CASEC INFORMATION EXCHANGE Cancer Conference April 2016 · Presentations highlight and promote innovations to improve healthcare delivery and care. BRIDGING THE CANCER CARE GAP FOR

RRRRR

Acce

ss

Build

CASEC INFORMATION EXCHANGE Cancer Conference

April 2016

REPORT

www.patchafoundation.org

"Tell me and I forget.

Teach me and I remember.

Involve me and I learn." Benjamin Franklin

Together, Let’s Fight Cancer and…WIN!

ii CASEC Information Exchange 2016

© Patcha Foundation 2016. All rights reserved.

This publication has been prepared to facilitate the exchange of knowledge and to stimulate discussion, and together with the presentations, videos, photographs and other materials from the conference, make up the legacy of the CASEC Information Exchange 2016.

Patcha Foundation publications are available on the foundation web site at www.patchafoundation.org, or via email to [email protected].

Errors and omissions excepted. This CASEC Information Exchange legacy is being distributed without warranty of any kind, either expressed or implied. The Michael and Mauritia Patcha Foundation (The Patcha Foundation, MMPF), its partners, collaborators, sponsors, speakers, presenters or attendees assume and accept no liability for any damage arising from its use. The responsibility for the interpretation and use of the CASEC Information Exchange legacy lies with the reader.

Presentations, videos, photographs and other material in the CASEC Information Exchange legacy are used for illustrative and informational purposes only and do not imply any particular health status, attitudes, behaviors, or actions on the part of any person who appears in them.

The CASEC Information Exchange is a forum for dialogue on how to bridge the cancer care gap for Africans and people of African descent. This conference is a collaborative effort initiated by the Patcha Foundation and coordinated by the foundation and key Community Advocates, recognized in the Acknowledgments. The exchange of information between clinicians, researchers, community leaders, key stakeholders and other attendees offer different perspectives to understanding solutions that may already exist, and challenges to implementing them. The conference outcomes include proposed additional workable solutions, suggested means for their implementation, identifying processes for the way forward and identifying key stakeholders to accomplish this. Presentations highlight and promote innovations to improve healthcare delivery and care.

BRIDGING THE CANCER CARE GAP FOR AFRICANS AND PEOPLE OF AFRICAN DESCENT

http://www.patchafoundation.org/

iii CASEC Information Exchange 2016

Table of Contents

Background ........................................................................................................................................................ 1

Conference Design……….……………....................................................................................................................... 2

Conference Assessment Tools............................................................................................................................ 7

Conference Assessment………….......................................................................................................................... 7

Common Themes……………………………………………………......................................................................................... 9

Action Planning .................................................................................................................................................. 11

Expanding the Conversation .............................................................................................................................. 11

Conclusion .............................................................................. ……………………………………………………………………….. 11

Acknowledgements............................................................................................................................................ 11

In Pictures .............................................................................. ………………………………………………………………………… 12

Participants......................................................................................................................................................... 14

Citation from the Governor of Maryland............................................................................................................ 15

1 CASEC Information Exchange 2016

BACKGROUND

The purpose of the 2016 CASEC Information Exchange conference is to continue the dialogue about barriers to

cancer care in Africa and in people of African descent, and to provide tools to bridge the gap and build capacity

in African Diasporan communities and on the African continent.

The dynamic exchange of the disparity and challenges in cancer care in Africa & people of African descent had

the following objectives as the focus of the conference:

• ACCESS to information and to reproduce-able

tools to facilitate implementation of policies and

programs.

• SHARE expertise and experience to promote

collaboration in cancer care, research and

education with Africa, in communities of African

Descent.

• LEARN about cancer research advances and

about proven, practical tools in cancer care, in a

collaborative setting, and highlight collaborative

solutions in cancer care that are implementable

now.

• BUILD on best practices that offer replicable

solutions to implement in your workplace and in

patient care.

• GROW your cancer care knowledge base and

foster sustainable partnerships that will advance

cancer care in your communities.

• CELEBRATE closing the gap of care as we

dialogue, learn and involve each other in the

process, and award those that are valiantly

leading the way in this.

The core concept behind this conference was to

demonstrate that when multiple cancer stakeholders

dialog about cancer issues affecting Africans and

people of African descent, it can produce tools that

will facilitate implementation of policies and

programs, and that will foster sustainable

partnerships that will in turn advance cancer care in

communities.

