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Drakenstein Palliative Hospice

Our service is growing and the vehi-cles are old. We urgently need a passenger carrying vehicle to transport patients and children to our various programmes; who can help?

Fuel: Sponsor a tank per month

Any donation counts: For R150 we

can provide a warm meal to 200 chil-dren per day

Hospice Friends: Admin, shops, day care, reading, school work, re-ception etc.

Non-perishable goods and fresh produce

Craft materials & stationery

Please help

Diemersfontein Drakenstein Hospice

Spring Walk 26 Oct

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If you help a butterfly out of the cocoon, it will never fly. A safe, nourishing environment will

ensure that a pupa will develop into a butterfly.

‘Everybody who attends programmes or events at DPH, gets food to eat, everybody…’

http://www.youtube.com/watch?v=Rvepe7jhWxw

Alternative stories of hope and hopefulness, capa-bilities of resilience, respectfulness, hopefulness, dignity, community, joy, spontaneity and an eager-ness to learn are some of the ingredients available to ensure sustainable health care practices and community transformation.

DPH staff facilitate and mentor providing the nour-ishment for patients and clients to reach their health, life and living potential. The DPH cross-cutting themes of accountability, self-confidence, personal capacity development, justice, ethics and gender fairness, form the basis to sustaining ‘reasonable hope’ for a less dis-eased community. The activities provided include therapeutic groups, individual play, home visits, health literacy, pre-vention and promotion activities, life and job skills development, recreational activities, dancing, sing-ing and sharing a meal.

The new courtyard roof and computers facilitated by Paarl Round Table and the container ablution block and classrooms sponsored by Breadline Afri-ca and Franschhoek Valley Rotary provided the impetus for the Partnership Celebration held at Butterfly House Palliative Resource Centre. The home based care, psychosocial and educational support service were demonstrated to acknowledge the generous support of invited guests. Currently partnerships are enabling a palliative care service to be provided to 380 pa-tients, 250 orphans and vulnerable children and 250 Butterfly House community vulnerable children per month.

Hospice week, the first week of May, and the 26th October 2013 Diemersfontein Drakenstein Hospice Spring Walk were launched. Celebrating partner-ships was an opportunity for Hospice staff, volun-teers, community, partners and sponsors to share achievements and enjoy sustenance from our cooking school. Thank you to all who make this possible. Hope has Wings. Elizabeth Scrimgeour CEO

Thank you to Briteside Television for the sensitive, professional DVD: see youtube clip

In January each year we have a combined staff meeting to discuss non-negotiables such as security, quality, ethics and justice, the strategic objects, cross-cutting themes, outcomes and focus areas.

At the Partnership Celebration our chil-dren entertained the guests with demonstrations of the various pro-grammes and sang ‘Hope Has Wings’, our theme song.

31st May

‘Hungry for Love’: Soul Food

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Palliative Care is holistic care; care for the mind, the body, and

the soul. Our holistic care includes providing treatment, care, sup-port, prevention and promotion of health and wellness to all infected

(our patients) but also affected (families), by life-threatening illness-es or life-limiting conditions. In Mbekweni, an area with a high dis-

ease burden, iBhabhathane Resource Centre is used as our base.

iBhabhathane, meaning little butterfly, is our newest resource cen-tre, which was opened on World Aids Day, December 1st 2011. A

dedicated team of Home Base Carers work in the Mbekweni area with our Palliative End

of Life and Palliative Chronic patients and their families and provide preventative and promotive health initiatives to this vulnerable community. The team takes care of daily

physical, emotional, social and spiritual needs and provides health literacy and adher-ence support and information keeping the community healthy through the promotion of

health resources and healthy life style practices. Fransiena Volkers who has been work-ing at DPH since the beginning of the community home-based care era is managing the

team very professionally with Social workers and Professional Nursing staff keeping a watchful eye.

These dedicated staff are not only Home Base Carers but also fulfil the roles of Youth and Child Care workers co-ordinating bi-weekly adherence, academic and psychosocial

support and recreational programmes at iBhabhathane. Every Thursday a group of twenty adults enjoy attending our fun, yet educational and developmental programmes.

