Empowering Patients

Tools and Initiatives

November 20, 2013

A Quick Review

• Meaningful Use• Interoperability• Patient Generated Data

A Few Statistics• In 2011, 10% of the eligible

professionals were awarded MU incentive payments

• In 2012, 31% of the eligible professionals were awarded MU incentive payments

• Only 10% of the adult US population currently uses a PHR

Barriers to Full Participation• Lack of full

interoperability• Misunderstanding of

the value of having a consolidated health record

• Insufficient interpretive guides

• Lack of visualization tools

– the state of having access to more types of information and being able to process it quicklyand efficiently – canmean the difference between profit andloss or even life and death.”

“Information superiority –

How do We Provide Information Superiority?

• Simplify Presentation:– Easy to consume – Easy to visualize – Ability to understand metrics and

action items intuitively• Targeted to audience– Based on role– Drill-down capability

• Interactive– Highlight important data– Identify the purpose of the data

How Can We Deliver It?Health & Wellness Platform–Open source– EHR Independent– Customizable– Patient controlled role-based

delegation– Special purpose modules• Chronic conditions• Rare diseases• Diet planning• Recovery tracking

Wish List• BlueButton -- seamless import/export of

patient clinical data• OpenInfobutton -- additional information

and translation of medical terminology• Billing and Payment Information• Symptom Tracker with graphing function• Medication reminder and compliance

tracker• Customizable graphic visualization of vital

signs • Appointment scheduling, tracking, and

reminders• Personal genetic data

What else do you want?

Ed Fennell:An expert – through personal experience – on getting diagnoses and treatments for rare diseases. An opportunity to take the experiencesof an engaged patient advocate and turnthem into real helpfor desperate peoplein collaboration withother OSEHRA members.

Next Week