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Page 1 of 13 2 nd Annual UK & Ireland PROMs Research Conference Programme St Anne’s College, University Oxford Thursday 8 th June 2017 Conference organising committee: Professor John Brazier , ScHARR, University of Sheffield and NIHR CLAHRC Yorkshire and Humber Professor Ray Fitzpatrick , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford Elizabeth Gibbons , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford Dr Caroline Potter , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford Professor Jose Maria Valderas , University of Exeter and NIHR CLAHRC South West Peninsula Programme summary 09.30 Registration and refreshments Ruth Deech Building foyer 10.00 Welcome Mary Ogilvie Lecture Theatre 10.15 – 11.15 Parallel sessions 1a, 1b, 1c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8 11.15 – 11.30 Break 11.30 – 12.30 Parallel sessions 2a, 2b, 2c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8 12.30 – 13.30 Lunch break and poster viewing Ruth Deech Building foyer and Seminar Room 9 13.30 – 14.30 Parallel sessions 3a, 3b, 3c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8 14.30 – 15.00 Tea/coffee break *Poster session 14.40 – 14.55 Ruth Deech Building foyer and Seminar Room 9 15.00 – 15.30 Plenary 1 : Professor Galina Velikova Mary Ogilvie Lecture Theatre 15.30 – 16.00 Plenary 2 : Professor Jose Maria Valderas Mary Ogilvie Lecture Theatre 16.00 – 16.30 General discussion : Directions in PROMs research Mary Ogilvie Lecture Theatre 16.30 Conference close Advances in Patient Reported Outcomes Research CLAHRC East of England CLAHRC South West Peninsula CLAHRC Yorkshire and Humber CLAHRC West CLAHRC West Midlands CLAHRC Oxford

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Page 1 of 13

2nd Annual UK & Ireland PROMs Research Conference

Programme

St Anne’s College, University Oxford

Thursday 8th June 2017

Conference organising committee:

Professor John Brazier , ScHARR, University of Sheffield and NIHR CLAHRC Yorkshire and Humber

Professor Ray Fitzpatrick , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford

Elizabeth Gibbons , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford

Dr Caroline Potter , Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford

Professor Jose Maria Valderas , University of Exeter and NIHR CLAHRC South West Peninsula

Programme summary

09.30 Registration and refreshments Ruth Deech Building foyer

10.00 Welcome Mary Ogilvie Lecture Theatre

10.15 – 11.15 Parallel sessions 1a, 1b, 1c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8

11.15 – 11.30 Break

11.30 – 12.30 Parallel sessions 2a, 2b, 2c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8

12.30 – 13.30 Lunch break and poster viewing Ruth Deech Building foyer and Seminar Room 9

13.30 – 14.30 Parallel sessions 3a, 3b, 3c Mary Ogilvie Lecture Theatre, Seminar Rooms 7 and 8

14.30 – 15.00 Tea/coffee break *Poster session 14.40 – 14.55

Ruth Deech Building foyer and Seminar Room 9

15.00 – 15.30 Plenary 1 : Professor Galina Velikova

Mary Ogilvie Lecture Theatre

15.30 – 16.00 Plenary 2 : Professor Jose Maria Valderas

Mary Ogilvie Lecture Theatre

16.00 – 16.30 General discussion : Directions in PROMs research

Mary Ogilvie Lecture Theatre

16.30 Conference close

Advances in Patient Reported Outcomes Research

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1a. Development and validation of measures – 1 A66 (Potter): LTCQ (generic long-term conditions) A15 (Brazier): DHP-3D and DHP-5D (preference-based measures for diabetes) A57 (Sparrow): Cat-PROM5 (measure of visual difficulty for use in cataract surgery) A62 (Keetharuth): Short ReQoL (generic recovery / mental health)

1b. Qualitative evidence A59 (Goswami): qualitative PROM development for haematological malignancy A43 (Ward): ethnographic study of outcomes in breast cancer A16 (Lumley): review of qualitative evidence of PROMs for varicose veins A71 (Porter): systematic review of qualitative studies on use of PROMs in primary care

