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Early Matters E-Newsletter
September 2018
Childhood Apraxia of Speech
Resource Guide
By Libby Kumin, Ph.D., CCC-SLP, Loyola College, Columbia, MD
What is Childhood Apraxia of Speech?
CAS is a motor speech disorder where children have difficulty planning, coordinating, producing and
sequencing speech sounds. CAS interferes with the child’s ability to say sounds and to combine them into
syllables, words, phrases and conversations. Other terms such as developmental apraxia, dyspraxia,
pediatric verbal apraxia or just apraxia all refer to the same problem. Some children with Down syndrome
have characteristics of CAS, but many do not.
Children with CAS:
Have no direct impairment of speech muscles although children with DS
typically have low muscle tone.
Often have difficulty with movements needed for feeding, eating, and
swallowing.
Have difficulty with voluntary movements for imitating sounds or speech.
The SLP also looks for evidence of difficulty with oral motor skills, which is very
common in children with DS. Oral motor skills refer to the strength and movement
of oral facial muscles, especially those related to speech.
Jena Wells
Early Matter Coordinator
513. 761. 5400 ext. 207
Children with CAS have difficulty with speech. Other types of apraxia, which may co-occur or occur
separately in children, are:
Oral apraxia: Child has trouble with mouth movements such as puckering lips or throwing a kiss.
Limb apraxia: Child has trouble with voluntary hand movements, which may make it difficult to use sign
language.
Difficulty with making speech sounds can be related to difficulty with articulation, phonology, and oral motor
skills in addition to CAS. It is important to determine which problems are related to the speech sound
difficulties your child is experiencing because the therapy methods to address each condition are different
and may need to more than one. Articulation refers to the ability to produce speech sounds. Phonology refers
to sound simplifications that the child makes. All children use phonological process simplifications at younger
ages, but children with DS often use these simplifications longer, e.g. leaving off the final sounds in words
(cat becomes ca), shortening words by omitting an unstressed syllable (cheerios becomes chos), or
repeating syllables (water becomes wawa). So, the SLP will try to determine if a child’s speech is affected by
CAS, oral motor skills, articulation, and/or phonology. If your child is speaking, the SLP will listen during play
activities or conversation in order to analyze your child’s speech.
Formal CAS Testing
The formal tests most frequently given to diagnose CAS are The Kaufman Speech Praxis Test for Children
(KSPT), The Apraxia Profile, and the Verbal Motor Production Assessment for Children (VMPAC). Based on
red flags in the case history, speech characteristics, parent report, oral motor evaluation, informal and formal
testing, the SLP can determine whether your child is demonstrating patterns of CAS.
What kinds of treatment programs are available for CAS?
By identifying CAS in children with DS, appropriate treatment methods can help the child develop speech.
Therapy needs to be frequent, and there should be a home practice program. Your child will need lots of
practice making sounds, but this can be done as part of play, singing and daily activities. The basic difference
is that CAS therapy focuses on length and complexity of sound combinations whereas traditional therapy
focuses on individual sounds in a sound by sound approach. CAS treatment progresses from teaching your
child individual speech movements (a consonant vowel combination) to sequences of movements, from
shorter to longer, less to more complex.
Oral motor approaches (practicing the movements for speech sounds)
Phonemic and articulation approaches (teaching your child how to make the sounds and combine
sounds into syllables)
Cueing approaches
This is not the complete Resource Guide.
Click here to view the complete guide.
Easy Signs to Incorporate into
Daily Routines
Saturday, September 29
8 AM - 12 PM: Outdoor Sessions (Lindner Park, 2726 Cypress Way
Cincinnati, OH 45212)
9 AM - 3 PM: Indoor Sessions (DSAGC Office, 4623 Wesley Avenue
Cincinnati, OH 45212)
*sessions last 10 minutes
Join us for a FREE photography event! This is an opportunity for you and
your family to get pictures taken by a professional local photographer. You
receive all the photos digitally at no cost to you.
Sign-ups for Early Matters are FULL!
Contact Emma Ganiban to be placed on the waiting list:
Fearless Photography!
