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  • 7/28/2019 CPABC Roundtable Summer 2009

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    summer 200Cerebra l Pa lsy Assoc iat ion of Br i t i sh Columbia

    the

    inside this

    issueCPABC news

    Adults

    Leisure

    General Interest

    WordsfromthePresidenthope everyone has had a great summer.

    We denitely have had some very nice

    weather, too hot at mes. Well, this will be

    summer that I will not soon forget. As

    many of you know, I live on the second

    oor and I was trapped in my apartment

    or two weeks due to the elevator in my

    building being out of service. If that was

    not bad enough, this all happened during

    he heat wave late July and early August.

    Aer numerous delays from Os Elevator

    nd lack of communicaon from the

    Co-op, I decided to take my story to the

    media. That sure got people scrambling to

    epairing the elevator. I contacted the

    media on Tuesday August 11/2009 and the

    elevator was xed the very next day. The

    Vancouver Sun Newspaper printed the

    rcle on Thursday August 13/2009. You

    an google my name and the arcle shouldbe near the top of the page. The arcle was

    lso picked up by other newspapers across

    Canada. It was unfortunate that it took

    going to the media to have the elevator

    epaired. Fortunately, I was safe and being

    well taken care of with the help of friends

    nd my daily home support workers. I was

    hugely inconvenienced by not being able

    o come and go from my home. My situa-

    on is not unique as I have heard stories

    from others who have been without eleva-

    tors from two to four weeks. This I

    consider a bit disturbing. There was also a

    situaon about one or two years ago about

    a housing co-op, in Vancouvers False

    Creek, where the elevator needed to be

    replaced. The Co-op did not have the

    necessary funds and CMHC refused to help

    out. That building was without an elevator

    for almost a year. I cannot even imagine

    how those trapped folks managed for such

    a long period of me. Clearly, there needsto be improvements made to the standard

    of repairs and customer service from the

    elevator industry to reduce the wait me

    of repairs to residenal buildings. This was

    a bit of a reality check for me as we sll

    encounter situaons where people with

    disabilies, like myself, are struggling and

    baling barriers to be able to come and go

    as they please from their homes. We sll

    have work to do!

    Another cause of concern is the recently

    announced nancial challenges of the BC

    Government and the impact this will have

    on CPABC. There was a scare with the

    freezing of BC Gaming funds. These funds

    have now been unfrozen and most non-

    prot organizaons, like CPABC, are sing

    on pins and needles as to the future use

    and distribuon of said funds over the next

    few years. I have to say that I am worried

    that CPABC will receive a signicant redu

    on (if any) from the province. At th

    moment, CPABC is doing ne nancia

    and should be okay for the next year - a

    that, we just do not know there is sll to

    much uncertainty and many unanswere

    quesons. We will explore any, and

    other, applicable funding sources - th

    includes our members and exisng dono

    With this in mind, I ask that you connu

    increase, or start to include, CPABC in yo

    charitable donaons. Consider a commment to making regular monthly contrib

    ons. Every dollar every cent will he

    CPABC connue to reach our goals and

    there for you. What can you contribute?

    CPABC connues to be involved in t

    community with representaon of Boa

    members to the Provincial Equipment

    Assisve Device Commiee and the Eme

    gency Planning and Preparedness Ini

    ve.

    I connue to proudly serve you and th

    organizaon to the best of my ability. I ve

    much appreciate the diligence and suppo

    of the Board of Directors. I also want

    acknowledge the dedicaon of our sta

    and to our volunteers that help us we

    aer week, THANK-YOU!!

    Your President,

    Craig Langston

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    CPABC news

    2

    My Dance Story

    When I was six months old I was

    diagnosed with cerebral palsy. Despite

    very limited use of my right arm and leg,

    my parents and I were determined that I

    live a normal childhood where I would be

    involved in sports and other team acvi-es. When I was three years old I wanted

    to dance. The Highland dance club was the

    only dance class available in town. It was a

    perfect t. I was doing what I wanted -

    geng exercise, meeng people and

    learning skills I would carry with me for the

    rest of my life.