According to the World Health Organization (WHO) cancer is shaping up to be the primary health care issue

facing Africans in the diaspora and on the continent. The cancer care gap is growing wider even right here within

the immigrant communities. While cancer mortality rates in advanced countries have declined in recent years

Africans and people of African descent continue to be burdened with ever increasing cancer deaths. The social

and economic effects are devastating. Effective solutions must include building sustainable partnerships with

stakeholders in advanced countries that are on the forefront of cancer treatment, education and research.

Multiple programs already exist, however, due to a variety of constraints these programs are not readily available

to or accessed by Africans and people of African Descent. Link here to the Center for Disease Control (CDC)

web page on Factors That Contribute to Health Disparities in Cancer for more on this issue.

We must position ourselves now to optimize partnerships, take full advantage of the wide resources available

and actively explore opportunities for collaboration and capacity building between Africa and the west.

http://www.cdc.gov/cancer/healthdisparities/basic_info/challenges.htmhttp://www.cdc.gov/cancer/healthdisparities/basic_info/challenges.htm


CONFERENCE DESIGN

1. The conference organized by the Patcha Foundation was designed to target the following pool of participants:

Top cancer practitioners, top researchers, NGO and non-profit managers, Health policymakers, frontline staff in cancer care: nurses, pharmacists, social workers and other clinicians, Community advocates, patients and caregivers and other cancer care stakeholders.

2. The conference was held at the Patuxent Greens Country Club, Laurel MD.

3. Conference Agenda

8:00am Registration & Light Breakfast

8:30am Welcome Address Kate F. Ndi, aka Lady Kate, Maryland Governor's Commissioner for African Affairs & Founder of the Miss Africa USA Pageant.

8:35 am Keynote Address Dr. Joxel Garcia, Executive Director of the Cancer Prevention & Control Platform at The University of Texas MD Anderson Cancer Center

8:55am Cancer Research and Clinical Trials Dr. Oluwadamilola Olaku, Ob/Gyn with special interest in gynecologic oncology, Clinical Research Contractor at NCI ---Moderator Dr. Samuel Dongmo, Clinical Research Director Next Generation Sequencing LabCorp, Quantomix Medical and LabCorp Dr. Carla Williams, Associate Professor of Medicine at Howard University & Interim Director of the Howard University Cancer Ctr Presentation Dr. Nathan L. Fletcher, Dental Director of AmeriHealth Caritas District of Columbia – Oral Cancer in African American Community

10:00am Global Affair: Faith, Racial Identity, Health and Careers Dr. Doris Browne, President & CEO of Browne and Associates, Inc. (BAI) ----Moderator Dr. Pier Broadnax, Director of the University of the District of Columbia BS in Nursing Program Dr. Nathan L. Fletcher, Dental Director of AmeriHealth Caritas District of Columbia – Oral Cancer in African American Community Pastor Tony Ojoibukun, Minister, writer, editor, community advocate and seminar facilitator Mr. Mamadou Samba, Executive Director of the DC Mayor's Office on African Affairs (racial disparities)

10:55am Workshop - Cancer Treatment and Side Effects Part 1 - Cancer Support Community Dr. Jethro Ekuta, VP and Head of Regulatory Affairs North America, for Johnson & Johnson Consumer Inc.

11:50am Lunch Ms. Meriterese Racanelli, R&D Food Scientist/Nutritionist at Goya Foods - Tips to reduce Cancer Risk for People of African Ancestry

12:30pm Workshop – Frankly Speaking: Cancer Treatment and Side Effects Part 1 - Cancer Support Community Dr. Jethro Ekuta, VP and Head of Regulatory Affairs North America, for Johnson & Johnson Consumer Inc.

