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Page 1 of 13
2nd Annual UK & Ireland PROMs Research Conference
Programme
St Anne’s College, University Oxford
Thursday 8th June 2017
Conference organising committee:
Professor John Brazier , ScHARR, University of Sheffield and NIHR CLAHRC Yorkshire and Humber
Professor Ray Fitzpatrick , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford
Elizabeth Gibbons , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford
Dr Caroline Potter , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford
Professor Jose Maria Valderas , University of Exeter and NIHR CLAHRC South West Peninsula
Programme summary
09.30 Registration and refreshments Ruth Deech Building foyer
10.00 Welcome Mary Ogilvie Lecture Theatre
10.15 – 11.15 Parallel sessions 1a, 1b, 1c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8
11.15 – 11.30 Break
11.30 – 12.30 Parallel sessions 2a, 2b, 2c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8
12.30 – 13.30 Lunch break and poster viewing Ruth Deech Building foyer and Seminar Room 9
13.30 – 14.30 Parallel sessions 3a, 3b, 3c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8
14.30 – 15.00 Tea/coffee break *Poster session 14.40 – 14.55
Ruth Deech Building foyer and Seminar Room 9
15.00 – 15.30 Plenary 1 : Professor Galina Velikova
Mary Ogilvie Lecture Theatre
15.30 – 16.00 Plenary 2 : Professor Jose Maria Valderas
Mary Ogilvie Lecture Theatre
16.00 – 16.30 General discussion : Directions in PROMs research
Mary Ogilvie Lecture Theatre
16.30 Conference close
Advances in Patient Reported Outcomes Research
CLAHRC
East of
England
CLAHRC
South West
Peninsula
CLAHRC
Yorkshire
and Humber
CLAHRC
West
CLAHRC
West
Midlands
CLAHRC
Oxford
Page 2 of 13
1a. Development and validation of measures – 1 A66 (Potter): LTCQ (generic long-term conditions) A15 (Brazier): DHP-3D and DHP-5D (preference-based measures for diabetes) A57 (Sparrow): Cat-PROM5 (measure of visual difficulty for use in cataract surgery) A62 (Keetharuth): Short ReQoL (generic recovery / mental health)
1b. Qualitative evidence A59 (Goswami): qualitative PROM development for haematological malignancy A43 (Ward): ethnographic study of outcomes in breast cancer A16 (Lumley): review of qualitative evidence of PROMs for varicose veins A71 (Porter): systematic review of qualitative studies on use of PROMs in primary care
1c. PROMs for specific patient groups A53 (Roberts): piloting WHOQOLBREF-26 among patients with chronic fatigue syndrome A33 (Gumber): effects of financial distress on quality of life for Parkinson’s patients and carers A34 (Podmore): impact of comorbidities on hip and knee replacement A79 (Beard): ePROMs for National Hip and Knee PROMs collection
2a. PROMs into practice A06 (E Gibbons): implementation model for Musculoskeltal Health Questionnaire A56 (Greenhalgh): realist synthesis of PROMs for enhancing communication in clinic A51 (Fawkes): qualitative study of convergent / divergent views of PROMs in clinical setting A78 (Price): Arthroplasty Candidacy Help Engine to identify thresholds for surgery referral
2b. Development and validation of measures – 2 A75 (Griffiths): CARe Burn Scales (paediatric and adult versions for burn patients) A05 (Murphy): Primary Care Outcomes Questionnaire A08 (Carlton): HASMID (self-management in diabetes) A14 (Ragab): Renal Stone PROM
