©© 2008 Lynn Kable for Society for the Arts in 2008 Lynn Kable for Society for the Arts in Healthcare Consulting ServiceHealthcare Consulting Service

Caring for Caregivers, Professional, Formal and Caring for Caregivers, Professional, Formal and InformalInformal

Through Use of theThrough Use of theArts, Humanities, Design, Arts, Humanities, Design, Exercise,Exercise,

Education, Education, and and Peer SupportPeer Support

What is What is CaregivingCaregiving??

Caregivers provide continuous care over a Caregivers provide continuous care over a long period of time in homes, institutions long period of time in homes, institutions and long term care facilities for persons and long term care facilities for persons with physical or mental illness or disability with physical or mental illness or disability requiring assistance with activities of daily requiring assistance with activities of daily living living (Barbara Hogan, PhD, SAH Conference on Caring for Caregivers (Barbara Hogan, PhD, SAH Conference on Caring for Caregivers in the USA and Japan, Gainesville, Florida, April, 2002)in the USA and Japan, Gainesville, Florida, April, 2002)

Who are informal caregivers?Who are informal caregivers?Family, friends, and neighbors, are called Family, friends, and neighbors, are called ““informal caregiversinformal caregivers”” and and they provide between 70% and 80% of care outside of institutionsthey provide between 70% and 80% of care outside of institutions..The majority of caregivers are middleThe majority of caregivers are middle--aged (35aged (35--64)64)The person most likely to be providing care to an older person iThe person most likely to be providing care to an older person is an s an adult child, but the person most likely to be primary caregiver adult child, but the person most likely to be primary caregiver for for someone they are living with is a spouse. Adult children are oftsomeone they are living with is a spouse. Adult children are often en secondary caregivers.secondary caregivers.22% of persons over 65 are caregivers for a spouse. 22% of persons over 65 are caregivers for a spouse. Family caregivers over 75 years old spend an average of 35 hoursFamily caregivers over 75 years old spend an average of 35 hoursper week giving care.per week giving care.1717--24% of informal caregivers are estimated to be friends or 24% of informal caregivers are estimated to be friends or neighbors. neighbors. Statistics from Family Caregiver Statistics from Family Caregiver AssAss’’nn,,

Informal Caregivers are Valuable and Informal Caregivers are Valuable and On the Whole On the Whole Not Well Cared ForNot Well Cared For

We refer you to LynnWe refer you to Lynn’’s PowerPoint on Caregiver s PowerPoint on Caregiver Facts the short version is:Facts the short version is:Caregivers have a higher incident of physical and mental Caregivers have a higher incident of physical and mental health problems than nonhealth problems than non--caregivers, and are less likely caregivers, and are less likely to receive proper healthcare.to receive proper healthcare.Services of Informal caregivers are estimated to be Services of Informal caregivers are estimated to be worth worth $306 billion$306 billion annually to the US economy.annually to the US economy.Informal Informal caregivingcaregiving costs the caregiver an average of costs the caregiver an average of over $659,000 over a lifetime.over $659,000 over a lifetime.

Who are Paraprofessional Who are Paraprofessional ““FormalFormal”” CaregiversCaregivers

““Formal caregiversFormal caregivers”” are primarily home health are primarily home health aides and nursing assistants. Most frequently aides and nursing assistants. Most frequently formal caregivers:formal caregivers:

Are MiddleAre Middle--aged womanaged womanHave a low educational levelHave a low educational levelLive below or near povertyLive below or near povertyReceive low wages, few benefits Receive low wages, few benefits

(Hogan, Barbara, SAH conference on Caring for Caregivers, 2002)(Hogan, Barbara, SAH conference on Caring for Caregivers, 2002)

HOSPITAL AND HOSPICE HOSPITAL AND HOSPICE PROFESSIONAL CAREGIVERSPROFESSIONAL CAREGIVERSIn medical centers and hospices, caregivers are In medical centers and hospices, caregivers are defined as people who take care of patients.defined as people who take care of patients.

Caregiver stress has been identified as a major Caregiver stress has been identified as a major reason for physicians, nurses, and other staff reason for physicians, nurses, and other staff leaving their fields, and suffering leaving their fields, and suffering ““burnout.burnout.””

Hospitals, institutions, and hospices have begun Hospitals, institutions, and hospices have begun to identify and address, formally and informally, to identify and address, formally and informally, the needs of their staff attributed to the needs of their staff attributed to ““caregiver caregiver stress.stress.””