    Ive been very fortunate to the

    degree at which cerebral palsy has

    aected me, only hampering the use of my

    right limbs. It has always been a part of mylife; so from a very young age Ive adapted

    to only using one arm and compensang

    for my weak leg. Highland dance strength-

    ened my leg and forced me to work with

    my arm. Without this exercise and muscle

    building, there would have been a much

    more noceable dierence between the

    two sides of my body.

    Dance connues to be a very important

    part of my life. I love the ability to express

    emoons and stories in a whole new way,

    creang art and bringing beauty to the

    world. I love the feeling of moving to the

    beat of a song and painng a picture with

    my body. Its always been my favorite way

    to express myself, a chance for me to

    escape and just let my body speak for

    itself.

    When I was in the fourth grade, my

    friends and I decided to choreograph a

    contemporary dance for our schools

    spring talent show. Aer many lunch hours

    and a lot of work we came up with some-

    thing we could show to the school. We

    were all so happy it worked out that it

    became a kind of tradion, unl eleventh

    grade when the common pressures of high

    school caused most of the girls to decidethey were too cool for a dance we made

    up ourselves. This didnt stop me and

    despite the cauon of a couple of caring

    people not to dance, I couldnt stop

    myself. Dance is in me and the chance for

    me to come up with something that

    expresses who I am is something I will

    never pass up. Some people made fun of

    me for doing a self choreographed dance

    alone, on stage, in front of a small town

    audience; however, I never looked back. Inthe end it was worth it, the people that

    maered supported me. I was proud of

    myself for scking to my beliefs.

    Dance as if no one is watching is a

    phrase that became my mantra over the

    een years that I spent Highland dancing.

    Due to the limited use I have of my right

    arm and leg, when I dance I never look like

    the other girls that have complete control

    of their bodies. I feel like I dance the same,

    but I can't jump as high, point my toes asdenively, move as gracefully, or place

    my arm and ngers in the exact posions.

    For this reason some people thought I

    shouldnt dance. I never placed in any of

    the few compeons I went to, and didnt

    pass any dance exams aer the rst level. I

    never let this stop me because of the joy I

    felt when I moved on the oor. I was sll

    able to dance with the other girls in my

    class and reached the second highest

    in my dance theory exams. To my te

    Janet, I was just Julia. She never let th

    that I was dierent from others sto

    from doing what I wanted.

    I think I can do anything. I pl

    complete my Civil Engineering de

    aain a Structural Engineer design

    then become an architect. I wouldnt

    this condence in my ability withou

    great support I have had from peop

    my dance teacher and others. The p

    that have lled my life have a

    supported me in dancing and dealing

    my disability. My parents never treate

    dierently than my sister. They

    understanding when I didnt alway

    comfortable doing something.

    encouraged me, paid for dance le

    and took me to events. My sistehelped me, understood challenges I

    and kept me humble. My best f

    named my right hand Henry as it

    much seems to have a mind of its own

    most inuenal person in my dedica

    highland dancing was my dance tea

    She was always supporve and u

    standing of my abilies, without pam

    ing me, or leng me take the easy

    out. She pushed me to do what she k

    could and for that I am grateful.Highland dance has taught me

    things - how strong my body really i

    responsibilies of a commitment a

    never stop trying to make myself b

    Ive learned about a dance form tha

    part of my heritage. It connects m

    something bigger than myself. The l

    Ive learned, that Ill never forget, i

    with a lile determinaon and

    humor you can do anything you set

    mind to; no one can stop you from what you want, especially if its some

    you love, as I do dance.

    Cerebral Palsy Associaon of BC aw

    Julia Halipchuk a bursary in 2008. Sh

    one of our seven bursary recipien

    summer 2008 and is currently stu

    architecture at UBC.

    By Julia Halipchuck

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    If you have cp, or

    any disability, just

    try; you never knowwhat you can do

    unl you try. Just do

    it!

