Dr Lloyd Humphreys

Third sector providers

Apps and softwareHealth and social care

Consumer tech

• Mental health• Hospices• Substance Misuse• Charities• Advocacy groups

• Electronic medical records (EMRs)

• Condition-specific applications

• Health and wellbeing apps

• Primary care• Community providers• Hospitals• Mental health Trusts• Social Care• Prison and probation

THE LANDSCAPE

Pharmacy

Pharmacies

Secondary care/Hospital Community teams

Employers

Relatives

GP

Charities & Patient Advocacy Groups

Government & Commissioning bodies

Researchers

Social services

Mobile device and app developers

Patient

Primary care services

Specialist services

THE PROBLEM

Hospital services

GP

• The patient doesn’t own the data

• Often read-only

• Multiple sites, multiple logins

• They cannot be shared with others

• They are not portable

TRADITIONAL PATIENT PORTALS – THE SOLUTION?

Third sector providers

Pharmaceuticals

Pharmacies

Secondary care/hospitals

Primary care health services

Employers

Relatives

GP

Charities & Patient Advocacy Groups

Government & Commissioning bodies

Researchers

Mobile device and app developers

Community teams

Specialist services

Social services

HEALTH AND WELLBEING: UNDER THE PATIENT’S CONTROL

H O W D O W E A C H I E V E C I T I Z E N L E D - H E A LT H C A R E I N L A N C A S H I R E ?

internet

firewall

NHS network

1. DEVELOP A SUSTAINABLE ARCHITECTURE: LANCASHIRE PATIENT RECORD EXCHANGE SERVICE (LPRES)

2. CREATE OPEN ARCHITECTURE THAT INSPIRES INNOVATION

• Open REST APIs

• Apps built on top of the core layer

• Connected vendors and providers

• Use standards provided by NHS England (ITK toolkit and Blue Button)

• Open source wherever possible, but keep a consistency at the core

3. ENSURE INFORMATION GOVERNANCE AND SECURITY

• NHS N3 hosted• Compliant with HIPAA and European data

protection• ISO27001• Unique public/private key encryption

• Have patients own the data

4. MAKE IT ACCESSIBLE

Translated into 11 languages and can be changed between versions instantly

• Access information offline

• Dedicated smartphone app

• Compatible with all browsers, including IE6

• Mobile browser optimised

5. CREATE A VIBRANT MARKETPLACE

• Work with everyone and anyone in a spirit of collaboration

• Foster “coopetition”

5. START SMALL AND SUCCEED

From 1 site in Great Ormond Street Hospital to 43 sites across the UK

• Hospitals• CCGs• Local Authorities (social

services)• Charities• Specialist centres• Device manufacturers• Pharmaceuticals• Software providers

W H AT C A N B E A C H I E V E D W I T H A PAT I E N T- L E D A P P R O A C H ?

B E Y O N D T H E O R Y A N D I N T O P R A C T I C E

W H Y I S T E C H N O LO G Y I M P O RTA N T I N E N D - O F - L I F E C A R E ?

1 . CO O R D I N AT E D C A R E

SECURE SINGLE INTEGRATED DIGITAL RECORD

Held and controlled by the patient, all medical and care planning information is consolidated in one record and available to everyone in the person’s health network, including hospices, GPs, social services, acute hospitals, specialist centres and charities.

Available on any device connected to the internet with no software installation.

W H AT C A N B E AC H I V E D W I T H A PAT I E N T- CO N T R O L L E D R E CO R D ?2 . CO M M U N I C AT I O N

Message people in your network to get the right help, quickly

Conduct online video consultations and have all the information to hand

Mobile working and remote on-calls become a reality

COMMUNICATION

W H Y I S T E C H N O LO G Y I M P O RTA N T I N E N D - O F - L I F E C A R E ?

2 . M A N AG I N G C A R E

SYMPTOM TRACKERS, MEASUREMENTS AND RESULTS

Lab results and information direct to the patient

Monitor symptoms at home, take measurements and share

Track medication compliance through Automatic Medication Management

DEVICE CONNECTIVITY

100+ integrations, including fitbit, withings, jawbone, Nike+ etc.

3 . C A R E P L A N N I N G

TREATMENT PLANNING

Update treatment plans remotely, e.g. change medication regimes

All aspects of end-of-life planning completed individually or collaboratively and shared with the people the patient chooses.

Independently witnessed, it is legally verified.

END-OF-LIFE PLANNING UNDER THE PATIENT’S CONTROL

Using a bracelet or card, with a patient ID and pin number, allows emergency medical workers to access essential medical information immediately

Any care directives can be legally implemented as they have been witnessed and verified

EMERGENCY INFORMATION

S U M M A R Y

1. Putting patients in control benefits everyone and overcomes information sharing problem

2. Turns healthcare from on/off to always available

3. Makes remote working possible

4. Empowers patients and others to manage care proactively

5. Creates a vibrant local economy

Q U E S T I O N S ?