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Dear The United States House of Representatives,
We are pleased to present you with this petition affirming this statement:
"Please close the gap between PKU and the readily available treatment known as the category ofmedical food, a designated orphan therapy. Patients deserve access to the latest innovations in thenutritional management of PKU, which stem from NIH research but continue to be denied and areoften not reimbursed. "
Attached is a list of individuals who have added their names to this petition, as well as additional commentswritten by the petition signers themselves.
Sincerely,Jennifer Payne
MoveOn.org 1
Alyson magraneBurlington, MA 01803Jun 27, 2015
Michal LynchSanta Barbara, CA 93111Jun 26, 2015
Byron MagolTampa, FL 33647Jun 26, 2015
Judy LuogamenoWest Milford, NJ 07480Jun 26, 2015
Barbara PedersenMurrells Inlet, SC 29576Jun 26, 2015
Pat WilliamsConcord, NC 28025Jun 26, 2015
Patrick SchoolenDes Moines, IA 50317Jun 26, 2015
Anthony MilioteMurrells Inlet, SC 29576Jun 26, 2015
Supporting my nearly two-year-old nephew as he fights this disease.
Holly GouldPalos Verdes Peninsula, CA 90274Jun 26, 2015
Sue Hein-ChagnotIndian Land, SC 29707Jun 25, 2015
Tara EpolitoCharlotte, NC 28273Jun 25, 2015
Katy KitceyCharlotte, NC 28277
MoveOn.org 2
Jun 25, 2015
Kristie PurvisKannapolis, NC 28081Jun 24, 2015
Ashley KoppCharlotte, NC 28277Jun 24, 2015
Donna ManigaultCharlotte, NC 28273Jun 24, 2015
kayleeHarrisburg, NC 28075Jun 23, 2015
Carrie Molerrogers, AR 72756Jun 21, 2015
Tara SudimackMatthews, NC 28105Jun 21, 2015
Shalan FryMatthews, NC 28104Jun 21, 2015
Dan xhagnotindian land, SC 29707Jun 21, 2015
Scott MurtleHuntersville, NC 28078Jun 21, 2015
Gloria GouldPalos Verdes Peninsu, CA 90274Jun 21, 2015
Cathy Alloccosummit, NJ 07901Dec 3, 2014
Donna Maherwalnut creek, CA 94598Dec 1, 2014
MoveOn.org 3
Kristen GrayWalnut Creek, CA 94598Nov 30, 2014
Patty TorresDenville, NJ 07834Nov 30, 2014
Jacqueline IzzoKenvil, NJ 07847Nov 30, 2014
Just as people with diabetes need their medication to live a healthy and productive life, so do people whosuffer from PKU.
Linda AlloccoNew Providence, NJ 07974Nov 30, 2014
John BaranowskiNorth Las Vegas, NV 89031Aug 25, 2014
Doing this for my friends baby girl and for all of the other angels that have been affected by this
Chalton-Smith familySacramento, CA 95825Aug 13, 2014
My 22 month old daughter has CPKU.
Shawn DunnKenly, NC 27542Aug 13, 2014
Michelle StevensBangor, PA 18013Aug 11, 2014
Rachel RoseNorthampton, PA 18067Aug 11, 2014
Irene MulroyNazareth, PA 18064Aug 11, 2014
MoveOn.org 4
For Kerry!
Kristia WheatstoneCORBY, United KingdomAug 11, 2014
Kayla VreedenburgBangor, PA 18013Aug 11, 2014
tracy chierkoveBangor, PA 18013Aug 11, 2014
Tom NeillPhiladelphia, PA 19107Aug 11, 2014
Brittany HenryRoseto, PA 18013Aug 11, 2014
kathleen pinkertoneast bangor, PA 18013Aug 11, 2014
For Kerry!!!
Krista CooperDelaware, NJ 07833Aug 10, 2014
sandy rissmillerNazareth, PA 18064Aug 10, 2014
NecieSaylorsburg, PA 18353Aug 10, 2014
Stacey heckmanRoseto, PA 18013Aug 10, 2014
We're just like everyone else. Help us people with PKU, too!
Kerry FishPen Argyl, PA 18072
MoveOn.org 5
Aug 10, 2014
Amy WakelandHudson, FL 34667Aug 8, 2014
MAKE THIS FREE!!!
Maryanne GautreauCalgary, CanadaAug 6, 2014
Todd rodgersFostoria, OH 44830Aug 2, 2014
I'm signing because I know a little one with PKU!
SherriTiffin, OH 44883Aug 1, 2014
Deborah K GamblinFremont, OH 43420Aug 1, 2014
URGENTLY important medical food.
Anna BeemerMunster, IN 46321Aug 1, 2014
im for this because my grand daughter has PKUand the food is very expensive
Barb Elartontiffin, OH 44883Aug 1, 2014
My daughter has PKU and is receiving assistance through the state of Ohio for her very much needed formula.This formula is NOT cheap. I would like to see all individuals with PKU be able to receive assistance withtheir formula and special foods that are essential in treating this disorder and further preventing mentaldisabilities.
Laura GamblinTiffin, OH 44883Aug 1, 2014
Pam FarrarTiffin, OH 44883
MoveOn.org 6
Aug 1, 2014
Ellen ConnollyStony Brook, NY 11790Jul 22, 2014
Ashley DoernerFairfax Station, VA 22039Jul 21, 2014
Leon DoernerFairfax Station, VA 22039Jul 21, 2014
kelleylincoln city, OR 97367Jul 11, 2014
Support pku
Molly McDevittNashville, TN 37206Jun 29, 2014
Linda S SchaefferSurprise, AZ 85387Jun 20, 2014
Courtney PrescottLong Island City, NY 11105Jun 16, 2014
Nanette grissompingree grove, IL 60140Jun 14, 2014
Stuart WightmanFullerton, CA 92832Jun 10, 2014
Laurie ReinhardPasadena, MD 21122Jun 9, 2014
Moya ChappellGibsonton, FL 33534Jun 9, 2014
MoveOn.org 7
Jerome e. weilandnorth potomac, MD 20878Jun 9, 2014
carole weilandnorth potomac, MD 20878Jun 9, 2014
My son-in-law has PKU. The whole family suffers from the effects if environmental changes necessitate thathis doctor adjust his PKU diet. More research could really help. The special drink that keeps him alive withoutbrain damage has begun to severely irritate his stomach, but he has no known viable alternative.
Deanna BrewerPerry, UT 84302Jun 9, 2014
Please help save life and enrich or countries greatest resource.
Jamie Valonerochester, NY 14609Jun 7, 2014
G. Thomas NeuenschwanderPasadena, MD 21122-7142Jun 7, 2014
andrew bloisstaten island, NY 10307Jun 7, 2014
Cindy YoungLeavenworth, KS 66048Jun 5, 2014
Please pass this!!!
Sarah Crosbiesan diego, CA 92110Jun 5, 2014
Danny EatonLaurel, MD 20723Jun 4, 2014
x
Jay RosenbergerSanta Fe Springs, CA 90670
MoveOn.org 8
Jun 4, 2014
Tobin CantrellIndianapolis, IN 46254Jun 4, 2014
Krystal RoddenBuena Park, CA 90621Jun 3, 2014
Monica WeldonCypress, TX 77433Jun 3, 2014
Dave WalkerDelmar, DE 19940Jun 3, 2014
Megan HeikeMurrieta, CA 92563Jun 3, 2014
I am an adult with PKU, and not on diet for this exact reason. Please consider making the treatment moreexcessible, affordable and available.
Jennifer RoddenBuena Park, CA 90621Jun 3, 2014
Mandi JoplinVlg of Lakewd, IL 60014Jun 3, 2014
Joanna TiernoStaten Island, NY 10306Jun 3, 2014
Include HCU and other medical food patients.
Martha SimpsonYork, PA 17403Jun 3, 2014
This bill has been needed for many years. We tried to get a similar bill passed in Illinois, but Illinois beingwhat it is, we were unsuccessful.
James KowalczykBartlett, IL 60103Jun 3, 2014
MoveOn.org 9
ERIN FOSTERCozad, NE 69130Jun 3, 2014
Kelly OliveSt. Pete, FL 33705Jun 3, 2014
PamelaCrystal lake, IL 60012Jun 3, 2014
Ben WagnerCrystal Lake, IL 60012Jun 3, 2014
Lauren TyeCosta Mesa, CA 92626Jun 2, 2014
Ann TyeSalt Lake City, UT 84123Jun 2, 2014
Ama MurphyHolladay, UT 84117Jun 2, 2014
Gregory Thomas AwarskiCheektowaga, NY 14227Jun 2, 2014
Please help people with PKU,(including myself), find ways to improve their lives and find a cure!!