HOSPITAL AND HOSPICE HOSPITAL AND HOSPICE PROFESSIONAL CAREGIVERSPROFESSIONAL CAREGIVERS

Because of the high cost of staff turnover Because of the high cost of staff turnover and training new personnel in hospitals, and training new personnel in hospitals, many arts, exercise, stress reduction, many arts, exercise, stress reduction, peer support, counseling & recreation, peer support, counseling & recreation, ““Programs credited with retaining even Programs credited with retaining even one nurse or doctor are often said to have one nurse or doctor are often said to have paid their own way.paid their own way.”” (Quote from Naj Wikoff, former SAH (Quote from Naj Wikoff, former SAH President and Director of Arts and Healing Program at Koop InstiPresident and Director of Arts and Healing Program at Koop Institute, New tute, New Hampshire)Hampshire)

Widely Suggested Remedies for the Widely Suggested Remedies for the problems of informal and paraprofessional problems of informal and paraprofessional

caregivers include:caregivers include:Increased Compensation for lower paid Increased Compensation for lower paid paraprofessional workersparaprofessional workersEducational and Instrumental Support Educational and Instrumental Support Health screening & monitoringHealth screening & monitoringSocial Support Social Support Stress reduction activitiesStress reduction activitiesARTS, HUMANITIES AND DESIGN CAN BE USEFUL ARTS, HUMANITIES AND DESIGN CAN BE USEFUL IN EDUCATIONAL SUPPORT, IN SOCIAL SUPPORT, IN EDUCATIONAL SUPPORT, IN SOCIAL SUPPORT, IN STRESS REDUCTION, AND CAN BE USED TO IN STRESS REDUCTION, AND CAN BE USED TO ATTRACT CAREGIVERS AND PATIENTS TO ATTRACT CAREGIVERS AND PATIENTS TO HEALTH SCREENING ACTIVITIES.HEALTH SCREENING ACTIVITIES.

Finding Time for Finding Time for Informal Caregiver SelfInformal Caregiver Self--CareCare

Informal caregivers often feel guilty for taking time Informal caregivers often feel guilty for taking time for themselves away from the person for whom for themselves away from the person for whom they are providing care, even for necessary they are providing care, even for necessary medical appointments, or to learn additional medical appointments, or to learn additional skills.skills.Therefore, programs that provide transportation Therefore, programs that provide transportation and activities for caregivers and people and activities for caregivers and people receiving care at the same time in nearby receiving care at the same time in nearby locations are more effective than those providing locations are more effective than those providing only caregiver activities.only caregiver activities.Full family activities can provide times for respite Full family activities can provide times for respite and joy.and joy.

Finding Time for Caregiver SelfFinding Time for Caregiver Self--Care Care for Professional Caregiversfor Professional Caregivers

Nurses called in for extra shifts longing for more Nurses called in for extra shifts longing for more time with family, doctors with barely enough time time with family, doctors with barely enough time to speak with patients are people with little time to speak with patients are people with little time for themselves. Some ways to reach them:for themselves. Some ways to reach them:Sponsor Sponsor ““Drop inDrop in”” arts activities in staff lunch arts activities in staff lunch area or break rooms.area or break rooms.Give continuing education or medical education Give continuing education or medical education credits for a full credits for a full ““Caring for CaregiverCaring for Caregiver”” day with day with educational and stress reduction components.educational and stress reduction components.Have a major Have a major ““Caring for CaregiversCaring for Caregivers”” festival festival with activities on all three shifts for staff and with activities on all three shifts for staff and families. families.

Traditional Education and Peer Support Traditional Education and Peer Support Programs at Hospice of the Hills, VirginiaPrograms at Hospice of the Hills, Virginia

Hospice of the Hills Hospice of the Hills holds frequent holds frequent ““Brown Brown bagbag”” lunches for staff lunches for staff and volunteers to gain and volunteers to gain knowledge from knowledge from speakers, and share speakers, and share stories, providing stories, providing education and peer education and peer support.support.

