Falkland Surgery Data Sharing

16th July 2013

What are we discussing today

Not specifically about your GP records

Not specifically about Online Access

Specifically new and evolving systematic sharing of data locally and nationally

TerminologyData Protection Act – Protect illegal access or

use

Caldicott – Aim to ensure sharing follows proscribed guidelines

Common Law – Prevents inappropriate sharing

Caldicott Principles Justify the purpose(s)

Don't use patient identifiable information unless it is absolutely necessary

Use the minimum necessary patient-identifiable information

Access to patient identifiable information should be on a strict need-to-know basis

Everyone with access to patient identifiable information should be aware of their responsibilities

Understand and comply with the law

Examples of our data sharing

ACG – Existing – Local

Eclipse – New – Local

SCR (Summary Care Record) – New – National

care.data – New – National

Letters

QOF

ACGAggregated Clinical Groups

Uploaded data under SC CSU

Primary role is to look at who is most likely to need admission and provide “early warning” intervention

Running for 2yrs but now patient identifiable data

Monthly Meetings

EclipsePrincipally Diabetes Care

Allows alert for drug warnings across all patients

Separate secure database in Kent

Centralized across the West Berks Area

Pts identifiable via “Emis number”

Summary Care RecordPre-existing but being rolled out nationally in

stages

Summary of demographics, drugs and allergies (currently)

Intended for sharing with 2y care, A&E etc

Latest news – End of Life Care, Major life events…

SCRThe current position as at 26/03/2013 is:

SCRs created

25,512,399

Patients contacted

41,560,182

Opt out

1.35%

GP practices live

3,546

care.dataNew National project

Compulsory for GPs (but patients can opt-out)

Fairly extensive extraction of coded data

Extension of Secondary care data already there

Looking at activity, prevalence, trends etc

Anonymous sharing outside NHSIC/HSCIC

Hospital CommunicationAll referrals contain certain data

PredominantlyDrugsAllergiesSignificant problemsDemographicsReferral details (the letter)

Financial dataWe share data for

QOF (anonymous)LES/DES/NES (anonymous)Prescribing (anonymous, centrally aggregated

data for collected scripts)Current tools, QOF/QMAS, Chart/MiQuestUpcoming tools, GPES

Permissionscare.data – GP legally obliged, Pts - two levels

SCR

Eclipse

ACG

QOF and LES - totally anonymous

Any Questions care.data

ACG

SCR

Eclipse

QOF

LES/DES/NES

Prescribing

Secondary Care

Individual requests (Insurance/DVLA etc)