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Community of Practice on Traumatic Brain Injury Eleventh Meeting July 2 nd , 2014

Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

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Page 1: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Community of Practice on Traumatic Brain Injury

Eleventh Meeting

July 2nd, 2014

Presenter
Presentation Notes
Welcome, 9th webinar
Page 2: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Today’s Agenda

Assault and Traumatic Brain Injury

• Abusive Head Trauma in Young Children: Descriptive Factors and Outcomes

• Traumatic Brain Injury and Domestic Violence

www.ChildrensSafetyNetwork.org 2

Page 3: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Meeting Orientation Slide

www.ChildrensSafetyNetwork.org 3

If you are having any technical problems joining the webinar, please contact the Adobe Connect hotline at 1-800-416-7640 or email [email protected] Type any additional questions or comments

into the Chat Box on the left.

Presenter
Presentation Notes
Thanks Bekah, your phone lines are currently muted to eliminate background noise during the presentation. If you have a question or are experiencing technical difficulties, please type them into the Chat window on your left and we will attempt to assist you. If you are having any problems joining the webinar please contact the Adobe Connect hotline at 1-800-416-7640. The phone number is also above the powerpoint slides. This meeting is being recorded. An archive and the PowerPoints from this session will be emailed to you after the webinar. After the presentations, we will open the phone lines for the group dicussion. If you are in a location with lots of background noise, please self-mute your phone when you are not speaking. Even though your mic is muted, if you would like to speak, please use the handraise function which appears. . . .
Page 4: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Presenters

www.ChildrensSafetyNetwork.org 4

Juliet Haarbauer-Krupa, PhD Health Scientist, Traumatic Brain Injury Team

National Center for Injury Prevention and Control The Centers for Disease Control and Prevention

Please contact [email protected] for more information about Juliet’s Presentation

Presenter
Presentation Notes
Juliet Haarbauer-Krupa, PhD, is a Health Scientist on the Traumatic Brain Injury Team in the National Center for Injury Prevention and Control at the Centers for Disease Control and Prevention (CDC). Dr. Haarbauer-Krupa has research experience in the area of pediatric traumatic brain injury and program development in rehabilitation. She has presented on the topic of Abusive Head Trauma in Children at national conferences. Her role on the TBI team is to provide scientific oversight and technical assistance for pediatric brain injury and rehabilitation projects. In addition to her work at the CDC, Dr. Haarbauer-Krupa is principal investigator on a federal grant, funded by NIDRR , to study outcomes for young children and two funded projects examining transition to adulthood for teens with complex medical conditions, including TBI. She is adjunct faculty in the Department of Pediatrics at Emory University School of Medicine.
Page 5: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Presenters

www.ChildrensSafetyNetwork.org 5

Maria Crowley, MA, CRC State Head Injury Coordinator

Alabama Department of Rehabilitation Services

Presenter
Presentation Notes
Maria Crowley, MA, CRC has worked for the Alabama Department of Rehabilitation Services for 25 years, currently serving as the State Head Injury Coordinator for the Alabama Department of Rehabilitation Services. She is a graduate of the University of Alabama at Birmingham, where she earned her Bachelor of Science and Master in Rehabilitation Counseling degrees. Mrs. Crowley manages the Department’s Head Injury Services, statewide Head Injury Task Force, the Impaired Drivers Trust Fund Advisory Board, the Alabama Head & Spinal Cord Injury Registry, and is the Project Director for the current TBI grant. She is past president and current Board Member of the National Association of State Head Injury Administrators (NASHIA) Board of Directors, and serves on many other statewide committees, including the Alabama Trauma Registry Task Force and the Alabama Coordinating Committee for Disability Surveillance and Research. She served on the board of Ms. Wheelchair Alabama, Inc. for many years and is a co-founder of the Birmingham Area Governor’s Committee on the Employment of People with Disabilities. Maria is married, has one teenage tuba-player son and owns a furry child that answers to the name of Gloria.
Page 6: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Traumatic Brain Injury and Domestic Violence

Community of Practice Webinar

Maria Crowley, MA, CRC State Head Injury Coordinator

Alabama Department of Rehabilitation Services

Page 7: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Long Term Effects of TBI

Physical

Headaches, Poor Balance, Change in taste/smell/hearing, Pain Issues, Seizures, Sleep Disturbance

Behavioral-Emotional-Social

Irritability, Depression, Lack of motivation, Desocialization,

Impulsivity, Loss of emotional control

Communication

Poor listening/Conversational skills, Word-retrieval problems, Speech impairment, Interpreting conversation subtleties

Cognitive

Memory difficulties, Impaired concentration, Slowed

processing, Loss of judgment/Decision

making/Long-term planning

Page 8: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Domestic Violence (DV) is defined as …

Each Year…

…a deliberate pattern of abusive tactics used by one partner in an

intimate relationship to obtain and

maintain power and control over the other.

(Alabama Coalition Against Domestic Violence)

…1.5 million women experience domestic

violence. (National Violence Against

Domestic Violence: Annual Report)

…incidence rates range

from 8.4% to 22%. (Plichta & Weisman and Meridith, Abbott & Adams)

Presenter
Presentation Notes
Retrieved from powerpoint “Linking Domestic Violence and Traumatic Brain Injury by Alabama Department of Rehabilitation Services”, Supported by Grant CFDA#93.234 TBI Post Demonstration Maternal and Child Health Bureau, United States Department of Health & Human Services.
Page 9: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Only 1% of abused women are appropriately identified by the health

care system. (Boss 1994)

Greater than 90% of all injuries secondary to domestic violence

occur to the head, neck or face region.

(Monahan & O’Leary 1999)

Based on DV-related ER visits, 30% of DV victims reported a loss of consciousness at least once and

67% cited residuals problems likely related to TBI.

