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Chairman Tom Wheeler Federal Communications Commission

Tom Wheeler became the 31st Chairman of the Federal Communications Commission (FCC) on November 4, 2013. Chairman Wheeler was appointed by President Barack Obama and unanimously confirmed by the United States Senate.

For over three decades, Chairman Wheeler has been involved with new telecommunications networks and services, experiencing the revolution in telecommunications as a policy expert, an advocate, and a businessman. As an entrepreneur, he started or helped start multiple companies offering innovative cable, wireless, and video communications services. He is the only person to be selected to both the Cable Television Hall of Fame and The Wireless Hall of Fame, a fact President Obama joked made him “The Bo Jackson of Telecom.”

Prior to joining the FCC, Chairman Wheeler was Managing Director at Core Capital Partners, a venture capital firm investing in early stage Internet Protocol (IP)-based companies. He served as President and CEO of Shiloh Group, LLC, a strategy development and private investment company specializing in telecommunications services and co-founded SmartBrief, the internet’s largest electronic information service for vertical markets. From 1976 to 1984, Chairman Wheeler was associated with the National Cable Television Association (NCTA), where he was President and CEO from 1979 to 1984. Following NCTA, Chairman Wheeler was CEO of several high tech companies, including the first company to offer high speed delivery of data to home computers and the first digital video satellite service. From 1992 to 2004, Chairman Wheeler served as President and CEO of the Cellular Telecommunications & Internet Association (CTIA).

Chairman Wheeler wrote Take Command: Leadership Lessons of the Civil War (Doubleday, 2000) and Mr. Lincoln's T-Mails: The Untold Story of How Abraham Lincoln Used the Telegraph to Win the Civil War (HarperCollins, 2006). His commentaries on current events have been published in the Washington Post, USA Today, Los Angeles Times, Newsday, and other leading publications.

Presidents Clinton and Bush each appointed Chairman Wheeler a Trustee of the John F. Kennedy Center for the Performing Arts, where he served for 12 years. He is also the former Chairman and President of the Foundation for the National Archives, the non-profit organization dedicated to telling the American Story through its documents, and a former board member of the Public Broadcasting Service (PBS).

Chairman Wheeler is a proud graduate of The Ohio State University and the recipient of its Alumni Medal. He resides in Washington, D.C.

Richard Ellenson brings enormous vision and energy to his role as CEO of the Cerebral Palsy Foundation. In his first two years at CPF, he has greatly expanded the Foundation's range of work as well as its profile. He has led a initiative to transform basic healthcare for women with disabilities, created a diverse network aimed at adapting Kinect technology to provide an innovative interface for gaming for people with disabilities, and brought an increased level of attention to the needs of people with CP though the “Just Say Hi” media campaign.

Prior to this, Richard was founder and CEO of two assistive technology companies (Panther and Blink Twice) which helped transform and reimagine the field of assistive technology for people with disabilities. Said Alan Brightman, Founder of Apple Computer’s Worldwide Disability Solutions Group and now Vice President for Global Accessibility at Yahoo, “The mass market mentality Richard Ellenson brought to this market was unprecedented in the history of assistive technology.“

Richard is also the father of an 18-year-old son who has Cerebral Palsy. He has worked tirelessly to create awareness about people with disabilities and to share stories about their vibrant lives. He and his son have been featured as ABC World News People of the Year, on CNBC’s Squawk Box, in a New York Times Sunday Magazine cover story, and as a feature on ESPN’s E:60.

Prior to this work, Richard was an advertising executive who created campaigns for brands such as American Express and Remy Martin. He also penned the classic tagline, “It’s Not TV. It’s HBO.”

Richard has been honored with the 2012 Visionary Leadership Award from Resources for Children with Special Needs, as a Caregiver of the Year by United Cerebral Palsy of NYC, and by many other organizations within the world of disabilities. He has served on the Advisory Council of the NIH’s National Institute on Deafness and Communication Disorders and on the boards of the Center on Disabilities at California State University at Northridge, the United States Society for Alternative and Augmentative Communication, and the Assistive Technology Industry Association. He has also been the recipient of two NIH grants.

Richard is a graduate of Cornell and holds an MBA from The Wharton School. He lives in New York City with his wife Lora, Director of Gynecologic Pathology at New York Presbyterian Hospital-Cornell, and with his two very special children, Thomas and Taite.

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David Braddock, PhD

David Braddock, PhD, is Senior Associate Vice President of the University of Colorado (CU) System and Executive Director of the Coleman Institute for Cognitive Disabilities. He holds the Coleman-Turner Chair in Cognitive Disability in the Department of Psychiatry at CU’s Anschutz Medical Campus. His research interests include long-term care policy, health promotion and disease prevention, and public spending for developmental disabilities.

Prior to coming to Colorado in 2001, he was also founding head of the University of Illinois at Chicago’s (UIC) Department of Disability and Human Development and director of its Research Institute. At UIC, he was instrumental in establishing the nation's first PhD

Program in Disability Studies and was founding director of UIC’s federally chartered Center of Excellence in Developmental Disabilities. Earlier in his career, he worked in governmental affairs and research in Washington DC at the U.S. Department of Health, Education and Welfare’s Secretary's Committee on Mental Retardation, and at the Council for Exceptional Children (CEC). Prior to Washington, Braddock worked at two state institutions for people with intellectual disabilities in Texas and Missouri as a research technician and classroom teacher.

Emily Shea Tanis, PhD

Emily Shea Tanis, PhD, is the Associate Director of the Coleman Institute for Cognitive Disabilities and Assistant Professor in the Department of Psychiatry at the University of Colorado Anschutz Medical Campus. She also serves as the research coordinator for the State of the States in Developmental Disabilities Project of National Significance funded by the Administration on Intellectual and Developmental Disabilities, which investigates the determinants of public spending for Intellectual and Developmental Disability Services in the United States and contributes to the project of Public Spending and Services for People with Disabilities examining cross-disability public spending in the United States. Tanis has been a co-author on The State of the States in Developmental Disabilities Monograph since 2011. She has published articles and investigated the definition of intellectual disability, the construct of

self-determination, the cultural impact of technologies and cognitive accessibility for people with cognitive disabilities, supports for families of people with intellectual and developmental disabilities, and supported and competitive integrated employment.

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William “Bill” T. Coleman III, Founding Donor

Bill Coleman is the Chief Executive Officer at Veritas. Coleman is an industry veteran who has spent 25 years running prominent Silicon Valley companies including his years as the founder/CEO of BEA Systems.

Coleman founded BEA Systems in 1995 and was chairman and CEO of the company from its founding through October 2001, during which time BEA became the fastest software company to reach a billion dollars in annual revenue. Following BEA, Coleman was founder, chairman and CEO of Cassatt, Inc. an enterprise cloud software company which was acquired by CA, Inc. in 2009. He has been a partner with Alsop Louie Partners, an early stage Silicon Valley venture capital firm, since 2010. He was also chairman and CEO of Resilient Network Systems, a cyber

security software company from Feb 2012 until Dec 2013. Prior to BEA, Coleman held various management positions at Sun Microsystems, Inc., where he co-founded Sun Federal; founded Sun Professional Services; and was VP System Software, where he led the initial development of Solaris and related products. He began his career in the USAF as chief of satellite operations, Office of the Secretary.

Coleman holds a bachelor’s degree in computer science from the U.S. Air Force Academy and master’s degrees in computer science and computer engineering from Stanford University. He also holds an honorary doctorate from the University of Colorado, where he founded the Coleman Institute for Cognitive Disabilities. He is a member of the board of directors of Seagate, a commissioner of the Trilateral Commission, and a trustee of Santa Clara University.

Claudia Coleman, Founding Donor

Founding Donor of the University of Colorado’s Coleman Institute for Cognitive Disabilities, Claudia Coleman began her technology career when she joined Hewlett-Packard (HP) in 1971, initially in an administrative position. Her career grew rapidly as HP rose to prominence in the emerging computer industry and she was promoted to district manager, responsible for helping build HP’s sales channel for printers and computer peripherals. Her sales career was highlighted by her selection to HP’s prestigious President’s Club in 1986. Before leaving HP in 1992, Coleman was promoted to America’s peripherals marketing center manager in the company’s multibillion-dollar Computer Peripherals organization.

