Florida Crossroads April/May 2011

FloridaCrossroadsOnline.com 1

APRIL/MAY 2011

INFORMATION + INSPIRATION + INCLUSION

FloridaCrossroadsOnline.com

2 APRIL/MAY 2011 FLORIDA CROSSROADS

Shriners Hospitals for Children® — Tampa is located adjacent to the campus of University of South Florida, allowing us to share world-class doctors and provide unique teaching opportunities. Our hospital focuses on treating children with a host of orthopaedic and neuromusculoskeletal conditions in an environment designed to put children at ease. Every member of our staff, from surgeons to therapists, nurses to orthotists, is focused on providing the highest quality care for children throughout the state of Florida and South Georgia.

At Shriners Hospitals for Children®, patients receive expert care. World-renowned physicians, surgeons, therapists and other medical staff help children with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate overcome seemingly insurmountable difficulties, heal and recover.

Shriners Hospitals for Children® also conducts innovative research and outstanding teaching programs for medical professionals, expanding the worldwide body of medical knowledge and improving the quality of life for people around the globe.

© 2011 Shriners Hospitals for Children. All rights reserved.

To lean more about our specialty care, visit shrinershospitalsforchildren.org, call 1-888-665-KIDS (5437) or join us on Facebook at http://www.facebook.com/ShrinersHospitalsforChildren

Changing the World through Caring for Kids


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ON THE COVER 11 A Call to Action Developmental Disabilities Awareness

Day is celebrated with approved funding decisions for Early Steps.

22 Developing A Preschool Plan When it comes to choosing a school

for your preschooler, there are many options.

25 5 Ways to Build a Healthy Sensory Diet Easy suggestions on creating more

sensory activities for your child.

28 Autism Awareness Around the State A look at how Autism Awareness

Month is being celebrated in Florida.

30 2011 Summer Camp Guide Featured camps that specialize in

children with special needs.

31 College Bound High school senior Audrey Winklesas

shares her experience choosing an accessible college.

Makayla VannAge: 5 years

Makayla Vann’s mom says there is only one word to describe her: Diva! She’s a girly-girl from head to toe and loves having her fingernails painted. With a smile always on her face, Makayla is a happy child, especially when she’s sharing popcorn and a movie with her brother, D.J. Makayla was a 31-week preemie who weighed 3 lbs 1 oz. She will be starting kindergarten in the fall.

COVER STORY


APRIL/MAY 2011



25GET MOVINGVisiting a playground three times a week is just one of the ways to build a healthy sensory diet.

Send us your feedback and share yourideas at FloridaCrossroadsOnline.com

Photographed by: Mike and Carol Gibson, Versatile Photography


FROM THE ROAD 5 Editor’s Letter

6 Spot A Superhero

6 Happy Faces

MIX ‘N MATCH 7 Hop To It! Egg-citing new ways to

spring into fun.

10 Role Models Winners of the Every Child

Makes a Difference Award are announced.

REAL TALK 13 Got Something Under

Your Skin? Contact dermatitis can

keep your child itching.

14 Response to Intervention

Florida schools’ new way of identifying learning disabilities.

17 When Summer School Is the Right Choice

Requirements of receiving Extended School Year services.

MORAL SUPPORT 19 From My Grateful Heart A mom with two boys with

autism shares their journey.

21 Love Worth Fighting For Let your love fuel your

energy to be your child’s advocate.

WHAT’S UP? 34 Upcoming Events

April/May 2011

14Response to Intervention is the latest program to help kids with learning disabilities.

Never Miss an Issue!Get all 6 for just $7.50Use this form to start your subcription.

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I was in a greeting card store the other day shopping for the right card for my mom and I was amazed at the selection of Mother’s Day cards

I found. After spending about 10 minutes looking around I discovered there really is a card for every relationship, situation and mood you might find yourself in. As impressive, and overwhelming, as the choices were I noticed one card that seemed to be missing: the card for the mom who has a child with special needs. I’m not suggesting that we “special moms” are better than our typical counterparts, but rather that we’ve just had a different experience with motherhood, and very much like our kids, we see the world a little differently. So, if I had the opportunity to write a card for mothers from our point-of-view it might go something like this: Happy Mother’s Day to the mom who never stops believing in possibilities. Who uses her tears to fuel an unending source of encouragement and compassion. Who goes to bed tired, physically and mentally, but always rises with the grace to do it again the next morning. Who can understand a gesture just as easily as a spoken word. Who answers the 100th question with as much thoughtfulness as the first time it was asked and can find interest and intrigue in the most common of topics. Happy Mother’s Day to the mom who knows when to be tough and when to be gentle. Whose love and dedication conquers the impossible and commands the respect of all who know her. To all the special moms out there, Happy Mother’s Day. Keep up the good work!

Blessings,

Christy Taylor, [email protected]

From the Road EDITOR’S LETTER

Happy Mother’s Day! Christy TaylorEditor

Mike EllenburgManaging Editor

Alisha EnrightSocial Media Director

Bill RodriguezWeb Master

Mission StatementThe mission of Florida Crossroads is to provide special needs families with a

publication that is informative and inspiring and creates an inclusive environment of support, understanding and acceptance. Presenting life-changing opportunities through informative articles, inspiring

stories and illustrative photography and graphic art, Florida Crossroads is committed to helping each family find the right path

for their child.

7025 CR 46A, Suite 1071, #521Lake Mary, FL 32746-4753


Florida Crossroads magazine is published bi-monthly by Crossroads Communications, Inc. © 2010. Reproduction or use in whole or in part of the contents of this magazine or of the trademarks of Crossroads Communications without written permission of the Publisher is prohibited. Florida Crossroads magazine makes every effort to ensure the accuracy of content published. Opinions expressed by Florida Crossroads magazine writers are their own and do not necessarily reflect the publisher’s opinion. Neither the publishers nor advertisers will be held responsible for any errors found herein, and the publishers accept no liability for the accuracy of statements made by advertisers in ads. Crossroads Communications, Inc. reserves the right to edit and/or reject any advertising. Crossroads Communications, Inc. is not responsible for the validity of any claims made by its advertisers.

FOR ADVERTISING INFORMATION:407.494.0619

[email protected] with my two favorite Mother’s Day

presents of all time: Emily and Travis.

Let us know what you think! Send us your feedback and share your story ideas at



Ileana, 6Kissimmee, FL

Olivia, 6Clearwater, FL

Samantha, 6Kissimmee, FL

Send us your picture: Happy Faces @ FloridaCrossroadsOnline.com

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AprilKolt DowningLexie Spencer

MayAngelo Bassi-Favreau

Larkin CogburnKatie Feran

Ava Freeland

From the Road

Here are a few of the smiles we found this month:

Sign up for our Birthday Club today at FloridaCrossroadsOnline.com

Nominee: Katya Echenique

Occupation: Classroom Aide, St. Joseph Catholic School Winter Haven, Florida

Nominated by: Janina Freeland, mom to Ava

Katya has been Ava’s aide for three years now. Ava has always been in a mainstreamed private school with typical children because Katya never gives up on her. She is her voice and has been our family’s angel. There have been times where we have struggled to pay her but she did it because she loves Ava so much. Ava is reading and fully included in the classroom because Katya is her biggest advocate. She has made the children around Ava love her for who she is and not be afraid to be Ava’s friend. She is our angel sent from heaven. Without her, I don’t know where our family would be right now.

Nominate your Superhero at FloridaCrossroadsOnline.com

HOP

TO IT!

Looking for some

new ideas for a more

colorful Easter? Check

out these egg-citing

new ways to spring

into fun.

TRENDS + TIPS + TOOLS


RULE OF

THUMB

It will be easy to

identify whose egg is

who’s when you cover

them in fingerprints. Put

a few colors of tempera

paint on a paper plate,

dip a finger, dab off

the excess and

press gently on

the egg.

TIE-DIE

FUN

Take different

sized rubber bands

and wrap them one at

a time around the egg

in different shapes and

patterns. Make sure to

leave some of the egg

shell exposed so

it can be dyed.

AU NATURELTake a natural approach

to dyes with items you have

already. Use one cup of water

for each handful of ingredients.

