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7/30/2019 Disability Law Annual Report
1/12
2012 Annual Report
EqitDiit
Respect
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KEVIN MURPHY, President of the Board of Trustees
W I Spprt te DLC
I am privileged to serve as president o the DLC Board o Trustees. I have been asupporter o underdogs since my childhood, having been a smaller, slower childusually picked last or any sporting team during school recess. My rst proessionalcareer was nursing, primarily in psychiatric and mental health settings. That experiencehelped teach me patience and compassion or individuals with mental illness and theiramilies. My second proessional career has been in law, both public and private practice.I admire the legal sta o the DLC or their dedication to their work, including theirproblem-solving approach on behal o individuals with physical, intellectual, and mentaldisabilities.
ADINA ZAHRADNIKOVA, DLC Execuve Director
Te Rit Mmet t Wr Teter
Since our inception 34 years ago, the Disability Law Center has been working to createa community that we can all be proud o -one where every Utahn, regardless o theirabilities, is able to live, work and thrive without ear that they will be discriminatedagainst, bullied in school, denied access to basic programs and services or be the victimso abuse or neglect.
While we eel privileged to serve Utahs citizens with disabilities and their amilies, werecognize that now is the right moment to really look at our work and the needs o ourconstituents to ensure that we remain a true catalyst or social justice in our communityOver the past several months, DLC sta, board members and key community partnersworked on an ambitious, dynamic strategic three year plan that will serve as a roadmap or the DLCs uture steps. I thank all o you or your unwavering support oour advocacy or those most oten overlooked and unheard. I we continue to worktogether, we will one day eliminate all physical and attitudinal barriers that people withdisabilities continue to encounter in their everyday lives.
FRoM ouR ChaIR anD DIRECToR
or Prters
and Jusce for All
Utah Developmental Disabilies Council
Center for Persons with Disabilies, Utah State University
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By ThE nuMBERS
Representaon at Hearings 87
Representaon at Meengs 804
Abuse & Neglect Allegaon 230
Ligaon 13
Technical Assistance 212
Total 1346
Number of People Served and Method of Advocacy
804
87
212230
13
Physical Disability
Mental Illness
Intellectual Disability
Brain Injury
Health Impairments
1677
1637
579
242
278
People Served By Disability Type
0 20 40 60 80 100
Education / Training Activities
54
Public Information Activities
Outreach
Educating Policy Makers
General Public Information
93
46
31
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Ater Ron broke his back and his wie survived a brain tumor, theydecided to purchase a home in a Planned Unit Development.
The new home oered a simple liestyle. It was one level and on asmaller lot. They wouldnt have to worry about yard care or snowremoval. They looked orward to a more manageable way o lie.
Once settled into their new home, they discovered that instead o
relieving their burden, the new neighborhood turned out to be anightmare.
Ron and his neighbors couldnt saely navigate their own streetsbecause the sidewalks and driveways were not accessible. To makematters worse, the city reused to provide basic services such as trashand snow removal because the neighborhood wasnt compliant withthe Americans with Disabilities Act.
When the DLC attorney led a complaint and represented the home-owners with disabilities, the developer was held accountable. Heagreed to make the changes at a cost o $144,000.
Now Ron, his wie and their neighbors can look orward to living theliestyle they worked so hard or.
For more details about Rons story go to:http://www.disabilitylawcenter.org/successstories/#ron
Ron WaS STuCk In a houSIng MESS.
WE CLEaRED a PaTh FoR ThE nEIghBoRhooD.
Fair Housing
Ron Tollefson, Vernal
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Ashley has multiple disabilities that make it dicult or her to cope with stress. As shegrew older, she became more violent at home. Her parents were concerned about keepingher sae. They talked to health proessionals who told them to admit her to Utahs insti-tutional acility or individuals with intellectual disabilities.
The plan was that Ashley would get short-term specialized treatment to help her stabilizeso that she could return to her amily and resume her lie. That was when she was our-teen. At age nineteen, she was still in the institution.
During her th year under institutional care, Ashleys inappropriate behaviors increased.The acility responded by isolating her rom her peers. She became even more shut downand withdrawn. Then the school reused to let her attend. Her educational services werecut rom a ull time schedule at school to two hours a week in her room.
Ashleys mom called the DLC or help.
