Family with a disabled child 2009

Family with a child Family with a child with disabilitywith disability

SEMINAR« The Family at the Heart

of the Social Work in Europe »

ARRAS, FRANCE18th -22nd .03.2009

Magdalena Skiba Polish Association for Persons with Mental Disability – Gdansk Branch

"The Family at the Heart of the "The Family at the Heart of the Social Work in Europe" Arras 2009Social Work in Europe" Arras 2009

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Review of the legislation in PolandReview of the legislation in Poland

National levelNational level, , # # parliamentary legislation – parliamentary legislation – acts and resolutionsacts and resolutions

# # governmental legislation – directives (executory legislation to governmental legislation – directives (executory legislation to the acts) and strategy documentsthe acts) and strategy documents

Regional level – Regional level – regional resolutions of the regional parliamentregional resolutions of the regional parliament Local (city, commune) level – Local (city, commune) level – local resolutions of the local resolutions of the

city or commune councilscity or commune councils


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Review of the binding law connected with Review of the binding law connected with children rights and family protection in Polandchildren rights and family protection in Poland

National levelNational level,, ## National Action Plan for Children 2004-2012 “Poland for Children” National Action Plan for Children 2004-2012 “Poland for Children”

## National Strategy for Youth 2003- 2012 National Strategy for Youth 2003- 2012## National Strategy of Social Policy 2007-2013 National Strategy of Social Policy 2007-2013## Social Welfare Act (12 March 2004) Social Welfare Act (12 March 2004)## Family Benefits Act (28 Nov2003) Family Benefits Act (28 Nov2003) ## Educational System Act Educational System Act ## Family Abuse Prevention Act (29 July 2005) Family Abuse Prevention Act (29 July 2005)## Family Code – regulating the court competences and proceeding Family Code – regulating the court competences and proceeding ## several directives of the Council of Ministers, Ministry of Social Policy, Ministry of Justice several directives of the Council of Ministers, Ministry of Social Policy, Ministry of Justice

Regional levelRegional level## Regional Social Policy Strategy Regional Social Policy Strategy

Local (Local (GGdanskdansk) level) level # # Family Support Programme (2006-2009) Family Support Programme (2006-2009)## Gdansk of Equal Chances (2004-2015) Gdansk of Equal Chances (2004-2015)# # Gdansk Development Strategy to 2015 Gdansk Development Strategy to 2015## Blue Line – Abuse Combating Procedures Blue Line – Abuse Combating Procedures

UN UN Convention on the Rights of the ChildConvention on the Rights of the Child (20 Nov 1989) (20 Nov 1989) Polish Polish Convention on the Rights of the ChildConvention on the Rights of the Child

National Rights of the Child Ombudsman National Rights of the Child Ombudsman

"The Family at the Heart of the "The Family at the Heart of the Social Work in Europe" Arras 2009Social Work in Europe" Arras 2009 44

Family in the social policy

and legislation

FAMILY ABUSE

PREVENTION

Family Benefits Act

PROTECTION OF A SINGLE

PARENT

POVERTY COMPATING. SUPPORT FOR THE POOREST

FAMILIES

FINANCIAL SUPPORT TO THE FAMILIES WITH

CHILDREN

Social Welfare Act

Alimentary Fund

National Action Plan for Children

Education ActRehabilitation Act.

EQUALIZATION OF OPPORTUNITIES

Family Abuse

Prevention Act

CHILD PREVENTIONRIGHTS OF A

CHILD

Court procedures and

competences


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Appearance of a disability, especially Appearance of a disability, especially intellectual disability of a childintellectual disability of a child exerts a strong negative influence on the functioning of exerts a strong negative influence on the functioning of the familythe family, , doesn’t strengthen, on the contrary, impairs family doesn’t strengthen, on the contrary, impairs family relations,relations, causes emotional disorders, frustrations andcauses emotional disorders, frustrations and disturbs relationship between the parents of a child disturbs relationship between the parents of a child

If all these are not remedied the family stays in a state If all these are not remedied the family stays in a state of a permanent crisis which may lead to an eventual of a permanent crisis which may lead to an eventual breakdown of the family.breakdown of the family.


66

Factors influencing the condition of the Factors influencing the condition of the family after the child’s disability occurrencefamily after the child’s disability occurrence::

““Quality” of the family relations before the disability appears, Quality” of the family relations before the disability appears, especially “quality” of the relations between spouses (partners) (their especially “quality” of the relations between spouses (partners) (their mutual trust, intimacy, closeness, good communication)mutual trust, intimacy, closeness, good communication)

A disabled childA disabled child: : type and severity of the disability, age which the type and severity of the disability, age which the disability appears in, progress or lack of progress in disability appears in, progress or lack of progress in the the development development and rehabilitation of a child, and rehabilitation of a child,

Financial and social status of the family Financial and social status of the family Parent’s education level and theParent’s education level and theirir previous contact with disability previous contact with disability Presence of other children in the familyPresence of other children in the family ReResponse of the rest of the extended family, friends, neigbours and sponse of the rest of the extended family, friends, neigbours and

other people to the disability of a child other people to the disability of a child Direct, immediate support from the professionals and from the local Direct, immediate support from the professionals and from the local

community (early intervention) after the disability occurs. community (early intervention) after the disability occurs.