Bring to a boil then reduce to low

heat. Simmer until you get the

color you want. Add 2-3 tsp. of

white vinegar for each cup of

strained dye liquid. Eggs died

with natural colors have a dull

finish, add a shine by rubbing

dry eggs with cooking or

mineral oil.

TIPS OFTHE TRADE• Use older eggs; fresh ones are hard to peel.• Take out of the fridge

45 min. before cooking.• To keep eggs from cracking while cooking, pierce the large end with a needle before placing them in the water.

Blue

Canned blueberries

Purple grape juice

Orange

Yellow onion skins (boiled)

Carrots, Paprika

Pink

Beets, Raspberries,

Cranberries or Juice

Yellow

Ground cumin

Green Tea


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Mix & Match

Celebrate Mental Health Awareness

Featured Recipe

The National Federation of Families for Children’s Mental Health declares May 1-7 as National Children’s

Mental Health Awareness Week. This week is dedicated to increasing public awareness about

the triumphs and challenges in children’s mental health and emphasizing the importance of family and youth involvement in the children’s mental health movement. In addition to wearing a green ribbon to promote awareness, here are some other

suggestions from the National Federation of Families for Children’s Mental Health of

how to celebrate.

• Print tip sheets and other informative resources to distribute in your community

at www.ffcmh.org.

• Write an editorial and send it to your local newspaper.

• Log on to the federation’s website (www.ffcmh.org) and find out about awareness

events in your area.

Crispy Easter Egg Treats3 Tbs. butter or margarine1 (10 oz) package of mini marshmallows6 cups crisped rice cereal1 bar baking chocolate multi-colored sprinkles

1 In a microwave-safe bowl heat butter and marshmallows on HIGH for 3 minutes, stirring after 2 minutes. Stir until smooth.

2 Add cereal and stir until mixed.

3 Spray the insides of plastic Easter eggs with cooking spray. Press cereal mixture into eggs.

4 After eggs have cooled, melt chocolate over low heat until melted, stirring constantly. Dip eggs into chocolate and roll in sprinkles.

KITCHEN TIP: Gluten-free crispy cereals are available to use in this recipe, as well as GF chocolate chips for dipping.

Keeping Kids SafeThe American Academy of Pediatrics recently announced new safety standards for keeping kids safe in the car. Keeping a child rear-facing in their seat until

two-years-old is the new standard, as research shows the shell of the car seat offers more protection for immature neck bones and muscles.

Older kids are encouraged to ride in a belt-positioning booster seat until they are 4 feet 9 inches tall and 8 to 12 years old. Booster seats are designed to allow the vehicle’s lap and shoulder seat belt to fit properly. The lap portion of the belt should fit

low across the hips and pelvis. The shoulder portion should fit across the middle of the shoulder and chest. Find out current recommendations, installation tips and other common questions for car seat safety at www.healthychildren.org.

(Download the tag reader at gettag.mobi and scan this link from

your phone. )

“The magazine is terrific and unlike most that you read.

Florida Crossroads really keeps your attention and has some

awesome articles.”Fred, Panama City FloridaCrossroadsOnline.com 1

FEBRUARY/MARCH 2011



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arnoldpalmerhospital.com/hpc • 407.317.7430

meetourkids.org

Our kids have hope.Growing up can be di� cult for anyone. But some of our kids face overwhelming challenges and need a little extra help.

� e Howard Phillips Center for Children & Families, part of Arnold Palmer Hospital for Children, has been a source of

that extra help, providing support and healing for those facing di� culties such as child abuse, sexual trauma, developmental

disabilities and lack of access to medical care—giving kids hope when they need it most. To learn more about how you can

support the Howard Phillips Center and Child Abuse Prevention Month, visit arnoldpalmerhospital.com/hpc.

Our kids pictured here are wearing blue to show support for those a� ected by child abuse. Please join them and help us raise

awareness of Child Abuse Prevention Month in April by uploading a picture of your child wearing blue at meetourkids.org.

11ORA018

11-ORA-018 CROSSROADS APRIL-MAY HPC FOCUSED AD.indd 1 3/16/11 4:15 PM


Mix & Match: ROLE MODELS

Kids do amazing things; something as parents we know and witness every day.

Recently six kids around the state were honored with red carpet treatment for being role models in their communities. After Hours Pediatrics Urgent Care developed the Every Child Makes a Difference community awards program to identify kids who have made exceptional contributions in the community. This February, six winners were chosen and invited to an awards gala held at Celebration Central in Disney’s Hollywood Studios. Here’s a look at their stories:

TAMPAAiden Hawk, age 8Aiden, who has a rare liver disease, was the recipient of a liver transplant as a baby and has been in and out of hospitals his entire life. Despite his struggles, Aiden works hard to bring smiles and blessings to other sick children, like raising over $800 for a local radio station’s fundraiser for All Children’s Hospital by asking friends, family, neighbors and schoolmates to donate their loose change.

Grace Hasha, age 17Grace, who enjoys helping kids, volunteered 100 hours tutoring children living at a domestic violence shelter in her area. Last year, she led a group of fellow students in raising a $3,000 donation for a church she teaches

Sunday school at in one of the poorest areas of Polk County. Grace suffers from a rare neurological pain disorder called Reflex Sympathetic Dystrophy. Dancing has helped Grace deal with the pain of her disorder and she hopes to one day become a dance/movement therapist so she can continue to help and serve others.

ORLANDOSarah Dewitz, age 10Sarah Dewitz is an avid reader who wanted to share her love of books with children at the Bithlo Christmas Neighborhood Center for Families and Children. Her campaign called Just 1 Book led to more than 15,000 books being collected and donated as well as inspiring several area businesses and community groups to get involved with the effort.

Rachel Werk, age 17Rachel shares her passion for swimming by volunteering as an assistant coach for swimmers in Special Olympics. She teaches proper stroke technique and helps lead practices. Rachel is also an advocate for the fight against cancer and founded the Lake Mary Cancer Awareness Club, which helps raise awareness, raise funds for cancer research and provide guest speakers. She helped raise over $10,000 for cancer education and research by organizing a community-wide swimming event in the Orlando area which had 40 swimmers and 100 participants. Op

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SOUTH FLORIDAAugust Russell, age 8One year ago, August took up the new sport of stand up paddle boarding and found a way to make it a giving, sharing experience by entering a five-mile race to raise money for restoration of local historic bridges and waterways. The event raised $20,000 for the waterway restoration and Shake-a-Leg, a non-profit organization that helps people with disabilities explore the sport of sailing.

Destiny Andrews,age 15Destiny is a high school freshman who dreams of becoming a pilot and an astronaut. As an inspiration to her community, Destiny donates her hair and time to Locks of Love and encouraged her friends and family to donate to the charity in honor of her 16th birthday. She also collects toys year round and gives them to local hospitals at Christmas for their patients who are spending the holiday in the hospital.

If you know a child whose story is just as amazing as these, make sure to nominate them for the next group of Every Child Makes a Difference winners. Go online now through mid-July to www.everychildmakesadifference.com and submit your nomination. Winners receive a prize package valued at $2,500 as well as a crystal star trophy and an actual star in the sky named in their honor, and a Radio Disney backpack filled with prizes.

Kids Making a Difference

EDUCATION + ADVOCACY + ISSUES

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Kristy Turner considers herself an average, everyday mom. She

would be the first to tell you that she is not a politician or a political activitist, but it was because of her passion that a vital service for Florida’s special children was saved. The story starts when Scarlett, Kristy’s youngest daughter, was born. Scarlett has Rieger’s syndrome, which causes significant vision problems, as well as a genetic disorder. When she was diagnosed, Scarlett’s geneticist recommended her parents early intervention services as soon as possible. Kristy went

home, googled Early Intervention Lakeland, and discovered the Bay Area Early Steps. She set up an evaluation appointment with and Scarlett soon began receiving physical, occupational and speech therapy services. As nearly every family who has participated in an Early Steps program will tell you, Scarlett’s ability to receive therapy services in the natural environment at such an early age were crucial to her overall development. Under the guidance of her therapists, she learned how to walk, jump, run and feed herself. When Scarlett was preparing for her transition from Part C to Part B on her third birthday, Kristy began preparing as well. She felt strongly

that Scarlett would be best at home with her, and her two older, homeschooler daughters Madeline and Lucille. She started researching IDEA to understand exactly how it worked and attended seminars and workshops about advocating for a special needs child. Eventually, she found her way into the Partners in Policymaking program sponsored by the Florida Developmental Disabilities Council, Inc. The six month course teaches students how advocacy can help change the way people with disabilities are supported, viewed, taught, live and work. Kristy was eager to participate in the program and looked forward to what she would learn. One of her homework

A Call To ActionHow a Lakeland mom used her voice for the fight to save Early Steps.


