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CHANGING THE WORLD FOR PEOPLE AFFECTED BY MS
BETHDIAGNOSED IN 2009
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3
ANQUNETTEDIAGNOSED IN 2013
WHAT’S INSIDEAbout the National MS Society .........................................................................................................................2Southern California & Nevada Chapter ............................................................................................................3Research ............................................................................................................................................................4Programs & Services .........................................................................................................................................6Advocacy............................................................................................................................................................8Access to MS Care ..............................................................................................................................................9Ways to Give ....................................................................................................................................................11Bike MS ............................................................................................................................................................12Walk MS............................................................................................................................................................13Muckfest MS .....................................................................................................................................................14Challenge Walk MS ..........................................................................................................................................15Dinner of Champions ......................................................................................................................................16National Senior Leadership Team ..................................................................................................................18National Board of Directors ............................................................................................................................19Chapter Senior Leadership Team ...................................................................................................................20Chapter Board of Trustees ..............................................................................................................................21Chapter Offices ................................................................................................................................................21Chapter Staff ...................................................................................................................................................22Contact Us .......................................................................................................................................................24
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DONNADIAGNOSED IN 1989
ABOUT THE NATIONAL MS SOCIETYThe National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn’t.
> We are moving research forward by relentlessly pursuing prevention, treatment and a cure.
> We are moving to reach out and respond to individuals, families and communities living with multiple sclerosis.
> We are moving politicians and legislation to champion the needs of people with MS through activism, advocacy and influence.
> We are moving to mobilize the millions of people who want to do something about MS now.
HISTORY
In 1946, frustrated by inability to find solutions to her brother’s visual and balance problems, Sylvia Lawry placed an ad in the New York Times. “MULTIPLE sclerosis. Will anyone recovered from it please communicate with patient.” She got 50 replies sharing similar frustration, and then single-handedly launched an international war on MS.
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SOUTHERN CALIFORNIA & NEVADA CHAPTERThe National MS Society, Southern California & Nevada Chapter helps more than 105,000 people affected by MS in our area address the challenges of living with MS. We help by raising funds for cutting-edge research, driving change through advocacy, facilitating professional education and providing programs and services that empower people with MS and their families to move their lives forward.
We offer many programs — including professional counseling and peer facilitated support groups, educational programs and seminars, referrals to neurologists and healthcare professionals, national teleconferences and internet programs, services for the homebound, and social and recreational programs to assist people with MS and their families in leading productive and fulfilling lives.
The Southern California & Nevada Chapter is operated by over 30 staff members located in seven offices throughout the chapter territory. Each year, hundreds of volunteers dedicate thousands of hours to support the local MS community through special events, programs, peer-led support groups, and more.
Southern California & Nevada Chapter
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CLAIREDIAGNOSED IN 2007
RESEARCHACCELERATED RESEARCH BREAKTHROUGHS CHANGE LIVES AND END MS FOREVER.
The National MS Society is recognized as the catalyst for all major advancements in MS research and funds more projects than any other MS organization in the world. To date, the Society’s investment totals $870 million in innovative research and with this investment we’ve:
> Recruited more than 800 MS researchers to the field
> Provided early career support and funding to nearly every thought leader in MS research
> Set standards in diagnosis, symptom management, pediatric MS, complementary and alternative medicine, rehabilitation research, clinical trial strategies, and stem cell research
> Established the MS field of nerve and myelin repair which resulted in trials for treatment
> Driven research uncovering genes contributing to MS susceptibility and new treatment avenues
> Paved the way for all existing therapies - none of which existed 20 years ago
RESEARCH FUNDING IN 2016
In 2016, to date the Society committed $25.3 million to support an expected 60 new MS research projects and training awards. This financial commitment is the latest in the Society’s relentless research effort to expand investments and worldwide collaboration to accelerate research.
