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JDRF BACKGROUNDER | 1
Executive Director, New England Chapter
JDRF This position is based in the Greater Boston area.
http://www.jdrf.org
http://www.jdrf.org/newengland/
Send Nominations or Cover Letter and Resume to:
Maureen Huminik
Vice President
617-262-1102
Introduction
JDRF International, the world’s leading charitable funder of diabetes research, was founded in 1970 by the
parents of children with type 1 diabetes a disease that strikes people suddenly, makes them insulin
dependent for life and carries the constant threat of devastating complications.
JDRF is the leading global organization funding
type 1 diabetes (T1D) research. The
organization’s mission is to accelerate life-
changing breakthroughs to cure, prevent and
treat T1D and its complications. To accomplish
this, JDRF has invested nearly $2 billion in
research funding since its inception. JDRF is an
organization built on a grassroots model of
people connecting in their local communities,
collaborating regionally for efficiency and
broader fundraising impact, and uniting on a
JDRF BACKGROUNDER | 2
national stage to pool resources, passion and energy. JDRF collaborates with academic institutions,
policymakers and corporate and industry partners to develop and deliver a pipeline of innovative therapies
to people living with T1D. Its staff and volunteers in nearly 80 Chapters throughout the United States and its
6 international affiliates are dedicated to advocacy, community engagement and a vision of a world without
T1D.
The New England Chapter plays a vital leadership
role in JDRF’s success, with a Chapter revenue goal
of $7 million in FY 2018. The Chapter has a strong,
committed Board and other volunteers who are
actively engaged and passionate supporters of
JDRF. Annually the Chapter produces 4 walks with
a combined revenue goal of $1.8 million and one
gala with a revenue goal of $2.1 million, along
with a golf tournament. In addition, the Chapter
implements JDRF National initiatives, including the
JDRF Ride to Cure Diabetes and local challenge
partnerships. Beyond event based fundraising, the Chapter conducts annual major gifts and annual gifts
activities. Geographically, the New England Chapter covers eastern Massachusetts and Rhode Island.
What is type 1 diabetes?
Type 1 diabetes is an autoimmune disease that strikes both children and adults suddenly. It has nothing to
do with diet or lifestyle. There is nothing you can do to prevent it. And, at present, there is no cure.
In T1D, your pancreas stops producing insulin — a hormone the body needs to get energy from food. This
means a process your body does naturally and automatically becomes something that now requires your
daily attention and manual intervention. If you have T1D, you must constantly monitor your blood-sugar
level, inject or infuse insulin through a pump, and carefully balance these insulin doses with your eating and
activity throughout the day and night.
However, insulin is not a cure for diabetes. Even with the most vigilant disease management, a significant
portion of your day will be spent with either high or low blood-sugar levels. These fluctuations place people
with T1D at risk for potentially life-threatening hypoglycemic and hyperglycemic episodes, as well as
devastating long-term complications, such as kidney failure, heart attack, stroke, blindness and
amputation. Learn more about T1D.
JDRF BACKGROUNDER | 3
The Opportunity:
The Executive Director, New England Chapter reports to the area’s Regional Director at JDRF, and partners
with and works very closely with the Chapter Board.
This is an exceptional leadership role for an experienced senior level professional to join a successful
Chapter that is poised for growth. The new Executive Director will bring solid major gifts experience, as well
as an events background. The new Executive Director will be comfortable in a medical environment, and
have the maturity and gravitas to interact with business and nonprofit leaders.
Position Overview – Executive Director, New England Chapter
Scope and Responsibilities:
The Executive Director is responsible for creating an atmosphere for the volunteers and staff to succeed in
meeting the objectives of JDRF’s mission. S/He will accomplish this through leadership, management and
growth of the Chapter, including annual budget development, planning, implementation and evaluation of
all operations and events in conjunction with the Regional Director and Chapter Board of Directors. To
accomplish this, the Executive Director will develop and sustain an effective volunteer Board of Directors,
lead relationship building with C-suite corporate executives and major donors, and provide inspired
leadership and oversight to all assigned staff.
