Continence Promotion Committee (CPC)

Program

Diane Newman - Chair

ICS – 2005 - Montreal

Continence Promotion Committee (CPC)

Program

Diane Newman - Chair

ICS – 2005 - Montreal

Current Initiatives for

Increasing Continence Awareness

Wednesday, August 31 13:00 to 14:00

Palais des congres de Montreal

AUSTRALIA AUSTRIA BELGIUM

BRAZIL CANADA COLOMBIA

CZECH REPUBLIC DENMARK GERMANY (2)

CHINA (Hong Kong) HUNGARY INDIA

INDONESIA ISRAEL ITALY (2)

JAPAN KOREA MALAYSIA

MEXICO (New) NETHERLANDS (3) NEW ZEALAND

NORWAY PHILIPPINES POLAND

SINGAPORE SLOVAKIA (New) SPAIN (New)

SWEDEN SWITZERLAND TAIWAN

THAILAND UNITED KINGDOM (5) UNITED STATES (4)

Organizations 2004 – 200547 (38) organizations in 33 (29) countries38) organizations in 33 (29) countriesOrganizations 2004 – 200547 (38) organizations in 33 (29) countries38) organizations in 33 (29) countries

PROGRAMPROGRAMDiane Newman -Introduction

•• OVERVIEW

• “Global Patient Advocacy Group”

• Canadian Continence Foundation Activities

• Frankie Bates, RN NCA

•• OVERVIEW

• Overactive Bladder European Patient Association Network

• Dr. Judith Wardle

• Director

The Continence Foundation, Great Britain

CPC Issues CPC Issues

• Global Initiatives

• Overactive Bladder European Patient Association Network

• Patient Advocacy Group

• Evolving into “Continence: :Bladder Health Campaign”

2 Global Initiatives2 Global Initiatives

Background on Overactive Bladder European

Patient Association Network Background on Overactive Bladder European

Patient Association Network

• Global initiative that focuses on supporting patient advocacy groups currently working in the area of overactive bladder management, in order to help increase awareness, education, and proper treatment of overactive bladder

• Francois Haab (France), Chairman

• Participation from CPC associations in 5-7 EU countries

• Sponsor-Pfizer

Participating European Patient Association Network Participating European Patient Association Network

• Femmes pours Toujours (France) – Françoise Nicole Kremer

• German Continence Foundation (Germany) – Karl-Peter Jünemann, MD

• Tribunal for Patients’ Rights – Cittadinanzattiva (Italy) – Stefano Inglese

• Asociacion Nacional de Ostomizados e Incontinentes (ANOI) (Spain) – Carmen Chacel Tuya

• Sinoba (Sweden) – Maud Ankardal

• Incontact (Action on Incontinence) (United Kingdom) – Linda Crumlin

• Continence Foundation (United Kingdom) – Judith Wardle, PhD

Background on Patient Advocacy Group Background on Patient Advocacy Group

• Global initiative that focuses on supporting advocacy groups to implement wide reaching awareness campaigns targeting policy makers, healthcare professionals.

• Focus is SUI

• Provides guidance for networking and information sharing, developing partnerships with healthcare professionals and supporting awareness, education, and proper treatment.

• Developed a position paper, conducting surveys

• David Fonda (Australia), Chairman

• Participation from CPC associations in 11 countries (EU, Mexico & Canada)

• Sponsor-Eli Lilly & Boehringer Ingelheim

Patient Advocacy Group - Global AchievementPatient Advocacy Group - Global Achievement

U-Control, U-Control, BelgiumBelgium

CPC Issues CPC Issues

• Donations to CPC

• CPC Collaboration with World Federation of Incontinence Patients

• ICS New Zealand 2006

• Annual Meeting Allotted Time

• Workshop

• Committee Meeting

CPC Issues CPC Issues

• Website

• Newsletter – ICS Publications Cmte

• 2006 “Continence: Bladder Health Campaign”

• World Continence Day

• Plan – Public Forum @ 2007 ICS Rotterdam, 2008 ICI Paris

• Presenters:

» Professionals (report of key advances)» CPC group