1c. PROMs for specific patient groups A53 (Roberts): piloting WHOQOLBREF-26 among patients with chronic fatigue syndrome A33 (Gumber): effects of financial distress on quality of life for Parkinson’s patients and carers A34 (Podmore): impact of comorbidities on hip and knee replacement A79 (Beard): ePROMs for National Hip and Knee PROMs collection

2a. PROMs into practice A06 (E Gibbons): implementation model for Musculoskeltal Health Questionnaire A56 (Greenhalgh): realist synthesis of PROMs for enhancing communication in clinic A51 (Fawkes): qualitative study of convergent / divergent views of PROMs in clinical setting A78 (Price): Arthroplasty Candidacy Help Engine to identify thresholds for surgery referral

2b. Development and validation of measures – 2 A75 (Griffiths): CARe Burn Scales (paediatric and adult versions for burn patients) A05 (Murphy): Primary Care Outcomes Questionnaire A08 (Carlton): HASMID (self-management in diabetes) A14 (Ragab): Renal Stone PROM

2c. Analytic issues A61 (Gao): comparing outcomes in total knee replacement A04 (Lemanska): symptom clusters for revising scale membership A22 (Ades): mapping between PROMs in RCTs A09 (Rombach): methods for analysing missing PROMs data in RCTs

3a. Electronic delivery and CAT A38 (Holch): eRAPID for reporting adverse events in standard cancer care A24 (Young): eSMART symptom management via remote monitoring during chemotherapy A27 (C Gibbons): testing of CAT version of WHOQOL in international sample A23 (Fischer): PROMIS Profile 29 for cross-country comparisons

3b. Concepts and models A12 (Shingler): review of development and use of conceptual models for PROMs research A55 (Davey): scoping review of chronobiology in PROMs for chronic illness A76 (Coast): life-course approach to capability measurement A44 (Smith): understanding minimal important differences in DEMQOL scores

3c. Preference – based measures A10 (Shah): development of EQ-5D value set for children A17 (Finch): selection of bolt-ons after factor analysis for ED-5D A45 (Zamora): new methods for analysing distribution of EQ-5D A67 (Patton): patient-valuation of EQ-5D health states and effect on hospital comparisons

Parallel

Session

One

10.15 –

11.15am

Parallel

Session

Two

11.30 –

12.30pm

Parallel

Session

Three

1.30 –

2.30pm

Mary Ogilvie Lecture Theatre Seminar Room 8 Seminar Room 7

Parallel sessions at a glance

Page 3 of 13

Parallel session 1 10.15 – 11.15 am

Session 1a. Development and validation of measures – 1 Mary Ogilvie Lecture Theatre

A66

Validation of the Long-Term Conditions Questionnaire (LTCQ) in a diverse sample of health and social care users in England

Caroline Potter (University of Oxford), Laurie Batchelder, Christine A'Court, Matthew Baker, Jennifer Bostock, Angela Coulter, Ray Fitzpatrick, Julien Forder, Diane Fox, Louise Geneen, Elizabeth Gibbons, Crispin Jenkinson, Karen Jones, Laura Kelly, Michele Peters

A15 Developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D

Brendan Mulhern, Donna Rowen, Keith Meadows, Jackie Elliott, Emma Knowles, John Brazier (University of Sheffield)

A57

Cat-PROM5: A brief self-report questionnaire instrument for cataract surgery

John Sparrow (University of Bristol/ Bristol Eye Hospital),Mariusz T. Grzeda, Neil A. Frost, Robert L. Johnston, Christopher C. Liu, Lara Edwards, Abi Loose, Pippa Craggs, Jenny Donovan

A62 Constructing and Validating the Short Recovering Quality of Life (ReQoL) Measure for Use in a Mental Health Population

Anju Keetharuth (University of Sheffield), John Brazier, Janice Connell, Jill Carlton, Lizzie Taylor Buck, Thomas Ricketts, Michael Barkham