Empowerment Classes
Keys for Little Ones
Saturdays | October 13-November 10 9-9:45am (ages 0-2) & 10-10:45am ages 3-5)DSAGC Hatton Foundation Community
Room
Instructed by Keys for Success
Join us as we wiggle, shake, drum, and sing in
this fun and exciting music class! Through
singing, dancing, and playing instruments, we
will discover the power of music to help children
meet developmental milestones in
communication, social skills, motor skills, and
bonding. Moms, dads, and caregivers- come
join in the fun to help your child learn, play and
grow and take away knowledge to continue the
music-making at home!
Register
Embracing Advocacy 101 Webinar
Friday, September 21 | View at your own leisure
Presented by Mariclare Hulbert, DSAGC Outreach Coordinator and members of the DSAGC Government Affairs Committee
In this webinar, you will learn about government advocacy best practices, easy ways to stay up to date about
legislation that may affect you or your loved ones, and how to build positive relationships with the elected
officials that represent you. This is a great educational webinar for parents, self-advocates, siblings, and
anyone who cares about advocating for people with Down syndrome.
Accommodations and Modifications in the Classroom Setting
Sunday, October 21 | 2-3:30pm
DSAGC Hatton Foundation Community Room
Presented by Caitlin Smith, Intervention Specialist,
Kings School District
The presentation will focus on three topics:
What accommodations and modifications
terms mean and the difference between them
The kinds of work for different types of
learners
How you can advocate for things that your child
will need in the school setting
**Bring along your child’s IEP for an interactive discussion to share what accommodations/modifications have
worked.
Caitlin is going into her eighth year of teaching this year. Her and her husband have decided to start their
family by adopting a child with Down syndrome, and have been in the process for two years. Caitlin serves as
an Intervention Specialist by trade, but has also served in an advocate role for families of children with
disabilities. She is involved in disability ministry within her church and is always finding ways to become more
involved with the disability community.
21 Series
Register
Register
Social Opportunities
Sunday, December 2 | 1-4pm Oasis Conference Center, 902 Loveland-
Miamiville Rd, Loveland, OH 45140
The Down Syndrome Association of Greater
Cincinnati celebrates the holiday season every
December by bringing together our families for a
visit with Santa and Mrs. Claus, arts and crafts,
holiday decorating, gifts and more.
It’s also a time to honor individuals who have
championed our mission and who have served as a
constant source of celebration of individuals with
Down syndrome. This is a free event, but families
that wish to attend must register.
Early Matters Pogo Play! (families prenatal-5)
Thursday, October 18 | 6-8pm
Pogo Play, 10870 Kenwood Road Blue Ash, Ohio
Who wants to play? Meet some fellow parents? Come enjoy
a night at Pogo Play! Let your children play together while
the adults chat. There is a large room for toddlers to have
fun. We will also have a party room to enjoy some snacks,
pizza, and drinks.
Admission (at the door):
We will cover the cost of each child with Down syndrome!
Siblings: $6.50/kid (3yrs+) | $3/toddlers (crawling-2yrs)
*20% of this admission will go back to the DSAGC
To learn more about Pogo Play visit their website: www.gopogoplay.com
Register
Holiday Party
Register
DSAGC Family Resources
Support at Every Age
Community Participation Fund
Hospital Care Packages
Community Groups
The DSAGC is here to assist you and your family members as you prepare for the birth of your new little one.
Our Early Matters Coordinator, Jena Wells, can provide guidance for you and your family, connect you with
another parent who received a diagnosis, make a personal visit and send you materials. Please know that we
care about your family and we are always here for you. Jena can be reached at [email protected].
Join the DSAGC Early Matters Facebook Group. Parents with children age 0 - 5 share stories, tips,
suggestions and information. Click here to join the group.
We have a limited amount of scholarships available for individuals with Down syndrome to participate in
community activities (such as camps, soccer, swim lessons) and therapies. There is also funding available
for parents to attend educational meetings or conferences. We pay half of the request (up to $200 per
year). You must live within our 12 county area to be eligible. Please contact Lisa Steele
at [email protected] for more information.
Is your child (18 years and younger), with Down syndrome, spending three or more days in the hospital? The
Down Syndrome Association of Greater Cincinnati would love to support you during this difficult time. Click
here to receive a Hospital Care Package.
The vision of the ‘Community Groups’ is to provide support, connections, information, and be a resource to
families while creating a warm, welcoming, empathetic environment. A Community Group is designed to
create opportunities for families that have children with Down syndrome to network and share common
interests, concerns, challenges, and information.
