Edinburgh and East Lothian Directory of Brain Injury Servicesdev-art.co.uk/~headwayel/wp-content/uploads/2014/08/CH93-B... · Lothian Directory of Brain Injury Services ... SANE 0845

Edinburgh and East Lothian Directory of Brain Injury Services

Headway East LothianScottish Charity 0035535Affiliated to headway-the brain injury association the brain injury association

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Acknowledgement

Headway East Lothian would like to thank all those who contributed to the development of this directory of services. In particular the staff at Irwin Mitchell Scotland and Elaine Russell for compiling the information contained in this booklet and to Robert Dalrymple, Headway East Lothian service user, for the cover design. We would also like to thank Irwin Mitchell for funding the printing and distribution of this directory.

Headway East Lothian has nearly 10 years experience supporting individuals who have sustained a brain injury, and their carers, across the region. Headway UK has been supporting people throughout the country for over 30 years. We understand how difficult it can be, especially in the initial stages following an injury/illness, for people to find out about and access the support they require in their local community. We hope this directory will assist individuals with acquired brain injury, carers and professionals access the services they need.

Further information regarding Headway East Lothian services can be found at www.headway.org.uk. Alternatively, please contact:

Headway East Lothian

Bleachingield Centre

Countess Crescent

Dunbar

East Lothian

EH42 1DX

Joyce Cattanach

Development Officer

[email protected]

07895193974

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National Helplines SPECIFIC CONDITIONS

Afasic UK Helpline 0845 3 55 55 77 Alzheimer Scotland 0808 808 3000 Brain and Spinal Injury Charity(BASIC) 0870 750 0000 British Tinnitus Association 0800 018 0527 Brain and Spine Foundation 0808 808 1000 Chest Heart and Stroke Line 0845 077 6000 Child Brain Injury Trust 0303 303 2248 Dementia Helpline 0808 808 3000 Different Strokes 0845 130 7172 Encephalitis Society 01653 699599 Epilepsy Scotland 0808 800 2200 Headway the brain injury association 0808 800 2244 HemiHelp Hemiplegia helpline 0845 123 2372 MenScot (Meningitis Association Scotland) 0141 554 6680 Royal National Institute for Deaf People 0808 808 0123 txt 0808 808 9000 SAMH Scottish Association for Mental Health 0800 917 3466 Speakability 0808 808 9572 The Meningitis Trust 0808 801 0388 The Pain Association 0800 783 6059 The Stroke Association 0303 3033 100

GENERAL SUPPORT LINES Breathing Space 0800 838 587

Childline Scotland 0800 11 11 Cruse Bereavement Care 0844 477 9400 Cerebra 0800 328 11 59 SANE 0845 767 8000 Scottish Domestic Abuse Helpline 0800 027 1234 Sudden Trauma Information Service Helpline 0845 367 0998 The Samaritans 0141 248 4888

GENERAL INFORMATION AND ADVICE Citizens Advice Bureau 0141 552 5556 Carers Information and Support Line 0141 353 6504 Carr Gomm (Supporting people and communities) 0300 666 3030 Contact a Family 0808 808 3555 Edinburgh Western General Hospital 0131 537 1000 ELCAP (community living support) 01875 814 114 Enquire 0845 123 2303 Mental Welfare Commission 0800 389 6809 NHS 24 08454 24 24 24 SAFFA Forces Help 0800 731 4880 Scottish Recovery Network (SRN) 0141 240 7790 Shelter (Housing Advice) 0808 800 4444

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Headway East Lothian

Directory of

Brain Injury Services 2013

This booklet is split into four sections. These are:

1. Hospital Based Services for People with Brain Injury

...............Page 5

2. Community Based Services for People with Brain Injury

...............Page 9

3. Brain Injury Case Managers

...............Page 24

4. Child Specific Services

……………Page 31

5. Other Services which you may find helpful

...............Page 40

Within each section the different entries are alphabetical

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Hospital Based Services for people with Brain Injury

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Charles Bell Pavilion, Astley Ainslie Hospital

Aims • Supported accommodation providing rehabilitation to people with brain injuries and

neurological illnesses.

Main Activities and Services

• The Charles Bell pavilion is the hospital base for neuro-‐rehabilitation in NHS Lothian. • The Unit has 36 beds ( 20 are allocated with people who have had a brain injury, 16 are

allocated to people with other neurological illnesses such as Multiple Sclerosis, brain tumours or other degenerative neurological conditions.)

• Patients are mainly between the ages of 16 – 67 although services can be offered to older patients were appropriate.

• There are two consultants responsible for the patients in the unit. • The unit unfortunately cannot provide respite, continuing care or relatives’

accommodation.

Location and Contact Details Opening Hours

Charles Bell Pavilion Astley Ainslie Hospital 133 Grange Loan Edinburgh EH9 2HL Telephone: 0131 537 9000

N/A

How to access services

Referrals are made by clinicians in writing to the consultants at the unit. Individuals are assessed by the consultants to assure that the service is suitable for their needs.

Cost Who is this service open to?

None Adult patients (16 years and over).

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The Huntercombe Services – Gilmerton Neurodisability Unit

Aims To provide nursing and rehabilitation to adults with complex neurological conditions who have low, medium or high dependency needs.

Main Activities and Services • Programmes are tailored specifically to meet the needs of each individual to help them

achieve their goals, reduce disability and improve their quality of life. • Qualified nursing care is provided 24 hours a day and care is planned in consultation with

the individual, their family and their doctor. • Provides a structured programme of recreational and daily living skills to meet the

individual’s needs and choices. • Clients are encouraged and assisted to visit local facilities and make wide use of public

services available • The service is supported by specialists such as the community speech and language

therapist, Huntingtons and Parkinsons nurses, tissue viability nurses and dieticians. • On-‐site physiotherapist • Teams have access to expertise of consultant advisor for Neurodisability & Rehabilitation

Services, Professor Mike Barnes • Clients are registered locally with a General Practitioner and are able to access

community resources such as dentists, opticians and chiropodists. • Also provide continuing, short-‐term or respite care.

Location and Contact Details Opening Hours The Huntercombe Services – Gilmerton Neurodisability Unit 9 Moredunvale Road Moredun Edinburgh EH17 7QU Tel: 0131 672 3337 Fax: 0131 672 3335 Email: [email protected] Website: www.huntercombe.com

This is a 24 hour facility. The office is open: Monday to Friday 9-‐5pm

How to access services Referrals are made through the NHS.

Cost Who is this service open to? The costs for NHS patients are met by the Health Board. Other referrals are considered individually.

Adults aged 18 years and over who are medically stable, with a range of conditions including complex neurodisability, neurological conditions, acquired brain injuries and external feeding.

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The Robert Fergusson Unit -‐ Scottish Neurobehavioural Rehabilitation Service

Aims

• The Robert Fergusson Unit is a very specialist national service, which provides comprehensive multidisciplinary assessment and rehabilitation for patients with complex problems following Acquired Brain Injury.


• The unit specialises in the assessment and treatment of significant behavioural problems and other neuropsychiatric disorders, which may be sequelae of Acquired Brain Injury.

• The multidisciplinary team also assess and treat other common sequelae of Acquired Brain Injury, including neurological, psychological, physical, cognitive and communication difficulties.

• The medical team consists of two Consultant Neuropsychiatrists (one of whom has specialist training in Drug/Alcohol Addiction) and an Associate Specialist in Neuropsychiatry.

• The multidisciplinary team includes clinical psychology, speech & language therapy, occupational therapy, physiotherapy, social work and a skilled nursing team.

• The unit is an inpatient service, which has 19 beds and accepts both male and female patients.


Robert Fergusson Unit,

Royal Edinburgh Hospital,

Astley Ainsley Hospital

Morningside Terrace,

Edinburgh EH10 5HF

Telephone: 0131 537 6000 (main hospital switchboard)

All referrals/enquiries should be directed to Dr Lorna Langrell (Clinical Manager)

Tel: 0131 5376810 / 5376857

This is a 24 hour unit, but the office

hours are 8.30am-‐4.30pm


The referral to use this service would come from within the NHS. Most of the referrals to the service come from within Scotland but some referrals are also accepted from England and Ireland.


Funding for this specialist service comes from each referring NHS Health Board and is agreed on a case by case basis.

People with a brain injury and behavioural problems in the UK.

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Community Based Services for people with Brain Injury

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Ability Centre Support Service (ACSS) Aims • Provides a range of services and support, both within the centre and in the community, to people with physical disability living in West Lothian.

• Mission: To provide a flexible, responsive service where the need of the service user is the impetus for continuous improvement.

• Vision: individuals supported by the Ability Centre Support Services will be empowered to be as independent and included in their own community as possible.

• Values: The service will value each individual enabling them to make choices.


• Provides a centre of excellence for adults with a physical disability. • Within the centre each service user has an individual programme working towards their agreed

goals and outcomes. This personalised approach supports service users to recognise and realise their full potential.

• Work experience opportunities and pre employability support is offered through the B4 and On2 Work element of service

• Through the Brokerage Service, individuals are supported to try a range of educational, leisure or volunteering opportunities in their own local communities.

