CLIC Sargent Annual Report and Accounts 2012-13

Annual Report and Accounts 2012/2013

www.clicsargent.org.uk

3 CLIC Sargent Annual Report and Accounts

Trustees’ report About CLIC Sargent 5

How we help 6

Welcome to our Annual Report and Accounts for 2012/2013 7

How you gave your support in 2012/2013 13

How we supported children, young people and their families in 2012/2013 14

Highlights of the year 15

Our achievements and performance for 2012/2013 17

We listen to children and young people 37

Focus for 2013/2014 39

Thank you 41

Structure, governance and management 47

Financial review and results for the year 49

Employees and volunteers 50

Statement of Trustees’ responsibilities for the accounts and corporate governance 51

Financial statements Independent auditor’s report to the members of CLIC Sargent Cancer Care for Children 53

Consolidated statement of financial activities 55

Balance sheets 56

Consolidated cashflow statement 57

Notes to the accounts 58

Reference and administrative details 70

Contents


About CLIC SargentToday, 10 children and young people in the UK will hear the shocking news that they have cancer. Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Being diagnosed with cancer is a frightening experience and the emotional, practical and financial implications of childhood cancer and its treatment are intensely challenging for the whole family.

CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. We provide clinical, practical and emotional support to help them cope with cancer and get the most out of life. We are there from diagnosis onwards and help families deal with the impact of cancer, life after treatment and, in some cases, bereavement.

Our purpose Everything we do is guided by our four key aims:

1 To reduce the practical and financial impact of cancer treatment on a child or young person, and their family

2 To support the emotional wellbeing and resilience of children, young people and their families

3 To maximise the time that children and young people can spend safely at home during treatment

4 To maximise children and young people’s potential by helping them to access education, training and employment opportunities.

Public benefit We have referred to and complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission’s published general guidance on public benefit when reviewing our aims and objectives and in planning our future activities. In particular, the Trustees consider how planned activities will contribute to the aims and objectives they have set.

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How we help Facing childhood cancer can be a devastating experience for the whole family.

Treatment is often gruelling, can start immediately and be given a long way from home. Families may face emotional, practical and financial problems following a child or young person’s diagnosis with cancer. There can be an overwhelming amount to deal with, from coping with uncertainty to arranging time off work, and caring for a child in hospital or their siblings at home, to managing extra costs.

This fractured way of life can go on for months – and in many cases, years. The impact of childhood cancer may also last long after treatment ends.

We know that every child or young person with cancer is different. Families are different. Each cancer journey is different. We know this because we listen. And we ask the right questions to ensure we can provide the right support.

We provide: � Emotional support to help the whole

family cope with a cancer diagnosis and its traumatic impact on everyday life

� A wide range of information on childhood cancer and its impact for children, young people and their families

� Financial support, such as grants, to help families deal with the financial impact of cancer

� A telephone welfare advice service which provides information about the benefits families may be entitled to, as well as advice on welfare rights, including employment and housing rights

� Support with employment issues, including help with speaking to employers about reducing working hours, working flexibly or taking unpaid leave

� Free accommodation at our eight Homes from Home which are close to specialist hospitals so that families can stay near their child during treatment

� Free holidays and specialist short breaks away from the everyday challenges of childhood cancer, with the support of our care professionals and medical help close by

� Support to keep up with education, including liaising with schools to help children keep up with schoolwork during treatment, and providing parents and staff with information and advice about how best to support a child with cancer

� Clinical care from our nurses to maximise the amount of time children can safely spend at or closer to home, and deliver as many treatments in the community as possible

� Support from our play specialists who help children cope with treatment through play and activities.

We also campaign and influence others to raise awareness of the needs of children and young people with cancer and to improve the support they and their families receive.


Welcome to our Annual Report and Accounts for 2012/2013

The past year has been a remarkable one for CLIC Sargent and it’s all thanks to the incredible commitment of our supporters, volunteers and staff, and the bravery and resilience of the children and young people with cancer, and families we support.

This year we’ve provided emotional, practical, financial and clinical support to more than 6,600 children and young people, and their families. And, despite a challenging economic environment, we’re delighted to say that we’ve reached an income of £22.26 million. That’s £1 million more than last year and is even more impressive as our income is almost entirely reliant on the generosity and commitment of our donors, and the hard work of our staff and volunteers. It’s a significant achievement and we are enormously grateful to everyone who has helped us achieve this.

So far, we’ve raised £1.8 million for our Northern Ireland Homes from Home appeal, which has allowed us to buy two properties near to the main hospitals in Belfast. These new Homes from Home will make a real difference to families who will be able to stay there while their children are having vital cancer treatment. Without them, during treatment, families may have to make long, arduous journeys and a parent may face separation from the rest of the family.

We’ve also secured exciting new corporate partnerships with Santander and Lidl. In September 2012, our long-standing supporter J D Wetherspoon, reached another £1 million milestone and celebrated raising an incredible total of £6 million for our work.

This year we also began an ambitious three-year campaign to reduce the impact of cancer on children and young people’s education, employment, training and skills. Our report No child with cancer left out, published in December 2012, highlighted significant gaps in support for primary school children with cancer and opened up ongoing dialogue with many politicians, policy-makers and practitioners. We’re talking to them about how to support four to 11-year-olds with cancer to keep up

with their education and reintegrate into school life during and after treatment. We also worked with the government to improve guidance in England on how children with long-term medical conditions can access education.

Listening to the people we support has always been an integral part of what we do. We make sure children and young people affected by cancer, as well as their parents and carers, help us evaluate and improve our services. This enables us to deliver support that they need, exactly how they need it. Our feedback survey helps us do this

“Listening to the people we support has always been an integral

part of what we do.”


– and shows that we are. In our 2012 survey, more than eight out of 10 people (86%) rated the overall service provided by CLIC Sargent as either excellent or very good.

Our organisation is now more effective and efficient too, thanks to work we’ve done to make the best use of the funds we raise through our programme Better by Design. Against a two-year target of £1 million, this year we have reduced our annual costs by £659,000. We’ve done this by changing the way we do everything from buying goods and services to how we do our banking. We aim

to further reduce our annual costs by £341,000 in 2013/2014, meaning that more of each pound we raise will be spent on supporting children and young people with cancer, and their families.

In 2012/2013, we’ve also focused on how we can address the gaps that exist in our services – and planned how we can grow to fill them. At the moment, we are not able to give all children and young people with cancer, and their families, the support they need throughout treatment and beyond. We can only support two out of three of them – and we’re determined to change this so that we can be there for all young cancer patients when they need us most.

Young people with cancer often receive treatment in adult cancer wards, without

access to the practical or emotional support they need to help

them cope. We know we can change this by employing

more care professionals who can ensure young people have the support they need where and when they need it.

Over the past two years, we piloted a new service in five areas of the UK to do this. An independent evaluation of the project has shown that, if we have enough money to invest in it, we could transform the support that young people with cancer receive.

We also want to:

� Open two new Homes from Home in Northern Ireland

� Relocate two of our existing Homes from Home, due to planned NHS hospital moves

� Ensure more families have access to the bereavement support we provide

� Be able to support children and young people who have survived cancer after their treatment and for as long as they need us.

To do this, we need to raise millions more, year on year – and we have a clear strategy to make that possible. We plan to increase our net income by 50% by 2017 which will allow us to expand our services to meet the needs of all children and young people with cancer and their families.

We’ve always been successful in raising funds, but a large proportion of our income has come from volatile and unpredictable sources, such as one-off events, legacies and charity of the year partnerships. The fundraising strategy we now have in place focuses on achieving the income growth needed to extend the reach and depth of our services, whilst increasing the reliability and profitability of our fundraising by increasing regular, planned giving. We will do this by attracting and retaining individual and organisational supporters.

“In 2012/2013, we’ve also focused on how we

can address the gaps that exist in our services – and planned how we can grow to fill them.”


We are therefore in an investment phase to attract these new supporters and grow specific income streams. We are delighted that, so far, we are on track with net income to support children, young people and their families increasing 9.4% year on year. This means that over time, as our income grows, we will be able to increase the vital support we give to children and young people with cancer.

Thank youWe would like to thank the 3,100 volunteers who support our work. They do everything from staffing our shops to supporting families in their homes or in hospital, and helping office teams to organising fundraising events.

We are also hugely grateful to our board of Trustees who are helping to put our ambitious plans into practice. They are all experts in their field and give their time and expertise on a voluntary basis. A special thank you goes to Tim Holley who has decided to step down after 12 years as a Trustee. His contribution over the years has been invaluable.

Finally, we would like to thank all CLIC Sargent staff, supporters and donors who make our work possible, and the many children and young people who have helped inform our work this year.

We are always humbled by the resilience, determination and energy of the children and young people we meet through CLIC Sargent’s Children and Young People’s Advisory Group. Listening to what they say makes such a huge difference to our work and further cements our belief that every child and young person with cancer deserves our help.

Daphne Pullen OBE Lorraine Clifton Chair Chief Executive



James’ story

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James was diagnosed with acute lymphoblastic leukaemia when he was four. He is now five and lives with his mum Naomi, dad Mark, and younger brother Kyron in Holyhead. Naomi tells James’ story.

“I didn’t eat for a week when James was diagnosed. I would feel guilty, thinking ‘Why am I eating when James is not well?’ I was on autopilot and had to carry on for James, but deep down it was killing me.

Twice a week for four months, we travelled to Liverpool for James’ treatment. Our family split up, with one of us staying at home with Kyron and the other with James. We just wanted to be together.

James and our CLIC Sargent Nurse, Eleri, got us through it. James was oblivious to it all. He knew he was poorly but he coped brilliantly.

We met Eleri the day we found out James had cancer. It was very hard taking things in but she is an amazing nurse. Eleri explained a lot of the medical information which can be overwhelming. She breaks things down and told us why James had to go on different treatments.

“She understands”Eleri has been absolutely fantastic. She comes up to the house to take James’ blood and is so positive about everything. She understands

what we’re going through. If we’ve got a problem, or if we don’t understand something, we can pick up the phone and she’s there for us. We couldn’t have asked for anyone better.

James is now in school full-time. He’s top of the class and has wowed everyone. He knows he’s

got leukaemia, is very independent and wants to learn. Cancer has made me

realise life is too short. You have to appreciate what you’ve got and the time you have with your kids.”

“Eleri, our CLIC Sargent Nurse, has been absolutely fantastic.She understands what we’re going through.”


How you gave your support in 2012/2013Our total income in 2012/2013 was £22.26 million, compared to £21.24 million in 2011/2012.

This year, we provided emotional, practical, financial

and clinical support in various ways to more than 6,600 children and young people, and their families.

Income generated from local fundraising initiatives throughout the UK and mass participation events

Income from donors who leave us a gift in their will

Income raised by selling products in our shops, through mail order or online

Donations from trusts and foundations, income raised through special events and large gifts from individuals

Income raised through our corporate partnerships

Income from individuals giving cash donations

Investment and other income

£7.4m

£2.6m£2.6m

£3.4m

£2.9m

£2.9m

£0.4m


How you gave your support in 2012/2013Our total income in 2012/2013 was £22.26 million, compared to £21.24 million in 2011/2012.

How we supported children, young people and their families in 2012/13

Reducing the practical and financial impact of cancer treatment

Supporting emotional wellbeing and resilience

Maximising the time spent safely at home during treatment

Enabling access to education, training and employment

� We can only give two out of three children and young people with cancer, and their families, the support they need

� To help them all we need to increase our net income significantly by 2017

� We are therefore in an investment phase to attract new supporters and grow specific income streams

� As our income grows, we will be able to move towards our goal of giving all children and young people with cancer the vital support they need.

36%

20%

33%

11%

2012

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2011

/12

2013

/14

2014

/15

2015

/16

2016

/17

2017

/18

0

5

£ m

illio

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10

15

20

25

30

35

Growth in income

How we plan to grow our income


Highlights of the yearOur support for young people A major aspect of our work this year has been about filling in the gap in support for 16 to 24-year-olds with cancer, and those who have finished their treatment.

Evaluation from our pilot scheme to support young people with cancer in their community, rather than in hospital, has been extremely positive and shown that we need to expand this work.

Our young people’s community workers have supported 16 to 24-year-olds to help them

reach their potential and keep life as normal as possible. Find out more about this on page 30.

