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CPEN…The Authoritative Resource for Patient Educators
1
Conference Call for All CPEN Members
July 29, 2008
1:00-2:00 CT Phone number: 800-988-9504
Participant Access Code: FSOLOMON
CPEN…The Authoritative Resource for Patient Educators
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Agenda Call to Order & CPEN Year in Progress – Kelli Fee-Schroeder, CPEN Chair CPEN Elections – Tanya Smith, CPEN Past-Chair CPEN Business and Financial Update – Allison Travis, CPEN Program Director 2008 Annual AACE/CPEN Conference Update – Miriam Bell, 2008 Conference
Planning Chair NCI Cancer Education Branch Update – Rose Mary Padberg, NCI liaison CPEN-Canada Update – Gale Turnbull, CPEN Canada Chapter Chair Committee Updates:
Survivorship (Scott Secord & Lee Boerner) Translation (Susan Scritchfield) Research (Karen Stepan) Professional Development (Nita Pyle) Awards (Lorianne Classen & Jane Frank) CAM (Holly Hough) Learning Resource Centers (Amy Gonzales) Marketing/New Member (Donna Branson)
Questions from CPEN Members
CPEN…The Authoritative Resource for Patient Educators
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CPEN Board of Directors
Kelli Fee-Schroeder Chair
Tanya Smith Past Chair
Annette Mercurio Chair-elect
Donna Branson Treasurer
Janine Kokal Secretary
Lisa Horton Deb Steele Lydia Cheney Kerry Harwood Rose Mary Padberg
NCI liaison
Allison Travis Business Manager
CPEN…The Authoritative Resource for Patient Educators
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Board of Director Activities
Monthly Conference Calls Discuss ongoing projects, collaborations with other organizations, new
initiatives, official business operations Updates from Committee Chairs and CPEN Canada Chapter
2 Face-to-Face Board Meetings Annual Meeting CPEN Board Retreat May 22-23, 2008, Mayo Clinic Cancer Center,
Rochester, MN Work Groups for Specific Projects & Initiatives
Supporting CPEN’s Strategic Plan: 2006-2010 Communication b/w Board and Membership Formalized merger of CPEN & CPEN-Canada Chapter Annual Conference Planning and Conference Grant Website re-design Financial growth of CPEN/Revenue Workgroup
CPEN…The Authoritative Resource for Patient Educators
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CPEN’s Strategic Plan
Strategic Plan available at: http://www.cancerpatienteducation.org/about.cfm
Board Work Committee Work Work by CPEN
Members
CPEN…The Authoritative Resource for Patient Educators
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Communication b/w Board and Membership
Monthly Email updates via [email protected]
CPEN NewsletterCPEN: Cancer Patient Education Network
CPEN Website
CPEN…The Authoritative Resource for Patient EducatorsCPEN…The Authoritative Resource for Patient Educators 7
CPEN Board of Directors- Chair - Treasurer- Chair Elect - Secretary- Past Chair - 4 At-Large Members- NCI representative
Board of Directors elected by entire membership
CPEN Chapter (International, Regional, State, Local, etc.)
-Officers elected by Chapter members-Chapter President liaisons with CPEN Board of Directors
Learning Resource Center Committee
Chair Liaison with Board of Directors
Research Committee
Chair Liaison with Board of Directors
Professional Development Committee
Chair Liaison with Board of Directors
Other CommitteesChair Liaison with Board of
Directors
SIGChair Liaison with Board of
Directors
CommitteesSIG Task Forces
WorkGroup
Task Force
WorkGroup
Task Force
WorkGroup
Task Force
WorkGroup
Task Force
WorkGroup
Task Force
AACEJoint conference 2008-2010
Reduced JCO subscription to CPEN members
CPEN (Members from US, Canada,
and Internationally)
CPEN…The Authoritative Resource for Patient Educators
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2008 Annual AACE/CPEN ConferenceMiriam Bell, 2008 Conference Planning Chair
October 20-22, 2008Clearwater Beach, Florida
CPEN Planning team:Lydia CheneyKelli Fee-SchroederAudrey FriedmanMarilee KuhrikNancy KuhrikAlissa LewandowskiAnnette MercurioRose Mary PadbergLouise Villejo
AACE Leadership:Paula Brown – Executive SecretaryFrank Ferris – Conference Co-chairPatricia Mullan – Conference Co-chair
Visit the Conference web site: http://www.cancerpatienteducation.org/meeting.cfm
CPEN…The Authoritative Resource for Patient Educators
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Special Activities of the Board
CPEN website management/redesign
Financial growth of CPENGoal: $10,000 Achieved: $13,000+
-Financial Contributors-Donation button on website-CPEN Merchandise at Annual Conference
Conference $1000 Grant opportunity
CPEN…The Authoritative Resource for Patient Educators
CPEN Elections Tanya Smith, CPEN Board Past-Chair
2008 Offices to fill: Chair-Elect (3-year term) Treasurer (2-year term) 2 At-Large Members (2-year term)
The new officers will take effect at the Annual Business Meeting in October.