For most of the past decade, Coleman’s energy has been focused on various volunteer, charitable, and philanthropic activities, including the Coleman Institute for Cognitive Disabilities. She is secretary of the Coleman Colorado Foundation Board, a board member of CEN (Center for Excellence in Nonprofits), past chair of the El Camino Hospital Foundation Board, and past co-chair of the Los Altos Community Foundation Board. In 2001, she was awarded an honorary doctorate from the University of Colorado. She is a past member of the President’s Committee for People with Intellectual Disabilities where she served as chairperson of the Assistive Technology Subcommittee.

Anthony Antosh, EdD

Anthony Antosh, EdD, is the founding Director of the Paul V. Sherlock Center on Disabilities and Professor of Special Education at Rhode Island College. His first position was as an institutional attendant in the wards of Ladd School. He has been involved with children and adults who have intellectual and developmental disabilities for 46 years. For the past 39 years Antosh has been on the faculty of Rhode Island College. During that time he served as coordinator of the undergraduate and graduate programs in intellectual disabilities, as department chair and as the Mary Tucker Thorp Professor for Distinguished Teaching.

Antosh has extensive experience with children and adults who have intellectual and developmental disabilities. He has written and presented on a variety of program areas including family support, augmentative

communication, inclusive education, transition, positive behavioral supports, adult services and supports, and integrated employment. He was the lead author for the Association of University Centers on Disability (AUCD) publication, A Collaborative Interdisciplinary, Interagency Approach to Transition from Adolescence to Adulthood. He has served on several legislative commissions and on the board of directors of multiple community, state, regional and national organizations including service as state president of ARC-RI and president of AUCD. He has an extensive history of advocacy and was a member of the court appointed monitoring committee for the class action suit that resulted in the 1994 closing of Ladd Center.

Antosh completed his undergraduate studies in secondary education at Ohio University and his MA in special education at Rhode Island College. He completed his doctorate at the University of Massachusetts with a focus on the application of linguistics to the design of augmentative communication systems.

MODERATOR

Reimagining Employment: Technology’s Rising Influence — 10:50 a.m.

Denis Boudreau

Denis Boudreau is a Montreal-based Principal Web Accessibility Consultant and Strategist, working for Deque Systems, and a member of the World Wide Web Consortium (W3C) in the Education and Outreach Working Group. He has been advocating social inclusion on the Web for over 16 years, and has been running the annual a11yMTL conference in Montreal, Canada since 2010. An admitted nerd with an unhealthy fixation on User superior design (UX) and digital inclusion, Boudreau has a passion for design that emotionally resonates, is beautifully engaging, and

delightfully accessible. When not busy making the Web more accessible to everyone, he enjoys public speaking, table-top role-playing games, and taking naps to rebuild his introvert bubble.

PANELISTS

Derek Nord, PhD

Derek Nord, PhD, is the Director of the Indiana Institute on Disability and Community and an Associate Professor in Special Education at Indiana University. He is also the President of the Association for People Supporting Employment First (APSE). Much of Nord’s research and writings are focused on employment and intersecting social problems, such as poverty, social and economic exclusion, and limited community capacity. His research spans both the formal disability systems and generic community supports. Nord is also a passionate advocate. Not only is he dedicated to make research and data accessible for the advocacy community to more effectively advance changes in practice and policy, he also regularly supports policy makers in the interpretation of data and research to make better informed decisions.

Liz Weintraub

Liz Weintraub has a long history of leadership in self advocacy, and has held many board and advisory positions at state and national organizations. She is the host of Tuesdays with Liz—Disability Policy For All.

Weintraub is the Immediate Past Chair of the Maryland Developmental Disabilities Council. Weintraub is a faculty member of The National Leadership Consortium on Developmental Disabilities at the University of Delaware and is the past president of the Board of Directors for Shared Support Maryland, a progressive provider organization. In 2015, she received the Katie Beckett Advocacy Award from the American Academy of Developmental Medicine and Dentistry.

Sandra Friedman, MD

Sandra Friedman, MD joined the University of Colorado School of Medicine (UCSOM) and Children’s Hospital Colorado (CHCO) in September 2009. She currently is the William K. Frankenberg Research Professor in Developmental Behavioral Pediatrics and Section Head of Developmental Pediatrics at UCSOM/CHCO. She also serves of Director of JFK Partners, directing both the University Center for Excellence in Developmental Disabilities (UCEDD) and Leadership Education and Neurodevelopmental Disabilities (LEND) programs. Friedman received accreditation for the first Developmental and Behavioral Pediatrics Fellowship program at UCSOM in 2010, which she continues to direct. Prior to coming to Denver, she was on the faculty at Boston Children’s Hospital and Harvard Medical School (HMS) for 16 years. She is a developmental pediatrician, board certified in neurodevelopmental disabilities and developmental behavioral

pediatrics, and has been recognized by 5280 Magazine as one of Denver’s top doctors in both of those subspecialties. She has been involved in developmental assessments and management of children and youth with a wide range of developmental problems and special health care needs. She has presented at multiple local and national conferences, and provided technical assistance to national and international organizations. She has published journal articles, abstracts, book chapters, and co-edited a book on end-of-life care for people with intellectual and developmental disabilities. Her research has also focused on developmental and medical outcomes of children born with congenital diaphragmatic hernia, autism spectrum disorders, and children with special health care needs. Friedman has served on the board of directors of the American Association on Intellectual and Developmental Disabilities and the Association of University Centers for Excellence in Developmental Disabilities, as well as the executive committee of the Council on Children with Disabilities of the American Academy of Pediatrics. She currently serves on Colorado Developmental Disabilities Council and the editorial board of JAMA Pediatrics.

Friedman earned a MD from Northwestern School of Medicine, a MPH from the Harvard School of Public Health and an MS in speech pathology from the University of Michigan.

MODERATOR

Future of Health and Wellness: Preventative Technology — 11:40 a.m.

Michael J. Brogioli

Michael Brogioli became the Executive Director of RESNA, the Rehabilitation Engineering and Assistive Technology Society of North America, in 2013; RESNA’s mission is to promote technology solutions for people with disabilities. Brogioli serves as principal investigator for the U.S. Department of Labor’s Office on Disability and Employment Policy (ODEP) Partnership on Employment and Accessible Technology (PEAT) grant project and for the Catalyst Project which is funded through the Rehabilitation Services Administration (RSA.) He also currently serves as a co-chair of the Consortium for Citizens for with Disabilities Technology and Telecommunications Task Force.

Brogioli has over 20 years of experience working on behalf of organizations that benefit vulnerable populations, including people with disabilities. Prior to joining RESNA, Brogioli served as executive director and CEO of the National Association of Councils on

Developmental Disabilities (NACDD), where he strengthened the association’s advocacy agenda on issues such as employment, inclusive education, community living and services and supports to benefit people with intellectual and developmental disabilities and their families. With NACDD, he managed a federal technical assistance grant.

As the first vice president for Policy and Government Relations at Special Olympics International, Brogioli successfully secured federal, corporate, and foundation grants to support several initiatives, including the Global Policy Summit on the Well-being of People with Intellectual Disabilities, held at the 2007 Special Olympic World Games in Shanghai, China. As executive director of the Autism Coalition for Research and Education, he raised funds and managed a grant program to advance autism programs and raise public awareness about the disorder. His broad and extensive experience includes stints at several nonprofit organizations, working on early childhood development, welfare reform, health care, and long term care. His background includes international experience in Asia and the Baltic region, as well as experience working on Capitol Hill as a legislative assistant to Senator Tom Daschle.

Brogioli holds a MA in public policy from Duke University, where he was a Jacob Javits Fellow, and a BA degree in government and international relations from the University of Notre Dame. He lives in Washington, DC.

PANELISTS

Tamar Heller, PhD

Tamar Heller, PhD, Distinguished Professor, heads the Department of Disability and Human Development, University of Illinois at Chicago (UIC) and its University Center of Excellence in Developmental Disabilities. She also directs the Rehabilitation Research and Training Center (RRTC) on Developmental Disabilities and Health, and is co-pi of the RRTC on Community Living Disability Policy and the Family Support RTC. Her research focuses on health and long-term services and supports for individuals with disabilities and their families. Heller has written over 200 publications, including five books. She was president of the Association of University Centers on Disabilities (AUCD) board, a delegate to the 2005 White House Conference on Aging, and co-founder of the national Sibling Leadership Network. Her awards include the 2009 Arc of Illinois Autism Ally for Public Policy Award; the 2008 Lifetime Research Achievement Award,

International Association for the Scientific Study of Intellectual Disabilities, Interest Group on Aging; the 2009 Community Support Services Community Partner Award; the 2010 College of Applied Health Sciences, UIC Outstanding Researcher Award; and the AUCD 2012 International Award.