    These are the words

    of Trish McKay, a

    Cerebral Palsy Asso-

    ciaon of BC Board

    Member. Trish was born and raised in

    Prince Rupert, BC. A dicult birth le

    her with brain damage leading to a

    diagnosis of cerebral palsy. Doctorsnially gave her only 24 hours to live,

    then 48, and nally a month. And here I

    am, smiles the now 36-year-old.

    Growing up with a physical disability in

    Prince Rupert was frustrang for Trish.

    She recalls being the rst child of inclu-

    sion at her elementary school the only

    kid with a physical disability to be

    ntegrated into a regular classroom. Trish

    states, it took a long me for real

    ntegraon to happen thats where she

    rst learned to interact with peers.

    And high school was where she met two

    people who recognized her never-give-up

    atude. Both oered the encourage-

    ment she needed to push beyond the

    obvious limitaons that others were

    somemes too quick to point out.

    I faced a lot of negave comments, a lot

    of who do you think you are you cant

    do it kind of stu, mainly from counsel-

    ors and teachers, Trish recalls, But a

    grade eleven math teacher and a peer

    counsellor both believed in me It was

    the peer counsellor who turned those

    comments and atudes inside out with

    words of encouragement. You know

    beer than to listen to them! Prove them

    wrong, she was told. Do it behind their

    backs show them what you can do.

    Those words of encouragement led to

    Trishs involvement in long-distance

    running, a sport at which she excelled.

    She ran her rst race at twenty-three,

    when she decided out of the blue that

    shed like to give it a try.

    It was a uke, she states. It was aer

    an all-night bash, the day of the race. It

    was a ve k. run, and I nished it in an

    hour and ten minutes. That was my best

    me ever; my rst race, and I havent

    been able to top it!

    Trish went on to enjoy great success in

    the BC Disability Games in 1997 and 1998,

    running the 400, 800, and 1500 meter.

    Running brought its own lessons. Trish

    considers running a great way to get rid

    of negave energy. Use that negave

    energy to run, and you feel so good aer

    I just kept at it.

    The same persevering atude and the

    remembered words of her high school

    peer counsellor, led to Trishs long history

    of volunteering, and inuences both her

    long and short-term goals.

    She counts giving back among her goals.

    Trish intends to be a contribung

    member of society, and, in her own

    words, Pay my own way. People have

    been good to me; I want to pass it on.

    Recreaon is important. Trish goes out

    dancing every second weekend, and she

    also paints.

    Trish laughs when asked about favourite

    quotes. She remembers a slogan stuck up

    in a far corner of her grade eleven math

    classroom. What are you looking up

    here for? it queried.

    When asked what words of encourage-

    ment shed like to oer to others, Trish

    reiterates, If you have cp, or any disabil-

    ity, just do it, just try, you never know

    unl you try.

    Oh, and What are you looking up here

    for?

    Understanding Needs and Making Inclu-

    sion Work. Ever wondered how to treat a

    child with a terminal illness or how to

    communicate with a person with ahearing impairment? How would you

    explain Prader-Willi Syndrome to your

    class? What educaonal techniques

    would you use to aid that student? These

    are a few of the challenges addressed in

    our revised edion of Pung the Puzzle

    Together where thirty-three dierent

    condions are discussed and, in many

    cases, input from parents given.

    This invaluable teaching aid oers infor-

    maon on communicaon devices, class-room equee, ps, support groups and

    organizaons. This is an excellen

    resource for parents, educators and

    rehabilitators. Purchase your copy fo

    $30 by calling the Cerebral Palsy Associa-

    on of BC at 604-408-9484, toll free

    1-800-663-0004 or

    emailing [email protected].

    Just try!Words to Live By

    Published by the Cerebral Palsy

    Associaon of BC

    Putting

    the Puzzle TogetherUnderstanding Needs andMaking Inclusion Work

    By Trish McKay

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    Adults

    4

    Bear Essentials FundVancouver Island & Gulf Islands

    Caregivers comeand take a breakwith us!

