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Delegate Program

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Welcome from the Local Organizing Committee ......................................................................2 Welcome from the Chair of Ca-PRI ............................................................................................3 Planning Committee ....................................................................................................................4 Plenary Speakers .........................................................................................................................6 Conference Objectives ..............................................................................................................10 Programme .................................................................................................................................11 Book of abstracts ......................................................................................................................18 Delegate Details .........................................................................................................................22 Further information Maps of the Hotel Fort Garry ...............................................................................................25 More about Winnipeg ...........................................................................................................26 – Hotel, transport, tourist information, maps etc Extra Ca-PRI Events .............................................................................................................30 Ca-PRI Further Information ..................................................................................................31

Table of Contents

This program meets the accreditation criteria of the College of Family Physicians of Canada and has been accredited by the University of Manitoba CPD Program for up

to 11.25 Mainpro-M1 credits.

Urgent Issue?  

Contact Donna Bell at 204‐471‐8035 or Jeff Sisler at 204‐996‐8058 

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Welcome from the Local Organizing Committee – Dr. Jeff Sisler

Welcome to Ca-PRI! It’s thrilling to find a community of people who share your exact interest, particularly when that interest is just outside the mainstream. For me, Ca-PRI was just that kind of discovery: my heavens, a group of family doctors (and others) interested, not just in research, but in research in how cancer care is delivered in primary care! It felt too good to be true when I got that first email from David Weller about our inaugural meeting in Edinburgh in 2008. The international nature of this community deepens the pleasure and interest of our annual reunion which we are proud to host here in Winnipeg in 2014. So welcome to this seventh annual meeting of Ca-PRI: the Cancer and Primary Care Research International Network. We were thrilled by the response to the call for abstracts, and have been working hard to create a learning and networking experience that will invigorate and motivate you. The theme of this year’s meeting, New Partnerships in Primary Care Cancer Research, highlights the focus of both our plenary presentations and delegate mix. Successful research teams in 2014 need to meaningfully engage with the patients we serve, the health policy decision makers we want to influence and the clinicians we hope will modify their practice based on our findings. All three of these groups will form part of the delegate mix here at Ca-PRI 2014 for the first time. We welcome your feedback on their presence. Many funding organizations, a strong local organizing committee, and the support of the Ca-PRI Executive have made this event possible. Thanks to all of them! I hope that each of you go home with terrific memories of this meeting, and with the experience of at least one conversation that transforms the research you are passionate about. And let’s meet again next year, this time in Denmark. Sincerely, Dr. Jeff Sisler Chair, Local Organizing Committee Ca-PRI 2014

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Welcome from the Ca-PRI Chairman – Professor David Weller

Welcome to the 2014 Cancer and Primary Care Research International Network (Ca-PRI) meeting. Jeff Sisler and his team have done a magnificent job in staging the meeting this year; they have had particular success in attracting funds from CIHR and other sources. We are extremely grateful for this sponsorship and it’s meant we have been able to offer support to a number of delegates who might otherwise not have been able to attend. Manitoba has been at the forefront of primary care oncology and Jeff and his colleagues at Cancer Care Manitoba have developed excellent models which truly engage primary care practitioners in the care of cancer patients. I’m excited about the opportunity of learning more about these amazing efforts, and indeed the many excellent cancer control programmes across Canada. Ca-PRI meetings have become pretty well established in the calendars of primary care and cancer researchers. They are friendly, congenial meetings which emphasise scientific rigour whilst providing a supportive environment for presentation of research, particularly for our more junior colleagues. This year we’ve had an amazing response to the Winnipeg meeting – it’s truly a credit to the enthusiasm and attention to detail that Jeff and his team have invested – backed up of course by the long suffering and hard-working Ca-PRI Executive and the Ca-PRI Secretariat (Jan Thompson deserves a special mention for many years of dedicated service!). I hope that over the next two or three days you are inspired by the research, the wonderful ambience of this conference, and the beautiful surroundings of Winnipeg. Thanks so much for joining us. David Weller Chair Ca-PRI Executive

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Local Planning Committee, Winnipeg Canada Jeff Sisler, Chair

Alan Katz Gerald Konrad

Masud Khawaja Donna Bell

Lynne Savage Gayle Halas Tunji Fatoye

Evelyn Leferink Karyn Iversen

Megan McLeod

CA-PRI Secretariat Office, Edinburgh Scotland Jan Thompson David Weller

Christine Campbell

Website Management, Aarhus Denmark Kaare Rud Flarup

Peter Vedsted 

Abstract Publication

For the first time, abstracts from Ca-PRI 2014 will be published in the European Journal of Cancer Control. Look for more details by email from the Ca-PRI office.