Each Community Group is considered an extension of the DSAGC, but autonomy and decision making
authority is given to the groups so they can effectively meet their unique purpose and goals for serving
families and individuals in their community. Click here to see a full list of Community Groups.
Birth Year Groups: 2011, 2012, 2013, 2014, 2015, 2016, 2017, 2018 & 2019
$5.7 million NIH Research Funding to
the Thomas Center and Colleagues The Thomas Center for Down Syndrome at Cincinnati Children’s Hospital Medical Center is proud to announce receipt of two federal
research grants supporting children with Down syndrome. Both grants were awarded by the Eunice Kennedy Shriver National
Institute of Child Health and Human Development (NICHD). Anna Esbensen, PhD, Research Director of the Thomas Center,
received a 5-year, $2.6 million grant to continue her work on evaluating cognitive outcome measures for children 6-17 years with
Down syndrome. If you are interested in more information, please contact us as 513-803-3641 or email Emily Hoffman at
[email protected] (see information flyer below). Dr Esbensen is also collaborating with Angela Thurman, PhD, at the
University of California-Davis MIND Institute, on a 5-year, $3.1 million grant to evaluate language outcomes in children 2-8 years with
Down syndrome. More information will be coming soon on how to participate in this project.
Dr. Susan Wiley, co-director of the Thomas Center for Down Syndrome, also partnered with Drs Raouf Amin and Stacey Ishman from
the Divisions of Pediatric Pulmonary Medicine/Sleep Medicine and Pediatric Otolaryngology – Head and Neck Surgery at Cincinnati
Children’s Hospital. They received funding to expand their current study on the neurocognitive and school performance effects of
removal of adenoids and tonsils for snoring to focus on children with Down syndrome. This study will enroll children with Down
syndrome undergoing tonsil and adenoid removal for snoring or sleep apnea. This study includes 7 centers across the U.S.
(Philadelphia, Cleveland, Dallas, Boston, Ann Arbor, Norfolk, and Cincinnati). If you are interested in more information, please contact
us at 513-636-0607 or email Belinda Carter at [email protected].
These projects could not have been funded without the strong collaboration between families, the DSAGC and the Thomas Center.
We are honored to work in a city with so many dedicated families, a strong Down syndrome association, and a wonderful partnership
in advancing research to support positive outcomes for individuals with Down syndrome.
Dear Thomas Center Family,
As a family connected to the Thomas Center and Cincinnati Children’s Hospital Medical Center, we wanted to
pass along to you an opportunity to participate in a research study. This study is being conducted by the
Division of Developmental and Behavioral Pediatrics at Cincinnati Children’s Hospital Medical Center. This
study seeks to understand the relationship between behavior and parental stress for children and adolescents
with Down syndrome. The study will include behavioral parent training. The focus of this study is with children
and adolescents ages 3-12, who have Down syndrome and one of their parents. If you are interested in you
and your child participating in this study, please read the information below.
INFORMATION ABOUT THE STUDY
This study will last for 22 weeks and include the following:
You and your child will:
* Come to Cincinnati Children’s for three visits (Screen, Week 10, Week 22) to complete questionnaires and
have him/her evaluated for their cognitive and executive functioning (ability to plan, solve problems, etc.).
You will:
* Come to Cincinnati Children’s to take part in hourly educational sessions for 9 weeks. One additional
optional session will offered.
Parents interested in participation will be given a consent form that thoroughly explains all of the details of the
study. A member of the study staff will review the consent form with you and will be sure that all of your
questions are answered.
To learn more about this research or to sign up for this study, please contact Hilary Rosselot at 513-636-4134
Thank you for your consideration.
Sincerely,
Anna Esbensen, Ph. D. Rebecca Shaffer, Psy.D
Assistant Professor of Pediatrics Assistant Professor of Pediatrics
The Jane and Richard Thomas Center for Down Syndrome
The Kelly O’Leary Center
This 90-minute webinar provides with practical tips and techniques for managing challenging
behaviors in community, residential and educational settings. Topics to be covered include:
Defining Behavior Modification, Behavior Management, and Positive Supports
Positive Behavioral Supports & Functional Assessment Overview
Behavior and Medical Conditions (physiological causes of behavior challenges, barriers to treatment)
Practical, Tried and True Methods for Responding to Challenging Behaviors.
Effective De-escalation techniques.
Dates and times to choose from:
Friday Sept 14, 2018 10:00 a.m. to 11:30 a.m.
