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A ‘traumatic bereavement’ is such when the loss is sudden, violent or unexpected; for example, a road traffic collision, suicide or homicide. The experience is terrifying and shocking; individuals cannot prepare for, or protect themselves from, the event. Many traumatically bereaved people find their profound shock, loss and grief is compounded by a lack of help at this terrible time. They need early support, information and advice to help them cope, understand the reactions they are experiencing, and make sense of what has happened. Accessing early support following a traumatic bereavement can make a significant difference to someone’s long-term recovery 1 . This report explores: common reactions to traumatic bereavement and how they develop; the role of assessment; and some strategies to manage the challenges that arise as a consequence. Early interventions following traumatic bereavement 1 About this report This guidance report is produced by Sudden, a not for profit initiative helping suddenly bereaved people. The report is one of a series aimed at professionals and other carers providing support to suddenly bereaved people. The research findings and care recommendations in this report are obtained from a ‘meet the expert’ seminar held in September 2013, co-ordinated by Sudden and led by psychotherapist Stephen Regel OBE. Sudden thanks Shoosmiths for sponsoring the seminar. Sign up to Sudden If you have not already done so, sign up to Sudden for free to receive access to other reports in the series, quarterly ebulletins about sudden bereavement, and information about our forthcoming events on sudden bereavement. Sign up at www.sudden.org. Meet the expert: Stephen Regel OBE Principal psychotherapist and director, Centre for Trauma, Resilience and Growth [email protected] Stephen Regel is director of the Centre for Trauma, Resilience and Growth, Nottinghamshire Healthcare NHS Trust, honorary professor at Nottingham University, and senior fellow of the Institute of Mental Health, Nottingham. He has more than 30 years’ experience working with victims of trauma and traumatic bereavement. His time is divided between clinical and teaching activities. Since 2005, he has been a member of the British Red Cross Psychosocial Support Team, assisting UK nationals affected by incidents abroad. He is the co-author (with Stephen Joseph), of Post-Traumatic Stress: the facts (Oxford University Press). He was awarded an OBE in 2013 for services to victims of trauma. Common reactions following a traumatic bereavement People who are traumatically bereaved commonly experience a range of reactions, which can include: • sadness, anger and rage, shock, or numbing; • guilt; • pervasive fear of anticipated violence toward self/others, sense of vulnerability; • compulsive behaviours of self-protection; • compulsive need for tangible reassurance of the presence and safety of other family members; • behaviours and emotions directed towards retribution; • reconstructed memories of an event not actually witnessed; • difficulty sleeping, impaired concentration, and irritability; or • mental and behavioural avoidance of memories associated with the circumstances of the death, as well as places, people or activities that evoke a memory of the event. These feelings and reactions are distressing, but are normal reactions to the abnormal situation of traumatic bereavement. Although they are common, different people experience them in different ways based on their circumstances and experiences. For example, the extent of reactions can be affected by: the age of the deceased and relationship with surviving family; the nature of the death; degree and impact of media involvement; or the involvement of other agencies including healthcare professionals, police and the justice system. Families affected by traumatic bereavement can feel isolated and stigmatised. Bereavement and loss can affect members of the same family in different ways. Different family members may well react differently and find various ways of coping, which can disrupt the family dynamic and cause greater problems in the long- term aftermath. In some cases, more complex problems such as post- traumatic stress disorder (PTSD) can develop. PTSD is a chronic and disabling condition which can become intractable if help is not offered in within a few weeks of exposure to a traumatic event 2 . While this is commonly associated with people who witnessed a traumatic death, it is also possible for people to develop PTSD after learning second-hand of the death of loved one through violent or unexpected circumstances. The more Best practice guidance

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Page 1: Early interventions following traumatic bereavement · A ‘traumatic bereavement’ is such when the loss is sudden, ... process (see Figure 1) to ... • appropriate reading or

A ‘traumatic bereavement’ is such when the loss is sudden,violent or unexpected; for example, a road traffic collision,suicide or homicide. The experience is terrifying andshocking; individuals cannot prepare for, or protectthemselves from, the event.

Many traumatically bereaved people find their profoundshock, loss and grief is compounded by a lack of help at thisterrible time. They need early support, information andadvice to help them cope, understand the reactions they areexperiencing, and make sense of what has happened.Accessing early support following a traumatic bereavementcan make a significant difference to someone’s long-termrecovery1. This report explores: common reactions totraumatic bereavement and how they develop; the role ofassessment; and some strategies to manage thechallenges that arise as a consequence.