Location and Contact Details Opening Hours West Lothian Ability Centre Carmondean Centre Road Livingston EH54 8PT

Marlyn Young, Manager Tel: 01506-‐774066 E-‐mail: [email protected]

Website: www.westlothianchcp.org.uk/what/adults/ability_centre/

Drop into the centre for refreshments and an informal chat.

9:30am – 3:00pm Monday -‐ Friday


Contact Marlyn Young

Tel: 01506-‐774066

E-‐mail: [email protected]

Drop into centre.

Cost Who is this service open to? N/A People with physical disability living in West Lothian.

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Brain and Spine Foundation

Aims

The Brain & Foundation is a charity committed to providing reliable information and support to people living with neurological conditions across the UK.


• The website provides information on Brain and Spine conditions, how to access neurological services, advice on adjusting to life with a neurological condition and health and lifestyle tips.

• There is a helpline, where neuroscience nurses will answer questions and provide emotional support and help you understand neurological conditions, medical jargon and medical notes.

• There are also resources for children on the website about brain injury. • The website also contains details of fundraising events, news and research.


Brain & Spine Helpline: 0808 808 1000

(Talk to a nurse)

Email: [email protected]

Website: www.brainandspine.org.uk

Monday to Thursday 9am to 2pm

Friday 9am to 1pm


Using the contact details provided


None Patients, carers and health professionals.

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British Red Cross Aims We are a volunteer-‐led humanitarian organisation that helps people in crisis, whoever and wherever they are and operate a variety of different services throughout the East of Scotland.


Support at home • We provide short-‐term care and support in the home for people after an accident or illness,

giving them the confidence to continue their daily lives. This service can be provided following a stay in hospital or to prevent unnecessary hospital admissions.

Transport Service • We provide door-‐to-‐door transport for people who cannot get about easily, restoring their

freedom and independence. Medical Equipment • We provide short-‐term loans of medical equipment, such as wheelchairs, for people with a

disability or illness.

Location and Contact Details Opening Hours East Scotland West Point House 69 North Gyle Terrace Edinburgh EH12 8JY Telephone: 0131 338 5700

N/A


Please contact us on the details provided

Cost Who is this service open to? The Transport Service normally asks for a contribution to costs, based on mileage, but no-‐one will be refused a service because they cannot pay. Equipment is usually available within 24 hours in an emergency and is loaned free of charge, although a refundable deposit may be requested.

People in need

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Community Rehabilitation and Brain Injury Service (CRABIS) Aims • Provides community based specialist assessment and rehabilitation for people over the age of 16 years who have either a physical disability and / or an acquired brain injury.


We can work with you to improve your abilities in the following areas: • Activities of Daily Living (e.g. personal care, household tasks) • Mobility • Communication • Cognitive (i.e. memory, problem solving) • Emotional (anxiety, depression, adjustment) • Social Activity • Leisure and work • Community Living (e.g. money management, shopping skills, travel)

• A • We

Location and Contact Details Opening Hours CRABIS is based within the Ability Centre, Carmondean, Carmondean Centre Road, Livingston, EH54 8PT Manager’s Contact Details: Patricia Donald, Therapies Manager Tel: 01506 281009 Mobile: 07713 091 916 Fax: 01506 412481 Service Contact Details: [email protected], Tel: 01506 774046 Fax: 01506 774049 Website -‐ www.westlothianchcp.org.uk/what/adults/crabis/

Visits by the team will generally be carried out in your own home but on occasions may take place elsewhere.

Mon – Thurs 8.30 – 5.00pm / Fri 8.30 – 3.00pm / An answer phone is available outwith these hours.

How to access services Referrals to the service can be made by a health or social care professional who is involved with you.


No cost You may be eligible for referral to the service if

you: • Are over the age of 16 years • Have an acquired neurological

condition, such as stroke, acquired brain injury, MS, MND, etc

• Need the services of 2 or more therapies i.e. Speech and Language Therapy, Physiotherapy, Occupational Therapy, and Psychology.

• However we will accept referrals for people with an acquired brain injury who need 1 or more therapies.

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Cornerstone

Aims

Cornerstone is a Scottish charity, social enterprise and provider of care and support services for adults, children and young people with disabilities and other support needs throughout Scotland.


• Cornerstone enables people with disabilities to enjoy independent and valued lives. • All services are person-‐centred to meet the needs of each individual. Our services includes:

o Adult Placement and Older People’s Services o Children’s and Transition Services o Community Support & Homecare o Supported Living & Respite Services o Community Justice Services o Mental Health Services o Employment & Training Services o Direct Payments Support Service


East Regional Office: 22 City Quay Camperdown Street Dundee DD1 3JA Tel: 01382 220 238/248 Fax: 01382 220249 Website: www.cornerstone.org.uk


East Lothian Office: 9-‐11 Lodge Street Haddington East Lothian EH41 3DX Tel: 01620825976

9-‐ 5 Monday to Friday


Phone/email us.


There may a charge for some services Adults, children and young people

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Different Strokes Aims • To provide activity groups for younger people who have had a stroke.


• Different Strokes is a national charity run by and for young stroke survivors (under 60’s). • It publishes a regular newsletter, runs young stroke groups, and offers information, support

and advice for the younger person including fitness, employment issues, further education and training schemes, counselling, rights and benefits etc.

• In Edinburgh a regular exercise group runs in Haddington.

Location and Contact Details Opening Hours Contact for details

Tel: 07889267595


Website: www.differentstrokes.co.uk

Opening Hours:

Last Tuesday of every month


Contact Jordan Hepburn.

Details provided

Cost Who is this service open to? N/A Young stroke survivors and their families

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Edinburgh Headway Group Aims Edinburgh Headway Group(EHG) provide a range of specialist services, which are specifically tailored to meet the individual needs of people who have suffered a brain injury and their carers with a clear focus on improving everyday functioning. Our main aims and objectives are to: • Provide rehabilitative services for adults who have suffered certain forms of

brain injury which were sudden in onset and occurred after birth; • Deliver care and support for such persons, their relatives and carers; • Advance the education of the public in all aspects of head injury and the

consequences thereof.


• Independent living skills – cookery classes, computer skills; • Physical activity fitness classes -‐ Zumba, Tai Chai; Walking Groups; • One to one gym programmes-‐ providing personalised rehabilitative exercise

programmes; • Art Therapy -‐ offering members the opportunity for expression and

communication; • Hydrotherapy -‐ proven to be a highly effective form of natural therapy to

control pain management and alleviate tension; • Social opportunities -‐ to develop both social and cognitive skills e.g. memory

games, bingo, quizzes, music group, arts and crafts; • Lifestyle Management Programmes -‐ to help members gain control over their

situation by making use of, and building, coping and recovery strategies; • Advocacy -‐ to assist members and carers in times of need; • Complementary Therapies-‐ to reduce stress, tension and anxiety; • Respite -‐providing carers with a valuable short break from caring; • Befriending -‐ offering one to one assistance to help members return to

community living with the aid of trained and matched volunteers. • Information -‐ for carers, families and other professionals.

Location and Contact Details Opening Hours Edinburgh Headway Group Astley Ainslie Hospital Canaan Lane EH9 2HL

Tel: 0131 537 9116 [email protected] www.edinburghheadway.org.uk

9:00am – 4:00pm

Monday -‐ Thursday


Phone: 0131 537 9117


Cost Who is this service open to? Contact EHG for further details.

Some activities

Adults with Acquired Brain Injuries

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Enable Scotland Aims • We ensure that people who have learning disabilities have the same choices and opportunities in life as everyone else.


We provide a range of flexible services for adults including:

• Personal care and independence • Personal support workers • Personalisation • Employment services • Leisure and social activities • Best Buddies Befriending Project • Sex and Relationship Forum and Courses • Support with planning for the future • Links to Midlothian Local Area Coordinators (LAC) Location and Contact Details Opening Hours

Edinburgh & Lothians Support Services

First Floor

1 Wester Shawfair

Danderhall

Midlothian

EH22 1FD

Tel: 0300 0200 101

Monday – Friday

9:00am – 5:00pm


Contact ENABLE Direct on 0300 0200 101

Cost Who is this service open to? Services vary in cost on a case-‐by-‐case basis. Children and adults with Learning Disabilities

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Epilepsy Scotland Aims • Epilepsy Scotland works with people living with epilepsy to ensure that their voice is heard. • We fight discrimination and stigma experienced by people with epilepsy, whilst raising awareness and influencing policy. • We work to ensure that appropriate services and support are available.


• National helpline providing free and confidential support and information to people affected by epilepsy across Scotland

• Support groups in Edinburgh (children and adults) • Comprehensive information source, including professional training and awareness

programmes • Lighthouse Support Service in Edinburgh, the Lothians for people aged 5 – 60, who require

support because they have a disability

Location and Contact Details Opening Hours Epilepsy Scotland helpline

Free and confidential

0808 800 2200


Edinburgh support groups

Orchard Brae House, Queensferry Road, Edinburgh

Tel: Michael Adair -‐ 0131 226 5458 Email: [email protected]

Epilepsy Scotland Orchard Brae House 30 Queensferry Road Edinburgh EH4 2HG Telephone: 0131 226 5458 FAX: 0131 343 2409 Email: [email protected] Helpline: 0808 800 2200 Lighthouse Support Service Telephone: 0131 226 5458 Email: [email protected]

Contact for meeting times.