2c. Analytic issues A61 (Gao): comparing outcomes in total knee replacement A04 (Lemanska): symptom clusters for revising scale membership A22 (Ades): mapping between PROMs in RCTs A09 (Rombach): methods for analysing missing PROMs data in RCTs
3a. Electronic delivery and CAT A38 (Holch): eRAPID for reporting adverse events in standard cancer care A24 (Young): eSMART symptom management via remote monitoring during chemotherapy A27 (C Gibbons): testing of CAT version of WHOQOL in international sample A23 (Fischer): PROMIS Profile 29 for cross-country comparisons
3b. Concepts and models A12 (Shingler): review of development and use of conceptual models for PROMs research A55 (Davey): scoping review of chronobiology in PROMs for chronic illness A76 (Coast): life-course approach to capability measurement A44 (Smith): understanding minimal important differences in DEMQOL scores
3c. Preference – based measures A10 (Shah): development of EQ-5D value set for children A17 (Finch): selection of bolt-ons after factor analysis for ED-5D A45 (Zamora): new methods for analysing distribution of EQ-5D A67 (Patton): patient-valuation of EQ-5D health states and effect on hospital comparisons
Parallel
Session
One
10.15 –
11.15am
Parallel
Session
Two
11.30 –
12.30pm
Parallel
Session
Three
1.30 –
2.30pm
Mary Ogilvie Lecture Theatre Seminar Room 8 Seminar Room 7
Parallel sessions at a glance
Page 3 of 13
Parallel session 1 10.15 – 11.15 am
Session 1a. Development and validation of measures – 1 Mary Ogilvie Lecture Theatre
A66
Validation of the Long-Term Conditions Questionnaire (LTCQ) in a diverse sample of health and social care users in England
Caroline Potter (University of Oxford), Laurie Batchelder, Christine A'Court, Matthew Baker, Jennifer Bostock, Angela Coulter, Ray Fitzpatrick, Julien Forder, Diane Fox, Louise Geneen, Elizabeth Gibbons, Crispin Jenkinson, Karen Jones, Laura Kelly, Michele Peters
A15 Developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D
Brendan Mulhern, Donna Rowen, Keith Meadows, Jackie Elliott, Emma Knowles, John Brazier (University of Sheffield)
A57
Cat-PROM5: A brief self-report questionnaire instrument for cataract surgery
John Sparrow (University of Bristol/ Bristol Eye Hospital),Mariusz T. Grzeda, Neil A. Frost, Robert L. Johnston, Christopher C. Liu, Lara Edwards, Abi Loose, Pippa Craggs, Jenny Donovan
A62 Constructing and Validating the Short Recovering Quality of Life (ReQoL) Measure for Use in a Mental Health Population
Anju Keetharuth (University of Sheffield), John Brazier, Janice Connell, Jill Carlton, Lizzie Taylor Buck, Thomas Ricketts, Michael Barkham
Session 1b. Qualitative evidence Ruth Deech Building: Seminar Room 7
A59
Development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study
Pushpendra Goswami (University of Hertfordshire), Sam Salek, Tatyana Ionova, Esther Oliva, Adele K Fielding, Marina Karakantza, Saad Al-Ismail, Graham P Collins, Stewart McConnell, Catherine Langton, Daniel M Jennings, Roger Else, Jonathan Kell
A43 “Normal is redefined”: reflections on outcomes for women with breast cancer: an ethnographic study in London
Helen Ward (Imperial College London), Sophie Day
A16
Examining the relevance of PROMs to patients: A review of qualitative data capturing which HRQoL domains are important to patients
Elizabeth Lumley (University of Sheffield), Patrick Phillips, Rosie Duncan, Helen Buckley-Woods, Ahmed Aber, Georgina Jones, Jonathan Michaels
A71