In addition to the Executive Director, the Chapter staff (8 full-time) includes the following positions:
• Associate Executive Director;
• Development Director;
• Senior Development Coordinator;
• Development Coordinator;
• Development Assistant; and
• Office Manager.
• Outreach Manager (currently vacant)
The Executive Director’s responsibilities will include the following:
Strategic Leadership:
• Provide inspired and motivating leadership to the staff and volunteers while planning for and
delivering year over year growth by serving as a visionary for the region and assigned territory.
JDRF BACKGROUNDER | 4
• Marshall the varied talents and resources available in order to meet and exceed fundraising goals.
• Develop overall goals, timelines and budgets in partnership with the Board and National
Office/Regional Director, and ensure goals are achieved and performance meets or exceeds
expectations.
• Understand JDRF’s core program KPIs and effectively use JDRF systems to aggressively monitor year
over year trends and impact on performance.
Fundraising:
• Consistently deliver against established revenue/expense targets.
• Evaluate human and financial resources and develop plans that support maximum market
penetration and increased efficiency.
• In conjunction with the Regional Director and with support from the volunteer leadership, develop
and implement annual operational/fundraising plan.
• Develop a stewardship plan for all levels of Chapter positions to ensure appreciation and ongoing
relationships key to chapter success are achieved.
• Develop and execute major donor fundraising initiatives across programs in partnership with the
JDRF staff partner (Donor Relations Officer). Working with volunteer leadership, actively develop and
steward relationships with potential major donors.
• Identify and develop opportunities to engage C-level and other senior corporate executives in to
grow and diversify corporate sponsorship income. Provide year-round stewardship of corporate
relationships, developing a more continuous approach to corporate relationships as opposed to
transactional/event-specific engagement.
• Direct the cultivation and meaningful involvement of volunteers at all levels of income.
• Partner with volunteer leadership to solicit funding and other support from individuals, corporations,
foundations and other sources of funding and/or influence. Develop prospect solicitation strategies
and proposals.
• Provide leadership and professional staff support for donor-centered and special events fundraising
programs. Work to assure the fundraising priorities of the JDRF International Board are incorporated
and successfully implemented.
Board & Volunteer Development:
• Serve as the staff manager/partner to the Chapter Board, providing leadership, support, materials,
reports and assistance in building and implementing annual plans and ensuring the ongoing
development of a strong and engaged Board.
• Develop and maintain processes and procedures that promote a good working relationship between
staff teams and volunteer leadership.
JDRF BACKGROUNDER | 5
• Serve as co-chair of the nominating process and provide direct support and leadership in attracting
and retaining high-impact Board members.
• Keep Chapter Board leadership current on all JDRF International Office communications and
programs.
Community Development and Public Outreach:
• Serve as the Chapter’s primary staff representative of JDRF in the community; build strategic
relationships with stakeholders and donors on behalf of JDRF and expand JDRF’s footprint in the
philanthropic community.
• Provide leadership for the cultivation of productive relationships with the media and various
constituent and related groups, including professional, educational and political leadership.
• Through Chapter staff, ensure support for JDRF’s Public Outreach Programs (e.g. Family Network
activities, Bag of Hope, Coffees, etc.)
• Assist the Government Relations Committee as a source of information about the market’s
state/district and membership; provide assistance to the Advocacy team Chair. Act as a liaison
between the JDRF International government relations office and the local market.
Staff and Financial Management and Development:
• Direct and manage resources, including staff and volunteers. Cultivate and sustain a strong team-
oriented culture, with an emphasis on collaboration, results and accountability.
• Model JDRF volunteer/staff partnership, including staff to staff/volunteer to volunteer management.
• Accountable for the development, management and attainment of annual budgets, the maintenance
of its fiscal records, and the timely and accurate submission of JDRF financial and forecast reports.
• Ensure efficient and appropriate utilization of JDRF equipment and facilities.
• Ensure that staff and volunteers follow guidelines necessary to achieve no significant or repeat
violations on internal audits.