Publication of abstracts is possible due to the generous support of the Canadian Partnership

Against Cancer and the Canadian Cancer Society, Manitoba Division

Planning Committee

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Many Thanks to the Sponsors of Ca-PRI 2014

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Plenary Speakers

Dr Eva Grunfeld, University of Toronto Building Partnerships in Cancer Prevention Research Dr. Eva Grunfeld is international leader in primary care cancer research and the lead author of many seminal randomised trials in the field. Dr. Grunfeld's research focuses on evaluation and knowledge translation of cancer health services, covering the entire spectrum of cancer control activities. She is internationally recognized for making important contributions to the literature on cancer follow-up and cancer survivorship, and most recently cancer prevention. Dr. Grunfeld is the Giblon Professor and Vice Chair of Research at the Department of Family and Community Medicine, University of Toronto. In 2013, she was named the Director of the Knowledge Translation Research Network of the Ontario Institute of Cancer Research and CancerCare Ontario's Health Services Research Program

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Dr. Patricia Martens, University of Manitoba Building Partnerships with Decision-Makers: Lessons from the Manitoba Centre for Health Policy and the Award-Winning "The Need to Know" Team Dr. Patricia Martens is a Distinguished Professor in the College of Medicine, Faculty of Health Sciences of the University of Manitoba, and the Past-director of the Manitoba Centre for Health Policy, an internationally acclaimed research centre focusing on population-based health services, public health and population health research. Dr. Martens is a Member of the Order of Canada and has held various research career awards, including a CIHR/PHAC Applied Public Health Chair (2008-2013). Dr. Martens directs The Need To Know Team, a collaborative research group of university academics working with planners from the province's health regions and provincial government. This Team's research impact on health policy and planning was recognized through receipt of the prestigious CIHR's national KT Award in 2005.

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Derek Stewart Part of the Team: Building Research Partnerships with Patients Derek Stewart OBE is a throat cancer survivor and former Chair of the National Cancer Research Institute (UK) Consumer Liaison Group, where he worked to increase patient participation in the work of the Institute. From 2001 until 2006 Derek was Chair of Gedling Primary Care Trust in Nottinghamshire, England. Derek now works as a freelance consultant providing training on patient and public involvement across charity and public sectors, with a particular interest in cancer research teams and initiatives. This contribution to health services in particular cancer led to being awarded an OBE in the Queen's Birthday Honours list in 2006. Derek is now the Associate Director for patient and public involvement for the National Institute for Health Research Clinical Research Networks Coordinating Centre in England.

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Dr. Simon Sutcliffe Cancer Research and Primary Care: The Global Perspective Dr. Simon Sutcliffe is an international leader in cancer control. An academic radiation oncologist trained in the UK, USA and Canada, he has served as the President of Princess Margaret Hospital in Toronto, Ontario and of the British Columbia (BC) Cancer Agency. He has led the Canadian cancer community in his role as Chairman of the Canadian Partnership Against Cancer, an independent organization funded by the federal government to accelerate action on cancer control. He was a co-founder of Wellspring, a cancer support program in Ontario. Dr. Sutcliffe has served on a number of public and private sector boards including Michael Smith Foundation for Health Research and Genome BC and is active in international consulting regarding cancer control. Dr. Sutcliffe has been presented with the Queen's Golden Jubilee Award and the Terry Fox Medal from the British Columbia Medical Association in recognition of his many years of leadership in the Canadian cancer community.

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Conference Objectives

After attending the Ca-PRI conference, the participant will:

1. Describe the findings of new research in cancer care delivered in the primary care setting across the entire cancer care continuum

2. Report at least one conversation with another researcher that has contributed to the evolution of their research ideas

3. Implement one strategy to include patients or knowledge users in a new way in their research team

4. Feel energy and enthusiasm for their career in primary care cancer research

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Programme

Ca-PRI 7th Annual Conference: June 10-13, 2014, Winnipeg, Canada New Partnerships in Primary Care Cancer Research

(All sessions at the Hotel Fort Garry, 222 Broadway Avenue, Winnipeg unless otherwise stated)

Tuesday June 10th

Wednesday June 11th

15:00-18:00

Registration North Mezzanine

18:00-19:30

Welcome Reception with cash bar North Mezzanine

19:30 Graduate Students/Post Docs Networking and Mentorship Dinner Salon A

07:30 08:00

Registration Opens (Available all day) Breakfast

Foyer (7th) Foyer (7th)

08:45 Welcome and Greetings Dr Jeff Sisler, Chair, Local Organizing Committee Dr. Jose Francois, Head, Department of Family Medicine, University of Manitoba Dr. Sri Navaratnam, President and CEO, CancerCare Manitoba Dr. Peter Nickerson, Associate Dean Research, College of Medicine, University of Manitoba Introduction of Patient and Policy Partners

Concert Hall 7th Floor

09:15 Plenary Presentation Building Partnerships in Cancer Prevention Research Dr Eva Grunfeld, University of Toronto

Concert Hall

10:15 Refreshment Break & Networking

Foyer 7th

10:45 Oral Presentations: Session 1 Stream 1 Chair: Richard Neal, UK

Concert Hall

O-01: Time intervals in the patient diagnostic pathway: comparison of definitions reported in the literature with the Aarhus statement Jaim Sutton, UK

O-02: Assessing the impact of a national early diagnosis initiative in primary care, using four early diagnosis metrics Greg Rubin, UK

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O-03: Diagnostic intervals before and after implementation of standardised cancer patient pathways Henry Jensen, Denmark

