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WCC Cancer Connection
Cancer Connection’s
Guide Through Diagnosis,
Treatment and Recovery
Providing
a list of
resources for
patients and their
support
network
WCC Cancer Connection 2
This is often one of the first questions a newly-diagnosed patient will ask and
this guide was developed by cancer survivors to help you, your family and
friends answer that question.
We have endeavored to provide a comprehensive list of resources. We offer
you fellowship with cancer survivors and others who have walked this journey.
Hopefully you may experience the support and genuine love shared by others
who have walked this journey.
We invite you attend a Woods Chapel Church (WCC) Cancer Connection meeting
or event. We are a ministry of hope to all affected by cancer. We are here
to help you just let us know how.
Thanks to all the survivors and supporters who
provided information for this resource guide!
For information about Cancer Connection, please contact:
Jonnie Wells, [email protected]
To provide information and other resource material, please contact:
Cheryl Brite, [email protected]
Published June 2008, updated November 2010
“Where do I start?”
WCC Cancer Connection 3
Contents
OUR CANCER MINISTRY .................................................................................................. 5
CANCER CONNECTION ACTIVITIES ........................................................................... 7
ON THE WINGS OF HOPE ................................................................................................ 8
GARDEN of HOPE ................................................................................................................ 9
LOCAL AND NATIONAL CANCER SUPPORT RESOURCES .................................... 10
CAREGIVER RESOURCES ................................................................................................ 18
NATIONAL CANCER RESOURCES................................................................................ 19
NATIONAL TOLL-FREE CANCER RESOURCES ....................................................... 20
RESOURCES BY CANCER TYPE ...................................................................................... 21
ALL TYPES ........................................................................................................................... 21
BRAIN CANCER ................................................................................................................. 22
BREAST CANCER .............................................................................................................. 23
CARCINOID CANCER ...................................................................................................... 25
CERVICAL CANCER ........................................................................................................... 25
CHILDHOOD CANCER ..................................................................................................... 26
COLORECTAL CANCER .................................................................................................... 27
HEAD AND NECK .............................................................................................................. 28
KIDNEY ................................................................................................................................ 29
LEUKEMIA/LYMPHOMA AND OTHER BLOOD CANCERS ..................................... 29
LIVER CANCER .................................................................................................................. 29
LUNG CANCER ................................................................................................................... 30
LYMPHOMA ........................................................................................................................ 30
MELANOMA CANCER ...................................................................................................... 30
OVARIAN CANCER ............................................................................................................ 31
PANCREATIC CANCER...................................................................................................... 31
PROSTATE CANCER .......................................................................................................... 31
SKIN CANCER .................................................................................................................... 32
THYROID CANCER ........................................................................................................... 33
FINANCIAL ASSISTANCE ........................................................................................... 34
OPTIONS FOR FINDING FINANCIAL ASSISTANCE .......................................... 35
LOCAL FINANCIAL RESOURCES ................................................................................ 36
NATIONAL FINANCIAL RESOURCES ....................................................................... 39
INSURANCE ASSISTANCE........................................................................................... 42
MEDICATION RESOURCES .......................................................................................... 44
LOCAL MEDICAL EQUIPMENT RESOURCES ........................................................... 45
CANCER ACTION MEDICAL SUPPLIES & EQUIPMENT ....................................... 46
WCC Cancer Connection 4
HEALTH CARE SCREENINGS AND REFERRALS ..................................................... 48
NATIONAL MARROW DONOR PROGRAM ................................................................ 48
SUPPORTIVE SERVICES AND THERAPIES .............................................................. 50
TRANSPORTATION RESOURCES ................................................................................ 51
LOCAL HOME REPAIR, WEATHERIZATION & BARRIER REMOVAL ................ 54
LEGAL ASSISTANCE ....................................................................................................... 55
LOCAL SUPPORT GROUPS AND COUNSELING RESOURCES .............................. 56
ADVOCACY AND EDUCATIONAL RESOURCES ....................................................... 59
HEALTH CARE TIPS AND RESOURCES ...................................................................... 61
FOOD AND NUTRITION ................................................................................................ 66
TYPES OF TREATMENT & SIDE EFFECTS ............................................................... 69
FREE CLASSES AND SERVICES .................................................................................. 72
TAKE CARE of YOU! ......................................................................................................... 73
INSPIRATIONAL – BOOKS ........................................................................................... 74
by David Servan-Schreiber ................................................................................................ 74
GIFT IDEAS FOR THE PATIENT ................................................................................. 76
WORDS of ENCOURAGEMENT ..................................................................................... 77
A PRAYER FOR CANCER .................................................................................................. 78
WCC Cancer Connection 5
OUR CANCER MINISTRY
The WCC Cancer Ministry provides hope, support and love to cancer patients,
their families and friends through a Cancer Connection Group, Survivors Network
and Cancer Center Team.
Cancer Connection
The WCC Cancer Connection is a networking system that assists in sustaining the
diagnosed person, as well as their family members and friends, with prayers,
personal contact, cards, phone calls, flowers, food, transportation - or whatever
the situation requires.
It is a method of "connecting" with the patient, family and extended family during
difficult times. We connect people with others who have had similar cancer
related experiences (when requested).
The Cancer Connection offers information and resources when questions arise.
Or, we strive to assist in finding an answer. The motto of the group is to "Expect
Miracles" and to offer hope to all who are affected!
Contact Jonnie Wells, [email protected]
Cancer Survivor Network
The WCC Cancer Survivor Network is a listing of WCC congregation members who
have survived cancer. The listing provides an opportunity to share information
about planned activities including the June National Cancer Survivor celebration.
It is also an opportunity for participants to be part of the networking system to
sustain one another and others if they choose or ask for assistance.
Contact Jonnie Wells, [email protected]
WCC Cancer Connection 6
Cancer Center Team
The WCC Cancer Center Team Ministry coordinates, provides and supports
activities directly with the Kansas City Cancer Center, located near the church.
WCC Cancer Center Team Ministry Projects include:
~ providing seasonal pins, hand knitted hats, scarves and turbans for patients
~ donating pillows and stuffed animals
~ placing bird feeders outside the infusion room . . . Woods Chapel Church (WCC)
members fill the bird feeders weekly
~ providing books, magazines and videos
~ providing hand-pieced lap quilts for
patients made by the WCC Quilting for Charity Group
Other Support Groups at WCC
Stephen Ministry - An invitation to meet one-on-one, in a confidential setting, with
a caring Christian to help during troubling times.
Contact Kathy Christenson at (816) 217-5047 or Len Bennett at (816) 350-7454.
Health Ministry - A group of medical professionals at WCC offering resources and
referral information to individuals and their families.
Contact Jena Wilcox at; [email protected]
WCC Cancer Connection 7
CANCER CONNECTION ACTIVITIES
~ National Cancer Survivor Recognition Week in June
~ Cancer Survivors Participate in Service - 1st Sunday in June
~ T-Shirts for WCC Cancer Survivors
~ WCC "Walk for a Miracle"
~ Luminaries in the Sanctuary
~ Pray for a Miracle
~ Prayer Vigil in the Chapel
~ Celebration . . . Release of Butterflies
WCC Cancer Connection 8
ON THE WINGS OF HOPE
As an ancient legend goes:
If anyone desires a wish to come true
They must capture a butterfly and whisper that wish to it.
Since butterflies make no sound,
They can’t tell that wish to anyone but the Great Spirit.
So by making the wish and releasing the butterfly,
It will be taken to the heavens and be granted.
Although this legend implies that we should keep our wishes silent,
There some wishes that need to be expressed out loud.
To those that have been touched by the disease we are helping to fight today.
We wish the caregivers strength and tranquility
And thank them for their gifted labor of love.
We wish the survivors a long and happy life,
And thank them for showing us how to fight with courage and determination.
We wish those currently fighting the battle energy and hope,
And thank them for showing us what true bravery is all about.
And finally, we wish the victims peace and love,
And thank them for the joy and happiness they brought to us.
With this symbolic gesture, we honor those that have left us and encourage.
Those left behind to continue the fight ―On the Wings of Hope.‖
Ralph Charles Ritchie
WCC Cancer Connection 9
GARDEN of HOPE
The Garden of Hope is located along the WCC
Walking Trail, on the north side of Daffodil Hill
and the pond. In the Garden of Hope stands a
solitary signal for all to see – a signal waiting to
herald the sound of celebration loud and clear,
the Miracle Bell. The Miracle Bell is a special
gift from Larry Stewart, better known around
the world as Secret Santa. The Miracle Bell is
intended to be rung in celebration when a cancer survivor reaches any point of
treatment worthy of celebrating. The locale of the garden allows the ringing of
the Miracle Bell to be a private celebration by an individual or to be shared with
family and friends at any point of celebration. You are invited to ring the bell in
celebration!
The garden also features plants designed to draw and
sustain butterflies, which are symbolic of the ever-
changing cycle of life and beauty--an affirmation that
life goes on. The Garden of Hope was designed and is
being cared for by two WCC cancer survivors.
Patients, family, friends and staff are welcome to
enjoy the Garden of Hope and ring the Miracle Bell in
celebration!
MESSENGER OF GOD
Oh, Little Butterfly,
Messenger of God.
When I see you in the sky
I cannot help but nod.
You bring me respite
From grief and despair.
Every time I see you
Sailing through the air.
You renew my faith in all
God’s wondrous plan.
And I know it’s all in FAITH,
Not in what I understand.
WCC Cancer Connection 10
LOCAL AND NATIONAL CANCER SUPPORT RESOURCES
For a comprehensive listing of Kansas City medical providers and support services,
visit the online Cancer Matters Local Resource Guide. Go to Find a City Resource
Guide and select Kansas City.
www.cancermatters.com
You can also visit the Kansas City Cancer Coalition, an online listing of local
support agencies.
www.kccancer.info
American Cancer Society
Provides numerous programs that include one-on-one support with survivors,
treatment, transportation assistance, Look Good Feel Better classes, educational
programs for patients, wigs, turbans, prostheses, free nutritional supplements,
free summer camps for children with cancer and a step-by-step resource guide for
caring for the person with cancer at home. Hope Lodge® provides free lodging for
adult cancer patients traveling to the Kansas City area for treatment.