1:10pm Spirit of Community Award - Ms. Andrea Roane, WUSA Channel 9 News Anchor & Founder of Buddy 9 Check ---Recipient

1:30pm Health Technology Mr. Joseph Brooks, Chief Enterprise Architect at intelligent integration, LLC----Enterprise Architecture in Health Care Mr. Richard Emeni, CEO and Founder of MobileHealth4All (MH4A), - Na We All, Inc – Mobile Health 4 All (MH4A) Mr. Dimitry Petion, President/CEO of Mulberry Systems, Inc. - Mulberry Systems

2:10pm Community Partners Dr. Anne Burnley Ekiti, Supervisory Occupational & Preventive Medicine, Kimbrough Ambulatory Care Center ---Zika Virus Ms. Josephine Garnem, International Medical Corps’ Strategic Outreach & Partnership Coordinator - International Medical Corp Dr. Ellis Morfaw, Head of the Palliative Care Unit and Assistant Coordinator of the HIV/AIDS Treatment Centre at the Foumban District Hospital - Anorectal Pathologies in HIV/AIDS Patients in Cameroon

2:50pm Leveraging, Matchmaking and Engagement Mr. Ray Michael Bridgewater, Founder, President and CEO of the Assembly of Petworth------Moderator Dr. Jeff Lundy, Director, Health & Wellness Program and Research U.S. Chamber of Commerce Foundation, Corporate Citizenship Center- Public Private Partnership Mr. Jim Thompson, Director of Innovation, Secretary of State’s Office for Global Partnerships- Leveraging/matchmaking Ms. Remy Szykier, Worldwide Managing Director, Founding Member, Board Member of AEGIS Health Security – Technology

3:45pm Last Conference Update / QA / Survey / Business Card Draw / Closing


4. The conference started at 8:50 AM with an unscheduled presentation by Dr. Ellis Morfaw from Cameroon, who shared a unique perspective on the practice of medicine in a remote region of Cameroon, where as General Practitioner, he also learned to do surgery on the job while flipping through manuals, in addition to being head of palliative care unit.

5. The welcome address

Commissioner Kate Ndi, Maryland Governor's Commissioner for African Affairs brought greetings from the Governor’s office, welcomed attendees and presented the foundation with a citation from the Governor.

6. The keynote address

Dr. Joxel Garcia of the MD Anderson Cancer Center gave the keynote address.

He spoke on the Cancer Prevention & Control Platform, the MD Anderson’s Moon Shots Program. Go here for the full presentation.

7. Cancer Research and Clinical Trials

With Dr. Oluwadamilola Olaku moderating, Dr. Samuel Dongmo and Dr. Carla Williams discussed advances in cancer research, and the importance for Africans, African Americans and other minority in the USA to get involved in clinical trials. Link here to Dr. Williams’ presentation.

8. Oral Cancer in the African American Community

Dr. Nathan Fletcher presented on oral cancer and stressed that routine oral cancer screening should be a part of twice yearly dental visit. Go here for the full presentation.

http://t1.jmp.sh/f/a/4HboifJIprLalQp5B-uGjg~~/AABzJwA~/RgRZH2GmP0EIASudzAg44dZXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgAEptw8V6oR5mpSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0xXaXhzVW40YW9HcUN6OTZDU2hnP3VyaT12L0JYOHdBS2RWanMzbEJRbkRuRDI0VnBxajhHAnt9http://t1.jmp.sh/f/a/CSUBE_mWKZzdP_plip_jOg~~/AABzJwA~/RgRZH2FkP0EIASudzAg41SdXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgAEZNw8V6oRri9SGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL2RWYVpyRHpPYlBldmxFUlVFaVR3P3VyaT12L2hIWGJLUjVMU09tNkdZaXhodUg1aDFGdG9HAnt9http://t1.jmp.sh/f/a/CSUBE_mWKZzdP_plip_jOg~~/AABzJwA~/RgRZH2FkP0EIASudzAg41SdXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgAEZNw8V6oRri9SGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL2RWYVpyRHpPYlBldmxFUlVFaVR3P3VyaT12L2hIWGJLUjVMU09tNkdZaXhodUg1aDFGdG9HAnt9http://t1.jmp.sh/f/a/aM6avwdegsGMSWFAh04i0g~~/AABzJwA~/RgRZH2GbP0EIAOueXq8ERBFXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgADm9w8V29fjBJSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0p2MHFmcDBKc2YzUFZrZDE0QkowP3VyaT12L2hLVEF2WmwwS0ZUc0FpQnp0ZXp4dUhhS1BHAnt9http://t1.jmp.sh/f/a/aM6avwdegsGMSWFAh04i0g~~/AABzJwA~/RgRZH2GbP0EIAOueXq8ERBFXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgADm9w8V29fjBJSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0p2MHFmcDBKc2YzUFZrZDE0QkowP3VyaT12L2hLVEF2WmwwS0ZUc0FpQnp0ZXp4dUhhS1BHAnt9


9. Global Affair: Faith, Racial Identity, Health and Careers

With Dr. Doris Browne moderating, Dr. Pier Broadnax, Dr. Nathan L. Fletcher and Pastor Tony Ojoibukun, discussed the role of health careers, culture, community, community leaders and churches in accessing cancer resources, and ultimately winning the cancer fight.