Stream 2

Chair: Stephen Taplin, USA Salon A First Floor

O-04: The impact of primary care providers on patient decision making about breast and prostate cancer screening Michelle Driedger, Canada

O-05: Healthcare seeking in Danish general practice settings – the case of cancer Rikke Sand Andersen , Denmark

O-06: Patients’ Views On testing For prostate cancer: A vignette based study of primary care attendees Tanimola Martins, UK

Stream 3

Chair: Tunji Fatoye, Canada Salon C First Floor

O-07: What questions do patients ask their surgeon after curative treatment of colon cancer? Thijs Wieldraaijer, Netherlands

O-08: General practitioners’ role during curative treatment for colorectal cancer Annette J Berendsen, Netherlands

O-09: "I know where I’m going." Exploring transitions of follow-up care from specialist to primary care in colorectal cancer Jeffrey Sisler, Canada

11:45 E-Poster Presentations Moderator: Alan Katz, Canada

Concert Hall 7th Floor

P-01: The role of primary care in cancer screening; International comparison study by Ca-PRI and the International Cancer Screening Network David Weller, UK

P-02: Developing a sustainable programme of cervical screening in rural Malawi Christine Campbell, UK

P-03: Reducing unnecessary colonoscopy referrals in primary care – benefits and costs of new diagnostic strategies for organic bowel disease Charles Helsper, The Netherlands

P-04: Cancer care at your fingertips: A systematic review of cancer mobile applications Larissa Nekhlyudov, USA

P-05: Health-care seeking among people with symptoms suggestive of colorectal cancer: a qualitative interview study Nicola Hall, UK

P-06: Health care use after the diagnosis of cancer in children Mary McBride, Canada

P-07: Patient pathways to cancer diagnosis and delay in care seeking: An exploratory study in Odisha (India) David Weller, UK

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P-08: Factors associated with later presentation and later stage at diagnosis of lung cancer: a prospective cohort study Fiona Walter, UK

P-09: Symptoms that predict chest x-ray results suspicious for lung cancer in UK primary care: results from a prospective study Lucy Brindle, UK

P-10: Oncologists’ perspectives on post-cancer treatment communication and care coordination with primary care physicians Carrie Klabunde, USA

12:30 Lunch with Table Discussion Groups

Foyer, Crystal Ballroom

13:30 Plenary Presentation Building Research Partnerships with Decision Makers: Lessons from the Manitoba Centre for Health Policy and the Award-Winning “The Need to Know” Team Dr. Pat Martens, University of Manitoba

Concert Hall

14:30 Guided Poster Walks with Presentations by Poster Hosts: Session 1 Poster Group A: Symptom-Based Diagnosis Guide: Gerald Konrad, Canada Poster Group B: Survivorship and Follow-Up Guide: Masud Khawaja, Canada Poster Group C: Screening, Prevention & Risk Guide: Alan Katz, Canada Note: E-Posters will be displayed in the Crystal Ballroom on the far wall but will not be hosted

Concert Hall Crystal Ballroom Left Crystal Ballroom Right

15:30

Refreshment Break Foyer 7th

15:45 Oral Presentations: Session 2 Stream 1 Chair: Peter Vedsted, Denmark

Concert Hall 7th Floor

O-10: Sensitivity of symptoms and signs in different types of cancer Knut Holtedahl, Norway

O-11: Quantification of the risk of breast cancer in symptomatic primary care patients Willie Hamilton, UK

O-12: The diagnostic value of dyspepsia symptoms and their association with gastro-oesophageal cancers: a systematic review and meta-analysis Margaret Astin, UK

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Stream 2 Chair: Fiona Walter, UK

Salon A First Floor

O-13: Potential benefit of reducing delay in the cancer care pathway; ovarian cancer Charles Helsper, Netherlands

O-14: Cancer in young adults: Challenges of intimacy during survivorship Baukje (Bo) Miedema, Canada

O-15: Development of a self-assessment tool (SAT-P) for follow-up of colorectal cancer patients in primary care setting Irene Ngune, Australia

Stream 3

Chair: Greg Rubin, UK

Salon C First Floor

O-16: The role of information gathering and physician experience in detecting early presentations of cancer in primary care Thomas Round, UK

O-17: Cancer diagnosis via emergency presentation: the role of primary care Elizabeth Mitchell, UK

O-18: Identification of patients at risk for colorectal cancer in primary care: An explorative study with routine health care data Frederike Buchner, Netherlands

16:45 End of Day

17:30 17:30-18:30 17:45-19:00

Meet for walking group to Fort Gibraltar with guide, Alan Katz Transport to Banquet Venue, Fort Gibraltar, 203 Provencher Winnipeg Trolley Company leaving hotel every 25 minutes. Fun at Fort Gibraltar: historical recreation and cash bar

Meet in Hotel Fort Garry Lobby Meet in Hotel Fort Garry Lobby

19:00- 22:00 21:00- 23:00

Banquet Dinner and Entertainment, La Maison du Bourgeois, Fort Gibraltar, 203 Provencher Transportation available back to Hotel, Winnipeg Trolley Company