Early interventions following traumatic bereavement

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About this report This guidance report is producedby Sudden, a not for profitinitiative helping suddenlybereaved people.

The report is one of a series aimed at professionals andother carers providing support to suddenly bereavedpeople. The research findings and care recommendationsin this report are obtained from a ‘meet the expert’ seminarheld in September 2013, co-ordinated by Sudden and led bypsychotherapist Stephen Regel OBE. Sudden thanksShoosmiths for sponsoring the seminar.

Sign up to SuddenIf you have not already done so, sign up to Sudden for freeto receive access to other reports in the series, quarterlyebulletins about sudden bereavement, and informationabout our forthcoming events on sudden bereavement. Sign up at www.sudden.org.

Meet the expert: Stephen Regel OBEPrincipal psychotherapist and director, Centre for Trauma,Resilience and Growth

[email protected]

Stephen Regel is director of the Centre for Trauma,Resilience and Growth, Nottinghamshire HealthcareNHS Trust, honorary professor at NottinghamUniversity, and senior fellow of the Institute of MentalHealth, Nottingham. He has more than 30 years’experience working with victims of trauma andtraumatic bereavement. His time is divided betweenclinical and teaching activities. Since 2005, he hasbeen a member of the British Red Cross PsychosocialSupport Team, assisting UK nationals affected byincidents abroad. He is the co-author (with StephenJoseph), of Post-Traumatic Stress: the facts (OxfordUniversity Press). He was awarded an OBE in 2013 forservices to victims of trauma.

Common reactions following a traumaticbereavement

People who are traumatically bereaved commonlyexperience a range of reactions, which can include:

• sadness, anger and rage, shock, or numbing;

• guilt;

• pervasive fear of anticipated violence toward self/others, sense of vulnerability;

• compulsive behaviours of self-protection;

• compulsive need for tangible reassurance of the presence and safety of other family members;

• behaviours and emotions directed towards retribution;

• reconstructed memories of an event not actually witnessed;

• difficulty sleeping, impaired concentration, and irritability; or

• mental and behavioural avoidance of memories associated with the circumstances of the death, as well as places, people or activities that evoke a memory of the event.

These feelings and reactions are distressing, but arenormal reactions to the abnormal situation of traumaticbereavement. Although they are common, differentpeople experience them in different ways based on theircircumstances and experiences. For example, theextent of reactions can be affected by: the age of thedeceased and relationship with surviving family; thenature of the death; degree and impact of mediainvolvement; or the involvement of other agenciesincluding healthcare professionals, police and thejustice system.

Families affected by traumatic bereavement can feelisolated and stigmatised. Bereavement and loss canaffect members of the same family in different ways.Different family members may well react differently andfind various ways of coping, which can disrupt thefamily dynamic and cause greater problems in the long-term aftermath.

In some cases, more complex problems such as post-traumatic stress disorder (PTSD) can develop. PTSD is achronic and disabling condition which can becomeintractable if help is not offered in within a few weeks ofexposure to a traumatic event2. While this is commonlyassociated with people who witnessed a traumaticdeath, it is also possible for people to develop PTSDafter learning second-hand of the death of loved onethrough violent or unexpected circumstances. The more

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significant the event, the greater the risk of mentalhealth problems such as PTSD developing.

Why early interventions for traumaticbereavement?

Studies3 have found that in many cases earlyinterventions are effective in reducing long-termpsychological complications by facilitating help-seeking. Traumatically-bereaved people benefit from:

• early help

• outreach help offered proactively

• information about the event and potential reactions

• ongoing help over time

• opportunities to meet with others who have experienced similar situations

Studies4 have recommended crisis interventionsshould: treat the trauma reaction as normal, andwithin context, rather than as a medical problem to befixed; and teach the bereaved person to understandand deal with their reaction through information,guidance and support. Such interventions helpindividuals and families recognise the course ofreactions and expectations following exposure totrauma and traumatic bereavement.

‘Early intervention’, in this instance, does not refer toformal counselling or therapy. Traumatically bereavedpeople often experience a powerful need to talk, butmany will not need therapy, and certainly not in thefirst few weeks. An intervention described as‘structured social support’ (described below) can helppeople work through their experiences and come toterms with what has happened.