Helpline: Mon-‐Fri 10am-‐4:30pm


Contact Epilepsy Scotland.

Cost Who is this service open to? No cost for support services (except Lighthouse Support Service)

Adults, parents and young people.

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Headway East Lothian Aims To promote understanding of all aspects of brain injury and to provide information, support and services to people with brain injury, their families and carers.

Main Activities and Services Headway East Lothian run activity days in East Lothian in the following locations: Mussleburgh East Community Learning Centre (MECA), Haddington Road, Musselburgh, EH21 8JJ– Activities, Exercise, Relaxation, café for lunch or snack and carers meetings Doughty Centre, Herdmanflat Hospital, Aberlady Road, Haddington, EH41 3BU– a chat with tea/coffee, activities, speakers, entertainment Hallhill Healthy Living Centre, Kellie Road, Dunbar, EH42 1RF – Activities, speakers, café etc Outreach and advocacy service; Monthly outings to places of interest

Location and Contact Details Opening Hours Joyce Cattanach C/o Bleachingfield Centre Countess Crescent Dunbar East Lothian EH42 1DX Telephone: 01875 814735 Text: 07895 193974 Email: [email protected] Website: www.headway.org.uk

Musselburgh : Monday 1-‐4pm Haddington : Wednesday 6.30-‐8.30pm Dunbar : Thursday 12.00 – 2.00pm


Phone or email us

Cost Who is this service open to? £10 annual membership

Contact for further details

Adults with a brain injury and their carers

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KICC Active Lothian

Aims

Improving quality of life for people living with long term conditions by enabling self-‐management through customised exercise classes in the community.


Exercise is a great way to self-‐manage a long term health conditions and at KICC Active Lothian we offer yoga, Pilates and Tai Chi classes which are customised for each participant. Classes are gentle and can be done fully seated or with some standing or mat work if preferred.

Tutors all have experience and/or further training in working with long term health conditions and can customize exercises to each participants needs.

Classes are run in the community throughout the Lothians.


Classes take place throughout the Lothians, please check the website for details www.kiccactive.org.uk KICC Active are a working partnership between KICC and MS Therapy Centre Lothian and are based at: MSTC Lothian 40C Swanfield Bonnington Rd Edinburgh EH6 5RX

Various Times, please check the website www.kiccactive.org.uk for the most up to date info


Please contact KICC Active Lothian co-‐ordinator Joanna on:

[email protected]

07436102726

Costs Who is this service open to?

Classes are usually £5 but may vary Anyone living with a long term health condition

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Mental Health Services -‐ West Lothian Community Health and Care Partnership

Aims

The West Lothian Community Health and Care Partnership works to bring community based health and social care services closer together and deliver an integrated and high quality service. The partnership manages a substantial range of NHS and council services such as mental health. They work closely with voluntary organisations to provide a wide range of community services.


• Mental Health services in West Lothian cover many aspects of care, from promoting better mental health in the community through to providing in-‐patient care for people with severe illness.

• The first point of call for people experiencing mental health problems is usually their own GP.

• There are mental health support services located throughout West Lothian including community day services and inpatient services within St John's hospital.

-‐ Adults with incapacity team -‐ Information and support for carers -‐ Dietetics and nutrition -‐ Mental health advocacy project (west Lothian) -‐ Mental Health resource centre -‐ Mental Health facilities

Location and Contact Details Opening Hours:

Director, West Lothian Community Health & Care Partnership,

West Lothian Civic Centre,

Howden South Road, Livingston,

West Lothian EH54 6FF

Telephone CHCP enquiry line: 01506 282930


Website: www.westlothianchcp.org.uk/

Generally Monday-‐Friday 9am -‐ 4pm excluding public holidays


Contact us


None Individuals who require mental health support

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Scottish Head Injury Forum (SHIF) Aims

• To support people with an acquired brain injury, their families and carers through the provision of education and information

• To increase knowledge of the effects of acquired brain injury amongst professionals, policy makers, providers and purchasers


• SHIF is a registered Scottish Charity, founded in 1993. It is a national umbrella organisation representing the interests of survivors of brain injuries, their families, and those who work with them.

• The main focus of SHIF’s work has been education, and each year it organises three one-‐day conferences aimed at a largely non-‐specialist audience of health, local authority, and third sector professionals who work with brain injured people and their families as part of a wider remit.

Location and Contact Details Opening Hours S.H.I.F. C/o Charles Bell Pavilion Astley Ainslie Hospital 133 Grange Loan Edinburgh EH9 2HL Email [email protected] Website: www.shif.org.uk

N/A


Join our mailing list and/or become a member of SHIF.

Members get reduced rates at the 3 conferences that we hold each year. Membership is January to December

Contact us by e-‐mail.

Cost Who is this service open to? Costs of attending a conference vary. The conferences are open to all but they are

aimed at a largely non-‐specialist audience of health, local authority, and third sector professionals who work with brain injured people and their families as part of a wider remit.

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Visualise

Aims

To assist multi disabled visually impaired adults to fulfill their maximum physical, intellectual, emotional and social potential by encouraging independence, continuing learning and stimulation and community integration.

The underlying principle governing all aspects of the services we provide is to guarantee the dignity and quality of life of each individual.


Visualise provides a range of services tailored towards the needs of individual service users.

Services

• Supported Living – Housing Support/Care at Home • Support – Day service/Outreach

Activities

• Music and Sound Therapy • Aromatherapy • Fitness/Physiotherapy • Communication Support/Signing • Art/Craft

Any number of additional activities may be offered to an individual service user including food preparation, personal hygiene skills and beauty treatment -‐ really any activity that is of interest to the individual and incorporates the general aims of the support service.


Visualise Scotland Norton Park 57 Albion Road Edinburgh EH7 5QY Tel: 0131 475 2337 / 0131 475 2310 Fax: 0131 475 2338


Varies with each service/activity

Norton Park Head Office:

Mon-‐ Fri 9am-‐5pm


On referral (Contact for further information)


Varies with each service – contact for further information

Multi disabled visually impaired individuals

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Brain Injury Case Managers

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A Chance For Life

Aims

A Chance For Life helps adults and children recover skills lost as a result of brain injury and other disabling conditions. Our clinical expertise and determination to provide an effective and efficient service gives every client and family the best possible chance of leading a meaningful and rewarding life.


Services primarily fall in the category of health care, although occupational therapy and case management intervention often encompasses a variety of needs such as social care, physical and mental health, recreation, education and employment.

Case Management – We provide a case management report to outline the rehabilitation required for the client along with comprehensive risk assessments, case management plans and if required the direct recruitment and day to day management of support workers.

Occupational Therapy – We provide an initial assessment followed by an individualised plan detailing individual goals. Our Occupational Therapists are skilled in assessing for equipment and adaptations, vehicle adaptations and specialised splinting.

Medico Legal -‐ Initial Needs Assessments and Care Expert & Expert Occupational Therapy Reports.

Specialist Training – Our highly skilled clinicians can provide Medication Administration and Acquired Brain Injury Training.


We provide services across the North of England Scotland and the Isle of Man. Our head office is located in Penrith, Cumbria. A Chance for Life Ltd 5 Hobson Court Gillan Way Penrith Business Park Penrith CA11 9GQ Tel: 01768 891709 Email: [email protected] Web: www.achanceforlife.co.uk

Office Hours are Monday – Friday 9am – 5pm with on call emergency cover Saturday and Sunday 9am – 5pm


Referrals can be made in writing or by emailing our office in Penrith.


A full breakdown of our charges are detailed in our terms and conditions.

Adults and Children who have lost skills as a result of a brain injury or other disabling conditions

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Anne Cossar and Associates Ltd

Aims

The aim of Anne Cossar and Associates Ltd Case Management Services is to assist clients with complex needs to live as independently as possible and to have a full and interesting life, within the limits of their abilities.


We believe that, for the vast majority of people with complex needs, staying in their own home is the best environment for them to receive support and care and to continue their rehabilitation.

To achieve this, our Case Managers (who are all registered Occupational Therapists) work with clients to source and monitor registered Care Providers that can provide appropriately trained and experiences carers, support workers and /or nurses to meet our clients particular needs.

Most importantly we assist clients to continue their rehabilitation or maintain their skills and achieve their goals. To do this your Case Manager may recommend, and obtain your agreement to source, additional therapeutic services (for example, physiotherapy, occupational therapy or speech and language therapy).

We also ensure clients have support to participate in appropriate activities to enhance their quality of life, whether their be recreational, vocational or educational activity at home or in the community.

Anne Cossar and Associates Ltd also provide medico legal reports in connection with litigation claims. Professional videos to support our medico legal reports are also available


Redside Farmhouse North Berwick EH39 5PE 01620 895303 [email protected] [email protected]

Office Hours are 9am – 5pm, Monday to Friday but we can provide on call services out of these hours by negotiation.


Clients can self refer or be referred by guardians, solicitors or health professionals.


Costs on application Children and adults with cerebral palsy, brain injury, complex orthopaedic injury or spinal injury.

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Case Management Society UK (CMS UK)/British Association of Brain Injury Case Managers (BABICM)

Aims

Case Management Society (CMS UK) is a non-‐profit association of case managers, committed to the delivery of case management through standards of best practice while promoting the individual and collective development of case management throughout the UK.