Perspectives of patients and professionals on the use of patient-reported outcome measures in primary care: a systematic review of qualitative studies
Ian Porter (University of Exeter), Jaheeda Gangannagaripalli, Antoinette Davey, Ignacio Ricci-Cabello, Kirstie Haywood, Jose M Valderas
CLAHRC
East of
England
CLAHRC
South West
Peninsula
CLAHRC
Yorkshire
and Humber
CLAHRC
West
CLAHRC
West
Midlands
CLAHRC
Oxford
Page 4 of 13
Session 1c. PROMs for specific patient groups Ruth Deech Building: Seminar Room 8
A53 Subjective Quality of Life (QOL) accounts. Essential for applied health research into long term conditions (LTC's)
Deb Roberts (Royal Liverpool & Broadgreen University Hospitals Trust)
A33 Effects of Out-of-Pocket (OOP) Payments and Financial Distress on Quality of Life (QoL) of People with Parkinson's (PwP) and their Carers
Anil Gumber (Sheffield Hallam University)
A34 The impact of comorbidities on outcomes of hip and knee replacement: a meta-analysis
Belene Podmore (London School of Hygiene and Tropical Medicine), Andrew Hutchings, Jan van der Meulen
A79
Extending the use of PROM scores in the Hip and Knee Replacement Patient Pathway in the NHS: Enhancing response rates through patient engagement
Andrew Price , William Jackson , Nick Bottomley, Michael Philiips, Toby Knightley-Day, David Beard (University of Oxford)
Parallel session 2 11.30 – 12.30 pm
Session 2a. PROMs into practice Mary Ogilvie Lecture Theatre
A06 The Musculoskeletal Health Questionnaire (MSK-HQ): a partnership model of implementation to assess acceptability, feasibility and impact
Elizabeth Gibbons (University of Oxford), Ray Fitzpatrick
A56 When, how and why does PROMs feedback improve clinician-patient communication within the consultation? A realist synthesis
Joanne Greenhalgh (University of Leeds), Kate Gooding, Elizabeth Gibbons, Jose M Valderas, Judy Wright, Sonia Dalkin, David Meads
A51 Converging and diverging views about PROMs: A qualitative study involving patients and clinicians
Carol Fawkes (Barts and The London Queen Mary's School of Medicine and Dentistry), Robert Froud, Dawn Carnes
A78 ACHE - The Arthroplasty Candidacy Help Engine: Using PROMs data to identify thresholds for referral in hip and knee replacement surgery
Andrew Price (University of Oxford), Jonathan Cook, Helen Dakin, James Smith, Sujin Kang, David Beard, The Ache Study Team
Page 5 of 13
Session 2b. Development and validation of measures – 2 Ruth Deech Building: Seminar Room 7
A75
Collaborating with burn patients and their families to develop the CARe Burn Scales: a portfolio of burn-specific quality of life PROMs for use in paediatric and adult burn care
Catrin Griffiths (University of the West of England), Ella Guest, Diana Harcourt
A05 Testing the face validity and acceptability of the Primary Care Outcomes Questionnaires through cognitive interviews
Mairead Murphy (University of Bristol), Sandra Hollinghurst, Chris Salisbury
A08 Validation and refinement of the HASMID questionnaire: A measure of health and self-management in diabetes
Jill Carlton (University of Sheffield), Jackie Elliott, Donna Rowen
A14 Developing a Renal Stone Patient Reported Outcome Measure: stage 1, 2 & 3
Mostafa Ragab (Hinchinbrookes Hospital), Samih Al-Hayek, Maxine Tran, Jane Collie, James Armitage, Oliver Wiseman
Session 2c. Analytic issues Ruth Deech Building: Seminar Room 8
A61 What exactly is a good outcome for total knee replacement (TKR)? And what proportion of patients experience one?