One young person who took part in the pilot said: “Other than my medical team, my young person’s community worker has played the most important role in helping me beat cancer.”

We’ve also developed more information resources for this age group to help them feel less isolated and more informed about cancer, its treatment and impact on everyday life. Read about these on page 24.

Better by DesignOur Better by Design programme is driving improvements to the way we work so that we can invest more of the money we raise to support children and young people with cancer, and their families.

We have made our internal processes more effective and efficient, improving everything

from the way we work with suppliers to how we manage our finances. In 2012/2013, this work led to a saving of £659,000 of our annual costs.

We will continue this work next year and, by making more improvements to the way we operate as an organisation, plan to reduce our annual costs by a further £341,000.

J D Wetherspoon raises another £1 millionJust eight months after they’d raised their last million, in September 2012 our longest standing corporate supporter, J D Wetherspoon, handed over another huge cheque to CLIC Sargent, highlighting their incredible ongoing customer and staff fundraising efforts.

This took the pub chain’s total raised for our work since 2002 to £6 million. They aim to raise a further million a year for the next two years to support young cancer patients.

“We are delighted to have reached the £6 million milestone in our fundraising efforts for CLIC Sargent,” says Tim Martin, founder and chairman at J D Wetherspoon. “Our staff and customers have supported CLIC Sargent for many years now and look forward to raising even more money in the future.”

Tim Martin, Holly Young (who was supported by CLIC Sargent), Melisha Green-Armytage and Peter Atfield (CLIC Sargent)


Education for children with cancerOur No child with cancer left out report has opened up dialogue amongst policy-makers and others, helping to improve primary school education for children with cancer.

Launched during Childhood Cancer Awareness Month in December 2012, the report highlighted challenges children face in keeping up with school and reintegrating back into education after treatment for cancer.

Its publication led to a debate about the impact of cancer on children’s primary school education in parliament. Kieran and Josh,

two of the children who contributed to the report, attended the debate.

We are now working with the government to improve guidance in England on how children with long-term medical conditions can access education.

Find out more about the impact of the report on page 19.

TV campaign recruits more supportOur first TV fundraising advert, which features a number of children and young people with cancer, has encouraged 880 people to regularly donate and help make our work possible.

From May 2012 the advert ran on channels including ITV3, E4 and MTV and is part of our five-year plan to grow our income. The advert

features the story of Jack who was diagnosed with cancer when he was two.

Jack’s CLIC Sargent Play Specialist helped him overcome his fear of the huge radiotherapy machine and to cope and understand treatment. The advert also focuses on how our Homes from Home help families to stay together.

Providing more easily accessible information for families We launched our new website in September 2012 and are now reaching more people than ever before with easily accessible information about the impact of a cancer diagnosis.

They’re staying on it for longer, downloading more information and are sharing our content on their social networks. They’re also buying more than ever from our online shop which is helping to fund our work with families affected by cancer.

Other useful new features include:

� Instant sign up for a CLIC Sargent event

� Interactive maps and local event listings, helping visitors find what’s happening close to their home

� More information for young people with cancer and their parents, including how to manage finances, work and education.

Santander Charity of the Year

Our 12 month partnership with the bank Santander aims to raise £800,000 which will help to fund our eight Homes from Home across the UK for an entire year.

Santander chose CLIC Sargent as its new Charity of the Year partner for 2013 following a staff vote.

Jonathan Elliott, Senior Community Manager at Santander, says: “CLIC Sargent has a fantastic cause and a great project that we believe will inspire our staff to get fundraising in 2013. We were impressed by the team and hope that, together, we can make a big difference for this great charity.”

Josh and Kieran in Parliament


Our achievements and performance for 2012/2013

Reducing the practical and financial impact of cancer treatment on a child, or young person, and their family

Financial and practical supportFamilies often tell us that they feel like life spirals out of control when their child is diagnosed with cancer. Financial difficulties add to this sense of uncertainty, with travel to attend hospital appointments being just one example of how they have to spend more money.

The time immediately after a young person gets a cancer diagnosis is a particularly difficult financial period for families, with many new costs. That’s why, last year, we said we would improve the speed with which we respond to families’ financial needs so that they get support as soon as their child is diagnosed with cancer.

To do this, we’ve significantly improved our grants service, delivering more than ever before. On average, 98% of grants are issued in five working days, compared to 95% in 2011/2012, and 96% are given within three working days.

5,107 grants were awarded to a value of just over £1 million

This year, we awarded 5,107 grants, an increase of just under 6% compared to 2011/2012. The

total value of the grants was over £1 million and six out of 10 (60%) went to parents of 0 to 15-year-olds, while four out of 10 (40%) were given to 16 to 24-year-olds. This means we have reached 9% more young people with cancer than last year, awarding vital grants to over 2,000.

Our social workers also help parents and young people navigate the complex benefit

systems and liaise with employers and teachers to provide support

with work and education.

In 2013/2014, we will continue to award

grants to families to help with the extra costs associated with a cancer diagnosis. We know that in this tough economic climate, financial

support is a vital lifeline for families

and we will continue to offer our support in

this way. We will also direct families to other organisations that

provide grants and financial support.

Welfare adviceOur telephone welfare advice service dealt with 781 benefit, employment and other enquiries from parents of children with cancer and young people with cancer. These included enquiries about working and child tax credit, disability living allowance, carer’s allowance, as

1.

“I had just bought a house and was then diagnosed with cancer for a second time, so I couldn’t keep on working and covering the mounting costs for bills. I

was really afraid that I wouldn’t be able to keep on top of all

the payments, but CLIC Sargent provided me with a grant to ease

the pressure. That was such a huge relief.” Michael, 24, who was

diagnosed with non-Hodgkin’s lymphoma when he was 20


well as housing and employment rights. This support helped enquirers access an estimated £496,000 in benefit support.

Following a review of this service in 2012/2013, next year we will implement an improved service, increasing access to it from two to five days a week so that more people can benefit from our welfare advice.

Free accommodation close to specialist treatment centresMore than three quarters (77%) of childhood cancer patients under the age of 18 do not live in a UK city which has one of the 18 specialist cancer treatment centres. In fact, our 2010 report, A long way from home, found that families can travel on average 60 miles by road, up to five days a week, to receive treatment.

Our eight Homes from Home allow families to stay close to specialist hospitals when children and young people are having treatment. This means they spend less time travelling to and from hospital, reducing travel costs and being separated for long periods of time. Staying in a Home from Home gives families a sense of normality and a chance to spend time together. Knowing that their parents and siblings are close by is also reassuring for a child or young person who is being treated in hospital.

1,289 families stayed close to their child in one of our Homes from Home

In 2012/2013, 1,289 families stayed close to their child in one of our Homes from Home. They stayed for longer periods of time, an average of 15 days compared to 11 days in 2011/2012. The homes were occupied for 73% of the year, compared to 70% last year.

More than nine out of 10 (92%) parents were extremely satisfied with their stay at one of our Homes from Home

Sam’s House, our Home from Home in Bristol, celebrated its 10th birthday in September 2012 when actors from BBC1 drama Holby City visited staff and families. Since October 2002,

the home has supported around 1,200 families of children and young

people receiving treatment at Bristol Children’s Hospital.

In Oxford, CLIC Court celebrated its 20th anniversary with a party hosted by our Ambassador Lady Helen Taylor. Since opening in 1993, the

home has offered free accommodation to over

1,000 families.

Last year we said we would continue with our Northern Ireland

appeal to raise the funds needed to open two new Homes from Homes in Belfast. We have now raised £1.8 million, allowing us to buy two properties, one for children and the other for young people.

In 2013/14, we will continue to fundraise to reach our Northern Ireland appeal target of £3.7 million. We will open the children’s Home from Home and submit a planning application for the young people’s one. We’ll also invite young people with cancer to take part in design workshops for their home to make sure it reflects their style and needs.

The NHS Trusts in Glasgow and Edinburgh are moving their children’s cancer treatment centres so we have started to plan the relocation of our Homes from Home in these two cities. In 2013/2014, we will start to raise the funds we need to relocate these Homes from Home to ensure we continue to offer a place for families to stay within walking

“CLIC House and Sam’s House gave us some normality when

our world had been turned upside down. We were so

grateful to be able cook, watch TV, relax and chat to other

parents who were going through the same experience.” Ann,

whose daughter Evangeline was treated for Hodgkin’s lymphoma

at Bristol Children’s Hospital

distance of the hospitals. In 2013/2014, we will secure a site for the relocation of our Glasgow Home from Home and continue with plans to relocate the Edinburgh one.

We will also use feedback from children, young people and families that stay at our homes to improve the quality of the service we provide. Next year, we’ll use recommendations from an external health and safety audit, conducted in 2012/2013, to ensure high standards are maintained in all our Homes from Home.

Campaigning and influencing government policyLast year, we said we would research the effects of a cancer diagnosis on the education of younger children and publish our findings in a report. We said we’d use the evidence to influence and improve the support CLIC Sargent, and others, can offer these children and their families.

So, in December 2012, during Childhood Cancer Awareness Month, we published No child with cancer left out. The report looks at the impact of cancer on children of primary school age across the UK. We spoke to around 300 parents and children, as well as CLIC Sargent health and social care professionals and hospital schools. They identified challenges in helping children keep up with their education when they have cancer, and reintegrating into school life when they return.

We found that many children feel left out when they go back to primary school after they have treatment for cancer. More than one in three parents said their child had been bullied or teased because of the effects of treatment, such as losing their hair. Over a third thought

their child did not receive the extra help they needed to keep up with school after their diagnosis and treatment.

In response to the report, Labour MP Mark Tami called a debate in the House of Commons and urged the government to act on some of our key recommendations. Many of these, including the need for more coordinated and flexible educational and emotional support for children with cancer, were backed by Education Minister Elizabeth Truss MP. “Pupils with cancer deserve as good an education as any other pupil and poor health should never mean poor education,” said Truss.

We met with the Department for Education to discuss how new guidance for local

authorities on meeting the educational needs of

children with health issues can join up with the Children and Families Bill. Our aim is to ensure that the needs of young cancer patients in education are met.

We also worked with the minister who leads

on special educational needs (SEN) to further

progress towards a more joined-up approach to alternative education and SEN provision, therefore benefiting young cancer patients. We also started work to influence the Welsh government’s proposal for the reform of SEN in Wales.

In Scotland, 24 MSPs backed a motion supporting the recommendations in our No child with cancer left out report, calling on the Scottish government to ensure children with cancer receive the educational support they need for as long as they need it.

We continued to influence Welsh cancer policy through our involvement in the Wales Cancer Alliance. The network of cancer charities is working in partnership to ensure the Welsh

“CLIC Sargent has really helped me in my work to improve the support for

children and young people with cancer in education. Together we have worked

with ministers to raise the profile of this group of learners in parliament and have secured a number of government commitments to ensure that children and young people with cancer receive

a quality education.” Mark Tami MP


government’s Cancer Delivery Plan meets the needs of the people they support. The plan sets out the Assembly’s vision for cancer health services in the country.

In Northern Ireland, we continued to be involved in the Children’s Disability Strategic Alliance, which brings together organisations across the children’s and disability sector. In partnership, we are influencing new SEN legislation and lobbying for greater inclusion of children and young people in the Northern Ireland Executive’s Physical and Sensory Disability Strategy. We’re also involved in the

Assembly’s all-party groups on cancer, and on children and young people.

In 2013/2014, we will continue to campaign on education and influence government, policy-makers and service delivery across the UK. We will conduct research into the impact of cancer on young people’s education, employment, training and skills. We’ll also publish another report, No teenager with cancer left out, which will examine challenges faced by secondary school-aged pupils with cancer.


“At CLIC Haven you can have a little break and some time

to yourself. It’s wonderful, you feel you are at home, but the hospital is very accessible.” Janet, mum to two-year-old

Cassey who has neuroblastoma

Cassey was diagnosed with neuroblastoma when she was 15 months old. She is now two, lives in Guernsey and is receiving treatment in Southampton. Cassey’s mother Janet tells the family’s story.

“When the doctors told me Cassey had cancer, it did not sink in. They said ‘lesion’, so I hoped it was just a cyst. But when they said it was a ‘large tumour’, I realised how bad it was.