10. Leveraging, Matchmaking and Engagement

Moderated by Mr. Ray Michael Bridgewater, Dr. Jeff Lundy, and Ms. Remy Szykier discussed ICTs and public private partnerships and their impact in improving health care accessibility in remote areas of the world.

11. Tips to reduce Cancer Risk for People of African Ancestry

Ms. Meriterese Racanelli stressed the importance of healthy eating focused on ancestral foods. This segment of the conference was sponsored by Goya Foods, who also donated a gift basket for the Card Draw.

Goya Foods also donated to each attendee, a gift bag with Adobo Light Seasoning, yucca chips, a Think Rice fact sheet, and recipe book.

12. Workshop – Frankly Speaking: Cancer Treatment and Side Effects - Cancer Support Community (CSC)

Dr. Jethro Ekuta presented on this workshop that is part of the Frankly Speaking series, a collection of cancer-related education programs created by CSC. The workshop was made possible through an unrestricted educational grant from Amgen Inc. Go here for the full presentation

http://t1.jmp.sh/f/a/10pOnCAViyclNkGY55Ox0g~~/AABzJwA~/RgRZH2GFP0EIAGueUmkIz2ZXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgABhdw8VzEVGQxSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL1lPb3hqVjhOc3FPaU5SdEpxb3puP3VyaT12L2JNdVNVZ2d1Z0RVc0hwWFZWczhkUHZORlRHAnt9http://t1.jmp.sh/f/a/10pOnCAViyclNkGY55Ox0g~~/AABzJwA~/RgRZH2GFP0EIAGueUmkIz2ZXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgABhdw8VzEVGQxSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL1lPb3hqVjhOc3FPaU5SdEpxb3puP3VyaT12L2JNdVNVZ2d1Z0RVc0hwWFZWczhkUHZORlRHAnt9


13. Health Technology

Mr. Richard Emeni presented on Na We All, Inc’s Mobile Health 4 All (MH4A). Go here for the full presentation.

Ms. Jasmine Shih presented on Mulberry Systems, Inc’s patient workflow management tool. Go here for the full presentation.

14. Community Partners

Dr. Anne Burnley Ekiti, presented on the Zika Virus, and encourages attendees to follow her healthcare blog. Go here for the full presentation and to her blog.

Ms. Josephine Garnem presented on the International Medical Corps’ life-saving healthcare efforts all over the world in time of urgent needs.

Dr. Ellis Morfaw traveled from Cameroon for the conference and presented on Anorectal Pathologies in HIV/AIDS Patients in Cameroon. Go here for the full presentation.