British Association of Brain Injury Case Managers (BABICM) represents the professional interests and concerns of case managers who work with those who have suffered an acquired brain injury or other complex condition which requires co-‐ordinated rehabilitation, care and support


To define and develop a professional framework for Case Managers

To establish and regulate professional standards and a code of ethics for quality control and best practice

To provide and promote training and education for case managers and others working in the field of brain injury.

To establish and maintain a system of accreditation and certification for case managers

To provide a network for those working in case management, and to give advice and support.


CMS UK PO Box 293 Sutton SM1 9BH Tel/Fax: 0870 850 5821/ Website: www.cmsuk.org

BABICM PO Box 199 Bury BL8 9EJ

Tel: 07002 222 426/ Email: [email protected]

Not applicable


Telephone/Email


Membership fees apply Case Managers, others working in the field of complex care

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Case Management Services Ltd

Aims

To provide community-‐based rehabilitation in the individual’s own home, to help them and their families rebuild their lives after brain injury (and also spinal cord and complex orthopaedic injury).


A case manager sets up comprehensive rehabilitation, in the individual’s own home, to retrain basic skills, to enable them to overcome memory, temper, and other problems, and to help the individual rebuild his or her life. Sometimes that means gradually getting back to work and social life; and sometimes it means finding new activities and interests. Some people will benefit from a support worker or “buddy” to help them get back into a routine – to improve fitness, and start to get out and about again.

For many people, rehabilitation in the community has advantages. They can learn to overcome the problems arising from brain and other injury in their own environment, and that makes long-‐term readjustment easier.

CMS also provides medico-‐legal assessments, and help, advice, and treatment for occupational health and other services.


CMS provides services throughout Scotland and the North of England. Our office base is: Case Management Services Ltd, 350A Lanark Road West, Currie, Edinburgh EH14 5RR. Tel: 0131 451 5265 Email: [email protected] Web: www.caseman.co.uk We have a multi-‐disciplinary team (incl. neuro-‐psychologists, occupational therapists, physio-‐therapists, nurses, social workers, and rehab assistants) in various locations from Inverness to Leeds.

The office is open Monday-‐Friday 9am-‐5pm


Referrals may come via legal and insurance firms, occupational health departments, and NHS/social work. You can contact us to discuss possible referral routes.


Funding is usually arranged by the referrer (see “how to access services”)

Adults and children following brain injury, and also spinal injury/complex orthopaedic injury.

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JSP Scotland

Aims

We aim to maximise the quality of life of individuals in a community setting whose lives are affected by complex disabilities through the provision of high quality, evidence based services and practices that are both client centred and cost effective. We support our clients through the rehabilitation and litigation processes and beyond, always ensuring that their choices and decisions in all aspects of their lives are explored and enacted wherever possible.


Services for clients:

Complete co-‐ordination of care and therapy services ·∙ Design and provision of packages of care ·∙ Direct recruitment of support workers and/or co-‐ordination of agency support staff ·∙ Support staff payroll management ·∙ Planning and implementation of goal centred care and support plans ·∙ Advocacy in any circumstance that our clients require ·∙ Completion of an annual review, undertaken with our clients by a senior member of our clinical team to ensure the support plan is on track and the services provided are appropriate and of the highest quality

Services for legal representatives:

Initial and immediate needs assessments ·∙ Costed case management proposals ·∙ Reports under the Code of Rehabilitation ·∙ Rehabilitation assessments ·∙ Equipment and adaptations assessments ·∙ Expert witness services ·∙ Client account management ·∙ Support staff payroll management


From our office in Edinburgh, we are able to provide services across the whole of Scotland. JS Parker Ltd, 2nd floor, 2 Commercial Street, Edinburgh, EH6 6JA Tel: 0131 554 8970 Email: [email protected] Web: www.casemanagement.co.uk

Monday-‐Friday 9am-‐5pm


Referrals are generally made by legal representatives; however we accept referrals from social services, from continuing healthcare commissioners, and from individuals. Please contact us if you require further information.


Funding is generally through medico legal claims and settlements.

Adults and children with brain or spinal injuries; individuals with complex needs.

Page 30 29

Tania Brown Ltd

Aims

To provide a specialist case management service offering care, community rehabilitation and support for clients with a wide range of disabilities, including brain injury, spinal cord injury and other complex injury.


We offer a nationwide service with our consultant therapists and case managers located across the country, all of whom are highly trained and experienced with considerable expertise to work alongside clients and their families following acquired disability.

We offer an initial assessment to discuss what the client hopes to achieve within their day to day life. We then work alongside the client and their family to support the client to fulfill these aims, whether that be assisting them to put in place a care or support package (which may include the management of payroll services), returning to work/study, increasing their physical or mental abilities, and improving their involvement in household and/or recreation/leisure activities. We strive to enable people of any age who have acquired severe disabilities to take a rehabilitative approach to maximize their level of independence by providing the highest quality service.


Tania Brown Ltd provides services across Scotland and England. Our Scottish head office address is: Conference House 152 Morrison Street Edinburgh EH3 8EB Tel: 0131 200 6164 Web: www.taniabrown.com Email: [email protected]

Monday to Friday 9am to 5pm


Many referrals to the service come via lawyers or insurers, but also financial guardians. Referrals are also welcome from NHS/social work.

Please contact us if you wish to discuss a referral to the service.


We view each case as having individual needs. Please contact us for a case-‐specific cost

Adults and children following acquired injury

Page 31

Child Specific Services

Page 3231

The Brain Detectives

Aims The Brain Detectives is an information day for children who have a relative with an acquired brain injury, to enable them to understand the affects of an acquired brain injury, provide a positive experience and answer any questions they may have.


• Children of primary school age, who have a relative with an acquired brain injury, have the opportunity to meet other children in a similar situation.

• Activities include body pictures, memory games and using equipment in the gym. • The information day is facilitated by health and social care professionals.


The Old School, Astley Ainslie Hospital 133 Grange Loan, Edinburgh, Midlothian EH9 2HL For further information, contact: Carol Dow Telephone: 0131 537 1411 Email: carol.dow@edinburgh .gov.uk Neliss Baxter Telephone: 0131 537 9075 Email: [email protected]

Information days run from 10am until 2pm.


Look out for the date of the next information day and use the contact details provided.


None Children only. Relatives drop the children and don't stay for the session

Page 33 32

Capability Scotland – Childcare 4 all

Aims • Increasing the number and quality of childcare places for children with additional support

needs.


• Supporting mainstream childcare settings, including private and local authority nurseries, school clubs, holiday clubs, playgroups and childminders to develop their capacity to include children with additional support needs within their services.

• Capability Scotland staff work alongside staff within the mainstream setting, offering practical assistance and advice on how to provide a service that can be enjoyed by all children.

• Offers a free lending library of toys and therapeutic resources, encouraging children with additional support needs to get involved and build relationships with the other children.

Location and Contact Details Opening Hours Ben Bradbury c/o Head Office Westerlea, 11 Ellersly Road Edinburgh, EH12 6HY Telephone: 0131 347 1027/1009 Email: ben.bradbury@capability-‐scotland.org.uk

Varied depending on service supported.


Phone/email us.

Children can be referred to Childcare 4 All by professionals, parents or the setting themselves. Any registered Childcare Provider can contact the service directly for advice, support or to borrow resources to enable them to be more inclusive.

Cost Who is this service open to? None Children with additional support needs aged 0 -‐

16 years.

Page 34

33

Capability Scotland – Westerlea Early Years

Aims • Westerlea early years service provides support for children 0 -‐ 5 years old with additional

support needs and their families.


• Respite Support o Opportunities are provided for families to receive respite care which is offered within the

centre for up to 3 hours per session. o Children will have the opportunity to join in group activities, access the sensory room or

follow an individual programme. • Music sessions

o Music is a very attractive medium for children through which they can feel free to explore, learn and develop at their own pace. Our group sessions build upon social awareness and interaction, allowing the children opportunities to experiment with sounds and instruments.

• Group Play o This includes action songs, sensory activities and messy play, led by a child development

worker. During group play parents/carers are encouraged to work with their child. • Sensory Sessions

o This takes place in our purpose-‐built sensory room which introduces children to new and stimulating experiences giving them the freedom to explore and enjoy.

• Hydrotherapy o We have access to an onsite hydrotherapy pool that can be accessed every Friday

afternoon by families.

Location and Contact Details Opening Hours Sam Louden Children's Services Manager Telephone: 0131 347 1027 Email: sam.louden@capability-‐scotland.org.uk Emma Grover Team Leader Telephone: 0131 337 9467 Email: emma.grover@capability-‐scotland.org.uk

Monday to Friday 8.30am -‐4pm


Please contact the service for further information.

Cost Who is this service open to? None Children 0 -‐ 5 years old with additional

support needs and their families.

Capability Scotland – Westerlea Early Years

Page 35 34

Capability Scotland – Youth Zone

Aims • Provides one respite session a month between 10am and 1.30pm to young people of any

disability.


• Supports young people to develop self help and social skills. • Allows young people to build a social/peer group. • Provides parents with some weekend respite. • Provides a range of activities for young people to become involved in including:

o cooking o trampolining o puzzles o basketball o arts and crafts o building and many more.