    The Queen Alexandra Foundaon for

    Children Bear Essenals Fund assists

    children and youth with special needs from

    birth to 19 and their families who are expe-riencing nancial hardship and/or short-

    term crisis. Examples of eligible expendi-

    tures: emergency food, clothing, toiletries,

    short-term shelter costs, personal items,

    medical or therapeuc equipment, adven-

    ture therapy oungs, etc. Funds available

    to only Vancouver Island and Gulf Island

    residents. For more informaon and an

    applicaon phone 250-338-4288 or visit

    www.cvcda.ca and click on News.

    This is an informal get-together for family

    caregivers to meet with each other and chat.

    Take a break in your busy day and join others

    who are also caring for family and friends.

    We meet on the 4th Tuesday of each month

    starng Sept. 22 from 2 3 pm in the meet-

    ing room at Shoal Centre - 10030 Resthaven

    Drive. No charge and no registraon

    required. For more informaon call

    250-384-0408.

    The Disability Foundaon has launched a

    website, within the Metro VancouverRegion, that promotes the skills of

    self-employed people with disabilies.

    The Abilies Business Cooperave is free

    to join. If you have a product or service

    that you are currently involved with, or

    would like to start your own home-

    based, contract-based or other small

    business, contact Stephen Street at

    604-688-6464, or go to www.abcoop.org.

    5) Dont be afraid to ask ques

    Somemes doctors have handouts

    you can bring home and read. If not,

    your doctor suggest some good we

    that you can use as resources.

    6) At the end of the appointment,

    sure you are clear on what instruyour doctor has given you, whether

    dosage modicaons, tests that ne

    be done, or when to book your follo

    visit.

    You and your doctors make up a

    dedicated to help you be healthy a

    be. Hopefully these ps will help bot

    and your doctors maximize your hea

    *General medical quesons can

    emailed to [email protected]

    subject line: newsleer or mail to C801 - 409 Granville Street, Vancouve

    V6C 1T2

    Ask the Med Student

    How to be a Star Paent

    Feel like you are always forgeng what

    you wanted to ask your doctor when you

    nally get to see them? Here are some pson how to make the most out of your

    doctor appointments!

    1) Make a list of your quesons to bring

    with you so that you wont forget the

    things you wanted to talk about

    2) Think through your concerns ahead

    of me so that you can provide as much

    detail as possible. This will help your

    doctor make the correct diagnosis and

    begin the appropriate treatment to

    address your symptoms.a. Time frame: Try and remember

    when exactly your symptoms started. Was

    there a precipitang event? Was it a

    sudden or gradual onset?

    b. Descripon: How would you

    describe your symptoms? Is it a sharp or

    dull pain? How intense is it? Is it always

    there or does it come and go? What makes

    it beer or worse?

    c. Locaon: Where exactly are your

    symptoms located? Can you point to itwith one nger or is it diused? Does the

    pain spread anywhere else on your body?

    Is it associated with any other symptoms?

    d. Your feelings: What are you most

    worried about? How are your symptoms

    aecng your life? Are you sll able to do

    the things you enjoy?

    3) Know your current medicaons and

    doses. Dont forget to include over the

    counter medicaons and herbal supple-

    ments. Also, in case your doctor mightwant to explore other opons, know which

    treatments you have previously tried for

    your symptoms and whether or not they

    have helped.

    4) It is not uncommon for you to see

    mulple doctors and specialists. Have a list

    of their names, speciales, and addresses

    so that your doctor can copy all your

    leers and reports to them so that every

    one is kept in the loop!

    By Catherine Ho

    Medical QuestionsAsk the Med StudHi my name is Catherine. I am curre

    my 4th year of Medical School a

    hoping to pursue a career in the sp

    of Rehabilitaon Medicine. I ha

    parcular interest in Cerebral Pal

    love to get to know you all and I am hthat I can be of service to you! We're

    ing an "Ask the Med Student" colu

    the newsleer; so if you have any m

    quesons, please don't hesitate to

    me a line! Quesons can be emai

    [email protected] subject

    newsleer or mail your queso

    CPABC 801-409 Granville Street, Va

    ver, BC V6C 1T2

    Sidney

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    wo New Locaons . Richmond & Surrey Studies have shown that deep pressure

    touch releases serotonin in the brain

    which in turn creates a feeling of calm

    within us. This deep pressure touch can

    be achieved by the use of The Magic

    Blanket.

