6 - 8 October

MDDA VIC 2017 FAMILY RETREAT

INFORMATION KIT

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Thank you for registering for the MDDA 2017 VIC Family Retreat. This kit should provide you with all the necessary information you require to assist with planning for your weekend away.

If you have any queries or concerns about the weekend, please contact

Jenny Briant at MDDA during business hours call 1800 288 460 or email office@mdda.org.au.

This Kit contains the following information…Event Details . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .3

Weekend Menu Options . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4

Meal Arrangements . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4

Program at a Glance . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .5

Program Preparation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .7

Family profile . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .7

Panel Q&A . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .7

Recipes/cooking exercise . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .8

Kids Club Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .8

Accommodation Features . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .9

Check in & Check Out . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .9

Coach Transfers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10

Onsite Recreational Activities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10

Other Onsite Considerations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10

Weather . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11

Summary of important information . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11

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Event DetailsVenue: CountryPlace

Address: 180 Olinda Creek Road, Kalorama VIC 3766

Phone: (03) 9728 7070

Website: www.countryplace.com.au

Directions: www.countryplace.com.au/directions/ (Olinda Creek Road is a dirt road so you may wish to enter from the back ofthecarpark,offLinkRoadasthisroadissealed)

Dates: Friday 6th October to Sunday 8th October

Times: Starts: 4.00pm onwards Friday (check in from 3.00pm and welcome starts at 4.00pm) Ends: 2.00pm Sunday (after lunch).

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Weekend Menu OptionsThe following meals will be provided for over the weekend. Please note, menu options are still subject to change.

FridayMeal Standard Menu Special Dietary/Low Protein Options Dinner Anti-pasta; salami,

prosciutto, cheese, dips, olives, marinated vegetables, grissini sticks, Assorted Pizzas, Nachos with sour cream, guacamole, cheese & salsaLemon, honey glazed roasted pears, with chocolate sauce. Lemon lime sorbet

Vegetable chowder, Zucchini & Eggplant chips with guacamole,Slushies and Fairy FlossSushi, Assorted Pizza, Nachos with sides, Shoestring French friesChocolate cake dessert with berries and coulisSlushies and Fairy Floss

SaturdayMeal Standard Menu Special Dietary/Low Protein Options Breakfast Scrambled eggs, Crispy

baconGrilled tomato, AvocadoVariety of cereals Fresh Fruit SaladYoghurt & DanishesBread & spreads

Grilled Mushrooms & TomatoesAvocado, Hash BrownsPancakes & SyrupCoconut yoghurt -low optionFresh Fruit SaladVariety of cereals - free & low optionsBread and spreads

Morning Tea Freshly baked Muffins Fresh fruit

Freshly baked MuffinsFresh fruit

Lunch Penne with chicken and garlic cream sauce Bolognese Lasagne Lasagne Classic garden salad (vegan) (gf) (df)Greek SaladGarlic & Herb BreadFrench friesFresh Fruit

Vegetarian LasagnePenne with Vegetarian Sauce, Classic garden salad (vegan) (gf) (df), Greek Salad, Garlic & Herb bread, Focaccias, French fries, Fresh fruit

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Saturday (cont.)Meal Standard Menu Special Dietary/Low Protein Options Afternoon Tea Assorted slices

Fresh FruitCup Cakes, Cookies, ShortbreadFresh Fruit

Dinner Beef Rendang & Tandori Chicken tendersJasmine Rice, Vegetable Pakoras,Orange & Avocado Salad, Minted Yoghurt and Mango ChutneyBasket of Poppadums & Roti BreadsApple & Berry Crumble, Ice Cream

Mild vegetable curry (pumpkin, beans & carrots), Jasmine RiceVegetable Pakoras, Sweet Potato & Coriander (side), Naan Bread, Orange and Avocado Salad, Minted Low pro yoghurt,French FriesApple & Berry Crumble, Ice Cream

SundayMeal Standard Menu Special Dietary/Low Protein Options Breakfast Scrambled eggs, Crispy

baconGrilled tomato, AvocadoVariety of cereals Fresh Fruit SaladYoghurt & DanishesBread & spreads

Grilled Mushrooms & TomatoesAvocado, Hash BrownsPancakes & SyrupCoconut yoghurt -low optionFresh Fruit SaladVariety of cereals - free & low optionsBread and spreads