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10 YEARS OF RESEARCH PROGRESS
2015 First trial to show modest slowing of primary progressive MS
2006 Tysabri approved in U.S. for treating relapsing MS (sixth MS treatment available)
2007 Society launches Fast Forward to speed treatments for people with MS by partnering with industries to develop new therapies
2010 First trials of new medications to repair myelin in people with MS
2011 Society supports controlled study to determine whether vitamin D supplements can reduce MS disease activity
2012 Launch of International Progressive MS Alliance to speed the development of therapies
2012 Launch of studies into whether bacteria in the gut influence MS disease activity or risk
2013 Society funds research into whether dietary salt can speed the development of an MS-like disease in mice and may influence immune activity in MS
2014 Society convenes Wellness Conference to map out gaps and opportunities in research and programs to find wellness solutions for people with MS
2015 Over a dozen disease modifying therapies and several symptom treatments are now available
PROMISING PATHS
RESEARCH WE FUND: LOCAL INSTITUTIONS
This year, over $4.5 million of Society funded MS research is taking place at institutions in Southern California:
Brentwood Biomedical Research Institute Cedars-Sinai Medical Center Kaiser Foundation Hospitals
University of California, Los Angeles University of Southern California
JENNIFERLIVING WITH PROGRESSIVE MS
SINCE2000
INTERNATIONAL PROGRESSIVE MS ALLIANCE: A global initiative that aligns MS organizations from around the world to tackle progressive MS. In 2015, the Alliance awarded Challenge Grants for projects that focused on four research priority areas:
> Better understanding progression so we can identify and test treatments
> Designing shorter, faster trials that measure patient outcomes
> Conducting trials to test agents
> Developing and evaluating new therapies to manage symptoms
MS INTERNATIONAL FEDERATION: A unique global network of 45 MS member organizations from around the world.
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JOEDIAGNOSED IN 2010
PROGRAMS & SERVICESEACH PERSON WITH MS CAN LIVE THEIR BEST LIFE WITH MORE CONNECTIONS TO INFORMATION, RESOURCES, AND OTHERS WITH SHARED EXPERIENCES.
The National MS Society offers more programs and services than any other MS organization in the world. Each person affected by MS, including their families and loved ones, can connect 24/7 to the most comprehensive and reliable information and resources available, whether online, in-person, or via telephone. Each year:
> More than 200,000 people connect to the Society’s Information Resource Center, a central hub managed by our MS Navigators to provide resources, referrals, information, and answers
> 1.9 million people receive monthly eNews and 600,000 people connect to those with shared experiences and experts through our online social network, MSConnection.org
> 24,000 people subscribe to the Southern California & Nevada Chapter’s quarterly MS Connection newsletter, and 900 Latinos with MS subscribe to Conexión Hispana
> More than 1,000 people in Southern California and Nevada connect with over 55 peer-led support groups each year in their local communities
> Over $245,000 in direct financial assistance helps more than 515 people living in Southern California and Nevada each year address their greatest needs including emergency rent, utilities, transportation, durable medical equipment, care management, and more
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WHAT WE OFFERWELLNESS PROGRAMS
The National MS Society, Southern California & Nevada Chapter offers a variety of in-person wellness programs in local communities:
> Beyond Diagnosis, designed for people newly diagnosed with MS, brings a team of MS health and wellness professionals to engage in an open dialogue about MS and how wellness practices can help people live their best lives with MS.
> Exercise and MS is an innovative 12-week program that provides an integrative and functional approach to wellness, helping individuals who may be experiencing physical challenges with MS address the changes that impact aspects of daily living.
> Optimal Living with MS helps people with MS take control and reclaim their sense of well-being by helping them improve performance, regain and maintain independence, and overcome challenges presented by this disease.
> Free From Falls is the Society’s fall prevention program designed specifically for people with MS who are able to walk but may be at risk for falling. This program helps participants gain an increased awareness of what can contribute to falls, identify strategies to prevent falls, develop a fitness plan to improve balance, strength, endurance, and mobility, and increase confidence to avoid and manage falls.
> CogniFitness helps participants realize their optimal thinking skills by utilizing techniques that have everyday applications. Participants learn to facilitate focus and concentration; improve memory using new strategies; and improve organization, problem solving, and critical thinking skills.