Location and Contact Details Opening Hours Sam Louden Children's Services Manager Telephone: 0131 347 1027 Email: sam.louden@capability-‐scotland.org.uk Nicolas Nino Ramirez Team Leader Telephone: 0131 347 1041 Email: nicolas.nino-‐ramirez@capability-‐scotland.org.uk

One respite session a month between 10am and 1.30pm.


Phone/email using the contact details provided.

Cost Who is this service open to? None Young people between the ages of 10 -‐16 years,

of any disabilities, who have been referred through City of Edinburgh Council based on section 23 and panel decision.

Page 36 35

Child Brain Injury Trust

Aims

• The Child Brain Injury Trust supports children, young people and families affected by an Acquired Brain Injury. The key areas of support are: to provide information about acquired brain injury to families and professionals, emotional and practical support to the whole family, signposting, advocacy and social opportunities.


• Liaising with schools to ensure that the child or young person has a smooth return to school by raising awareness about ABI and offering teacher training.

• Liaising and advocating with social work services and providing advocacy for the child and the family.

• Provide information and signposting to appropriate services e.g. carers and young carers groups, Child Brain Injury Trust legal helpline and benefit advisors.

• Providing social opportunities for families to meet through family events, young peoples’ youth groups, siblings holidays, telephone buddying and parents support groups.


Child Brain Injury Trust national helpline: 0303 303 2248 Email: [email protected] Website: www.childbraininjurytrust.org.uk Edinburgh Office: Child Brain Injury Trust Norton Park 57 Albion Road Edinburgh EH7 5QY Telephone: 01869 341075

9am – 4pm

Tuesday/Wednesday/Thursday.


Phone/email us.


None The Child Brain Injury Trust provide support for families throughout Scotland who have a child or young person with an acquired brain injury in the age range 0 – 25 years.

Page 37 36

Enquire

Aims To raise awareness of additional support for learning so that children and young people get the most that they can from their education.


Enquire is the Scottish advice service for additional support for learning. Enquire provides independent and impartial advice and information about additional support for learning to parents, carers, children, young people and professionals who work with them. Advice and information is provided through a confidential telephone helpline, online enquiry service, a range of publications and two websites. Location and Contact Details Opening Hours

Enquire Children in Scotland 5 Shandwick Place Edinburgh EH2 4RG

Telephone helpline: 0845 123 2303

Text:18001 0845 123 2303


Website: www.enquire.org.uk

N/A.

(Telephone helpline is open from Monday – Friday, 9.00am to 4.30pm.)


Through contact details provided or using the online enquiry service:

www.enquire.org.uk/contact-‐us

Cost Who is this service open to? None Children and young people of school age with

additional support needs.

Page 38 37

Kindred

Aims

• To provide advocacy, emotional support to parents, as well as information on services available to children with additional support needs and their carers.

• To provide a ‘listening ear’.


• Voluntary organisation based in Edinburgh City Centre and at the Royal Hospital Edinburgh for Sick Children -‐ also has a small team working in Fife. It is managed by a committee of parents of children/young people with additional support needs, and professionals.

• Provides therapeutic support services to children and their carers whilst in the Royal Hospital for Sick Children and in the community.

• Provides training for people who work with children and families.


7 Rutland Court Lane, Edinburgh, EH3 8ES

Telephone Helpline & Enquiries: 0131 536 0583


Website: www.kindred-‐scotland.org

Helpline: Monday – Friday, 10am-‐4pm


Through contact details provided or using the online enquiry service.


None Service is available to parents of children and young people with additional support needs (up to the age of 24)

Page 39 38

Share the Care

Aims • To provide a respite service for the families of children and young people with physical and/or

learning disabilities.


• Provides essential support to young people with disabilities and their families by offering regular breaks in a carer's home. These breaks give young people the chance to take part in different activities and make new friends as well as giving parents the opportunity to spend time with other members in the family, or just to recharge their batteries.

• Takes care of young people with disabilities for short periods of time at regular intervals throughout the year and can provide:

o weekend short breaks o overnight breaks during the week o day time care o care during school holidays o befriending -‐ usually in the evening or at weekends.

Location and Contact Details Opening Hours Children's Wellbeing Disability Team Randall House Macmerry Business Park Macmerry EH33 1RW Telephone: 01875 824309 Email: children&[email protected]

Office Hours: Mon-‐Thurs 9am-‐5pm and Fri 9am-‐4pm.


Phone/email us.

Cost Who is this service open to? None Children and young people who are assessed by

the Respite Support Panel as having severe, complex and enduring needs.

Page 40

Other Services which may be useful

Page 4140

Advocacy Services

Aims To help people to stand up for themselves and to empower people to be heard by other people or organisations who have power over them.


Advocacy Services are usually provided by independent voluntary organisations. These organisations deliver advocacy in a number of ways including; Professional Advocacy, usually provided by a paid worker, who will work with a number of people. The support they offer is usually focused on specific issues and time limited; Citizen Advocacy, where an unpaid, ordinary person is asked to get to know and represent just one person over a longer period of time and Group/Collective advocacy, where people come together as a group to support each other and tackle shared issues, helped by an advocacy project.


The Scottish Independent Advocacy Alliance will advise you of the most appropriate service for you to contact.

Tel: 0131 260 5380.

Fax: 0131 260 5381


Website: www.siaa.org.uk

The “Find an Advcoate” section on the website allows you to search for an advocate in your area.

Varies


Contact number provided.


None Varies -‐ contact number provided.

Page 4241

Alzheimer Scotland

Aims • Alzheimer Scotland is Scotland’s leading dementia charity. We provide services and campaign

actively to help people with dementia and their families and carers.


In Glasgow there are a range of services operating including:

• Home support service and overnight home support • Housing Support and Care at Home service • Dementia Advisors • Forget-‐me-‐not Project • Dementia Café • Younger Persons Support Service • Advice and information service • Carer support group • Carer education • Day care

Location and Contact Details Opening Hours Alzheimer Scotland 22 Drumsheugh gardens Edinburgh EH3 7RN

Telephone: 0131 243 1453 Email: [email protected]

Website: www.alzscot.org

9.00am – 5.00pm

Scottish 24 hour Dementia

Helpline: 0808 808 3000


Contact us.

Cost Who is this service open to? Many but not all of our services are free. Please ask.

People who need support or information about dementia.

Page 4342

Brain Tumour Action

Aims

Brain Tumour Action has five main aims: support, training, education, campaigning and research. Please see the website www.braintumouraction.org.uk for further details of our activities


A support group in Edinburgh for anyone affected by a brain tumour, meeting on the first Tuesday of every month at the address below.


Maggie’s Cancer Caring Centre Western General Hospital Crewe Road South Edinburgh EH4 2XU Tel: Alice McGregor – 0131 334 3609 Website: www.braintumouraction.org.uk

First Tuesday of every month

7:00pm – 9:00pm


Contact us.


None Patients, families, friends and carers of anyone diagnosed with a brain tumour

Page 44 43

British Acoustic Neuroma Association (BANA) Aims • Assist and support people who have been diagnosed as having or who have been treated for

Acoustic Neuroma (Vestibular Schwannoma), and other related conditions and others affected by such conditions

• Main Activities and Services

• Local Support group currently 40 members. • Provides the opportunity to talk about problems and exchange information. • Speakers normally arranged for meetings, talk about related issues. Location and Contact Details Opening Hours For meeting information, contact:

The British Acoustic Neuroma Association Oak House B, Ransom Wood Business Park Southwell Road West Mansfield Nottinghamshire NG21 0HJ

Tel: 01623 632143

Freephone: 0800 652 3143

e-‐mail: admin@bana-‐uk.com

website: www.bana-‐uk.com

Varies


Information on meetings is available in the member’s section of the website.

However, membership is not required to attend the meeting. Please call the head office number for information on meeting date/time.

Cost

Who is this service open to? £18 per year for membership with BANA Everyone

Page 45

44

Carer Services

Aims To provide information, advice and support to carers.

Main Activities and Services There are many local and national bodies which support carers by providing a range of services such as advocacy, advice and information, counselling, forums and respite breaks.

Location and Contact Details Opening Hours To find carer services in the Edinburgh area, use the carer support directory on the City of Edinburgh Council website or contact: Social Care Direct Health and Social Care Chesser House 500 Gorgie Road Edinburgh EH11 3YJ Tel: 0131 200 2324 Email: [email protected] The NHS also provide support for carers NHS Inform: 0800 22 44 88 Or contact the NHS carer support team Telephone: 0131 536 3371 Email: [email protected]

NHS Inform is open between 8am and 10pm


Use the contact details provide or speak to your GP or health worker to refer you to a relevant service.


Contact for details You are a carer if you look after your family, partner or friends who need help because they are ill, frail or have a disability. The care you provide is unpaid.

Page 46 45

Cerebal Palsy, Stroke, Acquired Brain Injury National Team

Aims • To allow players with Cerebral Palsy / Stroke / Acquired Brain Injury to have the opportunity to

access international football through the Cerebral Palsy International Sports and Recreation Association (CP-‐ISRA). The Scotland CP/S/ABI team is currently ranked 6th in the World.


• A seven-‐a-‐side version of the game is used, utilising a smaller playing area and reduced sized goals.

• In Scotland, a CP/S/ABI national football squad has had a regular programme of coaching and competition opportunities for a number of years now. Selected players receive tactical and technical coaching together with being provided with an individual training programme.