The oncologists decided they needed to shrink the tumour with chemotherapy before they removed it, so Cassey started treatment straight away.

We met our CLIC Sargent Social Worker, Tricia, just after Cassey was diagnosed. She provided us with information about cancer, not just for Cassey, but that helped us explain what was happening to her brothers Kemt, 12, and Clifford, who is 8.

Tricia helped my whole family cope and organised a CLIC Sargent grant to help with the extra expenses while we were looking after Cassey in hospital. She also suggested that we stayed at CLIC Haven, CLIC Sargent’s Home from Home in Southampton. It was just such a relief. When we were facing all the worries about Cassey, we didn’t want to have to be thinking of where we were going to stay.

Invaluable support When you stay at CLIC Haven, you can have a little break and some time to

yourself. It’s wonderful, you feel you are at home, but the hospital is very accessible too. The staff are really accommodating, and it is very clean.

My husband stayed at CLIC Haven with our two boys while I was with Cassey in the hospital, so the family could be together.

All the support we have had from CLIC Sargent has been very helpful to us. To have someone like Tricia, who you can really talk to, was invaluable. We felt at home at CLIC Haven and I do not know what we would have done without them.”

Cassey’s story

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2. Supporting the emotional wellbeing and resilience of children, young people and their families

Emotional supportOur social workers provide practical, emotional, financial and bereavement support to children and young people with cancer and their families, from diagnosis onwards. This helps families cope with some of the worries and difficulties that come with a cancer diagnosis, so they can focus on getting through treatment.

In response to parents’ feedback, we’ve improved how quickly we offer social care support to families. Now, 86% of 0 to 15-year-olds are registered for this kind of support within two weeks of being referred to us, compared to 77% last year, while 80% of young people from 16 to 24 are, compared to 74% last year.

Families often describe life on a hospital ward as very isolating. Our social workers help reduce isolation, increase self-esteem and encourage peer support through workshops and group sessions. In 2012/2013, our social care teams organised 458 workshops and group sessions, such as sibling days, and support groups for parents and grandparents. These were attended by around 4,323 children and young people with cancer, their families and other professionals. Many of the sessions were organised with partner organisations and colleagues in the NHS, including nurses and psychologists.

Next year, we will continue to improve the quality and responsiveness of the social care support we provide for children and young people through rigorous quality assurance processes. We will review the way we deliver this kind of support and look at what changes

may be needed to ensure that our work responds to the needs of children and young people, and their families. In 2013/2014, we will also pilot a survivorship group to help young people at the transition point following treatment.

Bereavement supportAlthough eight in 10 will survive cancer, it is

still the leading cause of death from a single disease among children

and young people in the UK.

The death of a child or young person affects each family differently. Some will only need us to help with practical support, such as helping to arrange and pay for the funeral. Others may need specialist emotional support in the months following the

death of their child.

This year, our social care teams supported families, in hospital or at home, following the death of a child or young person, 825 different times. Our social workers and nurses also worked with schools to help classmates and school communities cope with the loss of a child or young person. They also offered ongoing support through bereavement groups. In 2012/2013 we ran 39 of these groups, which were attended by around 380 people.

We continued our bereavement support training for social workers and bereavement awareness for staff across the organisation. This helps ensure our staff develop understanding and skills which help them work with bereaved partners, parents and carers.

Our plan for 2013/2014 is to continue this level of bereavement support. We know that we could do much more with more resources, and

“Having a CLIC Sargent Social Worker there – someone to talk to or explain things the doctors were

saying – helped a lot. You really can’t think straight and things like tackling benefit forms, which you really need

to do, is an added stress. But she simplified everything for us, making

it easier to deal with.” Natalie, whose six-year-old daughter Faith

was diagnosed with neuroblastoma


once we have the funds in place, we will grow our bereavement support.

Holidays and specialist short breaksThis year, we’ve put recommendations from a 2011/2012 review of our holiday service into practice. We established more targeted holidays for families, such as special bereavement breaks for mothers, and activity breaks for young people. These benefited 389 children, young people and their families.

Around nine in 10 families (89%) who stayed at our holiday home in Scotland, Malcolm Sargent House, told us that without this opportunity, they would not have had the chance of a holiday or break. The house provides a friendly and homely environment where the whole family can stay together. Staff have established close links with the local children’s hospital and arrangements are in place should a family need any medical support.

464 families stayed at Malcolm Sargent House

Over the last year, 464 families have stayed at Malcolm Sargent House – an increase of 20% compared to 2011/2012. Of these, 220 families stayed for the first time.

Malcolm Sargent House allows families to relax and unwind in an environment that is especially catered for their needs. Feedback from families who have stayed at Malcolm Sargent House shows that holidays there can significantly reduce their stress and anxiety levels. At the beginning of the holiday, 88% rated their anxiety levels as ‘medium’ or ‘high’. At the end, 75% said their anxiety levels were ‘low’.

Over 140 families also stayed in our self-catering caravans in Pagham, Exmouth, Fleetwood and Filey. These breaks allow families to spend time together in a different environment.

98% of parents who fed back on their stay at Malcolm Sargent House said the holiday and specialist short break service was excellent or good

In 2013/2014, we plan to further extend the breaks that we offer to families at Malcolm Sargent House by introducing, for example, a break for bereaved fathers and week-long specialist breaks for teenagers.

Information Last year, we said we would continue to review our health and social care information as part of our commitment to the Information Standard quality kitemark. This is a certification scheme for organisations producing evidence-based health and care information for the public. We’ve involved over 130 children, young people, parents and carers in this review process.

We also said we would better meet the information needs of young people with cancer. To do this, we developed a new resource for 16 to 24-year-olds who have just been diagnosed with cancer. Our booklet, Making sense of it all, features essential information, tips and insights and was developed with the help of young people who’ve had cancer. We’ve also produced a medical guide for young people, Cancer and treatment, which explains treatment and side effects. In addition, new online information for young people covers issues such as work and managing finances.

92% of people who answered our 2012 User Feedback Survey said they were happy with the amount of information we provide on cancer and its impact

CLIC Sargent’s holiday home –Malcolm Sargent House


Our information resources won a number of prestigious awards in 2012/2013. Our What now? booklet, distributed in hospitals for parents of children who are diagnosed with cancer, won the British Medical Association’s patient information award for helping people to make decisions about treatment. “This resource is a great example of how to produce patient information,” said a reviewer at the British Medical Association.

Shout Out!, our magazine for children with cancer, which is written with their help, was runner up in the Quality in Care Excellence in Oncology Awards. It came second in the patient experience category. This recognises entries that improve the experiences reported by patients about their treatment and care. The magazine was also shortlisted for the Children & Young People Now Awards.

In 2013/2014, we will develop materials to support children and young people with cancer in primary and secondary education, including resources aimed at teachers, pupils and parents. These will address the needs highlighted in our No child with cancer left out report. We will also be producing information to help young people and parents understand and cope with changes to the welfare system. We will pilot a support pack for newly-diagnosed young people and explore opportunities to introduce interactive elements to our online resources, to help more people access them.



Anas’ story When Anas was four, he was diagnosed with acute lymphoblastic leukaemia. Now nine, he completed his treatment three years ago and is doing well. Anas lives with his mum Khadija, dad Adel, brother Momo and sister Lara in Dundee. Here, Khadija tells the family’s story.

“The first year was the worst – Anas was so ill. He could hardly play or

do anything. You don’t have a choice but to cope with it. I felt devastated but at the same time, I knew I had to be strong. Anas has been remarkably brave through it all and really just got on with things.

We’ve always been close as a family and suddenly, when

Anas was ill, I didn’t have enough time for my other two children.

Everything centred around Anas, his treatment and the hospital. It particularly

affected my son Momo who was struggling to concentrate at school. My husband had to give up his job after a while too.

We really appreciated the support from CLIC Sargent. The grant they gave us helped pay towards train tickets to the treatment centre in Edinburgh. They also gave us free holidays at Malcolm Sargent House, which we wouldn’t have been able to afford at the time.

Breathe again We went to Malcolm Sargent House in Prestwick four times, which was just so lovely. Anas loves the

house. They have everything a child likes to do: toys, activities, a play area, a huge garden, and the beach at the back is just beautiful. He’s totally in his element when he’s there. Even now, if you ask him where he wants to go on holiday, he’ll say Prestwick.

When your child is going through treatment, you can’t really go anywhere with them. You are worried about being too far from your treatment centre, in case they pick up an infection. But going to Malcolm Sargent House, you don’t need to worry, because you know that all the support is there. It’s very peaceful and relaxing.

When he finished his treatment, a new Anas came to life. He’s a very lively boy now, thanks to everybody who supported us. Anas has been such a little fighter through it all, and now that it’s over, I feel like we can breathe again.”


“When your child is going through treatment, you are

worried about being too far from your treatment

centre. But going to Malcolm Sargent House, you don’t

need to worry, because you know that all the support is there. It’s very peaceful

and relaxing.” Khadija


Maximising the time that children and young people can spend safely at home during treatment

Safe care closer to homeWe fund 49 specialist children’s cancer nurses based in both treatment centres and local shared care hospitals across the UK. This year, our nurses supported around 1,442 children and young people with cancer in a variety of ways, including administering chemotherapy and supporting end of life care. They also coordinated their care with local hospitals, schools and community teams to maximise the time children can safely spend at home.

We have supported our nurses in their work by organising two education days, where they shared best practice, and providing information that supports them in their roles.

1,442 children and young people with cancer were supported by our nurses

Of our specialist nurses, our 27 paediatric oncology outreach nurses have provided around 600 children with cancer with specialist nursing support. They work in hospitals and community settings, so they can deliver care to children in their own home and community, where possible.

Parents, young people and children have told us that providing care closer to home is important to them. That’s why we’re driving the implementation of the role of specialist nurse key workers to support children with cancer. They provide information and support parents and carers, local hospitals and schools to help

families feel safe and secure caring for their child away from treatment centres.

This year we recruited eight new key workers. This means we now fund 22 posts in total, completing the roll out of this specialist role in

each of the children’s cancer treatment centres across the UK in a

programme originally funded by Tesco. They have

supported around 1,000 children and made just over 2,100 home visits. This project is being independently evaluated by London South Bank University and their researchers will continue to gather

data in 2013/2014, with results expected in 2015.

In 2013/2014, we will focus on continuing to deliver high

quality nursing services to children with cancer, with a particular emphasis on coordinating care. We aim to embed the specialist nurse key worker role into practice and support this with good quality nurse education. We will also support the London South Bank University evaluation that will describe the impact the role has on supporting children and families by coordinating care between hospital, home and school.

Support in the communityThis year, our social workers conducted over 2,700 home and community visits to children and young people with cancer and their families. These visits are important because they can be more convenient for families and help to maintain normal routines. Parents and carers often feel more relaxed and in control of their own lives when our social workers visit them at home as hospitals can feel unfamiliar and intimidating.

“CLIC Sargent is an integral part of our team and enables us to deliver more of the children’s

care closer to, or at, home. The families also appreciate their

support at the treatment centres. They are a friendly face in a time of great distress and are there to support the children, young people and families throughout

their treatment.” Dr Margaret Peebles,

Consultant Paediatrician, Dundee

3.


We have also piloted and evaluated a community approach to providing support for young people with cancer. This work aims to help meet the gap we know exists in support for young people from 16 to 24.

220 young people were supported by our young people’s community workers

We introduced young people’s community workers in five regions across England, Wales and Scotland to offer support to young people in the community, rather than hospitals, with a particular emphasis on employment, education and training. This year, they supported 220 young people.

An independent evaluation of the pilot was very positive and showed that young people need and prefer to receive support in the community.

Young people told us that community workers helped them to hold onto life outside of cancer, enabling them to keep life as normal as possible. More than half of those who took part in the evaluation said that their community worker had a big impact on: maintaining their education or dealing with employment issues; helping them cope with disruption to friendships and their social life; and giving them confidence to manage their life. Two thirds of young people valued the fact that they could trust their community worker to be there for them more than anyone, scoring them 10 out of 10 for this. They also liked the fact that community workers came to them, meeting outside a hospital setting and on their terms.

In 2013/2014, we will use the recommendations from the evaluation report to shape and develop our support for young people.