Anqi Gao (University of Oxford), Andrew Price, David Beard
A04 Symptom clusters for revising scale membership in the analysis of Patient Reported Outcome Measures
Agnieszka Lemanska (University of Surrey), Tao Chen, David P Dearnaley, Rajesh Jena, Sydes Matthew R, Sara Faithfull
A22 Mapping between PROMS, and the Relative Responsiveness of PROMS : a meta-analytic approach
AE Ades (University of Bristol), Daphne Kounali, Guobing Lu
A09
To impute or not to impute? A comparison of statistical approaches for analysing missing longitudinal patient reported outcome data in randomised controlled trials
Ines Rombach (University of Oxford), Alastair Gray, Crispin Jenkinson, Oliver Rivero-Arias
Page 6 of 13
Parallel session 3 1.30 – 2.30 pm
Session 3a. Electronic delivery and CAT Mary Ogilvie Lecture Theatre
A38
Patients, staff and relatives agree: electronic PROM reporting of adverse events is a feasible and acceptable adjunct to standard care in pelvic radiotherapy for cancer: eRAPID (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice)
Patricia (Trish) Holch (Leeds Beckett University), Marie Holmes, Zoe Rodgers, Sarah Dickinson, Beverly Clayton, Susan Davidson, Jacqui Routledge, Julia Glennon, Ann M Henry, Kevin Franks, Galina Velikova
A24
The eSMART RCT: Comparing electronic Symtpom Management using the Advanced Symptom Management System (ASyMS) with standard care for patients during adjuvant chemotherapy
Roma Maguire, Lisa McCann, Teresa Young (East & North Herts NHS Trust), Jo Armes, Jenny Harris, Christine Miaskowski, Grigorios Kotronoulas, Morven Miller, Emma Ream, Elizabeth Patiraki, Alexander Geiger, Geir V. Berg, Adrian Flowerday, Peter Donnan, Paul McCrone, Kathi Apostolidis, Patricia Fox, Eileen Furlong, Nora Kearney
A27 Quality of life assessment is more efficient precise when conducted using a computer adaptive testing protocol: an international study
Chris Gibbons (University of Cambridge)
A23 The PROMIS Profile 29 allows valid comparisons of patient-reported health over France, Germany and the UK
Felix Fischer (Charité Universitätsmedizin Berlin), Chris Gibbons, Joel Coste, Jose M Valderas, Alain Leplege, Matthias Rose
Session 3b. Concepts and models Ruth Deech Building: Seminar Room 7
A12 The Development and Use of Conceptual Models
Sarah Shingler (DRG Abacus), Natalie Aldhouse, Tamara Al-Zubeidi, Andrew Trigg, Helen Kitchen
A55 Chronobiology and PROMs: A systematic scoping review for patients with chronic health conditions
Antoinette Davey (University of Exeter Medical School), Ian Porter, Colin Green, Jose M Valderas
A76 Diversity in values across the life-course
Joanna Coast (University of Bristol)
A44 Understanding DEMQOL scores: Minimal Important Differences
Sarah Smith (London School of Hygiene & Tropical Medicine), Jolijn Hendriks, Nick Black
Page 7 of 13
Session 3c. Preference – based measures Ruth Deech Building: Seminar Room 8
A10 Use of PROs in children: development of a value set for the EQ-5D-Y
Koonal Shah (Office of Health Economics), Oliver Rivero-Arias, Juan-Manuel Ramos-Goni, Simone Kreimeier, Mike Herdman, Nancy Devlin
A17 Selection of bolt-ons after factor analysis: are linear regression models a useful technique?