CONNECTION PROGRAMS
> Self-Help Groups: Connecting with others with similar life experiences can inspire positive change. With over 55 peer-led support groups across Southern California and Nevada, people with MS can connect in-person, online, and by phone to share experiences, get support, and learn from others.
> Relationship Workshops: MS affects the entire family, and the Society offers relationship workshops that help foster connections, strengthen relationships, and provide support for carepartners.
> Scholarships: MS shouldn’t stand in the way of an education. This is why the National MS Society’s scholarship program exists — to help highly qualified students who have been diagnosed with MS, or who have a parent with MS, achieve their dreams of going to college. In 2016, over $34,000 was awarded to 34 scholars in Southern California and Nevada, and over $1 million to 815 scholars across the country.
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ANNEDIAGNOSED IN 1993
ADVOCACYTHE VOICES OF PEOPLE AFFECTED BY MS ARE HEARD AND DRIVE CHANGE WHEREVER IT IS NEEDED.
MS activists work to ensure people with MS have access to treatments, information, and support to make the best decisions for themselves and their families. More than 75,000 activists across the country share their personal stories to create positive change for everyone affected by MS. Activists also gather at the Society’s annual Public Policy Conference in Washington D.C. to advance federal policies and programs.
WHAT WE ARE TRYING TO ACCOMPLISH
> MS Research Funding: To invest in MS research by funding the National Institutes of Health (NIH) and Multiple Sclerosis Congressionally Directed Medical Research Program (CDMRP).
> Patient Cost Sharing (CA - SB 923): To protect consumers from changing co-payments, co-insurance, deductible or any other cost-sharing requirements during the plan year, unless required by a change in state or federal law.
> Telehealth Access (CA - AB 2507): To require health plans to include telehealth as a reimbursable service. For people living in rural areas or who are unable to travel to a doctor’s office, telehealth services have the ability to improve the quality of care provided to patients and their families and facilitates equal access to MS specialists.
> Timely Access to Care & Consumer Call Center Rights (CA - SB 1135): To require that health plans notify patients of their right to timely access to care and language assistance through existing plan documents and communication channels. This bill will help ensure that people living with MS can maintain their health and well-being and avoid costly and potentially damaging delays and/or interruptions in obtaining health care services.
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ACCESS TO MS CAREACCESS TO AFFORDABLE, HIGH QUALITY HEALTHCARE IS ESSENTIAL FOR PEOPLE WITH MS TO LIVE THEIR BEST LIVES.
Managing MS is an ongoing process, beginning with the very first symptoms and continuing throughout the disease course. The National MS Society provides access to a network of healthcare professionals that can connect individuals to the best resources for comprehensive MS care.
LOCAL PARTNERS IN MS CARE
Casa Colina Rehabilitation (Pomona, CA) UCLA School of Medicine (Los Angeles, CA) USC MS Comprehensive Care Center (Los Angeles, CA) Harbor UCLA Medical Center (Torrance, CA)
ACCESS TO HIGH QUALITY MS HEALTHCARE PRINCIPLES
The rapid evolution of the healthcare system in the United States, inspired in part by MS activists, has led to significant progress in the care and treatment of people with MS. Yet, much vital work remains to be done. The National MS Society created the Access to High Quality MS Healthcare Principles to serve as the foundation for our advocacy, communication, programmatic, and research strategies moving forward. Learn more at www.nationalMSsociety.org/accesstocare.
CARLOSDIAGNOSED IN 2001
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MICHAELDIAGNOSED IN 2004
EVERYONE WHO WANTS TO DO SOMETHING ABOUT MS CAN FUEL PROGRESS
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LISADIAGNOSED IN 1998
WAYS TO GIVEThe National MS Society, Southern California & Nevada Chapter receives generous support from a variety of sources each year.
FOUNDATIONS & CORPORATE GRANTS
Foundations and corporations give generously each year to support the Chapter’s programs, services, financial assistance, research, and operations.
INDIVIDUAL GIVING
Generous individuals make contributions each year through direct giving, workplace giving, tributes and memorials, planned giving, employer matching gifts, gifts of stock or securities, and more.