Jack was diagnosed with acute lymphoblastic leukaemia in September 2009 after he left secondary school. He finished his treatment in December 2012 and is now studying at college. Jack is 20 and lives in Bourne, Lincolnshire. Here, he shares his story.

“Being diagnosed with cancer as a teenager is one of the hardest times to get the illness. You’ve just begun to taste adult life and then it is all taken away from you. Your friends are off to parties, going on dates or starting jobs, and you’re stuck at home.

I had just finished secondary school, was working with a builder and about to start my bricklaying course when I collapsed at home, was taken to A&E and diagnosed with cancer. I was in denial about what was going to happen. It’s only after the initial treatment stage that the emotions start to come out.

That’s when CLIC Sargent’s young people’s community workers are really important. I am not one for asking for help but Anita, my CLIC Sargent Young People’s Community Worker, could sense when I needed support and found ways to get me to talk. She didn’t barge in, she built my trust over time.

Different approach After my good friend Kevin died of cancer, Anita came to visit me at home to talk to me about how I was coping. When you’re going through a sad time, it’s nice to be around your home comforts and it’s more private and less formal than meeting in the hospital. It makes it easier

to talk. Anita helped me see the positive impact that I’d had on

Kevin’s life. I had told him that you can live your life with cancer or you can let cancer live your life.

She also helped me think about life after cancer. I originally wanted to be a

bricklayer but realised I was more interested in

electrical engineering. Anita encouraged me to pursue what I

most wanted to do. I’m now doing a course in electrical installation and have organised an apprenticeship for the summer.

I think I could take what life throws at me on the chin now. Something like cancer makes you really want to achieve your ambitions.”

Jack’s story


“Anita has been there to make me emotionally better. The

doctors and nurses are there to get you physically better,

but actually looking after your emotional health can be more

of a task.” Jack, 20, who had

acute lymphoblastic leukaemia


Maximising children and young people’s potential by helping them to access education, training and employment opportunities

Employment and educationOur young people’s community workers (see page 30) provide employment and educational support to young people. They have formed close links with colleges and universities to assist young people’s return to education. These professionals also work with young people one-to-one to help build their confidence and self-esteem.

Our social workers also support children and young people to keep up with their education during treatment. This year, they contacted schools and colleges 218 times, helping to lessen the impact on children and young people of missing out on vital parts of their education and feeling left out while they are having treatment.

Work experience Our work experience programme offers young people with cancer one to two week placements with our corporate partners and within CLIC Sargent. These are valuable training opportunities, especially with high youth unemployment rates.

In 2012/2013, we organised work experience placements for 24 young people, double the number we supported last year. Placements took place at companies including the bank HSBC, publishers Harper Collins and the magazine Empire.

Feedback from young people who attended placements has been extremely positive. They improved their self-esteem, gained confidence, new skills and insight into industries of their choice. “It did me so much good getting away from home, having structure in my day and feeling like I had a project I could get my teeth into,” says Naomi, 19, who did a work experience placement at Harper Collins.

In 2013/2014, we want to help more young people access work experience opportunities and increase their prospects of finding work through a CV support scheme and by providing job hunting and interview skills information. We will also pilot a Young Ambassadors Programme which will provide opportunities for young people affected by cancer to gain new skills, increase their confidence and boost their employability.

4.

“Through the Children and Young People’s Advisory

Group, I can share my views about the issues that really

matter to me, and I can meet other young people who have had similar experiences. It’s great to be able to share my ideas and feel like I’m really making a difference to the

way the charity is run.” Harry


Helping children and young people reach their full potentialIn 2012/2013, more than 330 children and young people shared their views and experiences 827 times in over 140 different ways.

They participated in many ways including helping us to recruit staff by taking part in interview panels, telling their stories at Trustee board meetings and fundraising events, sharing their stories with the media and taking part in our research projects. Find out more about some of the ways they got involved on pages 37 and 38.

We successfully restructured our Children and Young People’s Advisory Group, which allows children and young people to have a say in our plans, and welcomed a large number of new members. We also helped children to share

their views through Shout Out! – our magazine for 7 to 13-year-olds with cancer.

In 2013/2014, we will continue to create opportunities for children and young people with cancer to have their say about their cancer, treatment and experiences. This will help them shape and influence the services that CLIC Sargent provides, offer them opportunities for personal development and ensure they get the support they need.

More than 330 children and young people shared their views and experiences 827 times

We also aim to gain external accreditation from the National Youth Agency, a charity that supports youth workers, for the way we involve children and young people in our work. This will show that we are committed to listening to children and young people and their needs.


At the end of her first year of studying law at Nottingham University, Katie was diagnosed with cancer and was unable to return for her second year of studies. Her treatment finished in January 2012 and she went back to university that September.

Katie’s CLIC Sargent Social Worker, Rachel, organised a week’s work experience with Chester-based solicitors Walker Smith Way in April 2012. It became a four month placement, followed by six weeks shadowing a top criminal barrister. Here, Katie shares her story.

“Being diagnosed with cancer meant giving up my whole life as I knew it,” says Katie. “I had worked really hard to get where I was, from growing up on a farm, to going to one of the top universities for law, but it felt like it had all been taken away from me.

My CLIC Sargent Social Worker, Rachel, recognised that I needed her help to become intellectually challenged again, more than I needed emotional support.”

At Walker Smith Way, Katie managed her own clients, including leading a fraud case and attending the coroner’s court during

an investigation into a cause of death.

She organised case notes, reviewed witness statements and prepared papers for solicitors attending court.

Building confidence “The work experience did a huge amount for my confidence,” says Katie. “Being told you can do something by people who are already doing it and at the top of their profession is an amazing thing to hear. It was exactly what I needed at the time.”

During her treatment, Katie spent four months in one room. She had a severe reaction to medication which meant she became completely paralysed. “You lose your dignity and individualism and start to feel yourself stagnating,” says Katie. “Working at Walker Smith Way helped me to regain my confidence and I do think it saved me at a time when others couldn’t help me.”

Katie is now back at university, working towards her exams. “The skills I learnt at Walker Smith Way are invaluable,” she says. “I am using so much of what I was told and observed during my work experience, I am realising now how much I got from them.”

Katie’s story


“When you are young, you feel indestructible and the world is at your feet. It’s a horrible

feeling to have your life put on hold. My CLIC Sargent Social

Worker, Rachel, recognised that I needed her help to become

intellectually challenged again.” Katie, 21, who was diagnosed with

cancer during her first year at university


We listen to children and young peopleLast year over 330 children and young people shared their views and stories to help us raise awareness of childhood cancer.

Here are some highlights

Kieran and Josh attended a parliamentary debate and met MPs to help raise awareness of the impact of cancer on primary school education

60 children took part in our research on the impact of cancer

on their primary school education


75 children helped shape the content of Shout Out! – our magazine for children with cancer

“Having the opportunity to share my story and represent

CLIC Sargent was an honour. I am delighted that the day raised so

much money and I think it’s a great way to enable young people to

participate in events.” Harry, who was

supported by CLIC Sargent and shared

his story at our Sunningdale Golf Club

fundraising event

Over 50 children and young people told their stories to the media

22 young people provided feedback to help develop our information resources for young people


Focus for 2013/2014Our priorities for 2013/2014 draw on our strategic objectives which support our four key aims. We are confident that we will achieve these objectives using our business and operating plans. Next year, we will continue to report our achievements against our key aims, as we have this year.

We will:

Understand and meet the needs of children and young people and their families

� Complete at least one piece of research that improves understanding of what children, young people and families need, and make recommendations for action

� Achieve external accreditation for how we involve children and young people in our work from the National Youth Agency, a charity that supports youth workers

Improve the lives of children and young people with cancer and their families through evidence-based clinical, social, emotional and practical support (including bereavement support)

� Maintain our reach and continue to improve the quality of our support for children and young people with cancer and their families, including: social care for children up to the age of 18, bereavement support, nursing care, financial support and advice, and our Homes from Home and holiday service

� Plan how we can grow our support for young people and survivors in a manageable and sustainable way, using strong evidence with a focus on providing support where and how young people need it


Influence decision-makers at all levels (from school heads to Secretaries of State) so that children and young people can live life to the full

� Continue our campaign around improved access to education, employment and training for children and young people with cancer

� Respond to the policy environment on issues which affect children and young people with cancer, and their families

Increase voluntary income so that we can reach more children and young people with cancer and ensure our financial resilience

� Invest in our fundraising to increase our income by 12%

� Inspire more people to join us in supporting families affected by childhood cancer

Continue to build an effective and efficient organisation, and to work with partners and supporters to deliver greater impact

� Reduce our annual costs by engaging in continuous improvement projects to maximise the funds available to deliver services that support children, young people and families.

Thank you We have the most wonderful staff, volunteers, donors, corporate supporters and patrons. Our achievements are yours because we could not carry out our work without you. Thank you for helping change the future for children and young people with cancer.

Here we profile some of our incredible supporters.

Our corporate partners

“We’ve been struck by how proactive and supportive the CLIC Sargent team have been when it comes to working with us on fundraising, which is a vivid reflection of how driven the charity is in helping young people with cancer live fuller lives.” Georgina O’Donnell, PR Manager, Lidl UK

“CLIC Sargent was the perfect charity partner. We knew, because of the vital work they do in local communities, that our staff and customers would really get behind all the fundraising efforts. We achieved double our target – raising a fabulous £100,000.” James Barnes, CEO, Dobbies Garden Centres Ltd

“Our centenary was nothing short of a triumph in terms of increasing our profile, bringing our talented and loyal teams even closer together, and raising a phenomenal £160,000 for CLIC Sargent.” Rosie Kennar, fourth generation Chairperson at UK holiday park company Hoburne

Classic FM partnership inspires music making

Money raised from Classic FM’s Christmas appeal will fund the first CLIC Sargent week-long music workshops for up to 25 young cancer survivors from 16 to 24-years-old.

Some of the radio station’s six million listeners entered online raffles and bid for prizes donated by celebrities and auctioned live on air, raising £26,000 for our work.

“I had a great time being interviewed for Classic FM and performing my own songs to

be broadcast,” says Georgie, a young person who told her story live on air.

“The Christmas Appeal was a brilliant opportunity to raise awareness of the challenges facing young people with cancer, and the importance of CLIC Sargent’s music projects which I have really benefited from in the past six years.”



Celebrity supporters

CLIC Sargent Patrons act as ambassadors for the charity, helping to introduce us to new supporters and increase awareness of issues surrounding childhood cancer.

We’ve received tremendous support from our patrons and celebrity supporters in 2012/2013. They include: Lady Helen Taylor (CLIC Sargent Ambassador), actor Duncan Pow, journalist and presenter Chris Hollins, ex-Formula 1 team owner Eddie Jordan OBE, boxer Barry McGuigan MBE, TV and radio presenter Gaby Roslin, classical violinist Nicola Benedetti, cellist Julian Lloyd Webber, singer Matt Cardle, former motorcycle racer James Toseland, actresses Michelle Ryan, Joanna Taylor, Patsy Palmer, Natalie Cassidy, Joanna Lumley, Celia Imrie and Charlie Brooks, and Paralympian Jonnie Peacock.

“It was an honour to help CLIC Sargent launch the new ‘Great Mums Get Together’ campaign and encourage mums across the country to have a great time whilst supporting a great cause.” Actress Charlie Brooks

“It was lovely meeting the children on Lion Ward at Great Ormond Street Hospital and watching them enjoy their Christmas presents. It was great to see the difference the charity is making to children and young people with cancer.” Paralympian Jonnie Peacock

“I’ve had so much fun playing around with my look for Wig Wednesday. As a mum, the fact that it’s to help children and young people in the UK with cancer makes it even more worthwhile.” Actress Natalie Cassidy (pictured below)


Singing for support Around 1,500 children from 28 schools performed with X Factor winner Matt Cardle at our Royal Albert Hall Christmas Celebration in December, helping to raise £165,000 for our work.

The evening was particularly important for singer Matt as he was supported by CLIC Sargent when he was diagnosed with a Wilms’ tumour at 18 months.

“I was lucky enough to make a full recovery with the charity’s help and I am confident that the money raised through the Christmas Celebration will help improve the lives of other young cancer patients and their families.” Matt Cardle (pictured above)

Individual supporters

The number of people who donate to CLIC Sargent every month has grown by over 20% during the past year. In 2012/2013, 25,000 people gave £2 million to fund our work supporting families affected by childhood cancer. And more people than ever before generously pledged to remember us in their Will.