    The general rule of thumb is that a

    weighted blanket be ten percent of a

    persons body weight plus one pound.Blankets can be made in any size or

    weight to meet your needs. They are

    machine washable and available in six

    fabric choices from chenille to annel.

    These blankets have been found to be

    benecial to those with sensory integra-

    on disorder, restless leg syndrome and

    other condions.

    For more informaon, or to receive a

    quote, phone toll free 877-711-2020, or

    email Keith [email protected].

    For: anyone who provides unpaid care

    and support to someone living with

    disability or who is chronically ill,

    elderly or palliave

    When: October 21, 2009 9 am to 4 pm

    (MST)

    Where: Heritage Inn, Cranbrook, BC

    Cost: $20 includes lunch

    Morning Workshop Coping with Transons explores loss and grief issues in care

    giving. A focus on usable strategies w

    result in beer mechanisms to hel

    caregivers cope.

    Aernoon Workshop The Lighter Side o

    Caregiving will explore humour and how t

    incorporate it into ones life as a commun

    caon tool and stress release. Look a

    various styles and expressions vi

    cartoons, stories, comedies and discove

    how one can be more playful within ouroles as caregivers. Fun is the key ingred

    ent.

    Register by mailing in your payment alon

    with your name, phone number an

    address to Cranbrook Mental Health, 20

    23 Ave. S. Cranbrook, BC V1C 5V1. Fo

    more informaon call 250-420-2210 o

    1-888-426-7566.

    to raise to reach to reali

    Independent LifestyleStore OpensIn need of a scooter, wheelchair, walke

    cane, commode, hip kit, arthric cutlery

    wring aid, medical stockings or anythin

    else in that line? Visit the newly openeIndependent Lifestyle Store at 2235

    Lougheed Highway, in Maple Ridge (nea

    Tim Hortons on 224th) They are ope

    Monday to Friday from 10 am to 5pm, d

    home deliveries and can be reached a

    604-477-1212 or ema

    [email protected].

    Find Calm and

    Comfort withThe Magic Blanket Cranbrook

    Maintaining Your

    Spirit CaregiverConference

    Maple Ridge

    ongratulaons to Master Michael Sirota

    ho has recently been inducted into the

    Maral Arts Hall of Fame for his pioneering

    nd developing work for people with

    pecial needs. His programs have now

    een ocially recognized by The Ministry

    f Children and Family Development. Go

    o www.sirotasalchymy.com to nd outbout classes in self-defense for individu-

    s with mobility disabilies, special needs

    aral arts and one-on-one training

    pportunies. Classes available at Guild-

    ord Recreaon Centre Surrey

    04.502.6360), Richmond Centre for

    isability (604.232.2404) and at Sirotas

    chemy Richmond (604.244.8842). If

    our organizaon is interested in partner-

    g with Sirotas Alchymy to oer programs

    or the special needs community contactMaster Michael Sirota at 604.244.8842.

    Special Needs

    Martial Arts Coursehas Expanded!

    When: Thursday, October 1, 2009 5:30 to 9 p.m.

    Where: Shadbolt Centre for the Arts

    Studio 103 6450 Deer Lake Ave., Burnaby, BC

    This workshop is sponsored by the Auxiliary to Sunny Hill Health Centre for Children. It is

    a FREE event for parents. Dinner is included and will be provided at 5:30 p.m.

    Register: Contact Maria Robichaud at 604-453-8300 ext 8211

    Email [email protected]

    Deadline: Registraon deadline is September 21, 2009

    (If you cannot aend due to child care expenses, contact Maria to explore your opons.)