Call for Nominations Bylaws revision to be voted on by membership
10
CPEN…The Authoritative Resource for Patient Educators
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CPEN Business & Financial Update Allison Travis, Program Director
• CPEN Membership – 258 members (as of 30 June 08)• CPEN Financials (as of 30 June 08)
– Assets - $38,422 USD– Liabilities - $4,145 USD
• 2008 – 2009 Membership Dues– $85 USD – one year– $160 USD – reduced rate for two years– Payment options
• Pay online or via fax with credit card• Pay via mail with check
– Dues renewals distributed via email• Payment due by July 30th
CPEN…The Authoritative Resource for Patient Educators
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CPEN Business & Financial Update Allison Travis, Program Director
• Journal of Cancer Education
– Subscription available to CPEN members for $65/year through AACE
– Subscription options
• Subscribe on dues invoice
• Subscribe via website
• Membership Renewal/Journal Subscription Information
http://www.cancerpatienteducation.org/membersHome.cfm
CPEN…The Authoritative Resource for Patient Educators
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CPEN Business & Financial Update Allison Travis, Program Director
• Corporate Support – Corporate Support invitations sent to 27 Cancer Centers in
June 2008
– Corporate Support contributions received to date: $11,000 USD The Ohio State University Comprehensive Cancer Center – James Cancer
Hospital and Solove Research Institute - $5,000 Mayo Clinic Cancer Center - $5,000 Moncrief Cancer Center, UT Southwestern - $1,000
• Special DonationsCPEN is a 501(c)(3) tax-exempt organization; gifts are tax deductible to the fullest extent allowed by law. CPEN uses contributions to sustain its daily operations and develop professional educational programs in cancer patient education.
http://www.cancerpatienteducation.org
Chemotherapy Fact Sheets
• Helps patients understand and manage side effects
• 4th – 6th grade reading level• Available in English and
Spanish• Complements the in-depth
CAY• Helpful for all new radiation
therapy patients
New versions! Pain Control: Support for People with Cancer
•DVD in back pocket of English version reinforces key text
•Leading pain experts advised on content
• A new Spanish version of Control del dolor, a complete revision based on the English version
•Culturally adapted for Spanish speaking audiences
• Shortened, easy-to-read version from original
• Easily adaptable for non-cancer populations
• Advisors: Association of Clinicians for the Underserved
Coming soon! Spanish version of Caring for the Caregiver: Support for Cancer Caregivers
On the horizon…
• Eating Hints being revised to follow similar format to RT and You, and Chemo and You (by side effect)
• Understanding Cancer Pain: a shorter, easy-to-read version of Pain Control
• Revised online course: “Incorporating Clinical Trials into Your Practice”
• Facing Forward: Ways You Can Make a Difference in Cancer to be revised
CPEN…The Authoritative Resource for Patient Educators
CPEN-Canada Chapter Gale Turnbull, Chair
January 1, 2008 CPEN-Canada became the first Chapter of CPEN!
Along with many members, CPEN-Canada added a new Survivorship sub-committee to CPEN.
CPEN…The Authoritative Resource for Patient Educators
Established a more formal collaboration with the Canadian Cancer Society. CPEN-Canada received a donation from them to support our work.
CPEN…The Authoritative Resource for Patient Educators
Goals for 2008-09 Refresh CPEN-Canada Website Create stronger alignment and involvement in
key national strategies and organizations (e.g., Canadian Partnership Against Cancer and Canadian Association of Psychosocial Oncology) to further the patient education agenda.
CPEN…The Authoritative Resource for Patient Educators
CPEN-Canada Conference
Connecting, Collaborating and Communicating: Education at the Heart of Cancer Care
June 4-6, 2009
Edmonton, Alberta
CPEN…The Authoritative Resource for Patient Educators
CPEN…The Authoritative Resource for Patient Educators
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Committee & Work Group Updates
Survivorship (Scott Secord & Lee Boerner)
Translation (Susan Scritchfield)
Research (Karen Stepan)
Professional Development (Nita Pyle)
Awards (Lorianne Classen & Jane Frank)
CAM (Holly Hough)
Learning Resource Centers (Amy Gonzales)
Marketing/New Member (Donna Branson)
For information about committees: http://www.cancerpatienteducation.org/committee.cfm
CPEN…The Authoritative Resource for Patient Educators
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Questions?
For questions about a specific committee’s work and/or joining a committee, please contact that committee’s Chair, who is listed on the committee’s page of the CPEN website: http://www.cancerpatienteducation.org/committee.cfm
For questions about renewing your membership or logging into the CPEN website, contact Allison Travis, CPEN’s Program Director: [email protected]
Additional information about the 2008 CPEN Conference may be found on the CPEN website: http://www.cancerpatienteducation.org/meeting.cfm
Can always contact Kelli at: [email protected]
CPEN…The Authoritative Resource for Patient Educators
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CPEN is member-driven. Thank you for making this organization thrive!