“Our granddaughter Holly got leukaemia when she was two and a half years old. It was an awful time for the family but CLIC Sargent was so supportive. She

is a lovely 10-year-old now and I have chosen to support CLIC Sargent with a gift in my Will.” Pauline, who donates

to CLIC Sargent every month and has pledged a gift in her Will

Remembering EmilyMatt Loughrey cycled across the US in memory of his 22-year-old daughter Emily who died of cancer and to raise money for our work.

He took 20 days to cycle from San Diego to Florida. “When I’m riding and I feel pain, I think of what Emily went through and that inspires me to keep going,” says Matt. “There’s no excuse to give up.”

Matt also cycled from Land’s End to John O’Groats and Chatham to Gibraltar in memory of Emily. So far, Matt and his wife Caroline have raised

over £85,000 for CLIC Sargent.

Great Mums Get TogetherThousands of mums, nursery schools, child-minders and companies across the UK took part in the first Great Mums Get Together, raising £140,000 for children and young people with cancer.

The fundraising event encouraged mums to get together over tea and cake to raise funds for CLIC Sargent. It was launched by EastEnders actress, Charlie Brooks, and ran from Mother’s day on Sunday 10 March until Sunday 17 March.

We reached over 1.4 million people with messages about the event through social media.

Tetley Tea helped make this happen, promoting our Twitter Party, a virtual gathering on the social media platform. Children’s shoe shop Start-Rite also supported the event, helping us raise its profile and funds.

Raising a bucket for CLIC SargentLiz Bow and thousands of supporters around the UK helped raise nearly £200,000 for our work by taking part in our 2012 Big Bucket Collection during December’s Childhood Cancer Awareness Month.

Along with her trusty bucketeers, Liz collected at Sainsbury’s in Nairn, Scotland, raising over £2,300 in just two days. They packed shoppers’ bags, organised local choirs to sing at the store and spoke to the people of Nairn about the work CLIC Sargent does.

Supporting our Northern Ireland Appeal

“We wanted to do something in memory of Amy and to help raise funds for a very important charity and the Northern Ireland Homes from Home Appeal. Amy was very precious to us and we are overwhelmed

with the support we have received. We all went ‘pink’ for a month and raised over £10,000.” Mark, whose daughter Amy died of

cancer when she was 19



Thank you!We can’t thank everyone who has supported

us over the last year here – but we can thank many of you on our website. Please

visit www.clicsargent.org.uk/thanks

Honour was diagnosed with a rare ovarian childhood cancer when she was 12. She’s now 14, has been clear of cancer for over a year and lives with her mum, Rachel, and two younger brothers, Elliott and Abraham, in Millisle, Northern Ireland. Rachel shares her daughter’s story.

“It wasn’t like Honor to be sick. When she developed a sore throat and temperature, we took her to the GP who suggested it could be appendicitis. The Royal Hospital in Belfast ran tests and confirmed that it was cancer.

The news floored the entire family. It was all I thought about, morning, noon and night. I avoided going out of the house because I found people’s negative reactions the hardest to deal with. I also struggled with simple things, like making dinner for the boys.

Elliott made himself so scared that he had nightmares and Abraham didn’t want to go to school. As a mum you get so focused on helping the child who is sick, the others can feel a little left out.

Honour took it in her stride. She lost her hair so I expected it to affect her badly as she is image conscious like most teenagers, but she has dealt with it all so well.

A huge difference Our first contact with CLIC Sargent was through our social worker Bridget. She explained

everything to me and pointed us in the direction of the help that we could get. She filled out all of the forms and helped us get a financial grant from the charity which made a huge difference.

It helped with everyday things like paying for our food bill which trebled because Honour had cravings from her steroid treatment. This helped as at the time I was facing a lot of extra costs like paying for taxis to the hospital, which cost up to £60 a day.

It’s good to know that CLIC Sargent is there and that we have options for help.”

Honour’s story

“There were times when I was in a complete panic. Things would

be totally out of perspective, and I’d ring Bridget, my CLIC Sargent

Social Worker. She would listen and talk about the reality of what I was facing which was very calming and

reassuring. It can do wonders just to have someone to listen to you.” Rachel



Structure, governance and managementCLIC Sargent Cancer Care for Children is a registered charity in England and Wales (No. 1107328) and in Scotland (SC039857) and a company (No. 05273638) limited by member guarantees. Our registered office is as shown on page 71 and we are governed by revised Articles of Association adopted in June 2012.

Our Trustees, patrons and senior executives of CLIC Sargent are listed on pages 70-71. Our principal place of business and the external advisers of CLIC Sargent are set out on page 71.

The Board

The Board of Trustees (‘the Board’) is responsible for the overall governance of CLIC Sargent and meets at least four times each year. The number of Trustees cannot be fewer than six or more than 14. The Governance Committee is responsible for the selection and recruitment of new Trustees, using a transparent recruitment process with input from young cancer survivors. All appointments are approved by the full Board. A skills audit is used to identify the skills, experience, characteristics and backgrounds that are needed to provide high quality effective governance.

Trustees are initially appointed to a term of office of three year’s duration and may be re-appointed by the Board for a further term of office. A Trustee who has served for two consecutive terms of office shall remain out of office for at least one year unless the Board resolves by a two thirds majority vote. The chair of the Board shall be eligible to be re-appointed for a third term as a Trustee. The Trustees may also determine that the term of office of the presiding chair of the Board be extended for up to two years, save that if the term is so extended and he or she then ceases to be the chair, he or she would automatically cease to be a Trustee.

Strategic management

The Board is responsible for setting an appropriate strategy for the charity. It also ensures that relevant performance measures are in place. The Trustee Board has delegated consideration of specific issues to three sub-committees, who then make recommendations to the Board. The Board receives regular reports on all aspects of the charity’s work. The terms of reference for these committees are summarised below.

Resources CommitteeThe Resources Committee is a sub-committee of the Board, with responsibility for assisting the Board to discharge its duties in the following areas:

� Financial and operational performance and procedures

� Property transactions

� Annual plans and budgets

� Investments

� Reserves.

Power to act for the charity on financial matters has been delegated to this committee by the Board.


Audit CommitteeThe Audit Committee is a sub-committee of the Board with the responsibility for monitoring and reviewing:

� The policies and processes for the identification, assessment and management of risk, including financial control

� The charity’s accounts to assess the integrity of financial reporting

� The scope, results and effectiveness of external and internal audit

� The independence of the external auditors, their range of non-audit services and fees.

Governance CommitteeThe Governance Committee is a sub-committee of the Board with responsibility for:

� Ensuring that the Board governance structure of CLIC Sargent is fit for purpose

� Monitoring and reviewing the composition of the Board of Trustees to ensure that the Board has the appropriate blend of skills and experience

� Leading the process of identifying and recruiting new Trustees

� Taking responsibility for Trustee induction, support and development, including ensuring that an effective performance appraisal programme is in place

� Reviewing staff and volunteer governance issues and where necessary making appropriate recommendations to the Board.

Chief ExecutiveAuthority to conduct CLIC Sargent’s day-to-day activities is delegated to the Chief Executive, who is responsible for ensuring that the agreed strategy and policies are carried out. A Senior Management Team reports to the Chief Executive and meets fortnightly.

Risk management

The Audit Committee has delegated authority from the Board to ensure that an active risk management process is in place and forms part of CLIC Sargent’s ongoing organisational activity. The enterprise risk management framework has been rolled out across the charity and is being used at all levels of management to identify risks and respond appropriately. This has continued to enable the Trustees to identify and manage the key risks facing the charity. The principal risk facing the charity is the uncertain external economic environment and the impact this has on our fundraising income received and therefore our ability to deliver services. The Trustees confirm that they have identified and fully understand the risks to which the charity is subject and that systems are in place to manage these risks.


Financial review and results for the yearThe Consolidated Statement of Financial Activities (SOFA) set out on page 55, shows the financial results for CLIC Sargent and its wholly owned trading subsidiary: CLIC Sargent Promotions Limited.

Despite the economic climate and a 25% decrease in legacy income, strong backing continued to be received from our donors and supporters. £22.26 million was raised in the year, approximately £1 million more than in the previous year. Our Northern Ireland capital appeal and continued investment in fundraising have been key contributors to this increase in income.

To improve resilience, so that we can continue generating sustainable income to fund service provision, we have continued to focus on long term financial planning underpinned by increased investment in individual giving as a key part of our fundraising strategy.

Our reserves at the start of the year allowed us to plan for a deficit and total resources expended increased by 3% to £23.25 million. The overall deficit was £989,000, due mainly to the planned utilisation of restricted funds received in the previous year. As a consequence, total funds restricted for specific purposes decreased by £962,000 to £3 million, with £4.4 million of restricted funds being applied to charitable activities during the year. The restricted funds balance carried forward includes £553,000 that has already been spent on the acquisition and beginning of construction work on our two Homes from Home in Northern Ireland. This balance will be retained in restricted funds as a capital fund and expended over the useful lives of the properties.

Unrestricted reserves decreased by £211,000 to £12.93 million. The result was largely attributable to the downward revaluation of

£177,000 on our shops and offices, which were required to be revalued by a professional chartered surveyor in line with our accounting policy in note 1g. The remainder of the deficit on unrestricted reserves was due to the planned use of designated funds and free reserves increased to £4.3 million at the year end.

As a result of the deficit, total funds at the year-end decreased to £15.92 million.

The trading subsidiary had a turnover of £397,000 and net profit of £68,000, all of which was paid as Gift Aid to the charity.

ReservesFree reserves comprise the total reserves available to the charity, less those reserves whose uses are restricted or else designated for specific purposes.

Each year the Trustees review the policy for maintaining free reserves, taking into consideration the major risks faced by the charity, their likely impact on income and planned expenditure, and an assessment of the ways to mitigate such risks. As a result of this review the Trustees agreed a policy that would ensure the safeguarding of charitable commitments and the funding of operational expenditure, during a period of significant downturn. The reserves would also provide working capital and build a strategic fund for developments. The Trustees felt that in order to meet the objectives of this policy the charity should hold free reserves of between £3.5 million to £5 million. Free reserves at 31 March 2013 amounted to £4.34 million, an increase of £600,000 over the prior year. Having reviewed this position the Trustees consider that the level of reserves is acceptable and note that there are £3 million of restricted reserves available to fund ongoing service


delivery over the next two years. The Trustees continue to consider the balance of risk between financial resilience and investment in the development of activities.

Going concernThe charity’s financial position and performance has been outlined in the financial review. The Trustees have assessed projected future income, expenditure, and cash flows over the period to September 2014 and analysed the charity’s reserves position and liquid assets and its ability to withstand a material decline in incoming resources. Consideration has been given to the stability, predictability and diversity of various income streams in making this assessment.

The Trustees have concluded that there is a reasonable expectation that CLIC Sargent and its wholly-owned trading subsidiary CLIC Sargent Promotions Limited have adequate resources to continue activities for the foreseeable future. Accordingly, they continue to adopt the going concern basis in preparing the accounts.

InvestmentsThe Resources Committee is responsible for overseeing the overall investment strategy and for the oversight of its implementation.

The Trustees have continued to adopt a conservative investment policy that seeks first to protect the reserves of the charity, and second, to achieve an appropriate return. During 2012/2013 the charity continued to hold liquid assets due to the prevailing market conditions.

Employees and volunteersEmployeesThroughout 2012/2013, our priority has been to ensure our employees were kept informed about the direction of the charity and progress.

Employees are kept informed about day to-day news and events, and information is provided on a regular basis through staff conferences, meetings, briefings and the CLIC Sargent Intranet. All employees are encouraged to give their views about any issue within the charity, including input at the staff conference, and there is a formal opportunity for staff consultation through the Staff Forum. We are committed to providing equal opportunities in everything we do, and we have a range of policies to support this – including a Carer’s Policy and a Dignity at Work Policy. We are also committed to the professional and personal development of all of our staff through learning and development opportunities, supervision and appraisal. We have been able to continue

our personal development commitment to our staff in a cost-effective manner by using the resources of many of our corporate supporters, including Tesco, J D Wetherspoon, Santander, Dell and Zurich Community Trust, to deliver a wide range of face-to-face and e-learning opportunities. We are most grateful to our supporters for these opportunities.