Kansas City Hope Lodge
1120 Pennsylvania Avenue
Kansas City, MO 64108
(913) 432-3277
www.cancer.org
Cancer Action
Offers free programs and services that address the physical, social, emotional,
financial and spiritual needs of people with cancer, their family and friends. All
Cancer Action programs are free of charge and include nutritional supplements,
medical equipment and supplies, transportation, wigs, turbans, prescription
programs, wellness programs and emotional support.
Eastern Jackson County Office
4010 South Lynn Court
Independence, MO 64055
(816) 350-8881
www.canceractionkc.org
WCC Cancer Connection 11
Cancerfacts.com
An online resource for cancer patients, their families, and caregivers. This site is
dedicated to delivering accurate and personalized information at a time of need.
The Cancer Profiler Tools help people with cancer make informed treatment
decisions for an optimal outcome.
www.cancerfacts.com
Cancer Hope Network
A non-profit group providing customized patient support. Support volunteers are
matched with the patient’s profile.
2 North Road, Suite A
Chester, NJ 07930
Toll Free: (800) 552-4366
(908) 879-4039
www.cancerhopenetwork.org
Coalition of Hispanic Women Against Cancer
Assists the Hispanic community with information and access to cancer education
materials. The Coalition provides free mammograms to women aged 35 and older
who are in need. Volunteers provide the ―What is Cancer?‖ bilingual, lay
presentation on the basics of cancer, signs, symptoms and early detection
guidelines. Contact is made by calling.
2100 Metropolitan Ave
Kansas City, KS 66106-3061
(913) 831-2200
Gilda's Club of Kansas City
Is a free community where men, women and children who are living with cancer,
along with their families and friends, can join with others to build emotional and
social support to supplement their medical care.
Coming Soon!
Gilda's Club Kansas City
P.O. Box 413907
Kansas City, MO 64108
(913) 663-3536
Email: [email protected]
www.gildasclub.org
WCC Cancer Connection 12
Hope Cancer Institute
Provides second opinion panels. Dr. Raj Sadasivan is the second opinion contact.
4215 Shawnee Drive
Kansas City, 66106
(913) 236-6986
Integrity Home Care
Gives quality health care in patient’s home. Its mission is to cultivate a
Christian-based environment to meet the home care needs of patients. Home care
services include nursing care, overnight live-in/24-hour care, medication coaching
and administering, personal care assistance, meal preparation, and dietary
assistance.
3675 South Noland Road, Suite 222
Independence, MO 64055
Toll Free: (800) 287-1555
(816) 254-3131
www.integrityhc.com
Kansas City Cancer Center (KCCC)
Provides patients access to advanced and comprehensive cancer care close to home
with nine locations throughout the Kansas City metropolitan area. Oncologists have
extensive training in Internal Medicine, Oncology, Hematology and Radiation
Oncology. KCCC’s comprehensive services include chemotherapy, radiation
therapy, treatment and management of hematological disorders, PET/CT and CT
scanning, clinical research, retail pharmacy, laboratory testing, pain management,
genetic risk evaluation, nutritional and financial counseling.
KCCC East
4881 Northeast Goodview Circle
Lee's Summit, MO 64064
(816) 478-2050
www.kccancercenter.com
WCC Cancer Connection 13
The Leukemia & Lymphoma Society
The Mid America Chapter
Is committed to providing information, support and guidance to people living with
leukemia, Hodgkin’s or non-Hodgkin’s lymphoma, myeloma, myelodysplastic
syndromes or myeloproliferative disorders. Talk to an information specialist for
help with the challenges of your diagnosis. The local chapter offers programs and
services, including Patient Financial Aid, Family Support Groups, First Connection,
Grassroots Advocacy Network, Patient and Professional Education Programs, Trish
Greene Back to School Program for Children with Cancer and the Information
Resource Center.
6811 West 63rd Street
Cloverleaf Building 1, Suite 202
Shawnee Mission, KS 66202
(913) 262-1515
www.leukemia-lymphoma.org
Menorah Medical Center Cancer Support Program
The Menorah Cancer Program is accredited as a Community Hospital Comprehensive
Cancer Program by the College of Surgeons Commission on Cancer. Menorah offers
services and care from screening and early detection through diagnosis and
treatment, and into palliative care, if needed. The team approach to cancer care
includes expert and caring staff, advanced technology and programs to support
patients during their journey.
(913) 498-7742.
National Cancer Institute Cancer Information Service (CIS)
Provides the latest, most accurate cancer information, an online instant messaging
service, more than 500 free booklets, brochures and fact sheets on various
aspects of cancer, in-depth information about participating in cancer screening,
prevention, and treatment clinical trials; and referrals to organizations that offer
cancer screening, diagnostic, treatment and support services.
Toll Free: (800) 422-6237
www.cancer.gov
WCC Cancer Connection 14
Ovarian Cancer Alliance – Kansas City
Promotes awareness and education. The Ovarian Cancer Alliance of Kansas City
Support Group meets monthly at Menorah Medical Center. Survivor and Caregiver
Support Groups are held monthly.
Meeting details
(913) 498-7742
Advocacy group (meets separately)
(913) 599-9982
www.ovarian-news.org/state/mo_ city/kansascity-overlandpark.html
Patient Navigator Program at Truman Medical Center Hospital Hill
Program is designed to ensure prompt diagnosis and treatment for cancer patients
in underserved populations in the Kansas City urban core. Services are provided
free of charge and include: transportation assistance, loaner cell phones, literacy
and language appropriate patient education, emotional support, nutrition
supplements provided by the American Cancer Society, and referral to community
resources necessary to provide optimal care. No appointment is necessary and
patients are encouraged to drop by to check on clinic appointments, talk about
their treatment progress, pick up nutritional supplements, or pick up additional
educational materials. During long days of clinic appointments the patients can pick
up a meal pass for lunch or just stop in for a cup of coffee.
(816) 404-1000.
The R.A. Bloch Cancer Foundation
Provides the Bloch Cancer Hotline for peer-to-peer counseling by phone through its
national network of nearly 500 cancer survivors. They match people who call or
email with someone who has survived the same type of cancer and can provide
first-hand information, inspiration and support to patients. They distribute
relaxation tapes and books on cancer survivorship for patients and supporters, and
provide information on other resources available to cancer patients and their
supporters. All services are free.
Bloch Cancer Hotline
Toll Free: (800) 433-0464
(816) 854-5050
Email: [email protected]
www.blochcancer.org
WCC Cancer Connection 15
Saint Luke’s Cancer Institute at Saint Luke’s Hospital
Provides screenings, community outreach and education, genetic counseling, mobile
mammography, The Center for Breast Care, a Community Resource Center,
participation in local & national clinical trials, Missy’s Mirror, Blood and Marrow
Transplant, Brachytherapy, GYN Oncology Center, Inpatient Care, Medical
Oncology, Mobile PET Scanning, Outpatient Services, Radiation Oncology, Second
Opinion Services, Specialists in Cancer Care and Surgical Oncology.
Cancer Resource Center
4321 Washington, Suite 4000
Kansas City, MO 64111
(816) 932-9007
www.saintlukeshealthsystem.org
Show Me Healthy Women (SMHW)
Program provides funding for medical providers to perform free pap tests, pelvic
exams, clinical breast exams, mammograms and diagnostic screening when there
are no other means to pay for these services. Client must meet age and income
guidelines for the program.
www.dhss.mo.gov/BreastCervCancer/index.html
Susan G. Komen for the Cure
A volunteer driven not-for-profit advocacy organization that provides funding to
non-profit agencies in the greater Kansas City area. They provide direct patient
service for breast health education and breast cancer screening and treatment
programs. The Komen Greater Kansas City Affiliate also contributes to a national
research and award program. Komen's Education Program provides Ambassadors
that are available to present breast health information to local organization
Komen Greater Kansas City Affiliate
1111 Main Street, Suite 450
Kansas City, MO 64105
(816) 842-0410
www.komenkansascity.org
WCC Cancer Connection 16
Touched by Cancer Foundation
A free educational program focused on diagnosis, treatment, patient advocacy,
nutrition, complementary therapies, coping strategies and most importantly,
sharing what others touched by cancer have learned on their healing journeys.
4701 College Boulevard, Suite 206
Leawood, KS 66211
(913) 381-8488
www.touchedbycancerfoundation.org
Turning Point The Center for Hope and Healing
Offers free education and support programs to people living with cancer and other
serious or chronic illnesses. Programs offered include nutrition, stress
management, resiliency, writing, music, knitting, Surviving and Thriving after
cancer treatment ends, Jin Shin Jyutsu, Wellness, Relaxation and Support Groups
for Cancer, to name a few. Programs are free of charge and are open to both the
person who has been diagnosed as well as family and friends. These programs are
designed to offer support and to teach people skills for living well—even in the
midst of illness. The Children’s Program includes programs both for children (ages
4-18) that have an adult family member with an illness and for children who
themselves are living with an illness.
8900 State Line, Suite 240
Leawood, KS 66206
(913) 383-8700
University of Kansas Hospital Cancer Center
Provides related services that deal with diagnosis of cancer, treatment of cancer,
and follow-up services including pharmaceutical, psychological, financial,
information, and medical/nursing services both inpatient and outpatient. The
Patient Resource Center has many brochures in several languages about a variety
of cancer related subjects. There are CDs, DVDs and videotapes about cancer
topics available. Two computers with internet access are available for patients and
families to use. There is also someone available to assist with or do computer
searches on any cancer-related topic. The Cancer Center also provides a second
opinion panel (ask to speak to the second opinion nurse when you call).
Toll Free: (800) 332-6048
(913) 588-1227
www.kumed.com
WCC Cancer Connection 17
Young Survival Coalition
Part of a national organization that focuses on issues unique to young women with
breast cancer. Locally, their Adopt-a-Hospital program raises awareness in the
medical and support communities. They offer newly diagnosed resource kits
packed with information and comfort items. Their program pairs women with
someone to help answer questions and provide support. The local chapter meets
monthly for networking and program planning, as well as bi-monthly for social or
educational events.
