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Copyright©by R. Henniger 2012 1
BEATING CANCER AND SURVIVING THE CURE!
Randy Henniger, 27 year colon cancer survivorColostomate & urostomateCancer survivor community advocate
Copyright©by R. Henniger 2012 2
Randy’s story:
•Diagnosed with Stage III rectal cancer at age 30
•Surgery with permanent colostomy
•6 weeks of radiation treatment
•ED with penile implant at age 31
•Bladder dysfunction at 40
•Neuropathy at 50
•Urostomy surgery at 58
•Active life: Surfing, yoga, biking, hiking, swimming
•Great Comebacks Western Region award winner: 2011
Copyright©by R. Henniger 2012 3
You know you’re an ostomate when…
• You have a favorite "Ensure" flavor.
• People ask about your guts, before they ask about your family.
• You have more photos of your insides that the outsides.
• You have a spare pair of underwear in your bag/pocket.
• You give directions via toilets rather than by restaurants.
More humor at: http://www.inspire.com/groups/ostomy/discussion/ostomy-humor/?reply_sort=asc&page=1#replies /
Copyright©by R. Henniger 2012 4
Image & Relationships
• I am the same person I was before surgery• “We don’t love you for how you go to the bathroom”
• When to share?• First date? No• Before intimacy? Yes
• Wraps, straps and sashes can be sexy• Prepare, pick the best time, try a smaller pouch
• Emotional recovery assistance as well as physical
Copyright©by R. Henniger 2012 5
Diet & Nutrition
Keep a “Food” journal Times, amounts, results including meds
Fewer “feet” is better 0: Fish, 2: Chicken/turkey, 4 feet:
beef/pork Half the plate: veggies, ¼ plate protein,
¼ carbs Fluids, fluids, fluids: 64 oz min.(check
w/ doc) Illies require more hydration
Diarrhea is our enemy, lomotil is our friend
Copyright©by R. Henniger 2012 6
Physical activities
Consult a physical therapist Take care when lifting Add “padding” when biking Swimming: use a belt, non-filtered
pouch Protect your stoma: Stealthbelt Active Ostomates: “NO LIMITS” 30 minutes/day of aerobic exercise
Copyright©by R. Henniger 2012 7
Ostomies
Stoma marking before surgery? Yes!Beltline: No!Protruding: Yes! More for illies
Sigmoid colostomyIleostomyAscending colostomyTranscending colostomyUrostomy
Copyright©by R. Henniger 2012 8
Ostomy products
One Piece Drainable 1 piece: closed, cut to fit Irrigation Kit*Two Piece Mouldable Convex Stoma Cap Closed End UrostomyDrainable Wafer Wafer Pouch one piece
*Only colostomates with healthy colons are candidates to irrigate, check with WOCN
Copyright©by R. Henniger 2012 9
Skin issues
5 day max. wear for ostomy appliance Check “all around” stoma (mirror) Gently press skin away from appliance
don’t pull Redness, rash, irritation
Pancake with 3 layers of stoma-powder/skin prep
More than 3 days, see your WOCN 24 hour skin trial for anything new No creams, oils or soap residue
Copyright©by R. Henniger 2012 10
Tips & tricks
Illies Stool solidifier (SmellEze) Horizontal pouch position for sleeping
Pouch liners (colomagik) Pouch deodorants (mouthwash) Skin Prep: Torbot Skin prep wipes Ostomy and hernia support belts:Nu
Hope Emergency kits: car, office, gym, 2nd
home
Copyright©by R. Henniger 2012 11
New Ostomate Support Needs
Diagnosis
EmotionalEducationDecision
Treatment
PhysicalNutritionStay the course
Post-op
Ostomy careNew me
Good survivor
Copyright©by R. Henniger 2012 12
Diagnosis
Make a Decision Ostomy as an Option
Gathering Resources Ostomy Buddies and Online Community
Preparing Emotionally Ostomates are people too!
Copyright©by R. Henniger 2012 13
Surgery & Recovery
Pre-Op Wound, Ostomy & Continence Nurse (WOCN) consult for stoma
marking/location Physical Recovery: Physical Therapy, diet Emotional Recovery: Mental Health Prof. Get the Right Products and Support
WOCN Participation Manufacturers support programs available Support sites include CCA’s CRC connections,
www.ostomy.inspire.com, www. ostomy.org
Copyright©by R. Henniger 2012 14
Post-Op
Acceptance The new you, “No Limits!”
A Good Survivor Bitter to Better!, Victim to Victor!
Paying it Forward Helping others helps us
Regular follow ups with WOCN UOAA support group meetings: Calendar View UOAA Support Group
Meetings_Western Region calendar
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Pay it Forward
Copyright©by R. Henniger 2012
Saturday, March 2, 2013 in Land Park: Sac800 participants, $40,000 raised for FREE screening
www.undy5000.org
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Resources
Facebook page: ActiveOstomates http://www.facebook.com/pages/ActiveO
stomates/273287332764236 UOAA, www.ostomy.org Convatec CIC: 800.422.8811 OstomyWorld
http://www.ostomyman.org/#!community-forum/c22z
Copyright©by R. Henniger 2012
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Contact Info
Copyright©by R. Henniger 2012