    Hopeful Perspecves for Families of Children

    with Special Needs . Burnaby

    Early Intervention Therapy Workshops

    ne Motor Skills for the Preschool Child

    ept. 22nd)

    oilet Teaching for Children with Special

    eeds (Oct. 14th)

    ensory Processing in Infants & Preschoolers

    Nov. 17th & 24) (2-part workshop)

    ancouver

    Free WorkshopWhat would a Hopeful Parent Do?

    Locaon: BC Centre for Ability

    2805 Kingsway, Vancouver

    Time: 6:30-8:45 p.m.

    Registraon required phone 604-451-5511

    Childcare is not available.

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    Leisure

    6

    Special Needs DanceClassesPantuso Dance Studio is oering Friday

    dance classes for children and youth with

    special needs: Down syndrome, cerebral

    palsy, ausm spectrum disorders, develop-

    mental delays and wheelchair users.

    Classes are designed for parcipants to

    aend independently without an aid,

    however, wheelchair parcipants need a

    buddy in order to aend. Classes are held

    at Pantuso Dance Studio, 2659 Moray

    Place, Courtenay. For more informaon

    contact Lindsay Sterk at 250-338-4441 or

    email [email protected].

    Courtenay

    The Canadian mens cerebral palsy

    (paralympic) soccer team has just returned

    from its rst ve day camp of the season

    held in Las Vegas. Fourteen players parci-

    pated in camp one which included a daily

    training regiment as well as six mini

    matches against the local Vegas Academy

    Organizaon. If you are 16 or older, have

    mild cerebral palsy, have had a stroke or

    brain injury, and are interested in playing

    as a member of Team Canada, email coach

    Drew Ferguson at [email protected].

    There are no costs to join the team and as

    an athlete your expenses will be paid.

    Calling allSoccer Players

    Librarywithout WallsSave me and footsteps by using the

    services of Library without Walls the

    comfortable way to check out library

    resources from home. All you need is an

    internet connecon and a library card and

    you are on your way to downloading

    e-books, audio books, videos and music.

    Your resources will automacally expire at

    the end of the lending period. No more

    late fees to worry about! For a tour on

    how to use this resource, Google Library

    Without Walls; then click on download

    digital media GUIDED TOUR, found on the

    le side of your screen.

    Welcome to our wheelchair accessible

    U-Catch. Our two ponds are stocked with

    lively, tasty rainbow trout, 12 inches to

    over 24. We provide shing tackle and baitand we can clean your sh too. We have

    BBQs, picnic tables; a wheelchair acces-

    sible washroom and childrens play area

    with swings and slide. We host company

    pares, shing tournaments, birthday

    pares etc. Come and enjoy. Open April 1

    to October 31, 9 am to dusk. Booking

    required. Two dollar per person admission

    fee and a cost for each sh caught. Closed

    Wednesday. For more informaon phone:

    604-826-5640 or email

    [email protected]

    Trout Creek FarmAccessible FishingApril to October31474 Townshipline Ave. Mission

    Exercise for

    People over 50Begin by standing on a comfo

    surface, where you have plenty of ro

    each side. With a 5 pound potato

    each hand, extend your arms straigh

    from your sides and hold them the

    long as you can. Try to reach a full m

    and then relax. Each day youll n

    you can hold this posion for just

    longer. Aer a couple then try 50 p

    potato bags and then eventually try

    to where you can li a 100 pound p

    bag in each hand and hold your

    straight for more than a full minute

    now at this level.) Aer you feel con

    at that level, put a potato in each bag

    At Whistler Blackcomb the belief is tguests are entled to enjoy the beaut

    benets of winter recreaon. A te

    trained and cered instructors, g

    and assistants help those with both

    cal and cognive disabilies acces

    slopes. The Whistler Adapve Ski and

    Program provides individualized s

    snowboard instrucon to meet the

    of clients with all types of special nee

    bursary of up to $750 per winter se

    for Canadian residents who are in ne

    and qualify for nancial assistan

    oered through the Whistler Ad

    Sports Program. Programs will be

    operaonal during the 2009/201

    season and 90% of the terrain will be

    to the public during the Olympic

    Paralympic games. For more pro

    informaon visit

    www.whistleradapve.com, call 1

    766-0449.