Assessment

Traumatically bereaved people should ideally beassessed within weeks of the incident by suitablyqualified mental health professionals experienced inworking with traumatic bereavement. Thisassessment can be conducted in a number of ways. Acommon method is a series of meetings, with familygroups or individually, to assess their naturalresilience and existing sources of support. It is oftenhelpful for therapists working with a family to workwith a co-therapist present. Specialist input should besourced if assessing a child.

A ‘psychological triage’ – assessment to determinethe severity of someone’s condition –enables theperson to be offered appropriate care reflective oftheir needs. A ‘stepped care’ approach is oftenappropriate; this means someone can be ‘stepped up’from a lower level of service to more intensive orspecialist services as needed.

Assessment and re-evaluation should be a cyclicalprocess (see Figure 1) to take account of changes infamily circumstances and other developmentsbrought about by continuous traumatic stressorsfollowing traumatic bereavement. For example pressattention, legal proceedings, inquests, and new(potentially distressing) information coming to light asa result of any investigation, can all be sources offurther trauma. Support professionals should alsoconsider and prepare for anniversaries and otherimportant occasions that may affect the family.

Structured social support

The importance of social support cannot be over-emphasised as it is this, rather than formal therapy,which is usually of greatest help to the traumaticallybereaved. There is plenty of research5 which indicatesthe provision of social support protects people whohave experienced extreme stress and trauma fromdeveloping significant problems down the line.Conversely, the lack of social support is a strongpredictor of long-term distress.

One of the key considerations in the early phases isthe process of ‘normalisation’. Providing normalisinginformation about usual reactions and copingsuggestions soon after a critical event helps people toknow the landscape they will subsequently inhabit,which can reduce feelings of uniqueness and helpthem feel ‘normal’. Research has shown thatmisinterpretation or negative appraisal of one’s ownreactions can contribute to conditions such as PTSD6.Providing verbal explanations to help frame the eventand one’s own and others’ reactions can help preventunnecessary problems.

Following initial assessment, structured socialsupport should be provided. This support should bebased around education, information and guidanceon:

• the impact of traumatic bereavement, common reactions and the course of those reactions;

• emotional and physical reactions;

• fear cues, intrusive thoughts or reminders, e.g. ‘media triggers’ from TV or other media sources;

• dealing with mental and behavioural avoidances (see below for an important note on this);

Figure 1: cycle of assessment and re-evaluation

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• predicted time frame of emotional reactions and any influencing factors based on contextual circumstances;

• self-care such as following a routine, structuring the day, and maintaining family rituals;

• the possibility of changes in outlook and attitude and the impact this can have on coping strategies;

• other support services such as self-help groups or relevant charities;

• appropriate reading or self-help literature;

• meeting others with similar experiences (this should also be arranged after careful consideration through organisations who have experience in the area of the specific nature of the bereavement and be carefully and closely monitored); and

• other information, advice and guidance specific to the nature of the bereavement.

All the above should be discussed within the contextof the individual or family’s experience, usingexamples that are specific to them.

Note on mental or behavioural avoidance: this is acommon reaction, as outlined above, but if thisbehaviour becomes entrenched it can lead to moreserious psychological problems. Bereaved peopleshould be advised to monitor their own behaviour andthoughts for consistent avoidance of triggers andreminders. However, this should be treated withcaution: advising bereaved people to confrontreminders and fear cues, especially in the earlystages, can cause further trauma. This will depend onthe individual’s resilience and access to regularsupport, and should be judged on a case-by-casebasis.

Meetings should be informally structured to provide asense of safety and containment. It can help to givethe individual or family a brief written summary ofeach meeting, as it can be difficult to retaininformation under conditions of continuous stress.

Some may benefit from therapy or counselling at alater stage if they are suffering from markeddepressive symptoms or post-traumatic symptoms.Usually post-traumatic symptoms are more likely tooccur if: the individual witnessed the death of a lovedone; they are exposed to graphic images and detailsas a result of attending a trial; or they begin todevelop memories based on information they havebeen told about the manner of the death. The latter isknown as a ‘reconstructed memory’. For example, amother whose two young children were hanged by herhusband who subsequently hanged himself, hadregular nightmares for many years of three shadowyfigures hanging on an upstairs landing. She did notactually witness the scene, but had constructed amemory of the event which manifested in regularnightmares for several years until she hadpsychological treatment.