Session 1b. Qualitative evidence Ruth Deech Building: Seminar Room 7

A59

Development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study

Pushpendra Goswami (University of Hertfordshire), Sam Salek, Tatyana Ionova, Esther Oliva, Adele K Fielding, Marina Karakantza, Saad Al-Ismail, Graham P Collins, Stewart McConnell, Catherine Langton, Daniel M Jennings, Roger Else, Jonathan Kell

A43 “Normal is redefined”: reflections on outcomes for women with breast cancer: an ethnographic study in London

Helen Ward (Imperial College London), Sophie Day

A16

Examining the relevance of PROMs to patients: A review of qualitative data capturing which HRQoL domains are important to patients

Elizabeth Lumley (University of Sheffield), Patrick Phillips, Rosie Duncan, Helen Buckley-Woods, Ahmed Aber, Georgina Jones, Jonathan Michaels

A71

Perspectives of patients and professionals on the use of patient-reported outcome measures in primary care: a systematic review of qualitative studies

Ian Porter (University of Exeter), Jaheeda Gangannagaripalli, Antoinette Davey, Ignacio Ricci-Cabello, Kirstie Haywood, Jose M Valderas

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Session 1c. PROMs for specific patient groups Ruth Deech Building: Seminar Room 8

A53 Subjective Quality of Life (QOL) accounts. Essential for applied health research into long term conditions (LTC's)

Deb Roberts (Royal Liverpool & Broadgreen University Hospitals Trust)

A33 Effects of Out-of-Pocket (OOP) Payments and Financial Distress on Quality of Life (QoL) of People with Parkinson's (PwP) and their Carers

Anil Gumber (Sheffield Hallam University)

A34 The impact of comorbidities on outcomes of hip and knee replacement: a meta-analysis

Belene Podmore (London School of Hygiene and Tropical Medicine), Andrew Hutchings, Jan van der Meulen

A79

Extending the use of PROM scores in the Hip and Knee Replacement Patient Pathway in the NHS: Enhancing response rates through patient engagement

Andrew Price , William Jackson , Nick Bottomley, Michael Philiips, Toby Knightley-Day, David Beard (University of Oxford)

Parallel session 2 11.30 – 12.30 pm

Session 2a. PROMs into practice Mary Ogilvie Lecture Theatre

A06 The Musculoskeletal Health Questionnaire (MSK-HQ): a partnership model of implementation to assess acceptability, feasibility and impact

Elizabeth Gibbons (University of Oxford), Ray Fitzpatrick

A56 When, how and why does PROMs feedback improve clinician-patient communication within the consultation? A realist synthesis

Joanne Greenhalgh (University of Leeds), Kate Gooding, Elizabeth Gibbons, Jose M Valderas, Judy Wright, Sonia Dalkin, David Meads

A51 Converging and diverging views about PROMs: A qualitative study involving patients and clinicians

Carol Fawkes (Barts and The London Queen Mary's School of Medicine and Dentistry), Robert Froud, Dawn Carnes

A78 ACHE - The Arthroplasty Candidacy Help Engine: Using PROMs data to identify thresholds for referral in hip and knee replacement surgery

Andrew Price (University of Oxford), Jonathan Cook, Helen Dakin, James Smith, Sujin Kang, David Beard, The Ache Study Team

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Session 2b. Development and validation of measures – 2 Ruth Deech Building: Seminar Room 7

A75

Collaborating with burn patients and their families to develop the CARe Burn Scales: a portfolio of burn-specific quality of life PROMs for use in paediatric and adult burn care

Catrin Griffiths (University of the West of England), Ella Guest, Diana Harcourt

A05 Testing the face validity and acceptability of the Primary Care Outcomes Questionnaires through cognitive interviews

Mairead Murphy (University of Bristol), Sandra Hollinghurst, Chris Salisbury

A08 Validation and refinement of the HASMID questionnaire: A measure of health and self-management in diabetes

Jill Carlton (University of Sheffield), Jackie Elliott, Donna Rowen

A14 Developing a Renal Stone Patient Reported Outcome Measure: stage 1, 2 & 3

Mostafa Ragab (Hinchinbrookes Hospital), Samih Al-Hayek, Maxine Tran, Jane Collie, James Armitage, Oliver Wiseman

Session 2c. Analytic issues Ruth Deech Building: Seminar Room 8

A61 What exactly is a good outcome for total knee replacement (TKR)? And what proportion of patients experience one?