Elizabeth Perkins, PhD

Elizabeth Perkins, PhD, is a Research Assistant Professor and the Associate Director of the Florida Center for Inclusive Communities (FCIC). FCIC is a University Center for Excellence in Developmental Disabilities, at the University of South Florida in Tampa. Perkins has a PhD in aging studies and a BA in psychology. She is also a Registered Nurse Learning Disabilities (RNLD), trained in the United Kingdom in intellectual/developmental disabilities (IDD) nursing. Her clinical experiences there were predominantly in community-based residential care. Perkins is a faculty in the MSc program in Child and Adolescent Behavioral Health, and teaches Issues and Trends in Developmental Disabilities, a core class for the developmental disabilities concentration. Perkins’ role at FCIC also

includes educating future health professionals including University of South Florida medical, nursing, and public health students regarding appropriate care to adults with disabilities. She has also developed a range of health promotion and advocacy resources for people with IDD, one of the most popular being My Health Passport. Her research interests include medical aspects of aging with IDD, and quality of life issues for aging family caregivers of adults with IDD.

Perkins’ work has been published in a variety of notable journals including the Journal of the American Medical Association. She is a co-author of Saxon, Etten, and Perkins’ highly regarded and bestselling gerontology textbook, Physical Change and Aging: A Guide for the Helping Professions. Perkins has previously served as guest co-editor for the Special Issue on Aging and End of Life for the American Journal on Intellectual and Developmental Disabilities.

Perkins has undertaken many leadership roles. She is currently vice president of the American Association on Intellectual and Developmental Disabilities (AAIDD) and the immediate past-president of AAIDD’s Gerontology Division. A former co-convener of the Formal Interest Group on Developmental Disabilities for the Gerontological Society of America (GSA), she is a fellow of both AAIDD and GSA. She represents FCIC on the Florida Developmental Disabilities Council, and is an advisory member of the Disability and Health Program, for the Florida Department of Health.

LOCATION: Interlocken Ballroom A/B SESSION DESCRIPTION: The purpose of this presentation is to share a multi-case analysis of an ongoing collaboration between 130 engineers and 76 individuals with disabilities who evaluated and developed accessible technology. Focus will be placed upon individuals with cognitive disabilities and the accessible technology that they helped to develop.

Scott Kupferman, PhD, is an Assistant Professor in the College of Education at the University of Colorado Colorado Springs (UCCS). He also directs the Access Collaborative, which is a network of 200+ engineers and individuals with disabilities who evaluate and develop accessible technology. Kupferman’s research interests revolve around assistive technology, accessibility and universal design, and transition from secondary education to postsecondary education and employment. He has served as principal investigator, co-principal investigator, or grant writer for approximately $4.2 million in grant funding. Kupferman is an ongoing reviewer/advisor for the National Institute on Disability, Independent Living, and Rehabilitation

Research - U.S. Department of Health and Human Services. His scholarly efforts have led to several honors and awards, including selection as a National Council on Disability delegate and recipient of the U.S. Department of Education’s Commissioner’s Award for Excellence.

Main Level —BREAKOUT SESSIONS

LOCATION: Interlocken Ballroom D SESSION DESCRIPTION: Technology for people with disabilities has advanced exponentially in recent decades. Ideas that once seemed fantastic have become fact, sometimes even mundane. More technologies are being developed daily that have the potential to completely transform people’s lives. But often policy, politics, and priorities do not keep pace with technological advances, preventing solutions from being available to those who could benefit from them the most. How do we bridge the gap between policy and practice?

Join ANCOR, the national trade association for community providers of services to people with intellectual and developmental disabilities (IDD), to discuss how federal policy intersects with technology in our field. This session will provide the latest on current federal public policy topics that relate to technology for people with IDD, and discuss trends for moving more technology solutions to the mainstream in the future.

Access Collaborative: Engineers and Individuals with Disabilities Working to Evaluate and Develop Accessible Technology

Fulfilling the Promise of Technology: Bridging the Gap Between Policy and Practice

Katherine Berland, Esq, currently serves as ANCOR’s Director of Public Policy. Prior to joining ANCOR, she worked in the financial industry, first as a registered investment representative, then for a national bank working in consumer banking and commercial lending. She left the bank to pursue a law degree in 2005. While in law school, she worked as a law clerk for a DC firm specializing in insurance tax law. She graduated from Georgetown University Law Center in 2009 and worked for several years as an attorney doing litigation preparation. She has done extensive volunteer work with organizations including Human Rights Watch, Human Rights Campaign, and Habitat for Humanity. For ten years she served as coordinator for the local Amnesty International

chapter in Howard County, Maryland. She was hired by ANCOR in December 2012. She now lives in Maryland with her husband and three children.

LOCATION: Private Dining Room

SESSION DESCRIPTION:

Self-determination, Person Centered Planning, and decreasing the cost of Long-Term services and supports are important issues in the world of those with disabilities and those who assist them.

Alice and Kara will discuss how they have been able to meet these issues head on with the use of technology!

Alice Brouhard is a champion of the use of technology, especially tablet technology, to support people with memory and cognitive challenges. She has worked tirelessly to set up a system that allows her daughter who sustained a serious traumatic brain injury (TBI) to live independently despite significant disabilities.

She sits on the Colorado Assistive Technology Coalition through the University School of Medicine. She speaks statewide and nationally at

conferences on the use of high tech and low tech options to promote self-sufficiency. Brouhard is a founding member of Colorado based Families at the Forefront of Technology and serves on the steering committee for their annual conference.

She has developed and teaches classes at Colorado Mountain College on the use of iPads and iPhones. Brouhard, her husband, and daughter live in Glenwood Springs, Colorado. They are recent recipients of the 2016 Garfield County Humanitarian Service award -”Inspiring Hope”.

Creating Choices and Possibilities!

Fulfilling the Promise of Technology: Bridging the Gap Between Policy and Practice (continued)

LOCATION: Interlocken Ballroom D

Kara Brouhard sustained a severe traumatic brain injury (TBI) at age 5 when she was stuck by an out of control skier. As she says…”I have overcome many obstacles in my life…. Now, I lead a fine life in my own house. I am active in my community. I do lots of volunteer work so that I may give to others. I am very successful in my own life. I am successful because I listen to Paddy (my iPad) and follow what my prompts tell me to do. And I am very successful in taking care of my dog Phoebe Ann.”

Her motto in life is “ I don’t have disabilities, I have abilities!” Brouhard leads a self-determined life in her own house despite many challenges from her TBI. Mainstream technology supports her

independence and self-sufficiency. She likes to speak to others and share her success. She is a member of Families at the Forefront of Technology and presents at their annual conference. And she loves to show off her “smart home” to others!

LOCATION: Centennial Ballroom E SESSION DESCRIPTION: Today, technology is the primary tool for potential employees applying for jobs. However, the job search, application and pre-employment process is often not accessible to applicants with disabilities. In this session, PEAT will present accessibility findings and present its new resource, TalentWorks, to help participants understand common pitfalls and how to ensure better accessibility in the talent acquisition process, with implications for the entire employment lifecycle.

Corinne Weible is the Deputy Project Director for the Partnership on Employment and Accessible Technology (PEAT), an initiative funded by the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) to help employers, IT companies, and others to understand why it pays to build and buy accessible technology, and how to go about doing so. She has over a decade of experience in directing programmatic development, grants management, and communications strategies at nonprofit institutions nationwide. Prior to her work with PEAT, Weible served as outreach manager for the Finger Lakes Library System, where she led advocacy campaigns, professional development programs, and community outreach efforts to help diverse populations access library services. As director of programs for the National Council for History

Education, she oversaw professional development events for teachers nationwide.