Kelly AwarskiCheektowaga, NY 14227Jun 2, 2014
marianna zieglermurrells inlet, SC 29576Jun 2, 2014
cara sikovWappingers Fl, NY 12590Jun 2, 2014
Allison TreaseWest Jordan, UT 84084
MoveOn.org 10
Jun 2, 2014
Tina OsborneTaylorsville, UT 84118Jun 2, 2014
Heather RicksLehi, UT 84005Jun 2, 2014
Michelle JackmanRiverton, UT 84096Jun 1, 2014
Kirsten EricsonEagle Mountain, UT 84005Jun 1, 2014
Sara TyeTaylorsville, UT 84123Jun 1, 2014
Heather PageMurray, UT 84123Jun 1, 2014
Jeron MortensenSouth Jordan, UT 84095May 31, 2014
Jennifer TaulWarwick, RI 02888May 29, 2014
Suzanne EdingerPelham, AL 35124May 29, 2014
Melanie HalupkaSaarlouis, GermanyMay 29, 2014
Shinobu WongLivermore, CA 94550May 28, 2014
Christina FumiaHuntington Beach, CA 92647May 28, 2014
MoveOn.org 11
jennifer liningerlivermore, CA 94551May 28, 2014
Bour KatjaGermanyMay 28, 2014
Michelle OkamotoLivermore, CA 94550May 28, 2014
Tammy HarrisonLivermore, CA 94550May 28, 2014
Jenny BarronLivermore, CA 94550May 28, 2014
Chelsea ForsethChattanooga, TN 37402May 27, 2014
Elijah Fitzpatrick GrahamNashville, TN 37207May 27, 2014
chelsearancho cordova, CA 95670May 27, 2014
Jason MortensenBountiful, UT 84010May 27, 2014
Mercedes MortensenBountiful, UT 84010May 27, 2014
Food is their only medicine
JulieAkron, OH 44320May 26, 2014
MoveOn.org 12
This is essential! There is no other way to protect these innocent little ones. As a society, we have theresponsibilty to give every child the best start possible.
Denice DeGrazioSouth Jordan, UT 84095May 26, 2014
BrettLouisville, KY 40217May 26, 2014
My friends little brother has pku and I have seen the struggle they have gone through for his dietary needs
laura lambeslake city, FL 32014May 26, 2014
MaryJoMonrovia, CA 91016May 25, 2014
Heidi SollyGainesville, FL 32606May 25, 2014
Very important to have to treatment available, even mild untreated PKU have ramifications and causes longterm problems that people dont understand
Alison MoulesAustraliaMay 25, 2014
Tiffany CutlipBall Ground, GA 30107May 25, 2014
Vicki MathesonProvo, UT 84601May 25, 2014
My brother has PKU and he is now taking on the burden of paying for all of his medically necessary foodsand drugs because he is an adult and insurance doesn't cover them. Other people that are medically in need ordisabled get things covered so now it's time to include PKU adults.
Karen MarshallAlachua, FL 32615May 25, 2014
MoveOn.org 13
kate tyreFort White, FL 32038May 25, 2014
I have PKU, and I know the struggle of not being able to pay for your medabolical diet.
Chelsie HouserSalt Lake City, UT 84018May 25, 2014
OlympiaSouth Jordan, UT 84095May 25, 2014
John MortensenPhoenix, AZ 85339May 25, 2014
My son was covered by our insurance. He is very intelligent. That intelligence is threatened now.
Laurette MortensenLancaster, VA 22503May 25, 2014
catherine ricegainesville, FL 32607May 25, 2014
My little brother has PKU. My parents had 5 children and worked multiple jobs to pay for his medicallynecessary diet, which insurance did not cover. Now he is an adult working at McDonalds and going to school.He can't afford his food on his salary. Please help.
Beth NollHigh Springs, FL 32643May 24, 2014
Joseph EdinboroughMt pleasant, MI 48858May 24, 2014
Christeen KimmelIthaca, MI 48847May 24, 2014
Heather DennisMount pleasant, MI 48858May 24, 2014
MoveOn.org 14
Lark NollFort White, FL 32038May 24, 2014
Jerome Edmund Weiland Jr.North Potomac, MD 20878May 24, 2014
Lisa SelageWappingers Falls, NY 12590May 23, 2014
kaleigh veliePoughkeepsie, NY 12601May 23, 2014
My son has PKU and we really did this Thank you!
Bonnie ReynoldsLevittown, PA 19056May 23, 2014
It is not just to feel better, it is to survive. It should be essential, not an option.
Elizabeth BrynjolfsonLangley, CanadaMay 23, 2014
Jami MerchantCorona, CA 92883May 23, 2014
Ted NahasUrbandale, IA 50323May 23, 2014
Virginia FlynnPortland, OR 97214May 23, 2014
Kristen EdwardsCorona, CA 92879May 23, 2014
Leah DukeCorona, CA 92882May 23, 2014
MoveOn.org 15
Penny TurnerThe Villages, FL 32162May 23, 2014
Tamera StrieterVermilion on the Lake, OH 44089May 23, 2014
P. v. BerkelNetherlandsMay 23, 2014
Kathleen AmesPortland, OR 97221May 23, 2014
Jacqueline BrynjolfsonLangley, CanadaMay 23, 2014
Amy HumeSt. Louis, MO 63116May 22, 2014
Janice Rheeellicott city, MD 21042May 22, 2014
darla canadayAurora, CO 80015May 22, 2014
Timothy TravisWoodville, AL 35776May 22, 2014
Misty ChapmanWoodville, AL 35776May 22, 2014
FrankCanadaMay 22, 2014
ConnieNiles, OH 44446May 22, 2014
MoveOn.org 16
Holly fisherNiles, OH 44446May 22, 2014
AmandaNiles, OH 44446May 22, 2014
David LeggMilwaukie, OR 97267May 22, 2014
maureen wrightPortland, OR 97202May 22, 2014
Rubina JohannesDiscovery Bay, CA 94505May 22, 2014
Margvelashvili LaliTbilissi, GeorgiaMay 22, 2014
Tamsen OgdenPort Moody, CanadaMay 22, 2014
Stephanie candlineSparwood, CanadaMay 22, 2014
Carrie RendziakWestlake, OH 44145May 22, 2014
Esthercleveland, OH 44111May 22, 2014
Jillian DoeySparwood, CanadaMay 22, 2014
NICOLE PALLONESPARWOOD, CanadaMay 22, 2014
MoveOn.org 17
For my friend Marti and her family
Jodi PrattAptos, CA 95003May 22, 2014
Kristen BuchananHesperia, CA 92345May 22, 2014
For my nephew.
Jennifer BixlerMelbourne, FL 32935May 22, 2014
Donna RodgersYoungstown, OH 44509May 22, 2014
Becca MonteleoneWestlake, OH 44145May 22, 2014
Danielle PowellUnionville, TN 37180May 22, 2014
Marla KosseOmaha, NE 68127May 22, 2014
James CrossPleasanton, CA 94588May 22, 2014
Sue HaasMartinsville, IN 46151May 22, 2014
Patricia FeasterEl Paso, TX 79924May 22, 2014
Lali MargvelashviliTbilisi, GeorgiaMay 22, 2014
MoveOn.org 18
Albert MarascoAltoona, IA 50009May 22, 2014
jenelle olsenspanaway, WA 98387May 21, 2014
Beth CrawfordLarkspur, CA 94939May 21, 2014
Please include PKU! I have a son with it and it is so extremely important for him to be on treatment and dietand it would be wonderful if a cure could be found.
Amy CalhounWaukesha, WI 53186May 21, 2014
Mary WeilandWashington, DC 20001May 21, 2014
DerrickEau Claire, WI 54701May 21, 2014
DanielHubbard, OH 44425May 21, 2014
Dana murguiaRocklin, CA 95677May 21, 2014
Sharon KittlesonLADY LAKE, FL 32159-9296May 21, 2014
Let's make this happen!!!!
[email protected], CA 95661May 21, 2014
KelsieCitrus Heights, CA 95621May 21, 2014
MoveOn.org 19
My cousin's 1 year old grandson has PKU. Until I read this petition I didn't know that it can be treated withnutrition. It makes no sense to deny this to people suffering from PKU including my cousin's little grandson.
Arthur HamlinBraintree, VT 05060May 21, 2014
kayOroville, CA 95965May 21, 2014
Lauryn BoyleSunset Whitney Ranch, CA 95677May 21, 2014
Marti RacetteAntioch, CA 94531May 21, 2014
My grandson has PKU and we need your support. Please support all measures that give access to research,medications and phe free foods for this amazing group of people in the PKU community of rare metabolicdisorders.
MargieLincoln, CA 95648May 21, 2014
Thank you. This must happen
Candace JonesLincoln, CA 95648May 21, 2014
thomas crouchlincoln, CA 95648May 21, 2014
Suzy folkLamar, SC 29069May 21, 2014
Joyce ErschenKnoxville, TN 37920May 21, 2014
rhonda morrisseyomaha, NE 68136May 21, 2014
MoveOn.org 20
Derrick DillBurlington, NC 27215May 21, 2014
Kasey PetersenRoseville, CA 95661May 21, 2014
TimRocklin, CA 95765May 21, 2014
My daughter Karlee Rose Leonardi has PKU please help so I can keep her healthy. Thank you.