Morning Tea Assorted MuffinsFresh Fruit

Assorted MuffinsFresh Fruit

Lunch Lamb Koftas, Chicken Skewers, SausagesCabbage, Apple, Herb & Celery Slaw with French Dressing, Salad of Spinach, Green Beans, Red Onion, Roasted Capsicum, Olives and Balsamic dressing, Baked Potatoes, sour cream,Fresh Breads, Fresh Fruit

Vegetable Kebabs, Kate’s Favourite Burger, Green Salad, Marinated Mushrooms,French Fries, Cabbage, Apple, Herb & Celery Slaw with French Dressing,Fresh Breads, Fresh Fruit

Meal Arrangements

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Meal Arrangements (cont.)• Low Protein Meals: You will note from these meals that a combination of varying

protein free and low protein options will be made available for both adults and kids.• Food Concerns: If you have any concerns with any of the above menu low protein

options for yourself or your child, and wish to discuss them in advance please contact Jenny on 1800 288 460. Please note any special requests onsite may not be able to be managed. The closest supermarkets to the conference venue are a 10 minute drive at Mt Dandenong IGA, 1526 Mount Dandenong Tourist Rd, Olinda VIC 3788.

• Snacks: Please note outside of these above meals, bowls of fresh fruit will be available for consumption at your leisure. Standard and Low protein biscuits and snacks will also be supplied in a limited quantity, however we suggest you plan to bring your own additional snacks for storage within your room.

• Beverages: Coffee, tea and juice will be made available during main meal times. With tap water available at all times. Other beverages can be purchased at your own costs alternatively please bring any preferred nonalcoholic beverages or soft drink of your choice to be kept in our communal refrigerator (labeled with your name).

IMPORTANT: This venue is fully licensed so you can NOT bring your own alcohol. You must purchase this through the venue during meal breaks.

• Meal locations: All breakfasts, lunches and dinners will be served in the Main Communal dining/lounge area or directly outside on the decking (weather permitting).

• Additional Food: Any additional food brought to the venue can be consumed within your rooms or brought to the communal dining/lounge area for sharing by all in between meals. You are all most welcome and in fact encouraged to bring along your favourite low protein snack or meal for others to sample whilst onsite. Please ensure you label anything if you do not wish for it to be shared.

• Formula: All participants must bring their own formula & any medications or other prescription products as required. These can be stored in the refrigerator located in the communal areas (please ensure they are labeled or stored in a named bag).

• Other Special Dietary: If you have any special dietary requirements other than low protein, please ensure you make us aware of these by COB Monday 2nd October 2017 so you can be catered for.

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Program at a GlanceThe following is the latest program of activities. Please note this is still subject to some slight changes in times and sessions.

Time Activity

FRIDAY2.00pm Airport Transfer – coach departs Airport (pre-booking essential)

3.30pm Airport Transfer – coach arrives at Country Place

3.00 – 4.00pm Guest Check in

Kids Club Opens (teams formed and craft activity)

Restaurant & Outlook Conference Room

4.00 – 4.05pm Guests seated and MDDA WelcomeMonique Cooper, MDDA President Shiloah Room

4.05 – 4.15pm PKU - A Global OutlookMonique Cooper, MDDA PresidentShiloah Room

4.15 – 4.50pm ESPKU Connect – Closing the Gaps - Live Stream.Louise Healy, MDDA Vice President (live from Norway via webex).Shiloah Room

4.50pm onwards Break - Other guest arrivals

Bar Opens

5.15 – 5.35pm My IEM Experience (7 mins each)- Fiona Kirwan – Life with MSUD – Ruby’s story- Katy Drewitt – PKU Mum and Sleeve Surgery- Debbie Colyer – PKU PioneerShiloah Room

5.35 – 6.15pm MDDA Formal Welcome & Introductions (Up to 1 min each family)Pre-dinner drinks (Pleasedonotmissthissession)Shiloah Room

6.15pm Stand Up dinnerFun and casual food in a relaxed atmosphereEntertainment (Incl. musician/s and interactive teambuilding activities / ice breakers)Dining Room and Deck

Post Dinner Evening Activities

ADULTS KIDSRelax and catch up with friends and make some new ones.

Supervised Activities Room open with games & movies.

