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Finding Reliable Health Information:
A Guide to Local, Regional and
National Resources
Mary Ann Howie, Wellness Librarian, Werner Medical Library, Rochester Regional Health
Jennifer Raynor, Pediatric Liaison Librarian, University of Rochester, Edward G. Miner Library
Daniel Castillo, Liaison Librarian, University of Rochester, Edward G. Miner Library
Sarah J. Bishopp Velez, Consumer Health Librarian, Science & History Division,
Central Library of Rochester & Monroe County
Barbara Ciambor, Outreach Librarian, Rochester Regional Library Council
OCTOBER 19, 2016
• Libraries have a long history of meeting public demand for consumer health information.
• A recent IMLS study showed that an estimated 37 percent of library computer users (28 million people) use library computers and seek assistance from librarians for health and wellness issues, including learning about medical conditions, finding health care providers, and assessing health insurance options.
Becker, Samantha, Michael D. Crandall, Karen E. Fisher, Bo Kinney,
Carol Landry, and Anita Rocha. (2010). Opportunity for All: How
the American Public Benefits from Internet Access at U.S. Libraries.
(IMLS-2010-RES-01). Institute of Museum and Library Services.
Washington, D.C.
• A 2015 Pew Research Center Study reveals that 73%
of all those ages 16 and over say libraries contribute
to people finding the health information they need.
42% of those who have gone online at a library using
its computers, internet connections or Wi-Fi have
done so for health-related searches.
http://www.pewinternet.org/2016/09/09/libraries-2016/
• Librarians and library staff may face challenges
assisting their users with health related questions.
• Librarians and library staff will want to know how to
help their users locate and evaluate reliable health
information
• If consumers are to make informed decisions
regarding their health they need to have the capacity
to locate, evaluate and understand the information
they find.
How will what you learn today help you answer
consumer health questions?
• You will learn how to evaluate a consumer health
website. You will learn the basic rules for evaluating
the quality of online resources.
• You will become aware of reliable web sites that you
can use to answer consumer health related questions,
including MedlinePlus.
• You will be able to find reliable health information
from local, state, regional and national sources.
• Our purpose today is to provide you with
information, not medical advice. Always
consult a health professional to discuss
specific health concerns.
Realities of Health Care Today
• Health consumers are asked to make decisions
about their own health.
• Many consumers use the internet to locate
health information, but is this information
reliable?
The report OnlineHealth 2013, from the Pew
Research Center’s Internet & American Life
Project found that many searchers begin their
searching using a search engine such as
Google, Bing or Yahoo.
Search engines are easy to use, but are results
consistent, reliable, correct? Not always!
Where’s a health consumer to turn for help?
The National Library of Medicine provides a great 16 minute lesson on how you can evaluate online health information.
• Find it at http://www.nlm.nih.gov/medlineplus/webeval/webeval.html
• A useful checklist on evaluating health websites is included.
Evaluating Internet Health Information
Evaluating websites: watch for these “red flags”:
• Sensationalized content
• Buzz words
• No date
• No author credentials or lack of sources
• Unverified patient testimonials
• Products for sale
• Website is listed on QuackWatch http://www.quackwatch.com
Evaluating Internet Health Information
Remember the ABC’s of evaluation
• Accuracy
• Authority
• Bias
• Currency
• Coverage
and don’t forget user friendliness, ease of use.
Evaluating Internet Health Information
EVALUATE – Medical Library Association (MLA)
• MLA’s For Health Consumers
o Top Health Websites
o What Did My Doctor Say? – Dictionary for commonly
used medical terms
• Content Evaluation Guidelines from MLA
(http://www.mlanet.org/p/cm/ld/fid=398)
1. Who is sponsoring the website?
2. How often is the site updated?
3. Does the site present facts and not opinion?
4. Who is the intended audience?
EVALUATE – Medical Library Association (MLA)
– 1. Who is sponsoring the website?
• Can you identify the site sponsor, authors, and other
contributors? Don’t stop there, look them up.
• Look at the website address. A government address will
have .gov, an educational institution will have .edu, an
organization will have .org, and a commercial site will have
.com.
• Companies may have a commercial interest in hosting a
commercial site, advertising and selling products.
However, not all commercial sites are bad and not all .org
sites are good. For Health Consumers and Patients. (2015).