• Perform and/or facilitate personnel management functions in accordance with JDRF policies and
procedures, including, but not limited to, performance management, training, supervision and
hiring/termination.
• Ensure and oversee the preparation of Chapter status reports, plans and activities. Ensure
confidentiality and security of all information under supervision.
Liaison with International Office:
• Represent JDRF International Office at designated functions as a JDRF professional and attend
meetings as requested.
JDRF BACKGROUNDER | 6
• Represent interests, professionalism and integrity of JDRF in all activities and relationships through a
unified message of the JDRF mission and a commitment to organizational standards and leadership
by personal example.
• Ensure that the policies adopted by JDRF are understood and followed by all staff.
• Provide leadership in building confidence and a strong working relationship between the field offices
and the International office.
Other:
• Maintain a comprehensive understanding of JDRF’s mission and research strategy.
• Ensure the confidentiality and security of proprietary information.
• Evening and weekend work required as needed.
• Perform all other responsibilities and projects as assigned by his/her immediate supervisor and
senior management.
Key Selection Criteria:
• Minimum of 10 years of professional nonprofit fundraising experience with a clear record of
achievement in a complex, mission-driven organization; 5+ years in a supervisory capacity. For-profit
experience combined with nonprofit experience a plus.
• Demonstrated success in fundraising specifically with major donors. Consultative sales experience a
strong plus.
• Experience and ability to partner with strong and active volunteer leaders is critical, as is the ability to
work successfully with a large network of passionate volunteers.
• Knowledge of business and management principles involved in strategic planning, resource
allocation, leadership technique, production methods, human behavior and performance, and
coordination of people and resources. Proficiency in nonprofit fiscal and strategic management.
• Team player that has the experience and ability to interface with all levels of staff and volunteers.
Must develop, grow, manage and utilize relationships. Capability to leverage relationships and
negotiate agreements.
• Bachelor’s degree required. CFRE, Master’s Degree preferred
Critical Competencies/Critical Success Factors:
• Record of success in a fundraising leadership role, particularly in large-scale events (walk, gala, etc.)
and major gifts ($10,000+).
• Strong skills in the identification, cultivation, solicitation and ongoing stewardship of major individual
donors and corporate partners.
JDRF BACKGROUNDER | 7
• Strong sales aptitude the ability to build rapport and trust, make the ask and maintain long-term
relationships.
• Experience working closely with nonprofit Board members and other high-level volunteers in a
productive, respectful and efficient partnership.
• Exceptional management skills and the ability to inspire, lead and motivate a talented staff team;
develop and sustain an inclusive and respectful work environment through all interactions with staff.
• Commitment to staff development and ability to create career/development plans for staff with a
view toward retaining a talented team.
• Ability to develop and successfully maintain an extensive network of strategic relationships (donors,
volunteers, community partners, etc.) in Charlotte and other markets in the Western Carolinas area.
Existing network in Charlotte a plus.
• Experience leading through and managing change.
Personal/Professional Attributes:
• High degree of energy, integrity, courage and creativity, as well as the intellectual, organizational and
personal qualities to quickly earn respect and cooperation from all program constituencies.
• High capacity to assess the value, importance and/or quality of activities and people.
• High level of comfort communicating complex information (e.g. JDRF research, goals, etc.) to a wide
range of audiences, from high-net-worth individuals to corporate and governmental leaders, the
press and the public.
• Superior active listening, analytical and problem solving skills.
• Effectively multitask, establish priorities, and work in a fast paced environment. Highly efficient in
time management and can meet deadlines under pressure. Ability to work and make judgments
independently and take initiative. Well-disciplined and a self-starter that is extremely resourceful.
• Talent for, and commitment to, working with and through others.
• Executive presence.
• Ability to be a passionate spokesperson/representative of JDRF’s mission.
• Honesty, sincerity and authenticity.
• High emotional IQ.
• Proven track record of success and stability.
• Ability to travel locally required. Occasional overnight travel as needed.