CASEC Cancer Awareness, Screening, Early detection and Care

http://t1.jmp.sh/f/a/D39Tb4duCZ4v80TbKgVxKw~~/AABzJwA~/RgRZH2GxP0EIAGueUmkI2Q9XA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgABsdw8VzEVCDhSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0laUGlQbGVZUkk5bTJHaFVRdUxRP3VyaT12L25qeHlROGFmSEg4MmVqakp0dnNWQVdyeE9HAnt9http://t1.jmp.sh/f/a/D39Tb4duCZ4v80TbKgVxKw~~/AABzJwA~/RgRZH2GxP0EIAGueUmkI2Q9XA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgABsdw8VzEVCDhSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0laUGlQbGVZUkk5bTJHaFVRdUxRP3VyaT12L25qeHlROGFmSEg4MmVqakp0dnNWQVdyeE9HAnt9http://t1.jmp.sh/f/a/KWEpqcI8xC-4mcxchZTIbQ~~/AABzJwA~/RgRZH2FKP0EIAOueXq8EOC9XA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgADStw8V29fZh9SGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL2VnQ0dWaW9MNmY3RzVLVGxoT1lNP3VyaT12L2MzQlF1ZkE5Q28zQkNYM21MbnFucmhSN2ZHAnt9http://t1.jmp.sh/f/a/KWEpqcI8xC-4mcxchZTIbQ~~/AABzJwA~/RgRZH2FKP0EIAOueXq8EOC9XA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgADStw8V29fZh9SGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL2VnQ0dWaW9MNmY3RzVLVGxoT1lNP3VyaT12L2MzQlF1ZkE5Q28zQkNYM21MbnFucmhSN2ZHAnt9http://t1.jmp.sh/f/a/EELgt6u76TdVw74b5dxdeQ~~/AABzJwA~/RgRZH2F2P0EIAKueK_ychv9XA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgACdtw8V5xLRWxSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL2VuRU5BMVluZjUycWtoNEdQZlliP3VyaT12LzM1Wm9JVVRNQVk5NEdkVXJBZlhmampaRTlHAnt9http://t1.jmp.sh/f/a/EELgt6u76TdVw74b5dxdeQ~~/AABzJwA~/RgRZH2F2P0EIAKueK_ychv9XA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgACdtw8V5xLRWxSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL2VuRU5BMVluZjUycWtoNEdQZlliP3VyaT12LzM1Wm9JVVRNQVk5NEdkVXJBZlhmampaRTlHAnt9http://t1.jmp.sh/f/a/qH-tLSaiPJyn0WXud1tEew~~/AABzJwA~/RgRZH2GQP0EIASudzAg43JtXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgAEkNw8V6oRyFJSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0pxU282cVRpZzJDdjRyekRiaFNlP3VyaT12L3JQRXhMSDl5aDNZdlFjRlN5VkI5TjhZaGhHAnt9http://t1.jmp.sh/f/a/qH-tLSaiPJyn0WXud1tEew~~/AABzJwA~/RgRZH2GQP0EIASudzAg43JtXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgAEkNw8V6oRyFJSGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0pxU282cVRpZzJDdjRyekRiaFNlP3VyaT12L3JQRXhMSDl5aDNZdlFjRlN5VkI5TjhZaGhHAnt9


15. Spirit of Community Award

This award recognizes an individual or group that is making a positive impact in bridging the health care gap for Africans and people of African descent. This year’s recipient, Ms. Andrea Roane, WUSA Channel 9 News Anchor, was unable to receive it in person.

16. Citation from the Maryland Governor

Refer to page 15 for the citation

17. Last Conference Update / QA / Survey / Business Card Draw

Ms. Stella-Maris Adamu updated about the 2015 conference.

The foundation has taken steps towards accomplishing a twinning relationship between the US and Cameroon for cancer treatment and care. This was one of the suggested outcomes

from last year’s conference. It has been a slow process but some progress has been made. Go here for last year’s conference report.

Dr. Marianne Siewe won the card draw for the Goya gift basket, donated by Goya Foods.

Ms. Patricia Green won the card draw for the desk calendar clock set donated by the Patcha Foundation.

18. Host The Information Exchange was emceed by Ms. Gladys Njem, RN, also Patcha Foundation board member.


CONFERENCE ASSESSMENT TOOLS

The Patcha Foundation is able to analyze participant satisfaction as well as capture common themes and action

items. Conference evaluation surveys were distributed during the conference. This was the primary conference

assessment tool. Other non-tracked assessment was verbal feedback from participants during and after the

conference. The verbal assessment is noted but not used in analysis.

CONFERENCE ASSESSMENT

For this conference, 2 sets of evaluations were required from attendees. 34 evaluations for the workshop

Frankly Speaking: Cancer Treatments and Side Effects were collected and submitted to CSC for analysis.

50% of participants completed the CASEC Information Exchange conference evaluation forms. The evaluation

survey was designed to collect qualitative data. Participants were asked to answer four open-ended questions.

Participant responses for each question have been classed and recorded. See Table 1. The Patcha Foundation

was also able to identify some common themes.

While this information is helpful in understanding how effective the conference was, it is also important to

synthesize participant expectations and satisfaction.