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Real Talk: ADVOCACY

assignments for the class was to meet her local legislators, which as a Polk County resident included Rep. Seth Mckeel. The meeting went well and Kristy walked away with a new interest, and respect for legislators and the legislative process. So, when critical state funding for Early Steps was threatened in this year’s session, she got involved. She participated in focus groups about the program, wrote letters and gave testimonials. She was even asked to share her story in a video that was being produced about the importance of saving Early Steps. In observance of Developmental Disabilities Awareness Day on March 23, sponsored by the Florida Developmental Disabilities Council and the Arc of Florida, Kristy headed to Tallahassee to do her part. Around 900 people attended the Developmental Disabilities Awareness Day and participated in events at the Capitol. Meeting with legislators was one of the highlights of the event, and Kristy was ready to join in. Armed with a photograph of her girls, Kristy sat in front of legislator after legislator telling her story, sharing her photo and asking if she could count on them to help save Early Steps. She was received well among the legislators, who seemed to

be sympathetic to her story. It was when she was meeting with Sen. Joe Negron, the Vice-Chair of the Senate Budget Committee that Kristy was given a unique opportunity — testify in front of the committee on behalf of Early Steps. Members of the committee listened to Kristy’s earnest plea to save Early Steps. They engaged in her story about Scarlett and entertained her personal, but valid reasons for approving the needed funding. Kristy told the committee that because of Early Steps, her daughter has independent living skills that will cause her to rely less on the system as an adult. The pitch was for every dollar spent in early intervention, more are saved in the need for fewer services as an adult. The story ends as a happy one. The vote from the Senate committee was in favor of a budget that supported over $7 million in funding for Early Steps. Even better news, the House approved the same amount in their version. Though the final budget has not been approved, things are looking better. Kristy Turner is proud for this decision, and thankful for the chance to play a part. Even though

Scarlett has transitioned out of the Early Steps program, Kristy still thought it was important to do her part to save it. “We have to pay it forward,” Kristy said. “What if the people who had gone before me had not been there? Where would we be?” Though it might seem intimidating, Kristy encourages all

parents to consider speaking with their legislators about protecting the rights of Florida’s most vulnerable citizens, children with disabilities. Whether it is an email, a phone call or even a face-to-face meeting she says sharing your personal story may have an impact greater than you realize.

“There are a lot of people who think, ‘they won’t listen to me’ or ‘why would they care about my child.’ That’s just not true. Ultimately, they want to hear from you and how your child is affected by their decisions,” Kristy said. To thank her legislators, Kristy had her girls create personal notes that showed their appreciation. They painted Scarlett’s foot and made “steps” on pieces of construction paper, then wrote a message that said, “thank you for blessing our family.” Kristy says the legsilators later told her how much they appreciated, being appreciated.

DEVELOPMENTAL DISABILITIES AWARENESS DAY The 2011 Developmental Disabilities Awareness Day was celebrated on March 23 at the Capitol in Tallahassee. Organized by the Florida Developmental Disabilities Council (FDDC) and the Arc of Florida, the day was organized to help bring awareness to legislators about the issues facing people with disabilities. At the top of the agenda was concern for the Home and Community Based Services Waiver’s growing waitlist, transportation availability,

Scan to watch Kristy’s video and family’s journey.

integrated employment, guidance on restraint and seclusion in public schools, managed care and health care transitions. The FDDC is currently working on a five year plan that will outline areas of concern and interest with persons with disabilities. The next step in the process is to offer the plan for public comment. Check their website for a copy of the plan. Go to fddc.org/news and sign up for email alerts to receive legislative alerts and news from FDDC.


Real Talk: HEALTH

Got Something UnderYour Skin?

Spring is in the air, and along with budding flowers and warmer weather often comes

the dreaded onset of allergies and itching. So what is the real cause of your child’s skin irritation, or as doctors call it, contact dermatitis? Contact dermatitis is an irritation of the skin that is caused either by exposure to an irritating substance or by an acquired allergic reaction to a substance. Irritant contact dermatitis is caused by substances that usually contain some type of acid or alkali, such as soaps, bleaches or bubble bath. This form of skin irritation can vary depending on the length of time the skin is exposed to the irritant. A common irritant contact dermatitis that parents often encounter is diaper rash in infants and young children. Diaper rash is caused by bacteria in the stool and its common symptoms are redness of the skin and tenderness to the touch. Allergic contact dermatitis can occur with exposure to plants such as poison ivy, metals such as nickel, or preservatives and fragrances that are found in cosmetics. As the child is exposed to the substance many times, the sensitivity to the chemical increases and the skin’s reaction worsens over time. A

common allergic contact dermatitis is to the metal in an earring, a watch or a belt buckle. The skin can have a range of responses, from redness with itching, to hives that are located just over the area but then spread to many other areas of the body. Some children who have asthma or reactive airway disease may even start wheezing. The treatment of both conditions starts with eliminating the substance that is causing the irritation. Sometimes this is easy to identify, and the offending agent can be easily removed from your child’s environment. In some cases, children may need to undergo allergy testing to identify the cause. Applying topical moisturizing creams to soothe the skin and decrease the redness are helpful. The use of diphenhydramine (Benadryl) products to stop the itching will help in cases where the reaction is more severe and healing of the skin is needed. Patients with allergic contact dermatitis can be treated with the same medication and products used for those with irritant dermatitis. If your child experiences more severe reactions, the use of oral steroids, prescribed by your

child’s doctor, for a few days can be helpful. Patients that have respiratory problems with wheezing will need more aggressive treatment. They may also require further evaluation by an allergist to identify and discuss preventive measures. As always, consult with your physician to build a plan that meets your child’s individual medical needs.

Contact dermatitis can keep your child itching, but a solution may just under the surface.

BY D O N A L D O. W H I T E , M D, FA A P, A F T E R H O U R S P E D I AT R I C S U R G E N T C A R E


Real Talk: EDUCATION

Response to Intervention

The 2010-11 school year marked the debut of a new program in Florida schools

called Response to Intervention (RtI). Response to Intervention began as a way to identify and teach struggling readers and special education students without the immediate label of learning disabled. RtI is fast becoming a way to change schooling for everyone and most students throughout the United States are participating in it at some level. Response to Intervention

uses a tier-system to evaluate and improve the way students learn. Through observations, testing and other data collection students are measured on their ability to meet Sunshine State Standards. When a child begins having difficulty keeping up at grade level, RtI suggests incorporating different strategies and interventions to help the child. The goal of RtI is to prevent children from being labeled with a learning disability too quickly and promote individualized support for all

students who may require it. The Florida Department of Education developed an implementation plan in 2008 which comprised a multi-level framework to aide districts throughout the State in the practice of the RtI model. The basis for which RtI was developed originates from No Child Left Behind (NCLB) and the Individuals with Disabilities Education Act (IDEA). Fortunately, our schools throughout Florida are filled with educators invested in teaching with degrees in the

Florida students are now participating in the RtI program, so how do kids with special learning needs fit into it?

BY D E B B I E G E L I N A S

RtI promises to individualize education, but is it working?