JDRF BACKGROUNDER | 8
Client Overview
JDRF is the leading global organization funding type 1 diabetes
(T1D) research. JDRF’s goal is to progressively remove the
impact of T1D from people’s lives until a world without T1D is
achieved. JDRF collaborates with a wide spectrum of partners
and is the only organization with the scientific resources,
regulatory influence, and a working plan to better treat, prevent
and eventually cure T1D.
Less Until None
JDRF is the only global organization with a strategic plan to bring those living with T1D a continuous flow of
life-changing therapies and, ultimately, a cure for the disease. JDRF’s highest priority remains funding
research to deliver a cure for T1D and its complications. At the same time, JDRF is also focused on
developing better treatments that will transform the way people with T1D treat the disease today, to help
them live healthier lives now and in the future. Finally, JDRF also seeks to prevent T1D, to keep future
generations from developing the disease.
This is all part of JDRF’s promise of “less until none:” to progressively remove the impact of T1D from the
lives of those living with the disease until it is no longer a threat to them or their families.
Innovation and Collaboration
JDRF-funded research has led to many landmark advances
in T1D science. JDRF is now in the exciting position of
taking that research knowledge and translating it into real
therapies that will make life-changing differences for those
facing the daily challenges of T1D. Currently, JDRF is
funding more than 50 human clinical trials, several of
which are in the advanced stages of clinical testing needed
before FDA approvals can be sought.
JDRF’s influence and leadership extends beyond funding research. It strategically partners with industry,
governments, foundations, academia, healthcare insurers and clinicians to ensure that JDRF and its partners
are aligned and working toward a common goal of a world without T1D.
JDRF’s advocacy efforts help support a variety of issues that are critical to JDRF achieving its research
objectives. Its focus includes increased government funding for T1D research and a regulatory environment
JDRF BACKGROUNDER | 9
that allows people with T1D to benefit from potential new therapies and devices as quickly and safely as
possible. Finally, JDRF’s outreach efforts provide practical support and resources for people with T1D and
their families every step of the way as they live with T1D.
Effective Operations
JDRF has always been dedicated to maintaining the highest levels of efficiency to ensure that time,
resources and dollars can achieve the greatest possible impact on the lives of people with T1D. It has a solid
track record of funding research efficiently and effectively. Approximately 80% of what JDRF spends goes
directly to research and research-related education — among the highest percentages for charities
nationwide.
Inspiring Results
JDRF was created — and is still led — by people with a personal
connection to T1D. Today, volunteers at JDRF’s dozens of
locations worldwide remain the driving force behind its activities. That
provides an unrelenting passion and commitment to work to remove
the impact of T1D from people’s lives. Whether it’s providing funding
for a late-stage clinical trial, advocating faster regulatory approval of
new devices, or partnering with a company on research that might not
otherwise receive funding, every decision JDRF makes is driven by its
commitment to achieving a world without T1D.
JDRF has led the search for a cure for T1D since its founding in 1970. In
those days, people commonly called the disease “juvenile diabetes”
because it was frequently diagnosed in, and strongly associated with,
young children. The organization began as the Juvenile Diabetes
Foundation. Later, to emphasize exactly how it planned to end the disease, a word was added and the
organization became the Juvenile Diabetes Research Foundation. Today, there are an equal number of
children and adults diagnosed every day — approximately 110 people per day. Thanks to better therapies —
which JDRF funding has been instrumental in developing and making available — people with T1D live
longer and stay healthier while they await the cure. A few years ago, the organization changed its name to
JDRF:
• To remove the misconception that T1D is only a childhood disease;
• To acknowledge that nearly 85% of people living with the disease are over age 18; and
• To reinforce its commitment to funding research that improves life for people at all ages and all
stages of the disease.
