C.S. Mott’s C.S. Mott’s Patient & Family Centered Care Patient & Family Centered Care

ProgramProgram

““Changing a Culture Changing a Culture One Story at a Time”One Story at a Time”

….stories lead to wisdom.”

“Facts bring us to knowledge but….

~Rachel Naomi Remen, Author Kitchen Table Wisdom

What is PFCC?What is PFCC?

Dignity and RespectDignity and Respect Information SharingInformation Sharing ParticipationParticipation CollaborationCollaboration

Source: IFCCSource: IFCC

““Being a sick kid sucks. Having a Being a sick kid sucks. Having a sick child is about the most sick child is about the most

frightening thing that can happen. frightening thing that can happen. Never lose your compassion or Never lose your compassion or

empathy. It may be routine to you, empathy. It may be routine to you, but not to the patient.”but not to the patient.”

~ Alicia, Mom of Ben~ Alicia, Mom of Ben

2007 2008 2009 Surveys/Materials Review 9 41 32 In-services/meetings 32 51 40Focus Groups 6 4 2Unit committees added 4 6 1Hospital committees adding families - 10 9Lean committees adding families - - 7External conference presentations - 2 4

PFCC Program Participation and Growth

Volunteer Family Advisors: >170 on-line membersVolunteer Family Advisors: >170 on-line members 50 on-site members50 on-site members

Staff Participants: >100Staff Participants: >100

Patient & Family Advisory CouncilPatient & Family Advisory CouncilInaugural Meeting - January, 2008Inaugural Meeting - January, 2008Over 4000 hours of effort in Term 1: 2008-2009!

MissionMissionEmpowermentEmpowermentEngagementEngagementFlexibilityFlexibilityFulfillmentFulfillmentInclusivenessInclusivenessInformedInformedPartnershipPartnershipVoiceVoice

Phases of PFCC Program Roll-outPhases of PFCC Program Roll-out

Raise AwarenessRaise Awareness Educate Staff and FamiliesEducate Staff and Families Hold Staff AccountableHold Staff Accountable

Continuous improvement of care and Continuous improvement of care and processes.processes.

Phase 1: AwarenessPhase 1: Awareness