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Same day reports faxed toyour child’s doc

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field of education so that they could educate our children and prepare them to meet Sunshine State Standards in classroom settings that are managed well with positive behavior supports that encourage and facilitate a conducive learning environment. Generally, RtI is just an extension on this philosophy. The question for those who have been placed in a tier II level, and in the initial stages of intervention, is how is it working? Does it do what it was intended to do? Is it making a positive difference for the majority (or in some cases the minority) of students in our classrooms throughout Florida? How long before we really know? As an Advocate, my job is often one of helping parents get the school to do what it is legally required to do in order to identify whether or not a child is a child with a disability and if specialized instruction is necessary. In some cases, RtI can put up roadblocks for children who are disabled but for whom the school dictates must continue through the tier system, which would exhaust all available research-based interventions before being considered learning disabled. I met one school guidance counselor who claimed the new policy dictates that Florida schools no longer evaluate children suspected of having a disability, and no longer reevaluate children who are disabled, because of the Response to Intervention program. The belief that RtI has taken the place of specialized instruction is simply not true. Yes, the law pertaining to RtI and its language allows schools to use RtI as part of the evaluation process and gives them the ability to decide that


Real Talk: AWARENESS

are significant advantages to it. Every student gets identified as either functioning on grade level or in need of interventions that will help get him on grade level. A child will no longer be identified as a child with a disability if the child is performing below grade level due to limited English proficiency, or because there is a lack of scientifically-based instructional practices and interventions that contain the essential five components of reading instruction. RtI offers various strategies, so that if one strategy does not work then another can be pulled out; something a good educator has always done. No matter how you look at it, good educators are pretty amazing individuals; they are always adapting, always creating, and consistently evolving the standard mandate on how to best teach our children—with or without state and federal directives. Federal law is still intact. If you are parent of a child who is struggling and behind grade level, and you suspect something is not quite right, you and your child have many rights. Learn what they are so that you remain an effective advocate for your child. After all, every child can learn and succeed, learning disabled or not.

Debbie Gelinas is a Certified Special Needs Advocate. Since 2007 she has served as the Education Community Leader/Consultant for the Down Syndrome Association of Central Florida as well as a contracted provider of Special Education services for the Down Syndrome Foundation of Florida. She is a mother of 4 children and her youngest child has multiple special needs. To learn more about her experience log on to www.iepcoachingandadvocacy.com.

“no additional data are needed” to determine the child’s educational needs or eligibility but it is not the only way. Because well-informed and involved parents keep asking questions, disconnects between the objectives of RtI and the legal requirements that apply to IDEA 2004 are getting resolved. The intention of RtI is to provide an accurate identification and then successful research based set of strategies and interventions to help struggling students. The hope is that it will likewise ‘dis’ the disability for those students who are able to catch up without the unnecessary labeling of ‘disabled student’. However, since its implementation in Florida schools, it has not been so helpful for those students who do have a disability and are required to go through the lengthy process of moving through the tiers before being evaluated by the specialist. Coming out of the directive from federal law, specifically IDEA 2004, school districts may use RtI to determine if the child responds to scientific, research based intervention as part of the evaluation process. The underlying aim is to send fewer children with less severe forms of specific learning disabilities into special education, while eventually,

through an organized tier system, identify the ones that are eligible for special education services. Is that fair? What happens when none of this ‘stuff’ works for a specific child? When all of the choice interventions fall short and the child in all probability has a learning disability. Time may be lost and wasted for the child who truly does have a disability and is moved through the intervention tiers for however long it takes. Right now, there are no specific criteria telling teachers how long a child should stay in each tier. For a child truly at risk for a learning disability getting a comprehensive evaluation early can make a world of difference. The main purpose for an evaluation is to help identify why the student is having trouble learning and if needed, develop an Individualized Education Plan for that student. The sooner a proper evaluation, the sooner the child will have access to valuable IEP resources and the sooner the gap can be closed between grade level and below grade level. That is why it is important for parents to know they may request a full evaluation at any time in their child’s school career. Though good in concept, RtI is a working model that needs a little fine tuning. There certainly

Tier 3: Intensive, Individualized Interventions & Supports.The most intense (increased time, narrowed focus, reduced group size) instruction and intervention based upon individual student need provided in addition to and aligned with Tier 1 & 2 academic and behavior instruction and supports.

Tier 2: Targeted, Supplemental Interventions & Supports.More targeted instruction/intervention and supplemental support in addition to and aligned with the core academic and behavior curriculum.

Tier 1: Core, Universal Instruction & SupportsGeneral academic and behavior instruction and support provided to all students in all settings.

RESPONSE TO INTERVENTION TIER SYSTEM: Source: www.florida-rti.org

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The benefits of a summer break are fairly obvious. It gives kids a chance to take

a break and get recharged. It allows a time to have fun and experience new things. It can also give families a chance to bond and make lifetime memories. Sometimes, though, the interruption of routine a summer break creates can have a negative impact and the cons of taking a break outweigh the pros. It is in those situations that the possibility of an extended school year is the right decision. An extended school year (ESY) is special education and related services provided to students with disabilities beyond the

regular 180-day school year. Under the Individuals with Disabilities Education Act (IDEA), school districts must provide ESY services if the student requires those services in order to receive a free appropriate public education (FAPE). The most common reason why a student receives ESY services is because it is feared that the student will regress, or lose progress, in critical life skills during time off from school. However, arguments can be made to request ESY if the child’s disability will have a significant impact on their behavior or if the severity of the disability has an impact on the child’s education, without the additional help ESY can provide.

The need for ESY services is considered every year, but ideally families and districts should make the decision in the spring. Some key factors for determining if ESY makes sense for a particular student is if the student has a severe disability in one or more areas or if the student experiences significant regression in social or adaptive behaviors or learned skills over regularly scheduled school breaks. For example, a student, who through an intensive behavior intervention system, has improved his behavior enough to be educated in a regular classroom but who after previous school breaks has demonstrated a regression in

When Summer School Is the Right ChoiceExtended School Year Services might be an option for students with disabilities.


BRIGHTSTART PEDIATRICS IS A PPEC (PRESCRIBED PEDIATRIC EXTENDED CARE)

A NURSING AND THERAPY CENTER FOR MEDICALLY FRAGILE INFANTS AND CHILDREN.

special care for spec ia l needs

Visit us online at

www.brightstartpeds.com

• Apnea Monitoring

• Oxygen

• Tube Feedings

• Frequent Medication Administration

• Ventilator Management

Physical, Occupational, Speech & Respiratory Therapies

• Tracheostomy Care

behavior that would require he be placed in a more restrictive environment, would be a candidate for ESY. Or, a student who has been receiving occupational and physical therapy for critical daily living skills and the IEP team believes that the disruption of therapy over a summer break would cause her to regress to a point that would take too long a period of time to reach her previous level of independence. To make their decision, the IEP or Family Support Plan (FSP) team may look at assessment results, parents’ and teachers’ observations, the student’s performance after previous breaks from school. The IEP or FSP team may decide that the student will receive all the services he or she receives during the regular school year as ESY services, or only one particular

service. The IEP or FSP must indicate the type, amount, and duration of any ESY services the student will receive. The setting for ESY services can be at a school or in any location the IEP or FSP team determines the most appropriate and Least Restrictive Environment (LRE). A district is not required to create a program solely to provide LRE, but it may be necessary to provide services in alternative settings if the IEP or FSP team does not think an appropriate setting is available in the current programs that are offered Many times, the ESY service is provided through a school-based program such as summer school, but it can be alternative programs like “take-home” instructional materials and periodic

consultations with the teacher or therapist, parent training or even services contracted through community or other agencies. What happens if you believe your child needs ESY services, but the IEP or FSP team does not agree? You have the opportunity to ask for another meeting with the team, the teacher or principal or the exceptional student education administrator in the school district office. Parents also have the right to request free mediation services or a due process hearing, or both if they still disagree. Parents can find more information from the Florida Department of Education at www.fldoe.org.

Scan this tag to for links to the Florida DOE’s information.

FloridaCrossroadsOnline.com 19 FloridaCrossroadsOnline.com 19

Ihave two beautiful boys, both of whom have been diagnosed with autism

spectrum disorder. I would like to share my story with you to offer encouragement, hope and a reminder to never take things for granted. My oldest, Aiden, was diagnosed in July of 2008. When Aiden was 15 months old I noticed he started to tantrum more often, cover his ears when music was playing or when he heard loud noises, and lining everything up in precise rows. I didn’t know why he was doing these things and it seemed that anything I did to interrupt him resulted in a meltdown. I was confused and afraid for him. When I brought Aiden to his pediatrician and shared

my concerns, I was told that he was a boy being a boy and he would catch up. Though that is what any parent would hope to hear, it just did not sit right with me. I contacted early intervention services on my own and had him evaluated. He was not given a definitive diagnosis then, but I knew one would come. I took Aiden to a new pediatrician and again explained all my concerns. This time we were referred to a neurologist who finally gave us the diagnosis of autism. After receiving the diagnosis I remember feeling scared and relieved all at the same time.