(Corrigan 2003)

In a study of 99 DV victims, 75% sustained at

least 1 partner-related TBI and 50% sustained

multiple partner-related TBIs.

(Valera 2003)

81% of DV Victims with a previous TBI had cognitive, emotional, and physical complaints identical to other

individuals with a TBI. (Ross 2002)

Presenter
Presentation Notes
Retrieved from powerpoint “Linking Domestic Violence and Traumatic Brain Injury by Alabama Department of Rehabilitation Services”, Supported by Grant CFDA#93.234 TBI Post Demonstration Maternal and Child Health Bureau, United States Department of Health & Human Services.
Page 10: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Typical Descriptions… “Unmotivated” “Unable to plan ahead” “Poorly organized” “Unfocused”

“Forgetful” “Unable to follow a train of thought” Koss 1997, Walker 1991, Warshaw 1993

Repeated Brain Injury • Typical of ongoing domestic violence • Leads to increased cognitive, physical,

and emotional dysfunction over time (Hibbard 2002)

Presenter
Presentation Notes
Retrieved from powerpoint “Linking Domestic Violence and Traumatic Brain Injury by Alabama Department of Rehabilitation Services”, Supported by Grant CFDA#93.234 TBI Post Demonstration Maternal and Child Health Bureau, United States Department of Health & Human Services.
Page 11: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

combined… Domestic Violence and Brain Injury

increase the woman’s risk of: continued harm,

repeated brain injuries, and program intervention failure

Presenter
Presentation Notes
Retrieved from powerpoint “Linking Domestic Violence and Traumatic Brain Injury by Alabama Department of Rehabilitation Services”, Supported by Grant CFDA#93.234 TBI Post Demonstration Maternal and Child Health Bureau, United States Department of Health & Human Services.
Page 12: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Why is Screening Important?

o Screening for TBI within DV settings

o Screening for DV within TBI environments

o Helps to take consumer safety into account

o Privacy is key when screening

o Ask about DV more than once

Page 13: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Domestic Violence and TBI: Issues

o Lack of TBI awareness in DV community

o Lack of DV knowledge among TBI service providers

o Lack of identification/referral of TBI

o Existing collaboration with ACADV

o History of using BISQ in school systems

Page 14: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Project Partners o ADRS-Lead Agency o AL Head Injury Foundation o AL Head Injury Task Force o UAB TBI Model System o UAB Injury Control

Research Center o RRTC-Mt Sinai, NY o AL Disability Advocacy

Program

o AL Coalition Against Domestic Violence

o YWCA-Birmingham o State DV Shelter Staff o Local DV Task Forces o Hispanic Outreach o Advisory Council on

Violence Against Women o DV Survivor Advisory

Group

Page 15: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Core TBI Service System o Alabama Head Injury

Foundation o Alabama Head and

Spinal Cord Injury Registry

o Interactive Community-Based Model

o Children’s Rehabilitation Service

Page 16: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Core DV Service System

o ACADV Administrative Staff o 19 ACADV Shelters o SAIL Project Staff

Page 17: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Domestic Violence and TBI: Activities and Results

o Education of DV and TBI service providers

o Development of a referral process with designated point of entry

Shelter => AHIF => TBI system

o Modification in data systems

o Development of a screening protocol: Brief Screen => BISQ => TBI system(assessment)

o Development of a Training Tool Kit: PPs, videos, screening, fact sheets, resources

Page 18: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Additional Training

o Police academies

o DHR Staff

o ADRS Staff-Recognizing DV

o AL DV Governor’s Conference

o ACADV Advanced Development Training

o Local DV Task Forces statewide

o ACADV Legal/Justice System Training

Page 19: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

TBI and DV: Lessons Learned and Challenges

o Shelter Staff and DV community extremely “close” o Location of survivors difficult o Dependence on self-identification o Survivors downplay injury, nature of TBI o TBI documentation ending up in wrong hands o Separate issues for children o No process for id. DV survivors in other systems

Page 20: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Current Activities o Alabama’s Council on Violence Against Women o Integrated into State Plan o AL materials included in DV and Special Populations

Manual – NCADV and NCDVTMH o DV members - State Task Force o Shaken Baby Program Members – State Task Force o Prevention Committee – State Task Force o Staff Participation – State DV Task Force

Page 21: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Domestic Violence Resources

NY’s Office for the Prevention on Domestic Violence www.opdv.state.ny.us/professionals/tbi

Alabama Coalition Against Domestic Violence www.acadv.org

Alabama Dept. of Rehab. Services DV and TBI Materials www.rehab.alabama.gov/tbi

National Coalition Against Domestic Violence www.ncadv.org

* Dr. Mary Hibbard (former professor at the Mount Sinai School of Medicine): research, materials, and consultation

Page 22: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Maria Crowley State Head Injury Coordinator

205-290-4590 [email protected]

www.rehab.alabama.gov/tbi

Page 23: Community of Practice on Traumatic Brain Injury · Community of Practice on Traumatic Brain Injury ... about Juliet’s Presentation . Juliet Haarbauer-Krupa, PhD, is a Health Scientist

Thank you for your participation

Please take a moment to complete our short evaluation:

https://www.surveymonkey.com/s/SBQ7Y2L Questions or Comments? Contact:

[email protected] 617-618-2178

www.ChildrensSafetyNetwork.org 23

Presenter
Presentation Notes
Our next and last meeting of the TBI CoP in on August 2nd 2014. At that meeting, we will review what we’ve learned over the past year, hear about some of the successes our members have experienced, and talk about next steps for your programs. In the meantime, don’t forget to check out the TBI CoP webpage, please fill out the brief evaluation on the screen in front of you, and remember to send your challenges and successes to the TBI listserve! Until next time, bye!