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Thursday June 12th

08:00 Breakfast

Foyer 7th Floor

08:45 Welcome to Day 2 Presentation by Ca-PRI 2015 Organizers (Denmark)

Concert Hall 7th Floor

09:00 Plenary Presentation Part of the Team: Building Research Partnerships with Patients Mr. Derek Stewart Clinical Research Networks Coordinating Centre National Institute for Health Research, UK

Concert Hall

10:00 Refreshment Break & Networking

Foyer

10:30 Guided Poster Walks with Presentations by Poster Hosts: Session 2 Poster Group A: Symptom-Based Diagnosis Guide: Alan Katz, Canada Poster Group B: Survivorship and Follow-Up Guide: Gerald Konrad, Canada Poster Group C: Screening, Prevention & Risk Guide: Masud Khawaja, Canada

Concert Hall Crystal Ballroom Left Crystal Ballroom Right

11:30 Oral Presentations: Session 3 Stream 1 Chair: Knut Holtedahl, Norway

Concert Hall 7th Floor

O-19: Specific and nonspecific symptoms of colorectal cancer and contact to general practice Sanne Rasmussen, Denmark

O-20: Explaining variation in cancer outcomes between 11 jurisdictions in the International Cancer Benchmarking Partnership: a primary care survey Willie Hamilton, UK

O-21: Time from first presentation to treatment of symptomatic colorectal cancer: effect on disease stage and survival Peter Murchie, UK

Stream 2

Chair: David Weller, UK Salon A First Floor

O-22: A new partnership with biomarker research: a randomised controlled trial of the detection in blood of autoantibodies to tumour antigens as a case-finding method in lung cancer using the Early CDT-Lung test in Scotland (ECLS). Frank Sullivan, Canada

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O-23: The risk of bladder cancer with non-visible haematuria: a primary care study using electronic records Sarah Price, UK

O-24: The risk of cancer in primary care patients with hypercalcaemia: a retrospective cohort study using electronic records. Fergus Hamilton, UK

Stream 3

Chair: Bo Miedema, Canada Salon C

First Floor

O-25: The population-level influence of a specialized diagnostic unit on the diagnostic interval in breast cancer Patti Groome, Canada

O-26: Transitioning patients from primary care: Identifying the tipping point from primary care to cancer diagnostic specialists Donna Turner, Canada

O-27: Age and gender variations in cancer diagnostic intervals: analysis of data from the UK General Practice Research Database Richard Neal, UK

12:30 Lunch with Table Group Discussion

13:30 – 15:00

Workshops Challenging expectations around actively involving the public in research

Derek Stewart, UK

Building the evidence base for the early symptomatic diagnosis of cancer: The ABC-DEEP Consortium Richard Neal, UK

Scoping a decade of tobacco dependence research: Where have we been and where can we go? Alan Katz, Canada

Salon A 1st Floor

Salon C 1st Floor

Tache Rm Mezzanine

15:00 Plenary Presentation

Cancer Research and Primary Care: The Global Perspective Dr. Simon Sutcliffe, Canada

Concert Hall

7th Floor

16:00 Closing Presentation and Remarks Dr. Jeff Sisler, Canada

Concert Hall

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Friday June 13, 2014 See Page 30 for more details about these exciting post-Ca-PRI events being held at the Faculty of Medicine, University of Manitoba

1. Cancer Day for Primary Care: The International Edition

A continuing education day about cancer for primary care clinicians Venue: University of Manitoba, Faculty of Medicine, Frederic Gaspard Theatre 727 McDermot Avenue, Winnipeg MB This is a full-day continuing education day about cancer for local and international FPs/GPs and other primary care providers. This event is only $75 for CA-PRI registrants. Please sign up at the registration desk if you have not already done so! A complete day program is also available.

2. Morning at the Manitoba Centre for Health Policy Join us for a 3-hour workshop exploring the structure and function of this highly productive research

centre. The Manitoba Centre for Health Policy (MCHP) is a research centre of excellence that conducts population-based research on health services, population and public health, and the social determinants of health. While research scientists at MCHP are involved in a wide range of research projects, the centre also provides a highly developed research platform for peer reviewed health services and population based research. Registration is $50 for Ca-PRI Registrants.

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Book of Abstracts

Poster Presentations: Guided Poster Walk

Please visit the website at www.ca-pri.com to view all conference abstracts

Poster Group A: Symptom-Based Diagnosis Concert Hall P-11 Oberoi Help seeking behaviour for colorectal cancer (CRC) symptoms: Applying a

gender lens

P-12 Oberoi Do men know which patients with lower bowel symptoms should seek medical advice? A web based video-vignette survey of lay men in Western Australia

P-13 Bailey Thrombocytosis: An underused risk marker of cancer in primary care?