Anqi Gao (University of Oxford), Andrew Price, David Beard

A04 Symptom clusters for revising scale membership in the analysis of Patient Reported Outcome Measures

Agnieszka Lemanska (University of Surrey), Tao Chen, David P Dearnaley, Rajesh Jena, Sydes Matthew R, Sara Faithfull

A22 Mapping between PROMS, and the Relative Responsiveness of PROMS : a meta-analytic approach

AE Ades (University of Bristol), Daphne Kounali, Guobing Lu

A09

To impute or not to impute? A comparison of statistical approaches for analysing missing longitudinal patient reported outcome data in randomised controlled trials

Ines Rombach (University of Oxford), Alastair Gray, Crispin Jenkinson, Oliver Rivero-Arias

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Parallel session 3 1.30 – 2.30 pm

Session 3a. Electronic delivery and CAT Mary Ogilvie Lecture Theatre

A38

Patients, staff and relatives agree: electronic PROM reporting of adverse events is a feasible and acceptable adjunct to standard care in pelvic radiotherapy for cancer: eRAPID (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice)

Patricia (Trish) Holch (Leeds Beckett University), Marie Holmes, Zoe Rodgers, Sarah Dickinson, Beverly Clayton, Susan Davidson, Jacqui Routledge, Julia Glennon, Ann M Henry, Kevin Franks, Galina Velikova

A24

The eSMART RCT: Comparing electronic Symtpom Management using the Advanced Symptom Management System (ASyMS) with standard care for patients during adjuvant chemotherapy

Roma Maguire, Lisa McCann, Teresa Young (East & North Herts NHS Trust), Jo Armes, Jenny Harris, Christine Miaskowski, Grigorios Kotronoulas, Morven Miller, Emma Ream, Elizabeth Patiraki, Alexander Geiger, Geir V. Berg, Adrian Flowerday, Peter Donnan, Paul McCrone, Kathi Apostolidis, Patricia Fox, Eileen Furlong, Nora Kearney

A27 Quality of life assessment is more efficient precise when conducted using a computer adaptive testing protocol: an international study

Chris Gibbons (University of Cambridge)

A23 The PROMIS Profile 29 allows valid comparisons of patient-reported health over France, Germany and the UK

Felix Fischer (Charité Universitätsmedizin Berlin), Chris Gibbons, Joel Coste, Jose M Valderas, Alain Leplege, Matthias Rose

Session 3b. Concepts and models Ruth Deech Building: Seminar Room 7

A12 The Development and Use of Conceptual Models

Sarah Shingler (DRG Abacus), Natalie Aldhouse, Tamara Al-Zubeidi, Andrew Trigg, Helen Kitchen

A55 Chronobiology and PROMs: A systematic scoping review for patients with chronic health conditions

Antoinette Davey (University of Exeter Medical School), Ian Porter, Colin Green, Jose M Valderas

A76 Diversity in values across the life-course

Joanna Coast (University of Bristol)

A44 Understanding DEMQOL scores: Minimal Important Differences

Sarah Smith (London School of Hygiene & Tropical Medicine), Jolijn Hendriks, Nick Black

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Session 3c. Preference – based measures Ruth Deech Building: Seminar Room 8

A10 Use of PROs in children: development of a value set for the EQ-5D-Y

Koonal Shah (Office of Health Economics), Oliver Rivero-Arias, Juan-Manuel Ramos-Goni, Simone Kreimeier, Mike Herdman, Nancy Devlin

A17 Selection of bolt-ons after factor analysis: are linear regression models a useful technique?