From My Grateful HeartHaving two children diagnosed with autism has had its share of challenges, but I’m thankful for the things I have learned to cherish.

BY A L I S H A E N R I G H T

Relieved to finally know what was going on with my little boy but nervous about what it all meant. I discovered that what it meant was that the next three years of my life would be spent searching for answers, looking for help and taking joy in the simple things. We began speech and behavioral therapy right away. Aiden’s behavioral therapist taught us some techniques on how to handle his meltdowns as well as how to minimize his anxiety about noise and being in crowded places. It was a long, hard learning process for us and still is. In those days, going out to places seemed

Cameron (left) is 3 and Aiden (right) is 5.

BRIGHTSTART PEDIATRICS IS A PPEC (PRESCRIBED PEDIATRIC EXTENDED CARE)

A NURSING AND THERAPY CENTER FOR MEDICALLY FRAGILE INFANTS AND CHILDREN.

special care for spec ia l needs

Visit us online at

www.brightstartpeds.com

• Apnea Monitoring

• Oxygen

• Tube Feedings

• Frequent Medication Administration

• Ventilator Management

Physical, Occupational, Speech & Respiratory Therapies

• Tracheostomy Care


MORAL SUPPORT: MY GRATEFUL HEART

to be one of our biggest challenges. Our behavioral therapist made us a PECS (Picture Exchange Communication System) folder for when we planned to go out. We would show Aiden where we were going and what we were doing afterwards by using the picture cards. Having him see what was going to happen, and not just hear it, really helped him process the situation easier and helped him feel more in control. Soon, our trips to the store or out to eat were becoming more and more manageable and we felt so much freedom as a family. Aiden was verbally delayed as a toddler and would get frustrated by not being able to communicate his wants and needs. With help from his speech therapist we learned basic sign language signs and Aiden picked them up rather quickly. Through signing he started to find his voice, and it helped us all tremendously I think one of the best things that helped Aiden in those early years was placing him in a special

needs charter preschool. Placing him in school at such a young age was very hard for me. Naturally, I thought I was the one who could take care of him the best and I wanted him to be home with me. In my heart, though, I knew that going to school was the best choice I could make for him. Soon it was clear that being around other kids and having professionals who could assist and facilitate his “play” brought out a social side to Aiden that I never knew existed. I was thrilled with his interest in making friends and participating at school. Aiden did not speak a word until after his third birthday. He is now five years old and never stops talking; and I am grateful for every word. He did not stop screaming every time we went into a store until after he turned four. Now as long as I tell him what we are doing and why, he is happy to go and enjoys being my helper; and again, I am grateful. For so long,

he didn’t want hugs and kisses or other signs of affection, but now thoroughly enjoys giving bear hugs and saying “I love you;” and yes I am and always will be grateful. My youngest son, Cameron, was diagnosed with autism three days after his second birthday. Though I felt prepared to help him, I found out that every child is unique. The diagnosis may be the same, but autism looks different for every kid. The support and speed of development that Cameron needs has been different that what I gave Aiden. It may take longer, but when he starts to reach those milestones, as insignificant as they may seem to others, I will be grateful. The biggest lesson I have learned with my two precious boys is this: never take anything for granted. Not a hug, a kiss, a spoken word, nothing. I am grateful for it all and feel unbelievably blessed to have these two little boys call me their mother.

TWO OF A KIND?Brothers with the same diagnosis but different needs, bring joy to their mom.

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When my daughter Katherine was born, she was diagnosed with

cerebral palsy and a congenital brain deformity. One of my dear friends at the time was Judy, who had been a Speech Language Pathologist, so she had a lot of experience working with children with special needs and their families. Judy met Katherine for the first time, when she was just a few months old, and looked at me with the most serious look on her face, and the most serious tone in her voice, and said, “The quality of this little girl’s life will depend on you. No one else will fight harder for her than you will.” I never forgot those words, and they forever influenced the way I sought services, quite successfully, for my daughter. As a parent of a child with special needs, your job is not to be liked by your child’s teachers,

therapists, doctors or other professionals. Your job is not to be their friend. Your job is obtain the best services possible for your child. Your job is to be respected. Now, that does not mean that you turn into a wild banshee, yelling, demanding and being rude to people to get what you want. That certainly won’t work. However, you do have to be determined, persistent, creative, on the offensive, and you have to summon enough energy to do just one more thing, when what you really want to do is lie down in bed and go to sleep for six months. Is it hard? Absolutely. Is it exhausting? Without a doubt. Is it lonely? Painfully so, but you have no choice and if you don’t do it, no one else will. Will you make mistakes? Sure. I’ve made plenty of wrong decisions. There are things for my daughter I didn’t pursue, that I probably should

have. I invested countless hours of energy pursuing new therapies and programs that really didn’t benefit her at all, but at the time I thought it was the best for her. The key is to do your best, whatever that is for you at the time. Everything cannot be a priority at the same time. Looking back over the past 13 years of Katherine’s life, I can see where physical therapy was the most important thing for awhile, and then I would focus more on OT and SLT. Sooner or later I would come back to PT. Most of all, be kind to yourself, and know that you’re not alone. Don’t be afraid to ask for help. The responsibility is overwhelming, but there are a whole bunch of parents who feel like you do, who understand you, and who will help you. Yes, it is a fight, but there is no other choice and it’s not one that you have to do alone.

Love Worth Fighting ForBY PA M L I N D E MA N N

MORAL SUPPORT: MOTHER’S LOVE


ending your child to preschool for the first time is exciting. It signals the end of infancy and the beginning of the child starting to grow into their unique and individual person. While still exciting, sending your special needs child to preschool for the first time can also be overwhelming. After all the tests and evaluations are complete and special education services are available, the next big question a parent has to answer is what school to choose. Many parents will opt for the traditional public school environment, but it is not the only option. Let’s explore some of the possibilities for preschool placement. You have had your child evaluated by your school district and the child has met eligibility requirements for special education services including a pre-K classroom setting. There are different placements in the public school including varying exceptionalities (VE), autism setting, and a deaf/hard of hearing classroom. Your child will have an Individualized Education Plan (IEP) and depending on the school district your child may attend a full or half day of class. In addition the child might have qualified for related services such as speech/language, occupational, and physical therapy. Typically these services are provided during the school day. Similar to public school in structure, but different in scope, are charter schools. According to the Florida Department of Education charter schools are public schools that operate under a

BY LAUREN MORRIS

Prepare yourself, and your preschooler, by choosing the right placement.

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performance contract, or a “charter” which frees them from many regulations created for traditional public schools while holding them accountable for academic and financial results. The charter contract between the charter school governing board and the sponsor (the school district) details the school’s mission, program, goals, students served, methods of assessment and ways to measure success. Charter schools are typically geared for a specific type of student or program, such as special needs children and children with behavior problems. When considering a charter school, start by calling the school to schedule an appointment to view the campus and classrooms as well as an opportunity to speak to faculty and staff. Many charter schools geared for special needs students provide related services such as speech/language, occupational, and physical therapy as part of their program and have therapists on campus allowing for more flexibility therapy settings and schedules than a public school. It is also easier for a parent to approach therapists and observe sessions at a charter school. Many parents believe that because their child has a special need, and they have now entered the Part B jurisdiction of the public school system, that they will not be able to participate in a private or VPK (voluntary pre-K) setting. This is not true. If you feel that your child would benefit from a typical preschool you can make it work. Just remember, the financial responsibility of attending a private preschool lies with the parent, not the school district, so be sure to find a school that fits within your budget.

Sometimes in a private school that does not service a lot of children with special needs, there is as much concern from the school as the parent as to how to provide for the child’s needs. One way to put everyone at ease is by using a shadow. A shadow can provide support where your child needs it most. This could be support physically, emotionally, socially or

in communication. The shadow is there to help facilitate the school process, not babysit the child or the other children in the class. The school may be hesitant about using a shadow, so make sure you explain your plan and the role the shadow will play. Assure the school’s director that the shadow is not interested in taking over for the teacher nor is the shadow to be considered a teacher’s aide. Emphasize that a shadow is a support role and that is what they are there for—support. Preschools are hesitant to take on special needs kids because they believe they do not have staff to support the child’s physical needs nor the training to work with children who have social deficits and limited communication skills. Let the director know you understand

these concerns and that you will be providing support for your child to ease these fears. Most importantly remember that you are the one choosing the school so if you find too much hesitance or unwillingness to work with you, find another school! After finding the school and working out the details, it is time to secure the shadow. Often you

can find a college student who is interested in early childhood development to fulfill the role of a shadow. In fact, you may be able to work with a professor at a local community college or university and set up an independent study course and part of the requirement of the course would be to become a shadow for your child and as a result there would be no out of pocket expense for you. It will be important to train the shadow how to provide the necessary support for your child in a classroom environment as well as taking data and providing daily reports. For example, you may want to know if your child will tolerate other children playing at the sand table with him so you need a data sheet that would record if your child did or did not engage in play and

There are many choices when it comes to placement.