P-14 Barisic Urban and rural differences among family physicians (FPs) in the diagnostic work-up (DWU) of patients with suspected cancer

P-15 Holtedahl The role of abdominal symptoms in early diagnosis of cancer in general practice – a cohort study

P-16

Walter Understanding the appraisal and help-seeking decisions of patients with symptoms suspicious of lung cancer: a qualitative approach

P-17 Walter Factors associated with later presentation and later stage at diagnosis of colorectal cancer: a prospective cohort study

P-18 Stapley Building the evidence base for the early symptomatic diagnosis of cancer (the ABC-DEEP consortium – Workstream 3)

P-19 Hawryluk International Cancer Benchmarking Partnership - Module 3: FPs and cancer diagnosis – Manitoba data

P-20 Hawryluk Patients, primary care and pathways: New perspectives from Manitoba's 'In Sixty' Cancer Patient Journey Initiative

P-21 Groome Breast cancer diagnostic interval and use of specialized diagnostic assessment units in Ontario, Canada

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P-22

Biswas

Symptom lead time distribution in lung and colorectal cancer: Natural history and prospects for early diagnosis

P-23 Grunfeld Canadian Team to Improve Community-Based Cancer Care along the Continuum (CanIMPACT)

P-24 Miedema Canadian Team to Improve Community-Based Cancer Care along the Continuum (CanIMPACT) - Qualitative Component

P-25

Waldron

Canadian Team to Improve Community-Based Cancer Care Along the Continuum (CanIMPACT) – Knowledge Translation Component

P-26 Winget Using Canadian administrative data to understand the interplay between primary and oncology care of breast cancer patients during pre-diagnosis, treatment and survivorship: a CanIMPACT study

Poster Group B: Survivorship and Follow-Up Crystal Ballroom (Left) P-27 Dobbin Breast cancer rehabilitation: A mixed method inquiry of physical recovery and

lived experiences

P-28 Bedard Primary care for “unattached” patients: Implementation and early evaluation of a survivorship nurse practitioner role

P-29 Bedard Tools for transition to primary care – A pilot implementation of survivorship care plans

P-30 Morrison Physicians’ reflections about cancer survivors’ work integration

P-31 Hall Developing a tablet-based intervention to prompt total skin self-examination in people treated for cutaneous melanoma: A practical demonstration of the ASICA intervention

P-32 Ngune Follow up of bowel cancer patients in primary care: What factors influence patient attendance?

P-33 Berendsen Long-term outcome of cardiac dysfunction after breast cancer treatment: The BLOC-study

P-34 Berendsen Patients' perceptions of the aims of breast cancer follow-up: a qualitative study

P-35 Schroten Patient follow-up by family doctor instead of specialist/surgeon after curative resection of colon- or mamma carcinoma.

P-36 Wieldraaijer ICARE Study - Improving Care After colon canceR treatment: personalized care to Enhance quality of life

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P-37

Wieldraaijer

Detection of Recurrent Colon Carcinoma during Follow-Up after Curative Treatment; a retrospective study

P-38 Sheinfeld Gorin Place, patients, populations, and primary care: The impact of place on health related quality of life among US cancer survivors

P-39 Luctkar-Flude A comprehensive framework and key guideline recommendations for the provision of evidence-based breast cancer survivorship care within the primary care setting

P-40 Luctkar-Flude Implementation of breast cancer survivorship care guidelines in the primary care setting: Preliminary survey results

P-41 Secord Targeting Transitions from Oncology Care to Primary Care through CPAC’s Multi-jurisdictional Collaborative Partnership Model for Cancer Control

P-42 Hansen RCT: a multi-modal intervention including video-assisted communication between the cancer patient, the general practitioner and the oncologist

P-43 Bastedo A Population Based Assessment of Primary Care Physician Visits and Acute Care Utilization among Women Receiving Adjuvant Chemotherapy for Breast Cancer

P-44 Meijer Extended role in oncology for general practice illustrated by a qualitative case study performed in New Zealand

Poster Group C: Screening, Prevention & Risk Crystal Ballroom (Right) P-45 Woodgate Canadian adolescents’ perspectives of cancer risk

P-46 Magdalena Influence of gender in symptom duration to diagnosis-treatment of colorectal

cancer (CRC)

P-47 Magdalena Discourses and barriers of immigrant women about the population breast cancer screening program in Majorca, Spain

P-48 Sriram Development and Validation of a Clinical Decision-Making Aid for Screening Bowel Symptoms in Community Pharmacies

P-49 Busolo Cancer prevention in Africa: a review of literature

P-50

Manca

Finding a BETTER way: A chronic disease prevention and screening program

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P-51

Manca

Facilitators and barriers to the implementation of the BETTER 2 Program: Qualitative evaluation of a new approach to Chronic Disease Prevention and Screening (CDPS)

P-52 Campbell “The tests always came back negative you know” The influence of a negative bowel screening result among patients who subsequently develop colorectal cancer.