(913) 742-8846
Email: [email protected]
www.youngsurvival.org/kansascity
WCC Cancer Connection 18
CAREGIVER RESOURCES
National Family Caregivers Association
Toll Free: (800) 896-3650
www.nfacacares.org
Strength for Caring
www.strengthforcaring.com
Free, personalized websites that connect loved ones during critical illness,
treatment and recovery:
www.caringbridge.org www.carepages.com
WCC Cancer Connection 19
NATIONAL CANCER RESOURCES
American Cancer Society
Toll Free: (800) 227-2345
www.cancer.org
American Society of Clinical Oncology
Web Site for Patients
(571) 483-1300
www.cancer.net
Cancer Care
Toll Free: (877) 673-6460
www.cancercare.org
Cancer Information Service
Toll Free: (877) 632-6789
www.mdanderson.org
Cancer Supportive and Survivorship
Care
www.cancersupportivecare.com
Cancer Survivors Network
www.acscsn.org
Cancer Treatment Centers of America
Toll Free: (800) 615-3055
Email and Chat Info:
www.cancercenter.com
Lance Armstrong Foundation
(512) 236-8820
www.laf.org
Mayo Clinic
www.mayoclinic.com/health Arizona
Toll Free: (800) 446-2279
Florida
(904) 953-2000
Minnesota
(507) 538-3270
MD Anderson Cancer Center
National Cancer Institute
Toll Free: (800) 423-6237
www.cancer.gov Medline Plus
www.nlm.nih.gov/medlineplus My Optum Health
www.myoptumhealth.com National Coalition for Cancer
Survivorship (NCCS)
www.canceradvocacy.org Patient Resource Guide
A Cancer Treatment and
Facilities Guide for Patients and
Their Families:
(816) 584-8227, ext. 26
Email: [email protected] www.patientresource.net
WCC Cancer Connection 20
NATIONAL TOLL-FREE CANCER RESOURCES
American Cancer Society Toll Free: (800) 227-2345
American Foundation for Urologic Diseases Toll Free: (800) 828-7866
Bone Marrow Transplant Family Support Network
Toll Free: (800) 826-9376
Cancer Care, Inc. Toll Free: (800) 813-4673
Cancer Hope Network Toll Free: (800) 552-4366
Cure for Lymphoma Foundation Toll Free: (800) 235-6848
Leukemia and Lymphoma Society Toll Free: (800) 055-4572
National Brain Tumor Foundation Toll Free: (800) 934-2873
National Cancer Institute Cancer Information Service
Toll Free: (800) 422-6237
National Patient Advocate Foundation Toll Free: (800) 532-5274
Susan G. Komen Breast Cancer - Info Help Line Toll Free: (800) 462-9273
SPOHNC – Support for People with Oral, Head and Neck Cancer
Toll Free: (800) 377-0928
Your Shoes 24/7 Breast Cancer Support Center (formerly National
Organization for Breast Cancer) Toll Free: (800) 221-2141
WCC Cancer Connection 21
RESOURCES BY CANCER TYPE
ALL TYPES
American Society of Lymphology
P.O. Box 22301
Kansas City, MO 64113-0301
Toll Free: (800) 355-6770
www.lymphology.org
BMTINFONET Blood & Marrow Transplant Information Network
Not-for-profit organization dedicated exclusively to serving the needs of persons
facing a bone marrow, blood stem cell or umbilical cord blood transplant.
2320 Skokie Valley Road, Suite 1 04
Highland Park, IL 60035
Toll Free: (888) 597-7674
(847) 533-3313
www.bmtinfonet.org
Cancer Hope Network
Matching cancer patients one-on-one with someone who has recovered from a
similar experience. It could make a real difference in their own fight.
Toll Free: (800) 552-4366
www.cancerhopenetwork.org
Lymphoma Foundation of America
814 North Garfield Street
Arlington, VA 22201
(703) 525-2076
Multiple Myeloma Research Foundation MMRF
Relentlessly pursues innovative means that accelerate the development of
next-generation multiple myeloma treatments to extend the lives of patients and
lead to a cure.
383 Main Avenue, 5th Floor
Norwalk, CT 06851
(203) 229-0964
www.themmrf.org
The Leukemia and Lymphoma Society
6811 West 63rd Street, Suite 202
Shawnee Mission, KS 66202
(913) 262-1515
WCC Cancer Connection 22
The Seven Levels of Healing Kansas City Cancer Center
Program offered to patients free of charge. Meets for seven weeks in two-hour
sessions. Participants are asked to attend an initial two-hour Introductory
Session which includes a Program Overview, Questions and Answers and
opportunity to register for the complete series of sessions. Participation can be
at any point in the treatment process. Family members and friends are welcome.
Introductory sessions offered:
Wednesday afternoons
2:00 - 4:00 pm
Thursday evenings
6:30 – 8:30 pm.
(816) 584-4832
www.KCCancerCenter.com/SevenLevels
BRAIN CANCER
Saint Luke’s Brain Tumor Center
Brain and Stroke Services
Brain Tumor Center
www.saintlukeshealthsystem.org
Saint Luke’s Cancer Institute – Brain Tumor Support Group - Family Resource
Center
4321 Wornall Road, Suite 4000
Kansas City, MO 64111
Contact: Adrienne Patterson
(816) 932-2261
The Healing Exchange (The) Brain Trust
A healing exchange of information and support among people affected by
neurological disorders including patient-survivors, families, caregivers, health
professionals and researchers.
www.braintrust.org
WCC Cancer Connection 23
BREAST CANCER
Breast Cancer Network of Strength
(formerly National Breast Cancer Organization and Y-Me)
Toll Free: (800) 221-2141 (English)
Interpreters available in 150 languages
Toll Free: (800) 986-9505 (Español)
www.networkofstrength.org
Brian Joseph’s
The owner and founder, Patricia Turkal, is a breast cancer survivor. They offer
wigs, breast prosthetics and mastectomy bras.
10560 Barkley, Suite 300
Overland Park, KS 66212
Toll Free: (800) 889-8960
(913) 649-6405
www.brianjosephs.com
Cancer Action
Cancer Action offers practical and direct services. They provide a variety of
necessary items needed for patients currently undergoing cancer treatment or
have cancer-related medical needs. Emotional and educational support is provided
to cancer patients and their families or friends. Financial assistance programs are
available to persons who are having financial distress due to their cancer diagnosis.
A financial assessment will be completed to determine eligibility. There are
Wellness Programs that provide a unique opportunity to heal oneself on the inside,
or simply to enjoy a workshop or program.
Eastern Jackson County Office
Mon-Fri 8:30-4:30
4010 South Lynn Court
Independence, MO 64055
(816) 350-8881
Johnson County Office
Mon-Fri 8:30-4:30
10520 Barkley, Suite 100
Overland Park, KS 66212
(913) 642-8885
Wyandotte County Office
Mon & Thurs 8:30-4:30
2708 West 43rd Avenue
Kansas City, KS 66102
(913) 321-8880
www.conceractionkc org
WCC Cancer Connection 24
Cancer Rehabilitation Specialist for Lymphatic & Venous Disorders Services
Includes treatment for lymphedema. They offer on-site service with therapists
and staff who are certified custom fitters of garments, bras and forms.
Northeast Goodview Circle
Lee’s Summit, MO 64064
(913) 491-9404
www.crskc.net
Living Beyond Breast Cancer
Toll-free Survivors' Helpline: (888) 753-5222
www.lbbc.org Lymphedema Support Group Positive Encounters
5000 West 95th Street, Suite 100
Prairie Village, KS 66207
(913) 438-8000
Lymphedema Support Group Olathe Medical Center
20333 West 151st
Olathe, KS 66061
(913) 791-4325
www.olathehealth.org/CourseCatalog/ Support-Groups/Cancer-Support/Lymphedema-Support-Group
Missy’s Mirror at Saint.Luke’s West Plaza
Personalized fitting for breast prosthetics; special products for lymphedema,
scarves and accessories.
4321 Washington Street, Suite 4000
Kansas City, MO 64111
(816) 932-2565
National Breast Cancer Coalition:
www.stopbreastcancer.org
WCC Cancer Connection 25
Restored Images
Hair pieces, turbans, caps, scarves and pressure sleeves are available. Also
available are prosthetic fittings by an R.N. for customized and post surgical
garments in a full range of sizes.
4116 Northeast Vivion Road
Kansas City, MO 64119
Toll Free: (800) 322-9665 or
(816) 454-2900
www.restoredimages.com
Susan G. Komen Breast Cancer Foundation
www.komen.org
The Mastectomy Center
Located in the Merle Norman Studio. Owners Donna Kelley and Dixie Stretz are
certified fitters.
4201 South Noland Road, Suite 1
Independence, MO 64058
(816) 373-3447
Young Survival Coalition and Young Women Living With Advanced Breast Cancer
(YWABC)
Toll Free: (877) 972-1011
Email: [email protected]
CARCINOID CANCER
Carcinoid Cancer Foundation www.carcinoid.org
CERVICAL CANCER
National Cervical Cancer Coalition
2625 Alcatraz Avenue, Suite 252
Berkeley, CA 94705
Toll Free: (800) 685-5531
www.ncccj-online.org
Women’s Cancer Network www.wcn.org
WCC Cancer Connection 26
CHILDHOOD CANCER
Association of Online Cancer Resources’ Pediatric Oncology Resource Center
www.acor.org/ped-onc
Candlelighters Childhood Cancer Foundation
www.candlelighters.org
Children’s Mercy Hospital
2401 Gillham Road
Kansas City, MO 64108
(816) 234-3000
www.childrensmercy.org
Kids Konnected
Educational support for kids who have a parent with cancer
(949) 582-5443
www.KidsKonnected.org
Kids Rock
Connectivity with other kids.
North Kansas City Hospital
1st Floor Health Service Pavilion
2800 Clay Edwards Drive
North Kansas City, MO 64116
(816) 691-5197
National Childhood Cancer Foundation Children’s Oncology Group
www.ccresearch.org
The National Institute of Health
www.cancer.gov
St. Jude’s Children’s Research Hospital
www.stjude.org
Turning Point
Free program for families, teens and children.
8900 State Line Road, Suite 240
Shawnee Mission, KS 66206
(913) 383-8700
www.turningpointkc.org
WCC Cancer Connection 27
COLORECTAL CANCER
Colon Cancer Alliance
1200 G Street, NW, Suite 800
Washington, DC 20005
Toll Free Helpline: (877) 422-2030
(202) 434-8980
Colorectal Cancer Coalition
www.fightcolorectalcancer.org
National Colorectal Cancer Research Alliance
www.eifoundation.org
Restored Images
Services include: RN private consultation; device selection based on individual
need; external devices for both male and female. All major ostomy product lines
and specialized garments.