Aureliano Paolo Finch (University of Sheffield), John E Brazier, Clara Mukuria

A45 New methods for analysing the distribution of EQ-5D observations

Bernarda Zamora (Office of Health Economics), David Parkin, Yan Feng, Andrew Bateman, Mike Herdman, Nancy Devlin

A67 Putting the P back into PROMs: using patient valuations of EQ-5D health states to improve hospital performance comparisons

Thomas Patton (Centre for Health Economics), Nils Gutacker, Koonal Shah

Page 8 of 13

Plenaries and Discussion 3.00 – 4.30 pm

Plenary presentations Mary Ogilvie Lecture Theatre

3.00 pm

Using Patient Reported Outcome Measures (PROMs) in cancer care Professor Galina Velikova

Monitoring of patients’ physical and psychological problems during and after cancer treatment is essential in modern oncology practice. Traditional clinical methods can be supplemented by Patient-Reported Outcomes Measures (PROMs) measures. The potential role of PROMs is recognised and endorsed by national and international practice guidelines. The introduction of formal measurement of PROMs in clinical practice is a complex health care innovation requiring careful planning, design and successful implementation of a number of essential components, such as choosing the patient questionnaire(s), a convenient affordable electronic method for reporting and display in hospital records and engaging clinicians to use and act on the reports. There is mounting research evidence that using PROMs in individual patient care in oncology is beneficial to patients, but this approach has not found a place in routine clinical practice. A brief overview of this evidence will be provided. Following this, the presentation will focus on examples of incorporating PROMs and eHealth interventions into routine patient care during and after cancer treatment, drawing on 20 years’ experience in Leeds of using electronic systems for capturing patient reported data in oncology settings. Examples will be given of: 1) Monitoring toxicity during systemic cancer treatment using online PROMs integrated with Electronic Patient Records (randomized trial part of NIHR eRAPID programme); 2) Service development project - Remote follow-up of testicular cancer patients using online PROMs plus community-based investigations. Examples of other online PROMs systems will be presented. The values and challenges of PROMs integration in routine oncology practice will be discussed.

3.30 pm

The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK Professor Jose M Valderas

The Patient-Reported Outcomes Measurement Information System (PROMIS) is a system for the measurement of patient reported outcomes whose development was funded by the US National Institute for Health. Its methodological rigor, scope, ambition and flexibility (including both standardized short forms and computerized adaptive administration) has turned it into one of the standards of PROMs measurement, although its use is still very limited outside the US. The presentation will provide an overview of rationale for the development of the system, the methods employed in its development and the resulting scales and short forms and key characteristics, including Assessment Centre, the online platform supporting the use of PROMIs scales. Current applications and use of PROMIS in the UK will be reviewed and the potential for its application to support the management of patients in the NHS will be considered.

4.00 pm General discussion: Directions in PROMs research

Page 9 of 13

Posters 2.40 – 2.55 pm

Posters will be on display throughout the day. Delegates are encouraged to view posters over the lunch break. Authors will be available to present and discuss their posters during the time designated above.

Poster presentation Ruth Deech Building foyer and Seminar Room 9

P03

Usability of an electronic system to collect Patient Reported Outcome Measures: A mixed methods study

Alissa Walsh (John Radcliffe Hospital), Vanashree Sexton, Hinds Christopher, Andrew Kim, Charlotte Roberts, Thomas Kelley, Satish Keshav, Oliver Brain, Holm Uhlig, Gary Collins, Simon Travis, Michele Peters

P11

Assessing Condition-Specific Health-Related Quality Of Life In Lateral Epicondylar Tendinopathy: A Systematic And Standardised Comparison Of Available Instruments

Jonathan Evans (University of Exeter), Chris Smith, Ian Porter, Jaheeda Gangannagaripall, Charlotte Bramwell, Antionette Davey, Vicki Goodwin, Jose M Valderas

P18

Development of the Musculoskeletal Health Questionnaire (MSK-HQ) for use in different conditions and different healthcare pathways

Jonathan Hill (Keele University), Sujin Kang, Elena Benedetta, Helen Myers, Steven Blackburn, Stephanie Smith, Kate Dunn, Elaine Hay, Jonathan Rees, David Beard, Sion Jones, Karen Barker, Benjamin Ellis, Ray Fitzpatrick, Andrew Price