Jacqueline LeonardiApple Valley, CA 92308May 21, 2014
Courtney EltingSacramento, CA 95842May 21, 2014
Breanna crouchRocklin, CA 95765May 21, 2014
For Abby Meyers
Elizabeth A MeyersOmaha, NE 68138May 21, 2014
Tim WilbeckExeer, NE 68351May 21, 2014
Staci BruggerLa Grange, TX 78945May 21, 2014
Just do it!!!
Kevin R JonesLongs, SC 29568May 21, 2014
Kristin K RosePensacola, FL 32504
MoveOn.org 21
May 21, 2014
Tiffany MalloyAurora, CO 80015May 21, 2014
My son has PKU
Anne Marie DelaneySt. Albans, United KingdomMay 21, 2014
John KimbleRocky River, OH 44116May 21, 2014
Melody McNeilMarietta, GA 30062May 21, 2014
Stacie simsLa grange, TX 78945May 21, 2014
Please support insurance coverage for medical food.
Peter and Anna MarascoClive, IA 50325May 21, 2014
Jeannine PelletierAlbany, NY 12205May 21, 2014
Janet MillerSheffield Lake, OH 44054May 21, 2014
eugene w pflumBreckenridge, CO 80424May 21, 2014
This Is Where The Real Medical Focus Should Be. This Is Where Disciplined, Normal, Hard Working,Contribute To Society Type Families That Need Assistance.
Michael Sladovicgalloway, OH 43119May 21, 2014
MoveOn.org 22
Beverly Wilmers
beverly wilmersOmaha, NE 68118May 21, 2014
vilka aliceaCleveland, OH 44109May 21, 2014
Lane HewittMitchell, IN 47446May 21, 2014
Alisia BobbCrooksville, OH 43731May 21, 2014
KerryParma Heights, OH 44130May 21, 2014
sandrastaten island, NY 10309May 21, 2014
Dee ErvinUnited States 23641May 21, 2014
Stuart RovinMurrells Inlet, SC 29576May 21, 2014
carl flarstockholm, NJ 07460May 21, 2014
Please close the gap
Evelyn OConnorAshland, NE 68003May 21, 2014
maureen flarstockhom, NJ 07460May 21, 2014
MoveOn.org 23
Rachel FlarCedar Knolls, NJ 07927May 21, 2014
Pam BenbenekLa Grange, TX 78945May 21, 2014
SCOTT HOFFMANNSaint Louis, MO 63109May 21, 2014
haniacleveland, OH 44144May 21, 2014
Lauren VetrickRocky River, OH 44116May 21, 2014
I do this for those who can't, fight strong and win!!!!
tabitha konevalnorth royalton, OH 44133May 21, 2014
Tessa WolfErie, PA 16510May 21, 2014
Jimmy giangFairview park Ohio 44126, OH 44126May 21, 2014
Dana G. WheelerFort Bragg, NC 28307May 21, 2014
Karissa TothNorth Olmsted, OH 44070May 21, 2014
Samantha HillBrunswick, OH 44212May 21, 2014
Cathy ChorensLa grange, TX 78945
MoveOn.org 24
May 21, 2014
SuehelieCleveland, OH 44111May 21, 2014
JenniferParma, OH 44129May 21, 2014
Kelly Van SingelSaint Clair, MI 48079May 21, 2014
Greg reynoldsLevittown, PA 19056May 21, 2014
Amanda ContiParma Heights, OH 44130May 21, 2014
Kari ManganLaVista, NE 68106May 21, 2014
alyssa ashieParkview, OH 44126May 21, 2014
Korin HoskinsonNorth Canton, OH 44720May 21, 2014
caroln rendziakhouston, PA 15342May 21, 2014
Becky NewbroughNiles, OH 44446May 21, 2014
Jennifer GreigAirdrie, United KingdomMay 20, 2014
Karen HoffmannSaint Louis, MO 63109May 20, 2014
MoveOn.org 25
LindaCayuga, NY 13034May 20, 2014
Love my chunky monkey
April MarshNew Albany, IN 47150May 20, 2014
tonia epplestreetsboro, OH 44241May 20, 2014
Debbie L CooperNewton Falls, OH 44444May 20, 2014
Mary PflumBreckenridge, CO 80424May 20, 2014
Renee WilliamsMadison, AL 35756May 20, 2014
Carole Bixler OhioNiles, OH 44446May 20, 2014
Thomas MathewsCleveland Heights, OH 44121May 20, 2014
AshleyWarren, OH 44484May 20, 2014
Shayla ShojaatWest Des Moines, IA 50266May 20, 2014
Eric fisherniles, OH 44446May 20, 2014
Maxine FlahertyDes Moines, IA 50315
MoveOn.org 26
May 20, 2014
Treena MooreUnion City, TN 38261May 20, 2014
Eve conteraLancaster, CA 93534May 20, 2014
This is a worthy use of research to help citizens deal with a very real disease that affects both the individualsand their families. Thank you for considering a positive action.
nancy kellerWaunakee, WI 53597May 20, 2014
KristieHubbard, OH 44425May 20, 2014
KristaGirard, OH 44420May 20, 2014
Danielle BordersGibson City, IL 60936May 20, 2014
Melissa Bixlernewton falls, OH 44444May 20, 2014
William SpeelmanOsbornville, NJ 08723May 20, 2014
SethFredericksburg, VA 22401May 20, 2014
Stephanie CoxNiles, OH 44446May 20, 2014
Steven SeverinSuperior, WI 54880May 20, 2014
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Diane VarshoWarren, OH 44484May 20, 2014
Nicole HaralambopoulosYoungstown, OH 44515May 20, 2014
Amanda FureyWarren, OH 44484May 20, 2014
Rebecca BeckerGrand Forks, ND 58201May 20, 2014
Ted Sloban IIINiles, OH 44446May 20, 2014
Sarah BixlerAURORA, OH 44202May 20, 2014
Abbey BixlerParma, OH 44129May 20, 2014
MelissaCanadaMay 20, 2014
Regina KeilersFayetteville, TX 78840May 20, 2014
Do it!!!
Frances MullaneJupiter, FL 33478May 20, 2014
Maria BeckWarminster, PA 18974May 20, 2014
Ann EccherLa Grange, TX 78945
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May 20, 2014
Raffaela McnallyCanadaMay 20, 2014
Kathleen KellyDearborn, MI 48128May 20, 2014
Sue TrevellyanWatervliet, NY 12189May 20, 2014
Misty HughesCape Coral, FL 33914May 20, 2014
Connie TaylorLaurel, DE 19956May 20, 2014
Dan BakerWesley Chapel, FL 33543May 20, 2014
Amy ShehanColumbus, IN 47201May 20, 2014
Molly MarshallWayne, NJ 07470May 20, 2014
Crystal tibbscolumbus, IN 47201May 20, 2014
Justyna DragPalos Hills, IL 60465May 20, 2014
gudrun petersPROSPECT, KY 40059May 20, 2014
Michael MullaneGrand Forks, ND 58203May 20, 2014
MoveOn.org 29
Patty JohnsonOmaha, NE 68124May 20, 2014
john thimeschUrbandale, IA 50322May 20, 2014
Carla FasanoMaumee, OH 43537May 20, 2014
Please make sure that medical food is available to every child and adult that needs it. The cost is far less thanlong term care and supports.
Mary CollardOwings Mills, MD 21117May 20, 2014
Nancy LayneLatham, NY 12110May 20, 2014
sally hunterdyersburg, TN 38024May 20, 2014
Paul Newmantoronto, OH 43964May 20, 2014
CrescentCallahan, FL 32011May 20, 2014
This is for my son's future and the other PKU adults!
Laura HuntTiptonville, TN 38079May 20, 2014
Kathleen M. RyanClifton Park, NY 12065May 20, 2014
Lauren HuberlandWest Dundee, IL 60118May 20, 2014
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Anne LaufePortland, OR 97213May 20, 2014
joan wisniewskiridge, NY 11961May 20, 2014
David ConteraAtwell, AustraliaMay 20, 2014
P J TurnerThe Villages, FL 32162May 20, 2014
Please give PKU a voice!
Emily PartonColumbus, IN 47203May 20, 2014
Natalie MooreWaxhaw, NC 28173May 20, 2014
This is a life long struggle and those who suffer deserve a better life, they deserve a CURE.
shannon scarboroughlas vegas, NV 89139May 20, 2014
Please close the gap between PKU and available treatment as soon as possible.
