Cancer Survivor Empowerment for Patient Navigation

8/8/2019 Cancer Survivor Empowerment for Patient Navigation

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A presented by:

Cancer Information & Support Center (CISC)

Jakarta, November 2008


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It is never easy for oneself to be told that you have cancer. Imagine

how the patient and their family would feel. A desperation and

helplessness overcome them and as the slowly recover from the new

questions will inevitably arise.

What exactly is cancer? How do you cope with cancer? Can you

survive cancer? It is exactly these questions that will play a large role inthe survival of cancer patients. Why? Because mentality is a factor. This

is a basis of Cancer Information and Support Center or CISC. Built up by

cancer patients (survivors) and medical professionals since 2003. Our

goal as a Support Group is to provide cancer patients and families with

information regarding life as a cancer patient and how to overcome it.

Why do we need support? Because medicine can only go so far tosave alife and support is one of the most powerful weapon in

mankinds arsenal against the unpredicted. This is probably why most

cancer patients and families refer the CISC as a Second Family


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The Paper Presented in The First National Cancer CenterConferences RS. Darmais by Mrs. Aryanthi Baramuli Putri

Journal of Clinical Oncology, Sept, 2004B.L Andersen et.alSmall-Group Support Boosts of Life and Immune System


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Gathering and interactions in good andbed situation

Empathy and talking about experiencedproblems and situations.

Enhancing hope and opstimistic outlooks

Deeping friendship based on the same

sufferings. Giving support to each other and giving

spirit in difficult situations

To feel more meaningful


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To set practical suggestions which onlycancer patients can give out of

experience To set up to date information about

cancer from professionals

To know how and where to getinformation which is needed : healthfacilities, diagnosis, the effect on healthand growth of nutrition etc.


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Cancer death

The possibility to be active normally

To live with: Quality of life, meaningfuland full of spirit

To be extrovert is more comfortable

Blessing at background of cancer etc


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Is the location far or near? Is the locationeasy to reach or not?

Support Group Cancer on line is

conventient and accessible

The Support gorup is based on the kind of

cancer so as lung-breast cancer, cancer of

the servix/prostate/colon. It colud be based

on stages etc. Colour or chemistry

CHOOSE AND JOINT

THE GROUP SUITED FOR YOU


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SUPPORT

GROUP

JakartaBalikpapan Menado - Semarang

Sejak 2003

C I S C

Since 2003


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1) Since 2003, support group sessions held continouslytwice month with several topics

2) To accompany patients and their families in hospital or

at home. Providing information and guidance via

telephone to patients who need it.3) Several recreation activities, sport and relaxation for

members

4) Cancer seminars for the people in general and early

detection of cancer information to companies,

religious gathering, women organization, womanpublic officials, financial gathering etc: Bank Indonesia,

Vico Indonesia, Unocal/Chevron Ind, Bank Danamon,

Dept. of Industry, Woman Public Officials, Education

Office of North Jakarta, Church Communities, mosques

etc.


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5) Training sessions for survivors and volunter who will

accompany the patients and families

6) Trainning for members who will give cancer

information held three times Trainning of Trainersgiven by the Oncology Organization of Indonesia

7) To fill in the patient gathering as resources person or

facilitator in several hospitals so as Dharmais Cancer

Hospital, Cipto Mangunkusumo Hospital, Mitra Kelapa

Gading Hospital, and Persahabatan Hospital

8) A yearly gathering of Cancer Survivors, with music and

dance etc.


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We want to live with more

QUALITY: to get enough and justinformation about cancer and to get the

best medical care, to know what wecan expect and what risks there are.

MEANINGFUL: to enhance our

dedication by working for the sake of ourneighbour and ourselves

SPIRIT AND PASSION: to live optimisticallyand joyfully


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I. Advice To The Government

1. Patients are in need of low cost quality medicines. Thesituation can be achieved by removing the current importtaxage

2. The transfer of 20% of educational budget to relieveeducation funds of medical students specializing in oncologyand cancer treatment.

3. The promotion of early cancer detection and risks of cancerthrough media coverage

4. The addition of rooms in Hospitals and the enhancement of

quality and various facilities in emergency sectorsII. To Doctors and Nursers

1. Being more pro-active in Doctor-Patient communication

2. The further improvement of the nursing of cancer patientsduring chemotherapy sessions.


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YES WE CAN!

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Cancer Survivor Empowerment for Patient Navigation