• Competitive Opportunities include: o World Championships o European Championships o Home Nations Tournament o Invitational Competitions o International Friendlies o In addition to international programmes we also provide participation level activities.

Location and Contact Details Opening Hours For more information: Web: www.scottishfa.co.uk Training sessions are held at: Forthbank Stadium Astroturf pitches Stirling FK7 7UJ

Training sessions run from 10.00am – 12.00pm.

Office hours: Monday – Friday 9.00am – 5.00pm.


To attend National Squad training sessions please contact Stuart Sharp on the number provided.

Cost Who is this service open to? None Ambulant players, aged 9 – Adult, with physical

disabilities (non wheelchair users/assisted walking aids)

Page 47 46

CHANGES

Aims • To “promote positive wellbeing and provide opportunities for people in East Lothian to

find ways towards healthier and less stressful living”.


• First steps towards Positive Mental Health and Wellbeing Course – an 8 week course which aims to help you better understand how stress and anxiety affects you and the strategies you can use to cope better with the stresses of daily life.

• A range of other daytime and evening courses including developing positive thinking, assertiveness, relaxation, self-‐esteem, understanding anxiety and panic, healthy eating and exercise and support groups.

• Counselling • Cognitive behavioral therapy – short term therapy for mild to moderate health issues • Wellbeing Walks – walking groups in Haddington, Mussleburgh and Prestonpans and

trained volunteers can offer support to people on a one to one basis to start walking • Volunteer Project – a team of trained volunteers can offer one to one support before,

during or after a course and help you make the most of the services. • Courses are held in venues across East Lothian.

Location and Contact Details Opening Hours: CHANGES

108 Market Street

Musselburgh EH21 6QA

Contact Heather Cameron

Tel: 0131 653 3977

Fax: 0131 665 3878 Email: mailto: %3cscript language='JavaScript' type='text/javascript'%3e %3c!-‐-‐ var prefix = 'mailto:'; var suffix = ''; var attribs = ''; var path = 'hr' + 'ef' + '='; var addy82346 = 'info' + '@'; addy82346 = addy82346 + 'changeschp' + '.' + 'org' + '.' + 'uk'; document.write( '%3ca ' + path + '\'' + prefix + addy82346 + suffix + '\'' + attribs + '%3e' ); document.write( addy82346 );%[email protected]

9am – 5pm Monday to Friday

How to access services Self referral. CHANGES has no formal referral system and is open to anyone living in East Lothian.

Cost Who is this service open to? None People with mild to moderate mental health

issues.

Page 48 47

Citizens Advice Scotland -‐ Citizens Advice Bureau and Citizens Advice Direct

Aims To ensure that individuals do not suffer through lack of knowledge of their rights and responsibilities, or of the services available to them, or to express their needs effectively. Main Activities and Services

Free, confidential and impartial advice and information on a wide range of subjects including: • benefits and housing • debt and tax • consumer issues and work related problems • Relationships

Location and Contact Details Opening Hours Find your local bureau by searching on the CAS website:

www.cas.org.uk/bureaux

You can also phone Citizens Advice Direct for advice over the phone on: 0808 800 9060 Alternatively, Citizens Advice Scotland provide a website where you can find information yourself:

www.adviceguide.org.uk/scotland/

Varies. Check your local bureau for opening times. Main Offices are generally open Monday to Friday with drop in sessions and appointments. Citizens Advice Direct lines are open Monday to Friday 9am till 8am and Saturday 10am till 2pm.


Phone to make an appointment or turn up at a drop in session.

Some Bureaus also run telephone and email help lines.


None Some Citizens Advice Bureau are only funded to give advice to people living or working in a certain area (usually the local authority area). Please check with the Bureau that they are able to help you.

Page 49 48

Exercise Referral Scheme – Healthy Active Minds

Aims To introduce individuals who are experiencing mild to moderate depression, stress or anxiety to regular physical activity, to accompany or act as an alternative to conventional treatment (e.g. medication).


• One to one consultation and support from specialist project staff to discuss their readiness for change.

• A 12 week physical activity action plan will be agreed with the individuals referred. • The action plan will include a range of physical activity options based either in a leisure or

community setting, such as swimming, walking, yoga, dance, gym, cycling, or gardening. • A free Edinburgh Leisure card will allow participants to access free swim, gym and fitness

class visits at off peak times, for a 12 week period in Edinburgh Leisure facilities. Discounted leisure card prices apply at other times and for other Edinburgh Leisure activities.

Location and Contact Details Opening Hours:

Healthy Active Minds Co-‐ordinator,

3 Cultins Road

Edinburgh

EH11 4DF

Tel: 0131 458 2188

Fax: 0131 458 2169

N/A


Patients must be referred by their GP.


None Those who are experiencing mild to moderate depression, stress or anxiety (not severe or enduring mental health conditions) who are currently inactive, over 18 years of age and living in Edinburgh.

Page 50 49

Exercise Referral Scheme -‐ Midlothian Active Choices

Aims To introduce individuals who are experiencing a variety of mental health problems to regular physical activity, to accompany or act as an alternative to conventional treatment (e.g. medication).


• The project coordinator will meet patients for a one-‐to-‐one consultation to discuss goals and create an activity action plan.

• The action plan will be for 12 weeks and can include a range of activities based in a leisure or community setting, such as walking, swimming, yoga, dance, gym and cycling and more.

• Patients will be entitled to an Access Card for the 12 week programme which will give them access to leisure centre activities for £1 per activity. Activities in the community setting, such as Ageing Well activities are either free or £1 per activity.

• Further support and reduced costs are provided for up to a year after the initial 12 weeks to encourage the client to continue with their physical activity.

• Patients will be regularly followed up and their action plan goals reviewed with the project coordinator.

• The project has been running for over two years now and has received nearly 1200 referrals!

Location and Contact Details Opening Hours Midlothian Active Choices Coordinator MAC Coordinator

Isabel Lean Dundas Buildings Polton Street Bonnyrigg 0131 561 6507

[email protected]

N/A


Initial referral to the project can be made through a GP or any other Health Practitioner.

Cost Who is this service open to? None Adults in Midlothian who are currently suffering

from mild/moderate mental health conditions, weight management problems, or long term or chronic illnesses.

Page 51 50

General Practitioner Services – NHS Lothian

Aims

• A general practitioner, or GP, is a medical practitioner who provides primary care and specialises in family medicine. A general practitioner treats acute and chronic illnesses and provides preventive care and health education for all ages and both sexes.


• GPs are the gatekeepers to the NHS, controlling which patients are referred to hospital or specialist care as well as managing patient care in the community.

• GP practices may have a range of different services which they provide. Contact the number below to get more information about services in your area.

• For out of hours services, or other health advice contact the NHS 24 helpline on 08454 24 24 24.


To find out your nearest GP Services (Medical) contact: NHS National Services Scotland Practitioner Services (Medical) Gyle Square 1 South Gyle Crescent EDINBURGH EH12 9EB Tel: 0131 275 7038 (Edinburgh) Tel: 0845 300 1063 (East/West/Mid Lothian & Borders) Or visit the NHS 24 Website: www.nhs24.com

Varies.


To register with a GP, in other words, to be added to the list of patients, simply telephone or visit the practice in the area you reside and ask if you can register with them.


NHS services do not usually have a charge.

Every permanent UK resident is entitled to have the services of a GP

Page 5251

Health in Mind Aims Health in mind is a charity promoting positive mental health and wellbeing in Scotland. They aim to promote tolerance and greater understanding of mental health issues through:

• offering a range of mental health and wellbeing services • raising awareness of mental health and wellbeing issues • innovating, developing and promoting new approaches to mental health improvement


• All services are designed to support people who experience mental health difficulties and their carers to achieve a positive quality of life.

• These service include: • Befriending • Community connecting • Counselling • Guided self help • Information services • Equal access • Orchard Centre Services • South Edinburgh Community Health Project • Support Accommodation & Respite Service • Trauma Services • Self Pay Services

Location and Contact Details Opening Hours Health in Mind 40 Shandwick Place Edinburgh EH2 4RT Telephone: 0131 225 8508 Email: contactus@health-‐in-‐mind.org.uk

Website: www.health-‐in-‐mind.org.uk

For initial contact: Main Office operates normal business hours


Contact us

Cost Who is this service open to? None People with mental health difficulties and their

carers.

Page 53 52

INTOWORK

Aims To provide individualised, supported employment services to people with disabilities and health conditions in Edinburgh, East Lothian, Midlothian and West Lothian.

Main Activities and Services Intowork is a specialised employment support service working in Edinburgh and Lothian. We specialize in Autism Spectrum Conditions and Acquired Brain Injury, and also support people with other disabilities into employment. We work in partnership with local authorities and other support organisations. Year on year more and more of our service users have progressed to open paid employment.

We provide individually tailored support to people with disabilities, such as ABI, ASD, mental health, dyslexia, ADHD, learning and physical difficulties, helping them to reach their employment goals. The service follows the 5-‐stage Supported Employment Model as agreed and recommended by the Scottish Government.