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Early intervention means early, multi-Early intervention means early, multi-disciplinary (medical, psychological and disciplinary (medical, psychological and

educational), integrated and specialized impact educational), integrated and specialized impact on children with anomalous development on children with anomalous development

combined with the support for their families.combined with the support for their families.

Early intervention includes:Early intervention includes: Early, multidisciplinary diagnosis and assessment of a child, Early, multidisciplinary diagnosis and assessment of a child,

whose psycho-motoric development is irregular in several whose psycho-motoric development is irregular in several spheres, since birth till 7 years of agespheres, since birth till 7 years of age

Early, multidisciplinary, continuous and complex therapy Early, multidisciplinary, continuous and complex therapy according to the individual needs of a childaccording to the individual needs of a child

Constant evaluation meant by monitoring development and Constant evaluation meant by monitoring development and progress of a child and modifying a therapy programmeprogress of a child and modifying a therapy programme

Psychological support and raising of knowledge and Psychological support and raising of knowledge and competences of parents, concerning the specific needs of competences of parents, concerning the specific needs of their disabled child.their disabled child.


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Support for the fSupport for the family with a amily with a disabled disabled child child includesincludes::

Psychological support and if necessary psychotherapy and psychiatric intervention

raising of knowledge and competences of parents in different forms like briefing, teaching, workshops, seminars etc.

Toy and book library, rehabilitation equipment and aids rental, Long and short term respite care, Social help and aid, Information, counselling, guidance services Transport Mutual support groups for the families with the similar problems


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The designers and providers of human services affect The designers and providers of human services affect the daily experiences and the future prospects of the the daily experiences and the future prospects of the people, families, and communities who rely on them. people, families, and communities who rely on them.

TheirTheir p policies and daily practice influence…olicies and daily practice influence…**** where a person who depends on services lives, where a person who depends on services lives, learns, learns, works, and playsworks, and plays**** what activities fill the person’s da what activities fill the person’s daily lifeily life**** who the person gets to know and where the person who the person gets to know and where the person belongsbelongs**** the way the person and others understand who the the way the person and others understand who the person isperson is


1010

The forms of support for the families with a The forms of support for the families with a disabled member have to refer to all of the disabled member have to refer to all of the

life’s spheres and have to enable the access to:life’s spheres and have to enable the access to:

health care, education, social benefits and housing health care, education, social benefits and housing special aids and rehabilitation equipment special aids and rehabilitation equipment socialsocial rehabilita rehabilitation and daily activity for those who cannot work tion and daily activity for those who cannot work vocational rehabilitation and training, employment and vocational rehabilitation and training, employment and support in support in

job placement job placement advocacy, personal assistance and legal protectionadvocacy, personal assistance and legal protection meaningfull and active leasure time activities meaningfull and active leasure time activities services in the community, participation in culture, sports and services in the community, participation in culture, sports and

recreation recreation respite carerespite care


1111

When someone depends on services for housing, necessary When someone depends on services for housing, necessary personal assistance, and daily occupation over a long periodpersonal assistance, and daily occupation over a long period of timeof time, as many people with severe disabilities do, services, as many people with severe disabilities do, services bbecome life defining.ecome life defining.

The fundamental question for those concerned with high The fundamental question for those concerned with high quality services for people with severe disabilities isquality services for people with severe disabilities is……

How can we use our resources to assist the How can we use our resources to assist the people who rely on us to live better lives?people who rely on us to live better lives?


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Support of people with disability and their Support of people with disability and their families carried out by PSOUU in Gdanskfamilies carried out by PSOUU in Gdansk

Supported

employment

SEA Social vocational rehabilitation

OTWCommunity SupportDAC

EducationE-RC

Early interventionEIC

Person with disability

and his/her family

Supported living Residential house

Respite care

Leasure time activities

Home services

Respite care


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INSTITUTIONS and PROGRAMMES INSTITUTIONS and PROGRAMMES

RUN by the ASSORUN by the ASSOCCIATIONIATION •** Early Intervention Centre

•** Education - Rehabilitation Centre

•** Occupational Therapy Workshop

•** Daily Activity Centre

•** “Promyk” Art Gallery

•** „Vita Activa” Orchestra

•** Supported Employment Agency “BIZON”

•** Leasure time activity Club

•** Supported Living House

•** Home and respite care services


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Early Intervention CentrEarly Intervention Centree

for children from 0-7 for children from 0-7 years of age. years of age.

Helpless parents of little Helpless parents of little children exposed, for children exposed, for different reasons to mental different reasons to mental retardation and handicap retardation and handicap can find support, diagnosis, can find support, diagnosis, stimulation, rehabilitation stimulation, rehabilitation and education here.and education here. As of today As of today 121220 families 20 families receive services.receive services.