Photo: Hospice of the Hills,

Volunteers and Support Staff, Hospice of the Hills

Programs for Caregiver Programs for Caregiver Education and Peer Support Education and Peer Support

Can Feature Arts and Can Feature Arts and Humanities ComponentsHumanities Components

Programs Giving Caregivers Additional Programs Giving Caregivers Additional Education about Education about CaregivingCaregiving can also havecan also have

Arts, Humanities and Stress Reduction Arts, Humanities and Stress Reduction ComponentsComponents

TanpopoTanpopo--NoNo--Ye, in Nara, Japan, addresses 24Ye, in Nara, Japan, addresses 24--hour needs of hour needs of people with severe disabilities through creative arts, work skilpeople with severe disabilities through creative arts, work skills, ls, recreation, housing and food programs. They felt that Caregiversrecreation, housing and food programs. They felt that Caregivers

–– over 500 staff, family and volunteers over 500 staff, family and volunteers –– needed support.needed support.

Photos: Lynn Kable, Computer screen image, courtesy of Tanpopo-No-Ye Foundation

UtilzingUtilzing Arts In Arts In Programs For Programs For Education And Peer SupportEducation And Peer Support

TanpopoTanpopo--NoNo--Ye Support for Caregivers of People with DisabilitiesYe Support for Caregivers of People with Disabilities

Tanpopo sponsored local and national conferences about Tanpopo sponsored local and national conferences about Caring for Caregiver issues. They conducted outreach:Caring for Caregiver issues. They conducted outreach:

Year I: Conducted needs assessment of family, institutional Year I: Conducted needs assessment of family, institutional employee and volunteer caregivers. They identified need employee and volunteer caregivers. They identified need for stress reduction activities, education and counseling for for stress reduction activities, education and counseling for caregivers, and opportunities for peer support.caregivers, and opportunities for peer support.

Year II: Established programs including drama, poetry Year II: Established programs including drama, poetry readings, and readings, and ““garden theatregarden theatre”” workshops for caregivers.workshops for caregivers.

Year III: Established website for family & institutional Year III: Established website for family & institutional caregivers to consult with gerontologists and psychologists caregivers to consult with gerontologists and psychologists on caregiver difficulties.on caregiver difficulties.

Year IV: Sponsored computer opportunities for peer Year IV: Sponsored computer opportunities for peer support and consultation among caregivers, decreasing support and consultation among caregivers, decreasing sense of isolation.sense of isolation.

Utilizing Garden Art for Caregiver Utilizing Garden Art for Caregiver SelfSelf--Expression: Expression:

TanpopoTanpopo NoNo--Ye Ye ““Garden TheatreGarden Theatre””

SelfSelf--styled styled ““Bio Media Bio Media ArtistArtist”” Professor Yuji Professor Yuji Dogane has Dogane has caregivers bring caregivers bring objects and choose objects and choose plants to tell a story. plants to tell a story. They share the They share the ““theatretheatre”” story with all story with all the other caregivers. the other caregivers.

UTILIZING ARTS FOR UTILIZING ARTS FOR EDUCATION and PEER SUPPORTEDUCATION and PEER SUPPORT

Aomori Social Promotion Corporation Aomori Social Promotion Corporation AlzheimerAlzheimer’’s and Senile Dementia Projects and Senile Dementia Project

The Aomori Social Promotion Corporation The Aomori Social Promotion Corporation operates in a fishing village in Northern Japan. operates in a fishing village in Northern Japan. Their geriatric program had 3Their geriatric program had 3--year funding from year funding from an insurance company to conduct a caring for an insurance company to conduct a caring for caregivers program. They formed a caregivers program. They formed a ““project project team,team,”” which made it a priority to inform the which made it a priority to inform the community about senile dementia and community about senile dementia and AlzheimerAlzheimer’’s Disease and about s Disease and about caregivingcaregiving..

UTILIZING ARTS FORUTILIZING ARTS FOREDUCATION and PEER SUPPORTEDUCATION and PEER SUPPORT

Aomori Social Promotion CorporationAomori Social Promotion CorporationAlzheimerAlzheimer’’s and Senile Dementia Projects and Senile Dementia Project

Caregivers wrote, Caregivers wrote, produced & performed a produced & performed a play on play on caregivingcaregiving for for patients with senile patients with senile dementia titled dementia titled ““I Love I Love You!You!”” 1350 people saw 1350 people saw the show.the show.Each performance was Each performance was followed by an followed by an educational speaker and educational speaker and small group discussions small group discussions on needs of caregivers.on needs of caregivers.

Director of Program Shows Poster for “I Love You” Photo – Lynn Kable

PHYSICAL EXERCISEPHYSICAL EXERCISE

Caregivers often sit by the side of the Caregivers often sit by the side of the person for whom they are caring with little person for whom they are caring with little to do except eat, worry and watch TV.to do except eat, worry and watch TV.