Clients must be aged 16 to 65 and fulfil the following criteria:

• Have a disability or health condition and seek work within the City of Edinburgh travel to work area

• Be motivated to gain open paid employment • Live in Edinburgh, Midlothian, East Lothian or West Lothian and can access Intowork in

Edinburgh, Haddington or Livingston. Must be able to self travel or have their own travel arrangements

• Be aware of/consent to the referral

Location and Contact Details Opening Hours Intowork (Edinburgh Office) Norton Park, 57 Albion Road, Edinburgh, EH7 5QY Telephone 0131 475 2600 [email protected] Intowork West Lothian (Livingston Office) Braid House (Upper Floor), Labrador Avenue Howden, Livingston, EH54 6BU Telephone: 01506 443100 Email: [email protected]

Intowork East Lothian, c/o ELVOS, 9-‐11 Lodge Street, Haddington, EH41 3DX Tele: 0131 653 5315 How to access services

Use the contact details provided


None See information above.

Page 54 53

Legal Advice

Aims

To give advice and representation on legal issues including compensation claims and personal injury.


• Many lawyers also have other support e.g. on Benefits Advice or on Money Management. • Headway UK holds a list of lawyers who sign up to their code of conduct in working with

people with brain injury and their families. This list can be accessed by contacting Headway UK with the details below.

• The Child Brain Injury Trust have developed a brand new ‘Directory of Legal Services’ as a guide for those parents seeking legal advocacy for their child and also information to or find out more about what you should consider when looking for a solicitor. The directory also includes information on support services such as counselling etc.


Headway Legal Advice:

Find a Solicitor on:

www.headway.org.uk/legal-‐advice.aspx

or call the helpline: 0808 800 2244

The Child Brain Injury Trust Directory of Services: www.directory.childbraininjurytrust.org.uk

Monday-‐ Friday 9.00am-‐5.00pm


Contact details as above.

Cost Who is this service open to? Free initial consultation from solicitors on the Headway list.

Anyone in need of legal advice.

Page 55 54

Lothian Disability Sport

Aims

• To lead the development in Lothian of sport for people with a physical, sensory or learning disability.

• To promote, co-‐ordinate and develop a wide range of sports and recreational opportunities for all ages and abilities.


• Provide appropriate sporting and leisure opportunities • Encourage individual members to develop any particular sporting abilities which they may

have, and to aid them in furthering their sporting potential to a level to which they aspire. • Lothian Disability Sport hold a wide range of sporting clubs throughout Lothian. More

information on these individual clubs is available on their website.


Lothian Disability Sport Meadowmill Sports Centre Tranent EH33 1LZ Telephone: 01875 619070

E-‐mail: [email protected]

Website: www.lothiandisabilitysport.co.uk

Time and dates vary for individual clubs. See the website for more information.


Phone/email/online enquiry form.


Contact for details People of all ages with disability.

Page 56

55

Maggie’s Cancer Caring Centres

Aims To provide emotional, practical and social support to people with cancer and their families and friends.


Maggie’s Edinburgh is located at the Western general Hospital in Edinburgh. Maggie’s provides emotional, practical and social support to people with cancer and their families and friends. You can talk to one of our Cancer Support Specialists for more information about your individual circumstances, or you can join in any part of the programme, whether it’s practical advice on benefits or nutrition, a support group, a T’ai Chi class or a relaxation course, or simply meeting people around the kitchen table who are going through the same things as you. Check the website for a timetable of courses and workshops

Location and Contact Details Opening Hours The Stables Western General Hospital Crewe Road South Edinburgh EH4 2XU

Tel: 0131 537 3131 Fax: 0131 537 3130 Email: [email protected]

Monday to Friday 9am -‐ 5pm (plus some evenings).


Don’t need an appointment or a referral – you can just pop in for a cup of tea.

Cost Who is this service open to? Free People with cancer, their family and friends.

Page 5756

Mental Health Information

Aims • Signpost people to appropriate mental health and wellbeing services in the Lothians. • Enable people to make informed choices in their treatment and care. • Inform people of factors influencing positive mental health and wellbeing. • Enable people to access services and information which may be of benefit to them or someone

they support. • The website is managed by Health in Mind, an organisation which promotes positive mental

health and wellbeing in Scotland.


• Provide improved access to services and support for people living in Edinburgh and The Lothians. • Information on emergency services • Self help information • A directory of mental health and wellbeing services in the local area • Listings of events including workshops, training and open days • Health related news • Information for carers, friends and family.

Location and Contact Details Opening Hours Edspace (Edinburgh) Website: www.edspace.org.uk

Midspace (Midlothian) Website: www.midspace.co.uk Eastspace (East Lothian) Website: www.eastspace.org.uk

N/A


Online enquiry form via the individual websites.

Cost Who is this service open to? None People experiencing mental health difficulties and

carers, family and friends of those people.

Anyone with an interest in mental health and wellbeing.

Page 58 57

Nursing Services

Aims

To provide care and facilitate rehabilitation to promote independence


The District Nursing Service is part of NHS Lothian and is managed by Nurses who deliver care to patients in their own home. The service is for individual patients who are unable to attend the GP practice and will assess, plan and provide the most appropritate nursing care to patients.

There are also several Nursing agencies throughout the UK, which provide care and rehabilitation services to clients in their home following a hospital stay. These services are tailored to the needs of the client.

Some agencies may provide additional services such as case management, medico legal and expert witness assessments and respite services for carers.


For more information on the district nurse service, contact the Edinburgh Community health Partnership Chief Nurse:

Lynda Cowie Canaan Park Astley Ainslie Hospital 133 Canaan Lane Edinburgh EH9 2HL Telephone 0131 537 9504 Email: [email protected] The website homecare.co.uk provides a directory of Independent Nursing Agencies and Home Care Groups

You can all so call them on 0800 542 3403

varies


Referral to district nurses can be made by anyone and will be prioritised by need. Contact Lynda Cowie using the details provided.

For independent nursing services, contact details are provided in the directory.

Cost Who is this service open to? NHS Services are free. Independent Nursing costs will vary.

People whose ability to cope at home independently and safely is affected by illness, weakness or injury.

Page 59 58

Penumbra

Aims • To empower people to look forward to mental wellbeing with recovery focused support and

individually set and managed goals. • To promote mental wellbeing for all, prevent mental ill health in those at risk and support

those experiencing mental ill health.


• Penumbra offers a variety of services to support those experiencing mental ill health including; supported living, youth projects, homelessness services, alcohol related brain damage services, short breaks, crisis centre, self-‐harm projects, supported accommodation.

• For more information on these individual services, please visit our website.

Location and Contact Details Opening Hours Norton Park 57 Albion Road Edinburgh EH7 5QY Telephone: 0131 475 2380

Fax: 0131 475 2391


Website: www.penumbra.org.uk

Individual service times vary. Please see the website for more information.


Phone/email us.


None Anyone experiencing mental ill health.

Page 6059

Places for People Scotland Care & Support

Aims • Provide quality care and support for people in Scotland. Main Activities and Services

• We offer support to: o People with learning and physical disabilities o People with mental health issues o Young people o Older people o Acquired brain injury o Autism

• We offer a range of experience within the areas of finance, property development, psychology, older people's strategy, homelessness and health.

Location and Contact Details Opening Hours Places for People Scotland Care & Support SPACE, 11 Harewood Road Edinburgh, EH16 4NT Telephone: 0131 659 4702 Email:[email protected] Website:www.placesforpeoplecareandsupport.co.uk Outreach services for ABI are available in: Caledonian Village 2/2 Easter Dalry Road Edinburgh, EH11 2TS Telephone: 0131 313 0891 Livingston Service 72 Sutherland Way Knightsridge Livingston, EH54 8HU Telephone: 01506 434869 Midlothian Service 5c Edinburgh Road Dalkeith, Midlothian, EH22 1LA Telephone: 0131 654 1069

Varies for individual services offered.


General enquiries: phone/email using the contact details provided.

Specific services: please visit the website link provided for individual service contact details.

Cost Who is this service open to? Prices vary for individual services. There are opportunities for fee paying services to be funded in a number of ways. Please visit the website link provided for individual service details.

People with learning and physical disabilities, mental health issues, Young people, older people, people with acquired brain injury, people with autism.

Page 61 60

RNIB Transcription Service

Aims

Supporting people with sight loss to live independent lives, make informed decisions, and create a more inclusive society by providing information in accessible formats.


• Provides information in multiple formats such as audio, Braille, e-‐files, large print, moon, tactile diagrams.

• Visual awareness training with emphasis on making your information accessible.


12-‐14 Hillside Crescent Edinburgh EH7 5EA

Telephone: 0131 652 3140


Website: www.rnib.org.uk

Monday – Friday: 9.00am -‐ 5.00pm


Customers contact us directly by email or phone.

Referrals through Social Work or other agencies.


Free to blind or partially sighted individuals who are registered with the RNIB library; charges for organisations and businesses etc. -‐ quotes on request by email.

Anyone registered as blind or partially sighted.

Organisations/businesses/public bodies etc. wishing to make their information accessible.

Page 62 61

Sabin – Scottish Acquired Brain Injury Network

Aims

To improve access to and the quality of services for children and adults with Acquired Brain Injury (ABI).


