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FIBROMYALGIA IN THE UK. Fibromyalgia Association UK. Fighting for Freedom from Fibromyalgia. www.fmauk.org. Fibromyalgia Association UK aims to:. increase awareness of FM lobby for speedy diagnosis lobby for effective treatment. Fighting for freedom from fibromyalgia. www.fmauk.org. - PowerPoint PPT Presentation
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Fibromyalgia Association UK
Fighting for Freedom from Fibromyalgiawww.fmauk.org
FIBROMYALGIA IN THE UK
Fibromyalgia Association UK aims to:
• increase awareness of FM
• lobby for speedy diagnosis
• lobby for effective treatment
Fighting for freedom from fibromyalgia www.fmauk.org
Fibromyalgia in the UK
Patient survey involving over 500 people diagnosed with FM
• time with symptoms,• diagnosis,• treatment,• co morbidities• satisfaction with treatment, • effect on quality of life
Fighting for freedom from fibromyalgia www.fmauk.org
Pain management
very poor12 3 4 5 6 7 8excellent 902468
101214161820
Fighting for freedom from fibromyalgia www.fmauk.org
Num
ber o
f pati
ents
Treatments prescribed
anti depressa
nts
analg
esics
anti-epile
ptic
vitam
insoth
erLD
Nnone
0102030405060708090
% of 578
Fighting for freedom from fibromyalgia www.fmauk.org
Therapies tried
Physioth
erapy
Hydro
therap
y
Occupati
onal th
erapy
noneoth
er0
10
20
30
40
50
60
70
% of 460
Fighting for freedom from fibromyalgia www.fmauk.org
Medication results
amitr
iptyline
duloxetine
pregabali
n
co-co
damol
fluoxetine
parace
tamol
LDN
Co-dydram
ol
Pramipax
iole
milnac
ipran0
10
20
30
40
50
60
70
80
benefitno benefitadverse reaction
Fighting for freedom from fibromyalgia www.fmauk.org
Non drug results
relaxati
on
hydro
therap
y
meditation
acupunctu
re CBTTens
0
10
20
30
40
50
60
70
80
benefitno benefitadverse reaction
Fighting for freedom from fibromyalgia www.fmauk.org
overall treatment
excellentgoodpoorsatisfactory
Fighting for freedom from fibromyalgia www.fmauk.org
Conclusions
• Fibromyalgia is not effectively treated in the UK
• No one treatment is effective for everyone
Fighting for freedom from fibromyalgia www.fmauk.org
What is the next step?NICE has timetabled 2016 to consider whether fibromyalgia should be considered for action. Without data to show the extent of the problem, how can an accurate decision be made? Information needs to be collected now to be ready for 2016, so that meaningful decisions and progress can be made on producing guidelines so that patients can benefit from a consistent service.
Fighting for freedom from fibromyalgia www.fmauk.org
Our ask of MPs
• Request that data is collected of the number of people diagnosed with fibromyalgia
• Request that NHS centres/commissioning boards are surveyed to show how many offer a multi-disciplinary approach to treating fibromyalgia
Fighting for freedom from fibromyalgia www.fmauk.org
Fibromyalgia Association UK
www.fmauk.org
