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Dude, Where’s My Transition Plan?
By: Family Voices of Tennessee
Responsibilities Transition IEP Self-Directed Services/Advocacy Support Systems Student’s Advice $$/Transportation/Housing Pop Quiz
Session Overview
We serve parents, youth, family members, and professionals who have children with special health care needs
Assist families as they navigate public/private health systems
Educate families to access services, resources and supports
Work with/train health providers and other professionals
At the 2012 F2F grantee meeting we discovered each had a
piece of the transition process; TN= Adult section, KY=Youth
piece.
Collaboration made sense
“Dude, where is My Transition Plan” was born!
Who’s on first?
Each state interviewed
“transitioning aged youths”
We learned most youths are not
prepared for Transition
We learned youth need more
help with Transitioning to
Adulthood
“How could we improve the
process of transition?”
“Needed hands on experiences”
Are You Talking to Me?
Yeah, I’m Talking to You!
Start at an early age
Each child may differ
Responsibilities change as the child
gets older
Youth should be included in decision
making
Including health care and education
Does your youth know what they are
responsible for once they turn 18?
So Many Responsibilities…So Little Time!
As you grow, so will your
doctors!
Where does my specialist fit
in
Finding a doctor that meets
my needs AND covers my
health plan
Affordable Care Act…does that affect me?
Health Care
It’s about Civil Rights
Protects you from being discriminated against
due to your disability.
Knowledge of Rights Under the ADA
(American with Disabilities Act)
The ADA requires health care providers to
provide individuals with disabilities:
full and equal access to their health care
services and facilities.
reasonable modifications to policies, practices,
and procedures
ADA and Health Care Providers
an accessible exam table
or a patient lift
enough trained staff
available who can assist
you to transfer
a qualified interpreter
written materials
assistive listening devices
Examples of Health Care Provider Accommodations
It’s a
change
It’s
exciting,
yet a little
scary
What is “Transition”
Parents and teachers talk about transition planning. What is that?
It’s a plan, that involves
the whole team
When should transition
planning begin?
Make a New Plan, Stan
Your Individualized
Education Program (IEP) is
like a road.
“Individualized” means
about you.
It’s important to pay
attention to your IEP.
Ask your teacher about a
“Self-Directed IEP”.
What does my “IEP” have to do with transition planning?
You (the youth) are in charge
of the services you get.
Important thing to know:
can’t happen w/o self-
determination and self-
advocacy.
What are Self-Determination
& Self-Advocacy?
How can I learn to advocate
for myself?
What are Self-Directed Services and Self Advocacy?
Check it out…
Doing things you haven’t done before
But you don’t have to do it alone
The kinds of supports we need may change
Often we use more than one support at a time
Supports differ from person to person
What do people mean when they talk about “supports?”
Advice from other students Students
listen to other students
Here’s what they say:
What’s the word?
Start early
Actively Participat
eAsk ?s
Learn about
Resources
Learn Independent Living skills
Learn to Drive/use
public transportatio
n
Set goals
Services available after
high school may not be
the same services
during high school.
You will have to locate
new services and
provide information
that you qualify for
those services.
After High School, the Rules Change
Let’s Compare:
Do you have a budget (or know what
a budget is)?
What’s a “money mentor”?
Who could you ask to be your
“money mentor”
Other possibilities
Business owners
Neighbor
teacher
Money Matters
Where do you want to call home? It’s not just “where you
live”
What other choices are available besides living with my parents? Renting Roommates Independent living program
There’s No Place Like Home
How do you get
from one place to
another?
What are your
transportation
options?
Easy Rider
So, now what?
Don’t Just Stand There, Bust a Move!
Complete quiz
Discuss answers
Pop Quiz
Questions?
A special thank you to the Kentucky Family-to-Family Health Information Center for collaborating with us on this project.
Thank you…
Belinda HotchkissFamily Voices Director
Tennessee Disability Coalition615.383.9442
Toll Free: 1.888.643.7811
Tonya BowmanMiddle TN Parent Navigator/Newborn
Hearing Parent [email protected]
www.tndisability.org