PowerPoint Presentation
Envisioning the Future -How GEMSS can Help!NH Family Support
ConferenceMay 2, 2015Ann Dillon, M.Ed, OTR/L, parent UNH IODKim
Tautenham, parentNH Leadership Series Action Group: Carrie Duran,
Laurie Giguere, Denise Gray, Kathy Dayotis, Rob McSheehan, Paula
Garvey, Diane Andrews, Sarah Boddy-Snee
AgendaIntroductionsPanelPoll audienceVideo of GEMSSSlide Show as
IntroParents Discuss GEMSS use Audience Condition and live walk
thru siteQuestions
VIDEOhttp://www.gemssforschools.org/default/promotional_materials
Brianna Rose Dillon1985-2010GEMSS OverviewOn line free
resourceAlso, is mobile optimized- works on your cell phone!Common
and rare genetic conditionsAutism, Down Syndrome, Fragile X22q
deletion, PKU, WilliamsBoth a teacher and parent perspectiveNot
just genetics, but what a child needs to be successful in
schoolOption to dig deeper about genetics1500 unique
visitors/monthPeak days attributed to Parent Ambassador efforts
What You Need to KnowAudience: teachers, parents, school nurses,
staffLearn about the condition, take away fear!Learn how that
condition may/may not impact the 6 areas:Medical/Dietary Education
SupportsSensory/Behavior SupportsPhysical Activity, Trips and
EventsSchool Absences and FatigueEmergency Planning
Specific Ideas for Applying GEMSS*Develop lesson plansPreparing
for meeting school staff or parentsCreating/amending the IEP or 504
planStaff trainingHelp planning snacks and lunch roomModifying
physical activity/educationDeveloping an emergency planAdvocating
with administrators
* Find this link on the home page at bottom
Additional Info on GEMSS siteESS and special education
servicesThe Chart for undiagnosed childrenTransition Planning -
Medical and EducationalAdditional resourcesParents Play Critical
Role in GEMSSReview and edit conditions keep it realGive feedback
on siteParent interviews for Meet a ChildParent AmbassadorsNH
Leadership Series- Action Group ( Partners in
Policymaking)DISSEMINATION!
Feedback Very Positive!This is a beautiful project, the
information being so easy to access and organized so neatly can be
incredibly informative not only for teachers, or parents, but other
children to understand the differences and needs of others without
being overly complicated or long to read.
I am so excited that you have this information written in a very
teacher-friendly language.
Thank you for this wonderful website! We are from Australia, and
this is the first website that we've found to provide any real and
practical advice about how to transition our son from preschool to
kindergarten. The information you've provided is going to go a long
way in helping him and his teachers to provide a sustainable and
nurturing school environment for him.
Live, from Bartlett NH!Presenting the multi-talented GEMSS
Action Group!
NH Leadership Series (Ann)NH Leadership Series 9 month program
for parents and people who have disabilities to develop their
leadership skills.Application available today deadline extended to
May 10.Contact any one of us for more infoThis year, formed a
partnership with GEMSSOutcome:GEMSS Action Group formedTremendous
success in getting the word out on GEMSS
Parent AmbassadorKim Tautenhan Daughter has 22 qPilot Program in
Spring 2014 spread in networks, schools in district, medical
circles, etc.
4 additional parentsFall, 2014Oct 15 Launch Day- Highest Day
views Ever!339 Views19 countriesAll likely from those 4
parents!Parent AmbassadorsPERSONALLARGER
COMMUNITYINNERCIRCLE&TEAMSNH Leadership Action GroupAs a
Parent: Carrie My daughters IEP processKaties one-on-one aidSpecial
Medical ServicesEducation and awareness within my family
Any questions please contact: Carrie Martin Duran
[email protected]
NH Leadership Action Group Local Presence and Promotion -
DeniseCommunity OutreachSchool DistrictsLocal Support GroupsSocial
MediaFriends &Family
Action Group Wider Community - LaurieSummary of how group spread
the word to the larger communitiesFAMILIES MAKE IT
HAPPEN!Contacting Local and State AgenciesState Family Support
CouncilLocal Family Support in Area AgenciesState School Nurses
AssociationDepartment of Education local and stateFuturePartners in
Health Local and state continuedNH Family VoicesLending
LibrariesOther state agenciesPIC
Live walk through the siteCondition audience picks!Demo on
siteExplore other features on siteIEP/IFSP/504 plan
CarrieFrequently Asked Questions LaurieResources- DeniseTransition
- LaurieHow parents can use GEMSS
Take info to doctorsTake to school/ESS teamMeet with school
nurseBring to other schools in your SAUAsk school to put on WEB
site.
Take aways: Article, magnetsQuestions?
Additional informationGEMSS
linkwww.gemmsforschools.orgExceptional Parent Magazine
articlehttp://www.negenetics.org/work-groups/education-outreach/products-and-publications
orhttps://www.negenetics.org/sites/default/files/libraries/dem_products/exceptional_parent_gemss_march2014.pdf
Postershttp://www.gemssforschools.org/default/promotional_materials
This project is supported by the New England Genetics
Collaborative, funded by Health Resources and Services
Administration, grant no. H46MC24093.
Contact InfoNew England Genetics CollaborativeInstitute on
Disability 603.862.3454University of New Hampshire
Ann Dillon, M.Ed, OTR/L, [email protected]
Karen Smith, Project Coordinator [email protected]
Contact Info: Family MembersNH Leadership Series GraduatesKim
Tatutenhan: [email protected]
Giguere:[email protected] Gray:
[email protected] Duran: [email protected]
Dayotis: [email protected] McSheehan:
[email protected] Andrews: [email protected]
Boddy-Snee: [email protected]