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Time Activity

SATURDAY7.00 – 8.30am Breakfast

Dining Room

8.15 – 8.30am Register kids for kids club & activities program – Outlook Conference Room

8.30 – 10.25am Kids Ice breaker - Ropes Course suited for all agesOutlook Conference Room

8.30 – 8.35am Guests seated Shiloah Room

8.35 – 8.40am MDDA Welcome and introductionMonique Cooper, MDDA President Shiloah Room

8.40 – 9.05am Long Term Effects of Medically Prescribed Diets on Growth and Body Composition in Children with Inborn Errors of Metabolism. Maureen Evans, Metabolic Dietitian RCHShiloah Room

9.05 – 9.30am Making your protein choices count. What’s on your plate? Making the right choices for a balanced low protein diet and the importance of portion control. TBCShiloah Room

9.30 – 10.00am Guidelines: all the things you didn’t want to know Dr Avihu Boneh, Metabolic Physician RCHShiloah Room

10.00 – 10.25am PKU Other IEMsNewly Released - National Guidelines for PKU (inc Maternal & BH4) Anita Inwood, Nurse Practitioner, QLD Lifespan Clinic Shiloah Room

Managing practicalities and anxieties of IEM sick daysSusi Hendricks, MDDA Wellness Program Manager ShiloahLounge

10.25 – 10.40am Morning tea breakDining Lounge (collect kids from kids club or meet at Ropes)

10.40 – 12.15pm Kids Club. Littlies – Kids Club games

Kids/Teens – Ropes Course cont. or basketball, cricket, footy etcOutlook Conference Room

10.40 – 11.20am Q&A Panel Discussion – Maureen, Avihu & Anita- National guidelines, Neurocognitive considerations, Protein counting, Advances in treatments (eg. Kuvan, Pegpal etc).Shiloah Room

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Time Activity

SATURDAY (CONT.)11.20 – 12.15pm Parents Adults (optional for teens)

Transitional considerations & preparation – teens to adultsEvelyn Culnane, Transitional Therapist, RCHShiloah Room

Understanding the needs of PKU Adults – exploring the PKU Adult study resultsFacilitated by Katy Drewitt, Carmen Esparon & Debbie ColyerSilvan Room

12.15 – 1.00pm Lunch (Buffet)Dining Room(collectkidsfromkidsclub)

1.00 – 1.25pm Parents (kids optional) Adults & TeensFormula Overview PKU & other IEM (kids)Maureen Evans & Erin Mullane, Metabolic Dietitians RCHShiloah Room

Formula Overview PKU (adults & teens)TBCSilvan Room

1.25 – 1.45pm Exploring effective bloodspot testing and monitoring of your IEM Mia Normoyle, Metabolic Nurse Consultant RCH Shiloah Room (incl.kids&teens)

1.45 – 2.35pm Formula Tasting – (inclusion of blood spot 1on1 consultancy and game) Hosted by Pharmaceutical companies (bloodspot by Mia Normoyle, Metabolic Nurse Consultant RCHShiloah Room (incl.kids&teens)

2.45 – 3.30pm Kids & teens (6-14+) ParentsMartin Heppell, The Resilience ProjectOutlook Room

Parenting experiences and tips for Self-Management & Building Independence in kids of all agesFlora Pearce, Metabolic Counsellor, RCHShiloah Room

Adults (optional for teens)Building a collaborative program for supporting holistic health and wellbeing in IEM adultsSusi Hendricks & Carmen Esparon MDDA Wellness Program Silvan Room

3.30 – 3.45pm Afternoon Tea Break Deck

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Time Activity

SATURDAY (CONT.)3.30 – 3.40pm Laser Skirmish briefing (kids and adult players)

MainLawnMust have long pants and fully enclosed shoes

3.40 – 5.15pm Laser Skirmish – kidsMain Lawn

3.45 – 5.00pm Adults & Parents Martin Heppell, The Resilience ProjectShiloah Room

5.00 – 5.05pm Closing CommentsMonique Cooper, MDDA PresidentShiloah Room

5.05 – 5.45pm Free Time (or adult skirmish)

5.45 – 6.30pm Pre-dinner drinks & nibbles and MDDA AGM (Presentations and AGM starts 6.00pm for 20 mins) (Include Webex live stream)Monique Cooper, MDDA President & Paige Moore, MDDA TreasurerShiloahLounge