JDRF BACKGROUNDER | 10
Research Funding:
JDRF is driving research across the entire scientific spectrum,
from discovery in the laboratory to delivery of new
technologies and treatments to people with T1D. The full
impact of JDRF’s research investment extends well beyond
its direct funding. Now more than ever, JDRF sees the value
in leveraging partnerships with academia, industry and
clinicians to ensure that the most promising research
opportunities are funded and accelerated. JDRF often
provides early-stage funding to research projects, and the
results of those projects often lead to follow-on participation from many other entities — both other
nonprofit funders and corporations.
JDRF’s investments are supporting the development of next-generation therapies like artificial pancreas
technology, beta cell replacement, smart insulin that can turn on and off in response to blood sugar levels
and, ultimately, methods for curing and preventing T1D.
• JDRF is the leading global organization funding T1D research with dozens of U.S. locations and 6
international affiliates.
• Since inception, JDRF has contributed more than $2 billion to T1D research.
• JDRF is currently funding 50 human clinical trials of potential T1D therapies.
• Approximately 80% of JDRF expenditures directly support T1D research and research-related
education.
Location
Boston, MA
JDRF is headquartered in New York, NY, and has 80
Chapters throughout the United States.
The Executive Director, New England Chapter will
be based in the Greater Boston area.
JDRF BACKGROUNDER | 11
Background Checks:
Prior to submitting your resume for this position, please read it over for accuracy. LLLS does verify academic
credentials for its candidates, and our clients frequently conduct background checks prior to finalizing an
offer.
To learn more, call
Maureen Huminik, Vice President at
617-262-1102
or send nominations or cover letter and resume to
All inquiries will be held in confidence.
Setting the Standard in Development Search
LOIS L. LINDAUER SEARCHES, LLC
420 Boylston Street, Suite 604, Boston, MA 02116
617.262.1102
www.LLLSearches.com
JDRF BACKGROUNDER | 12
Appendix
Leadership:
Derek K. Rapp
President & CEO
Derek Rapp is President and CEO of JDRF. Prior to be being appointed to this
position in 2014, he served as Vice Chair of the JDRF International Board of
Directors.
Before taking the helm of JDRF, Derek Rapp was Mergers and Acquisitions
Lead for Monsanto Company and previously served 10 years as CEO of
Divergence, Inc. a start-up biotechnology company. Rapp has been involved with JDRF since his son, Turner,
was diagnosed with the disease in 2004. He has served on the JDRF IBOD since 2010. In addition to that role,
he has served as Research Chair and as a member of the Research Committee, the Lay Review Committee,
the Strategic Alliances Committee, the Development Committee and the Advocacy Committee. His wife,
Emily, was Board President for the Greater Missouri/Southern Illinois Chapter of JDRF.
Sandra Hijikata
Chief Development Officer
Sandra Hijikata is the Chief Development Officer at JDRF, where she is
responsible for leadership of all fundraising strategies and Chapter
operations. Sandra joined JDRF from the March of Dimes, where she was
responsible for its revenue-generating programs. Prior, Sandra spent 30 years
at the American Heart Association and, earlier in her career, was with the
American Diabetes Association.
Courtney Davies
Vice President U.S. Field Operations
Courtney Davies joined JDRF in 1998 and, in nearly 20 years with the
organization, has held progressively senior roles at the chapter, regional and
national levels. Her experience at JDRF includes serving as Executive Director
of the Eastern NC Chapter, in regional Director roles for the Mid-Atlantic and
JDRF BACKGROUNDER | 13
South regions, and as National Director of Corporate Giving among other leadership positions. Courtney is
currently Vice President of Field Operations, providing strategic leadership to JDRF’s 80 chapters and
regional staff throughout the country.
Kelly Petti
Northeast Regional Director
Kelly Petti brings more than 20 years of experience building networks and
relationships across the Northeast landscape to generate support for
programs, services and mission advancement.
She currently serves as the Northeast Regional Director for JDRF. In this role,
she provides direct management to Chapter Executive Directors, a Regional
Manager, a Regional Walk Manager and other development specialists assigned to the region. Kelly guides
solutions that enable each business unit to meet and exceed revenue goals while serving and engaging
JDRF constituents and stakeholders with a special emphasis on Board development, volunteer partnership
and accountability.