Theresa AlloccoNew Providence, NJ 07974May 20, 2014
kelly bauernashville, TN 37203May 20, 2014
linda adamczykclifton park, NY 12065May 20, 2014
Sherry MullaneGrand Forks, ND 58203
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May 20, 2014
Suzanne PalmerAshland, NE 68003May 20, 2014
Richard reynoldsLevittown, PA 19056May 20, 2014
Rhonda DeTranoRidge, NY 11961May 20, 2014
Bobby JonesHoliday, FL 34690May 20, 2014
Michael GroveGibson city, IL 60936May 20, 2014
Suzanne KroskyLoudonville, NE 12211May 20, 2014
Eileen DeRensisCohoes, NY 12047May 20, 2014
T. RousseauJonesville, NY 12065May 20, 2014
Cami Turnermedia, PA 19063May 20, 2014
in honor of my 2nd cousin, 1-year-old Crosby Turner
Carreen KoutsOceanview, DE 19970May 20, 2014
PKU needs to be addressed.
Patricia RousseauWaterford, NY 12188May 20, 2014
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NancyClifton Park, NY 12065May 20, 2014
Cathie Fisher BramanFredericksburg, VA 22401May 20, 2014
Melinda RobertsFarmington, NM 87401May 20, 2014
Kathy McCartyHolland, OH 43528May 20, 2014
Ashley Wrightpauma valley, CA 92061May 20, 2014
JimVancouver, WA 98682May 20, 2014
We need this to help us! It will make our lives a lot more bareble and make us feel that little bit normal! Thiswould make people's lives so much easier. Please help us!
Nicola PikeUnited KingdomMay 20, 2014
My five year old son has PKU and he deserves a voice.
Berenice moraConcord, CA 94520May 20, 2014
Tony antonelliStaten Island, NY 10309May 20, 2014
dbrockville, CanadaMay 20, 2014
Damon SongerAPO, AE 09751May 20, 2014
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Gail SommervilleGlenmont, NY 12077May 20, 2014
Angela DrakeColumbus, IN 47201May 20, 2014
CatherineWesttown, NY 10998May 20, 2014
Lisa DuncanRio Rancho, NM 87124May 20, 2014
olivia hamiltonEvanston, WY 82930May 20, 2014
Sarah CampbellSugar Land, TX 77479May 20, 2014
No one should suffer because of being denied essential medicines and foods.
Diane LewisBuckhurst Hill, United KingdomMay 20, 2014
Mary Beth FolgerNashville, TN 37209May 20, 2014
John GaenzlerLong Island City, NY 11101May 20, 2014
Lauren LooserNashville, TN 37215May 20, 2014
Scott CampbellSugar Land, TX 77479May 20, 2014
Holly OlsonFt Myers, FL 33901
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May 20, 2014
Colleen McCartyEast Lansing, MI 48823May 20, 2014
DomenighettiFranceMay 20, 2014
Mary StokesHavertown, PA 19083May 20, 2014
KatieRudderville, TN 37064May 20, 2014
Marcia TrumanPortland, OR 97210May 20, 2014
Jessica PistoriusCurtis Bay, MD 21226May 20, 2014
For my bro and sis
Michael KellyLakewood, CO 80228May 20, 2014
Jennifer OlsonWichita, KS 67212May 20, 2014
chandler owingsLk Winnebago, MO 64034May 20, 2014
Mary Margaret CunninghamnAuburn, AL 36830May 20, 2014
Connie BerryDade City, FL 33523May 20, 2014
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Nicole KellyLakewood, CO 80228May 20, 2014
Jill PulvermacherEau Claire, WI 54701May 20, 2014
Tracy JacksonEldersburg, MD 21784May 20, 2014
Austin ThomasUnion springs, NY 13160May 20, 2014
Nathan PoffGreenwood, IN 46142May 20, 2014
ASOCIACIÓN FENILCETONÚRICA Y OTM DE GALICIALugo, SpainMay 20, 2014
Thelma TurnerLake City, TN 37769May 20, 2014
Melissa PerezTallahassee, FL 32309May 20, 2014
Josie RizzutoWoodbridge, CanadaMay 20, 2014
Laurie ConsidineBrick, NJ 08723May 20, 2014
It's about time PKU got recognition
Mark EdwardsTywyn, United KingdomMay 20, 2014
kelli floydopelika, AL 36801
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May 20, 2014
Bobbie O'ConnorSeneca Falls, NY 13148May 20, 2014
Please help. Thank you
Clifton brownin, IN 46131May 20, 2014
Kimberly LucasUnion Springs, NY 13160May 20, 2014
I am the mother of a child with PKU. This disease is generally diagnosed through newborn screening andsince diet is the treatment, the diet components should have full insurance coverage!
Tracy KeeganSummit, NJ 07901May 20, 2014
Tom AndersonClive, IA 50325May 20, 2014
In honor of my adult brother with PKU.
Kristina PetersLouisville, KY 40205May 20, 2014
Lisa RicciGroton, MA 01450May 20, 2014
Ariel NoyesWest Union, OR 97124May 20, 2014
Donna SchofieldDunsbach Ferry, NY 12047May 20, 2014
Sarah HirdesSpring Lake, MI 49456May 20, 2014
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Tom DennisMount pleasant, MI 48858May 20, 2014
SandraTacoma, WA 98439May 20, 2014
Kathy CantrellCenterville, GA 31028May 20, 2014
Help our PKU kids!!!
Brandee McNeillyMount Pleasant, MI 48858May 20, 2014
Kelli clawsonEdinburgh, IN 46124May 20, 2014
JacyCrofton, MD 21114May 20, 2014
Lisa BettisMesa, AZ 85212May 20, 2014
Debra MacDonaldAberdeen, United KingdomMay 20, 2014
I have PKU and I think its just ridiculous that us Pkuers in the US can not get the help thats necessary.
Brandy Blantonjacksboro, TN 37757May 20, 2014
SUPPORT to the USA PKU-ers! This is a condition for life and should be treated as such, including financialassistance.
Paul SwallowNorth Lanarkshire, United KingdomMay 20, 2014
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Lindy vaughtindianapolis, IN 46259May 20, 2014
Brenda JacobsonColumbus, IN 47203May 20, 2014
Eric PetersLouisville, KY 40206May 20, 2014
Jill ArmentroutSt. Louis, MO 64123May 20, 2014
Andrea BoardGreenwood, IN 46142May 20, 2014
rose sipeBonita springs, FL 34135May 20, 2014
Krystal PoffColumbus, IN 47201May 20, 2014
Kristi MaherMatthews, NC 28105May 20, 2014
Jason BaldwinColumbus, IN 47203May 20, 2014
Ginny BeckerNaples, FL 34112May 20, 2014
patricia dorseydedham, MA 02026May 20, 2014
Carol EdwardsSmithfield, NC 27577May 20, 2014
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donald m kellerWaunakee, WI 53597May 20, 2014
CarriePatterson, NY 12563May 20, 2014
Amanda cunninghamPortland, ME 04103May 20, 2014
Sign petition
Jacqueline manassoScarborough, ME 04074May 20, 2014
Sheri BretanOld Tappan, NJ 07675May 20, 2014
Scott HeideschWest Des Moines, IA 50266May 20, 2014
Anthony LippsWhiteland, IN 46184May 20, 2014
Peggy WilliamsPickerington, OH 43147May 20, 2014
Hope BossardRadcliffe, IA 50230May 20, 2014
Stacy MeyersWhiteland, IN 46184May 20, 2014
Lindsy VojdanoskiWest Palm Beach, FL 33408May 20, 2014
Betty PoutreWaterford, NY 12188
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May 20, 2014
MG McCulloughAlbuquerque, NM 87111May 20, 2014
catherineAlbuquerque, NM 87112May 20, 2014
Barb MuldoonPeoria, AZ 85383May 20, 2014
Stefanie ThompsonAlbuquerque, NM 87109May 20, 2014
William JacksonGlass Lake, NY 12018May 20, 2014
Dale LevinMonroe, NC 28110May 20, 2014
Kendra StrahCopley, OH 44321May 20, 2014
Jimmie DavisThe Villages, FL 32162May 20, 2014
LauraGansevoort, NY 12831May 20, 2014
rachael dodsondubai, United Arab EmiratesMay 20, 2014
Tracey CostanzoKansas City, MO 64114May 20, 2014
diane lehmullerrensselaer, NY 12144May 20, 2014
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kristen schCarmel, NY 10512May 20, 2014
Kimberly TremblayDunsbach Ferry, NY 12047May 20, 2014
Nikki HicksSTW, OK 74075May 20, 2014
Fiona HenryKaty, TX 77494May 20, 2014
Find a cure!
DeAnn Murtleadvance, NC 27006May 20, 2014
For Mick
Tina CunninghamFredricksburg, VA 22406May 20, 2014
Pasquale GrecoOceanside, NY 11572May 20, 2014
Denise McGuckinAkron, OH 44313May 20, 2014
Lilianne DeGaetanoManalapan, NJ 07726May 20, 2014
Lynnette SenaFPO, AE 09608May 20, 2014
Joan SweeneyVischer Ferry, NY 12148May 20, 2014
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suzanne hoffmanclive, IA 50325May 19, 2014
Please do what is right!