P-53 Campbell Examining the effectiveness of campaigns to increase cancer awareness and promote earlier presentation: a systematic rapid evidence assessment

P-54 Campbell-Enns Communicating risk to patients with cancer: The identification and evaluation of communication methods

P-55 O'Brien Medical oncologists’ views on the role of family physicians in multi-gene expression profile testing in breast cancer

P-56 Weller Improving cancer control in Odisha, India through primary care-based strategies: a joint project by Ca-PRI and the Public Health Foundation of India

P-57 Weller Development of the ‘Aarhus Statement Tool for Researching Intervals in Diagnosis’ (ASTRID): Focus groups and interviews with patients, researchers and healthcare professionals

P-58 Heins The effect of comorbid chronic diseases on primary health care use of cancer patients

P-59 Greenlee Partnering cancer care delivery research and the oncology clinical trial enterprise in a health care system historically engaged in both: Early perspectives

P-60 Eguzo Beyond limitations: Practical strategies for improving cancer care in Nigeria

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Ca-PRI 2014 Delegates

First Name Last Name Email Address Institutional Affiliation Country

Rikke Sand Andersen rsa@alm.au.dk University of Aarhus, Research

Unit for General Practice Denmark

Margaret Astin s.a.beardmore@exeter.ac.uk University of Exeter UK Andriana Barisic andriana.barisic@cancercare.on.ca Cancer Care Ontario Canada Sarah Bastedo sarah.bastedo@mail.utoronto.ca University of Toronto Canada Angela Bedard angela.bedard@bccancer.bc.ca BC Cancer Agency Canada Donna Bell donna.bell@cancercare.mb.ca UPCON, CCMB Canada

Annette J. Berendsen a.j.berendsen@umcg.nl University of Groningen, Dept of General Practice

Netherlands

Karen Berube berube@Shaw.ca Cancer Patient Journey Initiative

Canada

Mousumi Biswas m.biswas@bristol.ac.uk University of Bristol UK David Busolo busolod@myumanitoba.ca University of Manitoba Canada Christine Campbell Christine.Campbell@ed.ac.uk University of Edinburgh UK Heather Campbell-

Enns hcampbellenns@gmail.com University of Manitoba Canada

Karen Dobbin karendobbin@shaw.ca University of Manitoba Canada S. Michelle Driedger michelle.driedger@med.umanitoba.ca University of Manitoba Canada Sandra Dudych scdudych@shaw.ca CancerCare MB Canada Jeanette Edwards jedwards@wrha.mb.ca Winnipeg Regional Health

Authority and MB Health Canada

Kelechi Eguzo keguzo@gmail.com University of Saskatchewan Canada Jesper Brockdorff

Eriksen donna.bell@cancercare.mb.ca Danish Cancer Society Denmark

Magdalena Esteva mesteva@ibsalut.caib.es Majorca Primary Care Department

Spain

Marcela Ewing marcela.ewing@rccvast.se University Hospital, Gothenburg,Sweden

Sweden

Robert Greenlee greenlee.robert@mcrf.mfldclin.edu Marshfield Clinic Research Foundation

USA

Patti Groome groomep@queensu.ca Queen's University Canada Eva Grunfeld family.healthcare@utoronto.ca University of Toronto Canada Gayle Halas Gayle.Halas@med.umanitoba.ca University of Manitoba Canada Susan Hall s.hall@abdn.ac.uk University of Aberdeen UK Nicola Hall n.j.hall@durham.ac.uk Durham University UK Fergus Hamilton gushamilton@gmail.com University of Bristol UK William Hamilton s.a.beardmore@exeter.ac.uk University of Exeter UK Dorte Gilsa Hansen dgilsaa@health.sdu.dk National Research Center of

Cancer Rehabilitation, Research Unit of General

Practice

Denmark

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Borge Hart borge.hart@uit.no The Arctic University of Norway UIT

Norway

Marianne Heins m.heins@nivel.nl NIVEL Netherlands Knut Holtedahl knut.holtedahl@uit.no Arctic University of Norway,

Tromso¸ Norway

Dorte Jarbol djarbol@health.sdu.dk Research Unit of General Practice, Institute of Public

Health, University of Southern Denmark

Denmark

Henry Jensen henry.jensen@alm.au.dk Research Centre for Cancer Diagnosis in Primary Care, Research Unit for General

Denmark

Carrie Klabunde KlabundC@mail.nih.gov National Cancer Institute USA Gerald Konrad gkonrad@sbgh.mb.ca Univ. of Manitoba Canada Kali Leary kali.leary@cancercare.mb.ca CancerCare Manitoba Canada Li Li ll134q@rocketmail.com Case Western Reserve

University USA

Donna Manca dpmanca@ualberta.ca Department of Family Medicine, University of Alberta

Canada

Tanimola Martins s.a.beardmore@exeter.ac.uk University of Exeter Medical School

UK

Mary McBride mmcbride@bccrc.ca BC Cancer Agency Canada Jiska Meijer jiskameijer@home.nl University Medical Center

Groningen Netherlands

Baukje (Bo) Miedema baukje.miedema@horizonNB.ca Dalhousie University Canada Elizabeth Mitchell e.d.mitchell@leeds.ac.uk University of Leeds, Leeds

Institute of Health Sciences UK

Tricia Morrison TMorris2@uOttawa.ca University of Ottawa Canada Peter Murchie p.murchie@abdn.ac.uk University of Aberdeen UK Richard Neal r.neal@bangor.ac.uk NWCPCR UK Larissa Nekhlyudov larissa_nekhlyudov@vmed.org Harvard Medical School/