Table 1

1= 2= 3= 4= 5= N/A

Unsatisfactory Marginal (Average)

Meets Expectation

Exceeds Expectation

Exceptional

Cancer Research and Clinical Trials

Overall session evaluation 17% 39%

Presenters were knowledgeable, organized and effective

13% 35%

Presenters were interactive and engaging with audience

4% 17% 30%

Value of information presented 4% 13% 33%

Global Affair: Faith, Racial Identity, Health and Careers

Overall session evaluation 14% 45% 41%



14% 41% 45%


14% 45% 41%


Workshop – Frankly Speaking: Cancer Treatment and Side Effects Parts 1 & 2- Cancer Support Community

Overall session evaluation 9% 36% 55% Presenters were knowledgeable, organized and effective

13% 30% 57%


13% 26% 61%

Value of information presented 13% 30% 57% Health Technology

Overall session evaluation 4% 22% 30% 43%


4% 17% 39% 39%


4% 22% 35% 39%

Value of information presented 4% 17% 39% 39%

Community Partners



10% 45% 45%


10% 45% 45%


Leveraging, Matchmaking and Engagement



11% 32% 58%


11% 32% 58%


Overall, how do you rate the Conference?

11% 28% 61%

COMMON THEMES

Participants wanted more time allotted for Q&A, breakout sessions and action planning. They appreciated the

opportunity to collaborate and network with peers. The following themes were recorded as response to

specific questions asked on the evaluation survey.


Reasons for attending the CASEC Information exchange

To gain insight and tools to educate and manage Africans in the community

To understand about disparities so that I can better serve my organization

Work To support

To keep up with current/updated information Interest in the health of the community

Seeking more knowledge and networking opportunity Awareness

Learn more about the state of cancer research and available treatments As healthcare provider to understand cancer patient care

Collaboration, knowledge sharing Presenter (to learn from colleagues)

Very interested in cancer prevention and control Patcha Foundation member

Presenter / speaker

Did the conference provide practical tools you can implement in your community?

It provided an in-depth understanding of barriers to testing, counseling and screening services.

It has helped me understand about developing specific diet plans for my patients

Outstanding oral health presentation

Outstanding oral health presentation

It helped me understand cultural barriers so that I can better communicate with African patients

What would you like to see implemented in your organization/community?

Any perceived barriers to accomplishing the identified task? If yes, please explain.

A service that encourages more Africans to show up for screening services

Due to limited funding there is a reduced outreach effort in general. The African community in diaspora will benefit from aggressive outreach efforts.

Education [prevention education] Cost of care

Awareness – Aggressive awareness

Better communication strategies in terms of cultural differences, diversity and life style during patient care

More community outreach

More conferences like this to the community

More collaboration More networking opportunity

Education about all types and aspects of cancer Availability of cancer expert to engage the community

Cancer pre-screening

Mobile clinic Lack of resources

More information to patients Lack of time

More research

Health delivery information systems

Youth involvement

Women’s workshops

What topics would you suggest for next year’s conference?

Specific education strategies – practical ways to educate Africans in diaspora on cancer

Data – need for data in health implementation and evaluation

How to incorporate the conference topics and information Strategy to convince the community to participate in pre-


in African parties [large crowds] screening

Moonshots updates by MD Anderson Free screening during breaks

Effects of HPV vaccine has had on cervical cancer rates (disease/deaths)

Involve media to report on the conference and help spread the word

Cost of cancer care and insurance Funding projects

New advances in cancer research and treatment HIV, Hepatitis A, B, C

Early detection, targeted screening Have more of this exchange year round

More on oral health

What speakers would you suggest for next year’s conference?

Dr. Garcia Dr. Dongmo

Dr. Carla Williams All speakers of this conference

Ms. Racanelli National Medical Association members

Dr. Jethro Ekuta NHMH members

Dr. Morfaw AMH members

How might the Patcha Foundation improve the conference?

Advertise to all ethnic groups as the conference information is useful for all ethnic groups

Have a streamlined session for those that cannot attend so they can still gain from the information

Fewer sessions to shorten the length of the conference Location – DC or Silver Spring MD, a more central location accessible by public transportation

Limited speakers Improve A/V system

Better time management Attract more African community leaders

More efforts to reach out and draw more people in Invite people from other states

Start conference no earlier than 9:00 am Reach out to students in medical schools

More attendees – PR and marketing to achieve this Invite NMA, NHMH and AMH members to attend

Conduct conference on a Saturday to improve attendance Consider a Monday or Friday if the conference must be held on a week day

More researchers and academic representation so that they can learn about the African heritage aspect

Do all things possible to bring in more cancer patients and survivors to share and learn

General comments

Great networking Very good and interactive

Practical action items needed for future conferences Some segments went over time – too long.