And yes, at all the programmes we provide our clients with a cooked meal; patients, children and adults receive food for the body, food for the soul, food for the mind

and most of all ... food for thought! Jacques Beukes Care Services Co-ordinator

Eloïse Cronje is an occupational therapist and our newly ap-pointed community resource centre co-ordinator situated at Butterfly House. Her brief is to add to the quality and depth of the programmes and to find a way of being appropriately re-sponsive to the identified needs in the communities through engaging with the communities in which we work. A tall order and a big challenge so where to start? I asked Eloïse about her first impressions and with astonish-ment she said; ‘They don’t know me and yet I have received so much love. The children are hungry for love and yet they give so much love. The staff also freely share love and passion in their interactions thereby providing a safe, nurturing environ-ment to all attending the programmes. She also witnessed that the staff know each child individually adding to the child's expe-rience of a personal identity and self worth and to being part of something. ‘They experience knowing that somebody believes in me, providing something extra to achieve and live for’. Eloïse mentioned hope, that the children and adults have hope. I asked her about hope, what to her was the meaning of hope? Eloïse said; Hope is knowing and the belief, that whatever the circumstances you are in, there is a solu-tion, a possibility of change. Hope gives you choices and

Butterfly House creates the environment and the community that nurtures hope, the possibility of life changing for the bet-ter’. ‘The professional and kind manner of the staff has created a sense of community beyond the buildings that impacts on the kind of relationships people have with each other within the community’, she said. ‘Hospice is so much more than ex-pected. It is a holistic approach to building relationships through various activities such as caring for people in their homes, providing food and programmes which are planned and focussed on personal development and also impacting on the

whole community’. Eloïse said that it was the individual stories of transformation and change that made the greatest impact on her experiences and impressions of Hospice and Butterfly House. ‘The story of the young man who’s attitude to life has changed through the cooking school, the other one who has started to dream of a future, the new world opening with the computers, the sponta-neity and self expression with the dancing and singing, the stories of academic improvement…’ there are so many.

Feeding mind, body and soul

We are very privileged to have an occupational therapist with

heart and insight as part of the team and a team who has wel-comed Eloïse with open arms and made her part of our commu-nity. This is food for the soul.

Petro, Herschal and Eloise the Care Team Co-ordinators in front of the new Franschhoek Valley Rotary and Breadline containers.

The Hospice Palliative Care Association (HPCA) of South Africa opposes euthanasia and doctor assisted suicide on the basis that it does not in fact support an individual’s dignity nor express the value of that individual. It is also an unnec-essarily extreme measure given the palliative alternatives that neither prolong life nor hasten death. The philosophy of palliative care is holistic, paying attention to the multidimen-sional aspects of the whole person. The expressed desire for euthanasia needs to be explored holistically as an expression of existential suffering. This is done by engaging the patient in a dialogue with active listen-

ing and empathy, and exploring the following themes: Reality of the disease progression Exploring and understanding the person’s goals for care Perceptions of their suffering and sense of burden to

others Anticipation of the dying trajectory To explore the timing of desired death (this is often seen

as sometime in the future – not yet) The desire for good quality end-of-life care The care and support that is or can be offered by good

health care and supportive significant others care Clinical depression as co-morbidity.

This dialogue requires clinicians to be skilled in sensitive communication, to have knowledge and skills in clinical care and in addressing bioethical issues. An expressed wish for euthanasia may represent a per-son’s wish for a choice of action, of having an option or possible future way out. HPCA of SA acknowledges that pa-tients have a right to be involved in the decision-making process concerning their treatment or non-treatment, and that a request by a patient for euthanasia is identified as part of this process. Understanding and respect for this alter-

nate view point is not the same as ethical acceptance of this view.

This is the approach to take to address fears people may have about uncontrolled pain and using this as an argument for the legalization of euthanasia. The fear of pain is an emotive hook to engage support for the legalization of eu-thanasia. Focusing on fear of pain rather than relief of pain, supports concerns that people will be euthanized rather than being offered pain relief. Dr Liz Gwyther HPCA CEO

Euthanasia Position

Buchu is a natural anti-inflammatory, anti-septic, diuretic and bronchial dilator. It brings relief to so many patients with cancers of the mouth and lungs and patients with urinary catheters. Wounds are cleaned with Buchu water and dressed with Buchu oil mixed in aqueous cream. Eddie Godfrey has been donating Buchu water and oil to our patients for 12 years. Thank you Eddie

A full wash demonstration by 3 of the HBC team at the Partnership Celebration event. What dedicated professional ladies who have assisted the sickest patients in our district to have comfortable days.

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Department of Health is focus-sing on prevention and promo-tion of health and wellness. Our psychosocial department has gained two social auxiliary work-ers, Nicolette Zoutman and Sally Appollis. Together with the so-cial workers Lee-Anne Opper-man and Nadia Plaatje they make up the psychosocial de-partment as part of the interdisci-plinary team. This team is ideal-ly placed to respond to the holis-tic health literacy and psychoso-

cial needs of our patients and their families within the Drakenstein district adding the spice to life and living.

