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Community Development in Michigan
March 4, 2005 EHDI Conference Yasmina Bouraoui, MPH, EHDI Program Coordinator
Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN
Community Development Model
Use National 1-3-6 goals as a framework Carry-over funds to finance projects Incorporate EHDI information into a
variety of venues for parents and professionals
Multiple community stakeholders as partners
Focus on the families
Community Development Model
Utilizing health behavior change model Applying educational techniques to change
behaviors of multiple stake holders to meet overall program goals
Utilizing a variety of venues for information delivery.(MI AAP article, hand outs, brochures, website, committees,educational CD Rom for physicians, other presentations to multiple stakeholders
Developing community advocates as messengers to improve outcomes
Community Development Model Continued
Assessment and evaluation of stakeholder needs through survey of physicians, audiologists, hospitals and focus groups with physicians and parents
Emphasize data and facts Utilize credible and respected sources:
medical journals and studies, other physicians and stakeholders
Chapter Champion Component Evaluate efforts
Community Development Activities
Prenatal Awareness –Use of EHDI brochures in prenatal programs and NCHAM videos to providers
Post-natal –Use crib card after screening(English, Spanish and under development- Arabic)
Community awareness and support -Delta Zeta Project - Physician groups, WIC,M/ISS, Public Health clinics
– Chapter Champion program- Physician packets
and MI AAP EHDI presentation, articles Culture awareness (Arab Chaldean Council, Native
American Tribes, Migrant Clinics) EHDI County Brochure Resources (Samples)
Community Development Activities Continued
Materials for: Parents- brochures, crib cards, parent notebook,
Web page Hospitals and providers-brochures, resource
guide, newborn screening video,Web page Physicians-CD-rom, hearing loss packets, web
link, AAP materials,Web page (2005), NCHAM Physician survey
Communities-EHDI County brochures, Audiology and Early Intervention/ Parent conferences
EHDI Resources and Literature
• Web page www.michigan.gov/ehdi
• Information Brochures on the EHDI process, Hands and Voices, Guide-By-Your-Side
• Resource guide (English and Spanish)
• Crib Cards
• Physician Education CD for grand rounds/residency/student trainings (50+ attendees)
• Early Intervention/Parent Conference- February 2004 and March 2005
•Audiology conference October 2003 and 2004
Parent Support in Michigan
Hands & Voices
Guide-By-Your-Side
Michigan Hands & Voices’ Mission Statement
We are an organization dedicated to Non-biased support to families who have children who are deaf or hard of hearing.
We will provide activities and information statewide to parents and professionals that may include outreach events, educational seminars, advocacy, parent-to-parent networking, and newsletters.
Michigan Hands & Voices’ Mission Statement
We believe that families will make the best choices for their child if they have access to good information and support.
Our organization represents people who use varying approaches to communication and assistive technology.
Our Values
Non-Bias Communication Philosophy Parent-to-Parent Support Meaningful Participation Effective Collaboration Setting High Standards in Education Accountability and Responsibility
A Balanced Partnership
Professionals
AndParents
Today inMichigan Hands & Voices
Parent to Parent Support Parent Workshop (March 2005) Newsletter Resource Guide Representation on Committees Educational Advocacy and Training Social and informational events
What’s New in Michigan
Developing a Web page for parents and interventionists
New Resources and Events-sent through the Hands & Voices listserv
Chat Room Tutoring for sign language
Michigan Hands & Voices 2929 Covington Court Suite 200 Lansing, MI 48912-4939 517-487-0066TTY/TTD 800-968-7327 TTY/TTD Michigan Director
– Amy Lester – [email protected]– www.handsandvoices.org
– Michigan Hands & Voices is partially funded by an MCHB grant through the Michigan Department Community Health
“Guide-By-Your-Side”
Tag Team Approach to System Enhancement
(adapted from WI GBYS)
In Michigan
We have 83 counties Over 130,000 live
births a year 2/1000 children
will be diagnosed with a hearing loss
Average ID is now 2.4 months
Michigan Statistics
100% of Michigan birthing hospitals screening without a legislative mandate
Screening-92% of infants screened,to date
Diagnostics-46% reported outcomes for bilateral and unilateral refers, (2002 data)
Early Intervention-57% of infants enrolled in services as reported by Department of Education (2002, data)
The Challenge
Many Early Intervention Providers have had little to no experience working with very young children who were deaf or hard of hearing; MI EHDI is housed in Department of Health; Early Intervention housed in Department of Education
The Challenge
Lost to follow up rates are a concern
Difficulty accessing follow up information from stakeholders
Missing link from diagnosis to intervention
Parent desire to meet another parent who has been there
The Mission
To develop a community advocate model of service delivery
Parent Guides….Goals
Goal 1: Provide parents with the opportunity to establish a supportive relationship with an experienced parent of a child who is d/hh soon after they learn of their child’s hearing loss
Parent Guides will contact the family within 24 hours of receiving a referral.
Parent Guides will meet with the family within 10 days to guide and support the family.
Goal 2: Provide an understanding of the unique needs of infants who are deaf or hard of hearing.
Parent Guides will help the families that they meet to learn about the unique needs of d/hh children– Providing books and materials that
highlight family stories – By highlighting the impact of hearing
loss on a child’s access to communication and demonstrating early communication techniques (i.e. Promoting eye contact)
Goal 3: Provide unbiased information regarding communication options
Parent Guides– New “Parent
Notebook”– Received training
in the sharing of communication options, and presentation styles that may indicate bias
Goal 4: Link families to resources available locally, regionally and statewide
Parent Guides have received training – In the art of listening– Assessing and addressing the question
behind the comment– To be ready to answer some of the first
questions families might have– And to know how to find appropriate
resources for families– Confidentiality and HIPAA Issues
Goal 5: Ensure that families are linked to their county’s interventionists
Established rapport eases the introduction of the family to the Early On® program (EI)
Goal 6: Ensure that families are connected to other parent to parent resources
Parent guides are NOT advocates. Parent Guides can connect families with Michigan Hands & Voices for advocacy or on-going parent to parent support
Training
Initial Training for Parent Guides– October 8-9 2004– Founders of Guide-By-Your-Side from
Wisconsin provided the training – Ongoing training- Conference calls– Attending Early Intervention/Parent
conference- March 2005– 1st referral January 2005
Nuts and Bolts
The process Audiology/medical referral form Guide-By-Your-Side Brochure/self
referral Guide handbook/policy manual Tracking in house
MI EHDI Contact Information
Michigan Department of Community Health Division of Family and Community Health -EHDI Program
3423 N. Martin Luther King, Jr. Blvd. Room #203 Lansing, Michigan 48909 Web www.michigan.gov/ehdi Yasmina Bouraoui, MPH, Program Coordinator (517)
335-9398 [email protected] Lorie Lang, MA,CCC-A Audiology Consultant (517) 335-
9125 [email protected] Amy Lester, BA, Parent Consultant (517) 335-8273
MI EHDI Contact Information
Anne Jarrett, MA, CCC-A Follow-up Consultant (517)335-8878 [email protected]
Debby Behringer, RN, MSN Community Development Consultant (517) 335-8875 [email protected]
Paul Kramer, BA, Data Analyst Consultant (517) 335-9720 [email protected]
Erin Estrada, BA, Data Maintenance Consultant (517) 335-8916 [email protected]
Ebone Thomas, General Office Assistance (517) 335-8955 [email protected]
Community Development
Questions???