4116 Northeast Vivion Road
Kansas City, MO 64119
Toll Free: (800) 322-9665 or
(816) 454-2900
www.restoredimages.com
United Ostomy Association of America
www.uoaa.org
WCC Cancer Connection 28
HEAD AND NECK
Head and Neck Support Group
(4:00 to 5:00 PM. 2nd and 4th
Wednesdays)
University of Kansas Hospital Cancer
Center
Radiation Oncology
2330 Shawnee Mission Parkway
Westwood, KS 66205
(913) 588-3630
Support for People with Oral, Head and Neck Cancer (SPOHNC)
P. O. Box 53
Locust Valley, NY 11560-0053
Toll Free: (800) 377-0928
www.SPOHNC.org
Local SPOHNC Chapters in Development
Kansas – Kansas City
Univ. of Kansas Hospital
2nd & 4th Wednesdays
4:00 - 5:00 pm
Mary Moody, LMSW
(913) 588-3630
Email: [email protected] Dorothy Austin, RN, OCN
(913) 588-6576
Email: [email protected]
Missouri – St Louis
St Louis University Cancer
Center
4th Friday
10:00 am – 12:00 noon
Deborah S. Manne, MSN, RDH,
RN, OCN
(314) 577-8880
Cathy Turcotte, RN, MSN
(314) 268-7051
Missouri Columbia/Mid-Missouri
Ellis Fischel Cancer Center
2nd Wednesday
5:30-7:00 pm
Laura M. Neal, MSW, MPH, LCSW
(573) 884-1509
WCC Cancer Connection 29
KIDNEY Kidney Cancer Association
1234 Sherman Avenue, #203
Evanston, IL 60202
Toll Free: (877) 355-6770
www.lymphology.org
LEUKEMIA/LYMPHOMA AND OTHER BLOOD CANCERS
Carolyn’s Hope, Inc.
www.carolynshope.com
Leukemia & Lymphoma Society
www.leukemia-lymphoma.org Lymphoma Research Foundation
www.lymphoma.org
MDS Foundation
www.mds-foundation.org
The Leukemia and Lymphoma Society
6811 West 63rd Street, Suite 202
Shawnee Mission, KS 66202
(913) 262-1515
LIVER CANCER
American Liver Foundation
www.liverfoundation.org
Cancer Care, Inc.
www.cancercare.org
WCC Cancer Connection 30
LUNG CANCER
Alliance for Lung Cancer
Advocacy Support & Education (ALCASE)
888 16th Street, Northwest, Suite 800
Washington, DC 20006
Toll Free: (800) 298-2436
www.ALCASE.org
Caring Ambassadors Lung Cancer Program
www.lungcancercap.org
It’s Time to Focus on Lung Cancer
www.lungcancer.org
Lung Cancer Alliance
www.lungcanceralliance.org The American Lung Association
www.lungusa.org University of Kansas Hospital Cancer Center
Atrium Conference Room
2330 Shawnee Mission Parkway
Westwood, KS 66205
(913) 588-0130
LYMPHOMA
Lymphoma Foundation of America
814 North Garfield St.
Arlington, VA 22201
(703) 525-2076
MELANOMA CANCER
Melanoma Research Foundation
www.melanoma.org
WCC Cancer Connection 31
OVARIAN CANCER
Gilda’s Club Worldwide
www.gildasclub.org National Ovarian Cancer Coalition
www.ovarian.org Ovarian Cancer National Alliance
www.ovariancancer.org
PANCREATIC CANCER
Helmet Cancer Support Group Hirshberg Foundation for Pancreatic Cancer
www.pancreatic.org
Pancreatic Cancer Action Network
2221 Rosecrans Avenue, Suite 7000
ElSegundo, CA 90245
Toll Free: (800) 272-6226
(310) 725-0025
www.pancan.org
PROSTATE CANCER
American Cancer Society Man-to-Man Support Group www.cancer.org
American Urological Association
www.auanet.org
Minority Man Prostate Cancer Support
4224 East 52nd Street
Kansas City, MO 64130
Raymond Hawdy
(816) 921-7298
WCC Cancer Connection 32
National Prostate Cancer Coalition
www.fightprostatecancer.org
Prostate Cancer Foundation
www.prostatecancerfoundation.org
Us TOO
Prostate Cancer Support Group
The University of Kansas Hospital Cancer Center
Ricke Auditorium
3401 Rainbow Boulevard
Kansas City, KS 66160
(816) 598-1227
www.ustoo.org
Restored Images
For incontinence problems. Services include: RN private consultation; device
selection based on individual need; external devices for both male and female.
4116 Northeast Vivion Road
Kansas City, MO
(816) 454-2900
www.restoredimages.com
SKIN CANCER
Skin Cancer Foundation
149 Madison Avenue, Suite 901
New York, NY 10016
(212) 725-5176
www.SkinCancer.org
WCC Cancer Connection 33
THYROID CANCER ThyCa
Thyroid Cancer Survivors' Association, Inc.
PO Box 1545
New York, NY 10159-1545
Toll Free: (877) 588-7904
Thyroid Cancer Support
North Kansas City Hospital
Health Services Pavilion, 1st Floor
2800 Clay Edwards Drive
North Kansas City, MO 64116
(816) 691-5157
WCC Cancer Connection 34
FINANCIAL ASSISTANCE
Options for Funding Benefit or Entitlement Assistance
Social Security Disability, Supplemental Security Income and Medicare.
Toll Free: (877) 772-1213
www.ssa,gov
Centers for Medicare & Medicaid Services
Toll Free: (877) 267-2323
www.cms.hhs.gov
US Department of Health and Human Services
Information on public assistance or food stamps.
Toll Free: (877) 696-6775
www.os.dhhs.gov
Low Income Home Energy Assistance Program (LIHEAP)
May be able to help pay utilities, energy crisis and weatherization and unrelated
home repairs.
(573) 751-6789
www.dss.mo.gov/fsd/liheap.htm
National Energy Assistance Referral (NEAR)
Toll Free: (866) 674-6327
U.S. Administration on Aging – Eldercare Locator
For older adults that may be eligible for additional benefits. Connects older
Americans and their caregivers with sources of information on senior services
Toll Free: (800) 677-1116
www.eldercare.gov
WCC Cancer Connection 35
OPTIONS FOR FINDING FINANCIAL ASSISTANCE
Breast and Cervical Cancer Treatment Act of 2000
Extends Medicaid coverage for treatment to women who have been screened and
diagnosed through the National Breast and Cervical Cancer Early Detection
Program in states that have agreed to provide this service.
Toll Free: (888) 842-6355
www.cdc.gov/cancer/nbccedp/index.htm
Hospitals
Hospitals operated by state and local government (public hospitals) and some non-
profit hospitals in the community provide a safety net for anyone who needs care,
regardless of ability to pay. Hospital social workers are the most knowledgeable
about sources of support in the community. Ask about any charity or indigent care
programs. You can also contact the local health department to see what is offered
in the community. The National Cancer Institute’s Cancer Information Service can
direct you to local programs.
National Cancer Institute’s Cancer Information Service
Toll Free: (800) 422-6237
www.cancer.gov
Partnership for Assistance
Programs that can provide help with prescription drugs. Partnership for
Prescription Assistance (PPA) can help you locate assistance programs from
pharmaceutical companies, as well as state programs that include assistance for
the uninsured. Toll Free: (888) 477-2669
www.pparx.org
WCC Cancer Connection 36
LOCAL FINANCIAL RESOURCES
Assistance With Rent, Utilities and/or Basic Needs
American Red Cross of KC
Midtown (816) 931-8400
Greater KC (816) 841-5291
Cancer Action, Inc.
Wyandotte (913) 321=880
Coventry Office
Jackson County (913) 642-8885
Coventry Office
Eastern Jackson County (816) 350-8881
Community Assistance Council
Kansas City, MO (816) 763-3277
Community Service League
Blue Springs (816) 229-0033
Independence (816) 254-4100
Grandview Assistance Program (816) 761-1919
The Financial Planning Association (913) 381-4458
Greater Kansas City Chapter www.fpakc.org
Lee’s Summit Social Services (816) 525-4357
Metropolitan Lutheran Ministries (816) 931-0027
Mid America Assistance Coalition (816) 561-2727
or (816) 561-3339
www.maaclink.org Palestine Senior Center (816) 921-1963
Raytown Emergency Assistance (816) 356-0054
WCC Cancer Connection 37
Salvation Army
Independence (816) 252-3200
St. Vincent DePaul Catholic Church (816) 923-7442 or
(816) 523-3909
United Services
Community Action (816) 358-6868
Of Greater Kansas City (816) 254-4100
Energy Assistance on Your Utility Bill
Missouri Gas Energy
The Cold Weather Rule period begins November 1 and remains in effect through
March 31. It is designed to help customers with delinquent accounts avoid service
disconnections or to get service reconnected during the winter.
Contact Missouri Gas Energy if you are unable to pay the full amount of your
natural gas bill and want to take advantage of MGE’s Cold Weather Program this
winter. Ask to apply for a payment plan under the Cold Weather Program. They
will gather the required information and ask you to make an initial minimum
payment. Each month, you’ll receive a bill for the amount agreed upon in your
payment plan. Paying this amount will enable you to pay for all past due, current
and projected gas use over the next 11 months.
Kansas City Metropolitan Area
(816) 756-5252
Help Outside the Kansas City Metropolitan Area
Contact the following number and ask to apply for a payment plan under the Cold
Weather Program.
Cold Weather Program
Toll Free: (800) 582-1234
WCC Cancer Connection 38
Other Financial Assistance May Be Available
There may be funds available to help pay your heating bill. Households meeting
government income eligible guidelines may receive assistance under the Low Income
Home Energy Assistance Program (LIHEAP). For more information, contact your
local Community Action Agency Office. If you qualify for LIHEAP assistance, that
amount you receive can be applied to your Missouri Gas Energy account as a
―pledge‖ toward your initial payment or toward your agreed-upon monthly payment.