VolunteersCLIC Sargent relies heavily on the support of volunteers who give their time and commitment to helping us in our work with children and young people with cancer. There are over 3,000 volunteers working throughout the UK in a wide range of roles. Hundreds of these volunteers work in our shops and in local fundraising committees organising a wide range of events. We also have a number of volunteers who work in our Homes from Home and in our Malcolm Sargent House


holiday home. Our patrons (listed on page 71) provide invaluable support, giving their time and energy at fundraising events, hospital visits and a range of other activities. We have a number of young people and parent/carer support groups in which individuals volunteer to support others. Our User Participation Manager has developed a participation strategy, and children and young people have joined our Children and Young People’s Advisory Group to advise the CLIC Sargent Trustees and management team on key issues. We have implemented a successful internship programme, and a work experience and volunteering programme for children and young people with cancer, with opportunities both within the charity and with our corporate and other partners.

PensionsCLIC Sargent operates defined contribution pension schemes for our employees.

Disclosure of information to auditorsWith regard to the preparation of this Annual Report and Accounts:

� As far as each Trustee is aware, there is no relevant audit information of which the charity’s auditors are unaware

� Each Trustee has taken all of the steps that a Trustee might reasonably be expected to have taken to be aware of relevant audit information and to establish that the charity’s auditors are aware of that information.

Statement of Trustees’ responsibilities for the accounts and corporate governanceThe Trustees are responsible for preparing the Trustees’ Report and the financial statements in accordance with applicable law and regulations. Company and charity law requires the Trustees to prepare financial statements for each financial year in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards) and applicable law.

Under company and charity law the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and the group, and of the group’s net incoming/outgoing resources for that period. In preparing these accounts, the Trustees are required to:

� Select suitable accounting policies and then apply them consistently

� Observe the methods and principles of the Charities SORP

� Make judgements and estimates that are reasonable and prudent

� State whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements

� Prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity and the group will continue to operate.


The Trustees are responsible for keeping proper accounting records that are sufficient to show and explain the transactions of the charity and the group, and disclose with reasonable accuracy at any time the financial position of the charity and the group and enable them to ensure that the accounts comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and the group and for taking reasonable steps for the prevention and detection of fraud and other irregularities.

The Trustees have overall responsibility for ensuring that the charity has appropriate systems and controls, financial and otherwise, to provide reasonable assurance that:

� The charity is operating efficiently and effectively

� Proper records are maintained and financial information used within the charity, or for publication, is reliable

� The charity complies with relevant laws and regulations.

Internal controls over all forms of commitment and expenditure continue to be refined to improve efficiency. Processes are in place to ensure that performance is monitored and that appropriate management information is prepared and reviewed regularly by both the Senior Management Team and the Board of Trustees. The systems of internal control are designed to provide reasonable, but not absolute, assurance against material misstatement or loss.

They include:

� A strategic plan and annual budget approved by the Trustees

� Regular consideration by the Trustees of financial results, variances from budgets, non-financial performance indicators and benchmarking reviews

� Delegation of day-to-day management authority and segregation of duties

� Identification and management of risks.

This report was approved by the Trustees and signed on their behalf by:

Daphne Pullen OBE Chair

12 September 2013


Independent auditor’s report to the members of CLIC Sargent Cancer Care for Children We have audited the financial statements of CLIC Sargent Cancer Care for Children for the year ended 31 March 2013 which comprise the Consolidated Statement of Financial Activities, the group and charity Balance Sheets, the Consolidated Cash Flow Statement and the related notes numbered 1 to 23.

The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

This report is made solely to the charitable group’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006 and to the charitable company’s Trustees, as a body, in accordance with section 44(1c) of the Charities and Trustee Investment (Scotland) Act 2005. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Respective responsibilities of Trustees and auditorAs explained more fully in the statement of Trustees’ responsibilities, the Trustees (who are also the directors of the charitable

company for the purpose of company law) are responsible for the preparation of the accounts and for being satisfied that they give a true and fair view.

We have been appointed as auditor under section 44(1c) of the Charities and Trustee Investment (Scotland) Act 2005 and under the Companies Act 2006 and report in accordance with regulations made under those Acts.

Our responsibility is to audit and express an opinion on the accounts in accordance with applicable law and International Standards on Auditing (UK and Ireland). Those standards require us to comply with the Auditing Practices Board’s Ethical Standards for Auditors.

Scope of the audit of the accountsAn audit involves obtaining evidence about the amounts and disclosures in the financial statements sufficient to give reasonable assurance that the financial statements are free from material misstatement, whether caused by fraud or error. This includes an assessment of: whether the accounting policies are appropriate to the company’s circumstances and have been consistently applied and adequately disclosed; the reasonableness of significant accounting estimates made by the Trustees/directors; and the overall presentation of the accounts.

In addition, we read all the financial and non-financial information in the Trustees’ report and any other surrounding information to identify material inconsistencies with the audited


financial statements. If we become aware of any apparent material misstatements or inconsistencies we consider the implications for our report.

Opinion on financial statementsIn our opinion the financial statements:

� Give a true and fair view of the state of the group’s and the charitable company’s affairs as at 31 March 2013 and of the group’s incoming resources and application of resources, including its income and expenditure, for the year then ended

� Have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice

� Have been prepared in accordance with the requirements of the Companies Act 2006, the Charities and Trustee Investment (Scotland) Act 2005 and Regulation 8 of the Charities Accounts (Scotland) Regulations 2006.

Opinion on other matter prescribed by the Companies Act 2006In our opinion the information given in the Trustees’ Report for the financial year for which the financial statements are prepared is consistent with the financial statements.

Matters on which we are required to report by exceptionWe have nothing to report in respect of the following matters where the Companies Act 2006 or the Charities Accounts (Scotland) Regulations 2006 (as amended) requires us to report to you if, in our opinion:

� The parent charitable company has not kept adequate accounting records;

� The parent charitable company accounts are not in agreement with the accounting records and returns;

� Certain disclosures of Trustees’ remuneration specified by law are not made; and

� We have not received all the information and explanations we require for our audit.

Guy Biggin Senior Statutory Auditor

For and on behalf of Crowe Clark Whitehill LLP Statutory Auditor Carrick House Lypiatt Road Cheltenham Gloucestershire GL50 2QJ

23 September 2013


Consolidated statement of financial activities(Incorporating an income and expenditure account) For the year ending 31 March 2013

NotesUnrestricted

funds Restricted

funds 2013 2012

£’000 £’000 £’000 £’000

Incoming resourcesGenerated funds:

Voluntary income 2Donations and other voluntary income 13,514 3,065 16,579 14,661Legacies 2,333 297 2,630 3,523

Activities for generating fundsShop and trading activities 2,607 – 2,607 2,882

Investment and other income 3 368 77 445 174

Total incoming resources 18,822 3,439 22,261 21,240

Resources expendedCost of generating funds:

Fundraising costs 2 7,554 383 7,937 7,652Shop and trading activities 2,453 – 2,453 2,746

10,007 383 10,390 10,398

Net income available for charitable activities 8,815 3,056 11,871 10,842

Charitable activities:Reducing the practical and financial impact of cancer treatment

3,426 1,071 4,497 3,915

Supporting emotional wellbeing and resilience 1,771 705 2,476 2,249Maximising the time spent safely at home during treatment 2,149 2,078 4,227 4,445

Enabling access to education, training and employment 1,266 164 1,430 1,254

Total direct charitable expenditure 8,612 4,018 12,630 11,863

Governance costs 230 – 230 222

Total resources expended 5 18,849 4,401 23,250 22,483

Net outgoing resources before other recognised gains and losses, being net expenditure

4 (27) (962) (989) (1,243)

Unrealised loss on investment assets (7) – (7) (26)

Losses on revaluation of fixed assets 9 (177) – (177) –

Net movement in funds (211) (962) (1,173) (1,269)

Balances brought forward 13,139 3,957 17,096 18,365

Fund balances carried forward 12,928 2,995 15,923 17,096

All amounts shown above relate to continuing operations. The notes on pages 58 to 69 form part of these financial statements.


Balance sheetsAs at 31 March 2013 Company number: 05273638

Group Charity

Notes 2013 2012 2013 2012

£’000 £’000 £’000 £’000Fixed assetsTangible fixed assets 9 8,598 8,504 8,598 8,504Investments 10 – – 100 100

8,598 8,504 8,698 8,604

Current assetsInvestments 10 15 111 15 111Stock 11 64 92 – –Debtors 12 2,609 2,198 2,611 2,338Cash at bank and short-term deposits 7,765 9,487 7,722 9,333

10,453 11,888 10,348 11,782

CreditorsAmounts falling due within one year 13 (2,909) (3,065) (2,904) (3,059)

Net current assets 7,544 8,823 7,444 8,723

CreditorsAmounts falling due after one year 14 (219) (231) (219) (231)

Net assets 15 15,923 17,096 15,923 17,096

FundsRestricted funds 16 2,995 3,957 2,995 3,957

Unrestricted fundsFree reserves 18 4,335 3,736 4,335 3,736Designated funds 18 8,300 8,933 8,300 8,933Revaluation reserve 18 293 470 293 470

Total funds 15,923 17,096 15,923 17,096

The notes on pages 58 to 69 form part of these financial statements. These financial statements were approved by the Board of Trustees and authorised for issue on 12 September 2013.

Daphne Pullen OBE Chair

Graham Clarke MBA, FCMA, CGMA Treasurer


Consolidated cashflow statementFor the year ending 31 March 2013

Notes 2013 2012

£’000 £’000 £’000 £’000

Net cash (outflow)/inflow from operating activities 21 (1,474) 1,959

Return on investments and servicing of financeInterest and other income received 226 174

Capital expenditure and financial investmentPurchase of properties and construction work 9 (553) (64)

Purchase of other tangible fixed assets 9 (288) (596)

Sales proceeds from investment properties 10 90 –

Sales proceeds from tangible fixed assets 277 7

Cash (outflow) for capital expenditure and financial investment

(474) (653)

Net cash (outflow)/inflow before financing 22 (1,722) 1,480

Increase/(Decrease) in cash (1,722) 1,480

The notes on pages 58 to 69 form part of these financial statements.


Notes to the accountsFor the year ending 31 March 2013

1. Accounting policies

The principal accounting policies, all of which have been applied consistently throughout the year, are set out below:

(a) Basis of accountingThe accounts have been prepared under the historical cost convention, with the exception of investments and certain properties which are included at market value. The accounts have been prepared in accordance with the Companies Act 2006, the Statement of Recommended Practice (SORP), “Accounting and Reporting by Charities”, published in October 2005 and applicable accounting standards (UK GAAP). After making enquiries, the Trustees have a reasonable expectation that the charity has adequate resources to continue its activities for the foreseeable future. Accordingly, they continue to adopt the going concern basis in preparing the accounts as outlined in the Trustees’ Report on page 50.

The group statement of financial activities (SOFA) and balance sheet consolidate the accounts of the charity and its subsidiary undertaking. The results of the subsidiary are consolidated on a line by line basis.

The charity has availed itself of Paragraph 3 (3) of Schedule 4 of the Companies Act and adapted the Companies Act formats to reflect the special nature of the charity’s activities. No separate SOFA has been presented for the charity alone as permitted by Section 408 of the Companies Act 2006 and paragraph 397 of the SORP. The charity’s incoming resources were £21.93 million (2012: £20.88 million) and resources expended were £22.92 million (2012: £22.16 million) resulting in a deficit of £990,000 before other recognised gains and losses (2012: deficit of £1.28 million).

(b) Company statusCLIC Sargent Cancer Care for Children is a company limited by guarantee. The members of the company are the Trustees. In the event of the charity being wound up, the liability in respect of the guarantee is limited to £1 per member of the charity.

(c) TaxationThe company, which is a registered charity, is not liable to corporation tax.

(d) FundsRestricted funds are funds on which donors have imposed specific restrictions or which have been raised for particular purposes. The aim and use of each restricted fund is set out in the notes to the accounts.

Designated funds represent unrestricted funds that have been set aside by the Trustees for particular purposes. The aim and use of each designated fund is set out in the notes to the accounts.