Saturday Sept 15, 2018 10:00 a.m. to 11:30 a.m.
REGISTER TODAY – ONLY $19.00
All confirmed participants will receive a certificate of participation documenting 1.5 contact hours.
Payments for all Seneca webinars are securely processed through TicketTailor using PayPal, Visa,
Mastercard, AMEX, or Discover. Electronic invoicing is available when purchasing 5 or more slots.
Please visit http://buytickets.at/senecainstitute for a full listing of our upcoming webinars.
If you can’t find a day or time that fits into your schedule, just let us know and we can set one up
when it is convenient for you.
Community Opportunities The DSAGC does not endorse, recommend or support any particular regime,
therapy, activity, camp or treatment. We welcome articles and information from
parents, professionals and other interested parties.
CHROMOSOME 21
September 28th, 2018, 6:00pm
SCPA-Mayerson Theatre
Vitória is a girl like all the others. She goes to college, she plays the piano and practices swimming. The
only difference is that she has one more chromosome and this caused her to be born with Down Syn-
drome. In her path, she crosses with the dreamy Afonso, a boy without Down syndrome. Their involvement
awakens the girl’s independence and passion, and in society a questioning about the involvement of this
“couple out of standards.”
Click here to learn more and to purchase your tickets!
Booster sessions are intended to provide information on the transition from school to adult
life for youth with disabilities. Families, individuals with disabilities, educators, and other
professionals are invited to attend these sessions at no charge.
Booster sessions are two hours long and take place in the evening.
DISABILITY TECH FESTIVAL CINCINNATI
Our inaugural one day disability technology festival will be held on October 15th, 2018 in Cincinnati
at the American Sign Museum!
Several short Ignite-style presentations/demos, disability technology expert sessions, "innovation-
storming", food trucks, games, massage, and whatever else we dream up.
Come join us for a day of fun, learning, collaboration, and inspiration in the most unique laid back
environment....this is not a typical conference.
Or, drum roll please, you can attend by web or Facebook Live! You'll miss the in person event but
get to see most of the content.
This event was designed specifically for:
- Provider agency employees
- Case managers
- Guardians/family members
- Other disability professionals
- Self-advocates
- Anyone interested in disability services
LOCATION:
American Sign Museum
1330 Monmouth Ave.
Cincinnati, OH 45225
DATE & TIME:
October 15th, 2018
9:00am - 5:00pm
Click here for more
information and to register!
September Calendar
Sunday Monday Tuesday Wednesday Thursday Friday Saturday
1
2 3 4 5
Team
Conner
Buddy Walk
Fundraiser
6
Butler/
Warren -
Ladies Night
Out
7 8
Buddy Walk
9 10 11 12 13 14 15
OWN (ages 18
& up)
AAFN -
Meeting
16 17 18
Westside -
Moms Night
Out @
SOMM
19 20 21
21 Series -
Embracing
Advocacy
101 Webinar
22
23 24 25 26 27 28
Golf Outing
for Jaxie
Baby
29
CGL Meet Up
Fearless
Photography!
30
Butler/Warren
- Fall Family
Fun
October Calendar Sunday Monday Tuesday Wednesday Thursday Friday Saturday
1 2
Healthy Relationships (ages 18 - 30)
3
Gymnastics
(ages 6 - 12)
4
5
Eastside -
Oktoberfest
6
7 8 9
Healthy
Relationships
(ages 18 -
30)
10
Gymnastics
(ages 6 - 12)
11
12 13
Keys for Little
Ones (ages 0 - 2)
Keys for Little
Ones (ages 3 - 5)
AAFN - Harvest
Fest
14 15 16
Healthy
Relationships
(ages 18 -
30)
17
Gymnastics
(ages 6 - 12)
18
Early Matters
Pogo Play!
19 20
Keys for Little
Ones (ages 0 - 2)
Keys for Little
Ones (ages 3 - 5)
Eastside - Fall
Fun on the Farm
21
21 Series –
Accommoda
tions and
Modification
s in the
Classroom
Setting
22 23
Healthy
Relationships
(ages 18 -
30)
24
Gymnastics
(ages 6 - 12)
25
Halloween
Party (ages 18
& up)
26 27
Keys for Little
Ones (ages 0 - 2)
Keys for Little
Ones (ages 3 - 5)
28 29 30
Healthy
Relationships
(ages 18 -
30)
31