P19 Formative preference-sensitive measures are needed in person-centred healthcare

Mette Kjer Kaltoft, Jesper Bo Nielsen, Jack Dowie (London School of Hygiene & Tropical Medicine)

P20

Evaluation of adherence to the MAPS Reporting Statement in recently published studies mapping to EQ-5D from clinical or patient-reported outcome measures

Lucy Abel (University of Oxford), Helen Dakin, Richeal Burns, Yaling Yang

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P21

Development of an electronic personal assessment questionnaire to capture the impact of living with a vascular condition: the ePAQ-VAS

Patrick Phillips (University of Sheffield), Elizabeth Lumley, Ahmed Aber, Stephen Radley, Georgina Jones, Jonathan Michaels

P25 QursTReviewTM - Development of a Clinical Outcome Assessment Measure Appraisal System

Keith Meadows (DHP Research & Consultancy Ltd)

P26

A comparison of principal component analysis and nonlinear principal component analysis in the development of a new rheumatoid arthritis stiffness PROM

Serena Halls (University of the West of England), Emma Dures, John Kirwan, Gill Baker, Avis Edmunds, Sarah Hewlett

P28 Introducing Concerto Version 5 - a flexible open-source tool for developing and delivering patient reported outcome assessments

David Stillwell (University of Cambridge), Prezmek Lis, Chris Gibbons

P29 Key variants in quality of life and wellbeing of people with Parkinson's (PwP) and their caregivers in the UK

Suranga Dolamulla (Sheffield Hallam University), Anil Gumber

P30

Development of a screening measure for symptomatic parastomal hernia: Assessing clinically relevant endpoints in the CIPHER study

Charlotte Murkin (University of Bristol), Kerry Avery, Daisy Elliott, Sian Cousins, Neil Smart, Jane Blazeby, on behalf of the CIPHER study group

P31 Identifying potential quality of life issues for people living with PSC: a systematic literature search to locate relevant tools

Elena Marcus (University College London), Bella Vivat, Patrick Stone, Douglas Thorburn

P32

Can PROMs be used for emergency admissions? Exploring the use of retrospectively collected PROMs and their agreement with contemporaneously collected reports from hip and knee replacement patients in NHS hospitals

Esther Kwong (London School of Hygiene and Tropical Medicine), Jenny Neuburger, Nick Black

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P35

Using Patient Reported Outcome measures (PROMs) to promote quality of care and safety in the management of patients with end stage renal disease (ESRD) requiring treatment with haemodialysis

Nicola Anderson (University Hospitals Birmingham NHS Foundation Trust), Melanie Calvert, Mary Dutton, Paul Cockwell, Derek Kyte

P36 Development of a LTCQ social care subscale

Laurie Batchelder (University of Kent), Diane Fox, Karen Jones, Julien Forder, Raymond Fitzpatrick, Michele Peters, Caroline Potter

P39

Impact of Multidrug Resistant Tuberculosis treatment on Quality of Life among Patients registered under RNTCP in Gorakhpur division: Longitudinal Study

Venkatesh U (BRD Medical College, Gorakhpur), DK Srivastava

P40

Measurement properties of patient-reported outcome measures (PROMs) used in patients with chronic kidney disease: a systematic review

Olalekan Lee Aiyegbusi (University of Birmingham), Derek Kyte, Paul Cockwell, Tom Marshall, Adrian Gheorghe, Thomas Keeley, Anita Slade, Melanie Calvert

P42 Feasibility of using the Skin Cancer Quality of Life Impact Tool in Non-Melanoma Skin Cancers

Gorav N Wali (Oxford University Hospitals NHS Foundation Trust), Laura Kelly, Elizabeth Gibbons, Rubeta N Matin

P46 Patient and Carer Views on Ambulatory Care for Older Adults: A Pilot Study

Sara McKelvie (NIHR CLAHRC Oxford), Daniel Lasserson

P47 Using PROsetta Stone to Translate PROMIS Depression Scores for Meaningful Use in Orthopaedic Trauma