EVALUATE – Medical Library Association (MLA)
– 2. How often is the site updated?
• Health information changes constantly, a good health
resource should have frequent updates.
• The site should include revision dates, typically found
along the bottom of the page.
EVALUATE – Medical Library Association (MLA)
– 3. Does the site present facts and not opinion?
• Information should be presented in a clear manner.
• Information should be verifiable using professional
literature or links to other reputable websites.
• If opinions are offered, they should be clearly indicated as
opinions.
• This is one of the toughest areas to evaluate!
EVALUATE – Medical Library Association (MLA)
– 4. Who is the intended audience?
• Site should state whether the information is intended for
consumer or health professional. Some sites have areas for
both, this should be clearly indicated.
EVALUATE – Health on the Net Foundation
The Health On the Net Foundation (HON) promotes and guides the deployment of useful and reliable online health information, and its appropriate and efficient use. Created in 1995, HON is a non-profit, non-governmental organization, accredited to the Economic and Social Council of the United Nations.
– Authority (Give qualifications of authors), Complementarity (Information to support, not replace), Confidentiality (Respect the privacy of site users), Attribution (Cite the sources and dates of medical information), Justifiability (Justification of claims / balanced and objective claims), Transparency (Accessibility, provide valid contact details), Financial disclosure (Provide details of funding), Advertising (Clearly distinguish advertising from editorial content)
EVALUATE- Your Turn
• http://www.nvic.org
• http://www.voicesforvaccines.org
Now that you know about the tools you can use to
evaluate health websites, here is a reliable website
that we recommend for consumer health questions:
MedlinePlus Includes health topics, diseases and
conditions, drug information, clinical trials,
alternative medicine, directories of doctors and
hospitals, health information in Spanish, and the latest
health news. Updated and reviewed daily. From the
National Library of Medicine.
Let’s take a short tour of MedlinePlus…
Now let’s look at some local,
Rochester area resources
• CLIC-on-Health(http://www.cliconhealth.org), is
administered by the Rochester Regional Library
Council, includes a website which acts as a
gateway to free, full text health information for
health consumers and health professionals.
• CLIC-on-Health can be used by anyone with
internet access. All the websites are vetted by the
CLIC-on-Health Steering Committee made up of
Rochester area librarians.
The CLIC-on-Health website is arranged by
general categories:
• Drugs & Medications
• For Consumers
• For Health Professionals
• Healthcare in NY
CLIC-on-Health
• Under Drugs and Medications you’ll find drug
identification sites, medication information,
paying for medication.
• Under For Consumers you’ll find websites
specific to Kids Health, Teens Health, Seniors
Health.
• Under For Health Professionals you’ll find:
o Clinical Practice Guidelines
o Public Health Resources
o PubMed and Medline
o PubMed Health
oNew York State Health & Medicine Websites and
NOVELNY Health Databases
• Under Healthcare in NY you’ll find
information about:
o Physicians
oNYS health insurance options
oNursing home comparisons
oWestern NY Rochester region hospital profiles
RochesterHealth.com
RochesterHealth.com (www.rochesterhealth.com) is a
non-profit community focused website where you can
find collection of local healthcare resources: doctor,
dentist and medical service listings; links to service
agencies and support groups; senior and cancer
resources; a community health calendar and more.
Information is provided by local health professionals
and is endorsed by regional health organizations.
Central Library of Rochester & Monroe County
Wellness Center
Sarah J. Bishopp Velez Consumer Health Librarian
Science & History Division
585-428-8194 | [email protected]
Center for Community Health -
https://www.urmc.rochester.edu/community-
health.aspx
Alzheimer’s Association -
http://www.alz.org/rochesterny/
Cornell Cooperative Extension -
http://monroe.cce.cornell.edu/nutrition
Community Organizations
Other Resources
CAPHIS - http://caphis.mlanet.org/
RUSA Medical Reference Guidelines -
http://www.ala.org/rusa/resources/guidelines/guidelinesmed
ical
County Health Rankings and Roadmaps -
http://www.countyhealthrankings.org/
Community Health Assessment -
https://www2.monroecounty.gov/files/health/DataReports/
Monroe%20County%20cha%20chip%202013.pdf
Greater Rochester Health Foundation -
http://www.thegrhf.org/
Grants Resource Center -
http://www3.libraryweb.org/central.aspx?id=114
Rochester Regional Health Werner Medical Library Ask a Medical Librarian
585-922-WELL (922-9355)
www.wernerlibrary.org/wellness
Werner Medical Library www.wernerlibrary.org/wellness
• Health information websites
• Specific health websites - diabetes, heart health, nutrition, more
• Foreign language health information
• Health literacy
• Mindfulness apps
34
• Miner Library in the Medical Center
• Family Resource Library at Golisano
Children’s Hospital
• Bibby Library at the Eastman Institute for Oral
Health
• Williams Library at Highland Hospital
Libraries &
Technologies
35
Ask A Librarian
Miner Library
Guides & Tutorials
• Consumer Health
• Complementary and Alternative Medicines
• Pediatrics
• Public Health
Let’s look at a resource available
through New York State
• NOVELNY includes the Health Reference
Center Academic database which includes
information on medicine and alternative
medicine for medical professionals as well as
general consumers.