Missouri
(573) 751-6789
www.dss.mo.gov/fsd/liheap.htm
Kansas
Toll Free: (800) 432-0043
www.srs.ks.gov/services/Pages/LIEAP.aspx
For more information about financial assistance to help with your energy costs this
winter, contact your local Community Action Agency Office. Other sources of
assistance may be available through social services or charitable organizations.
Greater Kansas City Area
MAAC HELP LINK (information hotline) (816) 561-3339
(Dollar-Aide, Neighbors Helping Neighbors, Warmth & Light Funds)
United Services Community Agency (816) 358-6868
WCC Cancer Connection 39
NATIONAL FINANCIAL RESOURCES
American Cancer Society
For all cancer diagnoses. Access to referrals for financial assistance through their
Community Resource Connection (CRC) database. Some local offices may have
limited grants for transportation and paid medication.
Toll Free: (800) 227-2345
www.cancer.org
Brain Tumor Society – BTS Cares
For patients with primary brain tumors only. Grants up to $2,000 a year for non-
medical related costs such as transportation, homecare, home adaptations and
childcare.
www.tbs.org
CancerCare
For all cancer diagnosis. Limited grants for transportation, homecare, childcare
and pain medications. Also Linking Arms Program can provide grant for breast
cancer patients to help with oral medications and lymphedema supply costs.
Toll Free: (800) 813-4673
www.cancercare.org
Center for Disease Control and Prevention – Cancer Prevention and Control
The Breast and Cervical Cancer Treatment Act of 2000 extends Medicaid
coverage for treatment to women who have been screened and diagnosed through
the National Breast and Cervical Cancer. Early Detection Program in states that
have agreed to provide this service.
Toll Free: (800) 232-4636
www.cdc.gov/cancer/survivorship
HealthWell Foundation
Addresses the needs of individuals who cannot afford their insurance copayments,
premiums, coinsurance or other out-of-pocket health care costs
Toll Free: (800) 675-8416
www.cdc.gov/cancer/nbccadp
WCC Cancer Connection 40
The Leukemia and Lymphoma Society
This program helps patients meet their health insurance or Medicare Plan B or D
premiums or co-payment obligations. Household income must be at or within 500%
above the US Federal Poverty guidelines.
Toll Free: (877) 557-2672
www.LLS.org/copay
Leukemia and Lymphoma Society
For Leukemia, Lymphoma, Hodgkin’s diseases and myeloma. Grants up to $500 a
year for some uncovered expenses, including prescriptions, certain medical tests
and transportation costs.
Toll Free: (800) 955-4572
www.LLS.org
Lymphoma Research Foundation
Grants up to $250 for expenses that include travel and transportation, temporary
lodging, childcare and homecare, cosmetic devices, such as wigs and hats, medical
devices and hygiene products.
Toll Free: (800) 500-9976
www.lymphoma.org
National Brain Tumor Foundation
For patients with primary or metastatic brain tumors ages 18 and older. Grants up
to $1,000 for treatment related expenses.
Toll Free: (800) 934-2973
Email: [email protected]
www.braintumor.org
National Marrow Donor Program
For patients in need of life saving bone marrow or cord blood cell transplant
through the National Marrow Donor Program (NMDP). Funds available for
unrelated donor search through NMDP, as well as out-of-pocket expenses following
an unrelated donor or cord blood transplant through the NMDP; such as lodging,
food, transportation, co-pays and insurance premiums. Grant applications only
accepted through qualified NMDP affiliated transplant center personnel.
Toll Free: (888) 999-6743
Email: [email protected]
www.marrow.org
WCC Cancer Connection 41
National Organization for Rare Disorders
Assists uninsured or under-insured individuals in securing life-saving or life
sustaining medications.
(203) 744-0100
www.rarediseases.org
Partnership for Prescription Assistance
Partnership for Prescription Assistance offers a single point of access to more
than 475 public and private patient assistance programs, including more than 150
programs offered by pharmaceutical companies. Includes assistance for the
uninsured.
Toll Free: (888) 477-2669
www.pparx.org
Patient Access Network Foundation
Assists patients who cannot access the treatments they need due to out-of-pocket
health care costs, including deductibles, co-payments and co-insurance.
Toll Free: (866) 316-7263
www.patientaccessnetwork.org
Patient Advocate Foundation’s Co-Pay Relief Program
Provides direct co-payment assistance for pharmaceutical products to insured
patients (including Medicare Part D beneficiaries) who financially and medically
qualify.
Toll Free: (866) 512-3861
www.copays.org
Patient Services Incorporated (PSI)
Assists patients in locating health insurance policies. Provides health insurance
premium assistance (including COBRA) and co-payment assistance (including help to
satisfy Medicare Part D true out-of-pocket).
Toll Free: (800) 366-7741
www.uneedpsi.org
Sensational In Survival
Financial assistance for those battling breast cancer.
Email: [email protected]
www.senstionalinsurvival.org
WCC Cancer Connection 42
INSURANCE ASSISTANCE
CancerCare Co-Payment Assistance Foundation
Provides co-payment assistance for pharmaceutical products to insured individuals
who are covered by insurance. Household income must be at or within 400% US
Federal Poverty guidelines for people residing and receiving treatment in the US or
its territories. Covers Breast Cancer, Lung Cancer, Colorectal Cancer, Pancreatic
Cancer.
Toll Free: (866) 552-6729
Chronic Disease Fund
Co-payment assistance for pharmaceutical products for patients with private
insurance or Medicare Part D. Patients who utilize a participating pharmacy can
have their out of pocket expenses remitted by the fund directly to the pharmacy
Patients using non-participating pharmacies can submit receipts for
reimbursement. Covers Breast Cancer, Colon Cancer, Multiple Myeloma,
Non-small Cell Lung Cancer.
Toll Free: (877) 968-7233
www.cdfund.org
HealthWell Foundation
Addresses the needs of individuals who cannot afford their insurance co-payments,
premiums, co-insurance, or other out-of-pocket health care costs.
Offers assistance for the Breast Cancer, Carcinoid tumors and related symptoms,
Chemotherapy Induced, Anemia/Neuropenia, Colorectal Cancer, Cutaneous T-Cell
Lymphoma, Head and Neck Cancers, Hodgkin’s Disease, Non-Hodgkin’s Lymphoma,
Non-Small Cell Lung Cancer, Wilms’ Tumor.
Toll Free: (800) 675-8417
www.healthwellfoundation.org
The Leukemia & Lymphoma Society’s Co-Pay Assistance Program
Helps patients meet their health insurance or Medicare Plan B or D premiums or
co-payment obligations. Household must be at or within 500% above the US
Federal Poverty guidelines for people residing in the United States and Puerto
Rico. Covers Acute Myelogenous Leukemia, Chronic Lymphocytic Leukemia,
Lymphoma, Multiple Myeloma, Myelodysplastic Syndrome.
Toll Free: (877) 557-267 www.LLS.org/copay
WCC Cancer Connection 43
National Organization for Rare Disorders (NORD) Assists underinsured individuals in securing medications including Trisenox,
Theracys, and Matulane. Covers Advanced Renal Cell Carcinoma, Hepatocellular
Carcinoma, Hodgkin’s Lymphoma, Paroxysmal Nocturnal Hemoglobinuira (PNH).
Toll Free: (800) 999-6673
(203) 744-0100
www.rarediseases.org
National Patient Advocate Foundation (NPAF)
Creates awareness of access to insurance friendly health care for evolving
therapies and therapeutic devices.
(202) 347-8009
www.npaf.org
Partnership for Prescription Assistance (PPA) Offers a single point of access to more than 475 public and private patient
assistance programs, including more than 150 pharmaceutical company programs.
Includes assistance for the uninsured.
Toll Free: (866) 477-2669
www.pparx.org
Patient Access Network Foundation
Assists patients who cannot access the treatments they need do to out-of-pocket
health care costs including deductibles, co-payments, and co-insurance. Covers
Breast Cancer, Colorectal Cancer, Cutaneous T-Cell Lymphoma, Multiple Myeloma,
Myelodysplastic Syndrome (MDS) Anemia (Covers all patient groups including those
with Chemo Induced), Non-Hodgkin’s Lymphoma, Non-Small Cell Lung Cancer,
Pancreatic Cancer, Oncology Cytoprotection.
Toll Free: (866) 512-3681
www.copays.org
Patient Services Incorporated (PSI)
Assists patients in locating health insurance policies. Provides health insurance
premium assistance (including COBRA) and co-payment assistance (including help
satisfying Medicare Part D true out-of-pocket). Covers Bone Metastases, Chronic
Myeloid Leukemia, Chronic Myelocytic Leukemia, Cutaneous T-Cell Lymphoma,
Gastrointestinal Stromal Tumors.
Toll Free: (800) 366-7741
www.uneedpsi.org
WCC Cancer Connection 44
MEDICATION RESOURCES Kansas City’s Medicine Cabinet
Independence Community Service League
Provides emergency medical assistance, one time per year. This program does
NOT cover Medicare/Medicaid co-pays, emergency room visits, pre-existing
medical expenses, routine doctor’s visits and hospitalization. Income guidelines
apply. Call for appointment.
Dental emergencies
Diabetic supplies
Durable medical equipment
Optical care
Prescriptions (no controlled substances)
Limited inventory of over-the-counter medical supplies.
300 West Maple
Independence, MO 64050
(816) 254-4100
Patients First Pharmacy
Home delivery of medications. Fast, easy and FREE. Call in refills to the pharmacy
or have physician call in new prescriptions. They pick up your handwritten
prescription the next business day.
406 West 34th Street, Suite 812
Kansas City, MO 64111
(816) 931-2293
Missouri Prescription Plan
Save money on prescription drugs.
Toll Free: (800) 375-1406
www.morx.mo.gov
Patient Access Network Foundation
Access to needed health services for under-insured and insured patients who
cannot afford out-of-pocket costs associated with their treatment.