GIVING CIRCLES
> Golden Circle: Members of the Golden Circle make an annual gift of $1,000 or more. In 2015, this annual campaign raised more than $2.3 million for the Chapter.
> Circle of Distinction: Members of the Circle of Distinction give or raise $1 million or more.
> Lawry Circle: Members of the Lawry Circle establish a deferred gift, such as an estate plan or trust.
SPECIAL EVENTS
The Southern California & Nevada Chapter hosts an array of fundraising events each year, including Bike MS, Walk MS, Muckfest MS, Challenge Walk MS, and Dinner of Champions.
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BIKE MSFor cyclists and all those seeking a personal challenge and a world free of MS, Bike MS is the premier fundraising cycling series in the nation. With a choice of more than 100 extraordinary rides, the Bike MS experience is the ride of your life. More than 100,000 cyclists come together each year to challenge themselves, raise vital funds, and fuel their passion for cycling year round.
Bike MS: Coastal Challenge and Bike MS: Vegas raise over $1.25 million annually to fight against MS. Over 1,500 cyclists participate in the events each year. Scenic routes travel through iconic Southern California and Nevada locations, with magnificent views of coastlines, mountains, and everything in between.
WWW.BIKEMSSOCAL.ORG | WWW.BIKEMSVEGAS.ORG
BIKE MS IS THE
LARGESTORGANIZED CYCLING SERIES IN THE COUNTRY
100 BIKE MS RIDES AROUND THE COUNTRY
THEREARE APPROXIMATELY
100,000RIDE IN ABIKE MS EVENTEACH YEAR
MS RAISED NEARL Y
$83 MILLIONIN 2013 TO SUPPORT MS,
80% OF CYCLIST SPARTICIPATE IN FRIENDS & FAMILY
OR CORPORA TE TEAMS
THERE ARE MORE THAN
3,000AND HAS RAISED OVE R
$1 BILLIONSINCE ITS INCEPTIO N
CORPOR ATEBIKE TEAMSACROSS THECOUNTRY
BIKE
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WALK MSWalk MS connects people living with MS and those who care about them. Participants in this community event raise funds that give hope to more than 2.3 million people living with MS worldwide. Walk MS started in 1998 and to date participants of the event have raised more than $920 million to support life-changing programs and cutting-edge research.
The Southern California & Nevada Chapter hosts Walk MS events throughout the spring and fall in: Antelope Valley (Lancaster), Bakersfield, Big Bear, Conejo Valley (Thousand Oaks), Desert Cities (Palm Desert), Fresno, Inland Empire (Ontario), Las Vegas, Long Beach, Los Angeles, Reno/Sparks, San Luis Obispo, Santa Barbara, and South Lake Tahoe. Both one and three mile routes are available at each event.
Locally, 20,000 people participate in Walk MS annually and raise over $2.5 million in the fight against MS.
WWW.WALKMS.ORG
92% WALKTHERE ARE NEARLY
550WALKS ACROSSTHE COUNTRYEACH YEAR
APPROX IMATELY
330,000PEOPLE PARTICIPATE INWALK MS EVENTS EACH YEAR
BECAUSE OF ACONNECTION TO MS
84% OF PARTICIPANTS
THERE ARE MORE THAN
680CORPORA TE
TEAMSACROSS THECOUNTRY
ARE ONFRIENDS &FAMILY ORCORPORATE
TEAMS
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MUCKFEST MSMuckfest MS is the fun mud and obstacle 5K for everyone. If you can laugh, you can do it: no special training required. Have a blast on a mountain of mud and 15+ outrageous obstacles that will spin, swing, and fling you and your teammates up, down, and sideways. The event is built for laughs, but we’re also on a serious mission: to support people living with MS and to bring us closer to a world free of MS. And you’ll feel great knowing that 100% of your team’s fundraising dollars support the National MS Society. Muckfest MS has over 25,000 participants nationally on 4,000 teams, raising over $2.2 million.
At MuckFest MS Los Angeles, over 2,000 participants join the movement annually, raising over $135,000. The event takes place in the fall at Prado Regional Park in Chino Hills, CA.
