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Dementia Prevalence Calculator
Improving the diagnosis of
dementia, and diagnosis pathways
Kate Schneider, NHS South of England (West)
NHS Outcomes Framework
Enhancing quality of
life for people with
long-term conditions
This domain will capture
how successfully the
NHS is supporting
people with long-term
conditions to live as
normal a life as possible.
Kate Schneider, NHS South of England (West)
In 2011/12, data indicated the
average rate of diagnosis in
England was only 43%
(Alzheimer’s Society, 2011)
Scale of the challenge
Kate Schneider, NHS South of England (West)
The growth in the number of people with dementia
Kate Schneider, NHS South of England (West)
A quantifiable ambition
for diagnosis rates
Prime Minister’s Challenge on Dementia, 2012; NHS Mandate,November 2012
Kate Schneider, NHS South of England (West)
A quantified ambition that increases the
percentage of people with dementia
who have a formal diagnosis should be
embedded in the NHS and used to
lever change
All Party Parliamentary Group, Unlocking Diagnosis, July 2012
Kate Schneider, NHS South of England (West)
The diagnosis, treatment and care of
people with dementia in England
should be among the best in Europe
NHS Mandate
Kate Schneider, NHS South of England (West)
To make measurable progress towards
achieving this by March 2015, in
particular ensuring timely diagnosis and
the best available treatment for
everyone who needs it, including
support for their carers.
Our objective
Kate Schneider, NHS South of England (West)
• work with CCGs, driving significant
improvements in diagnosis of dementia, and
capturing this in a national ambition for
diagnosis rates built up from local plans
• publish the expected level of diagnosis across
the country through to March 2015
• work with CCGs to support local proposals for
making the best treatment available
The NHS Commissioning Board will
Kate Schneider, NHS South of England (West)
• Dementia Prevalence Calculator (v1)
• Tools and resources
• Templates - Diagnosis Improvement Plans
(CCGs; General Practice)
Improving rates of diagnosis, and the diagnosis pathway
Kate Schneider, NHS South of England (West)
NHS Outcomes Framework 2013-14; CCG Planning Guidance 2013-14
Domain 2:
CB_A9: Estimated diagnosis rate for people with dementia
•Improving the ability of people living with dementia to cope with symptoms, and access treatment,
care and support
Kate Schneider, NHS South of England (West)
Dementia Prevalence Calculator – CCGs & ATs
Kate Schneider, NHS South of England (West)
Dementia Prevalence Calculator - General Practices
Kate Schneider, NHS South of England (West)
Dementia Prevalence Calculator - Public Health, Health & Wellbeing Boards, LAs
Kate Schneider, NHS South of England (West)
Bristol CCG: Bradford City CCG:
Kate Schneider, NHS South of England (West)
Bristol CCG – hypothetical ambition
Kate Schneider, NHS South of England (West)
Bristol CCG – ‘gap’ to 70% diagnosis rate
CCG - benchmarking
Diagnosis knowledge portal
www.dementiapartnerships.org.uk/diagnosis
www.dementiapartnerships.org.uk/diagnosis
Dementia diagnosis resource pack
• Actions
• Resource
• Examples
Key Step 1: Understand demand
www.dementiapartnerships.org.uk/diagnosis
www.dementiapartnerships.org.uk/diagnosis
• Actions
• Resource
• Examples
Key Step 9: Coding
www.dementiapartnerships.org.uk/diagnosis
www.dementiapartnerships.org.uk/diagnosis
• Web-enabled DPC & modelling tool – April 2013– Real time data
– Real time heat map
– Transparency
– Knowledge portal
– Positive practice
– System dynamics modelling tool – dementia diagnosis pathways, April 2013
– Research, development, innovation opportunities
Next steps
Kate Schneider, NHS South of England (West)
