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Consumer Advocacy
The strength of a Network: moving beyond talk to action
Amanda WiniataCommunity Programs ManagerBreast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with breast cancer receives the best information, treatment, care and support, no matter who she is or where she lives
Over 60,000 members across Australia
What helps to effectively work together
• Clear expectations• Open communication• Knowledge to represent BCNA• Common understanding• Feedback• Share experiences
BCNA offers women two opportunities for advocacy roles
•Sharing personal experiences
•Community promotion activities
•Strengthening local networks
Community Liaison
•Influencing decision making•Involved in all types of committees
•Promoting value of consumer involvement
Consumer Rep
4. Feedback & ongoing support
3. Training
2. Screening
1. Recruitment
5. Evaluation
Community Liaisons
Forums
Website
Networks
Community events
Experience of BC
Community networks
Public speaking
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Resources
Briefings
Networking
Online Network
Pre & post training
Number activities
Consumer Representative
Website
Community Liaison
Networks
Experience of BC
Understanding of BC
Raising issues
Advocacy skills
Health system
Basic science & clinical m’gement
Conferences
Refresher training
Teleconferences
Mentoring
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making leading to improved outcomes
‘Chemoprevention’ ‘Risk-reducing medication’
Key factors for a successful program
• Processes to determine suitability for the role
• Ongoing engagement with women• Communication about expectations• Sophisticated database of women• Dedicated resources• Opportunities to develop capability• Engagement with requesting
organisations• Evaluation and continuous improvement