Toll Free: (866) 316-7263
www.patientaccerssnetwork.org
WCC Cancer Connection 45
LOCAL MEDICAL EQUIPMENT RESOURCES
American Home Patient (816) 241-4141
www.canceractionkc.org
AT Recycling (Kansas City) Program (816)-231-7166
(Durable Medical Equipment ((DME))
Cancer Action
Eastern Jackson County Office (816) 350-8881
Coalition for Independence (913) 321-5140
Collaboration Works (816) 421-1305
Doctor’s Equipment (816) 523-6644
Kansas City Home Medical Supply
Kansas City, KS (913) 281-5121
Overland Park, KS (913) 385-2020
Kansas City Medical Equipment/Supplies (816) 444-4870
Medic House
Independence, MO (816) 461-7676
Rechargeable Batteries for Electrolarynx Speakers
Jim Lombardo (816) 373-7564
WCC Cancer Connection 46
CANCER ACTION MEDICAL SUPPLIES & EQUIPMENT
Eastern Jackson County Office
(816) 350-8881
www.canceractionkc.org
Please note that most of these items are donations
Equipment
Bath/shower benches
Bath/shower benches with backs
Bath transfer boards
Bathtub security rails/bars
Commodes
Hand-held showers
Quad canes
Reach extenders (grabbers)
Toilet seat risers
Toilet frames with arms
Walkers
Wheelchairs
Medical Supplies
4x4 gauze bandages
4x4 slitted/drain bandages
Ace bandages
Adhesive remover
Alcohol/Betadine wipes
Applicators/swabs
Bed pads (cloth, washable)
Bed pads (cloth, disposable)
Bed pads/Chux (plastic,
disposable)
Cleansing sprays/gels
Depends and pull-ups
Dressing change trays
Dressing retention sheets
Duoderm
Internal feeding kits
Face masks
Fait/transfer belts
Gauze rolls/sponges (all sizes)
Gloves
Kangaroo pump sets
Medical tape
Mouth swabs
Oral medicine doses
Ostomy supplies
Pill boxes
Stoma paste/adhesives
Syringes
Tegaderm
Tube feeding syringes
Urostomy supplies
Wound-care supplies
Nutrition
Boost – Regular and diabetic
FiberSource
Ensure
Ultra-Cal
Bibs
WCC Cancer Connection 47
Tracheotomy Supplies
Trach cleaning tray kits
Trach tubes
Wigs and Mastectomy Supplies
Breast prosthesis & bras
Hats/turbans
Scarves
Wigs
Comfort Items by
Made by Volunteers
Afghans
Bed pads (cloth,
disposable)
Hospital bed sheets
Booties/slippers
Gowns/pajamas
Neck pillows
Pressure-point pillows
WCC Cancer Connection 48
HEALTH CARE SCREENINGS AND REFERRALS
Healthcare Costs
Cabot Westside Clinic (816) 471-0900
Candelighters Childhood Cancer Foundation
Toll Free: (800) 366-2223
Clay County Public Health Center (816) 792-1319
Department of Social Services Division of Family Services
(for elderly, those with permanent disability, blind) (816) 325-5820
Duchesne Clinic (Wyandotte County) (913) 321-2626
El Centro (913) 281-1186
HealthWell Foundation Toll Free: (800) 675-8417
Health Resource Library (816) 415-7778
Hill-Burton Free Hospital Care www.hrsa.gov/hillburton
Jackson County Free Health Clinic (816) 404-6455
Kansas City Free Health Clinic (816) 753-5144
Kansas City’s Medicine Cabinet (816) 931-0027
National Marrow Donor Program Toll Free (800) 627-7692
www.marrow.org
Northland CARE/Metro CARE (816) 531-8432
Northland Health Care Access (816) 682-9944
Patient Advocate Foundation Toll Free: (800) 532-5274
WCC Cancer Connection 49
Patient Access Network Toll Free: (866) 316-7263
Platte County Health Department
North (816) 858-2412
South (816) 587-5998
Social Security Administration Toll Free: (800) 772-1213
The Leukemia & Lymphoma Society Toll Free: (800) 955-4572
United Way 2-1-1
Mammogram and/or Pap Test
Breast and Cervical Cancer Control Project (573) 526-0445
Show Me Healthy Women National Cancer Institute (800) 422-6237
YWCA ENCOREplus® (816) 232-4481
WCC Cancer Connection 50
SUPPORTIVE SERVICES AND THERAPIES
A Balanced Body
Free exercise class for caregivers, people with chronic health issues, and others
wanting to strengthen their muscles.
Sponsored by Community Care Coalition
Menorah Medical Center
5721 West 119th Street
Overland Park, KS 66209
(913) 478-7742
WCC Cancer Connection 51
TRANSPORTATION RESOURCES
Transportation
Note: Most have a fee involved
American Cancer Society, Road to Recovery (913) 432-3277
Angel Flight (816) 421-2300
Toll Free: (866) 569-9464
Toll Free: (800) 474-9464
(914) 329-1313
www.angelflightcentral.org
Budget Taxi (816) 835-7172
Cancer Care Toll Free: (800) 813-4673
Clay County Senior Services (816) 455-4800
Corporate Angel Network, Inc. Toll Free: (866) 328-1313
Free flights for cancer patients to treatment centers.
www.corpangelnetwork.org
Dial-A-Ride (816) 325-7399 or
(913) 573-8351
Dream Works Inc. (913) 281-8695
.www.thedreamworksinc.com
Episcopal Social Services (816) 941-2707
Kansas City ADA Assistance Office (816) 513-2533
Kansas City VA Medical Center – Social Work Program
(816) 861-4700
KC Connect Seniors – A program of MARC, Department of Aging Services
(816) 421-4980
Toll Free: (800) 593-7948
WCC Cancer Connection 52
Lafayette County Cancer Coalition (660) 584-7740
Liberty Hospital (816) 792-7105
Free transportation for Liberty residents to and from the hospital for treatment.
To schedule a ride, call Monday through Friday, 8:00 a.m. through 4:30 p.m.
Transportation is based on availability.
Metro Bus Accessibility Program (816) 346-0310
Mid-America Wheelchair Services (816) 525-2790
National Patient Travel Helpline Toll Free: (800) 296-1217
OATS (816) 380-7433
Platte County Senior Citizens Service Fund (816) 270-2800
Safe Plus Way (816) 361-5992
Share-A-Fare (816) 346-0810
Shepherd’s Center Toll Free: (800) 547-7073
(816) 960-2022
www.Shepardcenter.org
Saint Luke’s Cancer Institute (816) 932-8638
Saint Luke’s Northland Hospital (816) 880-6477
The Cancer Institute (816) 751-2929
WCC Cancer Connection 53
Vehicle Donation Programs
ACS Vehicle Donation Program Toll Free: (877) 999-2277
Cars for KC Kids Catholic Charities Toll Free: (866) 543-242-3427 or
(913) 621-5255 x 204
The Family Conservancy (816) 418-8400
Provides a vehicle, if person in need meets certain qualifications.
WCC Cancer Connection 54
LOCAL HOME REPAIR, WEATHERIZATION & BARRIER
REMOVAL
Housing Counseling and Grant Programs in Kansas City, MO
Bishop Sullivan Center (816) 231-0984
Guadalupe Center, Inc. (816) 561-6885
Housing Information Center (816) 931-0443
Housing Rebate Program (816) 735-8600
Metropolitan Energy Center (816) 531-7283
Minor Home Repair (816) 921-1963
Neighborhood & Community Service Property Preservation Division
(816) 513-3025
Shepherd’s Center (816) 444-1177
Home Modification in Lee’s Summit MO
Lee’s Summit Accessibility Modifications Program (LAMP)
(816) 561-0304
Contact Patrick Palmer and/or Clayton Porter at Whole Person, Inc.
Lee’s Summit Social Services (816) 525-4357
Platte County
Platte County Senior Citizens Service Fund (816) 270-2800
WCC Cancer Connection 55
LEGAL ASSISTANCE
American National Coalition of Cancer Survivorship
Toll Free: (888) 650-9127
American Civil Liberties Union (816) 756-3113
Better Business Bureau (816) 421-7800
Consumer Credit Counseling (816) 753-0535
Elder & Disability Law Firm (816) 220-4119
Human Resources Department
Kansas (913) 596-3500
Missouri (816) 513-1914
Legal Aid of Western Missouri
KC Central (816) 474-6750
KC West (816) 474-9868
Legal Services of Missouri Toll Free: (800) 444-4863
www.lsmo.org
Missouri State Public Defender (816) 889-2099
Missouri Bar Lawyer Referral Service (816) 221-9472
Missouri Attorney General Consumer Protection Hotline
Toll Free: (800) 392-8222
Patient Advocate Foundation Toll Free: (800) 532-5274
Public Service Commission Toll Free: (800) 392-4211
VA Medical Center – Kansas City (816) 861-4700
www.Kansascity.VA.gov
WCC Cancer Connection 56
LOCAL SUPPORT GROUPS AND COUNSELING
RESOURCES
Please check with Cancer Action or the local American Cancer Society Chapter
for a quarterly list of support groups:
Cancer Action Eastern Jackson
County
4010 South Lynn Court
Independence, MO 64055
(816) 350-8881
American Cancer Society - KC
6700 Antioch, Suite 100
Merriam, KS 66204
(913) 432-3277
Additional Support Services
Call for Information
Camp Quality of Greater Kansas City www.campqualitykc.org
Cancer Rehabilitation Specialists, Inc, Aquatic Exercise Therapy
Overland Park, KS (913) 491-4404
(913) 754-0365
www.crskc.net Comprehensive Mental Health Services
Independence, MO (816) 254-3552
Blue Springs, MO (816) 229-1187
Coventry Care Coalition, A Balanced Body Overland Park,
(913) 498-7742
Diakonos Counseling – Professional Christian based counseling
(816) 373-9240
Elizabeth Hunter-Blank, LCSW (816) 582-3877
Heart of America Family Services (816) 753-5280
WCC Cancer Connection 57
Integrative Therapy Concepts, Art, Pain & Other Ancillary
Services Leawood, (913) 901-9200
www.integrativetherapyconcepts.com
Kansas City Free Health Clinic (816) 777-2722
Pathways – Belton, MO (816) 322-4332
Research Psychiatric Center (816) 444-8161
Saint Luke’s Cancer Institute Cancer Resource Center (816) 932-9007
www.saintlukeshealthsystem.org/slhs/Locations/Saint_Lukes_Cancer_Institute
Solace House (grief support for children) - Shawnee Mission, KS
(913) 341-0318
Swope Parkway Health Center (816) 923-5800
The Mental Health Association of the Heartland
Mental Health Help Line (913) 281-1234
Teen Connection Help Line (913) 281-2299
Tri-County Mental Health Services (816) 468-0400
UMKC Community Counseling Svcs (816) 235-2725
Wyandotte KS Center Community Support Services (913) 287-0007
24 hour Crisis Line (913) 831-1773
WCC Cancer Connection 58
Group Services
Community of Christ Cancer Support Group
Independence, MO (816) 254-2211
Grandview Support Group - St. Matthew Presbyterian Church
(816) 761-3837
Men’s Group - The United Methodist Church of the Resurrection
(913) 897-0120
Positive Encounters Young Survivors’ - Support Group
(913) 438-8000
Raytown Cancer Support Group – First Baptist Church of Raytown
(816) 353-1994
Women’s Group - The United Methodist Church of the Resurrection
(913) 897-0120
WCC Cancer Connection 59
ADVOCACY AND EDUCATIONAL RESOURCES
AARP Kansas State Office (785) 232-4070
AARP Missouri State Office (816) 561-0044
American Cancer Society (816) 842-7111
www.cancer.org
American Red Cross (816) 931-6662
ARCH National Respite Network and Resource Center
Toll Free: (888) 671-2594
Cancer Support Program – Menorah Medical Center (913) 498-7742
Caregiver’s Marketplace Toll Free: (877) 595-6227
Center for Medicare Education (202) 508-1209
Coalition for Independence (913) 631-8811
Community Care Coalition (913) 649-2121
Community Connection Toll Free: (800) 235-5503
Creative Care Consultants (816) 243-1311
Toll Free: (800) 367-9369
Elder Abuse & Neglect
Missouri Hotline Toll Free: (800) 392-0120
Kansas Hotline Toll Free: (800) 922-5330
Elder Law Hotline Toll Free: (888) 353-5337
Family Caregiver Alliance (415) 434-3388
Hope Lodge (913) 383-8700
WCC Cancer Connection 60
Meals on Wheels
Missouri (816) 474-4240
Kansas (913) 477-8120
Missouri Alliance Home Care (573) 634-7772
Missouri Department of Health & Senior Services (573) 751-6400
Missouri Division of Finance (573) 751-3242
National Association of Insurance Commissioners (816) 783-8300
National Family Caregivers Association Toll Free: (800) 896-3650
www.thefamilycaregiver.org
National Medicare Hotline Toll Free: (800) 633-4227
Social Security Administration Toll Free: (800) 772-1213
Turning Point (913) 383-8700
WCC Cancer Connection 61
HEALTH CARE TIPS AND RESOURCES
DENTAL CARE
Talk with your dentist before you start chemotherapy. You may want your
teeth cleaned PRIOR to treatment as you are not able to have any dental
work done during chemotherapy. The dentist may want you to use special
toothpaste. Avoid dental work. Always consult your oncologist.