Weight gain, stress, and lack of exercise Weight gain, stress, and lack of exercise are identified causes of such conditions as are identified causes of such conditions as diabetes type 2 and heart disease.diabetes type 2 and heart disease.

ITIT’’S IMPORTANT FOR CAREGIVERS TO S IMPORTANT FOR CAREGIVERS TO EXERCISE AND KEEP DOWN WEIGHT!EXERCISE AND KEEP DOWN WEIGHT!

Smith Farm Center for Healing Arts, Washington, DCSmith Farm Center for Healing Arts, Washington, DCYoga classes at retreats for physicians who treat cancer Yoga classes at retreats for physicians who treat cancer

patients and for informal caregivers are used to strengthen patients and for informal caregivers are used to strengthen muscles, and reduce stressmuscles, and reduce stress

Photo: Shizuka Morishita,

ARTS AND PHYSICAL MOVEMENTARTS AND PHYSICAL MOVEMENTJill SonkeJill Sonke--Henderson teaches caregivers dance in Henderson teaches caregivers dance in

a workshop in Sendai, Japana workshop in Sendai, Japan

Photo: Lynn Kable

Miyazaki Medical Center, Japan Miyazaki Medical Center, Japan Nurses developed a Nurses developed a stress reduction and stress reduction and exercise program for exercise program for Moms of longerMoms of longer--stay stay and seriously ill and seriously ill pediatric patients, pediatric patients, using stretches, using stretches, movement and movement and massage.massage.

Photos: Contributed by Miyazaki Medical CenterPhotos: Contributed by Miyazaki Medical Center

Seven Seven ““RR’’ss”” for caregiver RELIEFfor caregiver RELIEF

Respite Respite -- a time to do what needs doinga time to do what needs doing

Retreat Retreat –– a time to get away and relax a time to get away and relax

Rage Rage –– a time to let it all hang outa time to let it all hang out

Religion/meditation Religion/meditation –– a time to ask for helpa time to ask for help

Recreation Recreation –– a time to follow onea time to follow one’’s own interestss own interests

Renewal Renewal –– an opportunity to learn new skillsan opportunity to learn new skills

Remembering and Grieving Remembering and Grieving –– exploring memories, exploring memories, expressing respect and caring for someone who has expressing respect and caring for someone who has passed away passed away

RESPITE Program RESPITE Program Hospital Audiences, Inc. (HAI) in New YorkHospital Audiences, Inc. (HAI) in New York

Hospital Audiences, Inc. Hospital Audiences, Inc. (HAI) in New York (HAI) in New York provides a respite provides a respite program for family program for family caregivers.caregivers.Those in need of care Those in need of care can be dropped for half a can be dropped for half a day to participate in day to participate in supervised arts supervised arts workshops while workshops while caregivers get needed caregivers get needed time alone for rest, time alone for rest, relaxation, chores, & selfrelaxation, chores, & self--care (medical, dental, care (medical, dental, haircuts, etc.) haircuts, etc.)

Photo: Courtesy of HAI, NYCPhoto: Courtesy of HAI, NYC

PHOTO: HAI respite program artexhibit, proud artist, and staff member

Outdoor RETREAT SpacesOutdoor RETREAT SpacesTop: Hillside, Amherst County, VA. Cloister in FranceTop: Hillside, Amherst County, VA. Cloister in France

Below: Hospital Gardens Below: Hospital Gardens -- Scripps Hospital, San Diego Scripps Hospital, San Diego and University of Michigan Hospitals, Ann Arborand University of Michigan Hospitals, Ann Arbor

Photos: TOP: Lynn Kable, Helen Orem, BELOW: Aesthetics Inc. and Gifts of Art, UMH

RETREAT SpacesRETREAT Spaces““GrandmaGrandma’’s Rooms Room”” in Rainbow House, Kobein Rainbow House, Kobe

and Palliative Care Caregiver sleeping area in Hiroshimaand Palliative Care Caregiver sleeping area in Hiroshima

Photos: Lynn Kable

Physician RETREATSPhysician RETREATSSmith Farm Center for the Healing ArtsSmith Farm Center for the Healing Arts

Smith Farm holds weekend Smith Farm holds weekend retreats for physicians who retreats for physicians who treat cancer patients.treat cancer patients.