Let’s look at regional and national
resources
National Network Libraries of
Medicine(NN/LM) Consumer Health Outreach Resources
• Evaluating Health Websites
• Health Literacy
• Consumer Health Information in Many Languages Resources
• Professional Development for Consumer Health
• The Consumer Health Reference Interview and Ethical Issues
• Health Information Partnerships: Tips from a Partnership
• Finding Consumer Health Materials in Spanish
National Network Libraries of
Medicine/Middle Atlantic Region
National Library of Medicine Specialized
Information Services
Outreach Activities & Resources
Programs and resources for K-12 science education,
minority and other specific populations
Use these reliable websites to help you
answer health related questions
CLIC-on-Health cliconhealth.org
MedlinePlus https://medlineplus.gov/
FamilyDoctor.org http://familydoctor.org/familydoctor/en.html
Lab Tests Online www.labtestsonline.org
Skinsight www.skinsight.com
NLM Drug Information Portal http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp
National Cancer Institute www.cancer.gov
Clinical Trials.gov www.clinicaltrials.gov
Center for Disease Control and Prevention (CDC) www.cdc.gov
Merck Manual Home Health Handbook www.merckmanuals.com/home/index.html
Household Products Database www.householdproducts.nlm.nih.gov
Rochester Health http://www.rochesterhealth.com
Nursing Home Compare http://www.medicare.gov/NursingHomeCompare/search.aspx
Prescription Drug Prices in NYS https://apps.health.ny.gov/pdpw/SearchDrugs/Home.action
2-1-1 Lifeline https://211lifeline.
For more links to reliable websites check out CLIC-on-Health.
Try answering these questions using the reliable
websites you learned about in today’s class
• What is cholelithiasis?
• Is there any evidence that ginger is effective for treating arthritis?
• My friend needs to find a nursing home for her father within 10 miles of Ithaca, NY.
• Are there any current clinical trials for alternative treatment of fibromyalgia?
• What will the creatinine lab test test for?
• What does rosacea look like?
• How can I compare the cost of the drug abilify in Livingston County?
• My Mom was just diagnosed with thyroid cancer. Where can I find some factual information that is written for the patient?
• What is cholelithiasis? MedlinePlus
• Is there any evidence that ginger is effective for treating arthritis? MedlinePlus
• My friend needs to find a nursing home for her father within 10 miles of Ithaca, NY. NursingHome Compare
• Are there any current clinical trials for alternative treatment of fibromyalgia? Clinicaltrials.gov
• What will the creatinine lab test test for? Lab Tests Online
• What does rosacea look like? Skinsight
• How can I compare the cost of the drug abilify in Livingston County? Prescription Drug Prices in NYS
• My Mom was just diagnosed with thyroid cancer. Where can I find some factual information that is written for the patient? National Cancer Institute, MedlinePlus
Finding Reliable Health Information:
A Guide to Local, Regional and
National Resources
Mary Ann Howie, Wellness Librarian, Werner Medical Library, Rochester Regional Health
Jennifer Raynor, Pediatric Liaison Librarian, University of Rochester, Edward G. Miner Library
Daniel Castillo, Liaison Librarian, University of Rochester, Edward G. Miner Library
Sarah J. Bishopp Velez, Consumer Health Librarian, Science & History Division,
Central Library of Rochester & Monroe County
Barbara Ciambor, Outreach Librarian, Rochester Regional Library Council
OCTOBER 19, 2016
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