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Caring for Person with dementiaAmrita Patil -Pimpale
Trainer ,EHA ; Researcher Univ of Northampton UK
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Introduction :
Echoing Healthy Ageing (EHA) We are a social enterprise
providing consultation, education, home care support
for people with dementia and their Families.
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Dementia A term that doctor uses when someone has number of
problems with thinking and remembering. Problems interfere with person’s ability to do things
that they used to be able to manage.
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What is happening The brain is made up of billions of nerve cells.
Nerve cells are specially designed for their function. They are elongated with many tentacle-like projections called dendrites that make connections with the
cells around them.
Dementia is caused by loss of nerve cells in the brain.
Dementia Symptoms
Dementia Symptoms
Dementia Symptoms
Dementia Symptoms
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Old memories and New memories
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Practical Difficulties
•Reading /Writing •Preparing food •Driving or travelling alone•Getting dressed •Handling money
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Diagnosis of Dementia Complicated to get an accurate picture of what is occurring within the brain. Today dementia is diagnosed by: ‘Mini Mental State Exam’(MMSE) A cognitive
assessment tool which establishes mental impairment. A physical examination. This can affect when and what treatment is provided. Brain scans including MRI can detect signs of dementia in the brain.
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What do you think ?
person with DEMENTIA
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PERSON with dementia
Tom KitwoodA Person-Centred Understanding
D = N + P + B + H + SPPERSON with dementia, not
person with DEMENTIA
Neurological – nature of the underlying cause Personality – how we are, how we cope Biography – we are all shaped by our past Health – impact of other conditions Social Psychology – other people: help or hindrance?
What is the difference between a person with dementia and ourselves?
Think about cognitive function
Different Think about emotional function
Think about physical needs
Think about social needs
Think about psychological need
All the Same
What Do You Think ?
Psychological Needs by Kitwood(1997)
Adaptation is the key
‘Normal life’
• Information• Thinking• Goals• Complex• Fast• Remembered• Variety
‘Life in the moment’
• Emotion• Sensing• Experiences• Simple• Slow• Enjoyed• Consistency
Why do people turn away?
Feeling inadequate Can’t fix it
Frightening & upsetting
Might do ‘The Wrong
Thing’
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Recognition The person is acknowledged, called by name, eye contact or touch.
Negotiation The person is consulted about their preferences, being offered choice makes you feel you can still have an impact on the way things turn out. As human being we hate no being able to choose.
Collaboration Working with the person, not doing things to them. This is about sharing your power. Helping someone to get dressed is assisting them with the bits they find difficult, not taking over.
Play Having fun, enjoying yourself with the person with dementia/depression. If you are having a good time they probably will too
Celebration When the person achieves something celebrate with them.
Validation Acknowledging person’s emotion, taking it seriously and responding to it.
Facilitation Assisting a person to achieve something they would not normally do alone.
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Meaningful Activities and Therapies Alternate therapies
Music Gardening
Occupational Pet therapies Reminiscence
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Reminiscence Meaningful pictures The reminiscence bump Getting the conversation started -sight :family photographs -sound -touch -smell -taste
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Carer’s Role : Reality You feel you can help A sense of guilt for not helping your loved
one to maintain their quality of life Sense of increasing isolation and
commitment : More you do the more you are needed .
Caring can be hard, but it can also be rewarding.
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Answer these….
1.Am I receiving or likely to receive enough support from others in my own
life to help me be an effective carer?
2.Am I able to give the necessary time to help and support my loved one
experiencing dementia ?
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Your Well Being
YES. All well and Good.
NO. How can you get support and arrange
you time?
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Your Well Being
Making choices : Time. How much/Type?
Help from family members
Carers support groups
Find time for yourself
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Your Well Being
To be effective carer the first person you need to
look after yourself is ‘YOU’.
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Your Well Being
Look after yourself
Sleep
I am special
Positive thoughts
Meditation
Relaxation
Time for me
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Attitude
‘’This is what I have to do’’
‘’I am doing, what I am doing, because this is
what I want to do.’’
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Questions ?
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Email : [email protected] Phone : 91 58 65 66 65
Website : www.echoinghealthyageing.com/
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Follow us on Twitter : @EHAgeing