Kylie SongerAPO, AE 09751May 19, 2014
CaraBuckhurst Hill, United KingdomMay 19, 2014
Ellen LardnerPlano, TX 75075May 19, 2014
Jeffrey C. PrattDamascus, OR 97089May 19, 2014
Please help the fight for a cure!
Susan ClarkGrosse Pointe Park, MI 48230May 19, 2014
Ruth GerdesAuburn, NE 68306May 19, 2014
DaveFishers, IN 46038May 19, 2014
melissa calhounAlbuquerque, NM 87123May 19, 2014
Deborah SandstedtBellevue, NE 68005May 19, 2014
Catherine BrunetteGrnwood, IN 46143May 19, 2014
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Matt TessauWest Des Moines, IA 50266May 19, 2014
AnnemarieAurora, IL 60503May 19, 2014
Marty McMillinIndianapolis, IN 46237May 19, 2014
Kristen RenaudAlbuquerque, NM 87102May 19, 2014
Kimberly FelixColton, NY 13625May 19, 2014
Cigall EacottAlbuquerque, NM 81706May 19, 2014
Medical food and formula for PKU patients should be covered 100% on all health plans! It is more costeffective than treating the patient who suffers the repercussions of not following the diet!
Wendy PiccirilloWoodland Hls, CA 91367May 19, 2014
Susan HalpernMurrells Inlet, SC 29576May 19, 2014
Carrie ConnerGreendale, WI 53129May 19, 2014
Alissa DoernerFx Station, VA 22039May 19, 2014
Byron G SmithAlbuquerque, NM 87110May 19, 2014
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Julie Kelly-SmithAlbuquerque, NM 87110May 19, 2014
Peg dotyBallston lake, NY 12019May 19, 2014
Elisha LowndsGillette, WY 82717May 19, 2014
This a serious concern!
Johnny ParksPflugerville, TX 78660May 19, 2014
PKU, be gone!
Trudy O'NeilMassena, NY 13662May 19, 2014
Will CourtainYUMA, AZ 85367May 19, 2014
Mary diLorenzoMurrells Inlet, SC 29576May 19, 2014
Iwona kuszajPhiladelphia, PA 19111May 19, 2014
Chris MylesWilton, CT 06897May 19, 2014
I support PKU
Suzanne BartonBuckeye, AZ 85326May 19, 2014
Yvonne broussardSt. Martinville, LA 70582
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May 19, 2014
JanetWest Des Moines, IA 50266May 19, 2014
Samantha TaylorAnn Arbor, MI 48103May 19, 2014
Christie McNamaraGreenwood, IN 46142May 19, 2014
Josephine DouglasUrbandale, IA 50322May 19, 2014
Terri CotterellPooleville, OK 73401May 19, 2014
Vicki AndreczskiMillhurst, NJ 07728May 19, 2014
JUST DO WHAT NEEDS TO BE DONE ALREADY! BE FAIR & CARING. WHAT WOULD YOU DO IFONE OF YOUR LOVED ONES NEEDED YOUR HELP? THINK!!!!
Diane ZizzoLevittown, NY 11756May 19, 2014
Jeannine stokesHavertown, PA 19083May 19, 2014
Beth IatestaMedia, PA 19063May 19, 2014
Kim KnowlesHillsboro, OR 97007May 19, 2014
Alice SullivanPalmetto, FL 34221May 19, 2014
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I have PKU
DerekClifton park, NY 12065May 19, 2014
My boyfriend has PKU
LaurenClifton park, NY 12065May 19, 2014
Sandy WeinbergerMurrells Inlet, SC 29576May 19, 2014
Amanda DunaganRichmond Hill, GA 31324May 19, 2014
Nancy ArnoldClifton Park, NY 12065May 19, 2014
Tracy SangareClifton Park, NY 12065May 19, 2014
Laura StickleChicago, IL 60640May 19, 2014
Aron GalonskyYardley, PA 19067May 19, 2014
Marsha GryvatzTinton falls, NJ 07712May 19, 2014
Jen cardamoneWoolwich, NJ 08085May 19, 2014
CarolPortland, OR 97267May 19, 2014
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Kelly Anne CarbonaroStaten Island, NY 10312May 19, 2014
Tom NeubauerMenomonie, WI 54751May 19, 2014
John WilmersOmaha, NE 68218May 19, 2014
Angel NeubauerMenomonie, WI 54751May 19, 2014
James L McCloskeyDrexel Hill, PA 19026May 19, 2014
Dana KingCottage Grove, WI 53527May 19, 2014
PLEASE.. CLOSE THE GAP .. THESE PATIENTS DESERVE ACCESS TO THE BEST AVAILABLETREATMENT TO THEM .
Judith.K. Lindsaygillette, WY 82716May 19, 2014
Melissa SeybertWest Des Moines, IA 50266May 19, 2014
steve cashmanWDM, IA 50266May 19, 2014
This is for my 2 daughters who have PKU!
Katrina AndersonLiberty Township, OH 45044May 19, 2014
Amy wormsleyUrbandale, IA 50323May 19, 2014
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Brenda ConnellyBallston Lakr, NY 12019May 19, 2014
Kathleen WrightBrunswick, NY 12180May 19, 2014
christina paternosterpittsburgh, PA 15203May 19, 2014
MeribethJonesville, NY 12065May 19, 2014
Tom VellecaStaten Island, NY 10312May 19, 2014
Heidi HarkinsMalta, NY 12019May 19, 2014
LauraGrnwood, IN 46143May 19, 2014
Karen TatroShrewsbury, MA 01545May 19, 2014
Rachel LairdUnion Springs, NY 13160May 19, 2014
my girlfriend has PKU and the fact that her insurance company says that her formula isnt necessary makes meenraged.. It's not like these people choose to have PKU. They have had it since birth and it very much soshould be covered
Alex Bauernashville, TN 37203May 19, 2014
Prayers for all the children with this condition
Michele ZielinskiFort mill, SC 29707
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May 19, 2014
Cherie BeckGreenwood, IN 46142May 19, 2014
NickyNorthbrook, IL 60062May 19, 2014
Please close the gap between PKU and the readily available treatment known as the category of medical food,a designated orphan therapy. Patients deserve access to the latest innovations in the nutritional management ofPKU, which stem from NIH research but continue to be denied and are often not reimbursed.
Alice McDonaldAustraliaMay 19, 2014
sarah jorgensenGillette, WY 82718May 19, 2014
Ruth EversScotia, NY 12302May 19, 2014
Hollon StevensFalls Church, VA 22046May 19, 2014
Emylee ManningOttawa, CanadaMay 19, 2014
Cynthia TreadwellRozet, WY 82727May 19, 2014
Vincent MilioteNew York, NY 10007May 19, 2014
Debbie huchokBloomfield hills, MI 48304May 19, 2014
Please help make PKU treatable for all sufferers.
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Kathleen ThompsonBennington, VT 05201May 19, 2014
Deborah NorrisGillette, WY 82728May 19, 2014
Zack ogleHouston, TX 77024May 19, 2014
JenniferPompey, NY 13138May 19, 2014
Lauren BrennickBellingham, MA 02019May 19, 2014
Liz RoneyMurrells inlet, SC 29576May 19, 2014
Celena CowenNorthville, MI 48167May 19, 2014
Medical treatment for PKU is mandated as a life-long treatment. Yet, there is usually funding for childrenborn with PKU, but only to a certain age. If they do not have insurance that pays for the treatment after thatage, they are receiving no treatment at all There is absolutely no sense to this at all. The dietary restrictionshave been proven to have a maximum effect when continued lifelong. Stopping these restrictions, will causeall kinds of absolutely preventable consequences.
Linda KolenkiewiczPhiladelphia, PA 19111May 19, 2014
erna switzererie, PA 16506May 19, 2014
Dolores Farranmanalapan, NJ 07726May 19, 2014
Judi BexWaxhaw, NC 28173May 19, 2014
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Go Allison!
Patrick albanoN.y., NY 12302May 19, 2014
please help these pku patients!! They deserve a quality healthy life too.
karyn martinCopley, OH 44321May 19, 2014
Kem BakerWesley Chapel, FL 33543May 19, 2014
For my niece Clare!
Crystal DiTullioNashua, NH 03063May 19, 2014
Sibel GhalyLittleton, CO 80128May 19, 2014
Julie dingerSouth Abington twp, PA 18411May 19, 2014
MaryannStaten Island, NY 10309May 19, 2014
Rhoda PflumNovi, MI 48374May 19, 2014
Melissa RiosAldie, VA 20105May 19, 2014
Christine BurwellLevittown, NY 11756May 19, 2014
Brent johnsonGirard, PA 16417
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May 19, 2014
My sister has PKU, and she has a hard time taking all the formula stuff that she needs everyday. We need abetter, more efficient way to adminsiter the formula at least.