Creating Choices and Possibilities! (continued)

The Role of Accessible Technology in Attracting and Retaining Talent

LOCATION: Spruce SESSION DESCRIPTION: This presentation will provide information about national initiatives related to K-12 computer science education (CS for All) and implications for students with disabilities. We will share national trends, research findings, and strategies for including students with disabilities in K-12 CS instruction as well as policy recommendations that ensure full participation of all learners.

LOCATION: Centennial Ballroom F SESSION DESCRIPTION: The most recent editions of the World Health Organization’s International Classification of Functioning, Disability and Health, the American Association on Intellectual and Developmental Disabilities’ Intellectual Disability: Definitions, Classification, and Systems of Support, and the American Psychological Association’s Diagnostic and Statistical Manual of Mental Disorders all confirm the emergence of social-ecological models of disability that emphasize the interactions between impairments in functioning and the demands of the context. Increasingly, disability is understood as a need for extraordinary supports, above and beyond that needed by the general population, to meet the demands of typical environments. The introduction of the construct of support needs to the disability field has led to a focus developing valid instruments to quantify support needs, and the most popular of these instruments has been the Supports Intensity Scales (Children’s and Adult versions). In this session principles underlying social-ecological conceptualizations of disability will be reviewed, and examples of assessment results from the Supports Intensity Scales will be considered in relation to a variety of technological solutions.

James R. Thompson, PhD, has over 30 years of experience in the field of intellectual and developmental disabilities as a direct support professional, special education teacher, transition counselor, teacher educator,and researcher. During his career he has authored over 40 articles in professional journals and has served as editor or contributing author to over 30 books. He currently serves as a Professor in the Department of Special Education at the University of Kansas and a Senior Scientist at the Beach Center on Disability.

Q: Where Does Technology Fit into Social-Ecological Conceptualizations of Disability? A: Everywhere!

Including Students with Disabilities in K-12 Computer Science for All Initiative

Lower Level — Breakout Sessions

LOCATION: Fir SESSION DESCRIPTION: A dynamic team from Ability Beyond will share what they’ve been learning during the past two years of intensive, innovative technology pilots in Connecticut and New York. Come see our best practices at work, and get some great #TechTips for integrating technology into your programs.

Guided by the vision of Laurie Dale, Ability Beyond has replaced traditional “assistive technology” with a more mainstream approach – searching the tech marketplace (including start-ups) for unlimited solutions to folks’ everyday challenges, at home, at work or in the community. The result has been greater independence, improved safety, more social connections, and substantial efficiencies for the organization.

In 2015, the agency created a program called the TIP (Technology Innovations for People) Squad: teams of young adults with disabilities who are actively developing technology solutions for other men and women served by our agency. Members of the TIP Squad will also discuss the challenges and rewards of their work.

Including Students with Disabilities in K-12 Computer Science for All Initiative (continued)

Engagement, Smart Living, and Independence #TechTips

Maya Israel, PhD, is an Assistant Professor in the College of Education at the University of Illinois at Urbana Champaign. Her primary areas of specialization include supporting struggling learners’ meaningful engagement in science, technology, engineering, and mathematics (STEM) with emphases on computational thinking and computer programming. She researches instructional strategies and technologies that promote student engagement, collaborative problem solving, and persistence. She has published in top-ranking journals such as Exceptional Children, Journal of Research on Technology in Education, Journal of Research in Science Teaching, and Computers & Education. She also supports school district initiatives focused on issues related to supporting STEM learning for students at risk for academic failure due to disability or poverty.

Emily Haley lives in Danbury Connecticut. She loves how the TIP Squad can help technology to enhance other people who have disabilities connect to things that they never thought they could even do. She is honored to be part of the TIP Squad. It makes her happy to see people succeed in life.

LOCATION: Spruce

LOCATION: Fir

Philip McMullen lives in Yonkers, NY. His hobbies are spending time with his nephew, sports, and video games. He loves being part of the TIP Squad because he gets to help others, as well as work towards achieving his goal of independence.

Engagement, Smart Living, and Independence #TechTips (continued)

LOCATION: Cedar SESSION DESCRIPTION: In the last decade the web has evolved from a supplementary information resource to a valuable and pervasive tool for nearly all aspects of daily life including social and community participation, health promotion, creative pursuits, education, and employment opportunities. In this session, we will take a look at the myths surrounding web use by people with cognitive disabilities and the ways in which their web experience can be improved.

Jeffery Hoehl, PhD, is a former Coleman Institute graduate research fellow. Hoehl currently works as a software engineer at Google working on improving user-facing products in Google Docs Accessibility. His graduate research focused on inclusive design for the web and understanding how combining technologies from existing online communities into novel applications can improve access for people with cognitive disabilities. Previously, he developed web-based solutions for the Department of Defense, federal government, and hospitality industry; and client-based solutions for the biotechnology industry. Hoehl received his PhD from the University of Colorado Boulder, Department of Computer Science, a MS and BS in computer science, and a BA in psychology from the University of Colorado Boulder.

Exploring Web Simplification for People with Cognitive Disabilities

LOCATION: Alder SESSION DESCRIPTION:

London’s RIX Centre is transforming education, health and community care for people with IDD using multimedia authoring and Web for self-advocacy and effective person-centered support. Minnion shares implementations in the US and Europe to demonstrate the impact of the ‘Multimedia Advocacy’ approach and invites delegates to explore the simple but life-changing technologies and techniques that families, professionals and service-users are applying to striking effect.

A Multimedia Advocacy Approach to Self-Determination and Person Centered Support for People with IDD in the UK and the USA

Andy Minnion, MBE, is Professor of Media Advocacy and Director of RIX Research and Media at the University of East London, United Kingdom, a center that takes an inclusive and participatory approach to researching applications of digital media for people with intellectual disabilities. His research is centered on the co-development of software, training and implementation strategies with individuals and their families and the networks of professionals that make up local services. He has led the development of the pioneering ‘Multimedia Advocacy’ approach to education, care, and support for people with intellectual and developmental disabilities. With the RIX team he develops and pilots technologies and delivery methods for the use of the Web and multimedia to promote choice and control for individuals and their families. Minnion’s research and field studies have led

to the development of highly accessible software and training for Web media authoring and the development of secure approaches to digital self-advocacy and the selective sharing of online person centered plans. Work on the sustainable application of these tools is now underway with families, commissioners and professional service providers across three continents.

Minnion works in partnership with the Westchester Institute for Human Development, applying a ‘living lab’ approach to the trialing of media advocacy in the USA, with pilots already running in New York state, and further ‘earlyadopter’ implementations under development in Colorado, alongside other states across the country. RIX Research and Media is an affiliated center with the Association of University Centers on Disabilities which presented him with an International Service Award in 2015. In Great Britain he was awarded an MBE for ‘Services to the Education of People with Special Needs’ in the UK Queen’s Birthday Honors of 2012.

LOCATION: Alder

Izel Obermeyer has been practicing Occupational Therapy for more than 27 years in both pediatrics and physical dysfunction. She graduated from the University of Pretoria in South Africa and has worked in South Africa, Namibia, Brazil, Kenya and the USA. She finished her advanced Masters degree in 2008. Obermeyer started working at the Westchester Institute for Human Development (WIHD) in 2007, and currently she is the director of the Assistive Technology Program. In this capacity, she is responsible for the training of school district assistive technology teams and coordinates occupational therapy services in school districts too. She runs executive function groups in schools and recently implemented a Yoga program for Kindergarten students. She is also the coordinator of all graduate level assistive technology courses, which are being taught for masters programs in special education, for a number of colleges in the area. She oversees

all of the operations of the program and has been instrumental in acquiring additional contracts to expand the reach of the program. Currently the program provides services to clients across the life-span related to evaluation for, acquisition of and training for assistive technology devices. The program also runs technology loan libraries for a wide age range of clients, including birth to 5 through a contract with the department of health, the New York State Commission for the blind, as well for seniors to promote independent living and self-care. The program is also a TRAID center, of which she is the program coordinator, and has contracts with Access-VR for both evaluation and training for young adults to attend college or enter the work force. She is involved in the development of smart technology initiatives within WIHD and is an active advocate for assistive technology inclusion in schools. She often presents papers at conferences, colleges and schools. She was always actively involved in the professional associations for OT in all the countries she worked and lived in. She is the Past-President of the New York State Occupational Therapy Association (NYSOTA), and the 2006 NYSOTA conference at the United Nations was her brain-child. She is currently the Chairperson of state association presidents at the American Occupational Therapy Association (AOTA).