Public schools, charter schools, private schools or

even a combination.[ ]


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for what period of time. Keeping track of this data can help you see progress and help you to develop specific goals and objectives in a classroom environment. Thinking long-term, if you want your child to participate in a full inclusion classroom by kindergarten, you should consider creating a plan of action that would start to phase-out the shadow over the preschool years. There is yet another option to consider in the preschool placement scenario: combining the private preschool and public school experience. If your child has qualified for special education services via public school, you are not obligated to send your child to this program every day for the entire time they meet. Time requirements for preschool attendance are more flexible than kindergarten and beyond. You can adjust the schedule as you see fit for your child and opt to send the child until lunch time or just in the afternoon or even full-time every other day. If you wanted, you could also supplement the classroom experience with a private preschool placement. In this sense the child is getting the benefit of special education and exposure to a typical classroom experience. Whether you decide to combine private and public school options, or even utilize private preschool only, you do not lose access to the related services your child has qualified for, such as physical, occupational or speech and language therapy. Inform

your public school at the staffing meeting that you do not want to accept classroom placement but still want to participate in the therapy and support services provided by opting to be an “itinerant student.” This means that you travel to the school (placement

will be determined at a different meeting) and the speech therapist will meet with your child for a specified time. For example, if the child has qualified for 30 minutes per week of speech than you might travel once a week to the school you have been assigned and the therapist would see your child for 30 minutes. Since most schools utilize a group therapy approach you may find that as an itinerant student your “group” is much smaller, or even in some cases one-on-one, than if the child was a full-time student in the classroom. Remember, however, bus service is not provided with this plan and you will have to make your own arrangements to get the child to therapy appointments. As you can see, there are plenty of options when choosing a preschool program. To find the right one, all it takes is a little effort and some creative thinking. As parents of special needs children, though, that is something we do all the time!

Lauren Morris is the founder of MyChild’s Advocate, Inc., providing educational consulting and child advocacy services for parents whose children have special needs. Reach her at [email protected]

As an itenerant student you can receive related services without being a full-time student[ ]

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We view the world through our senses,

including touch, taste, sight, hearing and smell.

The challenge for kids with sensory processing

disorder is keeping them all balanced.

BY R O B Y N CO L L E Y, OT R / L

A sensory diet is nothing more than small, simple activities done throughout the day either independently or with help, to help calm or alert one or more of the senses. We learn through our senses.

Our senses create the foundation for our attention and focus as well as our motor skill development. If one or more of our senses are over-responding or under-responding to environmental stimuli, it can make us feel overwhelmed, appear inattentive, or create hyperactive type tendencies. Sometimes, a simple sensory diet, the act of adding in small activities throughout the day to satisfy our senses, is enough to help us feel more calm and focused. Use these ideas as a starting point but remember every kid is different and so is their sensory appetite. Guidance and support from an Occupational Therapist can help you find the right ingredients for your


1After a hard day at school or a busy day of schedules and appointments, sometimes it is best to cut-off the world and get your bearings. An easy, and fun, way to do that is by setting up a tent or creating a “tight space” that can provide a sense of seclusion. Not only do tight spaces provide that physical barrier from a loud and busy world but they can also create

Think Tight Spaces

2The tight space you created can be the perfect setting to start calming each of the basic five senses:Eyes: Dim the lights. Possibly incorporate calming, rhythmic patterns such as waves or water.Ears: Cut-off all language and enjoy the silence. If you want, try adding quiet, calming sounds like classical music or nature sound tracks.Touch: Give busy hands a way to release pent-up energy. Give them a stress ball to squeeze or something else to fidget with.Taste: Or more importantly, movement in the mouth. Lollipops, gum and licorice are choices that can be sucked or chewed as well as non-edible items like Arc grabbers. The key is finding an object that is safe and offers resistance.Smell: Scents like lavender and vanilla can promote calmness.

Calming the Senses 3 Kids who seem to be always seeking input need a lot of

movement to fill their internal need. Movement can be enjoyed in a variety of ways. Playgrounds are excellent places to get sensory movement, and have all the necessary equipment such as swings and slides. If you’re stuck indoors, try a game of animal tracks. Take turns walking around like a bear or a crab or slither on the floor like a snake. Army crawling and rolling are also great. An indoor ball pit can provide

movement and space-awareness all at the same time.

After the activity, make sure to bring things back to center with a few deep pressure exercises. Playing tug-of-war, pushing against the resistance of mom or dad’s outstretched hands or even carrying a bag of groceries all provide grounding proprioceptive input.

Keep it Moving

an effective boundary that provides important proprioceptive input. Feeling the way your body moves through space is an aspect of proprioception, and the closeness of a tight-space can very effectively provide that information. As an alternative to a tent, try a play tunnel. Crawling through promotes space-awareness as well as movement.

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Robyn Colley is a Pediatric Occupational Therapist with 13 years of experience working with children who have special needs. Robyn focuses on Sensory Processing Disorders as they relate to children of all ages. She works with the Center for Health, Learning, and Achievement as well as The Providence Academy, a school for children with varying learning differences. Feel free to contact her with any questions at [email protected].


4Pure proprioceptive input reaches the spinal cord through the nervous system and carries a message of feeling grounded to the brain. Weighted vests can provide pure proprioceptive input by keeping a consistent feeling of pressure. Weighted vests need to be used properly, though with an appropriate, safe weight for no more than 20 minutes at a time. Consulting with an OT on the amount of weight and frequency is the best idea. Weighted blankets are also good tools, especially for kids who have trouble falling or staying asleep.

WeightedDown

5 Most children with sensory issues do

not prefer light touch, so bear hugs often work great. A nice squeeze here and there throughout the day can help them feel safe, secure and loved.

Bring on the Bear Hugs In addition to the hugs, play games like sandwich maker, where your child lays between two slices of “bread” pillows while you provide light pressure as the sandwich press. Or, take out a “tortilla” blanket and roll up a burrito.

Bear hugs are just as beneficial for you as they are for your child.


From North to South,East to West families

all over Florida arecelebrating April asAutism Awareness

Month. Find oneof these events in

your area to attend.

Emerald Coast Autism Society’s 6th Annual Walk 4 Autism AwarenessSaturday, April 30, 20119am - 12pmSpanish Trail ParkStillwell Blvd., CrestviewA fun, family event with a resource and information fair. Find out more at www.ecautismsociety.com

NORTHFlutes, Autism and a Different Way of SeeingThursday, April 14, 20116pm - 8pmFSU College of Medicine, Auditorium - Room 104245 Brent Lane, PensacolaPaul McAuliffe, flute player and flute maker from Panama City, presents a unique program of music, autism education and autism advocacy. In his presentation he discusses his own autistic journey of self-discovery, plays quiet soothing music, discusses what it’s like living on the spectrum in a neurotypical world and tells why Asperger’s kids will be the future inventors and innovators. For more information log on to autism.fsu.edu.

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HEAL First Coast Zoo Walk for AutismSunday, April 10, 20118:30am walk beginsJacksonville Zoo and GardensProceeds will benefit autism programs and education on the First Coast. HEAL grants have totaled over $700,000 locally to Autism programs. Find out more online at HealAutismNow.org.

NORTHEAST

Autism Society of Greater Orlando Annual Autism Walk & Family Fun DaySaturday, April 30, 20119am - 1pmOrange County Convention Center, South ConcourseAppreances from state lawmakers, Ronald McDonald, Star Wars Charaters and others. The goal of the event is to increase autism awareness, and to raise funds for programs in the Central Florida area. Besides the Walk, there will be a raffle, silent auction, games, sports corner for Dad and massages for Mom. Go to asgo.org or call (407) 855-0235 for details.