Kaissac GrissomMcHenry, IL 60051May 19, 2014
Nancy SanterreThompson, CT 06277May 19, 2014
Bob ReberMoosic, PA 18507May 19, 2014
Chairman Upton, I beg you to include PKU for medical food for this terrible metabolic disorder. What youspend now will cost you less in the future for the necessary medical care involed in treating PKU patientsThank you
john Maherindina trail, NC 28079May 19, 2014
Gloria NataleFabius, NY 13063May 19, 2014
WellingtonBrockton, MA 02302May 19, 2014
Angela FedulloAmsterdam, NY 12010May 19, 2014
Lauren BowersGreenville, NC 27858May 19, 2014
Liza GallagherCincinnati, OH 45236May 19, 2014
Ryan CookCambridge Springs, PA 16403May 19, 2014
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Cate Darnellnashbille, TN 37207May 19, 2014
bobbierockmart, GA 30153May 19, 2014
Kathy HarkinsAmsterdam, NY 12010May 19, 2014
Clare Anna Cook!!!
Kylie HazeltonMassena, NY 13662May 19, 2014
Joyce BassettClifton park, NY 12065May 19, 2014
Susan FordEast Nassau, NY 12062May 19, 2014
Jessica BoltonGillette, WY 82718May 19, 2014
CynthiaPembroke Pines, FL 33019May 19, 2014
Brendan FlemingGreenville, NC 27858May 19, 2014
Unbelievable help these people enjoy foods that we r able to enjoy daily!
ann parisistaten island, NY 10312May 19, 2014
Brenna RousseauSelkirk, NY 12158May 19, 2014
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Stacey ArehartManhattan, KS 66502May 19, 2014
PLEASE HELP THESE CHILDREN NOW OTHERWISE IT WILL COST YOU MORE DOWN THE LINEIN MEDICAL CARE.
Mary Ann maherindina trail, NC 28079May 19, 2014
In support of Regan Sherman, 14 years old.
Bob WeaverIndianapolis, IN 46240May 19, 2014
Angel SteeleMonroe, WI 53566May 19, 2014
Sheilah McCartClifton Park, NY 12065May 19, 2014
betty rhodestroy, NY 12180May 19, 2014
Barbara ClarkEffingham, SC 29541May 19, 2014
Their special food is their lifeline just as important as insulin to a diabetic. Please pass this for all of theirsakes!
Deborah WilbeckOmaha, NE 68114May 19, 2014
Rebecca ZapiecSpringfield, PA 19064May 19, 2014
Mary Beth DalyTroy, NY 12180May 19, 2014
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Meredith CabanaWaxhaw, NC 28173May 19, 2014
Allison PerryHoosick Falls, NY 12090May 19, 2014
Alex PerryEagle bridge, NY 12057May 19, 2014
Dawn SlownEvansville, IN 47711May 19, 2014
mindy Gilbertfranklin, MA 02038May 19, 2014
Lauren FerroFloyds knobs, IN 47119May 19, 2014
Please help
Thomas LoveMassena, NY 13662May 19, 2014
maureen greco-bloisoceanside, NY 11572May 19, 2014
Thank you!
Kathleen CraigClifton Park, NY 12065-2642May 19, 2014
Christina WeinerGreenwood, IN 46142May 19, 2014
Tracy HarskiTavistock, NJ 08033May 19, 2014
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Karen PatchellWaterford, NY 12188May 19, 2014
Debbie CuttitaClifton Park, NY 12065May 19, 2014
Brandon S HoseyLaCygne, KS 66040May 19, 2014
stephanie rousseauStoodley Corners, NY 12302May 19, 2014
Jenny NielsenDes Moines, IA 50325May 19, 2014
Deb HensleyGrain Valley, MO 64029May 19, 2014
Melinda AckerBallston Lake, NY 12019May 19, 2014
Theresa HilgertMountville, PA 17554May 19, 2014
Yucera SalmanMurfreesboro, TN 37130May 19, 2014
Signed for my little handsome nephew and my adult cousin and all others that need this help!!
Tammy BarnyakPhilipsburg, PA 16866May 19, 2014
Robert BloisOceanside, NY 11572May 19, 2014
Matt RousseauClifton Park, NY 12065
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May 19, 2014
Tamara CameronMassena Springs, NY 13662May 19, 2014
Melanie ConnellyJonesville, NY 12065May 19, 2014
Heather GartonSaskatoon, CanadaMay 19, 2014
My amazingly brilliant 10 year old niece has PKU. Her brilliance is due to adherence to the Diet for Lifestarted at 8 days old. Medical food is critical. While it is incredibly expensive, as a family we are extremelyfortunate to find a way to fit medical food into the budget. Others are not as fortunate - please help.
Kirsten ZapiecHavertown, PA 19083May 19, 2014
stefania nogaOak Lawn, IL 60458May 19, 2014
My granddaughter has PKU and they need all the help they can get.
Kitty CookMassena, NY 13662May 19, 2014
Camille petersonwest Des Moines, IA 50266May 19, 2014
Michael McFarlandTracy City, TN 37387May 19, 2014
Brenda PedersenWest Des Moines, IA 50266May 19, 2014
Dana ElliotCharlotte, NC 28277May 19, 2014
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Colleen BieggerClive, IA 50325May 19, 2014
christineAustraliaMay 19, 2014
Michele TortoriciSayreville, NJ 08872May 19, 2014
Cathy BolandJonesville, NY 12065May 19, 2014
Tyler GageCharlotte, NC 28277May 19, 2014
hugoraynham, MA 02767May 19, 2014
Kayren DavidsonClive, IA 50325May 19, 2014
Martina MummauMount Joy, PA 17552May 19, 2014
Robyn HovsethOmaha, NE 68138May 19, 2014
Sarah KingMassena, NY 13662May 19, 2014
JulieBella Vista, AustraliaMay 19, 2014
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As the grandparents of 2 young grandsons, ages 8 and 10 yrs, we kindly ask for the readily available treatmentknown as the category of medical food, a designated orphan therapy. Fortunately the diagnosis was foundwhen our grandsons were born thanks to the wonders of medical research in the 70s. We humbly askChairman Upton to include the voices of all PKU families throughout the nation be granted access to the latestinnovations in the nutritional management of PKU. Iowa families are denied respectively reimbursements oftheir very important daily formulas designated orphan therapy. Thank you. Lawrence & Santina M. Stanfel
Lawrence & Santina M. StanfelWest Des Moines, IA 50266May 19, 2014
PLEASE help these children & adults with PKU. They're just as deserving as everyone else with metabolic &genetic conditions. The ACA was 'supposed' to cover their medical foods & formula ... but little by littlethey're being denied by insurance companies and employers. PLEASE, PLEASE help us!
Mamie KerrManchester, NH 03104May 19, 2014
Tabitha WilmothYadkinville, NC 27055May 19, 2014
Colleen ConradWest Des Moines, IA 50265May 19, 2014
Jane CollinsCharlotte, NC 28212May 19, 2014
Milton MarkwellMonteagle, TN 37356May 19, 2014
Megan GuiherCurwensville, PA 16833May 19, 2014
Lynnette GrovesClive, IA 50325May 19, 2014
MonicaBillings, MT 59105May 19, 2014
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The food should be covered because it's medically necessary to sustain the health of anyone afflicted withPKU.
Sally JensenBoulder, CO 80301May 19, 2014
Dena ZaleskiEnglishtown, NJ 07726May 19, 2014
Marge MaloofLiverpool, NY 13090May 19, 2014
Chelsey SerraglioIndian Land, SC 29707May 19, 2014
No email solitary on thank you. Please support the the voice of pay cure
Lucy girondajackson, NJ 98517May 19, 2014
Jean HassellRalston, NE 68128May 19, 2014
Joyce DavyShelby, WI 54601May 19, 2014
Janet VerdiMURRELLS INLET, SC 29576-7534May 19, 2014
William W PopeMtn. Lake Park, MD 21550May 19, 2014
I'm a medical geneticist who used to treat kids with PKU. These foods are medically necessary and the onlyhope for these individuals to be healthy are reach their potential as productive human beings!
Jennifer IbrahimNewton, MA 02461May 19, 2014
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Valerie WeidemannHALETHORPE, MD 21227May 19, 2014
Ann LeachCharlotte, NC 28277May 19, 2014
Kelly KinslandNaples, FL 34109May 19, 2014
I have PKU to. Please support people like me!
amanda cosburnkamloops, CanadaMay 19, 2014
cynthia lee reithtrego, WI 54888May 19, 2014
Kristen AngererCharlotte, NC 28277May 19, 2014
Carla FlemingGreenville, NC 27858May 19, 2014
I had 2 sister with PKU. Please help the PKU patients!!!