Harvard Vanguard Medical Associates

USA

Irene Ngune i.ngune@curtin.edu.au Curtin University Australia Devesh Oberoi deveshoberoi@gmail.com Curtin University, School of

Pharmacy Australia

Mary Ann O'Brien maryann.obrien@utoronto.ca University of Toronto Canada Brenda Peters-Watral peterswa@cc.umanitoba.ca University of Manitoba Canada

Sarah Price s.a.beardmore@exeter.ac.uk University of Exeter Medical School

UK

Sandhya Pruthi sandhya.pruthi@mayo.edu Mayo Clinic Sanne Rasmussen sarasmussen@health.sdu.dk Research Unit of General

Practice Denmark

Gregory Rubin g.p.rubin@durham.ac.uk Durham University UK Alexander Singer alexandersinger@gmail.com University of Manitoba/

Department of Family Medicine Canada

Jeffrey Sisler jeff.sisler@med.umanitoba.ca University of Manitoba Canada Jessie Smilianov Jessie.Smilianov@gov.mb.ca Manitoba Health Canada Frank Sullivan frank.sullivan@nygh.on.ca North York General Hospital Canada

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Jaim

Sutton

j.sutton@qmul.ac.uk

Queen Mary University of

London

UK

Stephen Taplin taplins@mail.nih.gov National Cancer Institute USA

Robin Urquhart robin.urquhart@cdha.nshealth.ca Dalhousie University Canada

Peter Vedsted p.vedsted@alm.au.dk Research Unit for General Practice, Aarhus University

Denmark

Thijs Wieldraaijer t.wieldraaijer@amc.uva.nl Academic Medical Centre Netherlands

Marcy Winget mwinget@ualberta.ca University of Alberta Canada

Roberta Woodgate roberta.woodgate@umanitoba.ca University of Manitoba Canada

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Hotel Fort Garry

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Information about our Host City and Conference

About the City Winnipeg is a city of 750,000 people, a city that was the staging point for the opening of the Canadian Prairies, with a rich past filled with stories of the first settlements, the development of the historic corner of Portage and Main, and fur traders gathering at the junction of the Red and Assiniboine rivers. The Forks, as it is called, has been a centre of aboriginal culture for thousands of years and today is a national historic site and the tourist centre of Winnipeg. Our conference hotel is a five-minute walk from The Forks with gorgeous river walks and lots of interesting shopping and attractions. Winnipeg has a rich cultural life with its own professional ballet, opera, and symphony companies, as well as the leading regional theatre company in Canada, the Royal Manitoba Theatre Centre. It is also home of the Winnipeg Jets ice hockey team and hosts large and successful fringe, folk, new music, and jazz festivals. In 2014, we will open two world-class facilities: the Canadian Museum of Human Rights and Journey to Churchill at the Assiniboine Park Zoo. Winnipeg is already home to the largest international polar bear conservancy organization in the world. Visit http://www.tourismwinnipeg.com to learn more about all that Winnipeg has to offer. Hotel Information

The Fort Garry Hotel is conveniently located on Winnipeg's most attractive downtown avenue, providing easy access to shopping, arts, entertainment, major sports venues, and the financial and historic districts. Downtown Winnipeg boasts one of the most vibrant cultural scenes in Canada and plays host to numerous events and festivals throughout the year. Just a short walk from The Fort Garry is The Forks. With museums, theatre, unique shops, diverse dining--it is one of Winnipeg's most popular, leisure-time destinations.

The hotel has a fully equipped fitness centre with an indoor pool, whirlpool, steam room, and track. Ten Spa, within The Fort Garry Hotel, is world-class and offers a variety of treatment options, including hamam, a Turkish spa experience. The hotel offers valet parking, provide 24-hour room service, as well as a 24-hour Concierge, complimentary high speed WiFi internet, and complimentary laptops for Internet access at the front desk. Please see the website for directions and contact information at www.fortgarryhotel.com.

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About the Neighbourhood: Be sure to visit The Forks!

Taxi Winnipeg Airports Authority and Unicity Taxi have proudly partnered to provide taxi service from the airport. Taxis are available near Exit 3 at the terminal building, approximate cost to hotel is $20.00. Please visit the following link for more information: http://www.waa.ca/location/othertransportation

For more information or to book a cab, please contact Unicity Taxi at admin@unicitytaxi.mb.ca or (204) 925-3131.

Transport from the Airport

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Sedans Hollywood Limousines, winner of Winnipeg's Consumer Choice Award in 2011 & 2012, operates full size sedans and offers a value loaded customer experience in modern style. Generous luggage compartments accommodate large groups, and debit and credit transactions are processed in-car. Rates are fixed according to destination and will be about $32.00. To view the rates, please consult http://www.waa.ca/uploads/ck/files/Rates-V3(1).pdf . For more information or to book a trip, please contact info@hollywoodlimoservice.com or (204) 999-1860. Mass Transit Winnipeg Transit service is available to and from the Winnipeg James Armstrong Richardson International Airport. Routes 15 and 20 pick up from the airport and drop very near to the Fort Garry Hotel. For rates and schedules, please visit Winnipeg Transit's website http://winnipegtransit.com/en/routes or call 311 or toll-free at (877) 311-4974.