WWW.MUCKFESTMS.ORG
APPROXIMATELY
40,000PEOPLE PARTICIPATEIN MUCKFEST MSNATIONALLY
3,000-8,000PARTICIPANTS PER CITY 61% HAVE A
CONNECTION
TO MS
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CHALLENGE WALK MSChallenge Walk MS is an endurance walking experience that tests your strength and spirit, and makes an extraordinary difference in the lives of people with MS. Every mile you walk means more funding to help those facing the daily challenges of living with this disease. A minimum fundraising goal is required, and we’ll be with you every step of the way with fundraising tools, training schedules, group support, and much more.
The Southern California & Nevada Chapter hosts Challenge Walk MS: Southern California each fall. Walkers take a 3-day, 50-mile journey through iconic Southern California locations, enjoying spectacular ocean views and a sense of camaraderie that cannot be matched anywhere else. The route is fully supported with rest stops, beverages, and medical staff. All participants spend two nights at our host hotel and are treated to banquet breakfasts and dinners.
The walk will challenge you-the experience will change you. Three days. 50 miles. Connect to end MS.
WWW.MYMSCHALLENGE.ORG
25%
APPROX IMATELY
2,000PEOPLE PARTICIPATE INCHALLENGE WALK EACH YEAR
OF PARTICIPANTS
LIVE WITH MS
87% OF PARTICIPANTS
THERE ARE MORE THAN
680CORPORA TE
TEAMSACROSS THECOUNTRY
ARE ONFRIENDS &FAMILY ORCORPORATE
TEAMS
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DINNER OF CHAMPIONSEach year, the Southern California & Nevada Chapter’s Dinner of Champions events honor someone who epitomizes a commitment to excellence in his or her professional and personal life. This event series has contributed over $50 million toward global research initiatives to stop MS, restore lost function, and put an end to the disease, along with local programs and services to support people with MS and their families.
Our Dinner of Champions events take place in Fresno, Las Vegas, Los Angeles, and Reno. Both company tables and individual tickets are available for purchase.
WWW.DINNEROFCHAMPIONS.COM
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BRIANDIAGNOSED IN 2009
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NATIONAL SENIOR LEADERSHIP TEAMCyndi Zagieboylo President & CEO
Bruce Bebo Executive Vice President, Research
Tami Caesar Chief Financial Officer
Tim Coetzee Chief Advocacy, Services, and Research Officer
Kathleen Costello Vice President, Healthcare Access
Jennifer Douglas Executive Vice President, Technology
Sherri Giger Executive Vice President, Marketing Corporate Counsel
Lisa Goldfarb Executive Vice President, Human Resources
Eric Hilty Chief Legal Officer
Kay Julian Executive Vice President, Services
Jennifer Lee Executive Vice President, Southeast Region
Graham McReynolds Chief Marketing & Development Officer
Mark Neagli Executive Vice President, South Central Region
Debbie Pope Executive Vice President, Development
Maureen Reeder Executive Vice President, Midwest Region
Phyllis Robsham Executive Vice President, West Region
Maureen Ryan Executive Vice President, Relationship Strategy & Management
John H. Scott Chief Field Services Officer
Bari Talente Executive Vice President, Advocacy
Paul Weiss Chief Operating Officer
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OFFICERS
Chairman of the Board Peter A. Galligan - National Bank Holdings Corporation Boston, MA
President & CEO Cynthia Zagieboylo Honeoye Falls, NY
Secretary Linda J. McAleer - President, The Melior Group, Inc. Philadelphia, PA
Treasurer Richard Knutson - Chief Operating Officer, Larkin Hoffman Daly & Lindgren Ltd Bloomington, MN
DIRECTORS
Mindy B. Alpert Great Neck, NY
Valli Baldassano - President, Cambryn Biologics, LLC Ottsville, PA
Michael A. Bogdonoff, Esq. - Retired Partner, Dechert LLP Philadelphia, PA