Smith Farm conducts activities Smith Farm conducts activities to allow physicians to deto allow physicians to de--stress and express emotions, stress and express emotions, especially sadness for loss especially sadness for loss ––writing, drawing, yoga, writing, drawing, yoga, sandtray (shown here, based sandtray (shown here, based on Carl Jungon Carl Jung’’s work)s work)

Photos: Shizuka Morishita

RAGE Room RAGE Room –– SHOUT singersSHOUT singersFinding ways to help stressed out caregivers Finding ways to help stressed out caregivers

let off steam, Rainbow House, Kobe let off steam, Rainbow House, Kobe and Kobou Shobu, Kagoshima, Japanand Kobou Shobu, Kagoshima, Japan

Photos: Lynn Kable

RELIGION AND MEDITATION: RELIGION AND MEDITATION: Holy Family Chapel, Scripps Mercy Hospital, San DiegoHoly Family Chapel, Scripps Mercy Hospital, San Diego

LeftLeft-- River of Life and Stained Glass Forest River of Life and Stained Glass Forest Right Right ––Prayer Bowl invites caregivers to ask for prayersPrayer Bowl invites caregivers to ask for prayers

Photos: Lynn Kable

Small Circular Interior Meditation RoomSmall Circular Interior Meditation RoomRainbow House, Kobe, JapanRainbow House, Kobe, Japan

RELIGION/MEDITATION: Outenin Temple, Osaka RELIGION/MEDITATION: Outenin Temple, Osaka ––Services but also: Caregiver & Cancer Survivor Support Services but also: Caregiver & Cancer Survivor Support

Groups, and an Art Gallery where Mylar installation reflects Groups, and an Art Gallery where Mylar installation reflects cemetery, transitory nature of lifecemetery, transitory nature of life

RELIGION / MEDITATIONRELIGION / MEDITATIONNurses Area Dozono Medical CenterNurses Area Dozono Medical Center

Photo of Mother Photo of Mother Theresa and Theresa and Calligraphy of Calligraphy of Buddhist Buddhist Scriptures Dozono Scriptures Dozono Medical Center, Medical Center, KagoshimaKagoshima

RECREATION AND ARTS PARTICIPATIONRECREATION AND ARTS PARTICIPATIONDuke University Medical Center Caregiver Programs have Duke University Medical Center Caregiver Programs have included: Staff Musical, Staff Art and Jewelry Show, poetry included: Staff Musical, Staff Art and Jewelry Show, poetry writing and reading, gardens with picnic tables & sculpture.writing and reading, gardens with picnic tables & sculpture.

Photos: Courtesy of Duke University MC Cultural Services, HAND

RECREATION RECREATION -- University of Michigan Hospitals University of Michigan Hospitals Caregiver ProjectCaregiver Project

Staff and family Staff and family caregivers created caregivers created art on old hospital art on old hospital clothing and linens clothing and linens in in ““The Clothesline The Clothesline ProjectProject””

Photo: Courtesy Gifts of Art Program, University of Michigan Hospitals

RECREATION / ARTSRECREATION / ARTSUniversity of Michigan Hospitals University of Michigan Hospitals

ArtsArts--CouncilCouncil--Funded Caregiver ProjectFunded Caregiver ProjectDrumming circles in the Drumming circles in the courtyard daytimes and in courtyard daytimes and in soundproofed cafeteria soundproofed cafeteria for 3rd shift.for 3rd shift.

Staff, families and even Staff, families and even patients participated. patients participated.

Led by artist in residence Led by artist in residence and the University of and the University of Michigan Hospitals music Michigan Hospitals music therapist.therapist.

Photos: Courtesy Gifts of Art Program, University of Michigan Hospitals

Recreation/Arts Recreation/Arts -- Life Sciences OrchestraLife Sciences OrchestraUniversity of MichiganUniversity of Michigan

Life Sciences Orchestra Life Sciences Orchestra rehearses Sunday nights rehearses Sunday nights and performs on stage. and performs on stage. Made up of MDMade up of MD’’s, nurses, s, nurses, scientists, staff, medical scientists, staff, medical students, residents, students, residents, dental students, all LSO dental students, all LSO members must work in members must work in the Life Sciences.the Life Sciences.