    Whistler AdaptiveSki & Ride PrograWhistler

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    General Interests to raise to reach to reali

    Josh is a smart, happy, fun-spirited eight

    year old boy. He has an undiagnosed brain

    disorder which has resulted in a signicant

    neurological motor decit. Josh is unableto walk or talk and needs help to do just

    about everything. He is very social and

    loves to parcipate in what others are

    doing. Some of our favorite acvies are

    swimming, adapve snow skiing and

    therapeuc horseback riding.

    Last year Josh and I ran the Scoabank Half

    Marathon using a borrowed jogger. It was

    a great experience. Josh loved it. People

    were fantasc. He wore his medal all day

    long and let me know he wanted to race

    again.

    My reason for running the Vancouver

    Marathon pushing Josh was to give him a

    special experience and to share the joy and

    excitement of parcipang in a compe-

    ve sporng event. He cant play hockey

    and soccer as he longs to do with his

    friends at school but this is something he

    can do and it will be unique to him. The

    marathon is also a way for us to be

    involved in our community, to raise aware-

    ness for the disabled and hopefully, to

    encourage others

    We decided to run this year's BMO

    Vancouver Full Marathon on Sunday, May

    3rd, 2009, but we needed wheels. Due to

    the distance of the marathon, 26.2

    miles/42 km, the jogger had to be a perfect

    t for both Josh and me. The one we

    borrowed last year was too big. This meant

    raising $2,000 for a custom adapted,

    ergonomically correct, long distance

    jogger. I sent out a request to almost

    everyone I knew. The response was unbe-

    lievable!

    In my email request I menoned that an

    surplus funds raised would go toward

    therapeuc horseback riding for Josh and

    touch screen monitor so he could use th

    computer at home. When we had raised

    almost the full amount, a friend called to

    say that the Kinsmen Foundaon wante

    to donate the enre amount of the jogge

    so that the other funds raised could go to

    the other special needs menoned in m

    fundraising appeal!

    One of the most important lessons that

    am learning, in this unexpected journey o

    having a signicantly disabled child, is tha

    I can't do it alone. I have come to deepl

    appreciate the strength of a supporv

    community. I used to be so individuall

    minded and determined to manage on m

    own that I had diculty accepng the oe

    of car service at Safeway! Not anymore.

    am so grateful for my family, friends an

    others in our circle who help in many ways

    big and small. I couldn't manage withou

    them.

    Everyone is busy and working hard thes

    days - but if you know a family with a

    signicantly disabled child, please know

    that they are making a heroic daily eor

    just to manage the basic funcons o

    everyday living. You can't imagine what

    dierence it would make if every now and

    then you oered to bring them a hom

    cooked meal, mow their lawn or bring th

    kids over on a Saturday morning to wash

    their car or take their garbage out. Ever

    lile bit of help makes a big dierence. An

    maybe, most importantly, it will warm

    their heart to know that somebody i

    willing to go a lile out of their way to

    lighten the load. (Rewrien with permis

    sion -www.teamjoshua.ca)

    mbing and hiking has helped to improve

    y cerebral palsy. I call my climbing and

    king adventure therapy when I get a

    ance to do it full me. My therapy

    nsists of climbing, hiking, working out

    th weights and stretching for 30 to 40

    urs a week. My balance, coordinaon,

    te, range of moon, exibility, strength

    d endurance have all improved. Both

    fore my second and third adventure

    erapies, I had BOTOX injecons. These

    econs along with all my exercise have

    amacally reduced the spascity in my

    per arm and leg. These improvements

    e sll with me.

    hope this helps to movate others to

    ach for their dreams. I have always

    lieved in going for my dreams, even

    hen people said it wasnt possible. You

    ver know what is possible unl you try.

    m would love to hear from you. He can

    reached at [email protected].

    reviously published on Climbing.com)

    lk candy vending route for sale! Established 15 years in the

    wer Mainland. A poron of proceeds benet the Cerebral Palsy

    sociaon of BC. For more informaon on this excing

    portunity phone 604-594-3017.