The DLCs Abuse & Neglect and Education Advocates worked together. Months o per-sistent advocacy and negotiation paid o.
Ashley was moved rom the institution into a home o her own. Now she is enjoying newexperiences and learning to live in a world that aords her choices. She has also returnedto a classroom where she gets an appropriate education.
To learn more about Ashleys story go to:http://www.disabilitylawcenter.org/successstories/#ashley
aShLEyS TREaTMEnT PLan haD gonE STaLE.
WE CaME In To hELP CLEan houSE.
Community Integraon
asle t hme
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A stroke robbed Patty o her voice but it couldnt take her ideas, her warmth orher sense o humor. Patty was determined to nd a way to express hersel. Allshe needed was technology like Stephen Hawking uses.
Unortunately, Medicaid only covers speech devices or children.
The DLC spoke up or Patty. We led suit arguing that Medicaids policyillegally treated people dierently. The Utah Court o Appeals agreed and
ordered Medicaid to provide Patty with the device.
As a result of the decision, many more devices and services that are available tochildren are now available for adults. From now on, Patty and other adults willbe able to share their voice with all o us.
To learn more about how the DLC attorneys helped Patty,visit: http://www.disabilitylawcenter.org/successstories/#patty
PaTTy LaBoRED To WhISPER.WE MaDE SuRE hER voICE WaS hEaRD.
Access to Services
Pay Olguin, Ogden
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As advocates, we periodically refect on the people whose liveshave infuenced ours. We also consider who might be willing tolet us share their story or the benet o others. Sadly, this is notalways possible because our clients are requently unable to pro-tect themselves.
They languish in nursing homes, jails and prisons, public andprivate institutions, and in regular homes in neighborhoods likeyours and mine. They oten go unnoticed unable to expressthemselves in ways that are easily understood. Many depend onothers to care or their most basic needs.
All too oten, even basic needs go unmet. Many live in con-ned spaces, go hungry, and are ignored by those around them.Through our monitoring, investigation, legal advocacy, andcollaboration with other advocates, we are able to uncover someo the most serious cases.
Telling their stories is dicult because many times, we only cometo know them under unspeakable circumstances. However, to usthey are more than the trauma that has been inficted upon themThey are a brother or a sister, a parent, a riend. In an eort toprotect them, we dont share their name or ace. We honor theirlives each day by ensuring that their abuse, neglect and sueringis not ignored or orgotten..
To read about an advocates rst experience with monitoringwork, visit: http://www.disabilitylawcenter.org/successsto-ries/#nameless
ThEy aRE naMELESS anD FaCELESS.WE MakE SuRE ThEyRE noT FoRgoTTEn.
Abuse & Neglect
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aLL kInDS oF MInDS
What do an Emmy winning lm director, a world-renownanimal behavior specialist, an exquisite jewelry company, theUtah Film Center, a marketing rm, the Utah DevelopmentalDisabilities Council and Utah State University have in com-mon?
They all partnered with the DLC to illuminate peoples viewso disability.
The message: diversity o minds and bodies enriches ourcommunity, while treating people dierently hurts us all.
The DLC sponsored events promoting this message through-out the year.
The DLC honored Dr. Temple Grandin with the rst annualPeek Award or Disability in Media. At ten venues overthree days, Dr. Grandin shared the message that all kinds ominds should work together. More than 3, 000 people heardher message in person.
See KSLs coverage o this event at:http://www.ksl.com/?nid=148&sid=17905546
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Even minds we dont
understand grow beautiful things.
Let s rethink mental illness.
DISABILITY LAWCENTER.ORG
ShaPIng aTTITuDES
The Lets Re-Think Mental Illness cam-paign, initiated by the DLC was designed toreduce the stigma associated with mentalillness. The campaign ran or six weeksthrough the holiday season. This time periodwas chosen because research indicates thatthe general public tends to experience higherlevels o mental stress and emotional turmoilat that time o year. An estimated 1.3 millionpeople along the Wasatch Front, saw or heard
our radio, television, web, billboard andcinema messages.
The widespread use o media to educate thegeneral public was a new approach or theDLC with lasting positive outcomes.