Photo: Courtesy Gifts of Art Program, UMH

Recreation for All - Miyagi Cancer Ctr. Palliative Care Unit, JapanBon Odori Summer Festival in Central Garden:

Caregiver Staff and families in kimonos, volunteers are barkers, and patients are “customers” along the boardwalk

Photos: Courtesy of Miyagi Cancer Center Palliative Care Unit, Dr. Kusaka

Arts for CaregiversArts for Caregivers--inin--Training in Training in MassachussettsMassachussettsSandra Bertman, PhD, Teaches Caregivers in Training Sandra Bertman, PhD, Teaches Caregivers in Training

about Death and Dying Using Visual Artsabout Death and Dying Using Visual Arts

Bertman developed courses Bertman developed courses for Medical Students at for Medical Students at University of Massachusetts, University of Massachusetts, now is now is ““Professor of Palliative Professor of Palliative CareCare”” at Boston College.at Boston College.Bertman uses images showing Bertman uses images showing how people envision how people envision ““goodgood””and and ““badbad”” deaths. deaths.

SubmiitedSubmiited Photo: Bertman ArchivesPhoto: Bertman Archives

Sandra Bertman – Images Below Show How Dr. Bertman’s Students Envisioned a Cadaver

Dissection Before Doing One

Arts for CaregiversArts for Caregivers-- inin--Training: University of Alabama Training: University of Alabama Physical Therapy Professor Carolyn Physical Therapy Professor Carolyn ShererSherer, PhD has , PhD has

Students Learn to Appreciate Caregiver and Patient Life Students Learn to Appreciate Caregiver and Patient Life Challenges through Photography Projects. Challenges through Photography Projects. Photo: Carolyn Photo: Carolyn ShererSherer

Recreation: MaskRecreation: Mask--making for physicians at making for physicians at Lunch Hour at Lombardi Cancer Center, Lunch Hour at Lombardi Cancer Center,

Washington, DC. Washington, DC.

At Lombardi, Arts and At Lombardi, Arts and Humanities Program Humanities Program Director Nancy Morgan Director Nancy Morgan conducts regular conducts regular expressive writing expressive writing workshops for doctors workshops for doctors and nursesand nursesOther workshops, such Other workshops, such as this maskas this mask--making making session for physicians. session for physicians. take place occasionallytake place occasionally

ARTS: University of Washington Medical Center ARTS: University of Washington Medical Center Staff Chosen Art Collection at HospitalStaff Chosen Art Collection at Hospital

Large permanent art Large permanent art collection for hospital is collection for hospital is chosen by staff meeting chosen by staff meeting at lunch hour with arts at lunch hour with arts program director.program director.

Collection is eclectic, Collection is eclectic, reflecting diversity of reflecting diversity of staff. Top painting was staff. Top painting was commissioned by staff commissioned by staff honoring late CEO.honoring late CEO.

RENEWAL at CAHRE (Center for the Arts in RENEWAL at CAHRE (Center for the Arts in Healthcare Research and Education) at University Healthcare Research and Education) at University

of Florida, Gainesvilleof Florida, GainesvilleCAHRE developed CAHRE developed program for nurses called program for nurses called ““Days of RenewalDays of Renewal”” held at held at an inn, rather than at a an inn, rather than at a hospital. Day starts with hospital. Day starts with full body massage for full body massage for participants (photo).participants (photo).

The day is given to The day is given to nurses as a fringe benefit nurses as a fringe benefit by Shands Hospital. by Shands Hospital. Nurses also earned Nurses also earned Continuing Education Continuing Education Units for participation. Units for participation.

Photo: Sonke/Henderson ArchivesPhoto: Sonke/Henderson Archives

DAYS OF RENEWAL at CAHRE DAYS OF RENEWAL at CAHRE (Center for the Arts in Healthcare Research and (Center for the Arts in Healthcare Research and Education) at University of Florida, GainesvilleEducation) at University of Florida, GainesvilleParticipatory Participatory workshop classes workshop classes include lessons in include lessons in yoga, meditation and yoga, meditation and visualization visualization techniques.techniques.

Physician John Physician John GrahamGraham--Pole, MD, Pole, MD, led a led a ““Laughter Laughter WorkshopWorkshop”” for nurses.for nurses.Photos: Sonke/Henderson ArchivesPhotos: Sonke/Henderson Archives

Moments of Renewal on the Ward for those too Moments of Renewal on the Ward for those too busy to take the Day Off at CAHREbusy to take the Day Off at CAHRE

On-the-job interventions for professional and family caregivers

REMEMBERING: CREATING GOOD MEMORIESREMEMBERING: CREATING GOOD MEMORIESART is the heART (Washington, DC)ART is the heART (Washington, DC)

ART is the heART brings ART is the heART brings participatory art and participatory art and music programs to music programs to families with seriously ill families with seriously ill children at home.children at home.