Keep mouth or dentures clean. Use a soft toothbrush. If still painful, use
foam toothettes. These are available in most pharmacies.
Rinse and gargle at least four times daily to keep your mouth clean. You can
try a solution of one teaspoon of baking soda and one teaspoon of salt to a
quart of water. This must be mixed daily or it can be a source of harmful
bacteria.
EXERCISE
Integrative Therapy Concepts LLC
Assists cancer survivors in designing a safe and effective exercise and wellness
program.
11501 Grenado Lane
Leawood, KS 66211
(913) 901-9200
www.integrativetherapyconcepts.com
HAIR/SCALP CARE
Don’t bleach or color your hair and don’t get a permanent.
Sleep on satin pillowcase to prevent hair friction.
Don’t use hair dryers, hot roller or curling irons. This may damage hair and
make hair loss more severe.
Use soft-bristle brush and a gentle Ph-balanced shampoo.
WCC Cancer Connection 62
LYMPHEDEMA CARE
For women who have had lymph nodes removed, ask your doctor about wearing a
compression sleeve on arm of affected side, particularly if you are going on a plane
trip or trip to higher altitude, such as Colorado, to help prevent lymphedema.
After arriving, keep sleeve on for couple hours to help acclimate to the altitude.
Cancer Action
Provides a variety of necessary items needed for patients currently undergoing
cancer treatment or have cancer-related medical needs.
4010 South Lynn Court
Independence, MO
(816) 350-8881.
www.canceractionkc.org
PERSONAL HYGENE
Perform excellent daily personal hygiene.
Wash hands frequently.
Use alcohol-free mouthwash.
Do not pick cuticles.
Use deodorant not antiperspirant. Antiperspirants block sweat glands and
may promote infection.
If menstruating, use sanitary pad rather than tampons to prevent infection.
Do not use dental floss.
Keep lips moist with K-Y Jelly or Chap Stick. DO NOT use Vaseline because
the petroleum base may cause infection.
Avoid situations that will increase your chance of getting an infection.
Avoid crowds.
Don’t use public transportation.
Stay away from people with colds.
WCC Cancer Connection 63
PERSONALITY
Don’t compare your life to others. Each person’s journey is different.
Don’t have negative thoughts about things you cannot control.
Invest your energy in the positive present moment.
Don’t overdo. Keep your limits.
Don’t take yourself so seriously. No one else does.
Don’t waste your precious energy on gossip.
Dream more while you are awake.
Envy is a waste of time. You already have all you need.
Forget issues of the past. Don’t remind your partner of his/her mistakes of
the past. That will ruin your present happiness.
Life is too short to waste time hating anyone. Don’t hate others.
Make peace with your past so it won't spoil the present.
No one is in charge of your happiness except you.
Realize that life is a school and you are here to learn. Problems are simply
part of the curriculum that appear and fade away. Each lesson you learn will
last a lifetime.
Smile and laugh more.
You don’t have to win every argument.
Agree to disagree.
SKIN CARE DURING RADIATION
Several retailers carry special gels recommended for application after each
radiation treatment. Ask your radiation oncologist about using a store brand of
aloe vera such as; Fruit of the Earth 100% Pure Aloe Vera at Walmart, for skin
care (dry skin).
SOCIAL
Call your family often.
Each day give something good to others.
Forgive everyone for everything.
Spend time with other people.
WCC Cancer Connection 64
WIGS/TURBANS/HATS
American Cancer Society – free wigs
6700 Antioch Road, Suite 100
Merriam, KS 66204
Phone: (913) 432-3277
www.cancer.org
Brian Joseph’s
The owner and founder, Patricia Turkal, is a breast cancer survivor. They offer
natural looking wigs.
10560 Barkley, Suite 300
Overland Park, KS 66212
Toll Free: (800) 889-860
(913) 649-6405
www.brianjosephs.com
Cancer Action – free wigs, turbans and hats
Eastern Jackson County office
4010 South Lynn Court
Independence, MO 64055
816-350-8881
www.canceractionkc.org
Designer Wig Studio
4546 Main Street
Kansas City, MO
(816) 444-5644
TIP
To prevent scalp discomfort associated with losing and growing hair back, use
Formula 1 Shampoo, available at Brian Joseph’s.
WCC Cancer Connection 65
WOUND CARE
If you cut or scrape the skin, clean affected area immediately with soap and
water. Bandage if necessary. Use Polysporin, Neosporin or Bactene. Talk
with your oncologist about having a supply of antibiotics on hand during
treatment.
Use extra precautions to decrease your chance of injury and infection.
Wear sunscreen with sun protection (SPF) of at least 15.
Protect hands from cuts and burns.
When shaving under arms or legs, use an electric razor to avoid breaks in
the skin.
Do not receive any vaccinations, including the flu vaccine that your oncologist
has not approved.
Avoid activities that are prone to falling or injury.
Wear shoes always to prevent cuts on feet.
Avoid manicures, especially those that cut cuticles.
For information on decubitus products versus stasis ulcer care
products, comfort items and incontinence/ostomy related skin
problems:
Restored Images
4116 Northeast Vivion Road
Kansas City, MO 64119
Toll Free: (800) 322-9665 or
(816) 454-2900
www.restoredimages.com
WCC Cancer Connection 66
FOOD AND NUTRITION
EATING TIPS
Try eating small meals and snacks during the day.
When hungry, eat more than usual.
Eat when you are able to eat. Meals and snacks should be high in protein and
calories for strength.
May have more appetite in early morning.
Keep ready-to-eat snacks handy.
If no appetite, consume a liquid replacement product.
On days when you don’t feel like eating, drink plenty of fluids, especially
water.
If immune system is weak, avoid foods that can expose you to bacteria.
Examples: raw and undercooked meats, fish, poultry, eggs or egg substitutes
and tofu.
Plan ahead. Keep foods handy that need little preparation.
Cook meals in advance and freeze small portions.
Take medications as prescribed to prevent or ease side-effects of
treatment.
Take multi-vitamins with iron daily unless prohibited by the type of
treatment you are taking. Check with your physician.
Eat lightly one to two hours before or after treatment. Avoid spicy foods.
Be sure to prevent or treat constipation or diarrhea. Either one can
decrease the appetite.
Eat meals in a stress-free, smoke-free, clean environment.
Drink at least eight 10 ounce glasses of fluid daily to prevent dehydration.
Notify your oncologist or oncology nurse if you are experiencing side effects
that decrease your appetite.
WCC Cancer Connection 67
WAYS TO INCREASE CALORIC INTAKE
Butter and margarine
Milk and cream
Cheese
Cream cheese
Sour cream
Salad dressing, mayonnaise
Honey, jam and sugar
Dried fruits
Eggs
WAYS TO INCREASE YOUR PROTIEN
Hard or semi-soft cheese
Milk
Nonfat instant dry milk
Commercial meal replacement product
Ice cream, yogurt and frozen yogurt
Nuts, seeds and wheat germ
Meat and fish
Beans/legumes
Eat a well-balanced diet.
Eat foods high in iron, including leafy vegetables, liver and cooked red meats.
Drink plenty of fluids.
Avoid caffeine and large, late meals.
WCC Cancer Connection 68
NUTRITIONAL COUNSELING
Menorah Medical Center – nutritional counseling class for oncology patients.
Class is one time for 1 to 1 ½ hours on the first and third Tuesday of the month.