Free reserves are available for use at the discretion of the Trustees in pursuit of the general objectives of the charity.

Investment income and gains are allocated to the appropriate fund.

(e) Incoming resourcesAll incoming resources are included in the accounts when the charity is legally entitled to the income and the amount can be quantified with reasonable accuracy. For legacies, entitlement occurs when the charity has been formally notified of an impending distribution and there is reasonable assurance of the value. Income relating to events is recognised in the period in which the event occurs.

The charity benefits from gifts in kind in the form of volunteer time and unclaimed out of pocket expenses – these are not recognised in the accounts. In addition many individuals, companies and organisations provide facilities, equipment and services such as advertising free of charge. The charity recognises, where possible, the value of these benefits in the accounts at fair market value. Items donated for resale are included in shop income when sold and no value is placed on stock at the year end.


Notes to the accounts for the year ending 31 March 2013 (continued)

1. Accounting policies (continued)

(f) Resources expendedAll expenditure is accounted for on an accruals basis and has been classified to expenditure categories on a direct basis where appropriate or allocated in line with managerial and budgetary responsibilities using several criteria, which include headcount, time and space costs.

Cost of generating funds comprise the salaries, direct expenditure and overhead costs incurred in carrying out fundraising, including events, the cost of trading and running the charity’s shops and the costs attributable to managing investments and raising investment income.

CLIC Sargent care grants are available to children, young people and their families who meet the eligibility criteria for registration with the charity. The need for financial support must be related to the child’s illness and to support additional expenses incurred. CLIC Sargent does not pay costs of treatment, medical equipment, therapies or school fees. Grants payable are charged in the year when the offer is conveyed to the recipient except in those cases where the offer is conditional, such grants being recognised as expenditure when the conditions attached are fulfilled.

Support costs are those costs incurred directly in support of expenditure on the objects of the charity and include the staffing and associated costs of administering and managing grants and the operational management of the charity. Costs have been allocated across each cost category on the basis of head count and activity.

Governance costs are those incurred in the governance of the charity in compliance with constitutional and statutory requirements.

(g) Tangible fixed assets, depreciation and revaluationDepreciation is provided on all tangible fixed assets using a straight line basis over their expected useful economic lives as follows:

Freehold land nil

Freehold buildings 50 years

Furniture and fittings 3–5 years

Caravans 5 years

Motor vehicles 4 years

Assets under construction represent those assets that are undergoing improvements prior to being made operational. During this phase no depreciation is charged.

Individual items costing £2,000 or less are not capitalised and any net book values below this threshold are considered to be immaterial to these accounts.

Freehold properties are split into two sub-classes:

Charitable service propertiesThese properties are stated at historical cost.

Shops and officesThese properties were revalued at existing use value during February 2013 for the 2013 accounts. The valuation was undertaken by professional chartered surveyors and property consultants. The value of the properties is kept under review by the Trustees on an annual basis and a professional valuation is undertaken every five years, as required by FRS 15 Tangible Fixed Assets.

All fixtures and fittings are depreciated in accordance with the above policy with the exception of leasehold capital purchases. These items are depreciated over the shorter of the lifetime of the leasehold and 3-5 years.

Fixed assets are subject to an annual review for impairment where there is an indication of a reduction in their carrying value. Any significant impairment is recognised in the consolidated Statement of Financial Activities in the year in which it occurs.

(h) InvestmentsAll the charity’s investments are made in accordance with the powers contained within the Memorandum and Articles of Association. Investments are stated at market value. Realised and unrealised gains and losses are shown separately in the appropriate section of the accounts. The historical cost of investments is shown in the notes to the accounts.

Where it is the intention to realise an investment asset without reinvestment of the sale proceeds, the investment asset is reclassified as a current asset investment.

(i) Research expenditureAll research expenditure is included in the accounts for the year in which the commitment is incurred.

(j) StockStock consists of purchased goods for resale and is valued at the lower of cost and net realisable value. Items donated for resale or distribution are not included in the accounts until they are distributed or sold.



1. Accounting policies (continued)

(k) Pension costsThe charity contributes to defined contribution personal pension schemes on behalf of its employees. The amount charged in the statement of financial activities represents the contributions payable to the schemes in respect of the current accounting period.

The organisation has an obligation to provide three unfunded pensions. This has been included under creditors falling due after one year. Full FRS17 disclosure has not been reflected in the accounts as the Trustees consider this to be immaterial against the costs of undertaking a full actuarial valuation. Each year the Trustees will seek a market quotation to provide these pensions.

(l) Finance and operating leasesRentals applicable to operating leases are charged to the accounts on a straight line basis over the lease term.

Assets purchased under finance leases are capitalised as fixed assets.

Obligations relating to these agreements are included under creditors in the balance sheet. The difference between the capitalised costs and the total obligation under the leases represents the finance charges. Finance charges are recognised in the accounts at a constant rate over the lease term.

(m) DilapidationsA Dilapidations Liability Assessment is commissioned 12 months in advance of the proposed termination of a lease and exit from the property to identify the appropriate provision to be recognised in the accounts.



2. Net fundraising income

During the year total donations and other voluntary income (excluding legacies) increased by £1.92 million to £16.58 million (2012: £14.66 million). This increase was in part attributable to the Northern Ireland capital appeal. There were increases in donations made through corporates, trusts, regular giving, runs and challenge events and major events and donors.

The Statement of Financial Activities includes donated services and facilities of £181,000 (2012: £70,000). £155,000 relates to an estimate of the market value of rent for properties provided to the charity for free. Other donated services relate to legal and professional advice received.

Net fundraising income for the year is as follows:

Unrestricted Restricted 2013 2012

£’000 £’000 £’000 £’000

Donations and other voluntary income 13,514 3,065 16,579 14,661Legacies 2,333 297 2,630 3,523

15,847 3,362 19,209 18,184Less: Fundraising costs 7,554 383 7,937 7,652

Net fundraising Income 8,293 2,979 11,272 10,532

3. Investment and other income

2013 2012

£’000 £’000

Interest received 139 61

Income from listed investments – UK 3 8

Rental income 1 3

Profit on the sale of fixed assets 219 –

Other income 83 102

445 174

4. Net outgoing resources

2013 2012

£’000 £’000

This is stated after charging:

Depreciation 495 405

Loss on the disposal of fixed assets 16 –

Payments under operating leases:

land and buildings 724 906

other – –

Auditor’s remuneration:

audit 25 25

audit: under accrual on previous year’s fee 3 –

other services 2 –

Trustees’ liability insurance 8 9



5. Analysis of total resources expended

Staff costsSupport

costs Other Depreciation 2013 2012*

£’000 £’000 £’000 £’000 £’000 £’000

Cost of generating funds:Fundraising costs 3,393 427 4,037 80 7,937 7,652Shop and trading activities 1,118 221 1,046 68 2,453 2,746

4,511 648 5,083 148 10,390 10,398

Charitable expenditure:Reducing the practical and financial impact of cancer treatment

2,267 352 1,718 160 4,497 3,915

Supporting emotional wellbeing and resilience 1,598 189 620 69 2,476 2,249Maximising the time spent safely at home during treatment 3,608 251 277 91 4,227 4,445Enabling access to education, training and employment 1,109 125 172 24 1,430 1,254

8,582 917 2,787 344 12,630 11,863

Governance costs 165 16 46 3 230 222

Total resources expended 13,258 1,581 7,916 495 23,250 22,483

* Resources expended for 2012 have been reanalysed to fully represent staff time spent on delivering our charitable activities. Costs were also identified that were split between costs of generating funds and our charitable activities.

6. Analysis of support costs

Support costsOffice

services Corporate Finance IT HR Total 2013 Total 2012

£’000 £’000 £’000 £’000 £’000 £’000 £’000

Cost of generating funds:Fundraising costs 204 15 59 107 42 427 447Shop and trading activities 106 7 31 56 21 221 297

310 22 90 163 63 648 744

Charitable expenditure:Reducing the practical and financial impact of cancer treatment

168 12 49 89 34 352 435

Supporting emotional wellbeing and resilience 90 6 26 48 19 189 193Maximising the time spent safely at home during treatment

120 9 35 63 24 251 317

Enabling access to education, training and employment 60 4 17 31 13 125 91

438 31 127 231 90 917 1,036

Governance costs 8 1 2 4 1 16 27

Total support costs 756 54 219 398 154 1,581 1,807



7. Employees

Employed Funded* Total 2013 Total 2012

£’000 £’000 £’000 £’000

Staff costs consists of:Wages and salaries 9,593 1,714 11,307 10,784Social security costs 897 203 1,100 1,004Pension costs 712 139 851 723

11,202 2,056 13,258 12,511

The number of employees on full time equivalent basis at year end was made up as follows:

2013 2012

No. No.

Fundraising 96 92Direct service provision – employed 135 123 Direct service provision – funded * 70 75Corporate support services 65 60Shops and trading 52 53Governance 3 3

421 406

* Funded employees represent staff in CLIC Sargent care teams who are funded by CLIC Sargent but are employed by local authorities or by health trusts. The total cost of funded posts in 2011/2012 was £2.04 million.

2013 2012

No. No.

Higher paid employeesEmployees receiving annual gross salaries in the following range:£60,001 to £70,000 2 2£70,001 to £80,000 1 2£80,001 to £90,000 2 1£90,001 to £100,000 1 1

All of the above employees are in a defined contribution pension scheme at a cost to the charity of £38,545 (2012: 6 employees, £38,013).

Trustees’ remuneration and expensesNone of the members of the Board of Trustees received any remuneration. During the year seven Trustees (2012: 6) received reimbursements of travel and subsistence expenditure amounting to £7,138 (2012: £5,225).



8. Subsidiary companies

The charity owns 100% of the issued share capital of CLIC Sargent Promotions Limited.

A summary of the trading results for the year ended 31 March 2013 is as follows:

2013 2012

£’000 £’000

Turnover 397 398Cost of sales (191) (225)

Gross profit 206 173Administration expenses (138) (136)Gift Aid donation to the charity (68) (38)

Operating (loss) for the financial year – (1)

Other income – 1

Profit/(loss) for the year – –Balance brought forward at beginning of year – –

Balance carried forward at end of year – –

Net assets at 31 March 2013 100 100

The two former charities, Sargent Cancer Care for Children and CLIC – Cancer and Leukaemia in Childhood, are both companies limited by guarantee. They are dormant 100% subsidiaries of CLIC Sargent.

CLIC Sargent is trustee of the following three unincorporated dormant charities: Cancer and Leukaemia in Childhood Trust CLIC UK CLIC International

9. Tangible fixed assets

Group and charity Land Freehold property

Assets under construction

Fixtures and fittings

Motor vehicles and caravans Total

£’000 £’000 £’000 £’000 £’000

Cost or valuation

At 1 April 2012 2,632 5,663 – 2,164 382 10,841Additions – 56 553 232 - 841Disposals (43) (60) – (171) (182) (456)Revaluations (27) (233) – – – (260)Transfer between classes – (1) 1 – – –

At 31 March 2013 2,562 5,425 554 2,225 200 10,966

Depreciation

At 1 April 2012 – 755 – 1,220 362 2,337Charge for year – 113 – 365 17 495Disposals – (28) – (171) (182) (381)Revaluations – (83) – – – (83)

At 31 March 2013 – 757 – 1,414 197 2,368

Net book value

At 31 March 2013 2,562 4,668 554 811 3 8,598

At 31 March 2012 2,632 4,908 – 944 20 8,504



9. Tangible fixed assets (continued)

The freehold property asset class is divided into two as follows:

Asset Sub-class BasisFreehold property

and land costFreehold property and land

accumulated depreciation Net book value 31 March 2013

£’000 £’000 31 March 2013

Charitable service properties Historical cost 7,663 (754) 6,909Shops and offices Open market value 878 (3) 875

At 31 March 2013 8,541 (757) 7,784

In February 2013, the shops and offices were revalued in accordance with accounting policy (1g). The properties were valued by James Redman MRICS for Alder King, property consultants. The properties were valued having regard to the RICS valuation standards (Red Book), in particular UK valuation statement 1 and FRS 15.The properties were valued on an existing use basis. The valuation report confirms that there is no significant difference between the existing use value and open market value.