Doug Coy - Managing Member, Coy & Co., PLLC Little Rock, AR
Dana M. Foote - Partner, KPMG LLP Kansas City, MO
Shyam Gidumal – Partner/Principle EY New York City, NY
Lily Jung Henson, MD, MMM, FAAN - Chief of Neurology Services, Piedmont Healthcare, Inc. Atlanta, GA
Bonnie Higgins Princeton, NJ
William Holley - Partner, Parker, Hudson, Rainer, and Dobbs, LLP Atlanta, GA
Mary Hughes, MD - Lifestyle Neurology Greenville, SC
Craig T. Lynch - Partner, Parker Poe Adams & Bernstein LLP Charlotte, NC
Daniel Messina - President & CEO, Richmond University Medical Center Staten Island, New York
Aaron E. Miller, MD - Medical Director, Corinne Goldsmith Dickinson Center for Multiple Sclerosis, Professor of Neurology, Mount Sinai School of Medicine New York, NY
William T. Monahan - Retired President & CEO of Imation Corporation Chester Sprints, PA
Russell Parker - President, rpmAUM Great Falls, VA
Cynthia Perrazo - – Senior Vice President, Strategy and Business Development, Hoag Memorial Hospital Newport Beach, CA
Mike Pongon - CEO, Point B Portland, OR
Peter Porrino - Executive Vice President & Chief Financial Officer, XL Group Plc Stamford, CT
David M. Rottkamp - Partner, Not-for-Profit Sector, Grassi & Co Jericho, NY
Eli Rubenstein - Partner, Goulston & Storrs Boston, MA
Chris Serocke - Chief Operating Officer, Cianna Medical Mission Viejo, CA
David Schulman Plantation, FL
Richard B. Slifka - Treasurer, Global Petroleum Corp. Newton, MA
Robert L. Sowinski - CEO, Diversified Insurance Solutions Brookfield, WI
Peter G. Tarricone - Senior Vice President, Wells Fargo Insurance Group Clinton, NJ
Laura Vaccaro - Executive Director of Leadership, Education and Development, Valero Energy Corporation San Antonio, TX
Malcolm P. Wattman, Esq - Senior Counsel, Cadwalader, Wickersham & Taft, LLP New York, NY
Jeffrey Wessel - Retired Executive Vice President Northern Trust Company Chicago, IL
Caroline Whitacre, PhD - Vice President for Research, The Ohio State University Columbus, OH
NATIONAL ADVISORY COUNCIL
Michael Dobbs Roger, AR
Thomas M. Galizia - Deloitte Consulting, LLP San Francisco, CA
Weyman Johnson - Senior Counsel, Paul Hastings LLP Atlanta, GA
Steven Lipstein - President & CEO, BJC HealthCare St. Louis, MO
Susan Locke Wilkey Hartland, WI
Dick Mengel - Partner, Mengel, Metzger, Barr & Co, LLP Rochester, NY
Milton Stewart Portland, OR
NATIONAL BOARD OF DIRECTORS
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CHAPTER SENIOR LEADERSHIP TEAM Julie Kaufer Chapter President
Kari Boatner Vice President, Development
Emily Hazlett Director, Marketing & Communications
Audra Hindes Vice President, Community Development
Sarah Kirwan Director, Chapter Services & Healthcare Access
Kate McIntosh Major Gifts Officer
Jennifer Parkinson Senior Manager, Volunteer Leadership & Community Engagement
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CHAPTER OFFICES
Inland Empire3110 E. Guasti Road, Suite 320Ontario, CA 91761909-949-1363
Kern County1800 30th Street, Suite 105Bakersfield, CA 93301661-321-9512
Northern Nevada4600 Kietzke Lane, Suite K-225Reno, NV 89502775-329-7180
San Joaquin Valley7472 N. Fresno StreetFresno, CA 93720559-439-2154
Southern Nevada2110 E. Flamingo, Suite 203Las Vegas, NV 89119702-736-7272
Los Angeles5150 W. Goldleaf Circle, Ste 400, Los Angeles, CA 90056, 310-479-4456
Chair Kim Phillips John V. “Jack” Bock, Jr. Barry Engelman Private Wealth Advisor Ameriprise Financial Don A. Fracchia Executive Vice President Wells Fargo Dr. Wendy Gilmore Associate Professor of Neurology, Cell and Neurobiology USC Keck School of Medicine David M. Goldstein Senior Vice President and Division General Counsel Transamerica Life Insurance Company Bruce Hecker President Bruce’s Gourmet Catering
Paul Huether Executive Vice President/Chief Financial Officer GoWireless, Inc.