A Multimedia Advocacy Approach to Self-Determination and Person Centered Support for People with IDD in the UK and the USA (continued)

LOCATION: Birch SESSION DESCRIPTION: This session will present the 2015 version of Communication Bill of Rights of the National Joint Committee on the Communication Needs of Individuals with Severe Disabilities (2015) and discuss the differences between the original and revised forms of this foundational document.

Communication Bill of Rights — Reboot!

Communication Bill of Rights — Reboot! (continued)

Amy S. Goldman is the Co-Executive Director of the Institute on Disabilities, University Center of Excellence in Developmental Disabilities, at Temple University. She directs Pennsylvania’s Initiative on Assistive Technology, the Commonwealth’s Assistive Technology (AT) Act Program and other statewide assistive technology-related programs and services. As a licensed speech-language pathologist, Goldman has focused on the area of augmentative and alternative communication (AAC) and especially, access to AAC for people with intellectual and developmental disabilities. She is a member of the National Joint Committee on the Communication Needs of Persons with Severe Disabilities representing the American Speech-Language- Hearing Association.

LOCATION: Birch

Integrated Primary Healthcare for People with Intellectual and Developmental Disabilities: The Developmental Disabilities Health Care Center Five Years Later

LOCATION: Aspen SESSION DESCRIPTION: In 2011, the Developmental Disabilities Health Center (DDHC) was launched to provide multi- and interdisciplinary primary healthcare to people with intellectual and developmental disabilities. This presentation will review DDHC common patient profile characteristics, health outcomes, and approaches to care coordination and health promotion.

David Ervin is CEO of The Resource Exchange, a Colorado-based nonprofit serving children and adults with intellectual and developmental disabilities (IDD). He has extensive professional experience in the IDD industry, having worked in and/or consulted to organizations in the US and abroad. He is a published author and speaks internationally on healthcare for people with IDD and on other areas of expertise. He is a contributing author to the Rubin, et al. (eds.) seminal book, Health Care for People with Intellectual and Developmental Disabilities across the Lifespan (2016). Ervin is currently co-pi for the POWERSforID: A Telehealth Weight Management System for Adults with Intellectual Disability project in the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD).

LOCATION: Aspen

David Ervin’s current research interests includes health promotion and disease prevention for people with IDD. He is co-pi on a Rehabilitation Research and Training Center (RRTC) on Developmental Disabilities and Health project, in partnership with University of Illinois at Chicago, funded by the National Institute on Disability and Rehabilitation Research that examines the use of technology to support diet, nutrition and physical activity interventions for obese adults.

Ervin is associate editor for the journal Frontiers in Public Health, a member of the State of the States in Developmental Disabilities National Advisory Council, and a governor’s appointee to and elected chair of the Colorado State Board of Human Services. He is also an appointed member of the International Professional Committee of Beit Issie Shapiro in Israel, and is a member of the International Advisory Committee for the National Institute for Child Health and Human Development in Israel.

Justin D. Gentry became the first Research Coordinator for the Developmental Disabilities Health Center, a multidisciplinary clinic dedicated to providing exceptional healthcare that is customized to the needs and experiences of people with intellectual and developmental disabilities (IDD) and their families, in May 2014. He holds a BA in psychology from the University of Colorado at Colorado Springs, with a minor in anthropology, and has worked with both adults and adolescent with cognitive and developmental disabilities both clinically and in research. Gentry is interested in leveraging and adapting technology to improve the quality of life and health outcomes for people with cognitive disability. He is pursuing a PhD in clinical psychology and rehabilitation at the Illinois Institute of Technology.

Integrated Primary Healthcare for People with Intellectual and Developmental Disabilities: The Developmental Disabilities Health Care Center Five Years Later (continued)

Collaboration for Crisis Services — Development and Implementation of Mental Health Crisis Intervention / Stablization Services for People with IDD (Panel)

LOCATION: Pine SESSION DESCRIPTION: Learn how a cross system team engaged legislators, state agencies, service providers, academia, and advocates to research, develop, secure funding, and implement a program of crisis intervention/prevention/stabilization for people with IDD and co-occurring behavior disorders.

LOCATION: Pine

Cordelia Robinson Rosenberg, PhD, RN, Professor of Pediatrics and Psychiatry University of Colorado School of Medicine, has worked in university programs focused on individuals with Intellectual/ Developmental Disabilities since 1993. Until July 1, 2015 and for the past 22 years she directed JFK Partners Colorado’s UCEDD and LEND programs. Beginning in July, she is working 50 percent time. Since completion of her doctoral studies in Psychology with a research specialty in Intellectual/Developmental Disabilities she has been pi or co-pi on more than 30 demonstration, research and training projects addressing all aspects of intellectual and developmental disabilities including work on autism.

As director of JFK Partners Colorado’s UCEDD for over 20 years she was responsible for oversight of all aspects of the program, supervising a staff of more than 40 faculty and annual enrollment of 12 to 15 full time long- term trainees representing multiple disciplines. While her particular specialty is early intervention she has worked on projects across the life span. She joined the Colorado IN! Inclusive Education Board when it was founded in 2014. Given her extensive background in research and project management she is in an excellent position to direct the evaluation of the Colorado Consortium for Inclusive Higher Education (CCIHE) with UCCS, the other schools in the Consortium, and the IN Board and advisory group.

Robinson Rosenberg earned a RN BS in Nursing, from D’Youville College, Buffalo, NY, and a MA in Special Education; PhD Psychology, from George Peabody College of Vanderbilt University.

Sharon Jacksi, PhD, has spent her career supporting individuals with developmental disabilities,most notablly as director of numerious nonprofit agencies, as Colorado Department of Human Services Director of Regional Center Operations and as Director of the Division for Developmental Disabilities. She received an MA and PhD in psychology with an emphasis in intellectual disabilities from Peabody College, Vanderbilt University.

Jacksi is currently CEO of STRiVE, the Mesa County, Colorado Community Centered Board, after having served as vice-president of Behavioral Services for three years. Most recently, she has been instrumental in developing Audyssey, the inter-disciplinary diagnostic clinic serving children and adults with autism in Mesa County. Her

agency, STRiVE, is part of the Crisis Pilot project built on a collaborative crisis prevention group composed of several local human service and healthcare organizations.

Collaboration for Crisis Services — Development and Implementation of Mental Health Crisis Intervention / Stablization Services for People with IDD (Panel) (continued)

Marijo Rymer has served as Executive Director of The Arc of Colorado for nine years. She coordinates and leads public policy advocacy for 13 local chapters of The Arc in Colorado. She is an active member of the National Council of Executives of The Arc US and has served on the Board of Directors of that organization. She was honored by The Arc US in 2012 for Outstanding Professional Achievement.

Rymer served on the Community Living Advisory Group for the state of Colorado and chaired the task force for HCBS Medicaid waivers re-design. She most recently served on a legislative task force to consider alternatives to Colorado’s remaining institutional facilities for adults with developmental disabilities. She is co-chair of the Mental Health committee of the Colorado

Collaborative for Autism and Neurodevelopmental Disability Options (CANDO) and co-chaired that group’s efforts to identify gaps in mental health/behavioral services for people with IDD leading to legislation for a pilot project for cross system response to behavioral crises.

Collaboration for Crisis Services — Development and Implementation of Mental Health Crisis Intervention / Stablization Services for People with IDD (Panel) (continued)

LOCATION: Pine

Carol Meredith started working for The Arc Arapahoe & Douglas Counties in 1998 as their Executive Director. She works primarily to achieve equal rights and social justice for people with disabilities through systems advocacy at state and federal legislatures, county departments, and statewide public policy forums. Most of this work is done in collaboration with other chapters of The Arc in Colorado, Parent to Parent of CO, Family Voices, CO Cross Disability Coalition and many others. Her passion comes from her experiences as the parent of a son with autism. Meredith strives to make systems work so that people with disabilities can get the services and supports they need to live rich, full lives in their communities. She is a graduate of Partners in Leadership, the premier training program for self-advocates and parents with children with developmental disabilities,

as well as the Grassroots Leadership Nonprofit Training Program, an intensive training program for management personnel of nonprofit organizations. In 2000, she was appointed by the governor to serve as a member of the Governor’s Task Force for Persons with Disabilities. Meredith was a founder of Parent to Parent of Colorado, and an early developer of Early Childhood Connections, providing support to families with very young children with developmental delays. She also created Family Connector Education Training for parents who have children with disabilities to enhance peer-to-peer networking.

