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ENGAGING FAMILIES OF
CHILDREN WITH DISABILITIES:Systematically Planning to Create Positive
Experiences and Meet Expectations
OBJECTIVES:
Describe diverse family structures and cultures
Explore family experiences when discovering and
managing disability
Identify strategies for supporting families of
children with disabilities
POLL #1
ECOLOGICAL SYSTEMS THEORY
National/State Government
Local Community
Family
Child
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY CHARACTERISTICS
Family factors: family size, cultural background,
primary and secondary language, geographic
location, religious affiliation
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY CHARACTERISTICS
Family factors: family size, cultural background,
primary and secondary language, geographic
location, religious affiliation
Individual factors: health, education, personality,
coping styles
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY CHARACTERISTICS
Family factors: family size, cultural background,
primary and secondary language, geographic
location, religious affiliation
Individual factors: health, education, personality,
coping styles
Risk factors: poverty, substance abuse,
domestic/community violence
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY INTERACTIONS
Marital
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY INTERACTIONS
Marital
Parental
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY INTERACTIONS
Marital
Parental
Sibling
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY INTERACTIONS
Marital
Parental
Sibling
Extended family relationships
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
Economic
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
Economic
Daily care
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
Economic
Daily care
Self-esteem
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
Economic
Daily care
Self-esteem
Spiritual
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
Economic
Daily care
Self-esteem
Spiritual
Recreation
THE TURNBULL’S FAMILY SYSTEMS THEORY -
FAMILY FUNCTIONS
Affection
Socialization
Economic
Daily care
Self-esteem
Spiritual
Recreation
Education
THE TURNBULL’S FAMILY SYSTEMS THEORY –
FAMILY FUNCTIONING WITHIN LIFE STAGES
Typical developmental stages
Birth and early childhood (0 – 8)
Childhood (8 – 11)
Adolescence (11 – 21)
Adulthood (21 +)
And the transitions between each
CULTURAL CONSIDERATIONS
Definitions of “Nuclear Family”
Bruns, D. A. & Corso, R. (2001) Working with Culturally & Linguistically Diverse Families. Urbana-
Champaign, IL: Clearinghouse on Early Education and Parenting (CEEP).
CULTURAL CONSIDERATIONS
Definitions of “Nuclear Family”
Family leadership and decision making
Bruns, D. A. & Corso, R. (2001) Working with Culturally & Linguistically Diverse Families. Urbana-
Champaign, IL: Clearinghouse on Early Education and Parenting (CEEP).
CULTURAL CONSIDERATIONS
Definitions of “Nuclear Family”
Family leadership and decision making
Culturally responsive communication
Bruns, D. A. & Corso, R. (2001) Working with Culturally & Linguistically Diverse Families. Urbana-
Champaign, IL: Clearinghouse on Early Education and Parenting (CEEP).
CULTURAL CONSIDERATIONS
Definitions of “Nuclear Family”
Family leadership and decision making
Culturally responsive communication
Relationships with cultural community leaders
Bruns, D. A. & Corso, R. (2001) Working with Culturally & Linguistically Diverse Families. Urbana-
Champaign, IL: Clearinghouse on Early Education and Parenting (CEEP).
CULTURAL CONSIDERATIONS
Definitions of “Nuclear Family”
Family leadership and decision making
Culturally responsive communication
Relationships with cultural community leaders
Continuous reflection
Bruns, D. A. & Corso, R. (2001) Working with Culturally & Linguistically Diverse Families. Urbana-
Champaign, IL: Clearinghouse on Early Education and Parenting (CEEP).
Knowing
your own experiences
can help you identify
how to
adapt or accommodate
for the
different experiences
of others
POLL #2
SELF-ASSESSMENT RESOURCE
Promoting Cultural & Linguistic Competence:
Self-Assessment Checklist for Personnel
Providing Services and Supports in Early
Intervention and Early Childhood Settings (from
the National Center on Cultural Competence):
http://nccc.georgetown.edu/documents/ChecklistE
IEC.pdf
ONE FAMILIES’ STORY
WHEN YOU ENROLLED YOUR SON
IN THE PROGRAM, HOW DID THEY
LEARN ABOUT YOUR FAMILY?
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – ENROLLMENT
How do you:
Welcome all families
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – ENROLLMENT
How do you:
Welcome all families
Partner with special education partners during
enrollment
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – ENROLLMENT
How do you:
Welcome all families
Partner with special education partners during
enrollment
Gather relevant information
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – ENROLLMENT
How do you:
Welcome all families
Partner with special education partners during
enrollment
Gather relevant information
Use or implement screening and referral practices
(See Watch Me Thrive: Birth to Five)
WHAT WOULD HAVE BEEN THE BEST
WAY FOR PROGRAMS TO SHARE
THEIR OBSERVATIONS WITH YOU?
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – COMMUNICATION
How do you:
Maintain positive relationships with families
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – COMMUNICATION
How do you:
Maintain positive relationships with families
Build positive relationships with other providers
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – COMMUNICATION
How do you:
Maintain positive relationships with families
Build positive relationships with other providers
Keep families informed
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – COMMUNICATION
How do you:
Maintain positive relationships with families
Build positive relationships with other providers
Keep families informed
Stay informed of special education and related
services
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – COMMUNICATION
How do you:
Maintain positive relationships with families
Build positive relationships with other providers
Keep families informed
Stay informed of special education and related
services
Share information with other providers
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – COMMUNICATION
How do you:
Maintain positive relationships with families
Build positive relationships with other providers
Keep families informed
Stay informed of special education and related
services
Share information with other providers
Stay “on message”
WHAT KIND OF TRAINING AND
SUPPORT DO YOU THINK STAFF
NEEDED?