Dillon Dreher RD, LD
Menorah Medical Center
5721 West 119th Street
Overland Park, KS 66209
(913) 498-7742 www.menorahmedicalcenter.com Integrative Therapy Concept LLC - nutritional counseling
500 West 95th Street
Suite 100
Prairie Village, KS 66207
(913) 438-8000
www.integrativetherapyconcepts.com
TIP
Allow your family and friends to help with shopping and cooking. Try Social Suppers.
You can make your own meals or they will make them for you.
PREPARED MEALS
One Good Meal
P.O. Box 2222
Lee’s Summit, MO 64063-2912
(816) 547-6394
Email: [email protected] www.onegoodmeal.org
At Your Door
Contact Susie
(816) 537-8015
Social Suppers
3753 S.W. Raintree Drive
Lee’s Summit, MO
(816) 623-9400
WCC Cancer Connection 69
TYPES OF TREATMENT & SIDE EFFECTS
BONE MARROW AND STEM CELL TRANSPLANTATION
Bone and marrow transplantation is a medical (not surgical) procedure, lasting weeks
to months from start to finish in which diseased marrow (a spongy, fatty tissue found
on the inside of larger bones) or immune system is replaced by a healthier one. For
people with cancer, the goal is to destroy every cancer cell.
CANCER MEDICATION
Contact your medical team as some pain medications can cause constipation and
eventually blockage of the digestive track if not treated.
CHEMOTHERAPY
Chemotherapy is the use of drugs that kill cancer cells. Systemic chemotherapy is
delivered through the blood stream. This targets cancer cells throughout the body.
Newer chemotherapy drugs produce fewer and less severe side effects. There are
also drugs for reducing the side effects of chemotherapy. Generic side effects from
chemotherapy listed below, depends on type of drugs, dosage and your body’s reaction
to the medication.
Fatigue Pain
Nausea and vomiting
Hair loss
Anemia
Change in mood, confusion or
depression
Infections due to a weakened
immune system
Blood-clotting effects (unexpected
bruising, red spots under skin,
reddish urine or black or bloody
stools)
Diarrhea or constipation
Nerve and muscle effects
Mouth and throat problems, such
as mouth sores
Minor skin problems
Nail problems
Kidney and bladder effects
Flu-like symptoms
Temporary or permanent
infertility in men
Irregular menstrual period or
cessation of menstruation in
women
Tingling or numbness in arms and
legs
WCC Cancer Connection 70
HORMONE THERAPY
Hormone therapy is used for cancers such as breast, prostate. reproductive systems
and thyroid. These cancers can grow and spread through the body’s natural hormones.
Hormone therapy fights cancer by changing the amount of hormones within the body.
IMMUNOTHERAPY (BIOLOGIC THERAPY)
Immunotherapy (Biologic Therapy) boosts the body’s natural defenses and helps fight
cancer. Immunotherapy uses material either made by the body or in a laboratory to
bolster, target and/or restore immune system function. This therapy may include
cancer vaccines (an investigational approach to help immune systems fight cancer).
The side effects of Immunotherapy generally include flu-like symptoms such as
chills, nausea and fever.
RADIATION THERAPY AND SIDE EFFECTS
Radiation therapy uses high-energy x-rays and other related particles to reduce and
kill cancer. The most common type of radiation is called ―external-beam radiation.‖
The beam is aimed from the outside of the body on the location of the cancer.
Radiation implants are called ―internal radiation therapy or brachy therapy.‖ The goal
of radiation therapy is to shrink cancer before surgery, eliminate cancer cells in other
parts of the body, to keep tumors from returning after surgery and to eliminate pain.
Below is a list of generic side effects depending on the type of treatment and site of
radiation therapy.
Any site - redness, dryness, itchiness and peeling of skin
Head and neck therapy - dryness in mouth, throat and loss of ability to
taste
Brain therapy – memory loss, decreased desire for sex or little tolerance
for cold weather
Chest therapy – shortness of breath, coughing or less tolerance for
exercise
Digestive track therapy may cause nausea, vomiting or diarrhea.
Testicle and pelvic area - loss of sperm production and erectile dysfunction
in men. Scarring or redness and tenderness in vagina for women.
WCC Cancer Connection 71
SURGERY
Surgery involves the removal of cancerous tissue from the body. Below are types of
cancer surgical procedures.
Surgical biopsies are for confirming and diagnosing cancer
Surgical removal of cancer to diagnosis and determine extent (called Staging)
Surgery for complete removal of cancer
Surgery for side effects of cancer (to remove obstructions and/or ease pain)
TARGETED THERAPY
Targeted therapy focuses on faulty genes or proteins that contribute to cancer
growth and development. Targeted therapy is usually done with other cancer
treatment such as chemotherapy.
WCC Cancer Connection 72
FREE CLASSES AND SERVICES
American Cancer Society
Look Good Feel Better, a free makeup session
Cancer Action
Free massages, classes and services
4010 South Lynn Court
Independence, MO 64055
(816) 350-8881
www.canceractionkc.org
Cancer Rehabilitation Specialists
Therapeutic aquatic exercise class
12000 West 110th Street, Suite 400
Overland Park, KS 66210
(913) 491-9404
Turning Point
Free classes, services and a monthly newsletter
8900 State Line Road, Suite 240
Leawood, KS 66206
(913) 383-8700
WCC Cancer Connection 73
TAKE CARE of YOU!
Get plenty of rest.
Accept peoples’ offer
of help. It’s a gift of
love and a genuine
offer of assistance.
We do it with joy.
The Cancer Connection can provide help to members in the following.
WCC Food Connection: Maggie Austin, Donna Miller
WCC Transportation: Linda Deupree, Sue Hart
Have friends or family help with shopping and cooking. Friends, remember:
meal delivery and gift cards for restaurants, grocery shopping or Social
Suppers are appreciated.
Get regular, light exercise such as walking. This can significantly help to
relieve fatigue.
Keep a journal. It gets things off your mind and helps keep track of your
treatments. You may find it helpful to keep a chronological list of
treatments, tests, medications, questions for doctors, etc. The WCC Cancer
Connection offers members a gift called ―The Journey‖ for those diagnosed
with cancer.
Find and enjoy quiet time. Time for ―just you‖ in a place of quiet and
solitude. The WCC Cancer Connection offers a gift called ―The Prayer
Guide‖ for those seeking to share a Bible verse, prayer and serene moment
with God.
WCC Cancer Connection 74
INSPIRATIONAL – BOOKS
WCC Library
Don’t forget to check out the WCC Library located on
the second floor outside the balcony area. Look for the
section marked Cancer Connection.
All Things Are Possible Pass the Word
by Barbara Milo Ohrbach
Anti Cancer – A New Way of Life
by David Servan-Schreiber
Bigger than Pink
by Lori Lober Founder of Touched by Cancer Foundation. Book available FREE.
www.touchedbycancerfoundation.org
Cancer, There’s Hope
by Richard and Annette Bloch
Available FREE by calling the Bloch Foundation Cancer Hot Line.
Toll Free: (800) 433-0464
Encouraging Words for Women
by Darlene Sala
Faith for a Lifetime
by Women of Faith
Fighting Cancer
by Richard and Annette Bloch
Available FREE by calling the Bloch Foundation Cancer Hot Line.
Toll Free: (800) 433-0464
God Always Has a Plan B
by Zondervan Publishing
WCC Cancer Connection 75
Guide for Cancer Supporters
by Richard and Annette Bloch
Available free by calling the Bloch Foundation Cancer Hot Line.
Toll Free: (800) 433-0464
Guide is also available on the web.
www.blochcancer.org
Nordies at Noon
by Patti Balwan, Kim Carlos, Jennifer Johnson and Jana Peters
Women under age of 30 diagnosed with breast cancer.
Safe in My Shepherd’s Arms
by Max Lucado
Support to Go – The Unbook for the Journey through Breast Cancer
by Pat Godfrey McRee
WCC Cancer Connection 76
GIFT IDEAS FOR THE PATIENT
If family or friends ask what they can get you, here
are a few ideas:
Gift cards for meals, cleaning, videos, movies.
These are great gifts for care providers too!
Note cards
Books
DVDs and CDs
Lip gloss or Chap Stick (for moisture)
Cetaphil (an odorless hand and body lotion available at such retailers as
Sam’s & Costco) etc.
Cuticle cream
Flowers (if the patient isn’t sensitive to scents) or balloons
Their time – to visit, to take you to appointments, to laugh, to cry, to pray.
WCC Cancer Connection 77
WORDS of ENCOURAGEMENT
―The Lord is good, a refuge in times of trouble.
He cares for those who trust him‖
Nahum 1:7
―When a believing person prays, great things happen.‖
James 5:16
This day, we put our faith in Christ as the Great Healer.
Let us form a vivid mental image of the Master visiting and laying
His hand on our heart, healing our mind, soul and body.
Let us draw upon Christ’s strength as we make this journey.
Let Him be our constant companion,
restoring our body for his purpose.
WCC Cancer Connection 78
A PRAYER FOR CANCER
Dearest Father, we pray to you on behalf of those who have been diagnosed with
cancer.
Although that word can strike fear into the heart of a human, we put our trust in
you. You are the mighty Lord and blessed Savior. In our time of need, we can
come to you and find rest. Touch the person that is sick and make them well.
Let theirs be a story that confounds the doctors.
Guide the doctors in their work. Let the work of researchers find a cure for this
disease. Even now, open the mind and eyes of those working in the clinics, that a
cure may be found.
Bless those family members and friends who stand beside those who are ill.
Comfort them and give them strength. Flood their hearts with grace that they
may minister to the sick around them. Open our heats that we can reach out in a
loving and compassionate way to those who need us.
In all things, blessed Lord, we trust in you. We ask for complete healing, but we
put our trust in you. No matter what, we are thankful that our souls find daily rest
in you and eternal rest in heaven. Bless your people and give them your peace that
passes understanding.
In Jesus’ Name, Amen.
Jeff Brinkman
WCC Cancer Connection 79
IF GOD BRINGS YOU TO IT – HE WILL BRING YOU THROUGH IT
Happy moments – praise God
Difficult moments – seek God
Quiet moments – worship God
Painful moments – trust God
Joyful moments – celebrate with God
This day – We Celebrate with God
Remember, the WCC Cancer Connection is here to help, offer hope, support and
love to the patient and family!
Contact Jonnie Wells at [email protected].
WCC Cancer Connection
