Community Based Participatory Research

Opportunities through HSTA Knowledge Brokers

(Community Research Associates)

Ann Chester, PhD

Cathy Morton-McSwain, MS

Summer Kuhn, MPH

Merge McMillion, MS

Sara Hanks, MPHc

Objectives

Engage clinicians and scientists in Community Based Participatory Research with HSTA

Understand roles and function of Community Research Associates as knowledge brokers

Determine ways to collaborate to reduce health disparities and increase health literacy in West Virginia

NCATS: Science of Community Engaged Research: Future

Directions – Chris Austin MD, Director of NCATS

Diagnostics and therapeutics

Behavioral interventions

Develop, demonstrate, and disseminate innovative methods and technologies

NCATS and Community Engagement Across the Translational Spectrum

Observation to point of care intervention (T1)

Identify most important research questions

Recruit best researchers

Build partnerships

Complementary funding for research studies

Bridge gap between fundamental science researchers and patients

Clinical and translational research (T2-T3)

Help develop relevant and practicable research protocols

Foster community participation and recruiting research participants for clinical trials

Increase collaboration and communication within the CTSA networks and between key stakeholders (e.g., academia, public/private entities, and communities)

Community health and population research (T4) Adoption of demonstrably useful interventions (i.e. dissemination)

Adherence

Interface with research partners including PCORI, Collaboratory, AHRQ, etc.

The Power of HSTA to Engage Community and ResearchersOver 17 years of NIH support

About $5 million

$28M history of funding with: NIHHHMIBenedumPrivate FoundationsState

Policy Changing Capacity

A New Work Force for Community Based Participatory ResearchAdolescents can be vectors for change in their

communities

Students are able to conduct CBPR in the most inaccessible communities

The HSTA families offer new insights into public health issues

The infrastructure is in place and unique to West Virginia

HSTA Infrastructure

Community Based Organization 159 Volunteer Board

Members

800 9th -12th grade students in 48 high schools After school club setting Complete annual research

projects

67 teachers

14 Field Site Coordinators

4 Community Research Associates (Knowledge Brokers)

HSTA Students

30% African American

63% Financially Disadvantaged

74% First in their families to go to college

83% Rural

67% Female

Community Research Associates (CRAs)

Background in high school education

Understanding of experimental design and statistics

Ability to relate scientific information to high school teachers and students

Ability to help scientists relate to HSTA and community

What do CRAs do?

Build partnerships between HSTA and researchers to promote community based research

Work with teachers and students on implementing research protocols

Act as liaison between community and research

Disseminate and translate knowledge between researchers and HSTA communities and vice versa

Facilitate IRB process

Fitting the Needs of Many

ResearchersCommunities

Resources

Participants

IdentifyIssues

HSTA CRAs

CommunityStakeholders

Methods

Mentor HSTA Students/teachers

HSTA Clubs

Disseminateknowledge

Empower to change

Policy change

State Legislators

Network

Gain a new perspective

Translate

HSTA Student Research Projects

Students complete annually

Timeline for completion:August – October – ProposalOctober – January – Proposal Approval Upon Proposal Approval – Implementation and Data

CollectionMay – HSTA Symposia – Presentation of project

Work with students on projects of mutual interest

What can HSTA provide? A pool of 800 ethics trained students

Trust of locals

CRA assistance

IRB assistance

IRB approved lifestyle survey

Teacher oversight

Access to hard to reach populations

Translation and dissemination of research to community

Opportunity to recruit future healthcare providers

Potential Data Points

What do we need from you?

Research ideas

Experimental design

Materials and supplies

Instruments needed for data collection

Guidance on data collection

Data access for student analysis and presentations

HSTA participant recognition for any publications

Mentoring and role modeling

Partnership Proposal Timeline

August Project Idea Development with CRAs Joint Governing Board Approval

September HSTA student/club recruitment

October - January Work with student on student’s research proposal

January – April Begin implementation upon approval Data analysis

May Student Symposia

Current Research Collaborations

Stress reduction – Dr. Julie Brefczynski-Lewis

Kidney Disease – Dr. Rebecca Schmidt

Ginseng harvesting – Dr. Jim McGraw

HSTA students as coaches of physical activity behavior changes

Lifestyle and Physical Activity Investigation – Dr. Bob Branch, University of Pittsburgh

Various Projects - NIOSH

My First Patient Research Opportunity

Collaboration between HSTA, School of Medicine, School of Dentistry, School of Pharmacy, Center for Cardiovascular and Respiratory Services, Engineering and the Davis College

Incorporates individualized health assessment and coaching into HSTA yearly activities

Hypothesis: HSTA students from 26 counties are change agents for their communities starting with themselves

Two Phase Project Phase 1: July 2014 – May 2015 – HSTA Students Phase 2: July 2015 – May 2016 – HSTA Families

IRB in progress now

Set-Up

HSTA students will be assessed for various health indicators while on campus for Summer Institute, July 2014

Students will select a goal to work towards throughout the school year

Will receive personalized coaching based on self-prescribed goal throughout the school year from team of professional students (Medical, Dental, Pharmacy, etc.)

Post assessment will occur at a HSTA event on campus in March 2015

Assessments Dental Health

Blood pressure

Heart rate

Respiratory rate

BMI/Body Fat

Waist Circumference

Hemoglobin A1C

Lipid Profile

Fasting Glucose

Endothelial function

FMRI

NIH funding PAR’s for partnering with HSTA R01 PAR-13-130: Understanding and Promoting Health

Literacy

Dissemination and Implementation Research in Health R03 PAR-13-056 and R21 PAR-13-054 and R01 PAR-13-055:

identify, develop, evaluate and refine effective and efficient methods, systems, infrastructures and strategies to disseminate and implement research-tested health behavior change interventions, evidence-based prevention, early detection diagnostic, treatment and management, quality of life improvement serves, and data monitoring and surveillance reporting tools into public health and clinical practice settings that focus on patient outcomes.

Address WV Health Disparities

HSTA

Researchers

Communities across WV

Enablecapabilities to test effectiveness of • Understandi

ng• Disseminati

on• Adoption• Policy

change

HSTA Health Research Collaboratory

Final Thoughts

Opportunity for research in hard to access communities

Unprecedented access and ability to influence policy

Adolescents as workforce for CBPR

Empowering adolescents as vectors for change

Mentoring future public health practitioners, clinicians, and researchers

Unique infrastructure for community engagement

Funding Opportunities are available NOW

How to Get Involved

Contact Cathy Morton-McSwain304-847-2372

mmortonm5@gmail.com