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Rehabilitation-Education Rehabilitation-Education Developmental Developmental CentreCentre

for for 668 severely, multiply disabled children, 8 severely, multiply disabled children,

aged 7-24, who, due to their condition, aged 7-24, who, due to their condition,

have not received special forms have not received special forms

of education and rehabilitation of education and rehabilitation

in the public sectorin the public sector..


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Family support – in the CentreFamily support – in the Centreconsists of:consists of:

Assessment of a child andAssessment of a child and p providing roviding parent parents with s with comprehensive comprehensive information about therapeutical information about therapeutical and educational and educational program of program of their childtheir child

Parent’s Club –Parent’s Club – support group for parents run by support group for parents run by psychologists. psychologists. Consultations with specialists.Consultations with specialists. IInformation exchange between nformation exchange between staff of the staff of the Center Center andand parents on the dparents on the dailyaily

basis. basis. Medical Medical cconsultations in the Center.onsultations in the Center. AAssistance for parents in accordance to ssistance for parents in accordance to helphelp them with formal procedures them with formal procedures

connected with disability of their child.connected with disability of their child. Fitting up the Fitting up the rehabilitation equipmentrehabilitation equipment and special aids and special aids.. Organization of Organization of the leasure time the leasure time activities.activities. Organization of Organization of the the financial and financial and in kind support in kind support (clothes, weelchairs, (clothes, weelchairs,

furnitures, etc.)furnitures, etc.) Integration of Integration of the the family environment – ceremonies and events inside and family environment – ceremonies and events inside and

outside the Center.outside the Center. SpecialSpecial transport transport provision provision


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Family support –Family support – homehome services services

EducationEducation and rehabilitation at home in case of and rehabilitation at home in case of the badthe bad health health condition.condition.

Respite care: casual and short term Respite care: casual and short term programprograms at the family s at the family home. home.

Personal assistance for the summer vacation trips and stays.Personal assistance for the summer vacation trips and stays. Support Support for parents for parents during during the the participant’s hospitalizationparticipant’s hospitalization Actions and interventions of social workerActions and interventions of social worker


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Daily Activity CentrDaily Activity Centree where 20 adults with severe intellectualwhere 20 adults with severe intellectual disabilitydisability have theirhave their

daily occupational, art and music therapy activities and social daily occupational, art and music therapy activities and social rehabilitation. rehabilitation.


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Occupational Therapy Occupational Therapy Workshop Workshop for for 5555 adults with adults with intellectual disabilityintellectual disability vocational training, self vocational training, self

service skills training, rehabilitation, day care and recreation service skills training, rehabilitation, day care and recreation are provided there.are provided there.


2020

The “Promyk” Art Gallery The “Promyk” Art Gallery TThe first in our country cultural he first in our country cultural

establishment which promotes establishment which promotes achievements of achievements of artists with artists with intellectual disability.intellectual disability. PProfessionally prepared exhibitions rofessionally prepared exhibitions allow to see allow to see a person with dia person with dissability ability through his or her abilities and through his or her abilities and talents.talents.

The gallery runs a data-base of the The gallery runs a data-base of the artists with intellectual disability.artists with intellectual disability.


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„„Vita Activa” OrchestraVita Activa” Orchestra

and it’s conductor and it’s conductor MMirosirosllawa Lipińskaawa Lipińska


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Special Programmes Special Programmes promoting the idea of the full participation in promoting the idea of the full participation in the social life and the social life and at the same time educating at the same time educating society in the positive approach to a disable society in the positive approach to a disable person with regard to person with regard to his or hers needs and his or hers needs and abilities.abilities.

Some of the best known include:Some of the best known include: TThe World not Known Enoughhe World not Known Enough - international - international festival of theatrical, musical, fine arts festival of theatrical, musical, fine arts achievements of people with intellectual achievements of people with intellectual disabilitiesdisabilities,,

Sport Sport eevents, vents, “Big Brother Bid Sister”, a “Big Brother Bid Sister”, art rt auctions auctions,, Carnival Parties, leasure time Carnival Parties, leasure time activities, holiday camps, seminars & trainingsactivities, holiday camps, seminars & trainings


2323

Seminars and trainingsSeminars and trainings


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Supported Employment AgencySupported Employment Agency (BIZON) (BIZON)

At the job siteAt the job sitess


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Polish Association for Persons with Mental Polish Association for Persons with Mental Disability- Gdańsk BranchDisability- Gdańsk Branch

Polskie Stowarzyszenie na Rzecz Osób z Polskie Stowarzyszenie na Rzecz Osób z Upośledzeniem Umysłowym Upośledzeniem Umysłowym (PSOUU) (PSOUU) - Koło w - Koło w

GdańskuGdańsku

ul.Tysiąclecia 13a ul.Tysiąclecia 13a 80-351 Gdańsk, Poland80-351 Gdańsk, Poland

E-mailE-mail: : [email protected] www.psouu.gda.pl

PhonePhone: (0) 58 553 02 61, Fax: (0) 58 : (0) 58 553 02 61, Fax: (0) 58 553 25 11553 25 11

THANK YOU VERY MUCH

Documents

Family with a disabled child 2009