Really excellent conference Very useful

Exceptional quality of presenters Very informative and vital message

Incorporate more preventive health topics Wonderful speakers

It was humbling and a great privilege to be part of this conference

Patcha Foundation is doing a great job that should continue

Need more time for QA. Make it a more interactive session, perhaps dedicate a whole session to this for whatever questions attendees have about cancer prevention, diagnosis, treatment, etc.


ACTION PLANNING

Participants were encouraged to log in to the Forums-Feedback pages on the conference web page to continue

the dialog and to blog. There was not enough time planned for a working session to brainstorm about an

implementable program. However, the Patcha Foundation will select at least one program from the

conference evaluation feedback to work to implement before the next conference in April 2017. The Patcha

Foundation will continue to solicit input from conference panelists and attendees.

The Foundation also plans to disseminate information about the implemented program by presenting at a

health conference, sharing via various media and /or publishing in health journal.

Online Forum & Blog: www.patchafoundation.org/conferences/forum-feedback.

Also join us on social media: use #MMPF #CIE16 #CASEC to continue the dialogue.

EXPANDING THE CONVERSATION

In an effort to broaden the conversation significant attempts were made to engage a diverse group of participants. Invitations extended to the following were unsuccessful for various reasons:

a) Ambassadors or representatives of African and Caribbean countries b) State of Maryland Commissions for Caribbean and Hispanic Affairs c) Prince George’s County Health Department and Cancer Control Departments d) County Executives of Montgomery and PG Counties e) National Medical Association members f) Prostate and colon cancer foundation representatives g) Various community and church groups

CONCLUSION

Based on the review of the evaluation data, verbal and other feedback from the participants, The CASEC

Information Exchange, the cancer conference on closing the cancer care gap for Africans and people of African

Descent was a success. While acknowledging that steps should be taken to improve future conferences, the

Patcha Foundation believes that the goals for this information exchange were accomplished.

ACKNOWLEDGEMENTS

The conference and the development of this report would not have been possible without the input and

support of many individuals and organizations including the Cancer Support Community, Goya Foods, the

Patuxent Greens Country Club, Mr. Ray Michael Bridgewater (Assembly of Petworth), Dr. Jethro Ekuta (Johnson

& Johnson Consumer Inc), Ms. Rhea Suarez (Cancer Support Community), Ms. Meriterese Racanelli (Goya

Foods), all speakers, panelists and attendees, the host, members & officers (Patcha Foundation), and all who

provided service (planning, A/V, registration, videography, photography). The Patcha Foundation gratefully

acknowledges your contributions.


IN PICTURES


Go here for more pictures

http://t1.jmp.sh/f/a/BhMKO9QFx8IEj_71srL-hQ~~/AABzJwA~/RgRZH2rEP0EIAOueXq8FevxXA3NwY1gEAAAAAFkIaXBfcG9vbDFCCgADxOU8V29fCL9SGm1hcmllQHBhdGNoYWZvdW5kYXRpb24ub3JnCVEEAAAAAEREaHR0cDovL2ptcC5zaC9lL0lDeWNuWEtFRGtQd2IzbjJQU2RyP3VyaT1iLzhESng1N0ZpeUpDMlNFWXgzcmxQT2lVYTZHAnt9


PARTICIPANTS

Name Position / Title Organization Stella-Maris Adamu President the Patcha Foundation

Anthony Adenikinju Prime Access Insurance Advisory Group

Harriet Ajonko, FNP

Richard Akwo

Rosemary Atanga

Whitney Awanayah, CRNP

Dr. Lymor Barnhard Science Officer Prostate Cancer Research Program CDMRP

Raynard Beache Community Rep M-PACT (PG) COUNTY

Ray Michael Bridgewater Founder, President and CEO Assembly of Petworth

Dr. Pier A. Broadnax Director of BS in Nursing Program University of the District of Columbia

Dr. Doris Browne President & CEO Browne and Associates, Inc. (BAI)

Dr. Anne Burnley Ekiti Supervisory Occupational and Preventive Medicine Physician Kimbrough Ambulatory Care Center on Fort

Meade

Odell Bussue President Caribbean Health and Education Foundation

Bonie Chungong CSF the Patcha Foundation

Dr. Judith Dongmo Legal Consultant

Dr. Samuel Dongmo President & Founder Quantomix Medical

Dr. Jethro Ekuta Vice President, Regulatory Affairs Johnson & Johnson Consumer Inc.