Sharilyn UlsaverLeesburg, FL 34748May 19, 2014
Gloria MilioteMurrells Inlet, SC 29576May 19, 2014
Diane GouldSanta Barbara, CA 93105May 19, 2014
Roswitha HolmesWayne, MI 48184May 19, 2014
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Michelle BabelMarine City, MI 48039May 19, 2014
MelissaUrbandale, IA 50323May 19, 2014
Kylie BrownMelvin, IL 60952May 19, 2014
Kirsten RourkeWindsor Hts, IA 50324May 19, 2014
ElizabethPoquetanuck, CT 06360May 19, 2014
Michaela MarrinerTulsa, OK 74104May 19, 2014
Cindy MckenzieHicksville, OH 43526May 19, 2014
Kristin SchafferWaukee, IA 50263May 19, 2014
Donna AbsherJonesville, NC 28642May 19, 2014
Linda BuolGlendale, AZ 85308May 19, 2014
Kellsey BaileySanford, NC 27330May 19, 2014
Joanne huntDecatur, GA 30030May 19, 2014
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Vanessa marasco minickDes Moines, IA 50311May 19, 2014
Michele MarianaPortland, OR 97201May 19, 2014
AmandaHope Mills, NC 28348May 19, 2014
Geoffrey SandsGreenville, NC 27858May 19, 2014
TammieOmaha, NE 68104May 19, 2014
Emily Michelle PreslarCharlotte, NC 28226May 19, 2014
I'm 48 I have cpku I have 2 sets of twins one living / one set past I went k on my diet with all my pregsbut I'mnot on my diet bc I can't afford it I also love re food I used to steal food that I couldn't have bc eveybody ate infront of me/ make fun of me 0a my diet if we could get a cure then we wouldn't b embaressed ab r diet 0amade fun of.maybe we could actually get some insurance like ebelse
teresa boyettekinston, NC 28504May 19, 2014
My grandchildren's future as healthy, contributing American citizens, depends on this coverage.
Jane JarrettPortland, OR 97202May 19, 2014
Michael MilioteFort Mill, SC 29707May 19, 2014
Heather MilioteFreehold, NJ 07728May 19, 2014
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Christa ClarkGrosse Pointe Park, MI 48230May 19, 2014
Kathy StrengMatthews, NC 28104May 19, 2014
Julie PascuzziOverland Park, KS 66221May 19, 2014
Marie Kulmanmarine city, MI 48039May 19, 2014
Jim LanginClive, IA 50325May 19, 2014
My son has Classic PKU.
deborahLakeland, FL 33813May 19, 2014
Amanda DixonDequeen, AR 71832May 19, 2014
Jim WanekUrbandale, IA 50323May 19, 2014
Judy FannGarner, NC 27529May 19, 2014
JessicaSmithfield, NC 27577May 19, 2014
Shana SkeansEnnis, TX 75119May 19, 2014
Lisa TessauWest Des Moines, IA 50266
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May 19, 2014
Bethwinterset, IA 50273May 19, 2014
Valerie EarhartStoney Beach, MD 21226May 19, 2014
Michael HannumPetersburg, WV 26847May 19, 2014
Elisa JonesDes Moines, IA 50311May 19, 2014
chancy chambersDobson, NC 27017May 19, 2014
RochelleGalveston, TX 77555-0563May 19, 2014
Tracie Langin
Tracie LanginClive, IA 50325May 19, 2014
The Stanfel Boys!!!
Grace Brickclive, IA 50325May 19, 2014
Tiffany Dealclive, IA 50325May 19, 2014
Aleksandra PisarekParkside, NY 11375May 19, 2014
TinaYadkinville, NC 27055May 19, 2014
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jean bomarcollierville, TN 38017May 19, 2014
Selena ChristiansenClive, IA 50325May 19, 2014
Vail BrennanDurham, NC 27707May 19, 2014
DarlaKnoxville, TN 37923May 19, 2014
Lisa Robino-WolterLa Vusta, NE 68128May 19, 2014
Irene L ChabotManchester, NH 03103May 19, 2014
Sherry SheltonHamptonville, NC 27020May 19, 2014
Delbert GannHolland, MI 49423May 19, 2014
CaitlinArmeniaMay 19, 2014
Brent johnsonGirard, PA 16417May 19, 2014
Katherine CockerhamBerwyn Heights, MD 20740May 19, 2014
Sue TrudeauWestminster, CO 80020May 19, 2014
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Ashley HoffmanWashington, DC 20008May 19, 2014
Theresa PaternosterBourne end, United KingdomMay 19, 2014
Dan NielsenClive, IA 50325May 19, 2014
Katherine RoeslerGrayslake, IL 60030May 19, 2014
A HartDecatur, GA 30030May 19, 2014
Pam PitzClive, IA 50325May 19, 2014
Paula LindstromGrandview, MO 64030May 19, 2014
Mary NogaWheat Ridge, CO 80002May 19, 2014
Our 2-year-old son has PKU.
Amber MilioteFort Mill, SC 29707May 19, 2014
Katherine IrelandWest Des Moines, IA 50265May 19, 2014
Terry RosendahlWest Des Moines, IA 50266May 19, 2014
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This metabolic condition that individuals are born with is not a choice. It is a genetic condition. Survival andnormalcy are dependent upon this medical food. All those who have PKU without a doubt should be fullycovered. Fully reimbursed! In addition, more funding should be included towards the research & developmentof pill form rather than liquid formula. Reach out and make this your Critical Attention. This is a clear cutissue that should not have any discrepencies & requires immediate attention. The denial is very unreasonableand life threatening. Afterall - how does the PKU disorder survive without this vital nutrition? Listen up andChange the LAW !
Carolyn ShojaatWest Des Moines, IA 50265May 19, 2014
I am an adult living with PKU. I struggle with coverage for formula and food. When not able to get what isnecessary for me to function properly my levels go up high. Then it becomes a challenge to daily tasks thatmost others find easy. when my levels are not where they need to be I have concentration problems, tremors,spasms, and other things happen. This is a diet for life so it needs to covered. The cost is insurmountable.Without coverage, out of pocket expenses are too much. Please help us.
Wendy HarppingerQueensbury, NY 12804May 19, 2014
Emily ReynoldaGibson City, IL 60936May 19, 2014
Alan StutzmanPottstown, IL 61614May 19, 2014
This is an urgent cause
Yvette StancilDistrict Heights, MD 20747May 19, 2014
Jesse LucasTempe, AZ 85283May 19, 2014
MichaelJohnston, IA 50131May 19, 2014
geri matterneureka, SD 57437May 19, 2014
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QuintWaukee, IA 50263May 19, 2014
Kyle CoxUrbandale, IA 50323May 19, 2014
Michael BeemanEl Dorado Hills, CA 95762May 19, 2014
Jessica SawayaPorter, IN 46304May 19, 2014
Amanda LucasTempe, AZ 85283May 19, 2014
Mike StanfelClive, IA 50325May 19, 2014
Molly HaydenWestvale, NY 13219May 19, 2014
Amy PearsonWaukee, IA 50263May 19, 2014
Mary Jane AllgoodAnkeny, IA 50023May 19, 2014
Kelley MeyersOmaha, NE 68144May 19, 2014
Jill SiresWaukee, IA 50263May 19, 2014
raymond j roachmchenry, IL 60050May 19, 2014
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PKU is one of the conditions tested for through newborn screening. Doesn't make sense to me, to test for itbut not help with the cost of treatment.
Mary Ann MaddenTwn and Cntry, MO 63017May 19, 2014
Amanda TaylorHiram, GA 30141May 19, 2014
MollyWinter Garden, FL 34787May 19, 2014
Please!!!
Kathy Grissomround lake beach, IL 60073May 19, 2014
Marg falconOella, MD 21043May 19, 2014
Genetic medical conditions treatments whether food or pill to sustain a "normal" day to day life withoutfurther damage should be covered if ordered by a physician!
Kelly SzczepanskiRockledge, FL 32955May 19, 2014
This is for you Joshua and Jonathan!!! Love, The Texas Boges
Sarah BogeOlmos Park, TX 78212May 19, 2014
Christopher Martinakron, OH 44319May 19, 2014
All medical conditions should be treated without restrictions.
Mary KellyBaltimore, MD 21214May 19, 2014
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Beatriz RoweDarien, CT 06820May 19, 2014
Medical foods are not a shot or pill, not a traditional form of treatment, but are THE treatment for PKU. Withthe Federal Lunch Guidelines recognizing the importance of diet compliance in the schools, and mandatingthe schools to purchase and prepare the low protein foods, it's unbelievable that mandation for the other mealsof the day has been overlooked. Without the proper diet these children and adults suffer unnecessary healthissues only leading to bigger costs than the medical food and formula. A family struggling with bills shouldn'thave to choose whether to pay the bills or to provide the needed treatment for their child.