Provides information on resources for patients and carers of children and adults affected by an Acquired Brain Injury in Scotland. Location and Contact Details Opening Hours

Susan Whyte

ABI NMCN NMCN Team 2nd Floor Waverley Gate 2 -‐ 4 Waterloo Place Edinburgh EH1 3EG Telephone: +44 131 465 5574 Email: [email protected] Website: www.sabin.scot.nhs.uk

N/A


Phone/email us or use our online enquiries form.


None Patients, carers and relatives of those with ABI.

Page 63 62

SSAFA National Armed Forces Charity Aims • We help and support those who serve in our Armed Forces and those who used to serve -‐ even if it was only for a single day. We also care for the families of both.


Services include:

• Experienced, non-‐judgemental, friendly and confidential advice. • Additional Needs & Disability Support, including four holidays each year for children with

additional needs and their siblings. • Practical support and confidential befriending. • A Confidential Support Line 0800 731 4880 • Financial assistance for a wide range of needs. • Help in organising and funding home adaptations or special equipment for the disabled which

cannot be obtained from statutory sources. • Practical and emotional support for those who are lonely, bereaved or ill.

Location and Contact Details Opening Hours To find out more or find you local support team contact: SSAFA Central Office, 4 St Dunstan's Hill, London, EC3R 8AD Telephone: 0207 463 9354 [email protected] Or phone the Edinburgh Branch on: 0131 557 1697 Tel: 0131 557 1697 Email: [email protected]

Support Line: 10.30am-‐7.30pm: 0800 731 4880


Contact us.

Cost Who is this service open to? No cost Those people who currently serve or have

served in the Armed forces.

Page 64 63

Stroke Clubs -‐ Chest Heart & Stroke Scotland Aims To bring together people who have had a stroke in a relaxed and friendly environment.


• Stroke Group members enjoy a range of games and activities with the opportunity to meet other people who are in a similar situation. Most groups organise occasional outings and events.

• Community Stroke Service groups provide a structured programme of relevant communication bases activities, supported by our Speech & Language Therapist Trainers, providing encouragement, motivation and an opportunity to practice communication skills in a supportive environment. An outreach (home-‐ visiting) service may also be available.

• A Personal Support Grant for up to £2000 is available for equipment, white goods (eg. A washing machine or fridge), or towards the cost of a holiday.

Location and Contact Details Opening Hours There are stroke groups held in various locations throughout the city. Contact the Chest Heart & Stroke Scotland ADVICE LINE NURSES: 0845 077 6000 Text: CHSS plus message to: 07766404142 Email: [email protected] Edinburgh Regional Office 3rd floor, Rosebery House 9 Haymarket Terrace Edinburgh EH12 5EZ 0131 225 6963

Advice Line Nurses: 9.30am – 4.00pm

Monday-‐Friday


Contact the nurses and they will refer you into the groups or outreach services.

Cost Who is this service open to? None People who have had a stroke.

Page 65 64

Volunteer Centre Edinburgh

Aims

To inspire more people to volunteer so they can enhance their lives, the lives of others and build resilient communities


• To ensure that every volunteer involving organisation is able to offer an excellent volunteering experience.

• Using our expert knowledge we inform, educate and inspire our leaders on the benefits of volunteering for Edinburgh and its citizens.


24 Torphichen Street

Edinburgh

EH3 8JB

Tel: 0131 225 0630


Website: www.volunteeredinburgh.org.uk/home

Mon – Thurs: 9.30am – 5.00pm

Fri: 9.30am – 4.00pm

Closed to public on the first Tuesday of every month.


Contact us or drop-‐in during office hours, no appointment necessary.


None Anyone.

Page 66 65

West Lothian Council Advice Shop Aims

The Advice Shop is a free, confidential service open to anyone who lives in West Lothian.


Benefits advice • Check your entitlement to benefits and tax credits • Assistance to make your claim including help filling in forms • Help to appeal unfair benefit decisions

Money/ debt advice • Help to bring your debts under control • Dealing with creditors on your behalf • Explaining your options when you have financial problems and advise you on what

course to take Energy advice

• Advice on proper heating use and energy efficiency • Help to access grants for property insulation and heating • Assistance with billing issues

Housing advice • Assistance to deal with rent arrears • Advice to help you resolve landlord disputes • Representation at court if you are in danger of losing your home

Other advice • Advice for ethnic minorities • Help dealing with welfare reforms • Can refer to other Council Services

• Our trained advisors are available to speak to daily from Monday to Friday in the Bathgate Partnership Centre -‐ no appointment necessary. The Advice Shop also holds regular sessions and roadshows in towns across West Lothian so look out for us in a location near you.

Location and Contact Details Opening Hours West Lothian Council Advice Shop Bathgate Partnership Centre Lindsay House South Bridge Street Bathgate EH48 1TS Tel: 01506 283000 Fax: 01506 283029


Monday – Thursday 8:30am – 5:00pm

Friday 8:30am -‐ 4:00pm


Phone, email or drop-‐in

No appointment necessary.

Cost Who is this service open to? None Anyone in West Lothian area.

Page 67 66

INDEX Hospital Based Services

Charles Bell Pavilion, Astley Ainslie Hospital Page 6

The Huntercombe Services – Gilmerton Neurodsability Unit

Page 7

The Robert Ferguson Unit – Scottish Neurobehavioural Rehabilitation Service

Page 8

Community Based Services

Ability Centre Support Service (ACSS) Page 10

Brain and Spine Foundation Page 11

British Red Cross Page 12

Community Rehabilitation and Brain Injury Service (CRABIS)

Page 13

Cornerstone Page 14

Different Strokes Page 15

Edinburgh Headway Group Page 16

Enable Scotland Page 17

Epilepsy Scotland Page 18

Headway East Lothian Page 19

KICC Active Lothian Page 20

Mental Health Services – West Lothian Community Health and Care Partnership

Page 21

Scottish Head Injury Forum (SHIF) Page 22

Visualise Page 23

Brain Injury Case Managers

A Chance For Life Page25

Anne Cossar and Associates Page 26

Page 68 68

CMS UK/BABICM Page 27

CMS Ltd Page 28

JSP Scotland Page 29

Tania Brown Ltd Page 30

Child Specific Services

The Brain Detectives Page 32

Capability Scotland – Childcare 4 all Page 33

Capability Scotland – Westerlea Early Years Page 34

Capability Scotland – Youth Zone Page 35

Child Brain Injury Trust Page 36

Enquire Page 37

Kindred Page 38

Share the Care Page 39

Other Services which you may find helpful

Advocacy Services Page 41

Alzheimer Scotland Page 42

Brain Tumour Action Page 43

British Acoustic Neuroma Association (BANA) Page 44

Carer Services Page 45

Cerebral Palsy, Stroke, Acquired Brain Injury National Team

Page 46

CHANGES Page 47

Citizens Advice Scotland Page 48

Exercise Referral Scheme – Healthy Active Minds

Page 49

Exercise Referral Scheme – Midlothian Active Choices

Page 50

General Practitioner Services – NHS Lothian Page 51

Page 69 68

INTOWORK Page 52

Legal Advice Page 53

Lothian Disability Sport Page 54

Maggie’s Cancer Caring Centres Page 55

Mental Health Information Page 56

Nursing Services Page 57

Penumbra Page 58

Places for People Scotland – Care & Support Page 59

RNIB Transcription Service Page 60

SABIN Page 61

SSAFA Page 62

Stroke Clubs – Chest, Heart & Stroke Scotland Page 63

Volunteer Centre Edinburgh Page 64

West Lothian Council Advice Shop Page 65

Page 70 69

We quickly learned when we started work on the Directory of Brain Injury Services that the information we need is not always right at our fingertips. Unless you know exactly what you are looking for, a seemingly simple Google search can turn into a sensory overload of outdated contact details and information. At Irwin Mitchell Scotland, we are proud to be working with Headway East Lothian to provide a means of quick and easy access to all the information you need in one booklet.

A brain injury can unexpectedly alter the course of a person’s life in an instant. Where do you begin to look for help, whether patient, family member, healthcare professional or carer, to get assistance to adapt to the sometimes drastic changes to your lives?

It is our hope that this booklet will help to guide you in the right direction. We also hope to provide information to those already living with a brain injury about a diverse range of services which you may not have heard of and which could really help your everyday life.

Irwin Mitchell are widely recognised in the field of head injury litigation. We work with Headway nationally and actively participate in their work to improve life after brain injury. No amount of money can truly compensate for the effects of a brain injury, but through our expertise and services, we aim to provide those affected with the best quality of life possible. Irwin Mitchell’s goal is to help those affected to afford and have access to the services they need for rehabilitation, recovery and continued care.

Together with Headway East Lothian, through this booklet and the work we do every day, our aim is simply to improve life after a brain injury.

Elaine Russell

Partner

Irwin Mitchell Scotland

Page 71

Notes

Page 72

Headway East LothianScottish Charity 0035535Affiliated to headway-the brain injury association

the brain injury association

Kindly sponsored by Irwin Mitchell Scotland

Headway East LothianThis booklet is written for people with brain injury, their carers and relatives, and professionals working with in this field. It aims to give a summary of the different services people with a brain injury and their carers can use in the Edinburgh and East Lothian area.

Documents

Edinburgh and East Lothian Directory of Brain Injury Servicesdev-art.co.uk/~headwayel/wp-content/uploads/2014/08/CH93-B... · Lothian Directory of Brain Injury Services ... SANE 0845