At right a family At right a family celebrates Christmas Eve celebrates Christmas Eve with their seriously ill with their seriously ill baby by singing carols for baby by singing carols for one normal joyous one normal joyous evening together.evening together.(The baby was in its (The baby was in its mothermother’’s arms to right of s arms to right of Dad and Dad and ““bigbig”” sister sister pictured.)pictured.)

Remembering Together: Amherst Glebe Arts Remembering Together: Amherst Glebe Arts Response (AGAR) at Fairmont CrossingResponse (AGAR) at Fairmont Crossing

Artist Nancy McDearmon Artist Nancy McDearmon asked asked caregivingcaregiving families to families to help patients create quilt help patients create quilt patches from old family fabrics patches from old family fabrics and scans of family photos. and scans of family photos. Video interviews and photos Video interviews and photos accompanied the quilts, which accompanied the quilts, which were exhibited in the nursing were exhibited in the nursing home and at the County home and at the County Historical Museum before Historical Museum before going to patients and their going to patients and their families as an families as an ““heirloom.heirloom.””

Photo: Hazel Wood Thompson helps her sister Raye Raye choose fabPhoto: Hazel Wood Thompson helps her sister Raye Raye choose fabrics. rics. Hazel brought in lining from a coat, and dress fabric from a famHazel brought in lining from a coat, and dress fabric from a family wedding. ily wedding. Photo: Maggie McDearmonPhoto: Maggie McDearmon

REMEMBERING TOGETHER:REMEMBERING TOGETHER:Caregiver Hazel Wood ThompsonCaregiver Hazel Wood Thompson’’s quilt patch, left, utilized her photo as a young s quilt patch, left, utilized her photo as a young married woman, gray lining from a family coat Hazel herself mademarried woman, gray lining from a family coat Hazel herself made, and pink , and pink fabric from a dress sewn by another Wood sister for Hazelfabric from a dress sewn by another Wood sister for Hazel’’s daughters daughter’’s wedding. s wedding. The daughter now owns this family heirloom.The daughter now owns this family heirloom.RayeRaye WoodWood’’s Colorful Patch featured her photo as a young woman, and favoris Colorful Patch featured her photo as a young woman, and favorite te colors, pink, red and purple. colors, pink, red and purple. RayeRaye passed away; Hazel has the work at home.passed away; Hazel has the work at home.

Photo: above Photo: above leftleft, Susan Pugh, Susan Pugh

Photo: right, Nancy Photo: right, Nancy McDearmonMcDearmon

Time to REMEMBER and Space to GRIEVETime to REMEMBER and Space to GRIEVE

Botanist Walter Botanist Walter Parham and the Parham and the Quilters of Northern Quilters of Northern Virginia created a Virginia created a garden of cancer garden of cancer fighting plants and a fighting plants and a show of 30 quilts show of 30 quilts about the plants in about the plants in honor of the life of honor of the life of Mrs. Parham, who Mrs. Parham, who died of cancer.died of cancer.

Photos: Walter Parham. Top - Mayapple plant in GardenBelow – Rosy Periwinkle Quilt by L. Hayes

Remembrance and GrievingRemembrance and GrievingNihonkaiNihonkai Hospital,SakataHospital,Sakata

During During SAHSAH’’ss Japan Project on Japan Project on CaregivingCaregiving, Professor , Professor MusubiMusubi HandaHanda hosted Joe Henderson and Dr. Sandra hosted Joe Henderson and Dr. Sandra Bertman for a forum and site visits around Yamagata.Bertman for a forum and site visits around Yamagata.They attended a firstThey attended a first--timetime--inin--99--years memorial ceremony years memorial ceremony for doctors, medical school professors and family for doctors, medical school professors and family members of body donors (autopsied patients). members of body donors (autopsied patients).

Remembrance and GrievingKansai Rosai Hospital, Japan

Memorial Garden for Meditation and Grieving:Space is Kept Locked, Families Are Given Key

Photos: Donna Meeks

Caring for CaregiversCaring for Caregivers

The Operative Word isThe Operative Word isCARINGCARING

We must show respect and try to provide help to We must show respect and try to provide help to those who are caring for people we love and those who are caring for people we love and

people they lovepeople they love