From 1993-1997, Meredith was the executive director of The Arapahoe Early Childhood Network. From 1991-1993, she served as president of the Autism Society of Colorado. She is a past board member of many nonprofit organizations including the Developmental Disabilities Resource Center and the Denver Center for Independent Living.

LOCATION: Pine

In 2008, Marijo Rymer led efforts for a Colorado ballot initiative to end the waiting list for services for adults and children with intellectual and developmental disabilities. In 2015, she was presented with the President’s Award from The Arc of the Pikes Peak region as well as the President’s Award from Advocacy Denver.

Rymer is a graduate of the Developmental Disabilities Leadership Institute at the National Leadership Consortium at the University of Delaware. She received a BA in English and political science and completed master’s level work in political science from The University of New Mexico.

Collaboration for Crisis Services — Development and Implementation of Mental Health Crisis Intervention / Stablization Services for People with IDD (Panel) (continued)

“Milky-X-Way” - Digital Media Arts Education Program Arc of the Capital in Austin, TX

MODERATOR

Sue Swenson

Sue Swenson is the Acting Assistant Secretary for the Office of Special Education and Rehabilitative Services (OSERS) at the U.S. Department of Education. In this capacity, she serves as advisor to the U.S. Secretary of Education on matters related to the education of children and youth with disabilities, as well as employment and community living for youth and adults with disabilities. The mission of her office is to provide leadership to achieve full integration and participation in society of people with disabilities by ensuring equal opportunity and access to, and excellence in, education, employment and community living.

In addition to serving as Acting Assistant Secretary, Swenson will continue to be Deputy Assistant Secretary for OSERS, a position she has held for the past six years, Before OSERS, Swenson served in the Clinton administration

as the Commissioner for Developmental Disabilities in the U.S. Department of Health and Human Services. Swenson also served as executive director of the Joseph P. Kennedy, Jr. Foundation and CEO of The Arc of the United States.

Swenson got involved with disability advocacy because her middle son, Charlie, had profound disabilities. She was active in the Minneapolis schools as well as in state and federal policy while working as a professional services marketing director before being named a Kennedy Fellow in the U.S. Senate in 1996. She was educated at the University of Chicago and earned an AM there as well as an MBA at the University of Minnesota.

MODERATOR

Learning Technology and Educational Innovation Across the Lifespan — 2:40 p.m.

Tracey E. Hall, PhD

Tracey E. Hall, PhD, conducts research on instructional interventions in reading, writing, literacy in the content areas, and assessment. Her work includes the design and evaluation of instructional approaches and assessment tools. These experiences are applied in the development and implementation of UDL projects, collaborative partnerships, and professional presentations.

Hall brings to her work at CAST experience in the areas of curriculum-based measurement, teacher professional development, instruction and curriculum design, and formative assessments using progress monitoring, and data-based decision making for instruction.

She directs CAST’s initiatives to create and evaluate digital supported environments across content areas. She is also co- and principal investigator on several federal and foundation funded grants. Hall is a frequent presenter and consultant at national and international education level. She has taught university courses in special education reading and writing, learning disabilities, assessment and behavior management. She has been a special education teacher, consultant, administrator and university professor.

Mark Sadecki Mark Sadecki has been the Accessibility Coordinator at edX since June of 2014. Previously, he served as the Staff Contact for the HTML Accessibility Task Force at the W3C where he managed the progress of accessibility support in HTML5. He has a particular interest in accessible graphics, especially SVG and the HTML5 canvas element.

PANELISTSPANELISTS

PANELISTS

Vic Vuchic

Vic Vuchic is a seasoned thought leader in education technology and philanthropy. He is an expert in learning science, innovation, and scaling what works and has launched game-changing initiatives that have increased access to education and improved learning for tens of millions of learners in the Americas, Europe, Asia and Africa. Prior to Digital Promise Global, Vuchic consulted with a number of foundations and organizations on education technology, innovation, and philanthropy. Before that he developed strategies and managed over $100 million in technology-focused grants at the Hewlett Foundation to launch and grow the Open Educational Resources movement and create and advance the Deeper Learning strategy. He completed a MA in education and technology

at Stanford University and a BA in systems engineering at the University of Pennsylvania. He also received a scholarship and attended Berklee College of Music for a year. Previous experience includes working at startups in Silicon Valley for eight years with expertise in human-centric system design and innovation methodologies. You can contact Vuchic at: vic@digitalpromise.org.

Jutta Treviranus

Jutta Treviranus is the Director of the Inclusive Design Research Centre (IDRC) and professor in the faculty of Design at OCAD University in Toronto (http://idrc.ocadu.ca ). She established the IDRC in 1993 (formerly the Adaptive Technology Resource Centre) as a center of expertise that proactively promotes an inclusive socio-technical future. Treviranus also heads the Inclusive Design Institute, a multi-university regional centre of expertise (http://inclusivedesign.ca). She founded an innovative graduate program in inclusive design at OCAD University and is the co-director of Raising the Floor International. She leads international multi-partner research networks that have created broadly implemented innovations that support inclusion e.g., Fluid Project (http://fluidproject.org), FLOE (http://floeproject.org ), and many others. Treviranus and her team have pioneered network-supported personalization as an approach to accessibility

in the digital domain. She has played a leading role in developing accessibility legislation, standards and specifications internationally (including W3C WAI ATAG, IMS AccessForAll, ISO 24751, and AODA Information and Communication). Her leadership in Inclusive Design has been recognized through a number of awards, including a Diamond Jubilee Medal and recognition as one of Canada’s top 45 over 45 by Zoomer Magazine.

LOCATION: Interlocken Ballroom A/B SESSION DESCRIPTION: CTIA’s AccessWireless.org is a first stop for information on accessible wireless services, products, and feature offerings. This session will demonstrate the resources that the website offers such as “Find a Phone”, accessibility guides for various wireless services, direct access to carrier and manufacturer accessibility websites, and best ways to access information on wireless products and services that meet specific needs.

Matthew Gerst, JD, is Director of Regulatory Affairs at CTIA®, The Wireless Association. Gerst leads the association’s efforts before the Federal Communications Commission (FCC) on a variety of policy matters, including universal service, 9-1-1 and emergency communications, and access for persons with disabilities. He also represents CTIA on the FCC’s Disability Advisory Committee and North American Numbering Council.

Gerst is a graduate of Ohio University and received his JD from New York Law School, where he was editor-in-chief of Media Law & Policy and participated in the Advanced Communications Law and Policy Institute. He is admitted to the bars of New York and Washington, DC.

Gerst served as an adjunct professor of law in the scholarly writing program at the George Washington University School of Law focusing on the Federal Communications Law Journal.

Laura Berrocal has over a decade of experience working in strategic alliance and partnership building at both the national and local level. She currently serves as Director of External Affairs at CTIA (The Wireless Association), where she manages the association’s grassroots, grasstops and third party relationships and develops communications strategies to educate communities on CTIA’s work across the wireless and tech sector. Previously, she served as vice president of public policy and legislative affairs for Net Communications, where she managed legislative and communications strategies for

Fortune 500 companies and industry trade associations spanning the tech and energy sectors. Berrocal has also worked with several national nonprofit organizations in Washington, DC, where she has provided public policy counsel in the areas of technology, minority entrepreneurship, energy, education, and health.

She holds a MPA degree from The George Washington University Trachtenberg School of Public Policy and Public Administration (TSPPPA) and a BA in political science from Temple University.

BREAKOUT SESSIONS — Main Level

CTIA’s AccessWireless.org: A First Stop for Wireless Accessibility

LOCATION: Interlocken Ballroom D SESSION DESCRIPTION: Come learn from our experience! We are conducting 14 outcome studies using technology to support communication, independence, health, fitness, employability skills, engagement, positive behaviors, safety and sleep for people with cognitive disabilities. We will discuss the details of the technology implementation, share our challenges and successes, and provide our outcome and return on investment data.