CA-PRI Banquet, Wednesday 11th June

Our Ca-PRI banquet will be held at Fort Gibraltar, which has been a historic gathering place since 1809. Situated on the banks of the Red River, Fort Gibraltar's natural beauty will take you back 200 years to the period of the voyageurs and fur traders who explored Western Canada from their homes in Lower Canada (Quebec). Before the banquet, wander the grounds and enjoy the historical interpretations of this fort, including the blacksmith's

See the various furs being prepared for shipment east to Montreal and the trade goods offered to local trappers, Selkirk settlers, and voyageurs. Our banquet will be held within the gates of Fort Gibraltar at La Maison du Bourgeois. This impressive building, the largest in the fort due to its commercial and social importance, was the residence for the partners of the Northwest Company as well as the main trading facility. Today, expect great food and a lot of fun! Fort Gibraltar is approximately a 30-minute walk from the conference hotel. A walking group to Fort Gibralter will depart from the Hotel Fort Garry Lobby at 17:30.

Transportation will be provided from the Hotel Fort Garry

to Fort Gibraltar by the Winnipeg Trolley Company starting at 17:30 on Wednesday, departing from the front of the hotel and returning in a loop to pick up more guests. The Trolley will also return us home again starting at 21:00.

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Following is the walking route from the Hotel Fort Garry (B) to Fort Gibralter (A):

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Extra Ca-PRI Events at the Faculty of Medicine Friday June 13, 2014

1. Cancer Day for Primary Care: The International Edition A continuing education day about cancer for primary care clinicians Venue: University of Manitoba, Faculty of Medicine, Frederic Gaspard Theatre 727 McDermot Avenue, Winnipeg MB Cost: $75 for Ca-PRI Delegates. Please sign up at the Registration Desk if you have not already done

so and would like to attend. A complete day program is also available there.

This is a full-day continuing education day about cancer for local and international FPs/GPs and other

primary care providers. The event will be held in the new modern facilities of the Faculty of Medicine of the University of Manitoba in Winnipeg. Bus transportation from the Hotel and a full lunch will be provided. The day will feature engaging presentations from leading clinician-researchers from the international Ca-PRI community and from our host city. The speakers will address important issues in cancer prevention, diagnosis, and follow-up care for clinicians. This event is only $75 for CA-PRI registrants. Please sign up at the registration desk if you have not already done so!

0800 08.30 - 15.00 15.15

Bus leaves Hotel Fort Garry for the Faculty of Medicine Conference Bus returns to Hotel Fort Garry

2. Spend a Morning at the Manitoba Centre for Health Policy! Join us for a 3-hour workshop exploring the structure and function of this highly productive research

centre. Registration is only $50 for Ca-PRI registrants The Manitoba Centre for Health Policy (MCHP) is a research centre of excellence that conducts

population-based research on health services, population and public health, and the social determinants of health. MCHP develops and maintains the comprehensive population-based data repository on behalf of the Province of Manitoba for use by the local, national and international research community. MCHP promotes a collaborative environment to create, disseminate and apply its research. The work of MCHP supports the development of evidence-informed policy, programs and services that maintain and improve the health and well- being of Manitobans.

While research scientists at MCHP are involved in a wide range of research projects, the centre also

provides a highly developed research platform for peer reviewed health services and population based research. To learn more about MCHP, please visit www.umanitoba.ca/centres/mchp/.

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About Ca-PRI

The Cancer and Primary Care Research International Network (Ca-PRI) is an open, multidisciplinary network for researchers in primary cancer care and related areas. Ca-PRI was founded in 2008 and welcomes researchers from all disciplines related to research and development in the fields of cancer care in primary care. The aim of the Ca-PRI Network is to provide a mechanism by which researchers from different countries can come together and share expertise and, ideally, develop new international collaborative proposals:

• Primary care and cancer research could benefit from access to larger and more diverse patient populations. Studies in this field have typically been based on relatively small numbers and international collaboration is one mechanism through which more substantive studies might be developed.

• There is much to be gained from comparing health data in areas such as early diagnosis, screening and survivorship from different countries.

• Differences in diagnostic intervals, survival, screening rates etc provide important clues in elucidating the most effective roles for primary care in cancer control.

The network has three main ambitions:

• Support and stimulate network. • Encourage to and support comparative studies. • Creating an environment for doing international collaborative studies.

Current members of the executive group are: Christine Campbell, United Kingdom; David Weller, United Kingdom; Jeff Sisler, Canada; Greg Rubin, United Kingdom; Jon Emery, Australia; Knut Holtedahl, Norway; Kurt Stange, United States of America; Peter Vedsted, Denmark; Richard Neal, United Kingdom; Stephen Hunt Taplin, United States; Fiona Walter, United Kingdom. For more information see www.ca-pri.com

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