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Ellen F. Heineman, Ph.D.National Cancer InstituteEpidemiology & Genetics Research Program
The GIS for the Long Island Breast Cancer Study Project
The northeastern United States has had high rates of breast cancer
The LIBCSP focuses on Long Island - Nassau and Suffolk counties in New York
Long Island Breast Cancer Study Project (LIBCSP)
• Part of the overall research approach of the National Institutes of Health
• Mandated by Public Law 103-43
• Funded and coordinated by NCI and NIEHS
• Consists of more than 10 research studies
• Includes a GIS
Long Island GIS Objectives
• Develop an effective tool for investigating environmental factors that may contribute to breast cancer
• Help share health related and environmental information with the community
What questions can be addressed?• What are the rates of breast cancer in the
community (overall, in smaller areas)?• Can we identify clusters of cases, or areas
with significantly higher rates?• Where might exposures of interest (to
scientists, to the community) come from?• Are there correlations -- spatial
relationships -- between disease and potential exposures?
• More sophisticated: Are potential environmental exposures linked with breast cancer, taking other factors into account?
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Islip
Brookhaven
Smithtown
Riverhead
Babylon
Poospatuck
Long Island Sound
Great South BayExample: Are disease rates “near” waste sites the same as in areas outside the buffers?
New York
New Jersey
Connecticut
Massachusetts
Pennsylvania
RhodeIsland
Vermont New Hampshire
Ulster
Pike
Suffolk
Sullivan
Orange
Berkshire
Litchfield
Ocean
Dutchess
Greene
Fairfield
Sussex
Burlington
Morris
Columbia
Hampden
New London
Tolland
New Haven
Warren
Monmouth
Hunterdon
Westchester
Nassau
Middlesex
Bergen
Somerset
Putnam
Mercer
Washington
Passaic
Essex
Rockland
Union
Queens
Kings
Hudson
Bronx
Richmond
New York
Middlesex
Hartford
0 50 100 Miles
100 Mile Radius CountiesBuffer CountiesNassau & Suffolk Counties
Geographic extent of the GIS
Datasets will include
• Geospatial• Demographic • Health• Environment
– Federal – State– County– Private
Geospatial
• Base Maps: – Cadastral Data (tax lots, parcels)– Political Boundaries– Roads– Railroads– Hydrology (water supply, rivers,
streams)– Aerial Photography and Satellite
Imagery
Demographic• Census Data:
– Counts of the population– Descriptive information about
individuals Age Race
Gender Income groupings
– Descriptive information about householdsType and age of housingRural or urban
• National Nutritional Health and Lifestyle Survey
Health
• Medical outcomes– State Cancer Registry– Medicare– Hospital discharges
• Medical facilities
Environmental
• Land use and land cover
• Utilities (electrical, gas, water…)
• Traffic volume
• Hazardous materials: usage, storage, and disposal
• Pesticide / chemical use or contamination
• Industrial release of chemicals to air,
water, and soil continued…
Environmental, continued
• Air quality monitoring results
• Drinking water analysis (pesticides, metals, volatile organic compounds)
• Weather and climate information
• Radiation information
On the web at… www.healthgis-li.com
• Progress on development of the GIS• Supplementary info, links• Town meetings• Future: maps and information for public
www.healthgis-li.com
Important issues• Data are imperfect
– Examples: addresses, sparse data, data collected for other purposes
– Potential exposure not necessarily actual exposure
– Time frame and latency of cancer– Substitutions and additions may be
recommended as we go along
• The website will not include software• The eye is not a good analytic tool• Confidentiality
Unique aspects of the GIS for the LIBCSP
• Concerted investment of effort and funds to integrate GIS into an epidemiologic study of breast cancer
• Community input and access• Systematic attempt to include high
quality data, comprehensive metadata• A prototype and resource for future
studies