    Team JoshuaAdventure TherapyTim Ashwood

    Want a Small Business? Lower Mainland

    ospect Mountain Estes Park CO

  • 7/28/2019 CPABC Roundtable Summer 2009

    8/8

    summer 2009General Interests . CPABC

    $100 $75 $50 $25

    My choice:

    Visa #

    Expiry Date

    Name on Card

    Todays Date

    Signature

    Please mail to:

    Realize equalityin a diverse society!

    Now, more than ever before

    your membership will help to

    Become a Member today!

    Membership fee: $20

    Donaon: I would like to make a donaon tosupport the services and programs of the CerebralPalsy Associaon of BC. Income tax receipts areonly issued for donaons of $10 or more, unlessrequested.

    Method of Payment: I have enclosed a

    cheque payable to the CPABC or:

    Cerebral Palsy Associaon of BC

    801-409 Granville StreetVancouver, BC V6C 1T2

    Charitable Registraon Business Number10690 4204 RR0001

    Cerebral Palsy Associaon of Brish Columbia

    801-409 Granville St. Vancouver, BC V6C 1T2

    Phone: 604.408.9484

    Toll-Free (Enquiry CP): 1.800.663.0004

    Fax: 604.408.9489

    Email: [email protected]

    Oce Hrs: 9 AM to 5PM, Monday to Thursday

    the

    Please recycle thisRoundtable by passingit along to someone else!

    CPABC BOARD MEMBERS CPABC STAFF

    CRAIG LANGSTON

    TRISH MCKAY

    JONN OLLDYM

    RONALD BLACKMORE

    LIZ CALDER

    TERREANE DERRICK

    LES EBL

    DANIELLE GUERTIN

    TONY KRUSE

    President

    Vice President

    Treasurer

    FERI DEHDAR

    TAMMY VAN DER KAMP

    WENDY HAWRYZKI

    Director ofPrograms &

    Administraon

    Family &IndividualSupport Worker

    Administrave

    Assistant8

    The Cerebral Palsy Associaon is proud to report that due to two generous gr

    from the Hamber Foundaon and The F.K. Morrow Foundaon, we were

    again able to assist children, teens and adults across BC, realize their dream

    aending a camp of their choice. Out of nine applicaons received, seven w

    given funding for a combined total of $3,389.70!

    Thirteen year old Olivia, from Prince George, wrote that Kelownas Camp Win

    is a special place for special kids like her. It was Olivias h year of aending

    camp and she said that she is well looked aer and has so much fun!

    Jusn, age 19, came home from the Leader in Training Challenger Progra

    Squamish with lots of itchy bites. The weather was cool and wet but that d

    detour this go-geer from bringing home some valuable lessons on commu

    on, trust, team work, celebraon and leadership.

    Anja, 24, from Abbotsford - enjoys living life on the edge. She says, C

    Bethesda (Cultus Lake) has been one of the biggest highlights of the last two y

    I want to be in an environment in which I can be free to be who I am and have sadventures that are typically not possible in my daily life. Waking up in a cab

    the forest is glorious!

    Ten year old Braiden loves to try everything from trails to kayaking. He wante

    aend camp because he knew his needs would be respected and understood

    camp Braiden is allowed to be himself and part of the group.

    Thank you to everyone who wrote in and sent us your pictures!

    Date:

    Time:

    Speaker:

    Topic:

    Locaon:

    Friday, September 18, 2009

    6:30 8:30 pm

    Dr. Mulpuri

    Hip Health and Cerebral Palsy

    Bonsor Community Centre

    Mul Purpose Room 1, 2nd Floor

    6550 Bonsor AvenueBurnaby, BC V5H 3G4

    Call our oce to RSVP or to

    out more informaon604-408-9484 or toll free in B

    1-800-663-0004www.bccerebralpalsy.com

    Lets Talk Camp!

    ANNOUNCINGThe 55th Annual General Meeng of

    The Cerebral Palsy Associaon of BC

    Members, community partne& new members are allwelcome to aend.

    Jusn Braiden