6.30pm Sitdown buffet dinnerIncl. Grand Hotel Warrandyte Interview Brad Hawker and Peter ApplebyDining Room

After dinner – free time to socialize

Kids movie in kids room

SUNDAY7.30 – 8.50am Breakfast /Check Out

Dining Room

8.45 – 12.45pm Kids Club – Group Activities/Games (adults not doing cooking may join in)

8.50 – 8.55am Welcome back & Team Cooking GroupingsMonique Cooper, MDDA PresidentShiloah Room

8.55 – 9.05am Travelling tips on a low protein diet Bianca Albanese, PKU Adult Shiloah Room

9.05 – 9.15am Adult Wellness Program PlansSusi Hendricks and Carmen Esparon, MDDA Wellness ProgramShiloah Room

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Time Activity

SUNDAY (CONT.)9.15 – 9.45am Making low protein cooking interesting and delicious with real

foods.Brad Hawker, The Grand Hotel Warrandyte Shiloah Room

9.45 – 9.50am Groups breakout

9.50 – 10.40am GROUP 1 GROUP 2Cooking Techniques interactive demonstrationBrad HawkerShiloah Room

Low Pro Interactive Cooking DemonstrationsSponsors (Cortex, Nutricia, & Vitaflo) ShiloahLounge

Kids (Parents optional) Outdoors

10.40 – 11.00am Morning Tea / Check out / Group ChangeoverLounge

11.00 – 11.50am GROUP 2 GROUP 1Cooking Techniques interactive demonstrationBrad HawkerShiloah Room

Low Pro Interactive Cooking DemonstrationsSponsors (Cortex, Nutricia, & Vitaflo) ShiloahLounge

Kids & Parents Cricket Game & other activities LawnArea

11.50 – 12.00pm Cooking Groups Combine for presentation of dishes and close

12.00 – 12.35pm Closing Presentations – Meanwhile… in Brazil Marta Rachman, President PKU SAFE BrazilShiloah Room

12.35 – 12.45pm Reflections, thank you’s, wrap up and Prize drawsMonique Cooper, MDDA PresidentShiloah Room

12.45 – 2.00pm Final lunch – Buffet BBQDining Room

2.00 – 2.15pm Retreat concludes / Final clean up / Checkout2.15pm Coach departs (back at airport by 4pm)

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Sunday• 8.45am til 12.45pm

Children aged 2 years and over, requiring supervision are welcome to participate in the program at no cost.

For those that are comfortable to include their children in this program you will be introduced to our childcare workers and requested to sign in your children at this time permitting them to participate in this program. Any special requirements/concerns with your child can be discussed at this time with the carers. All ages are permitted, however if easier, younger infants can remain with parents in discussions forum sessions.

A full program of activities for the kids is planned including ball games, indoor activities & games or downtime with a movie and rest for those that need it. On Saturday children aged 5 to 16 will be undertaking a game of laser tag – all children must be wearing long pants, enclosed shoes and a cap or hat during this game please.

Once a child is signed into the program they are not permitted to leave without the parent signing them out first. This includes going back to their rooms or wandering off to hang out with any older unsupervised children. Please remember, especially for the younger children – nappy bags and/or backpacks need to be clearly named (for nappy/clothing changes).

Kids under 12 years and under must be supervised by a parent at all times if not in the kids club program. Any kids not signed into the program will not be the responsibility of the childcare workers.

Family profileThis year’s retreat promises to be a great weekend with some new families attending. So as to assist everyone with getting to know you, and facilitating greater networking during the weekend, we would like to request that each family complete a Participant profile card (attached), and provide these back to us no later than 12pm AEST Tuesday 3rd October.

Panel Q&ACome prepared to pose a question to health professionals, parents & adults in our Q&A panel discussion - Management of IEMs in Australia. You will have an opportunity to ask your questions to our very special Panel Members who are offering their valuable knowledge and insight.

If you would prefer to ask a question and remain anonymous, you can write these down and forward to office@mdda.org.au prior to the retreat.

Kids Club Program So that you can enjoy some non-interrupted time during the discussion session we are proving supervised activities and care for your kids during the group discussion session times as follows.

