotal email stories about the scores
bull Patient intention to choose a hospital was most positively affected when both the scores and stories were positive
bull There was less of an effect if scores were positive but the story was not
bull Patient testimonials and positive stories may be very influential on consumer decision-making in addition to scores
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PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
PRACTICES bull Practices that promote
patient and family engagement
bull Practices that attend to the emotional social and spiritual needs of patients families
bull Practices that attend to the emotional social and spiritual needs of healthcare professionals
bull Practices that engage patientsfamilies in research activities
bull Learning opportunities at every patient touchpoint
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Starting tomorrow I will ___________ to move patient-centered care forward
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree
wwwplanetreeorg
Alan Manning amanningplanetreeorg
PlanetreeAlan
Susan Frampton sframptonplanetreeorg Planetree