CENTRALUnlock Autism: An Autism Awareness EventSaturday, April 16, 20119am - 1pm2400 Hooks Street, Clermont, FLIf you know a child affected by autism or other developmental delay, plan to attend this one-of-a-kind event that will have therapists, pediatricians, psychologists, will and estate attorneys and more resources. RSVP your attendance at UnlockAutismNow.com.

Early Autism Interventions and Sensory Processing Disorder Interventions ConferenceSaturday, April 30, 20119am - 2pmSheraton Riverwalk TampaOpen to Parents, Educators, Medical

WEST

Community Autism Awareness DaySaturday, April 10, 201111:00amCooper City Fire Station #28 10550 Stirling Rd , Cooper CityA free of cost, family event and with food and goodies for those who attend. Lots of emergency vehicles and representatives from emergency services. Find out more at asabroward.org.

SOUTH

2011 Tampa Bay Walk Now for Autism SpeaksSaturday, April 16, 2011Walk Now for Autism Speaks is a fun-filled, family friendly event and is our single most powerful force to fund vital research that will lead us to the answers we need. Experience the power of thousands united by a single cause by joining Walk Now for Autism Speaks.

Professionals, College Students with sessions on a variety of topics For event information and registration contact Joy Falahee at [email protected] or byphone at (813) 995-5652


EASTER SEALS CAMP CHALLENGE Sorrento, Florida(352) 383 4711fl.easterseals.com/campchallengePeace of mind for you, and a summer adventure of a lifetime for your kids! Weeklong fully-accessible overnight camp for individuals with disabilities, ages 6+. Exciting activities including zip lining, swimming, archery, dancing, sports, music & drama. Easter Seals Florida – providing summer memories for individuals with disabilities for 50 years. Email [email protected] for additional info.

QUEST’S CAMP THUNDERBIRDApopka, FL(407) 592-3960, (407) 889-8088questinc.org/camp.htmQuest’s Camp Thunderbird is a residential camp in Apopka, FL that serves youth and adults of varying abilities. In our program we provide the opportunity for our campers to show what they CAN do, and not to focus on what they cannot. In our youth programs, campers with and without disabilities are provided with opportunities to play, learn and grow together in a setting that promotes campers increased awareness and understanding of one another. In our adult programs, campers with disabilties are given choice in their recreation and social needs which encourages ownership and independence in their experience. One week and two week sessions are available and prices are competitive with other similar programs. To learn more go to www.questinc.org/camp.htm or email [email protected].

CONDUCTIVE EDUCATION CENTER OF ORLANDO SUMMER CAMPWinter Park, FL (407) 671-4687cecfl.orgCECO’s summer camp offers intense conductive education five hours a day, five days a week with caring and experienced instructors., one-to-one staff student ratio and resources for families. Session I runs June 14 through July 8. Session II runs July 11 through August 5.

A sampling of Summer Camps offering unique activities just for special needs kids.

Tell us about your camp atFloridaCrossroadsOnline.com.

CAMP BOGGY CREEKEustis, Florida(352) 483-4200 ext 252boggycreek.orgWe are one of Paul Newman’s FREE camps for children with serious illnessess. We offer weeklong summer sessions for children and family weekends throughout the remainder of the year. We have sessions for children with Cancer, Bleeding disorders, Epilepsy, Rheumatic diseases, Heart disease, Kidney disease, Sickle Cell, Spina Bifida, Transplants, Immune deficiencies, HIV, and disorders requiring ventilatory assistance. We have full medical support, with an 8000sq ft Medical Center staffed with 3-4 pediatricians and 12-14 nurses, many who are specialists for the illness being served for the week. Email [email protected] for additional info.

CAPERNAUM CAMPYoung Life’s SouthwindOcklawaha, Florida(352) 288-2500southwind.younglife.orgCapernaum camp is for teenagers and young adults with special needs. Camp features a swimming pool, canoes, ropes course, giant swing, game room, field games, relay races, and Young Life clubs! Contact your local Young Life office for more information.

B.A.S.E. CAMPWinter Park, FL (407) 408-0467basecamp.orgBASE Camp provides a year-round base of support for children and families who are facing the challenges of living with cancer and other life-threatening hematological illnesses. We serve not only the children who are patients, but their brothers and sisters too. One of the programs we provide is a monthly overnight camp for children five to 15 years of age. Offered one Saturday a month (pick up on Sunday morning), the camp is hosted by a Central Florida hotel and the evening is spent playing games, watching movies and doing arts and crafts. For more information, contact Cindy Whitaker at (407) 408-0467 or email at [email protected]



The transition from high school to college is full of anxiety for any student,

but when you have a disability, I believe it to be even more challenging. In addition to finding a college or university with academic programs that match your desire, you must find one that is accessible in areas like housing, pathways and sidewalks. Not only do you need scholarships to cover tuition, room and board, books, and fees, but you also might need money to pay for an aide. I have had to consider all of these things during my recent college search, and I have found that with determination and an open mind, you can find a college that is right for you. In the fall of 2011, I will be entering my freshman year of college. Biochemistry and music are the subject areas I intend to study. Due

CollegeBoundPlanning for college is not just about academics, but finding a place you can live, learn and grow.

BY AU D R E Y W I N K E L S A S

to the fact that not all scholarship notifications have been released, I am uncertain to date as to which college I will be attending. I began my college search as a high school sophomore, knowing that I had special circumstances to deal with. Allowing yourself time to find a college that is the right fit for you is essential. The college visit is extremely important in discovering if the campus is truly

accessible, and making all of these visits takes time. Prior to arriving for your visit, contact the school to request seeing an accessible dorm room. While seeing a standard dorm room on the tour is nice, making sure the accessible room will work for you is a must. In addition, actually traversing the sidewalks and pathways that you see in pictures online may reveal that in real life the bricks that make

Audrey, the valedictorian of her graduating class, on her college visit.



the campus appear so beautiful may be a problem for traveling from class to class in a wheelchair. You will not know these things until you visit the place that is your potential home for the next four years. It is a good idea to speak with Disability Services as well in order to see what the school may be willing to offer for assistance. Most schools can provide note takers and other supports to students whose disabilities necessitate this type of service. If this service is a priority for you, make sure to check with the specific colleges you are interested in. Upon speaking with Disability Services, you will have a good idea of how accommodating the school will be. Finding scholarship opportunities is the next step in making the college search turn into a college reality. Some scholarships that I have found that are specifically for students with disabilities are the Jan La Belle Scholarship Program, the ChairScholars National Scholarship Program, the Joe Cleres Memorial Scholarship, and the Incight Scholarship. No doubt there are countless others available as well. These scholarships are, of course, ones that you may apply to in addition to all other scholarships that do not have the disability requirement. One very important piece of advice I have for you is to remember to stay well-rounded. This is crucial for college admissions and for scholarships. Find a couple of community service activities that you have intrinsic interest in and do them repeatedly. This sincere interest will be reflected into the essays you write and into the interviews you

undergo. Whether it is tutoring at your school, visiting nursing homes, or helping at a vacation Bible school find a community service activity and get involved. Also get involved by assuming leadership positions. If being the president of one of the organizations at your school is too daunting, join the student government or lead a committee within your school’s clubs. Something really important though, don’t forget academics in the midst of this school and community involvement. From my experience, academics are indeed a priority in college admissions but they do not stand alone. I remember thinking about college life four years ago and wondering what would end up happening. Now, I will be graduating high school in three months and beginning college shortly thereafter. Until recently, I never wanted to live on a college

campus. I was apprehensive about leaving the comfort of the way my mom knows how to care for me. I have since decided that if possible, having the true “college experience” is best. I had the fortunate opportunity of being able to attend the Bridge Program in Math and Science at Sewanee: The University of the South this past summer. It was a three-week camp in which a friend from my church went along as my aide. Being away for three weeks told me that, yes, it is possible for me to live with assistance from someone other than my mom. While adjusting to life with a new caregiver is still what makes me the most nervous, I know that in the end the reward of living with my fellow classmates will be extremely enriching. Not to mention, living independently will prepare me for the life I intend to lead as a medical researcher and youth choir director in the future.

MAKING FRIENDSAudrey with her new friends at Sewanee.