Friday• 3.30pm til 6.15pmSaturday• 8.15am til 12.15pm• 1.00pm til 3.30pm• 3.45pm til 5.05pm

Program Preparation

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No room service or housekeeping is available – so please consider bringing your own snacks for consumption in your rooms as desired and make use of the refrigerator allocated to your accommodation wing or in the communal room.

Check in & Check Out • Unless other arrangements have been

made, check-in is from 3.00pm on the Friday.

• Check-out is Sunday morning either during breakfast or morning tea (must be ahead of lunch). You will need to pack and move your luggage to reception room at this time or load into your car and hand back you key at reception.

Coach Transfers This is only available to those who have pre-registered by Monday 2nd October. Please send your flight information (flight arrival time, airline and flight number) to office@mdda.org.au by COB Monday 2nd October!

Upon arrival at the airport, please meet Carmen (holding a MDDA sign) at luggage claim belt 1 in the Melbourne Airport Terminal 3 (Virgin) at 1.45pm. If you are delayed for any reason, please call Carmen on 0411 399 507 as soon as possible.

The return transfer will leave the Retreat at 2.15pm sharp on Sunday afternoon to reach the airport at approximately 4.00pm. It will then do a drop off at Federation Square in the city centre at approx 4.30pm.

Accommodation FeaturesMDDA has sole occupancy of CountryPlace from Friday afternoon through Sunday lunchtime and will therefore be the only guests in attendance. Please note: If you have made your own arrangements with the venue to arrive on the Thursday night, there will be no services or catering available until Friday afternoon.

Accommodation at the retreat provides for comfortable en-suited guest bedrooms. All families will be provided with their own room for the weekend. Families with older children have been allocated two rooms side by side.

Facilities included in rooms…

• 1 King bed or 2 single beds • Reverse-cycle air-conditioning • Ensuite Bathroom• TV • Linen provided• Telephone• Cots and Highchairs are NOT provided

for, so if you require these items please contact the team at MDDA to identify what arrangements have been made.

• Blow up mattresses - only for those families requiring additional bedding.

• Please Note: accommodation rooms do not have fridges. There are however shared refrigerators provided in each accommodation wing, and also a communal fridge is located in the lounge/dining area. IMPORTANT – please clearly label all items with your name.

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Other Onsite Considerations• Parking is available in the main carpark

at the rear of the main building.• Smoking is only permitted outside

the retreat buildings. Please make sure all cigarette butts are properly extinguished and disposed of.

WeatherAverage daily temperature in Melbourne this time of year are around 20-22 degrees (generally sunny but chance of rain), with nights cooling to around 12 – 13 degrees. We advise you bring a warm jacket for evenings and you may wish to bring bathers for the pool during the days. Sunscreen is also advisable to be worn each day.

Onsite Recreational ActivitiesThe resort also has some wonderful outdoor facilities to be enjoyed such as a

• Swimming pool (not heated), (BYO OWN TOWEL)*

• Tennis courts• Basketball Court• Billiard Table

Supervised swimming will not be offered by the kids’ club, and swimming by any kids can only be done under adult supervision.

*Towels provided by the venue cannot be used at the pool. Please bring your own towel if you wish to use this facility, thank you.

Equipment for these activities are available on site as well as basketballs. You are also encouraged to bring your own games and sporting equipment if there is anything you would like to share with the group. There is also a DVD player and TV in the rec room and you are welcome to bring along any latest kid’s movies for viewing by all.

Summary of important information If catching bus send flight information to office@mdda.org.au by end of

Monday

Contact Jenny immediately if you have any dietary concerns over the menus

BYO cash or credit card to purchase alcoholic and soft drink beverages

BYO towel for swimming

For Juniors – ensure bags are clearly labeled and that all kids have hat/cap & long trousers/enclosed shoes for Skirmish

Any items to be replaced in communal fridges must be clearly labeled with your name (no responsibility is taken for items consumed by someone else)

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Notes

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Metabolic Dietary Disorders Association Suite 4, 6 Thomas Brew Lane Croydon VIC 3136

PO Box 33 Montrose VIC 3765

Phone 03 9723 0600 | Fax 03 9723 0700 | Freecall 1800 288 460 office@mdda.org.au | www.mdda.org.au

MDDA FAMILY RETREAT SPONSORS