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Dementia friendly communities: learning from Yorkshire and beyond
Philly Hare Programme Manager 23 March 2015
Joseph Rowntree’s legacy Inspiring social change
• Joseph Rowntree (1836–1925): Quaker, successful businessman and philanthropist
• Wanted his money to be used to tackle the root causes of social problems
• Built garden village of New Earswick, York • This and other property is still managed
through the Joseph Rowntree Housing Trust (JRHT)
• 1904 Joseph Rowntree Foundation (JRF) established
Living with dementia – it’s complicated!
The condition • Perceptual and spatial disturbance • Confusion and disorientation • Communication • Reasoning, decisions • Continence, urgency • Sensory overload • Mood changes • Short concentration Ageing • Other impairments: sensory, mobility, frailty • Short term memory loss Social attitudes • Stigma, ridicule, fear and ignorance • Exclusion, isolation and loneliness • Low confidence and self-esteem • Ageism and sexism Leads to… • Anxiety • Negotiating relationships • Fatigue • Constant change
“No one can understand what it is like to have dementia unless they’ve got it. I would never have believed how complicated life could be”
Peter Jones, retired architect, York
Inspiring local communities: to be more aware and understanding of dementia
Projects in Bradford, York, N Ireland and NE Scotland Evaluations Yorkshire case studies Grants and awards JRF/JRHT Networks: Wales Dementia Action Alliances Prime Minister’s Champions European Foundations (EFID)
People with
dementia
Scoping: process and
report
Awareness raising
Small grants (JRF)
Local dementia
action alliance
Independent evaluation
City of York Council
commitment
Dementia friendly York
Dementia friendly Bradford Partnership: JRF/Bradford Council/
Alzheimer’s Society Community approaches involving ward
officers New DAA 2013 New “Face It Together” group Dementia Friends training Marginalised communities: faith, ethnicity,
sexuality Co-op stores
Strengthening voice: supporting the collective engagement of people with dementia
The role of DEEP Building connections between involvement groups Collating and developing good practice Funding local groups and initiatives Brokering national opportunities Being a central repository Setting expectations
“Nothing about us without us”
Examples of engagement and influence National Commitment from Care Minister to meaningful involvement National Call to Action on language and dementia British Psychological Society guidelines Red Nose Day Twitter storm and TV Local Training staff Assessing grants Auditing shopping centre in Bradford Influencing new way-finding scheme in York Films and plays to raise awareness, in York
Thinking differently about dementia
Is dementia a feminist issue? Does it help to think of dementia as a disability? Should we always tell the truth? Should we think more about people's rights? How do negative language and images disempower?
challenging attitudes, understanding and behaviours
Key messages and learning
We all need to understand better what it means to live with
dementia. It’s not just about new things – every community and every person
already has many assets and so much to offer. It’s about the whole community – we can all contribute and we
can all gain. There is a real appetite for information: we are pushing at an
open door. Language and images have a real impact Networks aid communication and learning People with dementia can achieve much by acting collectively Involving people with dementia themselves is crucial
Further information on Dementia without Walls:
Programme web page: http://www.jrf.org.uk/topic/dementia-without-walls Key resources and reports: http://www.jrf.org.uk/work/workarea/dementia-resources http://www.jrf.org.uk/publications/dementia-friendly-yorkshire http://www.jrf.org.uk/publications/creating-dementia-friendly-york
DEEP http://dementiavoices.org.uk/ JRF Programme: [email protected]