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – HUMAN RESOURCES
How do you:
Ensure staff:
Understand typical child development
Can identify developmental red flags
Know how to share information with families
Partner well with special education partners
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – HUMAN RESOURCES
How do you:
Ensure staff:
Understand typical child development
Can identify developmental red flags
Know how to share information with families
Partner well with special education partners
Provide ongoing support to enhance staff-family
relationships
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – HUMAN RESOURCES
How do you:
Ensure staff:
Understand typical child development
Can identify developmental red flags
Know how to share information with families
Partner well with special education partners
Provide ongoing support to enhance staff-family
relationships
Problem-solve challenges as they arise
ONCE THE PROGRAM SHARED
THEIR CONCERNS, HOW DID THEY
WORK WITH YOU TO PLAN TO
SUPPORT HIS NEEDS?
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – PLANNING
How do you:
Use existing information to plan for families of
children with disabilities
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – PLANNING
How do you:
Use existing information to plan for families of
children with disabilities
Make all family activities accessible
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – PLANNING
How do you:
Use existing information to plan for families of
children with disabilities
Make all family activities accessible
Individualize for families of children with
disabilities
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – PLANNING
How do you:
Use existing information to plan for families of
children with disabilities
Make all family activities accessible
Individualize for families of children with
disabilities
Collaborate with partners to address
comprehensive needs and reduce duplication
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – PLANNING
How do you:
Use existing information to plan for families of
children with disabilities
Make all family activities accessible
Individualize for families of children with
disabilities
Collaborate with partners to address
comprehensive needs and reduce duplication
Represent the diversity of family cultures and
structures in planning
WHAT KIND OF INFORMATION
DID THEY COLLECT ABOUT YOUR
SON’S DEVELOPMENT?
DO YOU KNOW HOW THEY USED
IT?
DID YOU HAVE ACCESS TO IT?
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – DOCUMENTATION/RECORD-
KEEPING
How do you:
Obtain and record parental/guardian consent
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – DOCUMENTATION/RECORD-
KEEPING
How do you:
Obtain and record parental/guardian consent
Collect information from families and partners
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – DOCUMENTATION/RECORD-
KEEPING
How do you:
Obtain and record parental/guardian consent
Collect information from families and partners
Track and maintain relevant information
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – DOCUMENTATION/RECORD-
KEEPING
How do you:
Obtain and record parental/guardian consent
Collect information from families and partners
Track and maintain relevant information
Protect families’ confidentiality
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – DOCUMENTATION/RECORD-
KEEPING
How do you:
Obtain and record parental/guardian consent
Collect information from families and partners
Track and maintain relevant information
Protect families’ confidentiality
Link your information with your partners
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – DOCUMENTATION/RECORD-
KEEPING
How do you:
Obtain and record parental/guardian consent
Collect information from families and partners
Track and maintain relevant information
Protect families’ confidentiality
Link your information with your partners
Provide families with information about how you
collect, track, and maintain their information
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – MONITORING/PROGRAM
REVIEW
How do you:
Review the level of family engagement
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – MONITORING/PROGRAM
REVIEW
How do you:
Review the level of family engagement
Engage families in evaluation/assessment
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – MONITORING/PROGRAM
REVIEW
How do you:
Review the level of family engagement
Engage families in evaluation/assessment
Determine success in meeting family’s needs
SYSTEMIC APPROACHES TO FAMILY
ENGAGEMENT – MONITORING/PROGRAM
REVIEW
How do you:
Review the level of family engagement
Engage families in evaluation/assessment
Determine success in meeting family’s needs
Use monitoring or review information to make
programmatic changes
OUR SON TODAY AT AGE 15
Poor eye contact
People confuse him
Lacks organization
BUT…
Best big brother
3.9 GPA, all honors
Great friend
Loving and helpful
MOVING FROM LEARNING AND
UNDERSTANDING TO PLANNING
Understanding Families'
Experiences
Planning to Meet Families’ Needs
Gathering Information
SIDE NOTE:
THE BENEFITS OF FORMAL WRITTEN
AGREEMENTS
Mechanism for
relationship building
Supports
organizations in
blending approaches
Streamlines planned
activities
Works out the “kinks”
PULLING SYSTEMS TOGETHER FOR
INCLUSIVE ENVIRONMENTS
Enrollment
Communication
Human Resources
Planning
Record-Keeping
Monitoring/Program Review
NOW WHAT?
Ask families to get involved
NOW WHAT?
Ask families to get involved
Review existing information
NOW WHAT?
Ask families to get involved
Review existing information
Break things down into actionable tasks
NOW WHAT?
Ask families to get involved
Review existing information
Break things down into actionable tasks
Work step-by-step
NOW WHAT?
Ask families to get involved
Review existing information
Break things down into actionable tasks
Work step-by-step
Collaborate with partners and community
advocates
NOW WHAT?
Ask families to get involved
Review existing information
Break things down into actionable tasks
Work step-by-step
Collaborate with partners and community
advocates
Prioritize what matters most to your program
POLL #3
RESOURCES
Early Childhood News Update
https://earlychildhoodnewsupdate.wordpress.com
The Beach Center on Family and Disability
http://www.beachcenter.org/
Center for Parent Information and Resources
http://www.parentcenterhub.org
Harvard Family Research Center
http://www.hfrp.org
QUESTIONS
CONTACT INFORMATION
Amanda Schwartz, Ph.D.
Amanda Schwartz Consulting