The DLCs Community Justice Awards, and rst-evergala event, were held at The Leonardo. Stop Bully-ing Now was the theme o the evening. Paralympia
Muy Davis was the keynote speaker.The Community Justice Award recipients were cho-sen or their work to stem the tide o bullying. Tolearn more about the honorees, go to: http://disabilitylawcenter.org/2012-cja-honorees/
Even minds we dontunderstand createbrilliant things.
Lets rethinkmental illness.
DISABILITY LAWCENTER.ORG
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Kevin Murphy, PresidentBryce Field, Vice PresidentJe Burley
Tom BrownleeBarbara CampbellJoshua CannonMike ChidesterJared FieldsLeslie FrancisWilliam G. GibsonKelly Holt
Claire Mantonya, DD Council LiasonKen J MartinezPaul Newman
James ONeillAngela PeleschkaMike PerryJackie RendoRon RoskosMaria SchwartzSylvia Scott, PAIMI CouncilGrace Zuckerman
Sylvia Scott, ChairAlisha Giles, Vice ChairMichele Aimone
Marta BuriekRandy HuntingtonJackie RendoMary SarverVictor ScottEmily WaddoupsPaul Williams
Ficils
Brd f Trstees PaIMI Ccil
Te Disbilit Lw Ceter ts te members f te Brd f Trstees d te PaIMIAdvisory Council for their many contribuons.
2011 2012
REvEnuESFEDERAL AWARDS
US Dept of Educaon $351,647 $312,602
US Dept of Health and Human
Services $696,474 $853,503
US Social Security Administraon $108,858 $101,700
US Dept of Housing and Urban
Development - $143,548
OTHER GRANTS, FOUNDATIONS,
DONATIONS AND REVENUES $215,551 $254,184
ToTaL REvEnuES $1,372,530 $1,665,537
EXPEnDITuRESPROGRAM SERVICES $1,193,035 $1,404,036
GENERAL AND ADMINISTRATIVE COST $176,068 $158,834
FUND RAISING COST $9,462 $8,072
ToTaL EXPEnDITuRES $1,378,565 $1,570,942
ChangE In nET aSSETS $(6,035) $94,595
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ThankS To ouR SuPPoRTERS
Corporations & FoundationsCorporations & Foundations
Individuals
Kenneth Allsop
Richard F. Armknecht
Robert Baird
Melissa J. Barbanell
Carl B. Boyd, Jr.
Charisma V. Buck
Doug & Barbera Campbell
Michael ChidesterJane Conard
Danielle Eyer
Dennis C. Ferguson
Leslie Francis
Dianna M. Gibson
Trevor E. Gordon
Kenneth B. Grimes, Jr.
Paul R. Haik
Kaylie Hardy
Jane F. Harrison
Joseph E. Hatch
Douglas & Robin Hough
Dixie S. Huefner
Krisne E. King
Jonathan C. Lambert
Claire Mantonya
Jery Mariani
Kim M. McGregor
Macoy A. McMurrayAmanda B. McPeck
Robert J. Moore
Renee Morita
Kevin Murphy
Trent D. Nelson
Mahew L. Nielson
Dawn S. Perry
Kenneth Rigtrup
David E. Rosenbloom
David E. Ross II
Richard K. Shimabukuro
Dr. Herbert & Patricia Shoemake
R. Kyle Treadway
George T. Waddoups
Jennifer Ward
Monica Whalen
Camille S. Williams
Kathryn L. Wyer
Adina Zahradnikova
Anonymous
Baird Foundaon
Epic Brewing
George & Dolores Dore Eccles Foundaon
Key Bank Foundaon
Kenneco Utah Copper, Corp.
Lagoon Corporaon
Locke, Lord, Bissell & Liddell
Prevent Child Abuse Utah
Snell Wilmer Law Firm
Utah State University Credit Union
Utah Bar Foundaon
Van Co Law Firm
Wild Willow, LLC
This publicaon is funded in part by the U. S. Department of Health and Human Services, the Center for Mental
Health Services, the U.S. Department of Educaon and the Social Security Administraon. The contents of this
publicaon arre the sole responsibility of the authors and do not represent the ocial views of these agencies.
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or MissiTo enforce and strengthen laws that protect the opportunies, choices and legal rights opeople with disabilies in Utah.
205 North 400 West, Salt Lake City, UT 84103
1.800.662.9080 1.801.363.1347 Fax: 1.801.363.1437
www.DisabilityLawCenter.org
facebook.com/disabilitylawcenter