Laurie Dale is the Senior Leader of Empowering Technology Solutions for Ability Beyond, a leading nonprofit that provides services and programs that promote independence and community integration to over 2,600 individuals with disabilities in Connecticut and New York. In this role, Dale is responsible for all aspects of assistive technology and for integrating new innovations that revolutionize the way Ability Beyond supports people with disabilities. She creates the bridges between technology and the individuals supported by the organization, identifying and determining what will best allow them to increase their independence.

Patrick Queenan, PhD, is the Director of Clinical and Behavioral Services at Ability Beyond. Queenan is responsible for developing, measuring, and monitoring high-quality and novel methodologies for the delivery of services that meet the individualized needs of the people that Ability Beyond supports; and for incorporating best practices and applied research into daily operations. Queenan is also the co-chair of a technology grant project which allows Ability Beyond to study the impact of providing empowering technology to people with physical and cognitive disabilities.

14 Months, 14 Outcomes, $140,000 Saved

LOCATION: Centennial Ballroom E SESSION DESCRIPTION:

Preliminary data are being ordered through FY 2016 from our State of the States in Intellectual and Developmental Disabilities (IDD) survey of the 50 states and DC. A few questions which will be answered in this presentation are: Have the states fully recovered from the Great Recession; Has Home and Community Based Services (HCBS) Waiver spending continued to grow?; Which states are leaders or laggards in financing community support for individuals with IDD and their families?; Has spending for families increased?; Has there been continued decline in the use of state-operated IDD institutions in the states?

There will also be a discussion of the State of the States website (http://www.StateoftheStates.org), and the types of data presented there. Website data include graphic “profiles” for each state, and our “create-a-chart” option facilitating the comparison of states, and/or regions that the user selects.

David Braddock, PhD, is Senior Associate Vice President of the University of Colorado (CU) System and Executive Director of the Coleman Institute for Cognitive Disabilities. He holds the Coleman-Turner Chair in Cognitive Disability in the Department of Psychiatry at CU’s Anschutz Medical.

Richard Hemp has served as Project Coordinator and Analyst on the State of the States in Developmental Disabilities Project since 1984. He contributes to ongoing technical assistance for families, public officials, advocacy and provider organizations, and other researchers. Hemp was awarded the 2011 Annual Distinguished Researcher in Intellectual and Developmental Disabilities Award by The Arc/ United States. He received his MA in human development/health policy in 1974 from Governors State University, and also studied in the School of Public Health, University of Illinois at Chicago.

State of the States in Intellectual and Developmental Disabilities : 2016

LOCATION: Centennial Ballroom F SESSION DESCRIPTION: User communities are key to advancing beyond the “early adoption” phase of the field of cognitive technology and establishing a solid foundation and ensuring sustained growth in the future. A firm foundation and expansion of the field are both necessary for the potential of person-centered cognitive technologies which enable independence to be realized. This session will highlight state-of-the-art cloud-based cognitive technologies that are enabling connection and collaboration among user communities and helping to create the foundation necessary for advancing the field.

Daniel K. Davies has been actively involved in research and development of technology for individuals with cognitive disabilities for over 20 years. He has been closely associated with issues important to individuals with disabilities, since his oldest brother John lived with severe intellectual and physical disabilities. Davies has directed over 75 research projects focused on technology and intellectual and other cognitive disabilities funded by the U.S. Department of Education, Administration for Community Living, National Institutes on Aging, DARPA and the Joseph P. Kennedy, Jr. Foundation. He has been on the leading edge of research into cognitive support technology for individuals with intellectual disabilities and consequently in 2006 received the Technology Museum of Innovation’s prestigious Katherine M. Swanson Equality award for “pioneering information technology for individuals with cognitive disabilities.” He has authored over 100 publications, reports and

book chapters related to cognitive technology for individuals with disabilities and is an invited presenter at professional conferences nationally and internationally.

Larry R. King, Chief Technology Officer at AbleLink Technologies, Inc., has been a software engineer for 17 years and has worked in the IT industry since 1995. King’s specialty is Human Interface Engineering, where he not only develops software but also designs and builds compelling and effective user experiences for people with intellectual disability, autism spectrum disorders, traumatic brain injury and those experiencing age related cognitive decline. King has been responsible for authoring, developing, and designing 24 commercially-deployed software applications for various platforms, including iOS, Android, Windows Mobile, Windows Desktop, and Web. Over his career King has developed commercial and internal use applications for six

companies in a wide variety of development landscapes, including cloud-computing, mobile application development, with particular emphasis on making everyday technologies accessible to individuals with cognitive disabilities.

The Community, the Cloud, and Cognitive Design – Applications for Advancing the Field of Cognitive Technology

Lower Level — BREAKOUT SESSIONS

LOCATION: Spruce SESSION DESCRIPTION: A MOOC is a Massive Open Online Course with publicly shared curriculum and open-ended, student-driven outcomes. MOOCs mix student learning interests, accessible online resources and video instruction in a format that lends itself to flipped instructional environments. Use of the digital literacies needed to succeed in a MOOC have indicated great potential to increase digital skills and learning capacity among postsecondary students with intellectual disabilities.

Cathleen Allen is Executive Director of the Inclusive Higher Education Certificate Program (IHECP), and is responsible for the design, implementation, and management of the IHECP. In high school she volunteered at the Ruth M. Wood School in Boulder and later, for more than 16 years, managed the daily functions of a retail furniture store. Before launching the IHECP, Allen served as the Highlands Ranch Bridge Program significant support needs transition teacher during the last seven years of her 15-year tenure with the Douglas County School District.

Allen earned her BA in behavioral science, and a special education generalist teaching license, from the Metropolitan State College of

Denver. Her MA in administration and supervision, Principal Licensure Program, is from the University of Phoenix.

Using MOOCs to Build Independent Learning, Self-Monitoring, and Digital Skills Among Postsecondary Students with Intellectual Disabilities

LOCATION: Fir SESSION DESCRIPTION: Microsoft Accessibility Technical Evangelist will present how Microsoft is developing technologies to ensure ease of use for people with and without disabilities, how these technologies are being leveraged to personalize user experiences, and where free Microsoft technologies, trainings and support are available.

Megan Lawrence, PhD, is the Senior Technical Accessibility Evangelist at Microsoft. She has over 13 years experience conducting research and development with and for people with disabilities. Prior to joining Microsoft, Lawrence was a research scientist at the Smith-Kettlewell Eye Research’s Rehabilitation Engineering Research Center (RERC) on Blindness and Low Vision. She also was a senior research associate and accessibility consultant at Cognito. As a consultant, she worked with nonprofits, government agencies and Fortune 500 companies to help them make their products and services accessible

to people with a range of abilities. Lawrence has a PhD in geography from the Univesity of Oregon with an emphasis on accessibility and human cognitive behavior.

Empowering People to Achieve More Through Microsoft Technologies

LOCATION: Cedar SESSION DESCRIPTION:

Some of the cognitively challenged individuals have limited access to information on the web due to lack of training in web searching skills. This presentation will highlight some of the obstacles that individuals with cognitive disabilities encounter while searching the web. Moreover, how we used an accessible version of the Google Search Education lessons as a training manual to improve the web searching skills of students with cognitive disabilities.

Redhwan Nour is a PhD student in Computer Science at the University of Colorado at Boulder. He earned his MS in computer science in 2012. His research interest includes human centered computing (HCC), web accessibility, web searching, technology and cognitive disabilities, inclusive design, and assistive technology. For his thesis research, he is focusing on improving web searching skills for people with cognitive disabilities based on their functional capabilities.

Web Searching Skills: Improving Abilities of Students with Cognitive Challenges Through Training and Web Interface Design

LOCATION: Alder SESSION DESCRIPTION:

Join us for a discussion on 3D printing in the context of education and accessibility. In this session, we will provide a high-level overview of the current software and hardware used in 3D printing. We will discuss existing examples of 3D printing being used in mainstream and special education, as well as assistive devices and accessibility solutions created with 3D printers.

Erin Buehler is a fifth-year PhD student in the Human-Centered Computing program at the University of Maryland, Baltimore County, advised by Professor Amy Hurst. Her research supports universal access to education for students with intellectual and developmental disabilities. Buehler’s work has explored the use of rapid fabrication tools and individualized interface design to improve the accessibility of curriculum in both formal and informal educational settings.