Lisa Karpe Ray Karpe
Pam Kehaly President Anthem Blue Cross Phil Keoghan
Stanley E. “Stan” Maron Law Offices of Maron & Sandler Larry McEwen Partner Farber Hass Hurley McEwen, LLP David “Dave” Perren Partner Barkin, Perren, Schwager & Dolan, LLP James D. “Jamey” Power, IV Director Power Family Enterprises Tom Regal General Manager Digital Studios Iron Mountain Entertainment Services
Chris Ruhe Senior Director, Southern California Point B
Sheri Safan Sue Schroeder Certified Executive Compensation Professional (CECP) and Owner/Partner, Vivient Consulting Fern Seizer
Dr. Nancy Sicotte Director, Multiple Sclerosis Program Cedars-Sinai Dina Tecimer, Esq. Partner Manatt, Phelps & Phillips, LLP
Alexi Varanko Vice President of Technical Operations The Walt Disney Studios Larry Winter Thrivent Investment Management
CHAPTER BOARD OF TRUSTEES
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CHAPTER STAFFJulie Kaufer, Esq. Chapter President
Fotini Alfieris, MACommunity Development Director, Central California
Kari BoatnerVice President, Development
Marni DeckterFoundation & Corporate Grant Writer
Bernice DetigDevelopment Coordinator
Amy DittmoreDirector, Development Bike MS & Muckfest MS
Roxanna Flores, MAManager, Service Management
Christine GrontkowskiCommunity Development Manager, Kern County/Antelope Valley
Joseph GrubbsDevelopment Coordinator
Debra GruenDevelopment Director, Teams
Sarah HansonSenior Manager, Logistics
Emily HazlettDirector, Marketing & Communications
Ana HernandezCommunity Development Coordinator, San Joaquin Valley
Audra Hindes, MSEd, MHCVice President, Community Development
Laura KanellosDevelopment Director, Walk MS & Challenge Walk MS
Reeza KangCommunity Development Coordinator, Nevada
Sarah Kirwan, MSPADirector, Chapter Services & Healthcare Access
Katherine LeeCommunity Development Manager, Inland Empire
Katie LoBiancoDevelopment Administrator
Elicia LopezDevelopment Director, Annual Giving
Linda LottCommunity Development Director, Nevada
Espie MalancheOffice Administrator
Kate McIntoshMajor Gifts Officer
Nathan MicinskiDevelopment Coordinator
Diana NolenAdministrative Assistance
Jessica OrozcoConstituent Information Coordinator
Nare OvsepianGraphic Design & Marketing Specialist
Jennifer ParkinsonSenior Manager, Volunteer Leadership & Community Engagement
Kayla PetersCommunity Development Coordinator, Inland Empire
Rona RosenbergDevelopment Coordinator, Special EventsDiane SantSenior Manager, Development
Natasha SmerlingLogistics Administrator, Special Events
Nicole StoltzfusManager, Connections Programs
Jenna TuckerMarketing & Communications Specialist
Angela VanBrackle, MSEd, MHCCommunity Development Manager, Nevada
Garrett Vander LeunVolunteer Coordinator, Special Events
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WILLIAMDIAGNOSED IN 2002
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CONTACTNational MS Society Southern California & Nevada Chapter 5150 W. Goldleaf Circle, Suite 400 Los Angeles, CA 90025
Phone: 310-479-4456 Fax: 310-479-4436 Email: [email protected] Web: nationalMSsociety.org/CAL
LIZDIAGNOSED IN 2005
CONNECT WITH US!
facebook.com/MSsoutherncal
twitter.com/MSSoCalNev
youtube.com/MSSoCalChapter