Aureliano Paolo Finch (University of Sheffield), John E Brazier, Clara Mukuria
A45 New methods for analysing the distribution of EQ-5D observations
Bernarda Zamora (Office of Health Economics), David Parkin, Yan Feng, Andrew Bateman, Mike Herdman, Nancy Devlin
A67 Putting the P back into PROMs: using patient valuations of EQ-5D health states to improve hospital performance comparisons
Thomas Patton (Centre for Health Economics), Nils Gutacker, Koonal Shah
Page 8 of 13
Plenaries and Discussion 3.00 – 4.30 pm
Plenary presentations Mary Ogilvie Lecture Theatre
3.00 pm
Using Patient Reported Outcome Measures (PROMs) in cancer care Professor Galina Velikova
Monitoring of patients’ physical and psychological problems during and after cancer treatment is essential in modern oncology practice. Traditional clinical methods can be supplemented by Patient-Reported Outcomes Measures (PROMs) measures. The potential role of PROMs is recognised and endorsed by national and international practice guidelines. The introduction of formal measurement of PROMs in clinical practice is a complex health care innovation requiring careful planning, design and successful implementation of a number of essential components, such as choosing the patient questionnaire(s), a convenient affordable electronic method for reporting and display in hospital records and engaging clinicians to use and act on the reports. There is mounting research evidence that using PROMs in individual patient care in oncology is beneficial to patients, but this approach has not found a place in routine clinical practice. A brief overview of this evidence will be provided. Following this, the presentation will focus on examples of incorporating PROMs and eHealth interventions into routine patient care during and after cancer treatment, drawing on 20 years’ experience in Leeds of using electronic systems for capturing patient reported data in oncology settings. Examples will be given of: 1) Monitoring toxicity during systemic cancer treatment using online PROMs integrated with Electronic Patient Records (randomized trial part of NIHR eRAPID programme); 2) Service development project - Remote follow-up of testicular cancer patients using online PROMs plus community-based investigations. Examples of other online PROMs systems will be presented. The values and challenges of PROMs integration in routine oncology practice will be discussed.
3.30 pm
The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK Professor Jose M Valderas
The Patient-Reported Outcomes Measurement Information System (PROMIS) is a system for the measurement of patient reported outcomes whose development was funded by the US National Institute for Health. Its methodological rigor, scope, ambition and flexibility (including both standardized short forms and computerized adaptive administration) has turned it into one of the standards of PROMs measurement, although its use is still very limited outside the US. The presentation will provide an overview of rationale for the development of the system, the methods employed in its development and the resulting scales and short forms and key characteristics, including Assessment Centre, the online platform supporting the use of PROMIs scales. Current applications and use of PROMIS in the UK will be reviewed and the potential for its application to support the management of patients in the NHS will be considered.
4.00 pm General discussion: Directions in PROMs research
Page 9 of 13
Posters 2.40 – 2.55 pm
Posters will be on display throughout the day. Delegates are encouraged to view posters over the lunch break. Authors will be available to present and discuss their posters during the time designated above.
Poster presentation Ruth Deech Building foyer and Seminar Room 9
P03
Usability of an electronic system to collect Patient Reported Outcome Measures: A mixed methods study
Alissa Walsh (John Radcliffe Hospital), Vanashree Sexton, Hinds Christopher, Andrew Kim, Charlotte Roberts, Thomas Kelley, Satish Keshav, Oliver Brain, Holm Uhlig, Gary Collins, Simon Travis, Michele Peters
P11
Assessing Condition-Specific Health-Related Quality Of Life In Lateral Epicondylar Tendinopathy: A Systematic And Standardised Comparison Of Available Instruments
Jonathan Evans (University of Exeter), Chris Smith, Ian Porter, Jaheeda Gangannagaripall, Charlotte Bramwell, Antionette Davey, Vicki Goodwin, Jose M Valderas
P18
Development of the Musculoskeletal Health Questionnaire (MSK-HQ) for use in different conditions and different healthcare pathways
Jonathan Hill (Keele University), Sujin Kang, Elena Benedetta, Helen Myers, Steven Blackburn, Stephanie Smith, Kate Dunn, Elaine Hay, Jonathan Rees, David Beard, Sion Jones, Karen Barker, Benjamin Ellis, Ray Fitzpatrick, Andrew Price