Assessment is crucial in deciding whether formaltherapy is required, or whether the individual or familyis simply showing normal reactions within the contextand circumstances of the bereavement. If individualsbegin to display specific trauma symptoms or showsigns of a clinical depression, they should be referredthrough their GP for assessment by suitably qualifiedtherapists. Recommended treatments may includetrauma-focussed cognitive behavioural therapy (TF-CBT), as recommended by the UK National Institutefor Health and Care Excellence (NICE). This treatmentmay include Eye Movement Desensitisation andReprocessing (EMDR), also recommended by NICE.EMDR has been shown to be useful in treatingspecific trauma symptoms including nightmares andpersistent intrusive thoughts that come to mind out ofthe blue7 . TF-CBT may not suit everyone, soindividual needs and preferences should bediscussed.

Many individuals who have experienced a traumaticbereavement describe instances where theircounsellor or therapist actively avoided in-depthdiscussion of the circumstances surrounding thetrauma or bereavement, because they themselvesfound it difficult or distressing. This leads the affectedindividual to ‘censor’ or minimise the impact of thetrauma, which inhibits their ability to tell a full storyand begin making sense of their traumatic loss.Therefore the therapist should have extensiveexperience in working with traumatic bereavement,and be able to provide a ‘safe’ environment andcontain the often painful and at times graphicdisclosures made in such encounters.

Conclusions

• Normalising the reactions that many individuals experience after a traumatic bereavement can reduce feelings of alienation and assist with processing the traumatic event and losses.

• Crisis interventions should treat the trauma reaction as normal and within context, and provide information, guidance and support on how to understand and deal with the reaction.

• Assessment of an individual or family’s resilience, presence of social support, and past ways of coping with previous difficult experiences can help predict what psychological problems may develop.

• Cyclical assessment and re-evaluation will identify developing problems brought on by continuous traumatic stressors following traumatic bereavement.

• Formal therapy or counselling should not be considered in the first instance, but ongoing assessment and evaluation will highlight any need for such interventions.

• An initial ‘psychological triage’ can help to assess the most appropriate support for referral in the first instance, using a ‘stepped care’ approach to refer on to more specialised support as needed.

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• Structured social support should be provided in an empathic, practical and pragmatic manner, taking account of people’s natural resilience.

• Information and advice on understanding and dealing with reactions to traumatic bereavement should be tailored to the individual or family’s experience.

• If formal therapy becomes necessary, evidence- based treatments such as TF-CBT should be considered alongside other supportive approaches.

• Early interventions using structured social support, and therapy if needed, should both be provided by clinicians experienced in dealing with traumatic bereavement.

Further reading:

Dyregrov, K and Dyregrov, A (2008) Effective grief andbereavement support. Jessica Kingsley, London

Regel S., Joseph S. (2010) Post-traumatic Stress: TheFacts. Oxford University Press.

End notes1 Dyregrov, A., and Regel, S (2012) Early interventions following exposure to traumatic events- implications for practice from recent research. Journal of Loss and Trauma: International Perspectives on Stress & Coping, 17:3, 271-291.

2 National Institute for Clinical Excellence in Health (NICE) (2005) The Management of PTSD in Adults and Children in Primary and Secondary Care: National Clinical Practice Guideline 26. Gaskell Press, Wiltshire.

3 Dyregrov., A (2001) Early Interventions – a family perspective. Advances in Mind-Body Medicine Vol. 17, 160-196.

4 Ibid.

5 See for example: Brewin C.R., Andrews B., Valentine J.D (2000) Meta-Analysis of Risk Factors for Posttraumatic Stress Disorder in Trauma- Exposed Adults. Journal of Consulting and Clinical Psychology Vol. 68, No. 5, 748-766 and Joseph, S., and Linley, P. A., (eds) (2007) Trauma, recovery, and growth: positive psychological perspectives on posttraumatic stress. Hoboken: Wiley.

6 Ehring, T., Ehlers, A., Cleare, A. J., & Glucksman, E. (2008) Do acute psychological and psychobiological responses to trauma predict subsequent symptom severities of PTSD and depression? Psychiatry Research, 16, 67–75.

7 Coetzee R.H., Regel S. (2005) Eye movement desentisation and reprocessing: an update. Advances in Psychiatric Treatment Vol. 11, 347-354

© Sudden 2014 Sudden is a division of Brake, the road safety charity. Brake is a registered charity, number: 1093244.Disclaimer: The products listed and views voiced in this sheet are not necessarily endorsed byBrake. Readers are advised to confirm the credibility of services and ideas prior to consideringimplementation.

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