Amanda Spraggs-Hughes (Washington University School of Medicine), William Ricci, Michael Gardner, Christopher McAndrew

P48 PROMIS Physical Function, Pain Interference, and Depression: Assessing Outcomes in an Orthopaedic Trauma Setting

Amanda Spraggs-Hughes (Washington University School of Medicine), William Ricci, Michael Gardner, Christopher McAndrew

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P49 Insurance Status and Patient Outcomes in the Orthopaedic Outpatient Setting

Amanda Spraggs-Hughes (Washington University School of Medicine), William Ricci, Michael Gardner, Christopher McAndrew

P50 Collecting outcome data using a mobile and web app in musculoskeletal practice

Carol Fawkes (Barts and The London Queen Mary's School of Medicine and Dentistry), Dawn Carnes, Robert Froud

P52

Representing the experiences of functional limitation of people with CFS/ME: what is missing from the SF-36 physical function subscale and the Work and Social Adjustment Scale?

Bethan Jones (University of the West of England), Peter Gladwell, Corin Bourne

P54 Personal Wellbeing Score (PWS): A shorter version of ONS4

Tim Benson (R-Outcomes Ltd), Andrew Liles

P58

Development and validation of patient-reported outcome measures (PROMs): selecting the most appropriate qualitative research methods to establish content validity

Laura Grant (Adelphi Values Ltd), Jane Wells, Chris Marshall, Adam Gater

P60 One year after TKR, what proportion of patients improves, deteriorates or stays the same from here onward?

Anqi Gao (University of Oxford), Andrew Price, David Beard

P64

Patient Reported Outcomes integrated in the follow-up of patients with hematological cancers: A qualitative study of patients and health care professional’s experiences. A study in progress

Stine Thestrup Hansen (Zealand University Hospital), Nana Brochmann, John Brodersen, Bibi Hølge-Hazelton, Mette Kjerholt

P65

Individualised Patient-Reported Outcome Measures: A Systematic Review

Jaheeda Gangannagaripalli (University of Exeter), Ian Porter, Daniela Bradley, Ignacio Ricci-Cabello, Jose M Valderas

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P68

Evaluation of Patient-Reported Outcome Protocol Content and Reporting in UK Cancer Clinical Trials: The EPiC study qualitative protocol

Ameeta Retzer (University of Birmingham), Thomas Keeley, Khaled Ahmed, Jo Armes, Julia Brown, Lynn Calman, Chris Copland, Fabio Efficace, Anna Gavin, Adam Glaser, Diana Greenfield, Anne Lanceley, Rachel Taylor, Galina Velikova, Michael Brundage, Rebecca Mercieca-Bebber, Madeleine King, Melanie Calvert, Derek Kyte

P69 Proposed use of PROMs in the evaluation of the Diabetes Digital Coach NHS Test Bed Project

Tim Benson (R-Outcomes Ltd), Elizabeth Dymond, Sandra Tweddell

P70

Re-thinking the concept of Experience-Based Values: setting the right framework to estimate the effect of experience on health valuations

Koonal Shah, Patricia Cubi-Molla (Office of Health Economics)

P72

Patient satisfaction with healthcare in Thoracic Surgery is affected by complications regardless of the underlying disease

Cecilia Pompili (University of Leeds), Alex Cairns, Finn McLennan Battleday, Heather Bell, Joel Favo, Ranjani Mathangaweera, Oana Linder, Galina Velikova, Alessandro Brunelli

P74

The context of coping: a qualitative exploration of health services support and potential use of PROMs for people living with long-term conditions

Caroline Potter (University of Oxford), Laura Kelly, Cheryl Hunter, Ray Fitzpatrick, Michele Peters

P77

The use of broad generic PROMs survey, including health status, wellbeing, health confidence and experience, in the evaluation of a social prescribing service

Tim Benson (R-Outcomes Ltd), Andrew Liles

CLAHRC

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CLAHRC

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Peninsula

CLAHRC

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and Humber

CLAHRC

West

CLAHRC

West

Midlands

CLAHRC

Oxford