P19 Formative preference-sensitive measures are needed in person-centred healthcare
Mette Kjer Kaltoft, Jesper Bo Nielsen, Jack Dowie (London School of Hygiene & Tropical Medicine)
P20
Evaluation of adherence to the MAPS Reporting Statement in recently published studies mapping to EQ-5D from clinical or patient-reported outcome measures
Lucy Abel (University of Oxford), Helen Dakin, Richeal Burns, Yaling Yang
Page 10 of 13
P21
Development of an electronic personal assessment questionnaire to capture the impact of living with a vascular condition: the ePAQ-VAS
Patrick Phillips (University of Sheffield), Elizabeth Lumley, Ahmed Aber, Stephen Radley, Georgina Jones, Jonathan Michaels
P25 QursTReviewTM - Development of a Clinical Outcome Assessment Measure Appraisal System
Keith Meadows (DHP Research & Consultancy Ltd)
P26
A comparison of principal component analysis and nonlinear principal component analysis in the development of a new rheumatoid arthritis stiffness PROM
Serena Halls (University of the West of England), Emma Dures, John Kirwan, Gill Baker, Avis Edmunds, Sarah Hewlett
P28 Introducing Concerto Version 5 - a flexible open-source tool for developing and delivering patient reported outcome assessments
David Stillwell (University of Cambridge), Prezmek Lis, Chris Gibbons
P29 Key variants in quality of life and wellbeing of people with Parkinson's (PwP) and their caregivers in the UK
Suranga Dolamulla (Sheffield Hallam University), Anil Gumber
P30
Development of a screening measure for symptomatic parastomal hernia: Assessing clinically relevant endpoints in the CIPHER study
Charlotte Murkin (University of Bristol), Kerry Avery, Daisy Elliott, Sian Cousins, Neil Smart, Jane Blazeby, on behalf of the CIPHER study group
P31 Identifying potential quality of life issues for people living with PSC: a systematic literature search to locate relevant tools
Elena Marcus (University College London), Bella Vivat, Patrick Stone, Douglas Thorburn
P32
Can PROMs be used for emergency admissions? Exploring the use of retrospectively collected PROMs and their agreement with contemporaneously collected reports from hip and knee replacement patients in NHS hospitals
Esther Kwong (London School of Hygiene and Tropical Medicine), Jenny Neuburger, Nick Black
Page 11 of 13
P35
Using Patient Reported Outcome measures (PROMs) to promote quality of care and safety in the management of patients with end stage renal disease (ESRD) requiring treatment with haemodialysis
Nicola Anderson (University Hospitals Birmingham NHS Foundation Trust), Melanie Calvert, Mary Dutton, Paul Cockwell, Derek Kyte
P36 Development of a LTCQ social care subscale
Laurie Batchelder (University of Kent), Diane Fox, Karen Jones, Julien Forder, Raymond Fitzpatrick, Michele Peters, Caroline Potter
P39
Impact of Multidrug Resistant Tuberculosis treatment on Quality of Life among Patients registered under RNTCP in Gorakhpur division: Longitudinal Study
Venkatesh U (BRD Medical College, Gorakhpur), DK Srivastava
P40
Measurement properties of patient-reported outcome measures (PROMs) used in patients with chronic kidney disease: a systematic review
Olalekan Lee Aiyegbusi (University of Birmingham), Derek Kyte, Paul Cockwell, Tom Marshall, Adrian Gheorghe, Thomas Keeley, Anita Slade, Melanie Calvert
P42 Feasibility of using the Skin Cancer Quality of Life Impact Tool in Non-Melanoma Skin Cancers
Gorav N Wali (Oxford University Hospitals NHS Foundation Trust), Laura Kelly, Elizabeth Gibbons, Rubeta N Matin
P46 Patient and Carer Views on Ambulatory Care for Older Adults: A Pilot Study
Sara McKelvie (NIHR CLAHRC Oxford), Daniel Lasserson
P47 Using PROsetta Stone to Translate PROMIS Depression Scores for Meaningful Use in Orthopaedic Trauma
Amanda Spraggs-Hughes (Washington University School of Medicine), William Ricci, Michael Gardner, Christopher McAndrew
P48 PROMIS Physical Function, Pain Interference, and Depression: Assessing Outcomes in an Orthopaedic Trauma Setting
Amanda Spraggs-Hughes (Washington University School of Medicine), William Ricci, Michael Gardner, Christopher McAndrew
Page 12 of 13
P49 Insurance Status and Patient Outcomes in the Orthopaedic Outpatient Setting
Amanda Spraggs-Hughes (Washington University School of Medicine), William Ricci, Michael Gardner, Christopher McAndrew
P50 Collecting outcome data using a mobile and web app in musculoskeletal practice
Carol Fawkes (Barts and The London Queen Mary's School of Medicine and Dentistry), Dawn Carnes, Robert Froud
P52
Representing the experiences of functional limitation of people with CFS/ME: what is missing from the SF-36 physical function subscale and the Work and Social Adjustment Scale?