Leveraging 3D Printing to Support Education and Accessibility

LOCATION: Birch SESSION DESCRIPTION: Knowledge is power! A key component of advocacy and systems efficiency is being equipped with an understanding of the service system from different angles. Using data from CQL’s Personal Outcome Measures, State of the States, and the National Core Indicators, presenters will show how these data sets have informed policy and practice for states and providers.

Faythe Aiken is the Senior Research Analyst for The Council on Quality and Leadership (CQL). In this role, Aiken works on analysis, database administration, and technical support for all research projects. Prior to joining CQL, she served as a research analyst at the Human Services Research Institute (HSRI), a national organization providing research, evaluation and technical assistance to state and federal entities, with the goal of improving the lives of and opportunities for people with disabilities. During her time at HSRI,

Aiken was responsible for data management on all projects. She conducted policy and statistical analyses, provided technical assistance, and worked with key stakeholders. She also worked with the University of Minnesota as a research assistant on the Residential Information Systems Project (RISP) and the Supporting Families Information Systems Project (FISP), collecting, analyzing, and interpreting Medicaid data. In addition to conducting her research, Aiken worked in a L’Arche community providing direct support in a community environment for people with disabilities. She holds a BA in psychology from Holy Cross College.

How States and Providers Can Use National Data for a Comprehensive Look at Outcomes, Services, and Supports

LOCATION: Aspen SESSION DESCRIPTION: Depression is often unrecognized and untreated among persons with intellectual disabilities (ID) because of impaired expressive language, low literacy levels, and, sometimes, physical limitations. We are developing an Animation-Based Instrument for Depression Evaluation (AIDE) tool to improve access to the expression of depressive symptomatology for persons with ID through a visual, auditory, and touch interface. This presentation will describe AIDE’s development process.

Development of Animation-Based Instrument for Depression Evaluation (AIDE) Tool for Assessing Depressive Symptoms in Persons with Intellectual Disability

LOCATION: Aspen

Jia-Wen Guo, PhD, RN, is an Assistant Professor in the College of Nursing at the University of Utah. She received her BA in nursing in Taiwan and then worked as a clinical nurse in oncology, cardiovascular, and mental health for years. Her MA and PhD degrees in nursing focused on nursing informatics. Before she came to the US to study nursing informatics, she had a MA degree in biomedical science studying the genes that cause Alzheimer disease.

Guo’s research areas of interest focus on two interrelated areas: improving the quality of care among vulnerable populations and cancer patients and supporting nursing research and practice through the use of health-related information technology. One of her research studies focuses on developing a novel tool, an animation-based instrument for depression evaluation (AIDE), to assess depressive symptoms among people with

intellectual disabilities. A multimedia animation is used to present questions from the AIDE to facilitate comprehension of complex and/or abstract concepts embedded in the different levels of answer options for each question. Her research was supported by the Funding Incentive Seed Grant Program, University of Utah.

Development of Animation-Based Instrument for Depression Evaluation (AIDE) Tool for Assessing Depressive Symptoms in Persons with Intellectual Disability (continued)

LOCATION: Pine SESSION DESCRIPTION:

The Arc presents on patterns and insights gleaned from a nation-wide exercise to gather data on how technology is used by the people with cognitive disabilities who The Arc serves. The data is being gathered through The Arc’s “Tech Story Challenge” (http://tech.thearc.org), made possible with support from Google.

Abe Rafi is Director of Digital Strategy and Online Services at The Arc of the United States. He is charged with enabling The Arc to achieve its goals in the digital dimension. As the founder of a web design firm, he has organized and led product development teams to create online communities, mobile applications, websites, and business intelligence tools for social change for organizations such as Ashoka, Disability Rights International, The Bazelon Center for Mental Health Law, and for various other clients. Rafi is a long-time advocate for the rights of people with disabilities, having reported on human rights abuses in institutions for people with disabilities and trained human rights activists in Serbia, Turkey, and Russia. He is a graduate of the University of Michigan and the sibling of a man with an intellectual and developmental disability.

Dat Data on Technology Used by People with IDD

Peter Blanck, PhD, JD

Peter Blanck, PhD, JD, is University Professor at Syracuse University, which is the highest faculty rank granted by Syracuse. He is chairman of the Burton Blatt Institute (BBI) and honorary professor, Centre for Disability Law & Policy, at the National University of Ireland, Galway. He received the 2015 Distinguished Service Award from NARRTC (formerly known as the National Association of Rehabilitation Research and Training Centers). Blanck received a JD from Stanford University, where he was president of the Stanford Law Review, and a PhD in social psychology from Harvard University. Blanck has written widely on the Americans with Disabilities Act (ADA) and related laws. He has received more than $70 million in grants to study disability law and policy. Blanck also is chairman of the Global Universal Design Commission (GUDC), and president of Raising the Floor (RtF) USA. Prior to teaching, Blanck practiced law at the

William “Bill” T. Coleman III

Bill Coleman is the Chief Executive Officer at Veritas. Coleman is an industry veteran who has spent 25 years running prominent Silicon Valley companies including his years as the founder/CEO of BEA Systems.

Coleman founded BEA Systems in 1995 and was chairman and CEO of the company from its founding through October 2001, during which time BEA became the fastest software company to reach a billion dollars in annual revenue. Following BEA, Coleman was founder, chairman and CEO of Cassatt, Inc. an enterprise cloud software company which was acquired by CA, Inc. in 2009. He has been a partner with Alsop Louie Partners, an early stage Silicon Valley venture capital firm, since 2010. He was also chairman and CEO of Resilient Network Systems, a cyber security software company from Feb 2012 until Dec 2013. Prior to BEA, Coleman held various

management positions at Sun Microsystems, Inc., where he co-founded Sun Federal; founded Sun Professional Services; and was VP System Software, where he led the initial development of Solaris and related products. He began his career in the USAF as chief of satellite operations, Office of the Secretary.

Coleman holds a bachelor’s degree in computer science from the U.S. Air Force Academy and master’s degrees in computer science and computer engineering from Stanford University. He also holds an honorary doctorate from the University of Colorado, where he founded the Coleman Institute for Cognitive Disabilities. He is a member of the board of directors of Seagate, a commissioner of the Trilateral Commission, and a trustee of Santa Clara University.

Fireside Chat — Envisioning the Future of Technology 4:30 p.m.

Sue Swenson Acting Assistant Secretary for Special Education and Rehabilitative Services, OSERS U.S. Department of Education

Sue Swenson is the Acting Assistant Secretary for the Office of Special Education and Rehabilitative Services (OSERS) at the U.S. Department of Education. In this capacity, she serves as advisor to the U.S. Secretary of Education on matters related to the education of children and youth with disabilities, as well as employment and community living for youth

and adults with disabilities. The mission of her office is to provide leadership to achieve full integration and participation in society of people with disabilities by ensuring equal opportunity and access to, and excellence in, education, employment and community living.

In addition to serving as Acting Assistant Secretary, Swenson will continue to be Deputy Assistant Secretary for OSERS, a position she has held for the past six years, Before OSERS, Swenson served in the Clinton administration as the Commissioner for Developmental Disabilities in the U.S. Department of Health and Human Services. Swenson also served as executive director of the Joseph P. Kennedy, Jr. Foundation and CEO of The Arc of the United States.

Swenson got involved with disability advocacy because her middle son, Charlie, had profound disabilities. She was active in the Minneapolis schools as well as in state and federal policy while working as a professional services marketing director before being named a Kennedy Fellow in the U.S. Senate in 1996. She was educated at the University of Chicago and earned an AM there as well as an MBA at the University of Minnesota.

Peter Blanck, PhD, JD (continued) Washington DC firm Covington & Burling, and served as law clerk to the late Honorable Carl McGowan of the United States Court of Appeals for the D.C. Circuit. Among Blanck’s recent books are eQuality: The Struggle for Web Accessibility by People with Cognitive Disabilities (Cambridge University Press, 2014), which was commissioned by the Coleman Institute for Cognitive Disabilities, and the Routledge Handbook of Disability Law and Human Rights (Taylor & Francis, 2017, with E. Flynn, eds.). For additional information, see http://bbi.syr.edu/about/team/Leadership_Team/Peter_Blanck.html.