Adding Spice to Life

The Buchu King

Treatment, Care & Support

Care Resources

At Hoekstra Farms

Koteng

In February 2013, Juan E. Méndez, the United Nations Special Rapporteur on “torture and other cruel, inhuman or degrading treatments or punishments”, presented a report to the UN on torture in health care. He identified denial of pain relief as being tantamount to torture. He recognised that “generally, denial of pain treatment involves acts of omission rather than commission, and results from neglect and poor Government policies, rather than from an intention to inflict

suffering.” He calls upon all States “to ensure full access

to palliative care and overcome current regulatory, edu-cational and attitudinal obstacles that restrict availability

to essential palliative care medications, especially oral morphine; and to develop and integrate palliative care

into the public health system by including it in all national

health plans and policies, curricula and training pro-grammes and developing the necessary standards, guide-

lines and clinical protocols.”

109 Breda Street Paarl PO Box 6130 Lady Grey St Paarl 7622 Telephone: (021) 872-4060 Fax: 086 611 5473 Email: admin@drakensteinhospice.org.za Website: www.drakensteinhospice.org.za Office Hours: Mon to Fri 8am till 4.30 pm Emergency No: 082 200 4221

Printed by Barlinka Press Paarl: 021 8721236 4

Thank you for supporting Hospice

Paarl’s BIGGEST family charity walk

26 October 2013

Diemersfontein Drakenstein Hospice

Jeffery launched the 2013

Spring Walk at the cele-

bration event. He remind-

ed all that by participating

in this event you are help-

ing DPH to improve the

quality of life of individu-

als, families and commu-

nities by providing care,

support and treatment to

those affected by life

threatening illnesses.

www.dphspringwalk.co.za Please reserve this day and be part of the fun!

Corporate Social Responsibility

Tax Deductable Benefits: We are a Sec-tion 21 Company and all donations to us are tax deductable under Section 18A of the Income Tax Act.

Improve your BEE Score: DPH is an ideal NPO to donate to for businesses wishing to increase their BEE score, mak-ing it a win-win for all. We are a BEE ver-ified organisation.

Pay less estate duty: Being a Section 18A Tax Benefit company means that your family will save on estate duties.

The Rotary Club of

Franschhoek Valley

(RCFV) is delighted to

provide container-

based classrooms and

an Ablution block at

Butterfly House. This

project was delivered in

close cooperation with

Rotary Clubs in the UK:

Beckenham (South

East London) and the

City of Hereford. Both these clubs organised

successful local fund-raising events. Con-

sulting engineers PD Naidoo & Associates

very generously donated the proceeds from

their successful golf day to this event.

The RCFV club's fund raising efforts for

this project were mainly a ‘Christmas in July’

lunch and a Burns Night Supper, both of

which raised significant amounts from auc-

tions of scenic flights, wines and paintings.

Most of these auction items were sponsored

or provided directly by members of the club

and we are indeed very grateful to these

individuals for their magnanimous and self-

less generosity.

The RCFV offers its best wishes and on-

going support to the management and staff

of the DPH and to the children of Butterfly

House. It has been our pleasure to partner

with you and to participate in providing a

hopeful future. David Courts

Donate don’t dump Please support our Hospice shops in Paarl and Welling-ton… we sell anything! They are a wonderful community resource and project providing inexpensive, good quality clothing to all and are a valuable funding resource for supporting our free service to our community. Come and browse for wonderful bargains; a treasure trove of

surprises... just around the corner.

Jeffrey Kleinsmith Siyakhana & Sakaza

Round Table and

DPH have a long part-

nership history with

the building and fur-

ther development of

Butterfly House. We

are very proud to be

associated with this

organization. Our close

relationship with But-

terfly House has ena-

bled us to see the

growth within the programmes and the

need for extra space and computers.

A twinning agreement between Delft

Round Table in Holland and Paarl Round

Table has enabled the raising of funds for

11 new computers and the construction of

a roof over the courtyard at Butterfly

House. The construction of the roof was

made possible with the help of our own

architect, Bernard Frey, ACA Staalwerk,

Coenie Nelson, Patson von Willigh Builders

and Lategan’s Sementwerke.

At Round Table we are passionate about

making a difference. It therefore gives us

great pleasure to develop and implement

projects that benefit our community.

Thank you DPH for this partnership and

for making it possible for Round Table to

make a real difference in one of the most

vulnerable areas in our district.

Adriaan van Aarde

Additional Service Private Palliative Home Care

A paid for homecare service under the super-vision of our professional staff for persons

needing extra daily care. A variety of Home Care Packages are offered. Please contact us

for rates and information.

Franschhoek Valley Rotary Paarl Round Table

Partnership Celebration

A Celebration of Partner-

ships was held on 10 April

to launch the Spring Walk,

the new roof, computers,

containers and thank and

celebrate partners who in

various ways made the past

year possible. We cannot do this work alone and love sharing the joy of what can happen

through combined effort and ownership… what a privilege! A flavourful, nourishing team.