The revaluation of the shops and offices resulted in a revaluation loss of £177,000, as properties and land with a carrying value of £1.055 million were revalued to £878,000.

10. Investments

(a) Commercial investments

Group – current asset investmentsListed

investmentsInvestment

property Total

£’000 £’000 £’000

Market value of investments as at 1 April 2012 21 90 111Additions - - -Disposals at carrying value - (90) (90)Net loss in the year (6) - (6)

Market value at 31 March 2013 15 - 15

Historical cost 24 - 24

The investment property was sold in the year. It is the intention to sell the commercial investments in the near future and not to reinvest the sales proceeds in new investments.

In addition to the group’s current asset investments above, the charity has a £100,000 investment in the subsidiary, which is shown as a fixed asset investment in the charity balance sheet.

(b) Investments in subsidiaries

Subsidiary name % Share Trading activity

a) CLIC Sargent Promotions Limited 100% Buys new merchandise for resale and receives corporate advertising income

b) Sargent Cancer Care for Children 100% Dormantc) CLIC – Cancer and Leukaemia in Childhood 100% Dormant



11. Stock

Group Charity

2013 2012 2013 2012

£’000 £’000 £’000 £’000

Shop inventories 64 92 – –

The replacement costs of stock are not materially different from that stated above.

12. Debtors

Group Charity

2013 2012 2013 2012

£’000 £’000 £’000 £’000

Other debtors 84 389 84 374Amounts owed by group undertakings – – 2 155Prepayments and accrued income 2,525 1,809 2,525 1,809

2,609 2,198 2,611 2,338

13. Creditors: amounts falling due within one year

Group Charity

2013 2012 2013 2012

£’000 £’000 £’000 £’000

Trade creditors 1,178 1,467 1,176 1,462Other taxes and social security costs 280 258 280 258Accruals 1,049 922 1,046 921Deferred income 402 418 402 418

2,909 3,065 2,904 3,059

14. Creditors: amounts falling due after one year

Group Charity

2013 2012 2013 2012

£’000 £’000 £’000 £’000

Unfunded pension obligation 219 231 219 231



15. Analysis of group net assets between funds

Fund balances at 31 March 2013 are represented by: Unrestricted funds Restricted funds Total

£’000 £’000 £’000

Tangible fixed assets 8,045 553 8,598Net current assets 5,102 2,442 7,544Long-term liabilities (219) – (219)

Net assets 12,928 2,995 15,923

16. Restricted funds

Balance 1 April 2012* Income Expenditure

Balance 31 March 2013

£’000 £’000 £’000 £’000

Tesco 3,307 19 (1,805) 1,521London Home – 8 (8) –Nottingham Home 197 136 (226) 107Northern Ireland Home (65) 1,687 (580) 1,042Residential resource 39 343 (336) 46Care teams 280 607 (726) 161Grants 15 421 (422) 14Legacies 137 102 (170) 69Projects 47 116 (128) 35

3,957 3,439 (4,401) 2,995

* These balances have been reanalysed within the restricted fund categories.

Tesco – CLIC Sargent was selected as Tesco Charity of the Year in 2010. Funds received from this partnership will enable children with cancer to spend more time at home and less time in hospital.

London Home is for the acquisition, adaptation and running costs of three properties close to University College Hospital and Great Ormond Street Hospital to provide accommodation for families of children and young people receiving treatment at these hospitals.

Nottingham Home is for the adaptation and running costs of a property close to Queen’s Medical Centre to provide accommodation for families of children receiving treatment at the hospital. Services provided in the Nottingham area are also funded. The balance still held at the year end will be used to fund service delivery in the Nottingham area.

Northern Ireland Home is for the acquisition, adaptation and running costs of two properties in Northern Ireland, one within walking distance of the Royal Belfast Hospital for Sick Children and the other to the Belfast City and Northern Ireland Cancer Centre where young people with cancer are treated.

A capital fund of £553,000 is included within the balance carried forward and this relates to the net book value

on the balance sheet of the properties purchased and construction work undertaken on them to date. Depreciation will be allocated to this fund over the useful economic life of the properties.

Residential Resource relates predominantly to funds raised specifically for expenditure at Malcolm Sargent House in Prestwick, Ayrshire. It also includes funds to be spent at specific Homes from Home.

Care Teams represent expenditure within the terms of geographically limited grants.

Grants represent funds provided to families and young people in specific geographical areas.

Legacies represent bequested funds provided for children, young people and families in specific areas.

Projects represents funding secured from the Department of Health’s Third Sector Investment Programme (TSIP) and from the National Cancer Action Team to pilot and evaluate a key worker model of care for young people with cancer, at three hospitals in the South East. It also includes funding for other projects for Music Therapy and Volunteering.



17. Restricted fund contributions

We are required to acknowledge the restricted fund contributions made during the year ended 31 March 2013 from the following donors:

Bonita Charitable Trust £35,000 Towards the cost of the new Home from Home in Northern Ireland

The Grand Charity £25,000 Nurses in Cornwall

Department of Health £24,958 More than my illness project

The James Tudor Foundation £12,191 Nurse service at Musgrove Park Hospital, Somerset

The City Bridge Trust £11,500 Young person’s social workers in London

Awards for All Scotland £10,000 Replacement windows – Malcolm Sargent House

18. Unrestricted funds

Balance 1 April 2012 Income Expenditure

Investment & Revaluation

gains/(losses) Transfers

between funds Balance

31 March 2013

£’000 £’000 £’000 £’000 £’000 £’000

Free reserves: 3,736 18,822 (18,849) (7) 633 4,335

Designated funds:Fixed asset reserves 8,034 – – – (282) 7,752London Home from Home 670 – – – (351) 319Nottingham Home from Home 229 – – – – 229

8,933 – – – (633) 8,300

Revaluation reserve: 470 – – (177) – 293

Total 13,139 18,822 (18,849) (184) – 12,928

Fixed asset reserves – The Trustees have set aside funds to cover the net book value of tangible fixed assets, excluding revaluation and those assets included within restricted funds.

Homes from Home – The Trustees have set aside funds to cover the future running costs of the London and Nottingham Homes from Home. These funds will be spent once the equivalent restricted funds have been used.

19. Commitments under operating leases

Group and charityAs at 31 March 2013, the group and charity had annual commitments under non-cancellable operating leases as set out below:

2013 2012

Land and buildings Other

Land and buildings Other

£’000 £’000 £’000 £’000

Operating leases which expire:Within one year 122 20 56 18Within two to five years 600 – 749 2After five years 57 – 28 –

779 20 833 20



20. Grants

During the year the charity provided £50,000 for Psychosocial research funding (2012: £86,000 for Clinical research) and £1,015,986 (2012: £984,870) for care grants. Support costs associated with our grant making activities were £43,000 (2012: 43,000). An analysis of grants that have been given is provided below.

Analysis of research grants provided in the year was as follows: £’000

Teenagers and Young Adults with Cancer 50

Grants awarded to families and young people in the period were as follows: £’000 No. grants

Standard 501 2,954Community support and Exceptional 356 1,479Compassionate crisis 129 427Holiday travel 13 180Proton beam therapy 17 67

1,016 5,107

21. Reconciliation of net outgoing resources to net cash (outflow)/inflow from operating activities

2013 2012

£’000 £’000

Net (outgoing)/incoming resources for the year (989) (1,243)Interest received (139) (61)Dividends received (3) (8)Rent received (1) (3)Other income received (83) (102)Profit on the disposal of fixed assets (219) –

(1,434) (1,417)

Depreciation charge for year 495 405Loss on disposal of fixed assets 16 –Decrease/(increase) in stock 28 6Decrease/(increase) in debtors (411) 2,901Increase/(decrease) in creditors (168) 64

Net cash (outflow)/inflow from operating activities (1,474) 1,959

22. Analysis of changes in net funds

At 1 April 2012 Cash flows At 31 March 2013

£’000 £’000 £’000

Cash at bank and in hand 9,487 (1,722) 7,765

23. Related party transactions

There were no related party transactions during the period.



Reference and administrative details

Members of the Board

Daphne Pullen OBE (Chair)

Jonathan Plumtree FCA (Vice Chair)

Graham Clarke MBA, FCMA, CGMA (Treasurer)

Alison Arnfield RSCN RGN MSc

Rachel Billsberry-Grass

Jane Burt FCIPD

Will Carter

Keith Exford MCIH FRSA

Ian Gibson Dip Health Services Man, Cert Health Econ

Dominic Grainger

Tim Holley (retired 21 March 2013)

Dr Meriel Jenney MRCPCH MBChB MRCP

Henry Kenyon (retired 28 June 2012)

Michael O’Connor

Resources Committee

Jonathan Plumtree FCA (Chair)

Rachel Billsberry-Grass

Lucy Caldicott

Will Carter

Graham Clarke MBA, FCMA, CGMA

Lorraine Clifton

Daphne Pullen OBE

Steve Williams FCMA, CGMA

Audit Committee

Keith Exford MCIH FRSA (Chair)

Dominic Grainger

Jonathan Plumtree FCA

Daphne Pullen OBE

Governance Committee

Daphne Pullen OBE (Chair)

Alison Arnfield RSCN RGN MSc

Jane Burt FCIPD

Lorraine Clifton

Ian Gibson Dip Health Services Man, Cert Health Econ

Alastair Wilson FCIPD

Executive officers

Chief Executive Lorraine Clifton

Director of Finance Steve Williams FCMA, CGMA

Director of Fundraising Lucy Caldicott MInstF

Director of Services Dara de Burca DipSW, SW Practice Teacher Award, Dip Management Studies, Health and Social Care

Director of Communications and Campaigning Liz North

Director of People and Learning Alastair Wilson FCIPD (From 3 June 2013)

Peter Atfield PG Dip Personnel Management (Until 16 April 2013)

Company Secretary Steve Williams FCMA, CGMA

Founders

Sylvia Darley OBE Sargent Cancer Care for Children

Bob Woodward CLIC – Cancer and Leukaemia in Childhood

President

Gordon Morrison


Patrons

Lady Helen Taylor, CLIC Sargent Ambassador

Lucy Alexander

James Allen

Lord Richard Attenborough

Alice Beer

Angellica Bell

Nicola Benedetti

Cherie Booth

Sara Carello

Mark Chapman

Sir James Galway

Laura and Johnny Greenall (Billy’s House)

Tim Henman

Chris Hollins

Emma Johnson

Eddie and Marie Jordan

Laurence and Jackie Llewelyn-Bowen

Julian Lloyd Webber

Sally Magnusson

Barry and Sandra McGuigan

Kai Owen

Patsy Palmer

Duncan Pow

Steve Rider

Gaby Roslin

Michelle Ryan

Sharleen Spiteri

Joanna Taylor

The Archbishop of Canterbury, Justin Welby

Richard and Susan Young

Principal professional advisers

SolicitorsIBB Solicitors Capital Court 30 Windsor Street Uxbridge Middlesex UB8 1AB

Bates Wells & Braithwaite London LLP Scandinavian House 2-6 Cannon Street London EC4M 6YH

BankersBarclays Bank 1 Churchill Place London E14 5HP

Royal Bank of Scotland 29 Old Brompton Road London SW7 3JE

Lloyds TSB Bank Plc 25 Gresham Street London EC2V 7HN

HSBC Bank Plc 1 Beadon Road London W6 0EA

External auditorsCrowe Clark Whitehill LLP Statutory Auditor Carrick House, Lypiatt Road Cheltenham Gloucestershire GL50 2QJ

Registered office

Horatio House 77–85 Fulham Palace Road London, W6 8JA


13SM

088

CLIC Sargent Registered address: Horatio House 77–85 Fulham Palace Road London W6 8JA

0300 330 0803

[email protected]

www.clicsargent.org.uk

CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. We provide clinical, practical and emotional support to help them cope with cancer and get the most out of life. We are there from diagnosis onwards and aim to help the whole family deal with the impact of cancer and its treatment, life after treatment and, in some cases, bereavement.

We can’t provide our vital services without our supporters. If you would like to donate to CLIC Sargent, you can do so easily online at www.clicsargent.org.uk/donate

Registered charity number in England and Wales: 1107328Registered charity number in Scotland: SC039857

Registered company number: 5273638

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Documents

CLIC Sargent Annual Report and Accounts 2012-13