Bethan Jones (University of the West of England), Peter Gladwell, Corin Bourne
P54 Personal Wellbeing Score (PWS): A shorter version of ONS4
Tim Benson (R-Outcomes Ltd), Andrew Liles
P58
Development and validation of patient-reported outcome measures (PROMs): selecting the most appropriate qualitative research methods to establish content validity
Laura Grant (Adelphi Values Ltd), Jane Wells, Chris Marshall, Adam Gater
P60 One year after TKR, what proportion of patients improves, deteriorates or stays the same from here onward?
Anqi Gao (University of Oxford), Andrew Price, David Beard
P64
Patient Reported Outcomes integrated in the follow-up of patients with hematological cancers: A qualitative study of patients and health care professional’s experiences. A study in progress
Stine Thestrup Hansen (Zealand University Hospital), Nana Brochmann, John Brodersen, Bibi Hølge-Hazelton, Mette Kjerholt
P65
Individualised Patient-Reported Outcome Measures: A Systematic Review
Jaheeda Gangannagaripalli (University of Exeter), Ian Porter, Daniela Bradley, Ignacio Ricci-Cabello, Jose M Valderas
Page 13 of 13
P68
Evaluation of Patient-Reported Outcome Protocol Content and Reporting in UK Cancer Clinical Trials: The EPiC study qualitative protocol
Ameeta Retzer (University of Birmingham), Thomas Keeley, Khaled Ahmed, Jo Armes, Julia Brown, Lynn Calman, Chris Copland, Fabio Efficace, Anna Gavin, Adam Glaser, Diana Greenfield, Anne Lanceley, Rachel Taylor, Galina Velikova, Michael Brundage, Rebecca Mercieca-Bebber, Madeleine King, Melanie Calvert, Derek Kyte
P69 Proposed use of PROMs in the evaluation of the Diabetes Digital Coach NHS Test Bed Project
Tim Benson (R-Outcomes Ltd), Elizabeth Dymond, Sandra Tweddell
P70
Re-thinking the concept of Experience-Based Values: setting the right framework to estimate the effect of experience on health valuations
Koonal Shah, Patricia Cubi-Molla (Office of Health Economics)
P72
Patient satisfaction with healthcare in Thoracic Surgery is affected by complications regardless of the underlying disease
Cecilia Pompili (University of Leeds), Alex Cairns, Finn McLennan Battleday, Heather Bell, Joel Favo, Ranjani Mathangaweera, Oana Linder, Galina Velikova, Alessandro Brunelli
P74
The context of coping: a qualitative exploration of health services support and potential use of PROMs for people living with long-term conditions
Caroline Potter (University of Oxford), Laura Kelly, Cheryl Hunter, Ray Fitzpatrick, Michele Peters
P77
The use of broad generic PROMs survey, including health status, wellbeing, health confidence and experience, in the evaluation of a social prescribing service
Tim Benson (R-Outcomes Ltd), Andrew Liles
CLAHRC
East of
England
CLAHRC
South West
Peninsula
CLAHRC
Yorkshire
and Humber
CLAHRC
West
CLAHRC
West
Midlands
CLAHRC
Oxford