The Annual Family Café provides a venue where individuals with all types of

disabilities and their families from all regions of Florida can gather information about available services and how to best access them. It offers families access to policy-making officials, opportunities to find support by networking with other families, and exposure to a range of public and private resources on a grand scale. This year’s 13th Annual Family Café will be held at the Disney Coronado Springs Resort and Convention Center. This facility offers first-rate accommodations, as well as some of the best facilities for persons with disabilities available in the Orlando area. A block of rooms has been reserved at a special

conference rate of $109 per night. As always, The Annual Family Café is a free event! If you are a person with a disability, or a family member of one, there is no registration fee for the conference. However, ALL Professionals must pay a $100 registration fee. The Family Café is also proud to offer families limited Financial Assistance, which can provide for complimentary accommodations at the Disney Coronado Springs. To apply for The 13th Annual Family Café assistance, contact Family Cafe at (850) 224-4670. Assistance is based on available funding and awarded by lottery. If you receive Financial Assistance, your room reservation will be made by The Family Café. If you do not receive Financial

Assistance, you will be responsible for making your own reservations at the Disney Coronado Springs or elsewhere in Orlando. You can contact the hotel reservation line at 407/939-1020. You can register to attend the Family Cafe event online at www.FamilyCafe.net.

Family Cafe Stirs Up Some Fun


Sports Injuries Ear Infection Sore Throat Fever

Sore Throat Asthma Dehydration

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Burns Bee Sting Stitches Broken Bones Flu Colds

Bee Sting Sports Injuries Ear Infection Fever Cuts Burns Bee Sting Ear Infection

Sore Throat Asthma Dehydration Fever Cuts Burns Bee Sting Flu Colds Asthma

Flu Colds Sore Throat Asthma Dehydration Bee Sting Stitches

Dehydration Fever Cuts Burns Bee Sting Stitches Broken Bones Flu

Broken Bones Flu Colds Sore Throat Asthma Dehydration Stitches Broken Bones Flu

Stitches Broken Bones Flu Colds Sports Injuries Ear Infection Fever Cuts Burns Bee Sting

Sore Throat Asthma Dehydration Stitches Broken Bones Flu Colds Asthma Fever

Sore Throat Asthma Dehydration Fever Cuts Burns Bee Sting Stitches Broken Bones Flu Colds

Asthma Stitches Broken Bones Flu Colds Sore Throat Asthma Dehydration Broken Bones

Fever Cuts Burns Bee Sting Sports Injuries Ear Infection Stitches Broken Bones

Sore Throat Asthma Dehydration Fever Cuts Burns Bee Sting Flu Colds Fever

Stitches Broken Bones Flu Colds Sore Throat Asthma Dehydration

Sports Injuries Ear Infection Fever Cuts Burns Bee Sting

Dehydration Stitches Broken Bones Flu Colds

Sports Injuries Ear Infection Fever Cuts Burns Bee Sting

Sports Injuries Ear Infection

Flu Colds

Fever 5 Orlando Locations, 4 Tampa Locations, 3 South Florida Locations - www.AfterHoursPediatrics.com

Less Wait. More Smiles.

Mon-Fri 5 pm - 11 pm, Weekends & Holidays 1 pm - 11 pmOPEN EVERY DAY

What’s Up?funding valuable programs that teach special needs children with motor disabilities how to walk and be more independent. Sign up your company team today and make a difference. cecfl.org

DERBY DAY SOIREE May 7, 2011 • 3:00 - 7:00pmFreedom RideOrlando, FLEveryone is invited to swap their boots for a Derby hat, grab a mint julep and saddle up for a red carpet afternoon. Watch the Kentucky Derby broadcast, enter the ladies Derby, fabulous food plus a silent and live auction. For more information call (407) 293-0411. freedomride.com

SPECIAL OLYMPICS STATE SUMMER GAMESMay 13-14, 2011ESPN Wide World of Sports, Orlando, FLOver 1,500 athletes will compete at the state summer games. To participate, or be a spector, go online to sofl.org

EARLY STEPS FAMILY SOCIALMay 21, 2011 • 2:00pm - 4:00pmLoch Haven Neighborhood CenterOrlando, FLOverburdened? Overwhelmed? Need a break? Party with your fellow Early Steps families. Enjoy an afternoon of fun and festivities while you socialize, network and

NORTHApril 2011SPORTSABILITYApril 14-17, 2011 Tallahassee, FLThis four day event includes a Banquet, Indoor Recreation/Expo, Outdoor Recreation, Power Soccer Clinic and Baseball game for people of all abilities. Go to www.fdoa.org for more information or for quick registration. [email protected]

NORTHEASTApril 2011EARLY STEPS 2ND ANNUAL SPRING FLING/EASTER EGG HUNTApril 10, 2011 • 2:00 - 4:00pm Losco Regional Park, JacksonvilleRelax, play games, meet the Easter Bunny, an Easter Egg Hunt and enjoy your family while also receiving information about community resources at the same time. For more information, contact Kimberly Belzer [email protected]

CENTRALMay 2011CECO 10TH ANNIVERSARY

GOLF CLASSICMay 2, 2011 • 10:30amWinter Park, FLAnnual Golf Tournament to raise money for the Conductive Education Center of Orlando, Inc. (CECO). Proceeds will go towards


let the kids be entertained with safe, developmentally appropriate activities. Throw on a grass skirt, Hawaiian shirt and join the fun. RSVP to by May 10 to [email protected] or call (407) 317-7430 ext. 2201.

June 2011MAKE ‘M SMILE June 4, 2011 • 7:30am - 1:00pmLake Eola, Orlando, FLThis free community festival celebrates kids with special needs (VIP kids) and their families and features a Buddy Stroll where VIP families are “buddied up” with people from around the community for a stroll around Lake Eola. Come and enjoy free food, entertainment, prizes and a chance to visit exhibitors that service the special needs community. For more information call (407) 857-8224.nathanielshope.org

WESTApril 2011BUNNY BRUNCH SPRING EGG-STRAVAGANZAApril 16, 2011 • 10:00am - 12:00pmAll Children’s Specialty Care of BrandonCome participate in our egg hunt, bunny photos, bounce house, children’s activities, vendor fair, music and more! Get your tickets atwww.achgbrandon.org.

May 20112ND ANNUAL FLAMINGO FLOCK GOLF TOURNAMENTMay 17, 2011 • 11:00amMacDill Air Force Base Golf CourseA Unique Golfing event with over 150 Flamingos scattered throughout the course. Find your flamingo to win some great prizes. Get more info at www.TampaGolfTournament.com.

June 2011WRIGHTSLAW SPECIAL EDUCATION LAW & ADVOCACY TRAINING PROGRAMJune 4, 2011 • 9:00am - 4:30pmUSF St. Petersburg Campus Activity CenterOne-day special education law and advocacy programs focus on four areas: special education law, rights and responsibilities; tests and measurements to measure progress & regression; SMART IEPs; introduction to tactics & strategies for effective advocacy. Free registration. For more information, contact Amy Vandenboogert at (727) 523-1130. www.wrightslaw.com.

A COUNTRY AFFAIR 2011June 18, 2011 • 4:30pm - 8:00pmCross Creek Ranch, Dover, FLHay rides, craft booths, corn toss, fresh lemonade press, ice cream station, three legged races, sack races, face painting, basket raffle, mechanical bull riding and goodie bags for the little buckaroo’s too! www.fl.easterseals.com.

SOUTHMay 2011DEAF THEATRE ADAPTION OF “WINNIE THE POOH”May 1, 2011 • 11:00amBroward Center for the Performing Arts, Ft. LauderdaleJoin Christopher Robin, his best friend Pooh, and the whole animal crew for a delightful, eye-opening adventure told with the hands and voices of deaf and hearing actors. For more info: contact Michelle Milsom [email protected].

LOVE FORE THE CHILDRENMay 20, 2011 • 11:00amPGA National, Palm BeachTennis and Golf Benefit for Easter Seals. Contact Michelle Gonzalez (561) 471-1688. fl.easterseals.com


We want your family to help us celebrate our first birthday

We’re excited to celebrate a full year of publishing Florida Crossroads magazine, and want to thank you for your support.

Join us for a special birthday party:

Saturday, June 25 2011

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Documents

Florida Crossroads April/May 2011