Roselyn Ekuta, RN, BSN Nursing Graduate Student University of Pennsylvania

Richard Emeni Founder and CEO MobileHealth4All (MH4A)

Patience Emeni President NaWeAll Inc

Lydia Esapa Accounting the Patcha Foundation

Renee Few The Faithful Few

Dr. Nathan Fletcher Dental Director AmeriHealth Caritas District of Columbia

Rosemary Fonya Nurse, CEO Fonya Foundation

Yvonne Fornishi, PharmD

Dr. Ellis Fualefeh Morfaw GP, Head of Palliative Care, HIV/AIDS Treatment Coordinator Foumban District Hospital

Dr. Joxel Garcia Executive Director University of Texas MD Anderson Cancer Center

Josephine Garnem Strategic Outreach & Partnership Coordinator International Medical Corps

Florencia Gonzalez Community Networks Manager Howard University

Patricia Green, MSW, MSPR Founder The Patricia Green Group

Gladys Happi, MSN, RN Nephrology Subject Matter Expert Edaptive Systems/Fresenius Medical Care

Susan Huang Nurse Case Manager Human Health Department, Montgomery county

Rosa Jenkins Nurse Case Manager Montgomery County Health Department

Craig Jones Engineer, Director of Signals Systra Inc.

Kader

Bernadette Keyi

Jules Kouame

Barbara Tchinjo Kuate Event Planner

Hubert Kuete Senior Molecular Genetics Review Analyst GeneDx

Richard Mbakop President/Executive Director Safe Bridge of Help / ACCDF

Richard Muma Muma's Inc.

Lady Kate Ndi MD Governor's Commissioner, Founder Miss Africa USA Pageant

Gladys A. Njem Deligating Nurse Case Manager

Brigitte Nkamsi

Njieko Nubia

Jude Nyambi

Pastor Anthony Ojoibukun Minister, Community Advocate

Tomi Oladimeji Nurse Case Manager

Dr. Olaku Oluwadamilola OB/GYN, Clinical Research Contractor National Cancer Institute

Marie Patcha Jones Program Coordinator the Patcha Foundation

Meriterese Racanelli R&D Food Scientist/Nutritionist Goya Foods

Kya Ragsdale Acting Program Manager Women's Cancer Control Program Montgomery County Health Department

Jasmine Shih Vice President Mulberry Systems, Inc

Dr. Marianne Siewe

Marie Francoise Songong Nurse the Patcha Foundation

Rhea Suarez Manager, Education Cancer Support Community

Remy Szykier Worldwide Managing Director, Founding Member AEGIS Health Security

Jim Thompson Director of Innovation Secretary of State’s Office for Global Partnerships

Maria Watson RN, CPEST/CRC Case Manager Doctors Community Hospital

Dr. Carla Williams Associate Professor of Medicine/Interim Director Howard University/Cancer Center


CITATION FROM THE GOVERNOR OF MARYLAND


The Patcha Foundation was established in 2008 to educate women about breast cancer and to empower them with tools, like breast self-exam, to increase cancer survivorship. Since 2012 the foundation has expanded to include advocacy for a reduction in the prevalence of all cancers and other chronic conditions like cardiac disease, diabetes and hypertension. Our goal is to reduce the impact of cancer on African communities in the diaspora and on the continent.

Our vision is Simply a World Without Cancer!

THE BRAND OF CARE THAT MAKES A DIFFERENCE

TOGETHER, LET’S FIGHT CANCER AND…WIN!

WWW.PATCHAFOUNDATION.ORG

2901 Cabin Creek Drive, Burtonsville, MD 20866, USA 301 850 2991

Rue Gallienie Akwa Douala, Cameroon 237 7957 5959 / 237 9719 8719

Facebook: The Michael and Mauritia Patcha Foundation Twitter: @patchaf

Join our Mailing List – Go to www.patchafoundation.org

please use #MMPF #CIE16 #CASEC to continue the dialogue

Email: [email protected]

Documents

CASEC INFORMATION EXCHANGE Cancer Conference April 2016 · Presentations highlight and promote innovations to improve healthcare delivery and care. BRIDGING THE CANCER CARE GAP FOR