Sandy LaPradMidland, MI 48640May 19, 2014
Doris PatrickMonteagle, TN 37356May 19, 2014
Sherry MarkwellMonteagle, TN 37356May 19, 2014
Michele MorrisPasadena, MD 21122May 19, 2014
LindsayGainesville, FL 32608May 19, 2014
Natalie Blakehickman, CA 95323May 19, 2014
Danielle WeisUrbandale, IA 50322May 19, 2014
Michelle PaulVancouver, WA 98682May 19, 2014
Blythe StanfelClive, IA 50325May 19, 2014
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Without my PKU formula, I would not be an employed, civically engaged, tax-paying citizen I am today.However my formula costs approximately $60 per can, and I use about one can of formula per day. Medicalinsurance covers only a fraction of this cost and sometimes denies coverage altogether. Affording treatment toallow me to be a normally functioning adult should not be cost prohibitive for patients who depend upon thislife-saving care!
Virginia HarrisonPhiladelphia, PA 19123May 19, 2014
Mary Ellen LovejoyUppr Chichstr, PA 19014May 19, 2014
Dana GittingsDayton, MD 21036May 19, 2014
Sonia RichardsonFrederick, MD 21701May 19, 2014
Sarah SullivanMemphis, TN 38103May 19, 2014
STEVEOella, MD 21043May 19, 2014
My 6 year old son has Classic PKU! March of Dimes provides are formula and we receive assistance forlow-protein foods as long as we stay under a specific income bracket. If we lose any of this help it willdevastate my family! We can not afford to pay $60 for a can of medicated formula (we go through a can every3 days). We also can not afford the low-protein food. A box of mac 'n' cheese (the size of a Kraft box) is $12without the shipping! We need your help!
Dayna RoeschGibson City, IL 60936May 19, 2014
Debbie BoulierChina, MI 48054May 19, 2014
I have PKU and am pregnant with my second baby, my other daughter has autism, it so important to keep mybloods controlled would them to get a cure for PKU, life can get soo hard
Lynsey mckellar
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Sunderland, United KingdomMay 19, 2014
Susan Croninhammondsville, OH 43930May 19, 2014
kenny m carvalhofall river, MA 02723May 19, 2014
Diane LeedsIndianapolis, IN 46235May 19, 2014
Christina DunbarErie, PA 16506May 19, 2014
Ben CrimminsGlen Burnie, MD 21061May 19, 2014
Shahia RiversCanadaMay 19, 2014
KathrineIndianapolis, IN 46239May 19, 2014
Erica BonnettGirard, PA 16417May 19, 2014
Lissa piersonSouthgate, MI 48195May 19, 2014
These people need help. The costs are burdening families. Make this happen, please.
Barry JordenMuncie, IN 46278May 19, 2014
kathryn roweImmokalee, FL 34143May 19, 2014
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Charles WoodNora, IN 46260May 19, 2014
ernieWest Bridgewater, MA 02379May 19, 2014
Tiffany DagleyExcelsior Springs, MO 64024May 19, 2014
Please make it easier for people with pku to get the help they need. Thank you
billie kay peelerMingo jct, OH 43938May 19, 2014
Nicholas Henneberrygirard, PA 16417May 19, 2014
cindy rovnyerie, PA 16506May 19, 2014
elviraraynham, MA 02767May 19, 2014
For my little sister
Michelle MillerHope, CanadaMay 19, 2014
please help with their PKU treatments
sally HutchesonHOLLAND, MI 49423May 19, 2014
Patricia KimmellLexington, KY 40509May 19, 2014
crystal dimicelilebanon, IN 46052
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May 19, 2014
Dawn MoningerNewport News, VA 23602May 19, 2014
StephanieWestport, WI 53597May 19, 2014
It would be a blessing to be able to get medical foods, any kind of formula I needed, or drug therapies at anaffordable rate or covered completely! Right now I can't afford any of them and if Michigan stops providingfree formula then I don't know what I'm going to do! It's expensive to even buy the lower protein health foodoptions from the store!
KyleeHolland, MI 49424May 19, 2014
Anne NeuenschwanderPasadena, MD 21122May 19, 2014
Please ad pku!!!
stephaniebonnievillr, KY 42713May 19, 2014
Ami VanderhoofMontgomery, IL 60538May 19, 2014
Carrie barnesSouthport, IN 46227May 19, 2014
Moya ChappellGibsonton, FL 33534May 19, 2014
I have a pku son , all every parent wants is to give their child a "normal" type of life. Unfortunately the cost ofthese products for many is to expensive to have a on regular basis like the "norm".
Elizabeth Jenkinsmanor, PA 15665May 19, 2014
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Medical food For PKU is bank breaking especially when we want out child to have as much of a normal lifeas possible. because it takes so much money to feed him it takes away from him and the family in other areas.It makes it very hard to provide for the family on other ways when just 2 half full boxes of mac'n cheese andwheat starch for bread comes to 73 dollars inducing the shipping. Please help us!
Amanda HenneberryGirard, PA 16417May 19, 2014
Kathy ShahEllicott City, MD 21043May 19, 2014
LeeAnne RamosHomestead, FL 33033May 19, 2014
RachelIndpls, IN 46203May 19, 2014
Please help these children. They need this!
Karen McMillinGreenwood, IN 46142May 19, 2014
Charlotte DeWeesGreenwood, IN 46143May 19, 2014
Elizebeth Baker-SchimnowskyLangley, CanadaMay 19, 2014
Kelly BurdsallWalworth, NY 14568May 19, 2014
Stephanie KindredGreenwood, IN 46143May 19, 2014
ChristanIndianapolis, IN 46237May 19, 2014
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Anna CainGlen Burnie, MD 21060May 19, 2014
Thank you for your time.
Mandy StottsIndianapolis, IN 46278May 19, 2014
Charity CaseWaukesha, WI 53186May 19, 2014
My 5 year old daughter has PKU and we have consistently had to battle for insurance coverage. It is anightmare. Please help!!
Emily MasonNew Whiteland, IN 46184May 19, 2014
Dianna LanhamShady Side, MD 20764May 19, 2014
Barbara YoungNorth Billerica, MA 01862May 19, 2014
Melissa BadalyanWarren, OH 44484May 19, 2014
Lori KielyGeorgetown, TX 78628May 19, 2014
Stacey FryeMartinsville, IN 46151May 19, 2014
David EricksonGwinn, MI 49841May 19, 2014
Lauren WittlerGwinn, MI 49841May 19, 2014
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Yes, my name and address are the same.
Sandra MarkelCottrellville, MI 48039May 19, 2014
Karen StickleGreenwood, IN 46142May 19, 2014
Martha StanojevichMaryville, TN 37801May 19, 2014
CatherineAustraliaMay 19, 2014
ChelseaBargo, AustraliaMay 19, 2014
Wendi EmmersonCranbourne east, AustraliaMay 19, 2014
SarahDerry, United KingdomMay 19, 2014
Jackie MillerHope, CanadaMay 19, 2014
LisaPhelan, CA 92329May 18, 2014
A cute needs to be found for PKU. Although newborn screening is commanded by law, it isn't a law to treatPKU. And with no cure out there at the moment a lot of parents are deciding to let their children's mentalhealth suffer because of it. I believe if there was a cure for PKU more parents would get treatment for theiryoung ones, the future of our nation.
Lauracoos bay, OR 97420May 18, 2014
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Hi I am 42 years old I have PKU. Without the diet and the medication I'm on for my PKU I wouldn't be ableto live as normal as I am now as I got older more symptoms got worse. Hand tremors, sever mood swingsdepression, falling asleep straight away after high protein foods amongst other side affects. Now I've been onmy PKU diet for 10 years and I will never go back. It's the best decision I have ever made. I really believe thatevery child and adult deserve to have the right medication and food to help them feel as normal as possible.It's made such a difference to my life having a PKU diet along with the support of the hospital, dietations, andthe government backing. I'm very lucky in Australia and I hope that others are able to have the same benifitswe do here in Australia.
Nicole mooreMelbourne, AustraliaMay 18, 2014
TamaraCanadaMay 18, 2014
Please put funding in finding a cure for PKU
Renee MelouryWangaratta, AustraliaMay 18, 2014
Micheal YoungDallas, GA 30157May 18, 2014
Marshall WillisHope, CanadaMay 18, 2014
Samantha SnowdenChilliwack, CanadaMay 18, 2014
Selina InnesSeattle, WA 98107May 18, 2014
Justine InglisMyrtleford, AustraliaMay 18, 2014
April willisHope, CanadaMay 18, 2014
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Jessica MillerBeech Grove, IN 46107May 18, 2014
I have a 9 year old daughter with PKU. In order to keep her healthy these foods are a necessity.
Erin DoetschMarine City, MI 48039May 18, 2014
For my daughter and cousin, both with PKU.
Harold ArdmanTinley Park, IL 60477May 18, 2014
I have PKU and it's very difficult to receive any kind of help with formula and low protein foods as it isn'tcovered in my state and it is necessary to have them both as PKU is diet for life and if off diet for a personwith PKU there are many side affects to it.
Jennfer PraagWest Valley City, UT 84120May 18, 2014
Jennifer PayneElkridge, MD 21075May 18, 2014
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